02.09.2019 Views

Autumn/Winter 2019

In this edition, we focus on the journey our families take here at Children’s Hospice South West. Hear from a family who are creating new memories in one of hospices, meet Laura, one of our Senior Sibling workers, and find out all about our latest news and events.

In this edition, we focus on the journey our families take here at Children’s Hospice South West. Hear from a family who are creating new memories in one of hospices, meet Laura, one of our Senior Sibling workers, and find out all about our latest news and events.

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Creating new memories<br />

at Little Bridge House<br />

Emma and Mark Smale recently returned<br />

to Little Bridge House for a stay with their<br />

daughters, Evie and Amelie, to show them<br />

why the hospice was such a special place for<br />

their first daughter, Imogen, who died in 2016.<br />

Page 2<br />

Imogen was born in July 2011 with a<br />

condition called Microcephaly, which left<br />

her blind, unable to swallow and with<br />

polymorphic epilepsy. She needed round<br />

the clock care, physiotherapy and multiple<br />

medications, and the family was referred<br />

to Children’s Hospice South West in March<br />

2012. The hospice provided Emma and<br />

Mark with support, advice and the chance<br />

to enjoy some much-needed sleep, while<br />

ensuring Imogen received the highest<br />

quality of care and plenty of fun too.<br />

When Imogen died in hospital in 2016, the<br />

family brought her to Little Bridge House<br />

to lay at rest in the hospice’s special<br />

Starborn room, so they could say their<br />

goodbyes in the place she loved the most<br />

in the world.<br />

Losing a child is the hardest thing a parent<br />

has to endure. We offer bereavement<br />

support for the whole family for as long<br />

as they wish. For many families, this can<br />

be several years, and our Care Teams are<br />

always happy to share memories or talk<br />

with a family about their child. Families are<br />

offered a bereavement stay or visit and are<br />

invited back to our Remembering Days and<br />

other activities. Our mothers’ and fathers’<br />

support groups also offer bereaved parents<br />

the chance to gather together and share<br />

experiences with others who have been<br />

through a similar journey.

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