Reach Out October 2019

Events
Communities Connecting
for TSC Global
Awareness Day 2019
Celebrations
On 15 May, Global Awareness Day inspired our TSC community
to raise awareness and over $12,000 for people living with TSC.
There were celebrations all around the country to mark this
special day for our rare disease.
Thank you for encouraging your communities to come
together in support of your loved ones who live with TSC. There
were pyjama days in Tasmania, morning teas in Victoria, dinners
in Perth, online Facebook campaigns as well as many people
taking selfies wearing their wave tattoos. What a wonderful
achievement!
Rob, Mimi and Roxie
Blackmans Bay
School PJ Day
In celebration of Roxie
Rob and Mimi’s daughter Roxie has TSC. For Global Awareness
Day, Rob purchased some #Tatts4TSC tattoos via our website
and posted a photo of his family wearing their wave tattoos on
Facebook. By adding a donate button to their post, and sharing a
little bit about their TSC journey, they inspired just over $4,000 in
donations in support of our work.
Heroes4Caleb in the Radio Hobart studio
#Heroes4Caleb
Caleb from Tasmania lives with TSC. His
big sister Jemima decided to inspire her
school, Blackmans Bay Primary School,
to hold a pyjama day for TSC Global
Awareness Day. They collected a gold
coin from each student who wore their
pyjamas to school. In return, students
received a wave tattoo. They raised over
$400.
The ABC local radio station heard
about Jemima’s plans and invited the
whole family into the studio for an
interview to help raise awareness for TSC
and promote Jemima’s terrific efforts.
You can listen to the interview on TSA’s
YouTube channel.
Caleb’s grandma Ros also got
involved. She held a morning tea with 30 of her friends from the
Davenport Uniting Church Fellowship Group and raised $550.
14
Reach
Out
OCTOBER 2019 ISSUE 110