Kidney Matters - Issue 7 Autumn 2019
Kidney Matters is our free quarterly magazine for everyone affected by kidney disease. This issue includes a delicious mexico bean nacho recipe from our Kidney Kitchen as well as articles about dialysis away from base, kidney stones, and a feature on looking out for children and young people with kidney disease. We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time over the past year talking to kidney patients on dialysis, asking them what we can do to address this. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world and what is available to them in terms of support and how to access it. Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
Kidney Matters is our free quarterly magazine for everyone affected by kidney disease.
This issue includes a delicious mexico bean nacho recipe from our Kidney Kitchen as well as articles about dialysis away from base, kidney stones, and a feature on looking out for children and young people with kidney disease.
We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time over the past year talking to kidney patients on dialysis, asking them what we can do to address this. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world and what is available to them in terms of support and how to access it.
Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
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16<br />
“You should not just rely on<br />
your dialysis team to detect<br />
a problem with your access.<br />
YOU should remain alert and<br />
highlight any concerns you<br />
may have about your access<br />
with your dialysis team. ”<br />
C O N T I N U E D<br />
If a bleed from a fistula or graft cannot be stopped<br />
with direct pressure over the affected area, you<br />
MUST avoid using large absorbent dressings and/<br />
or towels, as this will reduce pressure applied and<br />
its effectiveness to control the bleed. Locate your<br />
bottle top and apply hollow side facing your skin,<br />
maintaining pressure. By applying the bottle top to<br />
the bleed in this way you have sealed the bleeding area<br />
which will encourage the blood to clot more swiftly.<br />
If no blood is seen coming out from underneath the<br />
bottle top, it is safe to assume that the bleeding is<br />
controlled. If possible, then secure the bottle top<br />
firmly with a bandage.<br />
The priority with a life-threatening bleed is to get help;<br />
do not delay whilst trying to stop the bleed, as loss of<br />
consciousness through blood loss can occur quickly.<br />
In this situation, the focus is to stop the bleed and not<br />
to preserve the function of your fistula or graft.<br />
Alternative access can be created. Remember; there<br />
is only one you!<br />
Article by Claire Whitehill :<br />
Vascular Access Nurse<br />
Specialist, Queen Alexandra<br />
Hospital, Portsmouth<br />
How to order a ‘Put a lid on it’ keyring<br />
Patients/carers<br />
To order a <strong>Kidney</strong> Care UK ‘Put a lid on it’ keyring go to<br />
www.kidneycareuk.org/shop or call 01227 811662.<br />
Please note, there is no charge for your ‘Put a lid on<br />
it’ keyring but we do make a small charge to cover<br />
postage costs.<br />
Hospitals, dialysis units and KPAs:<br />
You can now order up to 30 ‘Put a lid on it’ keyrings<br />
as part of our range of free patient information.<br />
To order, complete one of our downloadable<br />
order forms available at:<br />
www.kidneycareuk.org/booklets<br />
If more than 30 keyrings are required, please<br />
contact us on 01420 541424 to check availability.<br />
Information from BRS and VASBI about life-threatening bleeds may be found at<br />
https://bit.ly/2OMtwdN<br />
To read more about looking after your fistula go to www.kidneycareuk.org/booklets<br />
LEARN MORE<br />
kidneycareuk.org
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