Kidney Matters - Issue 7 Autumn 2019
Kidney Matters is our free quarterly magazine for everyone affected by kidney disease. This issue includes a delicious mexico bean nacho recipe from our Kidney Kitchen as well as articles about dialysis away from base, kidney stones, and a feature on looking out for children and young people with kidney disease. We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time over the past year talking to kidney patients on dialysis, asking them what we can do to address this. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world and what is available to them in terms of support and how to access it. Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
Kidney Matters is our free quarterly magazine for everyone affected by kidney disease.
This issue includes a delicious mexico bean nacho recipe from our Kidney Kitchen as well as articles about dialysis away from base, kidney stones, and a feature on looking out for children and young people with kidney disease.
We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time over the past year talking to kidney patients on dialysis, asking them what we can do to address this. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world and what is available to them in terms of support and how to access it.
Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
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In this <strong>Autumn</strong> issue<br />
Features<br />
4<br />
We’re<br />
10<br />
14<br />
20<br />
the young ones<br />
Looking out for children and<br />
young people with kidney disease<br />
Dialysis away from base –<br />
myth or reality?<br />
Why do so many kidney patients find it so<br />
difficult to take a break away?<br />
Put a lid on it<br />
How a simple bottle lid can help to stem a<br />
fistula bleed by Claire Whitehill, vascular<br />
nurse specialist, Portsmouth<br />
<strong>Kidney</strong> disease – who, why and<br />
what?<br />
Who gets kidney disease, why and what<br />
can be done to treat it.<br />
By Dr Aisling Courtney, Northern Ireland<br />
Food and drink<br />
24<br />
Page<br />
4<br />
Mexican bean nachos<br />
Cook up a kidney-friendly Mexican feast in<br />
the <strong>Kidney</strong> Kitchen with Chef Ripley<br />
In the news<br />
18<br />
32<br />
Medical<br />
9<br />
Not<br />
26<br />
Going for Gold at this year’s<br />
British Transplant Games<br />
Find out what made this year’s Games in<br />
Newport so special<br />
Presumed consent<br />
The law on organ donation in England and<br />
Scotland changes next year<br />
just tired all the time<br />
A study highlights the relentless effects of<br />
fatigue on the lives of people on<br />
haemodialysis<br />
The <strong>Kidney</strong> Clinic<br />
Saying goodbye to kidney stones<br />
Wish you were here<br />
36<br />
Just rollin’ along in our<br />
motorhome<br />
John and Gillian Slater - out on the road in<br />
the UK with John’s dialysis machine<br />
Page<br />
24<br />
Page<br />
10
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