MDF Magazine Newsletter Issue 60 December 2019

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From TheRinging in the New Year is cause for celebration and for spending time with friendsand family. As glasses are raised and fi reworks explode in the sky, it is important torecognize the symbolism this holiday brings with it as a time of new beginnings; anda fresh start also comes with time for refl ection.How often did you think this past year, “I am doing everything I can but it seems likemy life is falling apart”? Challenges and heartaches in life are unavoidable. Wheneverything seems to be going wrong, remind yourself of these things:• This too shall pass.• There are still some things that are going right. Whatever is going wrong is onlya small percentage of your life.• You have some control of the situation. Focus on managing what is within yourcontrol.• Ask for help.• Much of what is troubling you won’t matter in a few years.• You can handle tough situations.• Something good will come out of it. At the very least, it’s likely that you will learn a life lesson.• Accept what’s out of your control. Investing time and energy in trying to change things you can’t will cause youto feel helpless and exhausted. Acceptance is one of the best ways to establish resilience.• You have overcome past diffi culties.• You need to take care of yourself. Get plenty of rest, have some exercise, eat healthily, and spend some timedoing activities you enjoy.So, there are at least a few things you can do to help you remain in a positive frame of mind when your life seemsto be falling apart.That being said, I wish you a magical and blissful holiday. Have a merry Christmas and a prosperous new year!Thank you to everyone who has supported us this year. Without you the Foundation would not be able to provideservices to our very special members.Until next year!RegardsGerda BrownMuscular Dystrophy FoundationWe would like to wish youa peaceful and relaxing Festive Seasonand a prosperous New Year.
Subscription and contributions tothe magazineWe publish three issues of MDFMagazine a year and you can subscribeonline to the magazine or by callingyour nearest branch.If you have any feedback on ourpublications, please contact theNational Office by e-mail atgmnational@mdsa.org.za or call 011472-9703.Get all the latest news on the fightagainst muscle-wasting conditions andthe latest research updates. It is oureditorial policy to report ondevelopments regarding the differenttypes of dystrophy but we do notthereby endorse any of the drugs,procedures or treatments discussed.Please consult with your own physicianabout any medical interventions.If you are interested in sharing yourinspirational stories, please let us knowand we'll be in touch to discuss thiswith you. The Foundation would loveto hear from affected members, friends,family, doctors, researchers or anyoneinterested in contributing to themagazine. Articles may be edited forspace and clarity.MDF SA databaseIf you know people affected bymuscular dystrophy or neuromusculardisorders who are not members, pleaseask them to contact us so that we canregister them on our database. If we donot have your current e-mail and postaladdress, please contact your branch sothat we can update your details on ourdatabase.How can you help?Branches are responsible for doingtheir own fundraising to assist memberswith specialised equipment. Contactyour nearest branch of the MuscularDystrophy Foundation of SouthAfrica to find out how you can help withfundraising events for those affectedwith muscular dystrophy.FundraisingCrossbow Marketing Consultants (Pty)Ltd are doing invaluable work throughthe selling of annual forward planners.These products can be ordered fromCrossbow on 021 700-6500. Forenquiries contact the National Office byMDF ::MDF support informationFor more information about the Muscular Dystrophy Foundation, the benefits of beinga member and details on how to become a member, call your nearest branch..e-mail at national@mdsa.org.za or call011 472-9703.NATIONAL OFFICEE-mail: gmnational@mdsa.org.zaWebsite: www.mdsa.org.zaTel: 011 472-9703Address: 12 Botes Street, Florida Park,1709Banking details: Nedbank, current accountno. 1958502049, branch code198765CAPE BRANCH (Western Cape,Northern Cape & part of EasternCape)E-mail: cape@mdsa.org.zaTel: 021 592-7306Fax: 086 535 1387Address: 3 Wiener Street, Goodwood,7460Banking details: Nedbank, currentaccount no. 2011007631,branch code 101109GAUTENG BRANCH (Gauteng,Free State, Mpumalanga, Limpopo& North West)E-mail: gauteng@mdsa.org.zaWebsite: www.mdfgauteng.orgWebsite: www.muscleriders.co.zaTel: 011 472-9824Fax: 086 646 9118Address: 12 Botes Street, Florida Park,1709Banking details: Nedbank, currentaccount no. 1958323284branch code 192841Pretoria OfficeE-mail: swpta@mdsa.org.zaTel: 012 323-4462Address: 8 Dr Savage Road, Prinshof,PretoriaKZN BRANCH (KZN & part ofEastern Cape)E-mail: kzn@mdsa.org.zaTel: 031 332-0211Address: Office 7, 24 Somtseu Road,Durban, 4000Banking details: Nedbank, currentaccount no. 1069431362branch code 198765General MD InformationCape TownLee LeithTel: 021 794-5737E-mail: leeleith@mweb.co.zaGautengRabie ModisaneTel: 011 472-9824E-mail: rabie@mdsa.org.zaDuchenne MDCapeWin van der Berg (Support Group)Tel: 021 557-1423KZNMaxine Strydom (Support Group)Tel: 031 762-1592Cell: 083 290 6695GautengJan Ferreira (Support Group – Pretoria)Cell: 084 702 5290Estelle FichardtTel: 012 667-6806Christine WinslowCell: 082 608 4820Charcot Marie Tooth (CMT)Hettie WoehlerCell: 079 885 2512E-mail: hettie.woehler@gmail.comFacioscapulohumeral (FSHD)Francois HoniballTel: 012 664-3651Barry SnowCell: 083 66 66 270E-mail: barry.snow@worleyparsons.comFriedreich Ataxia (FA)Linda PrykeCell no: 084 405 1169Nemaline MyopathyAdri HaxtonTel: 011 802-7985Spinal Muscular Atrophy (SMA)Zeta StarogradTel: 011 640-1531Lucie SwanepoelTel: 017 683-02875
Page 1 and 2: Summer Issue 60December 2019Meet ou
Page 3: DFMagazine05 MDF notice board06 Nat
Page 7 and 8: NationalMeet our ambassador, Vené
Page 9 and 10: MDMD andAssistiveDevicesBy Health N
Page 12 and 13: MDCaregiving for Someonewith Muscul
Page 14 and 15: MDAs a parent, you may also feel a
Page 16 and 17: TRAVELKGALAGADI on WHEELSMy wife an
Page 18 and 19: EventsGo Green forMuscular Dystroph
Page 20 and 21: EventsThe Muscular Dystrophy Founda
Page 22 and 23: PeopleMy TestimonyBy Yolande BrinkS
Page 24 and 25: PeopleWhen I left the hospital in S
Page 26 and 27: PeopleMy Experience with Facioscapu
Page 28 and 29: PeopleYoung budding artistPuja Moon
Page 30 and 31: Researchwhat damage is caused by th
Page 32 and 33: Sandra’s thoughts on…having a s
Page 34 and 35: DIGITAL DAYSWe all hope to leave be
Page 36 and 37: ON THE SPOT, SCOTT…Disability Acc
Page 38 and 39: HealthyDiet and NutritionBy Emily M
Page 40 and 41: Cape BranchWorld Duchenne DayOn 7 S
Page 42 and 43: Gauteng BranchCasual Day 2019The th
Page 44 and 45: KZN BranchCASUAL DAY 2019It has bee

MDF Magazine Newsletter Issue 60 December 2019

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