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Ortho Times Vol 24 - Children's Hospital Boston

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a newsletter for our patient families<br />

Exceptional Care. Exceptional Service. <strong>Vol</strong> 9, Issue 3, Sep 2012<br />

Around the bend [Andrea Mooney]<br />

For most children with scoliosis, the path to<br />

recovery is marked by simple observation and<br />

bracing. But when one patient battles two curves,<br />

her path—and spine—take an unexpected turn.<br />

At 11 years old, it wasn’t normal for Anjellina<br />

Giuliano to have back pain. At first, she thought<br />

she might have slept on it awkwardly, and<br />

shrugged it off. When it continued to hurt for<br />

weeks, her mother, Francine, began to rub her<br />

daughter’s back with a topical pain reliever each<br />

night to make the pain go away.<br />

But as Anjellina took her zombie costume off<br />

after trick-or-treating on Halloween, Francine<br />

noticed something that she hadn’t seen before:<br />

two large bumps—one under her right shoulder<br />

and one near her left hip. “I noticed it right away<br />

and my eyes filled up instantly,” says Francine.<br />

“When I had been rubbing her back, she had always<br />

been sitting, but standing up, it looked like<br />

she was hiding mini watermelons under her skin.”<br />

Panicked, she made a doctor’s appointment for<br />

the next day.<br />

At Anjellina’s primary care doctor’s office, it was<br />

clear that Anjellina needed specialized care. “I<br />

heard the doctor yell to the receptionist, ‘Get<br />

<strong>Boston</strong> Children’s on the phone,’ and it really<br />

scared me,” says Francine.<br />

Ask the expert: Scoliosis<br />

Daniel Hedequist, MD, staff orthopedist, talks to us about examination,<br />

detection and treatment of scoliosis.<br />

What’s the most common kind of scoliosis?<br />

Idiopathic scoliosis is the most common type of<br />

scoliosis and is a curve of more than 10 degrees on<br />

an X-ray in an otherwise healthy child. Scoliosis<br />

entails a wide range of curvatures, from a<br />

10-degree curve with no long-term problems to a<br />

90-degree curve requiring surgery.<br />

What’s the best age to start examining?<br />

There is a wide range of patients with scoliosis, so<br />

typically a visual inspection of the back should be done at all yearly well<br />

visits. Most commonly, we start to see asymmetries in the back during<br />

periods of rapid growth, typically in the pre-pubertal years—for girls ages<br />

10-12, and boys ages 12-16.<br />

What are the treatment options?<br />

Depending on the child’s age and degree of the curve, he or she may need<br />

simple observation, which means keeping an eye on the curve to see if it<br />

progresses. If a child’s spine curves more than 20 or 25 degrees, a child<br />

Her suspicions were confirmed at <strong>Boston</strong> Children’s<br />

<strong>Hospital</strong> a few days later, when they met<br />

with orthopedist Daniel Hedequist, MD. After a<br />

physical examination, X-ray and MRI, Anjellina<br />

was diagnosed with severe idiopathic scoliosis<br />

that only surgery could fix. “He didn’t even need<br />

a scoliometer,” remembers Anjellina. “He could<br />

already tell it was serious while I was standing up.”<br />

Scoliosis affects three to five out of every 1,000<br />

children, and the most common form, idiopathic<br />

scoliosis—which just means it doesn’t have a<br />

known cause—usually appears as children enter<br />

growth spurts. While there isn’t a cause or a<br />

specifically identified genetic link, adolescent<br />

females who have family history of scoliosis are<br />

most likely to get it.<br />

Often, children with scoliosis who have curves<br />

ranging from 10 to 30 degrees only need occasional<br />

observation and check-ups through their growing<br />

years, but others need bracing—a technique<br />

that requires the child to wear a hard, custom-designed<br />

brace 18 hours a day to stop the curve from<br />

worsening. Even with bracing, most children and<br />

teens with scoliosis can usually still participate in<br />

sports and live normal lives. But since Anjellina’s<br />

two curves measured 83 and 97 degrees, her path<br />

to recovery would be more complicated.<br />

—Continued on page 5<br />

© GretjenHelen.com<br />

may need to wear a brace—a hard shell that is custom-made to fit a child’s<br />

torso and padded specially to keep the back straight. Typically, the brace<br />

is worn 18 hours a day, with the goal of stopping the curve from worsening,<br />

not correcting it. For more severe curves, there are surgical options to<br />

straighten the spine.<br />

What does an examination entail?<br />

Having a child put their hands together and touch their toes in an Adam’s<br />

Forward Bend helps reveal asymmetries in the back. If you place a scoliometer<br />

on the child’s spine and notice a rise or dip on one side, note the<br />

degree of asymmetry. While a Cobb angle measurement of 10 degrees on<br />

an X-ray is what is used for the diagnosis, a scoliometer reading of 5 to 7<br />

degrees is enough to raise concern.<br />

How important is early detection?<br />

The earlier a curve is detected, the better the chance for intervention with<br />

brace treatment. Sometimes, early detection helps avoid surgery.<br />

Learn more about scoliosis at bostonchildrens.org/spine


Welcome Aboard [Krystal Spencer]<br />

The <strong>Ortho</strong>pedic Center at <strong>Boston</strong> Children’s <strong>Hospital</strong> is pleased to announce the following additions to our medical team.<br />

Bryce Gillespie, MD<br />

Dr. Gillespie received his medical degree, with<br />

distinction in research, from the University of<br />

Rochester School of Medicine and Dentistry<br />

in Rochester, NY. He completed a residency in<br />

orthopedic surgery at the Harvard Combined<br />

<strong>Ortho</strong>paedic Residency Program, where he<br />

rotated though the Massachusetts General<br />

<strong>Hospital</strong>, Brigham & Women’s <strong>Hospital</strong>, Beth<br />

Israel Deaconess Medical Center, the Veterans<br />

Affairs Healthcare System, and <strong>Boston</strong> Children’s<br />

<strong>Hospital</strong>. Dr. Gillespie completed the<br />

Harvard Hand and Upper Extremity Surgery<br />

Fellowship at Brigham & Women’s <strong>Hospital</strong> and <strong>Boston</strong> Children’s <strong>Hospital</strong>.<br />

Dr. Gillespie is joining us as an instructor in orthopedic surgery at Harvard<br />

Medical School, and a staff surgeon at <strong>Boston</strong> Children’s. Dr. Gillespie<br />

will be seeing hand and upper extremity patients at our <strong>Boston</strong>, Peabody,<br />

Waltham, and Weymouth locations. This includes patients of all ages with<br />

congenital differences, sports-related injuries, traumatic injuries, and other<br />

conditions affecting the shoulder, arm, elbow, forearm, wrist and hand.<br />

Michael Beasley, MD<br />

Dr. Beasley received his medical degree<br />

from the University of Iowa Carver College<br />

of Medicine in Iowa City, IA. He completed<br />

an internship and residency in pediatrics at<br />

Phoenix Children’s <strong>Hospital</strong>/Maricopa Medical<br />

Center, in Arizona. Dr. Beasley completed<br />

a primary care sports medicine fellowship<br />

at <strong>Boston</strong> Children’s <strong>Hospital</strong> and Harvard<br />

Medical School.<br />

Dr. Beasley is joining us as a staff physician<br />

in the Division of Sports Medicine. He will be<br />

seeing patients with sports medicine injuries, with a focus on concussions,<br />

at our <strong>Boston</strong>, Peabody and Waltham locations.<br />

Sports related concussions<br />

[Alexandra Wade & William Meehan, MD]<br />

The new school year and fall sports season is fast approaching. Before the<br />

sports season begins it is important for parents and children to be aware of the<br />

risks associated with contact sports, particularly sport-related concussions.<br />

Sport-related concussion is an increasingly common diagnosis in<br />

young athletes. Many athletes don’t recognize concussions because they<br />

do not know the signs and symptoms of this injury. By learning more<br />

about what a concussion is parents and children will be able to recognize<br />

it and seek treatment.<br />

A concussion is a type of traumatic brain injury caused by a sudden,<br />

rotational acceleration of the brain. Because the rotational acceleration is<br />

not a natural movement of the brain, it causes a temporary disruption in<br />

normal brain function.<br />

Common symptoms of a concussion include but are not limited to<br />

headaches, dizziness, nausea, vomiting, difficulty concentrating, difficulty<br />

with balance, sensitivity to light and sensitivity to noise. In addition to the<br />

athlete experiencing symptoms, people surrounding the athlete may notice<br />

signs or changes in their behavior.<br />

Signs of a concussion vary greatly but may include loss of consciousness,<br />

forgetfulness, depression, disorientation, poor physical coordination, and<br />

changes in personality. These signs and symptoms may also be associated<br />

with other medical ailments. This is why it is important to see a medical<br />

Chandlee Gore Holland, NP, RN<br />

Prior to joining us, Chandlee was an information<br />

systems analyst at Beverly <strong>Hospital</strong> in<br />

Beverly MA. She has also held positions as a<br />

registered nurse, and pediatric nurse practitioner<br />

at Kaiser Permanente in San Francisco.<br />

Chandlee received a bachelor of arts in<br />

Spanish from Whitman College in Washington.<br />

She then went on to receive a masters of<br />

science in nursing from the Massachusetts<br />

General <strong>Hospital</strong>’s Institute of Health Professions,<br />

here in <strong>Boston</strong>.<br />

Kathleen Massey, RN, BSN<br />

Kathleen comes to us from the fast paced,<br />

emergency department here at <strong>Boston</strong><br />

Children’s. Kathleen has held previous<br />

clinical positions at Spaulding Rehabilitation<br />

<strong>Hospital</strong>, and Yale New Haven <strong>Hospital</strong>. She<br />

completed her student internship at Brigham<br />

and Women’s <strong>Hospital</strong>.<br />

After completing a bachelor of science<br />

degree in nursing from Fairfield University<br />

in Connecticut, Kathleen went on to obtain<br />

a masters degree in nursing from <strong>Boston</strong> College. She also is certified in<br />

Pediatric Advanced Life Support (PALS) as well as BasicLife Support (BLS).<br />

Fact or Fiction?<br />

Girls are more likely to tear their ACLs.<br />

Fact! Girls are five to eight times more likely to tear their anterior<br />

cruciate ligament (ACL) than boys who play the same sports,<br />

and 25 percent of girls will re-tear their ACLs. Fortunately, girls<br />

can reduce their risk with a proper prevention program, which<br />

focuses on increasing lower body strength, balance and agility.<br />

—Martha Murray, MD<br />

<strong>Ortho</strong>pedic surgeon, <strong>Boston</strong> Children’s <strong>Hospital</strong><br />

professional who obtains sufficient medical history to ensure the signs and<br />

symptoms are in fact a result of a concussion. In addition, medical professionals<br />

can make sure the athlete is not suffering from another injury.<br />

While concussion is the most common neurological injury in sports, it<br />

is not the only one. Once it’s been determined that an athlete has sustained<br />

a concussion and is not suffering from a different neurological injury, it is<br />

important to remove the athlete from play. Concussed athletes should be<br />

prescribed physical and cognitive rest. If symptoms worsen, they should<br />

seek emergency medical attention immediately. Athletes who respond well<br />

to physical and cognitive rest should schedule an appointment with a physician<br />

trained in assessing and treating concussions, usually their primary<br />

care physician. The doctor will decide if academic accommodations need<br />

to be put in place and help determine when the athlete can return to play.<br />

Sport related concussions must be taken seriously by parents and<br />

athletes. Most concussions can heal quickly if managed appropriately. If<br />

you believe your child has sustained a concussion during an athletic event<br />

and you would like them to be evaluated by one of our Sports Medicine<br />

physicians please call 781-216-1328 to make an appointment.<br />

Learn more about sports related concussions at<br />

bostonchildrens.org/sportsmed


Periacetabular osteotomy, easier than pulling teeth [Sam Keif]<br />

In the fall of 2011, 18 year-old New York City<br />

native Jared Cohen noticed some slight pain in<br />

his right groin, and initially thought it was something<br />

as simple as a small muscle pull or strain.<br />

Jared continued to play competitive tennis<br />

and recreational sports until the pain became<br />

too severe to ignore. “Once I realized that the<br />

pain was progressively getting worse over time<br />

and that extra stretching was doing very little<br />

to fix what I thought was a simple groin pull, I<br />

decided to get it checked out” says Jared. Jared<br />

saw an orthopedic specialist in New York City<br />

who diagnosed Jared with a labral tear and hip<br />

dysplasia. The specialist suggested that Jared<br />

get a complex hip surgery called a periacetabular<br />

osteotomy (PAO). “I thought that I was<br />

way too young for this. I had heard about my<br />

parents’ friends or my grandparents’ friends<br />

having hip problems, but I’m 18 years old, had<br />

been perfectly healthy for my entire life and<br />

was a little bit shocked at the time.”<br />

Jared and his family were encouraged by<br />

family friends and various physicians to seek<br />

treatment at <strong>Boston</strong>’s Children’s <strong>Hospital</strong> who<br />

have a world renowned hip program, led by<br />

Young-Jo Kim, MD, PhD.<br />

Erin Dawicki, physician assistant for the<br />

Child and Adult Preservation Program, explains<br />

the process of a PAO “A PAO is a surgery<br />

done on patients whose hip socket is too<br />

shallow. The hip is a ball and socket joint. The<br />

bone around the socket is cut so that the socket<br />

can be rotated into a better position over the<br />

ball. This makes the hip healthier and hopefully<br />

stops the hip from getting arthritis.”<br />

Jared first came to <strong>Boston</strong>’s Children’s in<br />

early May to meet with Dr. Kim for a clinical<br />

evaluation and discuss the option of a PAO<br />

surgery. “I knew a PAO was my best option<br />

because of how clearly and thoroughly Dr. Kim<br />

described my choices, but realized that my<br />

entire summer would be spent on crutches and<br />

possibly my first few weeks of college if I went<br />

through with it.<br />

As for the procedure itself, I had never had any<br />

type of surgery before, so the idea of my first<br />

one involving the sawing of my hip didn’t sit<br />

too well with me at first. But, Dr. Kim’s explanations<br />

and the information in the PAO packet I<br />

was given helped make me more comfortable.”<br />

In June of this year, Jared came to <strong>Boston</strong><br />

Children’s to have PAO surgery performed on<br />

his right hip “My overall surgical experience<br />

exceeded my expectations in every way. The<br />

nurses, anesthesiologists and doctors I talked<br />

to the morning of the surgery, including Dr.<br />

Kim obviously, were very nice and answered<br />

any questions I had.” After Jared’s successful<br />

surgery he spent six days at <strong>Boston</strong> Children’s.<br />

“All of the nurses and doctors who stopped<br />

by my room were great, as were the hospital’s<br />

physical therapists I worked with a few days<br />

after the surgery.” Overall, Jared was surprised<br />

on how easy and smooth the overall surgical<br />

process was. “I am supposed to get my wisdom<br />

teeth pulled in the coming weeks. I’m dreading<br />

that more so than I would getting another PAO<br />

at <strong>Boston</strong> Children’s.”<br />

Jared’s outlook is outstanding and he is<br />

excited and thrilled to be starting college at<br />

Yale University in New Haven, Connecticut in<br />

the fall.<br />

Image courtesy of Jared Cohen<br />

Learn more about hip dysplasia at<br />

bostonchildrens.org/hip<br />

Your thoughts and opinions inspire<br />

us to make changes to better your<br />

experience here. Please take a moment<br />

to visit our website and fill out<br />

our patient satisfaction survey.<br />

bostonchildrens.org/ortho<br />

NEW CAST?<br />

At <strong>Boston</strong> Children’s we have an excel-<br />

lent group of orthopedic technicians that<br />

will apply or remove your child’s cast.<br />

Whether or not this is your child’s first<br />

cast or tenth, you may have some questions<br />

about how to care for a cast, or<br />

what to expect during the application<br />

or removal process.<br />

We understand that not all concerns<br />

come to mind while you are in the presence<br />

of our orthopedic team. We have<br />

provided information on our website<br />

that can help answer these questions,<br />

as well as additional information to<br />

help you through your child’s healing<br />

process.<br />

At <strong>Boston</strong> Children’s, we are committed<br />

to providing our patient families with<br />

all the necessary information to help<br />

the children we treat have the best<br />

healing experience possible. Whether<br />

your child has a minor injury or a<br />

complex condition we want you and<br />

your child to feel that you are the most<br />

important people we are taking care of.<br />

We will not rest until every child is well.<br />

Learn more about caring for your cast<br />

at bostonchildrens.org/ortho/cast


<strong>Boston</strong> Children’s <strong>Hospital</strong> Ranks #1 on U.S. News & World Report<br />

Best Children’s <strong>Hospital</strong>s Honor Roll<br />

Ranked in the Top 4 in all 10 Specialty Areas<br />

<strong>Boston</strong> Children’s <strong>Hospital</strong> ranks first in the<br />

U.S. News and World Report’s 2012-13 Best<br />

Children’s <strong>Hospital</strong>s Rankings Honor Roll.<br />

<strong>Boston</strong> Children’s is first in Cardiology &<br />

Heart Surgery, Nephrology, Neurology &<br />

Neurosurgery; second in Cancer, Diabetes &<br />

Endocrinology, Gastroenterology and Urology;<br />

third in Neonatology and <strong>Ortho</strong>pedics; and<br />

fourth in Pulmonology. <strong>Boston</strong> Children’s<br />

partners with Dana-Farber Cancer Institute to<br />

operate the Dana-Farber/Children’s <strong>Hospital</strong><br />

Cancer Center – an integrated pediatric oncology<br />

program.<br />

“We’re honored by this recognition and view<br />

it as a challenge to continue to work tirelessly<br />

to improve the quality of care given to each<br />

and every family that comes through our<br />

doors,” says James Mandell, MD, CEO of <strong>Boston</strong><br />

Children’s <strong>Hospital</strong>.<br />

The rankings feature 50 hospitals in each<br />

of 10 pediatric specialties: cancer, cardiology<br />

How clinical research directly impacts patient care<br />

[Adam Nasreddine and Anni Lierhaus]<br />

For nearly a decade, one option for treating femur (thigh bone) fractures in children and adolescents<br />

with surgery has included the use of a metal plate secured across the broken bone to hold the two<br />

ends in place while healing takes place. Research studies from this and other institutions showed<br />

that plate fixation was safe and resulted in similar or better outcomes than other treatment techniques<br />

available for some types of fractures. While practice patterns varied somewhat, the consensus<br />

among most orthopedic surgeons was that it was not necessary to remove the plate after successful<br />

fracture healing, unless it was causing the patient problems.<br />

Recently, physicians in the <strong>Ortho</strong>pedic Center<br />

noticed that a couple of patients returned to<br />

clinic many months after their fracture had<br />

healed, complaining of knee pain. X-rays<br />

revealed that the patients were developing<br />

a valgus deformity, in which the thigh bone<br />

becomes bowed. This observation caused physicians<br />

to wonder if the deformity was occurring<br />

in other patients but going undetected.<br />

With the approval of <strong>Boston</strong> Children’s <strong>Hospital</strong>’s<br />

Institutional Review Board, researchers<br />

in the <strong>Ortho</strong>pedic Center reviewed the medical<br />

records for all patients whose femur fractures<br />

were treated, over the last five years, with a<br />

plate. They discovered that progression of a<br />

valgus deformity could be detected in approximately<br />

10% of patients.<br />

For most of these patients, the deformity<br />

progression was minimal and didn’t cause any<br />

other symptoms. This was reassuring. However,<br />

for two patients (these were the patients<br />

that inspired this study,) the bowing of the leg<br />

had become so severe that surgical correction<br />

was required.<br />

and heart surgery, diabetes and endocrinology,<br />

gastroenterology, neonatology, nephrology,<br />

neurology and neurosurgery, orthopedics, pulmonology,<br />

and urology. Eighty hospitals across<br />

the country ranked in one or more specialties.<br />

<strong>Boston</strong> Children’s was the only hospital in New<br />

England named to the U.S. News Honor Roll,<br />

and was ranked in the top 25<br />

“The rankings reflect the dedication of our<br />

caregivers, researchers, staff, volunteers and<br />

referring doctors across <strong>Boston</strong> Children’s<br />

community of care,” adds Sandra Fenwick,<br />

President and COO of <strong>Boston</strong> Children’s. “Our<br />

staff represents the finest in their fields, and<br />

it’s only through working together that we can<br />

provide such exceptional care.”<br />

This year, U.S. News surveyed 178 pediatric<br />

centers to obtain hard data such as availability<br />

of key resources and ability to prevent complications<br />

and infections. The hospital survey<br />

made up 75 percent of the evaluation to determine<br />

rankings. A separate reputational survey<br />

Results of this investigation were presented at<br />

a physician staff meeting and it was decided<br />

that patients who were believed to be at high<br />

risk of developing a valgus deformity should be<br />

contacted and asked to return for clinical and<br />

X-ray evaluation of their fractured leg. Patients<br />

considered to be at high risk were those whose<br />

plate was placed close to the knee joint and<br />

who were very young immature at the time<br />

of the fracture. Several patients returned for<br />

follow-up and were found not to have any problems.<br />

One patient, who initially didn’t respond<br />

to phone calls from the research team, later<br />

presented to the clinic a couple of months later<br />

with knee pain and a valgus deformity severe<br />

enough that surgical treatment was necessary.<br />

Based on the results of this study, physicians<br />

now believe it is important to follow patients<br />

and continue to take X-rays as necessary,<br />

not just until the fracture is healed, but until<br />

the patient reaches skeletal maturity. This<br />

study is a good example of how our clinical research<br />

can improve our knowledge and result<br />

in better patient care and outcomes.<br />

in which 1,500 pediatric specialists—150 in<br />

each specialty—were asked where they would<br />

send the sickest children in their specialty<br />

made up the remaining 25 percent of data used<br />

for evaluation.<br />

This patient’s fracture was healed at 6<br />

months. The patient returned 3 years later<br />

because of pain, and was found to have<br />

a major valgus deformity (the left leg is<br />

bowed in and closer to the right leg).<br />

<strong>Ortho</strong>pedic Center | 300 Longwood Avenue, Fegan 2 | <strong>Boston</strong>, MA 02115 | bostonchildrens.org/ortho | 617-355-6021


Around the bend... continued from cover.<br />

“We knew the curve would only get worse as<br />

she grew older,” explains Hedequist, “and once<br />

I showed her family the X-rays, it was easy for<br />

them to grasp what would need to be done.”<br />

Francine was blindsided by the news, especially<br />

since Anjellina had sailed through her yearly<br />

physical. “I kept thinking to myself, ‘How could I<br />

have missed this?’” But Hedequist explained to her<br />

that when growth spurts happen, curves can progress<br />

very rapidly, and the bumps that Francine saw<br />

on her daughter’s back were the result of her spine<br />

curving and rotating out of place. As the spine<br />

curved it distorted the ribs too.<br />

Though most children who have scoliosis don’t<br />

need surgery, the ones who do often go through<br />

a procedure called spinal fusion—a process<br />

that fuses the spine together with rods to keep<br />

it strong and straight. However, Anjellina’s case<br />

was severe enough that not only would she need<br />

to undergo the typical spinal fusion, she would<br />

also need to go through a preparatory, monthlong<br />

process called halo traction—which would<br />

slowly and gently stretch her spine and correct<br />

some of the curve before spinal fusion surgery.<br />

The set of procedures meant that Anjellina<br />

would need to stay in the hospital for more than<br />

a month. The holidays, as well as Anjellina’s 12th<br />

birthday, were rapidly approaching. Francine<br />

worried that living in the hospital during the holidays<br />

would be hard on both Anjellina and their<br />

family, so Hedequist developed a timeframe that<br />

would work for Anjellina’s comfort and for her<br />

curves. “There was definitely risk of her curves<br />

growing during that waiting period,” explains<br />

Hedequist, “but we could plan it soon enough<br />

that she would be safe, and still be able to spend<br />

the holidays at home.”<br />

The holidays and Anjellina’s birthday came and<br />

went, and the night before her surgery, she was<br />

confident. “We had a family movie night, and my<br />

brother made whoopee pies, which was the last<br />

thing I ate before my first surgery,” she remembers.<br />

The next morning at 4:30 a.m., she woke up<br />

unafraid. “More than anything I was relieved to be<br />

on my way to getting better,” she says.<br />

In the operating room, she underwent anesthesia,<br />

and the process began. Hedequist carefully<br />

placed the halo—a sturdy metal ring—around<br />

Anjellina’s head, and fixed it to her skull with<br />

pins. When the halo was firmly set, a long cord<br />

attached to the top of it was threaded through<br />

a pulley and then dropped toward the ground,<br />

attaching to a five-pound weight at the bottom.<br />

As with all halo procedures, the weight pulled<br />

the cord, which then pulled upward on the halo,<br />

skull and spine slowly and painlessly straightening<br />

Anjellina’s curves. “I got used to the feeling<br />

of having the halo on, and before I knew it, there<br />

was much more weight – up to 30 pounds,” says<br />

Anjellina.<br />

Day by day, Anjellina established a new life at<br />

the hospital. Francine, who was there each day,<br />

would eat breakfast, lunch and dinner with her<br />

daughter, and spend their afternoons making<br />

crafts, playing games and watching television.<br />

“We had a lineup of shows for every night of the<br />

week,” remembers Francine.<br />

As the month went by, Anjellina acclimated to<br />

her surroundings. Even with halo traction, she<br />

was able to get up and move around in a wheel<br />

chair, and spend time talking and playing games<br />

with the nurses.<br />

Weeks went by, and Anjellina spent her time<br />

playing with her iPad, writing in her journal,<br />

making bracelets and keeping a scrapbook of her<br />

time in the hospital. Anjellina’s friends, brothers<br />

and sisters visited her, and Francine made a point<br />

to decorate the halo with colorful beads and<br />

flowers to remind Anjellina to look on the bright<br />

side. “At first I was worried about her being in<br />

the hospital so long,” says Francine, “but as time<br />

went on, she got her teenage attitude back, and I<br />

knew she was fine.”<br />

Soon enough, February ended, and it was time<br />

for Anjellina’s spinal fusion surgery. “In a spinal<br />

fusion, we straighten the spine to a safe degree<br />

with rods and screws, and fuse the bones so that<br />

they can’t curve anymore,” explains Hedequist.<br />

Anjellina prepared herself for the final step in her<br />

recovery, and the next morning Hedequist began<br />

to operate.<br />

When Anjellina woke up after the surgery, the<br />

problems in her back had been corrected–and she<br />

was three inches taller. Recovery for this operation<br />

would be shorter but more painful than the<br />

halo placement. “At first, when I tried to get up<br />

“Scoliosis affects three to five out of every 1,000 children,<br />

and the most common form, idiopathic scoliosis—which<br />

just means it doesn’t have a known cause—usually appears<br />

as children enter growth spurts.”<br />

© GretjenHelen.com<br />

and walk, it felt like just my bones were touching<br />

the floor,” she says. “But the next day, I could walk<br />

more comfortably with a nurse, and day after day<br />

I started to feel better.”<br />

Anjellina was given a list of things to accomplish<br />

before she could leave the hospital. The list—<br />

which included things like walking up stairs,<br />

finishing her scrapbook, eating and coming off<br />

medication—seemed impossible at first, but she<br />

was determined to fully recover, finish every item<br />

and get back to her normal life. Five days later,<br />

that’s exactly what she did.<br />

“I had finished everything on the list, and<br />

Dr. Hedequist came into the room,” remembers<br />

Anjellina. “He asked me and my mom if we<br />

wanted to go home, and my mom stood right up<br />

and said ‘Yes!’”<br />

That night, Anjellina and Francine were excited—their<br />

long and winding journey was about<br />

to end. They woke up early the next morning,<br />

and Anjellina’s stepfather picked them up. “We<br />

drove so slowly home just to be extra careful,” she<br />

remembers. And though it was only 7:30 in the<br />

morning when Anjellina got home, all five of her<br />

brothers and sisters were up and waiting for her<br />

highly anticipated arrival. “She was so happy, she<br />

cried for the rest of the day,” says Francine.<br />

“I was gone for over a month,” says Anjellina,<br />

“it was just so nice to be near my family, in my<br />

own home.” From that moment on, Anjellina’s<br />

older sister, Ana, stayed by her side, and constantly<br />

helped with whatever she needed.<br />

Now back at home, Anjellina goes to school,<br />

helps her mom in the garden and rides her scooter.<br />

“I feel so much better,” she says. “My back<br />

doesn’t hurt anymore, I feel good about the way<br />

I look now, and I’m just relieved to look back on<br />

this whole thing and be done.”<br />

Anjellina’s journey wasn’t easy, but after everything<br />

she’s been through, she knows that sometimes,<br />

life’s path isn’t always straight and narrow.<br />

Learn more about spinal fusion surgery at<br />

bostonchildrens.org/spine


<strong>Ortho</strong>pedic Center publications<br />

Acetabular retroversion in down syndrome.<br />

J Pediatr <strong>Ortho</strong>p. 2012 Apr-May;32(3):277-81.<br />

Acute traumatic and sports-related osteochondral injury of the pediatric knee.<br />

<strong>Ortho</strong>p Clin North Am. 2012 Apr;43(2):227-36.<br />

An information revolution in orthopaedics.<br />

J Bone Joint Surg Br. 2012 Apr;94(4):454-8. Review.<br />

Back pain in the pediatric and adolescent athlete.<br />

Clin Sports Med. 2012 Jul;31(3):423-40.<br />

Changing practice patterns: the impact of a randomized clinical trial on surgeons<br />

preference for treatment of type 3 supracondylar humerus fractures.<br />

J Pediatr <strong>Ortho</strong>. 2012 Jun;32(4):340-5.<br />

Clinical stability of slipped capital femoral epiphysis does not correlate with<br />

intraoperative stability.<br />

Clin <strong>Ortho</strong>p Relat Res. 2012 Apr 10.<br />

Defining parameters for correcting the acetabulum during a pelvic reorientation<br />

osteotomy.<br />

Clin <strong>Ortho</strong>p Relat Res. 2012 Jul 10.<br />

The explosion in organized sports has resulted in a concomitant increase in<br />

sports injuries.<br />

Clin Sports Med. 2012 Jul;31(3):xv-xvi.<br />

Fingertip injuries in children.<br />

American Academy of <strong>Ortho</strong>paedic Surgeons Web site: <strong>Ortho</strong>paedic<br />

Knowledge Online 2012;10(5):<br />

Heterogeneity across the dorso-ventral axis in zebrafish EVL is regulated by a<br />

novel module consisting of sox, snail1a and max genes.<br />

Mech Dev. 2012 Apr 12. [Epub ahead of print]<br />

Horizontal intra-articular patellar dislocation resulting in quadriceps avulsion<br />

and medial patellofemoral ligament tear: a case report.<br />

J Pediatr <strong>Ortho</strong>p B. 2012 Jul 22. [Epub ahead of print].<br />

Lateral condylar humerus fractures: which ones should we fix?<br />

J Pediatr <strong>Ortho</strong>p. 2012 Jun;32 Suppl 1:S5-9.<br />

Lumbar spine surgery in athletes: outcomes and return-to-play criteria.<br />

Clin Sports Med. 2012 Jul;31(3):487-98.<br />

Management of pediatric trigger thumb and trigger finger.<br />

J Am Acad <strong>Ortho</strong>p Surg. 2012 Apr;20(4):206-13.<br />

Mutations in LRP5 cause primary osteoporosis without features of OI by reducing<br />

Wnt signaling activity.<br />

BMC Med Genet. 2012 Apr 10;13(1):26.<br />

Overcoming the funding challenge: the cost of randomized controlled trials in<br />

the next decade.<br />

J Bone Joint Surg Am. 2012. Jul 18;94 Suppl 1:101-6.<br />

Painful pes planovalgus: an uncommon pediatric orthopedic presentation of<br />

Charcot-Marie-Tooth disease.<br />

J Pediatr <strong>Ortho</strong>p B. 2012 Jun 28. [Epub ahead of print]<br />

Peripheral blood mononuclear cells enhance the anabolic<br />

effects of platelet-rich plasma on anterior cruciate ligament fibroblasts.<br />

J <strong>Ortho</strong>p Res. 2012 Jul 5. [Epub ahead of print].<br />

Predictors for secondary procedures in walking DDH.<br />

J Pediatr <strong>Ortho</strong>p. 2012 Apr-May;32(3):282-9.<br />

Preoperative three-dimensional CT predicts intraoperative findings in hip<br />

arthroscopy.<br />

Clin <strong>Ortho</strong>p Relat Res. 2012 Apr 13. [Epub ahead of print]<br />

Prevention of nerve injury after periacetabular osteotomy.<br />

Clin <strong>Ortho</strong>p Relat Res. 2012 Jun 9.<br />

Radiographic analysis of spondylolisthesis and sagittal spinopelvic deformity.<br />

J Am Acad <strong>Ortho</strong>p Surg. 2012 Apr;20(4):194-205.<br />

The role for hip surveillance in children with cerebral palsy.<br />

Curr Rev Musculoskelet Med. 2012 Jun;5(2):126-34.<br />

Somatic mosiac activating mutations in PIK3CA cause CLOVES syndrome.<br />

Am J Hum Genet. 2012 May 30. [Epub ahead of print]<br />

Spinal deformity in young athletes.<br />

Clin Sports Med. 2012 Jul;31(3):441-51. Epub 2012 May 3.<br />

Spinal tumors found in the athlete.<br />

Anderson ME. Clin Sports Med. 2012 Jul;31(3):569-80.<br />

Visiting <strong>Boston</strong> Children’s?<br />

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Vascular safe zones for surgical dislocation in children with healed leggcalvé-perthes<br />

disease.<br />

J Bone Joint Surg Am. 2012 Apr 18;94(8):721-7.<br />

childrenshospital.org/myway<br />

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