Jessie May Reset & Recovery Plan 2021-22
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Reset and
Recovery Plan
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Reset and
Recovery Plan
Introduction
Our Services
Family Engagement
Influencing
Digital Transformation
Finance and Administration
Fundraising
Governance
Monitoring
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Introduction
The past twelve months have been extremely
challenging for all of us and especially for the children
and families that we support. We have had to adapt
and change many of the ways in which we have been
used to working. For example: developing a menu of support, prioritising
those children and families most in need rather than our planned three
hour respite visits, working jointly with colleagues in other services to
provide overnight care, and re-deployment of experienced nurses to the
Paediatric Intensive Care Unit.
Like many charities, fundraising has become extremely difficult with some
traditional areas of activity just not possible due to the ongoing social
restrictions in place. As a result we have had to reduce our workforce, and
many of the fundraising and administrative staff have been on furlough.
We have also not been able to access the office for much of the time, and
now only on a limited basis, so we are conducting much of our business
remotely.
With the vaccination programme underway and a ‘roadmap’ through to
the summer to gradually ease restrictions, we are now in a position to reset
the organisation and move forwards into a new era, taking with us some
of the innovations that have proved beneficial. This is not going back to our
traditional ways of working, but instead embracing change and moving
forward to a more effective and efficient service.
Before the pandemic we developed a five-year strategy with four key areas:
Services to Children and Families, Family Engagement, Influencing and
Volunteering. Further development and implementation of this was put on
hold due to the pandemic and this plan, which covers the next twelve to
eighteen months, is the route back to focus on our strategy.
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Our Services
Regular Respite Care: Our standard offer has been a three-hour respite visit.
However during the pandemic we have developed a menu of support ranging from
texts and telephone calls, the use of video meetings, and support visits. We have also
considered the usefulness of longer, less frequent visits or shorter, more frequent,
ones. We will consult with families on these ideas to develop a menu of support.
Family Events: We have previously had feedback about the importance of
these events for families. It is not yet clear when it will be safe for us to organise
such events and what additional safety measures we will need to put in place.
However, we will organise several school holiday activities as soon as we are
able to. Optimistically we have already booked our venue for the Christmas Party.
The Tree of Light celebration event is an important event in our calendar which
was only available last year as a pre-recorded video. This year we aim to hold
a real-time event but to pilot recording or live streaming the event as well.
Bereavement Support: We will continue to provide bereavement support.
However, we have expanded the use of telephone and video support and will
continue to offer this as a means of increasing our support. Our Purple Group
has been offered virtually through Zoom and we will continue to do this until
such time as it is possible to hold in-person meetings. We will consult bereaved
families on their preferences with the possibility of offering both alternatives.
Referral Process: Responding to feedback we will consult with families upon a
new referral process, whereby our experienced palliative care nurses, with support
from clinicians, will consider the appropriateness of referrals to Jessie May.
Caseload Review: Our caseload continues to grow, however, due to advances
in medical science and treatment, many conditions that would previously
have almost certainly resulted in death in childhood no longer do so. In
reviewing our caseload there are potentially children who no longer strictly
meet our criteria. This is common practice in many similar organisations. We
will consult with families to consider how we should manage this issue.
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Our Services (continued)
Capacity: We will review the nursing workload and support systems
to ensure that nurses are able to work effectively and efficiently. The
introduction of digital systems and online training will contribute to this.
We will set a clear target for direct contact time and monitor this closely.
Care Team Management: We currently have a temporary arrangement
with a senior nurse seconded to us from the Children’s Hospital. We
are discussing options for a more permanent arrangement with UHBW.
We will make a decision by the end of the first quarter of 2021/22.
Clinical Governance and Quality Assurance: Considering the changes
that have taken place we are currently reviewing our arrangements
for Clinical Governance and Quality Assurance. A decision will be
agreed at the first QA meeting in 2021/22 and a new scheme piloted
throughout the remainder of the year. Safe, effective care delivery and
management of services remains central to our service offer.
Care Quality Commission: The CEO currently fulfills the role of Registered
Manager for the Care Quality Commission who regulate and
inspect our service. The role of Registered Manger will pass to the
Senior Nurse once a permanent arrangement is secured. We will
continue to liaise with the CQC Inspector and complete an annual
key lines of enquiry questionnaire to inform these discussions.
Workforce Review: We will review our skill mix requirements,
considering the new opportunities for nursing associates
as well as healthcare assistants and nursery nurses to be part of
the team, in addition to registered nurses. We will also implement a
programme of support to those in the nursing team, with managerial
responsibilities to ensure that they can grow and develop in their roles.
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Family Engagement
This is a key objective of our strategy, and one which we will build upon. Jessie
May was set up by parents and we try to honour that by ensuring that the voice
of parents/carers (and children) is heard within the organisation to help shape the
service and set its priorities.
We will recruit at least one further parent to be a
trustee on the Board of Trustees;
We will explore the use of social media as a platform
for us to engage with families;
We will hold a series of virtual and/or live engagement
sessions with families;
We will consult on the establishment of a parents
advisory group or similar forum;
We will develop a dedicated area of the Jessie May website
for family information.
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Influencing
Avon Children’s Palliative Care Strategy Group: We will continue
to be active members of the Avon Children’s Palliative Care Strategy
Group and contribute to working groups as appropriate.
24/7 End of Life Steering Group: We will continue to be core
members of this project steering group which, now that funding
has been secured, should begin to make significant progress.
Royal College of Nursing: Our Nursing Lead remains as the
Chair of the RCN Community & Continuing Care Forum.
Together for Short Lives and Hospice UK: We continue
as members of these umbrella organisations and will
contribute to working groups as appropriate.
Swindon/Wiltshire/B&NES: We will re-engage with the CCG/
STP to seek to establish a funding relationship with them
to support our work. In the absence of this we will review
provision and the needs of the caseload, alongside working with
nurses managing the caseload of children and families.
Local MPs: We will update local MPs on developments in the charity and
take up any issues identified by parents and families as appropriate.
Department of Health & Social Care: We will engage and comment on
consultation documents, guidance etc. relating to children’s palliative care.
Public Relations: We will use our press contacts, our
website and social media to comment on issues relevant to
our charity and the children and families we support.
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Digital Transformation
Many of the systems and processes for finance, fundraising and administration
are somewhat antiquated, are not integrated, often duplicated and use a mixture
of paper and electronic systems. Our IT infrastructure is also outdated, slow and
inefficient.
We will implement a Digital Transformation Project to identify new software
and hardware to integrate and automate as much as possible. The first phase
of this will be completed within the first six months of the new financial year.
In addition, we are reviewing all of our care records systems with a
view to implementing a paper light, if not paper free, system.
Digital Prescribing: For some time we have been working on replacing our hard
copy drug charts with a centrally coordinated electronic medication record held
and coordinated by the Bristol Royal Hospital for Children. This is a joint project
with other service providers supported by the CCG, but being piloted with Jessie
May. The project was halted due to lack of pharmacist availability. This has now
been negotiated and the aim is that all children supported by Jessie May will
have digital drug charts within a six-month period. This scheme will run for a
further six months, with a view to being rolled out to other service providers.
Digital ‘patient’ Records: Our current records are a mix of electronic and paper
held. We are actively exploring options for making all our records digital. This
is so that records can be seen in real time and shared on a platform with the
other service providers supporting the children and families. We will assess
the potential of the systems being used currently – Medway, EMISS and
Connecting Care and develop a plan to implement the most suitable system.
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Finance & Administration
We will reduce the size of our office premises and introduce a flexible
approach to office/home working.
We will complete an audit of all HR files of Jessie May employed staff.
We will develop a checklist of all regular reporting requirements to ensure
compliance.
We will establish a scheme of data reporting, streamlined by electronic
record keeping, to support monitoring of our activities and to support
fundraising with information for grant applications and reports.
We have set a budget for the year, and whilst fundraising in the current
environment is very unpredictable, we are aiming to ensure that we keep at
least six months of expenditure in reserve.
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Fundraising
Since April 2020 traditional fundraising activities have ground to a halt. These
activities included; schools, businesses, workforces, lottery, community groups,
volunteering and events fundraising. In the absence of these activities we are
adapting our fundraising approaches to enable us to attract new supporters.
There will be a time, hopefully during the reset and recovery period, when we can
recommence traditional forms of fundraising activity.
Marketing & Communications
We will improve and increase the reach of Jessie May
communication with our supporters through:
The development of a Marketing and Communications plan.
This will include the introduction of a Communications Policy outlining guidance
for media requests etc, and the appointment of a Freelance PR Officer for an
initial six-month period to increase our profile externally.
The website, as the shop window to Jessie May, is being updated with revised
functionality and appearance. The first phase includes updated content, branding
and performance. The second phase is to develop a Jessie May shop and finally
the third phase to introduce a membership section.
We will have a tightly controlled brand identity, which will reach out to different
identified audiences in a tailored tone of voice and content. This will span every
function, from family communications to donors and corporate partnerships to
ensure maximum impact and reach for our brand.
The development of a controlled social media plan that ensures the right balance
between cause related posts vs fundraising related posts (suggest 80/20).
The newsletter will be reintroduced initially twice a year (Spring and Autumn)
and will be available through digital and print where required. We will continue to
develop the internal edition of the newsletter, available for staff and trustees.
The Patron and Ambassador programme will receive an overhaul during this reset
and recovery period seeing a recruitment drive.
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Fundraising (continued)
Corporate Partnerships
We will continue to nurture existing corporate partnerships and take opportunity
to develop new partnerships by resuming the Caring at Work initiative, attending
networking events, seeking innovative opportunities to maximise
income through corporate partnerships, and developing a standardised
stewardship and donor journey plan.
Community & Events
We will maintain and improve our online presence and scheduled
communications for, and to, groups, individual fundraisers, eventers, volunteers,
and educational establishments. Fundraising tools will be made available for these
individuals to enable them to support Jessie May with minimal assistance from the
team. These items include a digital fundraising pack, downloadable sponsor form,
cardboard collecting boxes and banners that we can tear from a roll and put in the
post. We will continue to monitor activity and may consider the appointment in
the last quarters of the financial year of a Fundraiser to support the team.
Campaign Activity
The recruitment of new Jessie May supporters across the organisation is key to
the long-term financial stability of Jessie May. One of many activities that will be
implemented is the introduction of new supporter campaigns. Two campaigns will
be implemented during this period: Summer campaign with Children’s Hospice
Week tie in, and a Christmas campaign.
A major call to action during the reset and recovery period is the launch of an
organisational wide message of ‘Buy an Hour’ for Jessie May. A private phase is
currently underway, where we approach privately known supporters before going
public in the latter part of the period.
The introduction or refinement of supporter journeys to retain
and develop relationships will be delivered, as will a new
legacy and will recruitment programme.
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Fundraising (continued)
Trust, Grant and Statutory Funding
The focus of this area is the development of the stewardship programme for
grant makers to ensure reporting is timely and the information required exceeds
expectations.
Adaptations will need to be considered for applications depending on the trust
environment, which is uncertain at present.
During the reset and recovery period, handover of the
statutory management and a proactive approach with the
aim to increase funds will occur.
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Governance
We will:
Recruit an Executive Assistant to work in support of the
CEO and the Board of Trustees.
Appoint a new Chair of the Board.
Revise and agree a scheme of delegation from the Board
to the Sub Committees and the CEO.
Complete a full induction of recent new additions to our
Board of Trustees.
Monitoring
This plan, which covers the next twelve to eighteen months, will be monitored
on a monthly basis by the Senior Management Team and quarterly by the Board
of Trustees through Key Performance Indicators.
This plan cannot be achieved without the continued, valued contribution
and support of our loyal team, supporters and families. All of whom have
frequently gone the extra mile – so a very big thank you to all of you.
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Stay in touch
0117 958 2174
jessiemay.org.uk
Email info@jessiemay.org.uk
Follow us
Company Limited by guarantee (England and Wales No: 04118341)
Charity Number 1086048
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