FRGuide09chx:Family Resource Guide - The Phoenix Society for ...
FRGuide09chx:Family Resource Guide - The Phoenix Society for ...
FRGuide09chx:Family Resource Guide - The Phoenix Society for ...
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<strong>Family</strong> and Child<br />
<strong>Resource</strong> <strong>Guide</strong><br />
Below you will find a list of resources to help you support children and families. This is simply a compilation<br />
and is in no way an endorsement <strong>for</strong> any one resource.<br />
B O O K S<br />
TITLE<br />
ADD/ADHD<br />
AUTHOR/ORGANIZATION AGES<br />
ADD and <strong>The</strong> College Student: A <strong>Guide</strong> For Patricia O. Quinn, MD Young<br />
High School and College Students with ADD Adult<br />
Help Is On <strong>The</strong> Way: A Child’s Book About ADD Marc A. Nemiroff, PhD,<br />
Jane Annunziata, PsyD<br />
4–8<br />
Putting on <strong>The</strong> Brakes: Young People’s <strong>Guide</strong><br />
to Understanding ADHD<br />
Patricia O. Quinn, MD 9–-12<br />
Sparky’s Excellent Misadventures: My ADD Journal, By Me (Sparky) Phyllis Carpenter, Marti Ford 4–8<br />
<strong>The</strong> Best Of “Brakes”: An Activity Book <strong>for</strong> Kids With ADD<br />
ANGER/BEHAVIOR<br />
Patricia O. Quinn, MD,<br />
Judith M. Stern, MA<br />
9–12<br />
Alexander and the Terrible, Horrible, No Good, Very Bad Day Judith Viorst 4–8<br />
Angry Arthur Hiawyn Oram 8–14<br />
Danny, <strong>The</strong> Angry Lion Dorothea Lachner 2–7<br />
How to Take the Grrr Out of Anger Elizabeth Verdick,<br />
Marjorie Lisovskis<br />
4–8<br />
Mean Soup Betsy Everill 4–8<br />
<strong>The</strong> Very Lonely Bathtub Ann Rasmussen PsyD,<br />
Marc Nemiroff, PhD<br />
5–9<br />
When I Feel Angry Cornella Maude Speiman 5–9<br />
When Sophie Gets Angry - Really Really Angry… Molly Bang 4–7<br />
BULLIES<br />
And Words Can Hurt Forever: How to Protect Adolescents James Garbarino, Ph.D. Adult<br />
from Bullying, Harassment, and Emotional Violence & Ellen Delara, Ph.D.<br />
Anti-Bullying Handbook Keith Sullivan Adult<br />
Bullies and Victims: Helping Your Child Through<br />
the School-yard Battlefield<br />
Sue Ellen Fried, Paula Fried Adult<br />
Bullies are a Pain in the Brain Trevor Roman 9–12<br />
Bullies: From the Playground to the Boardroom Jane Middleton Mose Adult<br />
Bullies, Targets & Witnesses: SuEllen Fried, ADTR Adult<br />
Helping Children Break the Pain Chain and Paula Fried, Ph.D<br />
Bully Free Classroom Allan Beane, Ph.D. Adult<br />
Bullying at School Dan Olweus Adult<br />
Cliques, Phonies & Other Baloney Trevor Romain 9–12<br />
How to Talk So Kids Will Listen and Listen So Kids Will Talk Adele Faber & Elaine Mazlish Adult<br />
1 <strong>The</strong> <strong>Phoenix</strong> <strong>Society</strong>, Inc. 1835 RW Berends Dr. SW, Grand Rapids, MI 49519 • 800.888.BURN • www.phoenix-society.org
TITLE AUTHOR/ORGANIZATION AGES<br />
Keys to Dealing With Bullies Barry E. McNamara Adult<br />
My Secret Bully Trudy Ludwig, Abigail Marbel,<br />
Susan Wellman<br />
9–12<br />
Nobody Knew What to Do: A Story About Bullying Becky Ray McCain 5–9<br />
Odd Girl Out: <strong>The</strong> Hidden Culture of Aggression in Girls Rachel Simmons Adult<br />
Please Stop Laughing at Me Jodee Blanco Adult<br />
Secret of the Peaceful Warrior Dan Millman All Ages<br />
Stop Picking On Me; A First Look at Bullying Pat Thomas 8–12<br />
<strong>The</strong> Berenstain Bears & <strong>The</strong> Bully Stan & Jan Berenstain 4–8<br />
<strong>The</strong> Bully, the Bullied, and the Bystander:<br />
From Preschool to High School—How Parents and Teachers<br />
Can Help Break the Cycle of Violence<br />
Barbara Coloroso Adult<br />
<strong>The</strong> Bullying Prevention Handbook John Hoover & Ronald Oliver Adult<br />
<strong>The</strong> Meanest Thing To Say: A Little Bill Book<br />
<strong>for</strong> Beginning Readers<br />
Bill Cosby 4–8<br />
Why is Everyone Always Picking on Me?<br />
A <strong>Guide</strong> to Handling Bullies<br />
Terrence Webster-Doyle 6–12<br />
Your Child Bullying Practical and Easy to Follow Advice<br />
DIFFERENCES<br />
Jenny Alexander Adult<br />
Children with Limb Differences A Handbook <strong>for</strong> Families Center <strong>for</strong> Limb 0–5,<br />
Differences at Mary Free<br />
Bed Rehabilitation Hospital<br />
6–12<br />
Elmer David McKee 4–8<br />
I’m Like You, You’re Like Me: A Child’s Book<br />
About Understanding and Celebrating Each Other<br />
Cindy Gainer 4–8<br />
Zink the Zebra a Special Tale<br />
FEELINGS<br />
Kelly Weil 4–8<br />
How to talk so kids will listen and how to listen so kids will talk. Faber, A. & Mazlish, E. Adult<br />
Jessica and the Wolf: A Story <strong>for</strong> Children Who Have Bad Dreams Ted Lobby, MSW 4–8<br />
Mood Swings Flip Chart Free Spirit All Ages<br />
<strong>The</strong> Struggle To Be Strong: True Stories by Al DeSerta, MA, Young<br />
Teens About Overcoming Tough Times Sybil Wolin, Ph.D. Adult<br />
<strong>The</strong> Way I Feel Janan Cain 4–8<br />
Through My Eyes: A Journal <strong>for</strong> Teens Linda Kranz Young Adult<br />
Today I Feel Silly and Other Moods That Make My Day Jamie Lee Curtis 4–8<br />
GRIEF<br />
Gentle Willow: A Story <strong>for</strong> Children About Dying Joyce C. Mills, PhD 4–8<br />
Healing Your Grieving Heart <strong>for</strong> Teens, 100 Practical Ideas Alan D., Ph.D. Wolfelt Teen/<br />
Young Adult<br />
My Grieving Journey Book Donna Shavatt and Eve Shavatt 9–12<br />
<strong>The</strong> Next Place Warren Hansen 9–12<br />
Why Do People Die?:<br />
Helping Your Child Understand With Love and Illustrations<br />
Cynthia MacGregor<br />
2 <strong>The</strong> <strong>Phoenix</strong> <strong>Society</strong>, Inc. 1835 RW Berends Dr. SW, Grand Rapids, MI 49519 • 800.888.BURN • www.phoenix-society.org
HEALTH/MEDICAL<br />
TITLE AUTHOR/ORGANIZATION AGES<br />
A.D.A.M Anatomy and Physiology:<br />
4 DVD’s, teen and adult anatomy tutorial<br />
Ventura Educational Systems 13–adult<br />
Brecker Bunny Learns to be Careful Hilary Bilbrey Ages 4–6<br />
Homemade Books to Help Kids Cope:<br />
An Easy Technique <strong>for</strong> Parents and Professionals<br />
Robert G. Ziegler, MD Adult<br />
How to Help Children Through a Parent’s Serious Illness Kathleen McCue, MA, CCLS Adult<br />
Imagine Norman Messenger 4–8<br />
Little Tree: A Story For Children With Serious Medical Problems Joyce C. Mills, PhD 4–8<br />
Me and My Amazing Body Joan Sweeney & Annette Cable 4–8<br />
My Amazing Human Body; A CD Rom anatomy game Dorling Kindersley 6-10<br />
<strong>The</strong> Best Part of Me: Wendy Ewald Young<br />
Children talk about their bodies in pictures and words Adult<br />
Tibby Tried It Sharon and Ernie Useman 4–8<br />
When Someone has a Very Serious Illness M. Heegard/Woodland Press Adult<br />
SELF-ESTEEM/SELF IMAGE<br />
ABC I Like Me! Nancy Carlson 4–6<br />
I Like Me Nancy L. Carlson 4–8<br />
I Want Your Moo: A Story <strong>for</strong> Children About Self-Esteem Marcella Bakur Weiner, EdD,<br />
Jill Neimark<br />
4–8<br />
I’m Gonna Like Me; Letting off a Little Self Esteem Jamie Lee Curtis 4–8<br />
Incredible Me Kathi Appelt 4–8<br />
Just Because I Am Lauren M. Payne 3–8<br />
Making Every Day Count: Daily Reading <strong>for</strong> Young People on Pamela Espeland, 11 and<br />
Solving Problems, Setting Goals, & Feeling Good About Yourself Elizabeth Verdick up<br />
Making the Most of Today Daily Readings <strong>for</strong> Young People Pamela Espeland, 11 and<br />
on Self-Awareness, Creativity, and Self Esteem Rosemary Wallner up<br />
More Than a Label: Why What Your Wear and Who You're<br />
with Doesn’t Define Who You Are<br />
Aisha Muharrer 13 and up<br />
Stick Up For Yourself! Every Kid’s <strong>Guide</strong> to Personal Power Gersten Kaufman, Ph.D., Lev 9–12,<br />
and Positive Self-Esteem Raphael, Ph.D., Pamela Espeland Adult<br />
What is Beautiful? Etan Boritzer, Nancy Forrest 4–8<br />
You Are Special Max Lucado 4–8<br />
SIBLINGS<br />
I Know I Made It Happen: A Gentle Book About Feeling Guilty L.B. Blackburn/Centering Corp.<br />
Living with a Brother or Sister with Special Needs: Donald Meyer, 4–8<br />
A Book <strong>for</strong> Sibs Patricia F. Vadasy<br />
Loving Each One Best: A Caring and Practical Nancy Samalin, Adult<br />
Approach to Raising Siblings Catherine Whitney<br />
My Brother Matthew M. Thompson/Woodbine House 4–8<br />
Siblings without rivalry: How to help your<br />
children live together so you can live too<br />
Adele Faber & Elaine Mazlish Adult<br />
Sibshops: Workshops <strong>for</strong> Sibling of Children with Special Needs Donald Meyer,<br />
Patricia F. Vadasy, Cary Pillo<br />
Adult<br />
3 <strong>The</strong> <strong>Phoenix</strong> <strong>Society</strong>, Inc. 1835 RW Berends Dr. SW, Grand Rapids, MI 49519 • 800.888.BURN • www.phoenix-society.org
TITLE AUTHOR/ORGANIZATION AGES<br />
<strong>The</strong> Normal One: Life with a Difficult or Damaged Sibling Jeanne Safer Adult<br />
Views From Our Shoes: Growing Up with a Brother or Sister<br />
with Special Needs<br />
Donald J. Meyer 9–12<br />
What About Me? When Brothers and Sisters Get Sick Allan Peterkin, MD 4–8<br />
When Molly Was in the Hospital: A Book <strong>for</strong> Brothers and Debbie Duncan,<br />
Sisters of Hospitalized Children Nina Ollikainen 4–8<br />
TEASING<br />
Marvin and the Mean Words Suzy Kline & Blanche Sims 6–10<br />
Help I’m Being Teased Dr. Emily Lovegrove All Ages<br />
How to Handle Bullies, Teasers, and Other Meanies:<br />
A Book That Takes the Nuisance Out of Name Calling<br />
and Other Nonsense<br />
Kate Cohen-Posey 6–Adult<br />
Simon’s Hook; A Story About Teases and Put-Downs Karen Gedig Burnett 4–8<br />
Sticks and Stones: 7 Ways Your Child Can Deal with Teasing,<br />
Conflict and Other Hard Times<br />
Scott Cooper Parent<br />
Words Will Never Hurt Me; Helping Kids Handle Teasing,<br />
Bullying and Putdowns<br />
Sally Northway Ogden 9–12<br />
TRAUMA<br />
A Terrible Thing Happened-A Story <strong>for</strong> Children<br />
Who Have Witnessed Violence or Trauma<br />
Margaret M. Holmes 4–8<br />
Brave Bart Caroline Sheppard<br />
Children and trauma: A parent’s guide to helping children heal. Monahan, C. Adult<br />
Waking the Tiger - Healing Trauma <strong>The</strong> Innate Peter Levine Young Adult<br />
Capacity to Trans<strong>for</strong>m Overwhelming Experiences Adult<br />
W E B S I T E S<br />
TITLE ORGANIZATION AGES<br />
RESOURCES<br />
www.phoenix-society.org <strong>The</strong> <strong>Phoenix</strong> <strong>Society</strong> <strong>for</strong> Burn Survivors Adult/Young Adult<br />
www.ed.gov/parents/needs/ U.S. Department of Education; A <strong>Guide</strong> to Adult<br />
speced/iepguide/index.html the Individualized Education Program<br />
www.compassionbooks.com Compassion Books Parents, Professionals<br />
www.dontlaugh.org Operation Respect: Don't Laugh at Me Professionals<br />
www.enablemart.com EnableMart Technology <strong>for</strong> Everyone Adult<br />
www.faceit.org Let's Face It Parents, Professionals, kids<br />
www.freespirit.com FreeSpirit Publishing Parents, professional, kids<br />
www.locksoflove.com Locks of Love provides hairpieces to<br />
disadvantaged children<br />
Parents, Professionals<br />
www.misterrogers.org Mister Roger's Neighborhood Parents, professionals, kids<br />
www.nichcy.org NICHCY National Dissemination<br />
Center <strong>for</strong> Children with Disabilities.<br />
Adult<br />
www.pbskids.org/itsmylife/<br />
index.html<br />
PBS Kids Its My Life Ages preteen and teen<br />
4 <strong>The</strong> <strong>Phoenix</strong> <strong>Society</strong>, Inc. 1835 RW Berends Dr. SW, Grand Rapids, MI 49519 • 800.888.BURN • www.phoenix-society.org
TITLE ORGANIZATION AGES<br />
www.pyramidproducts.com Picture Exchange Communication Systems Parents, Professionals<br />
www.selfesteemshop.com <strong>The</strong> Self Esteem Shop Parents, Professionals<br />
www.starlight.org Starlight Starbright Children’s Foundation Parents, Professionals<br />
GRIEF/LOSS/TRAUMA<br />
www.centering.org Centering Corporation Professionals, Parents<br />
www.grievingchild.org <strong>The</strong> Dougy Center Adults, kids, Professionals<br />
www.hopingskillscompany.com Special Keepsakes that Com<strong>for</strong>t Friends<br />
and Loved Ones with Serious Illness<br />
Parents, Professionals<br />
www.kidsaid.com KIDSAID Kids and Teens<br />
www.tlcinst.org <strong>The</strong> National Institute <strong>for</strong> Trauma<br />
and Loss in Children<br />
Professional/Parent<br />
HEALTH RESOURCES<br />
www.aap.org <strong>The</strong> American Academy of Pediatrics Parents, Professionals<br />
www.aboutourkids.org About Our Kids Parents, Professionals<br />
www.ameriburn.org American Burn Association Professionals<br />
www.amputee-coalition.org To reach out to people with limb loss<br />
and to empower them through education,<br />
support and advocacy.<br />
Adult<br />
www.childdevelopmentinfo.com Child Development Institute Parents<br />
www.childtrauma.org <strong>The</strong> Child Trauma Academy Parent, Professionals<br />
www.cpsc.gov Consumer Product Safety Commission Parents, Professionals<br />
www.innercoaching.com Providing products and programs to<br />
help children deal with and conquer<br />
stress in their lives<br />
Parents, Professionals<br />
www.journeytowardhealing.com One Step at a Time; A <strong>Guide</strong> For Parents<br />
Navigating <strong>The</strong> Hospital Experience<br />
With <strong>The</strong>ir Child.<br />
Parents, Professionals<br />
www.kidshealth.org <strong>The</strong> Nemours Foundation Parents, kids, teens<br />
www.medlineplus.gov MEDLINE Plus Professionals, Parents<br />
www.maryfreebed.com Center <strong>for</strong> Limb Differences at Mary Free<br />
Bed Rehabilitation Hospital<br />
Parents, Professionals<br />
www.nctsnet.org <strong>The</strong> National Child Traumatic<br />
Stress Network<br />
Parents, Professionals<br />
www.Patchworx.org Patchworx, Where kids with Illness or<br />
Disabilities Discover a Circle of Support<br />
Kids and teens<br />
www.shrinershq.org Shriners of North America,<br />
Shriners Hospitals <strong>for</strong> Children<br />
Parents, Professionals<br />
www.tlcontact.com CarePages. Share your Story<br />
Build your Support Circle<br />
<strong>Family</strong><br />
PREVENTION<br />
www.cooltheburn.com Regions Hospital Burn Center Parents, Professionals, Kids<br />
www.fema.gov Federal Emergency Management Agency Parents, Professionals, Kids<br />
www.inspiredbyfamily.com Brecker Bunny Learns to be Careful Parents, Professionals,<br />
www.nfpa.org National Fire Protection Agency Professionals<br />
www.homesafetycouncil.org Home Safety Council Parents, Professionals<br />
5 <strong>The</strong> <strong>Phoenix</strong> <strong>Society</strong>, Inc. 1835 RW Berends Dr. SW, Grand Rapids, MI 49519 • 800.888.BURN • www.phoenix-society.org
TITLE AUTHOR/ORGANIZATION AGES<br />
PREVENTION cont.<br />
www.safekids.org Safe Kids Coalition Parents, Professionals<br />
www.sosfires.com SOS Fires: Youth Intervention Programs Parents, Professionals<br />
www.theideabank.com <strong>The</strong> Idea Bank Professionals<br />
SPANISH<br />
www.bienhealth.org <strong>The</strong> Border Health In<strong>for</strong>mation Network All ages<br />
www.bravekids.org Help <strong>for</strong> Children With Chronic<br />
Life Threatening Illnesses and Disabilities<br />
All ages<br />
FREE ARTICLE REPRINTS FROM PHOENIX<br />
SOCIETY’S BURN SUPPORT NEWS:<br />
(refer to the <strong>Family</strong> <strong>Resource</strong> CD to find the printable versions)<br />
GENERAL:<br />
Burn Discharge in a “Perfect World” A Goal <strong>for</strong> the Burn Community by Lynn D. Solem, MD [discharg.pdf]<br />
“But we can’t just in<strong>for</strong>m our patients of the problems they will experience after discharge; we need to<br />
help them adjust to their new world.”<br />
Coping with Real Remembered and Imagined Stress III: Cognitive Methods by Monica Neil PSY D,<br />
Brett Thombs, PHD, and Jim Fauerback PHD [stress3.pdf]<br />
Coping with Real Remembered and Imagined Stress II: Exposure Methods by Monica Neil PSY D<br />
and Jim Fauerback PHD [stress2.pdf]<br />
Coping with Real Remembered and Imagined Stress I: Focusing Methods by Monica Neil PSY D and<br />
Jim Fauerback PHD [stress1.pdf]<br />
It is easy to see how we think about events can often intensify and prolong our feelings about them.<br />
Enjoy the Sun…with Care by Robert L. Klein MD [sun.pdf]<br />
How to enjoy the outdoors without being harmed.<br />
How to Help a Person With a Serious Burn Injury by Kathy J. Edwards, PHD [helping.pdf]<br />
Burn survivors say that a strong support system of family and friends is one of the most important<br />
factors in a successful recovery from a burn injury.<br />
Life Care Planning by Lee Brinkley Bryan MED, CRC, CVE [lifeplan.pdf]<br />
A life care plan outlines services and costs associated with and injury or chronic health condition.<br />
Navigating Vocational Rehab Services by Lee Brinkley Bryan MED, CRC, CVE [rehab.pdf]<br />
Navigating the options of vocational rehabilitation <strong>for</strong> work reentry and career services.<br />
Self-Care <strong>for</strong> the Care giver by Michael Bergeron, MA, LMHC [selfcare.pdf]<br />
Caregivers trying to do it all, dealing with stress, learning the signs of burnout and learning to strike a balance.<br />
Victim to Survivor: Addressing the Bullying Problem by Paul Schwartzman, LMHC, MS, DAPA [bullying.pdf]<br />
Children adolescents and adults experience bullying from the playground to the workplace. Learn how<br />
to identify bullying and tools to address it in daily life.<br />
CHILDREN:<br />
Adults Burned as Children: Buried Trauma by Megan Bronson RN, MSN, CS [youthbur.pdf]<br />
Adults cope with the trauma of childhood burn injuries and learn to move out of survival mode and<br />
into life and living.<br />
Don’t Forget the Siblings by Melodee Berber Marcuso, PHD [siblings.pdf]<br />
What happens to the sibling member when a brother or sister suffers a severe burn injury and the<br />
family must adapt to caring <strong>for</strong> and attending to the needs of the burn patient?<br />
Grief, Loss and Healing After Burn Trauma: Helping Children by Megan Bronson APRN, BC;<br />
Samantha Price MHDL, NCC, LPC [helpchil.pdf]<br />
<strong>The</strong> in<strong>for</strong>mation in the article is written to assist you in helping the special children in your life to<br />
reclaim life and childhood when their lives have been affected by burn trauma.<br />
Helping Children Understand and Cope with the Experience of Hospitalization by Amy Clark, BS,<br />
CCLS [coping.pdf]<br />
Even the most routine hospitalization can be a traumatic and terrifying experience <strong>for</strong> a child. This<br />
article helps identify the fears of children of all ages and how to support their needs in the hospital and<br />
in their transition home.<br />
6 <strong>The</strong> <strong>Phoenix</strong> <strong>Society</strong>, Inc. 1835 RW Berends Dr. SW, Grand Rapids, MI 49519 • 800.888.BURN • www.phoenix-society.org
Helping the Traumatized Child to Reclaim Life by Megan Bronson RN, MSN, CS [reclaim.pdf]<br />
Help children to reclaim their sense of personal power after a burn trauma begins when the child is<br />
hospitalized and continues throughout rehabilitation and all phases of recovery.<br />
Preparing Children to Visit in the Burn Unit by Kathy J. Edwards, PHD [burnunit.pdf]<br />
Should a child visit the burn unit, and if so, how they should be prepared.<br />
Return to School Made Easier with “<strong>The</strong> Journey Back” by Amy Clark and Maureen Kalil [journey.pdf]<br />
Practical applications of the <strong>Phoenix</strong> <strong>Society</strong>’s school reentry tools and testimonials from those who have<br />
implemented <strong>The</strong> Journey Back in their school reentry programs.<br />
Supporting Children in Reconnecting with Parents and Siblings Changed By Burn Trauma by<br />
Megan Bronson RN, MSN, CS [reconect.pdf]<br />
Children need appropriate assistance in accepting changes from a traumatic injury so they can they can<br />
adjust and move on with their family.<br />
What We Say Really Does Matter: A Parent’s Role in Shaping Children’s Self-Esteem by Amy Clark, BS,<br />
CCLS [esteem.pdf]<br />
How communication with children can impact their self-esteem.<br />
CAMPS<br />
<strong>Family</strong> Burn Camp: YMCA Camp duNord Style by Marion Doctor, LCSW [dunord.pdf]<br />
<strong>Family</strong> burn camp was born out of the realization that burns and other <strong>for</strong>ms of traumatic injury impact<br />
not only the patient but also every member of the family. Learn how the family of a burn survivor is<br />
supported at Camp duNord.<br />
Putting the <strong>The</strong>rapeutic in Burn Camps by Megan Bronson RN, MSN, CS [camps.pdf]<br />
<strong>The</strong>re are different schools of thought of what a children’s burn camp should and should not be.<br />
<strong>The</strong> Adult Survivor <strong>Family</strong> Getaway: “Burn Camp” <strong>for</strong> the Entire <strong>Family</strong> by Kathy J. Edwards, PHD<br />
[adultcam.pdf]<br />
<strong>The</strong> original concept <strong>for</strong> the camp is to create a place where children, spouses, loved ones, and partners<br />
could interact with others who are dealing with the same issues of having a burn survivor in the household.<br />
What are the Real Gifts that We Give? by Marion Doctor MSW [gifts.pdf]<br />
Balancing generosity with purpose and reward.<br />
INSPIRATIONAL<br />
Brien Dews, A positive Outlook Pays Off by Nicole E. Smith [dews.pdf]<br />
A story of a burn survivors recovery, return to work, positive outlook and his commitment to give back<br />
to the burn community.<br />
Burn Survivor and <strong>Family</strong> Learn Lessons of Endurance by Kathy J. Edwards, PHD [Schuckel.pdf]<br />
One common thread that runs through Joe’s life be<strong>for</strong>e and after his burn injury is strong family ties<br />
Facing Motherhood Female Burn Survivors Tell <strong>The</strong>ir Stories by Maureen Kalil [mothers.pdf]<br />
Challenges, joys and words of encouragement from women who have survived burn injury and<br />
motherhood.<br />
<strong>Family</strong> Learns Life Lessons in Coping from People and Animals by Kathy J. Edwards, PHD [duckwort.pdf]<br />
How a family of loving people and animals helps a young girl survive a terrible injury.<br />
<strong>Family</strong> Support Key to Recovery by Nicole E. Smith [stote.pdf]<br />
One burn survivors story of recovery and family support.<br />
God’s Answer to Prayer by Susan Lugli [prayer.pdf]<br />
A burn survivor’s story recently published in Chicken Soup <strong>for</strong> the Caregivers Soul: Stories to Inspire<br />
Caregivers in the Home, the Community and the World.<br />
Justina Page: A story of Love, Faith and the Strength of the Human Spirit by Nicole E. Smith [page.pdf]<br />
Memories of a brief chaotic incident, that <strong>for</strong>ever changed her life, followed by a lengthy and heroic recovery.<br />
Surviving Against All Odds by Kathy J. Edwards, PHD [Tweedle.pdf]<br />
How the road to recovery helped enrich the lives of survivor Patty Tweedle.<br />
SOCIALIZATION<br />
BEST Basics English by Barbara Kammerer Quayle [BESTeng.pdf]<br />
BEST Basics Spanish by Barbara Kammerer Quayle [BESTesp.pdf]<br />
Tools to Handle Questions and Teasing by Barbara Kammerer Quayle [teasing.pdf]<br />
Be Prepared by Rehearsing Your Responses<br />
When People Stare by Barbara Kammerer Quayle [stare.pdf]<br />
As the burn survivor returns to their familiar community and social activities, they may feel surprised,<br />
shocked, or completely overwhelmed as they meet the curious looks and inquisitive eyes of strangers.<br />
7 <strong>The</strong> <strong>Phoenix</strong> <strong>Society</strong>, Inc. 1835 RW Berends Dr. SW, Grand Rapids, MI 49519 • 800.888.BURN • www.phoenix-society.org
INTIMACY<br />
It’s Possible to Experience Physical Intimacy in Life After Burns by Kathy J. Edwards, PHD<br />
[intimacy.pdf]<br />
This article explores physical and emotional concerns of intimacy after a serious burn injury.<br />
Sexuality…the Forgotten Issue by Faith Roberts, RN, BSN, CRRN [sexualit.pdf]<br />
How to handle issues on intimacy and sexuality in an open and honest way.<br />
R E S O U R C E S A V A I L A B L E T H R O U G H<br />
T H E P H O E N I X S O C I E T Y<br />
(Contact the national office <strong>for</strong> ordering in<strong>for</strong>mation)<br />
TITLE<br />
BOOKS:<br />
AUTHOR/ORGANIZATION PRICE<br />
Body Image Workbook: An 8-Step Program <strong>for</strong> Learning to Like Your Looks$19.95<br />
Thomas F. Cash, PhD<br />
(New Harbringer Publications, Inc.)<br />
Item 180 Softback<br />
Bridge Never Crossed Capt. George A Burk<br />
(Science and Humanities Press)<br />
Item 184 Softback<br />
$16.95<br />
Burned and Beautiful Kathy Tartakoff<br />
(Children’s Legacy)<br />
Item 181 Softback<br />
$14.95<br />
Helping Children Heal the Effects of Loss and Trauma After Burn Injury – $3.00<br />
A <strong>Guide</strong> <strong>for</strong> Parents and Caregivers<br />
Megan Bronson, RN, MSN, CS<br />
Item 350 Softback<br />
It's Not What Happens to You, It's What You Can Do About It<br />
W. Mitchell (<strong>Phoenix</strong> Press)<br />
Item 162 Hardback<br />
$19.95<br />
Legal Rights of the Catastrophically Ill and Injured: A <strong>Family</strong> <strong>Guide</strong><br />
Joseph L. Romano, Esquire<br />
Item 169 Softback<br />
Free!<br />
National Firefighters Recipe Book<br />
Candice M. DeBarr & Louis A. DePasquale<br />
(All-Hands Publications)<br />
Item 123 Spiral<br />
$16.95<br />
Non-Chew Cookbook Randy J. Wilson (Wilson Publishing Co.)<br />
Item 124 Spiral<br />
$23.95<br />
<strong>Phoenix</strong> the Fireboat – <strong>The</strong> True Story (For Children)<br />
Jack Cutter (ABC Press)<br />
Item 100 Softback<br />
$9.95<br />
Reason <strong>for</strong> Living George Pessotti<br />
(Our American Journeys/Applewood Books)<br />
Item 185 Softback<br />
$16.95<br />
Recognition Beyond Burned Portraits of Survival, Rebirth & Hope<br />
Steve Lobel<br />
Item 800 Softback<br />
$25.00<br />
Rising From the Flames Albert Howard Carter III, PhD<br />
Jane Arbuckle Petro, MD<br />
(University of Pennsylvania Press)<br />
Item 186 Softback<br />
$27.50<br />
8 <strong>The</strong> <strong>Phoenix</strong> <strong>Society</strong>, Inc. 1835 RW Berends Dr. SW, Grand Rapids, MI 49519 • 800.888.BURN • www.phoenix-society.org
TITLE AUTHOR/ORGANIZATION PRICE<br />
Severe Burns: A <strong>Family</strong> <strong>Guide</strong> to Medical and Emotional Recovery<br />
Andrew M. Munster, MD<br />
(Johns Hopkins University Press)<br />
Item 130 Hardback<br />
$29.95<br />
<strong>The</strong> Journey Back – <strong>Resource</strong>s to assist school reentry after burn injury $80.00<br />
Is a wealth of in<strong>for</strong>mation <strong>for</strong> the parent, health care provider, teacher, or caring<br />
adult in the student’s life. Tools <strong>for</strong> preparing, supporting, presenting, and evaluating<br />
school reentry are all included. A DVD with examples of key points and messages<br />
are included along with a CD loaded with resource in<strong>for</strong>mation.<br />
Item 2007 Softcover/DVD/CD<br />
Up From the Ashes: Surviving and Growing Through Personal Crisis<br />
Karl Slaikeu and Steve Lawhead<br />
(Zondervan Publishing Company)<br />
Item 132 Softback<br />
$12.95<br />
VIDEO/CD/DVD:<br />
<strong>Family</strong> <strong>Resource</strong> CD<br />
A collection of articles from Burn Support News targeting not only the burn survivor,<br />
but spouses, children, siblings, and others who are involved in their lives.<br />
Item 902 CD<br />
Image Enhancement Kit <strong>for</strong> Burn Survivors –<br />
A Common Sense <strong>Guide</strong> to Creating Your BEST Image<br />
Barbara Kammerer Quayle, MA<br />
Free<br />
(International Association of Firefighters and the IAFF Burn Foundation)<br />
Item 903 VHS/Softback Free<br />
Lane’s Road Home<br />
A video journal of Lane Duckworth who was burned over 85% of her total body<br />
surface area in 1997, and how she and her family recovered from the devastating injury.<br />
Item 400 00:11:00 DVD $5.00<br />
Reservoirs of Strength Bravo Entertainment, Inc<br />
A close and careful look at burn rehabilitation through the eyes of the patients, their friends and loved<br />
ones, and the many specialists who contribute to the miracle of recovery.<br />
Item 2006 00:57:00 DVD $60.00<br />
Item 2005 00:57:00 VHS $60.00<br />
You Can Do It!<br />
Community Re-entry Skills For Children, Teens and Adults with Burns<br />
<strong>Phoenix</strong> <strong>Society</strong>/Children’s Hospital Denver<br />
Item 1000 00:20:00 DVD<br />
WORLD BURN CONGRESS 2004 CONFERENCE SESSIONS<br />
$5.00<br />
UP AND RUNNING Jamie Goldman-Marseilles<br />
Item 200 DVD<br />
$5.00<br />
INTIMACY Bernadette Martinez-Wright & Duane Wright $5.00<br />
Item 201 DVD<br />
DATING & RELATIONSHIPS 101 James Bosch<br />
Item 202 DVD<br />
$5.00<br />
BUILDING SUPPORTIVE RELATIONSHIPS<br />
Bernadette Martinez-Wright<br />
Item 203 DVD<br />
$5.00<br />
TACKLING DESTRUCTIVE COPING Frank McGonagle<br />
Item 204 DVD<br />
$5.00<br />
HOW TO BUILD A RELATIONSHIP WITH THE FIRE SERVICE<br />
Ron Siarnicki<br />
Item 205 DVD<br />
$5.00<br />
RE-INVENTING YOURSELF FOR THE WORKPLACE<br />
Dan Cathy, CEO of Chick Fil A<br />
Item 206 DVD<br />
$5.00<br />
9 <strong>The</strong> <strong>Phoenix</strong> <strong>Society</strong>, Inc. 1835 RW Berends Dr. SW, Grand Rapids, MI 49519 • 800.888.BURN • www.phoenix-society.org
ORDER FORM<br />
Item No. Quantity Price Extension<br />
Total Purchases:<br />
Postage & Handling: $4.50 <strong>for</strong> first item, and $2.50 each <strong>for</strong> items 2-5.<br />
For more than 5 items, or international rates,<br />
please call <strong>for</strong> charges.<br />
*No additional shipping charges <strong>for</strong> <strong>The</strong> Journey Back<br />
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