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Sexuality Education - Outreach

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Bringing the Birds & Bees<br />

Down to Earth:<br />

<strong>Sexuality</strong> <strong>Education</strong> For<br />

Individuals With Autism<br />

Lisa Mitchell, LCSW-R<br />

Licensed Clinical Social Worker<br />

Lisa Mitchell, LCSW-R<br />

The academics still have little<br />

grasp of the problems the autistic<br />

adult faces, instead of focusing<br />

90% of their attention on the child<br />

under the age of twelve. The<br />

attitude is almost Freudian, in that<br />

after age twelve the person almost<br />

becomes a non-person, prompting<br />

one to ask “What next?”<br />

Melissa Bee, October 12 th , 1999<br />

Lisa Mitchell, LCSW-R<br />

Lisa Mitchell, LCSW-R<br />

Why?<br />

Outline<br />

� Introduction to <strong>Sexuality</strong> <strong>Education</strong> & A.S.D.’s:<br />

Why? Reasons for <strong>Education</strong><br />

Who? Considerations for Families & Professionals<br />

� What?: Key & Other Concepts to Teach<br />

� How?:<br />

General Tips for Providing <strong>Sexuality</strong> <strong>Education</strong><br />

Activities & Interventions<br />

� Sexually Maladaptive Behaviors:<br />

Determining Causes<br />

Interventions<br />

Lisa Mitchell, LCSW-R<br />

Autism: <strong>Sexuality</strong>, Variability, & Interest<br />

� <strong>Sexuality</strong> may be very different for persons with<br />

A.S.D.’s depending on their level of functioning.<br />

� A fairly recent study* of persons with A.S.D’s,<br />

who had more severe impairments found:<br />

~39% of males & 47% of females<br />

demonstrated “definite signs of sexual behavior<br />

towards others”.<br />

~68% of males & 73% of females demonstrated<br />

“indefinite signs of sexual behavior towards<br />

others”.<br />

� The moral: Regardless of level of functioning,<br />

interest seems to be there for many persons with<br />

Autism Spectrum Disorders.<br />

* Haracopos, D. & Pedersen, L. (2002): <strong>Sexuality</strong> & Autism, Danish Report: Society for<br />

the Autistically Handicapped. Copenhagen.<br />

Lisa Mitchell, LCSW-R<br />

Reasons Why Persons with A.S.D.’S Need<br />

<strong>Sexuality</strong> <strong>Education</strong> & Support<br />

Lisa Mitchell, LCSW-R<br />

� The Media<br />

� Peers<br />

� Sexual Abuse<br />

1


Reason #1 For <strong>Education</strong> & Support:<br />

Sexual Abuse<br />

� Abuse: Children with developmental<br />

disabilities are abused 2-3 times more than<br />

non-disabled children.<br />

� 68-80% of developmentally disabled females<br />

are sexually molested or raped by age 18.<br />

� 30-70% of developmentally disabled males<br />

are sexually molested or raped by age 18.<br />

� 49% of developmentally disabled individuals<br />

who are sexually abused will experience 10 or<br />

more abusive incidents in their lifetimes.<br />

� 15,000-19,000 individuals with developmental<br />

disabilities are raped each year.<br />

� Studies show that approximately 90% of<br />

individuals with developmental disabilities.<br />

* Furey, E.M. (1994); Sobsey, D., & Doe, T. (1991); & Reynolds, L. (2002)<br />

Lisa Mitchell, LCSW-R<br />

Lisa Mitchell, LCSW-R<br />

Lisa Mitchell, LCSW-R<br />

Who?<br />

What?<br />

<strong>Sexuality</strong> <strong>Education</strong>:<br />

Increases the likelihood<br />

that individuals with<br />

disabilities will either<br />

have the skills to stay safe,<br />

or will be more likely to<br />

report victimization<br />

after it occurs.<br />

Lisa Mitchell, LCSW-R<br />

Who Should Do “The Talk?”<br />

� Optimum for young people: 75% family<br />

& 25% agency or school<br />

� Every family, school or agency is<br />

different<br />

� Ideally, it is best to have at least one<br />

caregiver involved.<br />

� Best candidate<br />

� For Schools: Co-Teaching & “Guidance<br />

Classroom”<br />

� How to deal with discomfort<br />

� “The talk” fallacy<br />

Lisa Mitchell, LCSW-R<br />

“Safe” <strong>Sexuality</strong> Subjects<br />

� Self-Esteem: May Include<br />

<strong>Education</strong> About Disabilities<br />

� Puberty: Dealing With Body<br />

& Feeling Changes<br />

� Abuse Prevention<br />

� Relationships<br />

� Social Skills<br />

*Adapted from: Schwier, K.M. & Hingsburger, D. (2000)<br />

Lisa Mitchell, LCSW-R<br />

2


Key Concepts<br />

� Body Awareness &<br />

Terminology: Teach<br />

correct names for body<br />

parts, including genitalia.<br />

Three types of language:<br />

“Adult” or “Scientific”,<br />

“Baby-talk”, & “Street”<br />

� Public & Private*: Body<br />

parts, locations, clothing,<br />

behavior & subject<br />

matter<br />

*Adapted from: Schwier, K.M. & Hingsburger, D. (2000)<br />

Lisa Mitchell, LCSW-R<br />

Key Concepts For Girls:<br />

Body Changes & Menses<br />

� Educate on typical body changes for girls<br />

(e.g. breast development, hair, acne, body<br />

odor).<br />

� Most girls with A.S.D.’s accept menstruation<br />

in a matter of fact manner.<br />

� Teach the beauty of becoming a woman.<br />

When menstruation first occurs, it should be<br />

celebrated.<br />

� Talk about and prepare them for the sight of<br />

blood.<br />

� Prior to menstruation, teach and practice<br />

how to use sanitary products. For those<br />

with significant tactile sensitivities, use a<br />

systematic desensitization approach.<br />

� Encourage use of calendars and changing<br />

schedules.<br />

� Suggest a “road trip” to their local drug<br />

store for personal hygiene supplies.<br />

Lisa Mitchell, LCSW-R<br />

Key Concepts: Abuse Prevention<br />

� Replace “stranger danger” with being<br />

wary of “strange behavior”.<br />

� Teach the various forms of sexual<br />

abuse.<br />

� There are people in the world (even<br />

familiar people) who do hurtful or<br />

inappropriate things.<br />

� Basics: Differences between good, bad<br />

and mixed-up/sexual/secret touches.<br />

� Rules for sexual touches.<br />

� Most Important Possession: Body<br />

Ownership.<br />

Lisa Mitchell, LCSW-R<br />

Key Concepts: PUBERTY<br />

*Crucial*:<br />

Educate About Puberty<br />

BEFORE<br />

IT<br />

STARTS!!!!!!!!!!!!!!!<br />

Lisa Mitchell, LCSW-R<br />

Key Concepts For Boys: Body Changes,<br />

Erections, & Wet Dreams<br />

� Educate on typical body changes for<br />

boys (e.g. height and muscle<br />

development, hair, acne, body odor,<br />

voice changes).<br />

� Teach boys that as they enter puberty,<br />

their genitals will start to change and<br />

behave differently. Emphasize the<br />

normalcy of this!!<br />

� Prepare boys for spontaneous erections<br />

and wet dreams.<br />

� While emphasizing the positive aspects<br />

of these changes (“How cool, you are<br />

becoming a man!”), don’t forget to offer<br />

“Erection Management Strategies”<br />

when appropriate.<br />

� Suggest a “road trip” to their local drug<br />

store for personal hygiene supplies.<br />

Lisa Mitchell, LCSW-R<br />

Key Concepts: Abuse Prevention<br />

� Age appropriate ways of<br />

showing affection to others.*<br />

� “No, Go, Tell”**<br />

� Teach how to be assertive,<br />

and to say “No” to authority<br />

figures.*<br />

� Role-play possible scenarios<br />

during which they can say<br />

“No!”.*<br />

� Encourage them to “walk<br />

with pride”.*<br />

* Schwier, K.M. & Hingsburger, D. (2000)<br />

**Krents, E.J. & Atkins, D.S. (1991)<br />

Lisa Mitchell, LCSW-R<br />

3


Key Concepts: Social Skills<br />

� Emphasize good grooming and hygiene*.<br />

� Provide as many opportunities to socialize<br />

as possible*.<br />

� Help to develop hobbies and interests*.<br />

� Teach basic social skills: eye contact,<br />

listening, greeting others, and appropriate<br />

topics of conversation.<br />

� Teach more advanced social skills:<br />

perspective taking, inside/outside<br />

thoughts, dealing with rejection, conflict<br />

resolution, and reading body language.<br />

� Be patient! Social skill development can<br />

take years of observation, discussion,<br />

practice, and constructive feedback.<br />

*Newport, J. & Newport, M. (2002)<br />

Lisa Mitchell, LCSW-R<br />

Relationship Staircase: Intimacy<br />

*Pictures reproduced from Young Adult Institue (YAI) <strong>Sexuality</strong> Series<br />

** Pictures reproduced from Circles (Champagne & Hirsch)<br />

TIME ------><br />

Relationship Checklist<br />

1. Do they smile at me? 15. Do I know their favorite food?<br />

2. Do they know my name? 16. What’s their favorite ice cream flavor?<br />

3. Do they say hello when they see me? 17. Do I know their favorite band/song?<br />

4. Do they talk to me for a few minutes at a time? 18. Do they have a favorite movie star?<br />

5. Do they ask me questions about myself? 19. Do they have a pet? What’s it’s name?<br />

6. Do they compliment me/Use nice words? 20. What do they like to do for fun?<br />

7. Do they listen to me when I talk? 21. Have they given me their phone number<br />

8. Do they ask me how I’m feeling? or e-mail address?<br />

9. Do they help me when I’m upset? 22. Do they call me/talk to me on the phone/send me<br />

10. Do they stand up for me? text messages, or e-mail me?<br />

11. Are they respectful (e.g. no name calling/ put-downs)? 23. Do they invite me to do things/go places with them?<br />

12. Do I know when their birthday is? 24. Have I been invited to their house?<br />

13. Do I know how many brothers and sisters they have? 25. Have they asked me out on a date?<br />

14. Do I know their favorite color? 26. Have they asked me to be their boy/girl friend?<br />

Key Concepts: Relationships<br />

� Self-Esteem: How can you have a good<br />

relationship with others, when you don’t have<br />

one with yourself?<br />

� Types of relationships and appropriate<br />

behaviors for each category<br />

� 3 Rules of Healthy Relationships*<br />

� Reciprocity: 2-way street<br />

� Friendships: Can be practice for romantic<br />

relationships. How can you be a good<br />

boyfriend/girlfriend if you don’t know how to be<br />

a good friend?<br />

� Staircase Analogy: Gradual progression of<br />

intimacy<br />

� Relationship Checklist: How close are you<br />

really?<br />

* Schwier, K.M. & Hingsburger, D. (2000)<br />

Lisa Mitchell, LCSW-R<br />

Relationship Checklist &<br />

“The Road to Relationships”<br />

1. Do they smile at me?<br />

2. Do they know my name?<br />

3. Do they say hello when they see me?<br />

4. Do they talk to me for a few minutes at a time?<br />

5. Do I know when their birthday is?<br />

6. Do I know how many brothers and sisters they<br />

have?<br />

7. Do I know their favorite food?<br />

8. Do I know their favorite band/song?<br />

9. Have they given me their phone number or email<br />

address?<br />

10. Do they call me/talk to me on the phone/send<br />

me text messages, or e-mail me?<br />

11. Do they invite me to do things/go places with<br />

them?<br />

12. Have I been invited to their house?<br />

1 Check = 1 Brick (1 Step for Person,<br />

1 Space for Car, etc.)<br />

Lisa Mitchell, LCSW-R<br />

Best Friends<br />

Hi & Goodbye Friends<br />

Strangers<br />

Good Friends<br />

The Search: Finding Companionship<br />

� The Internet: Benefits & Pitfalls<br />

� Vulnerability & Rejection<br />

� Difficulties with: Initiation, Follow-up, Attention & Intimacy<br />

� Small Steps to Intimacy: “Associate” – Friend – Romantic<br />

Partner<br />

� F.Y.I.: The legal age of consent in Pennsylvania is 16 years!<br />

(with less than 4 years age gap between the 16 year old and<br />

their partner).<br />

� Autism does not have to stop individuals from forming loving<br />

relationships. They just need to approach relationships in a<br />

different way.<br />

Lisa Mitchell, LCSW-R Lisa Mitchell, LCSW-R<br />

4


Other Concepts to Teach: Dating<br />

� Discuss all the details we might take<br />

for granted.<br />

� How to discern other’s motivations for<br />

involvement.<br />

� Sexual decision making, & the right to<br />

refuse or say “no” to sexual activities.<br />

� Re-introduce the concept of “the<br />

bases”.<br />

� Use role-plays and practice dates to<br />

teach skills.<br />

� Advance preparation<br />

� Review personal safety skills.<br />

Lisa Mitchell, LCSW-R<br />

Other Concepts To Teach: Intercourse/<br />

Reproduction<br />

� Not always necessary or appropriate to teach.<br />

� Initially, give a very basic explanation of<br />

intercourse & add information over time.<br />

� Loving sex is something that is done in private,<br />

between two consenting adults.<br />

� Emphasize the importance of delaying sexual<br />

intercourse until they are mature enough and<br />

emotionally and financially able to deal with the<br />

many responsibilities/consequences.<br />

� Ask individuals to share their own or their<br />

families’ values.<br />

� Got Pictures?: Male sperm + Female egg = Baby<br />

Lisa Mitchell, LCSW-R<br />

Lisa Mitchell, LCSW-R<br />

How?<br />

Other Concepts To Teach: Masturbation<br />

� Terminology: “private touching”<br />

� Try to be as neutral as possible,<br />

emphasizing that masturbation can be<br />

very normal and natural (it is also<br />

normal and natural to choose not to<br />

masturbate!!).<br />

� Stress privacy or appropriate times<br />

and locations to masturbate.<br />

� May benefit from a “private time”<br />

schedule.<br />

� In many cases, teach masturbation is<br />

not an option.<br />

� May require a targeted behavioral<br />

intervention, or simply keeping hands<br />

busy/redirection to activities involving<br />

motion.<br />

Lisa Mitchell, LCSW-R<br />

Other Key Concepts: Sexual Orientation<br />

& Lifestyle Choices<br />

� Adult Sexual Orientation: Is something<br />

that a person is or has, rather than<br />

something that they have chosen.<br />

� Give a very simple definition.<br />

� Emphasize how small this component is<br />

when considering “the bigger picture” of who<br />

the person is and what they are about.<br />

� Other Lifestyle Choices: Some people<br />

date, some don’t. Some have sexual<br />

relationships, some chose abstinence.<br />

Some people never get married or have<br />

children. All lifestyle choices have equal<br />

value and deserve equal respect.<br />

Lisa Mitchell, LCSW-R<br />

Use “Teachable Moments”<br />

� “Teachable Moments” are when your<br />

person asks a question or mentions<br />

something they have heard about<br />

sexuality. These moments can also<br />

occur when a TV show, movie, song,<br />

book, newspaper, magazine, or<br />

anything else in the environment<br />

presents a sexual scenario that<br />

interests or confuses them. Use<br />

these moments to share information<br />

or teach values and beliefs.<br />

Lisa Mitchell, LCSW-R<br />

5


Tips for Communicating<br />

� Find out what your person knows or does<br />

not know, and use this as a starting point.<br />

� Be mindful of location*.<br />

� Use a calm matter of fact tone*.<br />

� Use “private voice” when discussing<br />

sexuality issues*.<br />

� Repeat key information often.<br />

� Communicate with others about what you<br />

are working on, and assist your person in<br />

identifying other appropriate individuals with<br />

whom they can discuss sexuality issues.<br />

* Schwier, K. & Hingsburger, D. (2000)<br />

Lisa Mitchell, LCSW-R<br />

The 6 Rules of Presentation*:<br />

� Simple<br />

� Visual<br />

� Individualized<br />

� Repetitive<br />

� Fun<br />

� Concrete<br />

*Maurer, L. (1996)<br />

Lisa Mitchell, LCSW-R<br />

Nifty Teaching Techniques<br />

� Any & Everything: Picture Sorts &<br />

Collages<br />

� Self-Esteem, Public & Private,<br />

Hygiene, Abuse Prevention: Body<br />

Charts<br />

� Social Presentation: Video Self-<br />

Monitoring<br />

� Rating Scales of Interest/<br />

Feelings, Safe & Unsafe Sexual<br />

Behavior: Thermometers<br />

� Any & Everything: Graphic<br />

Organizers<br />

Lisa Mitchell, LCSW-R<br />

� Be proactive.<br />

Advice for Teaching<br />

� Social topics are just as important as the<br />

sexual, (e.g. social skills, personal<br />

boundaries, relationships) with emphasis on<br />

social reciprocity.<br />

� Use a variety of teaching mediums and<br />

approaches*.<br />

� Break down more involved tasks into steps*.<br />

� From the start of training, teach the correct<br />

steps to a routine.<br />

� Focus on the more practical application of<br />

information (logical vs. biological)*.<br />

*Maurer, L. (1996)<br />

Lisa Mitchell, LCSW-R<br />

<strong>Education</strong>al Activities<br />

& Interventions<br />

Lisa Mitchell, LCSW-R<br />

Graphic Organizers: Self-Esteem<br />

& Social Issues<br />

Like<br />

some of<br />

the same<br />

things<br />

Spend<br />

time<br />

together<br />

Friends<br />

Do<br />

Invite each<br />

other<br />

places<br />

Lisa Mitchell, LCSW-R<br />

Treat each<br />

other with<br />

kindness<br />

Compromise<br />

6


More Nifty Teaching Techniques<br />

� Social Skills & Abuse<br />

Prevention: Role-Plays<br />

� Any & Everything:<br />

Homemade Books, Social<br />

Stories* & Comic Strip<br />

Conversations*<br />

� Social Skills & Abuse<br />

Prevention: Circles Charts**<br />

� Conversation Skills:<br />

Communication Balls***<br />

� Any & Everything:<br />

Anatomically Correct Dolls<br />

* Gray, C. (2000) & (1994)<br />

**Champagne & Walker-Hirsch (1986-1993)<br />

***Stangle, J. & Reis, E. (1991)<br />

Lisa Mitchell, LCSW-R<br />

Addressing<br />

Problematic Sexual<br />

Behaviors<br />

Lisa Mitchell, LCSW-R<br />

Problem Behavior: Masturbation<br />

� Distinguish between fiddling and<br />

discomfort.<br />

� Attitude: Be as neutral as possible!<br />

Emphasize the right time and place.<br />

� Boredom?<br />

� Use of private time schedules,<br />

lubricant, or visual cues.<br />

� Options for teaching of “proper<br />

technique”: Illustrations, social<br />

stories, anatomically correct dolls*,<br />

anatomic models, aids, or<br />

instructional video** (especially for<br />

those who become self-injurious or<br />

appear frustrated).<br />

*Teach-A-Bodies<br />

**Hingsburger, D. (1995) & Hingsburger<br />

Lisa Mitchell, LCSW-R<br />

Even More Nifty Teaching Techniques<br />

� Social Skills/Connecting With<br />

Others: Ball of Yarn<br />

� Puberty & Hormones: Milk,<br />

Dawn & Food Coloring<br />

� Self-Esteem: Pride Poster<br />

� Social Skills: Compliment &<br />

Conversation Circles<br />

� Components of <strong>Sexuality</strong>: Ice<br />

Cream Sundaes<br />

Lisa Mitchell, LCSW-R<br />

Determining The Cause of<br />

Sexual Misbehavior<br />

� Behavioral<br />

� Partner Selection<br />

� Inappropriate Courtship<br />

� Sexual Knowledge<br />

� Medical<br />

� Learning History<br />

� Sensory<br />

Lisa Mitchell, LCSW-R<br />

Hierarchy: Masturbation Training<br />

� When appropriate, work with families and/or residence to establish a visual “private<br />

time schedule”.<br />

� When appropriate, supply individual with lubricant, explaining it is for use during<br />

“private time”.<br />

� Meet with individual. Present illustrations of same sex persons masturbating, in<br />

conjunction with verbal explanation regarding technique.<br />

� Meet with individual. Use illustrations and anatomical model in conjunction with<br />

verbal explanation of technique.<br />

� Meet with individual. Use anatomically correct dolls to demonstrate appropriate<br />

masturbatory technique, in conjunction with verbal explanation.<br />

� When appropriate, supply masturbatory aids such as body pillows. magazines,<br />

collages of stimulating pictures, vibrating pillows, masturbation sleeves,<br />

masturbation pumps, or vibrators. Explain safe usage of such aids.<br />

� Meet with individual. Arrange for multiple viewings (when necessary) of instructional<br />

masturbation movies “Handmade Love”* for males, or “Fingertips”* for females.<br />

Viewings should occur in the individual’s bedroom or the private location where<br />

masturbation will be allowed to occur. Trainer may need to supply a verbal<br />

explanation while simultaneously viewing the tape to reinforce principles.<br />

� For individuals with more significant challenges, consider use of ABA type<br />

approach (preferably done with relatively unfamiliar trainer) to teach more<br />

successful masturbatory technique. Shape up steps one at a time (e.g. “Pull pants<br />

and underwear down”, “Lay on belly”, “Put pillow between legs”, “Rock from side to<br />

side”. Or “Pull pants down”, “Sit on bed”. “Put fingers around penis”, “Rub up and<br />

down, up and down”.)<br />

Lisa Mitchell, LCSW-R<br />

7


Problem Behavior: Fascinations,<br />

Obsessions, & Rituals (Oh My…..)<br />

� Staring: 3 x 3 Rule (Three - 3 Second Looks)<br />

� Relationships: <strong>Education</strong> re: maintaining a balance between their<br />

lives/former interests vs. the object of their desire is helpful. Stalking<br />

and/or obsessing on people can be an issue (even more than your<br />

average person in love or in a new relationship).<br />

� When They Become Maladaptive: Think: Socially Appropriate<br />

Alternative?<br />

� Difficulty With Stopping: May need to initially go cold turkey, and<br />

then gradually add time allowed to “feed” the interest.<br />

� Childhood Interests Sometimes Become Sexualized: It’s not a far<br />

jump from Pokemon – Anime (e.g. Naruto) – Hentai (sexually explicit<br />

or pornographic comics or animation).<br />

� “Pedophillic” Intent Or Developmental Issues Gone Awry?: Many<br />

individuals with ASD’s are more successful with younger peers (who<br />

are more accommodating/accepting of their differences). Similar<br />

social/emotional functioning and interests – lack of social awareness<br />

or understanding - sexual feelings without an appropriate outlet [can]<br />

= trouble.<br />

Lisa Mitchell, LCSW-R<br />

Thank You!!!!!<br />

Lisa Mitchell, LCSW-R<br />

Licensed Clinical Social Worker<br />

(631) 495-3810<br />

lemitch@optonline.net<br />

Lisa Mitchell, LCSW-R<br />

Problem Behavior: Touching Others<br />

� Determine the cause: lack of education,<br />

curiosity, deficits in communication or social<br />

skills, attention seeking or social isolation?<br />

� Teach about personal relationships and<br />

boundaries.<br />

� Teach “touching rules” and possible<br />

consequences of inappropriate touching.<br />

� Provide advance preparation or coaching when<br />

entering certain social situations.<br />

� Work with the team to get others to support<br />

teaching of appropriate touching.<br />

� If it becomes a chronic occurrence, or involves<br />

inappropriate targets (e.g. members of the<br />

family, young children, or individuals who are<br />

lower functioning) consider seeking specialized<br />

professional help.<br />

Lisa Mitchell, LCSW-R<br />

8


Curriculums<br />

Resource List<br />

Lisa Mitchell, LCSW-R<br />

2009<br />

A Girl’s/Boy’s Guide to Puberty And Personal Safety. (Marsh Media, 2006). A nice<br />

simple curriculum for kids with special needs that you can order in either a boys’<br />

or girls’ version ($149.95 per curriculum-available at www.marshmedia.com),<br />

that comes with a teaching guide with reproducible handouts, a DVD to show<br />

kids, and color booklets to give each participant. It covers the basics of body<br />

changes and reproduction, with a good amount of attention given to touches and<br />

public and private.<br />

Circles: A Multi-media Package to Aid in the Development of Appropriate<br />

Social/Sexual Behavior in the Developmentally Disabled Individual. (Marilyn<br />

Champagne & Leslie Walker-Hirsch. (James Stanfield Publishing, (800)421-6534,<br />

$599.00). Includes slides, charts, sound cassettes and photos.<br />

Developing Personal Safety Skills in Children with Disabilities. Freda Briggs. A<br />

nice abuse prevention curriculum with lots of pictures and activities. Currently<br />

out of print, but available for $52.95 through Jessica Kinsley Publishers at<br />

www.jkp.com.<br />

<strong>Education</strong> For Adulthood. (Staten Island Mental Health Society, Inc.) A<br />

comprehensive curriculum addressing sexuality and transition to adulthood<br />

issues for individuals with developmental disabilities. Not many illustrations, but<br />

has some nice lesson plans.<br />

F.L.A.S.H. Family Life & Sexual Health: Special <strong>Education</strong> ; Secondary: A<br />

Curriculum for Grades 7-12. Jane Stangle & Elizabeth Reis. (Seattle-King County<br />

Department of Public Health, HEM Sales, 400 Yesler Way, 3 rd Floor Seattle, WA<br />

98104, (206) 296-4679, www.michelle.pennylegion@metrokc.gov, 1991) An<br />

excellent, reasonably priced (about $40.00) comprehensive curriculum with<br />

wonderful activities and reproducible transparencies. www.kingcounty.gov/health<br />

services/ health/personal/famplan/educators/FLASH.aspx<br />

Human <strong>Sexuality</strong> Portfolio. Victoria Livingston & Mary E. Knapp. (Planned<br />

Parenthood of Western Washington, 206-328-7715) Not many pictures are<br />

provided, but they are simply laid out on large cards.<br />

Life Facts: <strong>Sexuality</strong>. Nancy Cowardin. James Stansfield Publishing Co. An<br />

excellent (but expensive) curriculum that comes with a training manual, large<br />

laminated cards with lesson plans on the back of each card and slides.<br />

1


No-Go-Tell: Protection Curriculum For Young Children With Special Needs.<br />

Elisabeth J. Krents & Dale Special Atkins. (James Stanfield Co., 1991<br />

approximately $199.00). Large laminated pictures depicting abusive situations<br />

and how to report and avoid sexual abuse.<br />

Personal Space: A Violence Prevention Program for Women. Developed by The<br />

Arc of Maryland: phone (410) 974-6021, fax (410)571-9320, e-mail<br />

info@thearcmd.org. A great curriculum to use when doing groups for women<br />

with developmental disabilities that teaches about personal boundaries,<br />

sexuality, relationships, sexual harassment, sexual assault, and domestic<br />

violence. Available free-of-charge. You just need to fax or e-mail your name and<br />

address.<br />

STARS: Skills Training for Assertiveness, Relationship-Building, & Sexual<br />

Awareness. Susan Heighway, Susan Kidd Webster, & Marsha Shaw. (Waisman<br />

Center Program; 3 rd Edition, July 1992) Available for purchase from the author<br />

(608) 263-5996. A nice curriculum covering relationships, social interactions,<br />

sexual awareness, and assertiveness. Comes with a great, simple, and visual<br />

assessment tool called the S.A.K. (Sexual Attitudes and Knowledge Assessment).<br />

Talking Sex! Practical Approaches and Strategies for Working With People Who<br />

Have Developmental Disabilities When the Topic is Sex. Lisa T. Maurer. (Planned<br />

Parenthood of Tompkins County, 314 West State Street, Ithaca, New York,<br />

14850, (607) 273-1526, ext. 134). Great ideas for sexuality education and advice<br />

for the professional training disabled individuals, parents or other professionals.<br />

Offers reproducible overheads and handouts.<br />

Books for Parents<br />

A note: Most books are available on www.amazon.com unless otherwise<br />

indicated.<br />

I Openers: Parents Ask Questions About <strong>Sexuality</strong> and Children With<br />

Developmental Disabilities. Dave Hingsburger. (Family Support Institute Press,<br />

Vancouver, 1993) Excellent answers to commonly faced problems.<br />

www.parentbooks.ca/<strong>Sexuality</strong>_&_Disability.html<br />

<strong>Sexuality</strong>: Preparing Your Child With Special Needs-How to Develop a Plan for<br />

Sex <strong>Education</strong> and Sexual Abuse Prevention. (MOCSA- Metropolitan Organization<br />

to Counter Sexual Assault Developmental Disabilities, Resource Center on<br />

<strong>Sexuality</strong>, 3217 Broadway, Suite 500, Kansas City, MO 64111-2414, (816) 931-<br />

4527, ext 232) A nice booklet that is a good start to helping to plan for the<br />

services and sexuality education for parents; offered free of charge.<br />

2


<strong>Sexuality</strong>: Your Sons and Daughters with Intellectual Disabilities. Karin Melberg<br />

Schwier & Dave Hingsburger. (Paul H. Brookes Publishing Co., Baltimore, 2000)<br />

An excellent book for parents of children with any developmental disability.<br />

Books for Children & Adolescents<br />

Autism-Asperger’s & <strong>Sexuality</strong>: Puberty and Beyond. Jerry and Mary Newport.<br />

(Future Horizons, 2002) Written for adolescents and young adults with autism<br />

spectrum disorders, by a husband and wife (both on the spectrum themselves),<br />

who give advice on how to function in the social environment and get through<br />

this difficult period. Pretty high-level reading, but offers some interesting insights<br />

for both young people, as well as for parents.<br />

Bellybuttons Are Navels. Mark Schoen. (Prometheus Books, 1990) A nice simply,<br />

illustrated book for young children that teaches the names for body parts and<br />

the differences between boys and girls.<br />

Caution: Do Not Open Until Puberty!: An introduction to <strong>Sexuality</strong> for Young<br />

Adults With Disabilities. Rick Enright. (Devinjer House, Sparta, Ontario, 1995,<br />

available for purchase through Thames Valley Children’s Centre: (519) 685-8680<br />

or (519) 685-8703). A fun, nicely illustrated book written for young adults with<br />

physical disabilities. The reading level may be too advanced for some.<br />

www.tvcc.on.ca<br />

Changes In You: For Girls. Peggy C. Siegel. (Family Life <strong>Education</strong> Associates,<br />

1991) A great illustrated book for girls about body changes and puberty. Reading<br />

level may be too high for some individuals.<br />

Changes In You: For Boys. Peggy C. Siegel. (Family Life <strong>Education</strong> Associates,<br />

1991) A great illustrated book for boys about body changes and puberty.<br />

Reading level may be too high for some individuals.<br />

Changes In You & Me: A Book About Puberty Mostly For Girls. Paulette Bourgeois<br />

& Martin Wolfish. (Somerville House Books Ltd., Toronto, Ontario)<br />

Comprehensive, with lots of great pictures. May be too wordy for some<br />

individuals.<br />

Changes In You & Me: A Book About Puberty Mostly For Boys. Paulette<br />

Bourgeois & Martin Wolfish. (Somerville House Books Ltd., Toronto, Ontario)<br />

Comprehensive, with lots of great pictures. May have too many words for some<br />

individuals.<br />

3


Did The Sun Shine Before You Were Born? Sol & Judith Gordon. (Prometheus<br />

Books, Buffalo NY) A nice simple book about different types of families,<br />

intercourse, reproduction, pregnancy, childbirth and differences between boys<br />

and girls.<br />

Freaks, Geeks & Asperger Syndrome. Luke Jackson. (Jessica Kingsley Publishers,<br />

2002). Written to be “a user guide to adolescence” by a 13 year old English boy<br />

who has been diagnosed with Asperger’s Syndrome, the book offers often<br />

fascinating and almost always entertaining insight/advice into a myriad of<br />

subjects, including fixations, school, friendships, socialization, bullying and<br />

dating. A nice book for young people who have been diagnosed with Asperger’s,<br />

as well as their parents.<br />

Girls Are Girls And Boys Are Boys: So What’s The Difference? Sol Gordon. (Ed-U<br />

Press, New York) An excellent simple book about gender differences, gender<br />

identity, intercourse, reproduction, pregnancy, puberty, masturbation and<br />

relationships.<br />

A Good Friend: How to Make One, How to be One. Ron Herron & Val J. Peter.<br />

(Boys Town Press, Nebraska, 1998, 1-800-282-6657). A nice book for teens<br />

about friendships. A higher reading level (6-7 th grade) is required.<br />

How Babies Are Made. Andrew Andry & Steven Schepp. (Time Life Books, New<br />

York). A relatively simple illustrated book that offer explanations of reproduction<br />

and sexual intercourse for both animals and people.<br />

How Sex Works: A clear, comprehensive guide for teenagers to emotional,<br />

physical and sexual maturity. Elizabeth Fenwick & Richard Walker. (Dorling<br />

Kindersley Limited, 1994). A nicely illustrated book for teenagers about puberty,<br />

relationships and emotions, intercourse, contraception, pregnancy and sexual<br />

health. May have too much information on internal organs/reproduction, and the<br />

reading level may be too high for some, but overall a nice book for teens.<br />

It’s My Body. Lory Freeman. (Parenting Press, 1986) A nice simple book for<br />

younger children that teaches about different types of touches, and how to<br />

respond to unwanted touches.<br />

My Body is Mine, My Feelings Are Mine. Susan Hoke, LCSW, ACSW.<br />

(Childswork/Childsplay, 1995, LLC, Plainview, NY.) An excellent simply written,<br />

illustrated abuse prevention book teaching body ownership and strategies for<br />

children to use.<br />

4


My Body Is Private. Linda Walvoord Girard. ( Albert Whitman & Co, Niles Illinois).<br />

A nice simple, illustrated book that teaches about privacy, body ownership, the<br />

right to refuse touches and abuse prevention.<br />

Period: A Girl’s Guide to Menstruation. Jo Ann Gardner-Loulan, Bonnie Lopez,<br />

Marcia Quackenbush. Slightly dated, but comprehensive. Lots of pictures. May<br />

have too many words for some individuals.<br />

Sometimes I’m Afraid. Syliva Root Tester. (Children’s Press, 1979). A nice simply<br />

illustrated book about the feeling of fear.<br />

Sometimes I Get Angry. Jane Werner Watson, Robert E. Switzer & J. Cotter<br />

Hirschberg. (Golden Press, New York, 1977) A simple book for young children<br />

about feeling angry when limits are set.<br />

A Very Touching Book. Jan Hindman. (AlexAndria Associates, Baker City, OR<br />

(541) 523-4574: also available through Amazon.com). A great book with funny<br />

illustrations that educates on terminology for body parts, good, bad and secret<br />

touches.<br />

“What’s Happening To Me?”: A Guide to Puberty. Peter Mayle. A funny book with<br />

many illustrations. Fairly simple language, and a moderate amount of words.<br />

What Is a Girl? What Is a Boy?. Stephanie Waxman & Thomas Y. Crowell. (1976,<br />

1989) A great simple book for children describing the definitions and differences<br />

of male and female using real life photographs.<br />

What Makes Me Feel This Way?: Growing Up with Human Emotions. Eda Le<br />

Shan. (Macmillan Publishing, 1972). A nice book about feelings education, but<br />

not many pictures. May have too many words for some individuals.<br />

“Where Did I Come From?”: The Facts of Life Without Any Nonsense and With<br />

Illustrations. Peter Mayle. (Lyle Stuart Inc., Secaucus, NJ) A funny book with<br />

many illustrations about differences in male and female anatomy, pregnancy,<br />

intercourse and childbirth. Fairly simple language, and a moderate amount of<br />

words.<br />

Where Do Babies Come From? Margaret Sheffield. A fairly simple, nicely<br />

illustrated book that talks about difference between males and females, how<br />

bodies change as children grow, reproduction, pregnancy and childbirth<br />

Who Made Me?. Malcolm & Meryl Doney. A nice simple book about differences<br />

between males and females, intercourse and pregnancy, with a bit of a religious<br />

perspective.<br />

5


Your Body Belongs To You. Cornelia Spelman. (Albert Whitman & Co., Morton<br />

Grove, Illinois, 1997). A nice, illustrated simply written book that speaks about<br />

touches, body ownership and abuse prevention.<br />

Books for Developmentally Disabled Adults and/or Their Partners<br />

An Asperger Marriage. Gisela & Christopher Slater-Walker. (Jessica Kingsley<br />

Publishers, 2002). Written by a married couple (the husband has been diagnosed<br />

with Asperger’s), this book at times dwells a bit too much in the mundane details<br />

of the couple’s day-to-day life, but offers an interesting snapshot of their<br />

relationship, conflicts, and resolutions from both the husband and wife’s<br />

perspectives.<br />

Asperger Syndrome and Long-Term Relationships. Ashley Stanford. Jessica<br />

Kingsley Publishers, 2003). An excellent book on how to successfully navigate<br />

intimate relationships when involved with a person with Asperger’s. Written by a<br />

researcher and woman married to a man with Asperger’s, the author offers many<br />

anecdotal stories from her own life and the lives of others in relationships with<br />

individuals with the syndrome, and offers great suggestions on how to make the<br />

relationships work.<br />

An Easy Guide To Loving Carefully. Winifred Kempton, Lyn McKee & Lynne<br />

Stiggall. (Lynne Stiggall-Muccigrosso Associates, 1997). A nicely illustrated book<br />

for disabled adults or older adolescents, covering anatomy, intercourse, birth<br />

control, pregnancy, and reproductive health issues.<br />

Dating for Dummies. Dr. Joy Browne. (IDG Books Worldwide, 1997). Try to be<br />

forgiving of the title. This book may be especially helpful for adults who have<br />

High Functioning Autism or Asperger’s, who are looking to date/make<br />

connections with others. It covers everything from increasing self-confidence,<br />

improving social skills and physical appearance, interpreting lines, asking others<br />

out on date, breaking up, etc.<br />

Life and Love: Positive Strategies for Autistic Adults. Zosia Zaks. (Autism<br />

Asperger Publishing Co., 2006). Geared towards high-functioning adults on the<br />

spectrum, this book offers many nice “how to” suggestions/concrete strategies<br />

re: how to navigate day-to-day challenges (e.g. traveling or shopping), as well as<br />

dating, spectrum-non-spectrum relationships, friendships, gender issues and<br />

personal safety.<br />

The Other Half of Asperger Syndrome. Maxine C. Aston. (The National Autistic<br />

Society, 2001). A great book written by a woman who is a couples’ counselor<br />

and also married to a man with Asperger’s Syndrome, it is meant to be “a guide<br />

6


to living in an intimate relationship with a partner who has Asperger Syndrome”.<br />

Although the author does not really write much about her own personal<br />

experiences, she draws on research she has done, her experiences as a<br />

counselor, and offers some nice concrete suggestions for “neuro-typical”<br />

individuals who are in relationships who persons diagnosed with the disorder.<br />

Out of Harm’s Way: a Safety Kit for People With Disabilities Who Feel Unsafe and<br />

Want To Do Something About It. (The Roeher Institute, Ontario, 1-800-856-<br />

2207). More of a guidebook with fill-in exercises for young adults living in the<br />

community.<br />

Pretending to be Normal: Living with Asperger’s Syndrome. Liane Holliday Willey.<br />

(Jessica Kingsley Publishers, 1999). An excellent book written by a woman with<br />

Asperger’s Syndrome. She speaks about her experiences in childhood,<br />

adolescence, college, in her marriage and as a parent of 3 children, one of whom<br />

also has Asperger’s. At the end, she offers great suggestions for support people,<br />

and for person’s with Asperger’s regarding how to deal with college, work,<br />

organizing home life, and coping with sensory perception difficulties.<br />

Sex, <strong>Sexuality</strong> And the Autism Spectrum. Wendy Lawson. (Jessica Kingsley<br />

Publishers, 2005). A interesting book with great insights, practically for high<br />

functioning persons on the spectrum on sexuality and relationships. Written by a<br />

woman who is on the spectrum who was married for 20 years, had four children,<br />

and is presently in a same sex relationship, it contains appendixes with cool do-<br />

together couple activities such as relationship word searches and crossword<br />

puzzles, as well as sexual orientation and sensory profile discussion sheets.<br />

Resources for Parents & Professionals<br />

Asperger’s Syndrome And <strong>Sexuality</strong>: From Adolescence Through Adulthood.<br />

Isabelle Henault. (Jessica Kingsley Publishers, 2006). A book which provides<br />

socio-sexual insights and a great review of the existing research on AS and<br />

sexuality. May be particularly helpful for professionals, as it provides interesting<br />

case studies and outlines with reproducible handouts for a series of workshops<br />

on sexuality which the author developed for persons with AS.<br />

Autism & <strong>Sexuality</strong>: A Guide For Instruction. Susan Gray, Lisa Ruble and Nancy<br />

Dalrymple. (Autism Society of Indiana, 1996). An excellent 25-page booklet on<br />

Autism and sexuality, and how to address commonly faced problems. Available<br />

through: Parentbooks, 201 Harbord Street, Toronto, Ontario, M5S 1H6, (800)<br />

209-9182 or (416) 537-8334. www.parentbookstore.com.<br />

Boardmaker. (Mayer-Johnson, Inc. 2003) Phone (800) 588-4548 or www.mayerjohnson.com.<br />

Basic Intro. Model for Windows and Macs available for $329.00.<br />

7


Great computer software package to use when making visual aides, or social<br />

stories. Only criticism is you always need the CD-Rom to access the program.<br />

The Boggs Center. The Elizabeth Boggs Center on Developmental Disabilities,<br />

UMDNJ-Robert Wood Johnson Medical School. 335 George Street, P.O. Box 2688,<br />

New Brunswick, NJ 08903-2688, phone (732) 235-9310. Has a loaning library for<br />

professionals. You just have to pay the cost of shipping materials. The library’s<br />

list of materials in not available on-line. You must call and ask to be sent a list.<br />

Comic Strip Conversations. Carol Gray. Available through Amazon.com<br />

James Stanfield Company, PO Box 41058, Santa Barbara, CA 93140, (800) 421-<br />

6534., www.stanfield.com/sexed-1.html. Top quality sexuality materials for<br />

individuals with developmental disabilities, that are also very expensive.<br />

Just Say Know! Understanding & Reducing the Risk of Sexual Victimization of<br />

People With Developmental Disabilities. Dave Hingsburger. (Diverse City Press,<br />

1995). A book for parents and professionals that teaches about the dangers of<br />

overprotection and offers other abuse prevention strategies.<br />

I Contact: <strong>Sexuality</strong> and People With Developmental Disabilities. Dave<br />

Hingsburger. (VIDA Publishing, Mountville Pennsylvania, 1990). Geared towards<br />

providing a more humanistic perspective of sexuality, primarily for professionals<br />

working with developmentally disabled individuals.<br />

Love, Sex, & Birth Control: A Guide For Parents. Winifred Kempton, Sol Gordon &<br />

Medora Bass. A nice booklet that discusses issues parents commonly face<br />

regarding sexuality as their developmentally disabled child grows into an adult.<br />

The New Social Story Book: Illustrated Edition. Carol Gray, September 2000<br />

(Available through Amazon.com). Also check out the following web cite:<br />

www.thegraycenter.org/Social_Stories.htm<br />

Sex <strong>Education</strong>: Issues For the Person With Autism. Nancy Dalrymple, Susan Gray<br />

& Lisa Ruble. Part of “Functional Programming For People With Autism: A<br />

Series:….” (Indiana University, Institute for the Study of Developmental<br />

Disabilities, Indiana Resource Center for Autism, 1991). Nice overview regarding<br />

appropriate objectives and teaching interventions to try when providing sexuality<br />

education for individuals with Autism.<br />

<strong>Sexuality</strong> and People with Intellectual Disability. Lydia Fegan, Anne Rauch,<br />

Wendy McCarthy. (Paul H. Brookes Publishing, 1993). A nice book for parents or<br />

professionals. It also has a wonderful chapter on Autism and sexuality. Out of<br />

print, but can be purchased used from Amazon.com.<br />

8


Socio-Sexual Knowledge and Attitude Test (SSKAT-R) Stimulus Picture Book. Joel<br />

R. Wish, Katherine F. McCombs & Barbara Edmonson. (Stoelting, Oakwood<br />

Centre: 620 Wheat Lane, Wood Dale Illinois, (630) 860-9700). An assessment<br />

tool used by professionals to test socio-sexual knowledge, and to determine<br />

whether a developmentally disabled individual is capable of informed consent<br />

regarding sexual activities.<br />

Taking Care of Myself: A Hygiene, Puberty, & Personal Curriculum for Young<br />

People With Autism. Mary Wrobel. (Future Horizons, 2003). Available for $24.95<br />

at www.futurehorizons-autism.com. A very good book with reproducible social<br />

stories and other interventions covering a variety of activities of daily living,<br />

puberty, body changes, and touching others. Some of the social stories are a<br />

little intolerant in their phrasing and attitude towards sexuality, but they can be<br />

adapted as appropriate.<br />

Videotapes<br />

Circles: Stop Abuse. Marklyn Champagne. James Stanfield Company<br />

www.stanfield.com<br />

Finger Tips: Teaching Women With Disabilities About Masturbation Through<br />

Understanding and Video. Dave Hingsburger & Sandra Haar. (Divers City Press,<br />

2000) An excellent (graphic) instructional video for female masturbation.<br />

www.diverse-city.org<br />

The GYN Exam Handbook: An Illustrated Guide to the Gynecological<br />

Examination. Maria Olivia Taylor. (James Stanfield Comp. 1991) Available for<br />

$299.99 at www.stanfield.com. Comes with diagrams, real-life photos and two<br />

video tapes, illustrating the process of the GYN exam for young women with<br />

developmental disabilities.<br />

Handmade Love: A Guide For Teaching about Male Masturbation. (Diverse City<br />

Press, 1995). An excellent (graphic) instructional video for male masturbation.<br />

www.diverse-city.org<br />

Janet’s Got Her Period. Judi Gray. An excellent (but expensive) video for young<br />

ladies with developmental disabilities that teaches menses and proper menstrual<br />

hygiene. (James Stanfield Company, 1991) www.stanfield.com<br />

Person to Person: A Video Program About the <strong>Sexuality</strong> <strong>Education</strong> of Persons<br />

With Developmental Disabilities. (Program Development Associates, 5620<br />

Business Ave Suite B, Cicero, NY 13039, 1800-543-2119). A decent video for<br />

9


parents and professionals that provides an introduction to sexuality and sexuality<br />

education for individuals with developmental disabilities. www.pdassoc.com<br />

Talking About Sex: A Guide for Families. Planned Parenthood: Federation of<br />

America, Inc., 810 7 th Ave. New York, NY, 10019. (212) 541-7800. An animated<br />

tape for both parents and children. It was not made for individuals with<br />

developmental disabilities, and might move too quickly for some children or<br />

adolescents.<br />

A note: all of the YAI tapes are excellent, but are intended to be used by the<br />

mental health professional who is teaching a sexuality group.<br />

YAI Relationship Series: Tape #1: Differences Between Strangers,<br />

Acquaintances, & Friends. Tape #2: Becoming Acquaintances or Friends. Tape:3<br />

Being a Friend. Perry Samowitz. (YAI, 460 West 34 th Street, New York, New<br />

York, (212) 563-7474)<br />

YAI Relationship Series: Tape #1: Starting a Special Relationship, Tape #2:<br />

Building a Relationship I Like, Tape #3: Having a Good Relationship. Perry<br />

Samowitz. (YAI, 460 West 34 th Street, New York, New York, (212) 563-7474)<br />

YAI <strong>Sexuality</strong> Series: Tape #1: Enjoying Your Sexual Life. Tape #2: Working Out<br />

Problems in Your Sexual Relationship, Tape #3: Sexual Acts That Are Against<br />

the Law. Perry Samowitz. (YAI, 460 West 34 th Street, New York, New York, (212)<br />

563-7474)<br />

Teen <strong>Sexuality</strong>. The Schlessinger Teen Health Series, Grades 7-12. A movie that<br />

was not made especially for adolescents with developmental disabilities, but uses<br />

understandable language to discuss relationships and how to deal with pressure<br />

to engage in sexual relationships.<br />

Web Cites & Other Resources<br />

A great web cite for pictures of any kind (e.g. real photos, drawings, icons, etc.):<br />

Google Image Search: www.google.com/imghp?hl=en&ie=UTF-8<br />

Long Island Gay and Lesbian Youth Inc.: 32 W. Main Street, Bay Shore, (631)<br />

665-2300. www.ligaly.com<br />

Parents and Friends of Lesbians and Gays (PFLAG) of Long Island. Plainview,<br />

(516) 938-8913 www.plflagli.org<br />

Talking Book Plus: Suffolk Cooperative Library System. 627 N. Sunrise Service<br />

Road, Bellport, NY 11713, (631) 286-1600-voice, (631) 286-4546-tty,<br />

10


www.litbl.org. A free library service for Suffolk County residents who have visual<br />

or physical disabilities that prevent them from being able to see, hold, or handle<br />

conventional print books. They provide books in Braille, with large print or on<br />

audiocassette, and have a variety of materials on human sexuality topics.<br />

Vibrating Pillows: www.sensory-processing-disorder.com/vibrating-pillows.html<br />

www.austin-safeplace.org: SafePlace, P.O. Box 19454, Austin TX, 78760, (512)<br />

356-1590. Has an extensive disability resource lending library (you can<br />

download a list from the internet) that is available to anyone, and free of charge.<br />

Patrons need only to play for shipping and handling charges.<br />

www.futurehorizons-autism.com: A cite devoted solely to the sale of publications<br />

and materials pertaining to autism spectrum disorders.<br />

www.groups.yahoo.com/group/AS-PEOPLE/ An adult list (over 18) for individuals<br />

with Asperger’s Syndrome or Autistic Spectrum Disorder that allow them to<br />

connect with one another. It is also open to partners, friends and family of those<br />

affected by the Autism Spectrum. They also talk about sexuality and intimacy<br />

issues as well.<br />

www.nichcy.org: An amazing web cite that is a conglomeration of information<br />

about sexuality and developmental disability. Many extensive bibliographies are<br />

posted on this cite as well.<br />

www.parentbookstore.com: A great resource for purchasing materials on<br />

parenting individuals with developmental disabilities.<br />

www.positive.org: A web site sponsored by the Coalition for Positive <strong>Sexuality</strong><br />

that may be helpful for adults with developmental disabilities who have an<br />

approximate 6-7 th grade reading level or higher. Click on the “just say yes” link,<br />

go to “contents” and hit the arrow key, and you will be given links to information<br />

on a variety of topics: condom usage, HIV/AIDS, birth control, pregnancy,<br />

respect for others, homosexuality, etc. Be advised that some explanations are<br />

written in slang language.<br />

www.scn.org/people/autistics/relationships.html. Offers a 13 page article<br />

“Autism, Dating and Socialization”, that appears to be written by an individual<br />

who is on the spectrum. Some interests perspectives, but be sure to take some<br />

of the advice with a grain of salt.<br />

www.sexualhealth.com: Enter “autism” in the search block. You will be provided<br />

with links to many advice pages written by Melissa Bee (“Hunnybee”), a clinician<br />

and educator who has been diagnosed with Autism, has 2 children with Autism<br />

11


Spectrum Disorders, and answers commonly encountered problems with<br />

excellent reality based suggestions.<br />

www.sextalk.org: A cite by Planed Parenthood of Tompkins County, Washington.<br />

Has general information about sexuality education and links to other relevant<br />

web cites.<br />

www.siecus.org: cite for <strong>Sexuality</strong> Information and <strong>Education</strong> Council of the<br />

Untied States or www.siecus.org/pubs/biblio/bibs0009.html (for a extensive<br />

bibliography on sexuality and disability resource list)<br />

Dolls and Other Visual Aids<br />

Jackson Models. <strong>Education</strong>al Pelvic Models. Jim Jackson & Co., 30 Buena Vista<br />

Park. Cambridge, MA, 02140, (617) 864-9063 or<br />

www.jimjacksonanatomymodels.com<br />

Shadow Buddies: (888)283-3431 or www.shadowbuddies.org: These are not<br />

anatomically correct, but are designed to be dolls “just like me” (they have<br />

disabilities) for developmentally disabled children. Dolls with many disabilities are<br />

available.<br />

Teach-A-Bodies. P.O. Box 416, Grapevine, Texas, 76099-0416, (888) 228-1314<br />

or (817) 416-9139, fax (817) 416-9139. www.teach-a-bodies.com. Beautifully<br />

done anatomically correct dolls that are available in all ages and ethnicities. The<br />

dolls come with underwear and clothing. A family of four dolls (2 adults and 2<br />

children) sells for $298.00 plus shipping and handling. Sometimes, slightly<br />

imperfect dolls are available at a discounted rate. Anatomically correct paper<br />

dolls and puppets are also available for a significantly lower charge.<br />

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