Sexuality Education - Outreach
Sexuality Education - Outreach
Sexuality Education - Outreach
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Bringing the Birds & Bees<br />
Down to Earth:<br />
<strong>Sexuality</strong> <strong>Education</strong> For<br />
Individuals With Autism<br />
Lisa Mitchell, LCSW-R<br />
Licensed Clinical Social Worker<br />
Lisa Mitchell, LCSW-R<br />
The academics still have little<br />
grasp of the problems the autistic<br />
adult faces, instead of focusing<br />
90% of their attention on the child<br />
under the age of twelve. The<br />
attitude is almost Freudian, in that<br />
after age twelve the person almost<br />
becomes a non-person, prompting<br />
one to ask “What next?”<br />
Melissa Bee, October 12 th , 1999<br />
Lisa Mitchell, LCSW-R<br />
Lisa Mitchell, LCSW-R<br />
Why?<br />
Outline<br />
� Introduction to <strong>Sexuality</strong> <strong>Education</strong> & A.S.D.’s:<br />
Why? Reasons for <strong>Education</strong><br />
Who? Considerations for Families & Professionals<br />
� What?: Key & Other Concepts to Teach<br />
� How?:<br />
General Tips for Providing <strong>Sexuality</strong> <strong>Education</strong><br />
Activities & Interventions<br />
� Sexually Maladaptive Behaviors:<br />
Determining Causes<br />
Interventions<br />
Lisa Mitchell, LCSW-R<br />
Autism: <strong>Sexuality</strong>, Variability, & Interest<br />
� <strong>Sexuality</strong> may be very different for persons with<br />
A.S.D.’s depending on their level of functioning.<br />
� A fairly recent study* of persons with A.S.D’s,<br />
who had more severe impairments found:<br />
~39% of males & 47% of females<br />
demonstrated “definite signs of sexual behavior<br />
towards others”.<br />
~68% of males & 73% of females demonstrated<br />
“indefinite signs of sexual behavior towards<br />
others”.<br />
� The moral: Regardless of level of functioning,<br />
interest seems to be there for many persons with<br />
Autism Spectrum Disorders.<br />
* Haracopos, D. & Pedersen, L. (2002): <strong>Sexuality</strong> & Autism, Danish Report: Society for<br />
the Autistically Handicapped. Copenhagen.<br />
Lisa Mitchell, LCSW-R<br />
Reasons Why Persons with A.S.D.’S Need<br />
<strong>Sexuality</strong> <strong>Education</strong> & Support<br />
Lisa Mitchell, LCSW-R<br />
� The Media<br />
� Peers<br />
� Sexual Abuse<br />
1
Reason #1 For <strong>Education</strong> & Support:<br />
Sexual Abuse<br />
� Abuse: Children with developmental<br />
disabilities are abused 2-3 times more than<br />
non-disabled children.<br />
� 68-80% of developmentally disabled females<br />
are sexually molested or raped by age 18.<br />
� 30-70% of developmentally disabled males<br />
are sexually molested or raped by age 18.<br />
� 49% of developmentally disabled individuals<br />
who are sexually abused will experience 10 or<br />
more abusive incidents in their lifetimes.<br />
� 15,000-19,000 individuals with developmental<br />
disabilities are raped each year.<br />
� Studies show that approximately 90% of<br />
individuals with developmental disabilities.<br />
* Furey, E.M. (1994); Sobsey, D., & Doe, T. (1991); & Reynolds, L. (2002)<br />
Lisa Mitchell, LCSW-R<br />
Lisa Mitchell, LCSW-R<br />
Lisa Mitchell, LCSW-R<br />
Who?<br />
What?<br />
<strong>Sexuality</strong> <strong>Education</strong>:<br />
Increases the likelihood<br />
that individuals with<br />
disabilities will either<br />
have the skills to stay safe,<br />
or will be more likely to<br />
report victimization<br />
after it occurs.<br />
Lisa Mitchell, LCSW-R<br />
Who Should Do “The Talk?”<br />
� Optimum for young people: 75% family<br />
& 25% agency or school<br />
� Every family, school or agency is<br />
different<br />
� Ideally, it is best to have at least one<br />
caregiver involved.<br />
� Best candidate<br />
� For Schools: Co-Teaching & “Guidance<br />
Classroom”<br />
� How to deal with discomfort<br />
� “The talk” fallacy<br />
Lisa Mitchell, LCSW-R<br />
“Safe” <strong>Sexuality</strong> Subjects<br />
� Self-Esteem: May Include<br />
<strong>Education</strong> About Disabilities<br />
� Puberty: Dealing With Body<br />
& Feeling Changes<br />
� Abuse Prevention<br />
� Relationships<br />
� Social Skills<br />
*Adapted from: Schwier, K.M. & Hingsburger, D. (2000)<br />
Lisa Mitchell, LCSW-R<br />
2
Key Concepts<br />
� Body Awareness &<br />
Terminology: Teach<br />
correct names for body<br />
parts, including genitalia.<br />
Three types of language:<br />
“Adult” or “Scientific”,<br />
“Baby-talk”, & “Street”<br />
� Public & Private*: Body<br />
parts, locations, clothing,<br />
behavior & subject<br />
matter<br />
*Adapted from: Schwier, K.M. & Hingsburger, D. (2000)<br />
Lisa Mitchell, LCSW-R<br />
Key Concepts For Girls:<br />
Body Changes & Menses<br />
� Educate on typical body changes for girls<br />
(e.g. breast development, hair, acne, body<br />
odor).<br />
� Most girls with A.S.D.’s accept menstruation<br />
in a matter of fact manner.<br />
� Teach the beauty of becoming a woman.<br />
When menstruation first occurs, it should be<br />
celebrated.<br />
� Talk about and prepare them for the sight of<br />
blood.<br />
� Prior to menstruation, teach and practice<br />
how to use sanitary products. For those<br />
with significant tactile sensitivities, use a<br />
systematic desensitization approach.<br />
� Encourage use of calendars and changing<br />
schedules.<br />
� Suggest a “road trip” to their local drug<br />
store for personal hygiene supplies.<br />
Lisa Mitchell, LCSW-R<br />
Key Concepts: Abuse Prevention<br />
� Replace “stranger danger” with being<br />
wary of “strange behavior”.<br />
� Teach the various forms of sexual<br />
abuse.<br />
� There are people in the world (even<br />
familiar people) who do hurtful or<br />
inappropriate things.<br />
� Basics: Differences between good, bad<br />
and mixed-up/sexual/secret touches.<br />
� Rules for sexual touches.<br />
� Most Important Possession: Body<br />
Ownership.<br />
Lisa Mitchell, LCSW-R<br />
Key Concepts: PUBERTY<br />
*Crucial*:<br />
Educate About Puberty<br />
BEFORE<br />
IT<br />
STARTS!!!!!!!!!!!!!!!<br />
Lisa Mitchell, LCSW-R<br />
Key Concepts For Boys: Body Changes,<br />
Erections, & Wet Dreams<br />
� Educate on typical body changes for<br />
boys (e.g. height and muscle<br />
development, hair, acne, body odor,<br />
voice changes).<br />
� Teach boys that as they enter puberty,<br />
their genitals will start to change and<br />
behave differently. Emphasize the<br />
normalcy of this!!<br />
� Prepare boys for spontaneous erections<br />
and wet dreams.<br />
� While emphasizing the positive aspects<br />
of these changes (“How cool, you are<br />
becoming a man!”), don’t forget to offer<br />
“Erection Management Strategies”<br />
when appropriate.<br />
� Suggest a “road trip” to their local drug<br />
store for personal hygiene supplies.<br />
Lisa Mitchell, LCSW-R<br />
Key Concepts: Abuse Prevention<br />
� Age appropriate ways of<br />
showing affection to others.*<br />
� “No, Go, Tell”**<br />
� Teach how to be assertive,<br />
and to say “No” to authority<br />
figures.*<br />
� Role-play possible scenarios<br />
during which they can say<br />
“No!”.*<br />
� Encourage them to “walk<br />
with pride”.*<br />
* Schwier, K.M. & Hingsburger, D. (2000)<br />
**Krents, E.J. & Atkins, D.S. (1991)<br />
Lisa Mitchell, LCSW-R<br />
3
Key Concepts: Social Skills<br />
� Emphasize good grooming and hygiene*.<br />
� Provide as many opportunities to socialize<br />
as possible*.<br />
� Help to develop hobbies and interests*.<br />
� Teach basic social skills: eye contact,<br />
listening, greeting others, and appropriate<br />
topics of conversation.<br />
� Teach more advanced social skills:<br />
perspective taking, inside/outside<br />
thoughts, dealing with rejection, conflict<br />
resolution, and reading body language.<br />
� Be patient! Social skill development can<br />
take years of observation, discussion,<br />
practice, and constructive feedback.<br />
*Newport, J. & Newport, M. (2002)<br />
Lisa Mitchell, LCSW-R<br />
Relationship Staircase: Intimacy<br />
*Pictures reproduced from Young Adult Institue (YAI) <strong>Sexuality</strong> Series<br />
** Pictures reproduced from Circles (Champagne & Hirsch)<br />
TIME ------><br />
Relationship Checklist<br />
1. Do they smile at me? 15. Do I know their favorite food?<br />
2. Do they know my name? 16. What’s their favorite ice cream flavor?<br />
3. Do they say hello when they see me? 17. Do I know their favorite band/song?<br />
4. Do they talk to me for a few minutes at a time? 18. Do they have a favorite movie star?<br />
5. Do they ask me questions about myself? 19. Do they have a pet? What’s it’s name?<br />
6. Do they compliment me/Use nice words? 20. What do they like to do for fun?<br />
7. Do they listen to me when I talk? 21. Have they given me their phone number<br />
8. Do they ask me how I’m feeling? or e-mail address?<br />
9. Do they help me when I’m upset? 22. Do they call me/talk to me on the phone/send me<br />
10. Do they stand up for me? text messages, or e-mail me?<br />
11. Are they respectful (e.g. no name calling/ put-downs)? 23. Do they invite me to do things/go places with them?<br />
12. Do I know when their birthday is? 24. Have I been invited to their house?<br />
13. Do I know how many brothers and sisters they have? 25. Have they asked me out on a date?<br />
14. Do I know their favorite color? 26. Have they asked me to be their boy/girl friend?<br />
Key Concepts: Relationships<br />
� Self-Esteem: How can you have a good<br />
relationship with others, when you don’t have<br />
one with yourself?<br />
� Types of relationships and appropriate<br />
behaviors for each category<br />
� 3 Rules of Healthy Relationships*<br />
� Reciprocity: 2-way street<br />
� Friendships: Can be practice for romantic<br />
relationships. How can you be a good<br />
boyfriend/girlfriend if you don’t know how to be<br />
a good friend?<br />
� Staircase Analogy: Gradual progression of<br />
intimacy<br />
� Relationship Checklist: How close are you<br />
really?<br />
* Schwier, K.M. & Hingsburger, D. (2000)<br />
Lisa Mitchell, LCSW-R<br />
Relationship Checklist &<br />
“The Road to Relationships”<br />
1. Do they smile at me?<br />
2. Do they know my name?<br />
3. Do they say hello when they see me?<br />
4. Do they talk to me for a few minutes at a time?<br />
5. Do I know when their birthday is?<br />
6. Do I know how many brothers and sisters they<br />
have?<br />
7. Do I know their favorite food?<br />
8. Do I know their favorite band/song?<br />
9. Have they given me their phone number or email<br />
address?<br />
10. Do they call me/talk to me on the phone/send<br />
me text messages, or e-mail me?<br />
11. Do they invite me to do things/go places with<br />
them?<br />
12. Have I been invited to their house?<br />
1 Check = 1 Brick (1 Step for Person,<br />
1 Space for Car, etc.)<br />
Lisa Mitchell, LCSW-R<br />
Best Friends<br />
Hi & Goodbye Friends<br />
Strangers<br />
Good Friends<br />
The Search: Finding Companionship<br />
� The Internet: Benefits & Pitfalls<br />
� Vulnerability & Rejection<br />
� Difficulties with: Initiation, Follow-up, Attention & Intimacy<br />
� Small Steps to Intimacy: “Associate” – Friend – Romantic<br />
Partner<br />
� F.Y.I.: The legal age of consent in Pennsylvania is 16 years!<br />
(with less than 4 years age gap between the 16 year old and<br />
their partner).<br />
� Autism does not have to stop individuals from forming loving<br />
relationships. They just need to approach relationships in a<br />
different way.<br />
Lisa Mitchell, LCSW-R Lisa Mitchell, LCSW-R<br />
4
Other Concepts to Teach: Dating<br />
� Discuss all the details we might take<br />
for granted.<br />
� How to discern other’s motivations for<br />
involvement.<br />
� Sexual decision making, & the right to<br />
refuse or say “no” to sexual activities.<br />
� Re-introduce the concept of “the<br />
bases”.<br />
� Use role-plays and practice dates to<br />
teach skills.<br />
� Advance preparation<br />
� Review personal safety skills.<br />
Lisa Mitchell, LCSW-R<br />
Other Concepts To Teach: Intercourse/<br />
Reproduction<br />
� Not always necessary or appropriate to teach.<br />
� Initially, give a very basic explanation of<br />
intercourse & add information over time.<br />
� Loving sex is something that is done in private,<br />
between two consenting adults.<br />
� Emphasize the importance of delaying sexual<br />
intercourse until they are mature enough and<br />
emotionally and financially able to deal with the<br />
many responsibilities/consequences.<br />
� Ask individuals to share their own or their<br />
families’ values.<br />
� Got Pictures?: Male sperm + Female egg = Baby<br />
Lisa Mitchell, LCSW-R<br />
Lisa Mitchell, LCSW-R<br />
How?<br />
Other Concepts To Teach: Masturbation<br />
� Terminology: “private touching”<br />
� Try to be as neutral as possible,<br />
emphasizing that masturbation can be<br />
very normal and natural (it is also<br />
normal and natural to choose not to<br />
masturbate!!).<br />
� Stress privacy or appropriate times<br />
and locations to masturbate.<br />
� May benefit from a “private time”<br />
schedule.<br />
� In many cases, teach masturbation is<br />
not an option.<br />
� May require a targeted behavioral<br />
intervention, or simply keeping hands<br />
busy/redirection to activities involving<br />
motion.<br />
Lisa Mitchell, LCSW-R<br />
Other Key Concepts: Sexual Orientation<br />
& Lifestyle Choices<br />
� Adult Sexual Orientation: Is something<br />
that a person is or has, rather than<br />
something that they have chosen.<br />
� Give a very simple definition.<br />
� Emphasize how small this component is<br />
when considering “the bigger picture” of who<br />
the person is and what they are about.<br />
� Other Lifestyle Choices: Some people<br />
date, some don’t. Some have sexual<br />
relationships, some chose abstinence.<br />
Some people never get married or have<br />
children. All lifestyle choices have equal<br />
value and deserve equal respect.<br />
Lisa Mitchell, LCSW-R<br />
Use “Teachable Moments”<br />
� “Teachable Moments” are when your<br />
person asks a question or mentions<br />
something they have heard about<br />
sexuality. These moments can also<br />
occur when a TV show, movie, song,<br />
book, newspaper, magazine, or<br />
anything else in the environment<br />
presents a sexual scenario that<br />
interests or confuses them. Use<br />
these moments to share information<br />
or teach values and beliefs.<br />
Lisa Mitchell, LCSW-R<br />
5
Tips for Communicating<br />
� Find out what your person knows or does<br />
not know, and use this as a starting point.<br />
� Be mindful of location*.<br />
� Use a calm matter of fact tone*.<br />
� Use “private voice” when discussing<br />
sexuality issues*.<br />
� Repeat key information often.<br />
� Communicate with others about what you<br />
are working on, and assist your person in<br />
identifying other appropriate individuals with<br />
whom they can discuss sexuality issues.<br />
* Schwier, K. & Hingsburger, D. (2000)<br />
Lisa Mitchell, LCSW-R<br />
The 6 Rules of Presentation*:<br />
� Simple<br />
� Visual<br />
� Individualized<br />
� Repetitive<br />
� Fun<br />
� Concrete<br />
*Maurer, L. (1996)<br />
Lisa Mitchell, LCSW-R<br />
Nifty Teaching Techniques<br />
� Any & Everything: Picture Sorts &<br />
Collages<br />
� Self-Esteem, Public & Private,<br />
Hygiene, Abuse Prevention: Body<br />
Charts<br />
� Social Presentation: Video Self-<br />
Monitoring<br />
� Rating Scales of Interest/<br />
Feelings, Safe & Unsafe Sexual<br />
Behavior: Thermometers<br />
� Any & Everything: Graphic<br />
Organizers<br />
Lisa Mitchell, LCSW-R<br />
� Be proactive.<br />
Advice for Teaching<br />
� Social topics are just as important as the<br />
sexual, (e.g. social skills, personal<br />
boundaries, relationships) with emphasis on<br />
social reciprocity.<br />
� Use a variety of teaching mediums and<br />
approaches*.<br />
� Break down more involved tasks into steps*.<br />
� From the start of training, teach the correct<br />
steps to a routine.<br />
� Focus on the more practical application of<br />
information (logical vs. biological)*.<br />
*Maurer, L. (1996)<br />
Lisa Mitchell, LCSW-R<br />
<strong>Education</strong>al Activities<br />
& Interventions<br />
Lisa Mitchell, LCSW-R<br />
Graphic Organizers: Self-Esteem<br />
& Social Issues<br />
Like<br />
some of<br />
the same<br />
things<br />
Spend<br />
time<br />
together<br />
Friends<br />
Do<br />
Invite each<br />
other<br />
places<br />
Lisa Mitchell, LCSW-R<br />
Treat each<br />
other with<br />
kindness<br />
Compromise<br />
6
More Nifty Teaching Techniques<br />
� Social Skills & Abuse<br />
Prevention: Role-Plays<br />
� Any & Everything:<br />
Homemade Books, Social<br />
Stories* & Comic Strip<br />
Conversations*<br />
� Social Skills & Abuse<br />
Prevention: Circles Charts**<br />
� Conversation Skills:<br />
Communication Balls***<br />
� Any & Everything:<br />
Anatomically Correct Dolls<br />
* Gray, C. (2000) & (1994)<br />
**Champagne & Walker-Hirsch (1986-1993)<br />
***Stangle, J. & Reis, E. (1991)<br />
Lisa Mitchell, LCSW-R<br />
Addressing<br />
Problematic Sexual<br />
Behaviors<br />
Lisa Mitchell, LCSW-R<br />
Problem Behavior: Masturbation<br />
� Distinguish between fiddling and<br />
discomfort.<br />
� Attitude: Be as neutral as possible!<br />
Emphasize the right time and place.<br />
� Boredom?<br />
� Use of private time schedules,<br />
lubricant, or visual cues.<br />
� Options for teaching of “proper<br />
technique”: Illustrations, social<br />
stories, anatomically correct dolls*,<br />
anatomic models, aids, or<br />
instructional video** (especially for<br />
those who become self-injurious or<br />
appear frustrated).<br />
*Teach-A-Bodies<br />
**Hingsburger, D. (1995) & Hingsburger<br />
Lisa Mitchell, LCSW-R<br />
Even More Nifty Teaching Techniques<br />
� Social Skills/Connecting With<br />
Others: Ball of Yarn<br />
� Puberty & Hormones: Milk,<br />
Dawn & Food Coloring<br />
� Self-Esteem: Pride Poster<br />
� Social Skills: Compliment &<br />
Conversation Circles<br />
� Components of <strong>Sexuality</strong>: Ice<br />
Cream Sundaes<br />
Lisa Mitchell, LCSW-R<br />
Determining The Cause of<br />
Sexual Misbehavior<br />
� Behavioral<br />
� Partner Selection<br />
� Inappropriate Courtship<br />
� Sexual Knowledge<br />
� Medical<br />
� Learning History<br />
� Sensory<br />
Lisa Mitchell, LCSW-R<br />
Hierarchy: Masturbation Training<br />
� When appropriate, work with families and/or residence to establish a visual “private<br />
time schedule”.<br />
� When appropriate, supply individual with lubricant, explaining it is for use during<br />
“private time”.<br />
� Meet with individual. Present illustrations of same sex persons masturbating, in<br />
conjunction with verbal explanation regarding technique.<br />
� Meet with individual. Use illustrations and anatomical model in conjunction with<br />
verbal explanation of technique.<br />
� Meet with individual. Use anatomically correct dolls to demonstrate appropriate<br />
masturbatory technique, in conjunction with verbal explanation.<br />
� When appropriate, supply masturbatory aids such as body pillows. magazines,<br />
collages of stimulating pictures, vibrating pillows, masturbation sleeves,<br />
masturbation pumps, or vibrators. Explain safe usage of such aids.<br />
� Meet with individual. Arrange for multiple viewings (when necessary) of instructional<br />
masturbation movies “Handmade Love”* for males, or “Fingertips”* for females.<br />
Viewings should occur in the individual’s bedroom or the private location where<br />
masturbation will be allowed to occur. Trainer may need to supply a verbal<br />
explanation while simultaneously viewing the tape to reinforce principles.<br />
� For individuals with more significant challenges, consider use of ABA type<br />
approach (preferably done with relatively unfamiliar trainer) to teach more<br />
successful masturbatory technique. Shape up steps one at a time (e.g. “Pull pants<br />
and underwear down”, “Lay on belly”, “Put pillow between legs”, “Rock from side to<br />
side”. Or “Pull pants down”, “Sit on bed”. “Put fingers around penis”, “Rub up and<br />
down, up and down”.)<br />
Lisa Mitchell, LCSW-R<br />
7
Problem Behavior: Fascinations,<br />
Obsessions, & Rituals (Oh My…..)<br />
� Staring: 3 x 3 Rule (Three - 3 Second Looks)<br />
� Relationships: <strong>Education</strong> re: maintaining a balance between their<br />
lives/former interests vs. the object of their desire is helpful. Stalking<br />
and/or obsessing on people can be an issue (even more than your<br />
average person in love or in a new relationship).<br />
� When They Become Maladaptive: Think: Socially Appropriate<br />
Alternative?<br />
� Difficulty With Stopping: May need to initially go cold turkey, and<br />
then gradually add time allowed to “feed” the interest.<br />
� Childhood Interests Sometimes Become Sexualized: It’s not a far<br />
jump from Pokemon – Anime (e.g. Naruto) – Hentai (sexually explicit<br />
or pornographic comics or animation).<br />
� “Pedophillic” Intent Or Developmental Issues Gone Awry?: Many<br />
individuals with ASD’s are more successful with younger peers (who<br />
are more accommodating/accepting of their differences). Similar<br />
social/emotional functioning and interests – lack of social awareness<br />
or understanding - sexual feelings without an appropriate outlet [can]<br />
= trouble.<br />
Lisa Mitchell, LCSW-R<br />
Thank You!!!!!<br />
Lisa Mitchell, LCSW-R<br />
Licensed Clinical Social Worker<br />
(631) 495-3810<br />
lemitch@optonline.net<br />
Lisa Mitchell, LCSW-R<br />
Problem Behavior: Touching Others<br />
� Determine the cause: lack of education,<br />
curiosity, deficits in communication or social<br />
skills, attention seeking or social isolation?<br />
� Teach about personal relationships and<br />
boundaries.<br />
� Teach “touching rules” and possible<br />
consequences of inappropriate touching.<br />
� Provide advance preparation or coaching when<br />
entering certain social situations.<br />
� Work with the team to get others to support<br />
teaching of appropriate touching.<br />
� If it becomes a chronic occurrence, or involves<br />
inappropriate targets (e.g. members of the<br />
family, young children, or individuals who are<br />
lower functioning) consider seeking specialized<br />
professional help.<br />
Lisa Mitchell, LCSW-R<br />
8
Curriculums<br />
Resource List<br />
Lisa Mitchell, LCSW-R<br />
2009<br />
A Girl’s/Boy’s Guide to Puberty And Personal Safety. (Marsh Media, 2006). A nice<br />
simple curriculum for kids with special needs that you can order in either a boys’<br />
or girls’ version ($149.95 per curriculum-available at www.marshmedia.com),<br />
that comes with a teaching guide with reproducible handouts, a DVD to show<br />
kids, and color booklets to give each participant. It covers the basics of body<br />
changes and reproduction, with a good amount of attention given to touches and<br />
public and private.<br />
Circles: A Multi-media Package to Aid in the Development of Appropriate<br />
Social/Sexual Behavior in the Developmentally Disabled Individual. (Marilyn<br />
Champagne & Leslie Walker-Hirsch. (James Stanfield Publishing, (800)421-6534,<br />
$599.00). Includes slides, charts, sound cassettes and photos.<br />
Developing Personal Safety Skills in Children with Disabilities. Freda Briggs. A<br />
nice abuse prevention curriculum with lots of pictures and activities. Currently<br />
out of print, but available for $52.95 through Jessica Kinsley Publishers at<br />
www.jkp.com.<br />
<strong>Education</strong> For Adulthood. (Staten Island Mental Health Society, Inc.) A<br />
comprehensive curriculum addressing sexuality and transition to adulthood<br />
issues for individuals with developmental disabilities. Not many illustrations, but<br />
has some nice lesson plans.<br />
F.L.A.S.H. Family Life & Sexual Health: Special <strong>Education</strong> ; Secondary: A<br />
Curriculum for Grades 7-12. Jane Stangle & Elizabeth Reis. (Seattle-King County<br />
Department of Public Health, HEM Sales, 400 Yesler Way, 3 rd Floor Seattle, WA<br />
98104, (206) 296-4679, www.michelle.pennylegion@metrokc.gov, 1991) An<br />
excellent, reasonably priced (about $40.00) comprehensive curriculum with<br />
wonderful activities and reproducible transparencies. www.kingcounty.gov/health<br />
services/ health/personal/famplan/educators/FLASH.aspx<br />
Human <strong>Sexuality</strong> Portfolio. Victoria Livingston & Mary E. Knapp. (Planned<br />
Parenthood of Western Washington, 206-328-7715) Not many pictures are<br />
provided, but they are simply laid out on large cards.<br />
Life Facts: <strong>Sexuality</strong>. Nancy Cowardin. James Stansfield Publishing Co. An<br />
excellent (but expensive) curriculum that comes with a training manual, large<br />
laminated cards with lesson plans on the back of each card and slides.<br />
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No-Go-Tell: Protection Curriculum For Young Children With Special Needs.<br />
Elisabeth J. Krents & Dale Special Atkins. (James Stanfield Co., 1991<br />
approximately $199.00). Large laminated pictures depicting abusive situations<br />
and how to report and avoid sexual abuse.<br />
Personal Space: A Violence Prevention Program for Women. Developed by The<br />
Arc of Maryland: phone (410) 974-6021, fax (410)571-9320, e-mail<br />
info@thearcmd.org. A great curriculum to use when doing groups for women<br />
with developmental disabilities that teaches about personal boundaries,<br />
sexuality, relationships, sexual harassment, sexual assault, and domestic<br />
violence. Available free-of-charge. You just need to fax or e-mail your name and<br />
address.<br />
STARS: Skills Training for Assertiveness, Relationship-Building, & Sexual<br />
Awareness. Susan Heighway, Susan Kidd Webster, & Marsha Shaw. (Waisman<br />
Center Program; 3 rd Edition, July 1992) Available for purchase from the author<br />
(608) 263-5996. A nice curriculum covering relationships, social interactions,<br />
sexual awareness, and assertiveness. Comes with a great, simple, and visual<br />
assessment tool called the S.A.K. (Sexual Attitudes and Knowledge Assessment).<br />
Talking Sex! Practical Approaches and Strategies for Working With People Who<br />
Have Developmental Disabilities When the Topic is Sex. Lisa T. Maurer. (Planned<br />
Parenthood of Tompkins County, 314 West State Street, Ithaca, New York,<br />
14850, (607) 273-1526, ext. 134). Great ideas for sexuality education and advice<br />
for the professional training disabled individuals, parents or other professionals.<br />
Offers reproducible overheads and handouts.<br />
Books for Parents<br />
A note: Most books are available on www.amazon.com unless otherwise<br />
indicated.<br />
I Openers: Parents Ask Questions About <strong>Sexuality</strong> and Children With<br />
Developmental Disabilities. Dave Hingsburger. (Family Support Institute Press,<br />
Vancouver, 1993) Excellent answers to commonly faced problems.<br />
www.parentbooks.ca/<strong>Sexuality</strong>_&_Disability.html<br />
<strong>Sexuality</strong>: Preparing Your Child With Special Needs-How to Develop a Plan for<br />
Sex <strong>Education</strong> and Sexual Abuse Prevention. (MOCSA- Metropolitan Organization<br />
to Counter Sexual Assault Developmental Disabilities, Resource Center on<br />
<strong>Sexuality</strong>, 3217 Broadway, Suite 500, Kansas City, MO 64111-2414, (816) 931-<br />
4527, ext 232) A nice booklet that is a good start to helping to plan for the<br />
services and sexuality education for parents; offered free of charge.<br />
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<strong>Sexuality</strong>: Your Sons and Daughters with Intellectual Disabilities. Karin Melberg<br />
Schwier & Dave Hingsburger. (Paul H. Brookes Publishing Co., Baltimore, 2000)<br />
An excellent book for parents of children with any developmental disability.<br />
Books for Children & Adolescents<br />
Autism-Asperger’s & <strong>Sexuality</strong>: Puberty and Beyond. Jerry and Mary Newport.<br />
(Future Horizons, 2002) Written for adolescents and young adults with autism<br />
spectrum disorders, by a husband and wife (both on the spectrum themselves),<br />
who give advice on how to function in the social environment and get through<br />
this difficult period. Pretty high-level reading, but offers some interesting insights<br />
for both young people, as well as for parents.<br />
Bellybuttons Are Navels. Mark Schoen. (Prometheus Books, 1990) A nice simply,<br />
illustrated book for young children that teaches the names for body parts and<br />
the differences between boys and girls.<br />
Caution: Do Not Open Until Puberty!: An introduction to <strong>Sexuality</strong> for Young<br />
Adults With Disabilities. Rick Enright. (Devinjer House, Sparta, Ontario, 1995,<br />
available for purchase through Thames Valley Children’s Centre: (519) 685-8680<br />
or (519) 685-8703). A fun, nicely illustrated book written for young adults with<br />
physical disabilities. The reading level may be too advanced for some.<br />
www.tvcc.on.ca<br />
Changes In You: For Girls. Peggy C. Siegel. (Family Life <strong>Education</strong> Associates,<br />
1991) A great illustrated book for girls about body changes and puberty. Reading<br />
level may be too high for some individuals.<br />
Changes In You: For Boys. Peggy C. Siegel. (Family Life <strong>Education</strong> Associates,<br />
1991) A great illustrated book for boys about body changes and puberty.<br />
Reading level may be too high for some individuals.<br />
Changes In You & Me: A Book About Puberty Mostly For Girls. Paulette Bourgeois<br />
& Martin Wolfish. (Somerville House Books Ltd., Toronto, Ontario)<br />
Comprehensive, with lots of great pictures. May be too wordy for some<br />
individuals.<br />
Changes In You & Me: A Book About Puberty Mostly For Boys. Paulette<br />
Bourgeois & Martin Wolfish. (Somerville House Books Ltd., Toronto, Ontario)<br />
Comprehensive, with lots of great pictures. May have too many words for some<br />
individuals.<br />
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Did The Sun Shine Before You Were Born? Sol & Judith Gordon. (Prometheus<br />
Books, Buffalo NY) A nice simple book about different types of families,<br />
intercourse, reproduction, pregnancy, childbirth and differences between boys<br />
and girls.<br />
Freaks, Geeks & Asperger Syndrome. Luke Jackson. (Jessica Kingsley Publishers,<br />
2002). Written to be “a user guide to adolescence” by a 13 year old English boy<br />
who has been diagnosed with Asperger’s Syndrome, the book offers often<br />
fascinating and almost always entertaining insight/advice into a myriad of<br />
subjects, including fixations, school, friendships, socialization, bullying and<br />
dating. A nice book for young people who have been diagnosed with Asperger’s,<br />
as well as their parents.<br />
Girls Are Girls And Boys Are Boys: So What’s The Difference? Sol Gordon. (Ed-U<br />
Press, New York) An excellent simple book about gender differences, gender<br />
identity, intercourse, reproduction, pregnancy, puberty, masturbation and<br />
relationships.<br />
A Good Friend: How to Make One, How to be One. Ron Herron & Val J. Peter.<br />
(Boys Town Press, Nebraska, 1998, 1-800-282-6657). A nice book for teens<br />
about friendships. A higher reading level (6-7 th grade) is required.<br />
How Babies Are Made. Andrew Andry & Steven Schepp. (Time Life Books, New<br />
York). A relatively simple illustrated book that offer explanations of reproduction<br />
and sexual intercourse for both animals and people.<br />
How Sex Works: A clear, comprehensive guide for teenagers to emotional,<br />
physical and sexual maturity. Elizabeth Fenwick & Richard Walker. (Dorling<br />
Kindersley Limited, 1994). A nicely illustrated book for teenagers about puberty,<br />
relationships and emotions, intercourse, contraception, pregnancy and sexual<br />
health. May have too much information on internal organs/reproduction, and the<br />
reading level may be too high for some, but overall a nice book for teens.<br />
It’s My Body. Lory Freeman. (Parenting Press, 1986) A nice simple book for<br />
younger children that teaches about different types of touches, and how to<br />
respond to unwanted touches.<br />
My Body is Mine, My Feelings Are Mine. Susan Hoke, LCSW, ACSW.<br />
(Childswork/Childsplay, 1995, LLC, Plainview, NY.) An excellent simply written,<br />
illustrated abuse prevention book teaching body ownership and strategies for<br />
children to use.<br />
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My Body Is Private. Linda Walvoord Girard. ( Albert Whitman & Co, Niles Illinois).<br />
A nice simple, illustrated book that teaches about privacy, body ownership, the<br />
right to refuse touches and abuse prevention.<br />
Period: A Girl’s Guide to Menstruation. Jo Ann Gardner-Loulan, Bonnie Lopez,<br />
Marcia Quackenbush. Slightly dated, but comprehensive. Lots of pictures. May<br />
have too many words for some individuals.<br />
Sometimes I’m Afraid. Syliva Root Tester. (Children’s Press, 1979). A nice simply<br />
illustrated book about the feeling of fear.<br />
Sometimes I Get Angry. Jane Werner Watson, Robert E. Switzer & J. Cotter<br />
Hirschberg. (Golden Press, New York, 1977) A simple book for young children<br />
about feeling angry when limits are set.<br />
A Very Touching Book. Jan Hindman. (AlexAndria Associates, Baker City, OR<br />
(541) 523-4574: also available through Amazon.com). A great book with funny<br />
illustrations that educates on terminology for body parts, good, bad and secret<br />
touches.<br />
“What’s Happening To Me?”: A Guide to Puberty. Peter Mayle. A funny book with<br />
many illustrations. Fairly simple language, and a moderate amount of words.<br />
What Is a Girl? What Is a Boy?. Stephanie Waxman & Thomas Y. Crowell. (1976,<br />
1989) A great simple book for children describing the definitions and differences<br />
of male and female using real life photographs.<br />
What Makes Me Feel This Way?: Growing Up with Human Emotions. Eda Le<br />
Shan. (Macmillan Publishing, 1972). A nice book about feelings education, but<br />
not many pictures. May have too many words for some individuals.<br />
“Where Did I Come From?”: The Facts of Life Without Any Nonsense and With<br />
Illustrations. Peter Mayle. (Lyle Stuart Inc., Secaucus, NJ) A funny book with<br />
many illustrations about differences in male and female anatomy, pregnancy,<br />
intercourse and childbirth. Fairly simple language, and a moderate amount of<br />
words.<br />
Where Do Babies Come From? Margaret Sheffield. A fairly simple, nicely<br />
illustrated book that talks about difference between males and females, how<br />
bodies change as children grow, reproduction, pregnancy and childbirth<br />
Who Made Me?. Malcolm & Meryl Doney. A nice simple book about differences<br />
between males and females, intercourse and pregnancy, with a bit of a religious<br />
perspective.<br />
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Your Body Belongs To You. Cornelia Spelman. (Albert Whitman & Co., Morton<br />
Grove, Illinois, 1997). A nice, illustrated simply written book that speaks about<br />
touches, body ownership and abuse prevention.<br />
Books for Developmentally Disabled Adults and/or Their Partners<br />
An Asperger Marriage. Gisela & Christopher Slater-Walker. (Jessica Kingsley<br />
Publishers, 2002). Written by a married couple (the husband has been diagnosed<br />
with Asperger’s), this book at times dwells a bit too much in the mundane details<br />
of the couple’s day-to-day life, but offers an interesting snapshot of their<br />
relationship, conflicts, and resolutions from both the husband and wife’s<br />
perspectives.<br />
Asperger Syndrome and Long-Term Relationships. Ashley Stanford. Jessica<br />
Kingsley Publishers, 2003). An excellent book on how to successfully navigate<br />
intimate relationships when involved with a person with Asperger’s. Written by a<br />
researcher and woman married to a man with Asperger’s, the author offers many<br />
anecdotal stories from her own life and the lives of others in relationships with<br />
individuals with the syndrome, and offers great suggestions on how to make the<br />
relationships work.<br />
An Easy Guide To Loving Carefully. Winifred Kempton, Lyn McKee & Lynne<br />
Stiggall. (Lynne Stiggall-Muccigrosso Associates, 1997). A nicely illustrated book<br />
for disabled adults or older adolescents, covering anatomy, intercourse, birth<br />
control, pregnancy, and reproductive health issues.<br />
Dating for Dummies. Dr. Joy Browne. (IDG Books Worldwide, 1997). Try to be<br />
forgiving of the title. This book may be especially helpful for adults who have<br />
High Functioning Autism or Asperger’s, who are looking to date/make<br />
connections with others. It covers everything from increasing self-confidence,<br />
improving social skills and physical appearance, interpreting lines, asking others<br />
out on date, breaking up, etc.<br />
Life and Love: Positive Strategies for Autistic Adults. Zosia Zaks. (Autism<br />
Asperger Publishing Co., 2006). Geared towards high-functioning adults on the<br />
spectrum, this book offers many nice “how to” suggestions/concrete strategies<br />
re: how to navigate day-to-day challenges (e.g. traveling or shopping), as well as<br />
dating, spectrum-non-spectrum relationships, friendships, gender issues and<br />
personal safety.<br />
The Other Half of Asperger Syndrome. Maxine C. Aston. (The National Autistic<br />
Society, 2001). A great book written by a woman who is a couples’ counselor<br />
and also married to a man with Asperger’s Syndrome, it is meant to be “a guide<br />
6
to living in an intimate relationship with a partner who has Asperger Syndrome”.<br />
Although the author does not really write much about her own personal<br />
experiences, she draws on research she has done, her experiences as a<br />
counselor, and offers some nice concrete suggestions for “neuro-typical”<br />
individuals who are in relationships who persons diagnosed with the disorder.<br />
Out of Harm’s Way: a Safety Kit for People With Disabilities Who Feel Unsafe and<br />
Want To Do Something About It. (The Roeher Institute, Ontario, 1-800-856-<br />
2207). More of a guidebook with fill-in exercises for young adults living in the<br />
community.<br />
Pretending to be Normal: Living with Asperger’s Syndrome. Liane Holliday Willey.<br />
(Jessica Kingsley Publishers, 1999). An excellent book written by a woman with<br />
Asperger’s Syndrome. She speaks about her experiences in childhood,<br />
adolescence, college, in her marriage and as a parent of 3 children, one of whom<br />
also has Asperger’s. At the end, she offers great suggestions for support people,<br />
and for person’s with Asperger’s regarding how to deal with college, work,<br />
organizing home life, and coping with sensory perception difficulties.<br />
Sex, <strong>Sexuality</strong> And the Autism Spectrum. Wendy Lawson. (Jessica Kingsley<br />
Publishers, 2005). A interesting book with great insights, practically for high<br />
functioning persons on the spectrum on sexuality and relationships. Written by a<br />
woman who is on the spectrum who was married for 20 years, had four children,<br />
and is presently in a same sex relationship, it contains appendixes with cool do-<br />
together couple activities such as relationship word searches and crossword<br />
puzzles, as well as sexual orientation and sensory profile discussion sheets.<br />
Resources for Parents & Professionals<br />
Asperger’s Syndrome And <strong>Sexuality</strong>: From Adolescence Through Adulthood.<br />
Isabelle Henault. (Jessica Kingsley Publishers, 2006). A book which provides<br />
socio-sexual insights and a great review of the existing research on AS and<br />
sexuality. May be particularly helpful for professionals, as it provides interesting<br />
case studies and outlines with reproducible handouts for a series of workshops<br />
on sexuality which the author developed for persons with AS.<br />
Autism & <strong>Sexuality</strong>: A Guide For Instruction. Susan Gray, Lisa Ruble and Nancy<br />
Dalrymple. (Autism Society of Indiana, 1996). An excellent 25-page booklet on<br />
Autism and sexuality, and how to address commonly faced problems. Available<br />
through: Parentbooks, 201 Harbord Street, Toronto, Ontario, M5S 1H6, (800)<br />
209-9182 or (416) 537-8334. www.parentbookstore.com.<br />
Boardmaker. (Mayer-Johnson, Inc. 2003) Phone (800) 588-4548 or www.mayerjohnson.com.<br />
Basic Intro. Model for Windows and Macs available for $329.00.<br />
7
Great computer software package to use when making visual aides, or social<br />
stories. Only criticism is you always need the CD-Rom to access the program.<br />
The Boggs Center. The Elizabeth Boggs Center on Developmental Disabilities,<br />
UMDNJ-Robert Wood Johnson Medical School. 335 George Street, P.O. Box 2688,<br />
New Brunswick, NJ 08903-2688, phone (732) 235-9310. Has a loaning library for<br />
professionals. You just have to pay the cost of shipping materials. The library’s<br />
list of materials in not available on-line. You must call and ask to be sent a list.<br />
Comic Strip Conversations. Carol Gray. Available through Amazon.com<br />
James Stanfield Company, PO Box 41058, Santa Barbara, CA 93140, (800) 421-<br />
6534., www.stanfield.com/sexed-1.html. Top quality sexuality materials for<br />
individuals with developmental disabilities, that are also very expensive.<br />
Just Say Know! Understanding & Reducing the Risk of Sexual Victimization of<br />
People With Developmental Disabilities. Dave Hingsburger. (Diverse City Press,<br />
1995). A book for parents and professionals that teaches about the dangers of<br />
overprotection and offers other abuse prevention strategies.<br />
I Contact: <strong>Sexuality</strong> and People With Developmental Disabilities. Dave<br />
Hingsburger. (VIDA Publishing, Mountville Pennsylvania, 1990). Geared towards<br />
providing a more humanistic perspective of sexuality, primarily for professionals<br />
working with developmentally disabled individuals.<br />
Love, Sex, & Birth Control: A Guide For Parents. Winifred Kempton, Sol Gordon &<br />
Medora Bass. A nice booklet that discusses issues parents commonly face<br />
regarding sexuality as their developmentally disabled child grows into an adult.<br />
The New Social Story Book: Illustrated Edition. Carol Gray, September 2000<br />
(Available through Amazon.com). Also check out the following web cite:<br />
www.thegraycenter.org/Social_Stories.htm<br />
Sex <strong>Education</strong>: Issues For the Person With Autism. Nancy Dalrymple, Susan Gray<br />
& Lisa Ruble. Part of “Functional Programming For People With Autism: A<br />
Series:….” (Indiana University, Institute for the Study of Developmental<br />
Disabilities, Indiana Resource Center for Autism, 1991). Nice overview regarding<br />
appropriate objectives and teaching interventions to try when providing sexuality<br />
education for individuals with Autism.<br />
<strong>Sexuality</strong> and People with Intellectual Disability. Lydia Fegan, Anne Rauch,<br />
Wendy McCarthy. (Paul H. Brookes Publishing, 1993). A nice book for parents or<br />
professionals. It also has a wonderful chapter on Autism and sexuality. Out of<br />
print, but can be purchased used from Amazon.com.<br />
8
Socio-Sexual Knowledge and Attitude Test (SSKAT-R) Stimulus Picture Book. Joel<br />
R. Wish, Katherine F. McCombs & Barbara Edmonson. (Stoelting, Oakwood<br />
Centre: 620 Wheat Lane, Wood Dale Illinois, (630) 860-9700). An assessment<br />
tool used by professionals to test socio-sexual knowledge, and to determine<br />
whether a developmentally disabled individual is capable of informed consent<br />
regarding sexual activities.<br />
Taking Care of Myself: A Hygiene, Puberty, & Personal Curriculum for Young<br />
People With Autism. Mary Wrobel. (Future Horizons, 2003). Available for $24.95<br />
at www.futurehorizons-autism.com. A very good book with reproducible social<br />
stories and other interventions covering a variety of activities of daily living,<br />
puberty, body changes, and touching others. Some of the social stories are a<br />
little intolerant in their phrasing and attitude towards sexuality, but they can be<br />
adapted as appropriate.<br />
Videotapes<br />
Circles: Stop Abuse. Marklyn Champagne. James Stanfield Company<br />
www.stanfield.com<br />
Finger Tips: Teaching Women With Disabilities About Masturbation Through<br />
Understanding and Video. Dave Hingsburger & Sandra Haar. (Divers City Press,<br />
2000) An excellent (graphic) instructional video for female masturbation.<br />
www.diverse-city.org<br />
The GYN Exam Handbook: An Illustrated Guide to the Gynecological<br />
Examination. Maria Olivia Taylor. (James Stanfield Comp. 1991) Available for<br />
$299.99 at www.stanfield.com. Comes with diagrams, real-life photos and two<br />
video tapes, illustrating the process of the GYN exam for young women with<br />
developmental disabilities.<br />
Handmade Love: A Guide For Teaching about Male Masturbation. (Diverse City<br />
Press, 1995). An excellent (graphic) instructional video for male masturbation.<br />
www.diverse-city.org<br />
Janet’s Got Her Period. Judi Gray. An excellent (but expensive) video for young<br />
ladies with developmental disabilities that teaches menses and proper menstrual<br />
hygiene. (James Stanfield Company, 1991) www.stanfield.com<br />
Person to Person: A Video Program About the <strong>Sexuality</strong> <strong>Education</strong> of Persons<br />
With Developmental Disabilities. (Program Development Associates, 5620<br />
Business Ave Suite B, Cicero, NY 13039, 1800-543-2119). A decent video for<br />
9
parents and professionals that provides an introduction to sexuality and sexuality<br />
education for individuals with developmental disabilities. www.pdassoc.com<br />
Talking About Sex: A Guide for Families. Planned Parenthood: Federation of<br />
America, Inc., 810 7 th Ave. New York, NY, 10019. (212) 541-7800. An animated<br />
tape for both parents and children. It was not made for individuals with<br />
developmental disabilities, and might move too quickly for some children or<br />
adolescents.<br />
A note: all of the YAI tapes are excellent, but are intended to be used by the<br />
mental health professional who is teaching a sexuality group.<br />
YAI Relationship Series: Tape #1: Differences Between Strangers,<br />
Acquaintances, & Friends. Tape #2: Becoming Acquaintances or Friends. Tape:3<br />
Being a Friend. Perry Samowitz. (YAI, 460 West 34 th Street, New York, New<br />
York, (212) 563-7474)<br />
YAI Relationship Series: Tape #1: Starting a Special Relationship, Tape #2:<br />
Building a Relationship I Like, Tape #3: Having a Good Relationship. Perry<br />
Samowitz. (YAI, 460 West 34 th Street, New York, New York, (212) 563-7474)<br />
YAI <strong>Sexuality</strong> Series: Tape #1: Enjoying Your Sexual Life. Tape #2: Working Out<br />
Problems in Your Sexual Relationship, Tape #3: Sexual Acts That Are Against<br />
the Law. Perry Samowitz. (YAI, 460 West 34 th Street, New York, New York, (212)<br />
563-7474)<br />
Teen <strong>Sexuality</strong>. The Schlessinger Teen Health Series, Grades 7-12. A movie that<br />
was not made especially for adolescents with developmental disabilities, but uses<br />
understandable language to discuss relationships and how to deal with pressure<br />
to engage in sexual relationships.<br />
Web Cites & Other Resources<br />
A great web cite for pictures of any kind (e.g. real photos, drawings, icons, etc.):<br />
Google Image Search: www.google.com/imghp?hl=en&ie=UTF-8<br />
Long Island Gay and Lesbian Youth Inc.: 32 W. Main Street, Bay Shore, (631)<br />
665-2300. www.ligaly.com<br />
Parents and Friends of Lesbians and Gays (PFLAG) of Long Island. Plainview,<br />
(516) 938-8913 www.plflagli.org<br />
Talking Book Plus: Suffolk Cooperative Library System. 627 N. Sunrise Service<br />
Road, Bellport, NY 11713, (631) 286-1600-voice, (631) 286-4546-tty,<br />
10
www.litbl.org. A free library service for Suffolk County residents who have visual<br />
or physical disabilities that prevent them from being able to see, hold, or handle<br />
conventional print books. They provide books in Braille, with large print or on<br />
audiocassette, and have a variety of materials on human sexuality topics.<br />
Vibrating Pillows: www.sensory-processing-disorder.com/vibrating-pillows.html<br />
www.austin-safeplace.org: SafePlace, P.O. Box 19454, Austin TX, 78760, (512)<br />
356-1590. Has an extensive disability resource lending library (you can<br />
download a list from the internet) that is available to anyone, and free of charge.<br />
Patrons need only to play for shipping and handling charges.<br />
www.futurehorizons-autism.com: A cite devoted solely to the sale of publications<br />
and materials pertaining to autism spectrum disorders.<br />
www.groups.yahoo.com/group/AS-PEOPLE/ An adult list (over 18) for individuals<br />
with Asperger’s Syndrome or Autistic Spectrum Disorder that allow them to<br />
connect with one another. It is also open to partners, friends and family of those<br />
affected by the Autism Spectrum. They also talk about sexuality and intimacy<br />
issues as well.<br />
www.nichcy.org: An amazing web cite that is a conglomeration of information<br />
about sexuality and developmental disability. Many extensive bibliographies are<br />
posted on this cite as well.<br />
www.parentbookstore.com: A great resource for purchasing materials on<br />
parenting individuals with developmental disabilities.<br />
www.positive.org: A web site sponsored by the Coalition for Positive <strong>Sexuality</strong><br />
that may be helpful for adults with developmental disabilities who have an<br />
approximate 6-7 th grade reading level or higher. Click on the “just say yes” link,<br />
go to “contents” and hit the arrow key, and you will be given links to information<br />
on a variety of topics: condom usage, HIV/AIDS, birth control, pregnancy,<br />
respect for others, homosexuality, etc. Be advised that some explanations are<br />
written in slang language.<br />
www.scn.org/people/autistics/relationships.html. Offers a 13 page article<br />
“Autism, Dating and Socialization”, that appears to be written by an individual<br />
who is on the spectrum. Some interests perspectives, but be sure to take some<br />
of the advice with a grain of salt.<br />
www.sexualhealth.com: Enter “autism” in the search block. You will be provided<br />
with links to many advice pages written by Melissa Bee (“Hunnybee”), a clinician<br />
and educator who has been diagnosed with Autism, has 2 children with Autism<br />
11
Spectrum Disorders, and answers commonly encountered problems with<br />
excellent reality based suggestions.<br />
www.sextalk.org: A cite by Planed Parenthood of Tompkins County, Washington.<br />
Has general information about sexuality education and links to other relevant<br />
web cites.<br />
www.siecus.org: cite for <strong>Sexuality</strong> Information and <strong>Education</strong> Council of the<br />
Untied States or www.siecus.org/pubs/biblio/bibs0009.html (for a extensive<br />
bibliography on sexuality and disability resource list)<br />
Dolls and Other Visual Aids<br />
Jackson Models. <strong>Education</strong>al Pelvic Models. Jim Jackson & Co., 30 Buena Vista<br />
Park. Cambridge, MA, 02140, (617) 864-9063 or<br />
www.jimjacksonanatomymodels.com<br />
Shadow Buddies: (888)283-3431 or www.shadowbuddies.org: These are not<br />
anatomically correct, but are designed to be dolls “just like me” (they have<br />
disabilities) for developmentally disabled children. Dolls with many disabilities are<br />
available.<br />
Teach-A-Bodies. P.O. Box 416, Grapevine, Texas, 76099-0416, (888) 228-1314<br />
or (817) 416-9139, fax (817) 416-9139. www.teach-a-bodies.com. Beautifully<br />
done anatomically correct dolls that are available in all ages and ethnicities. The<br />
dolls come with underwear and clothing. A family of four dolls (2 adults and 2<br />
children) sells for $298.00 plus shipping and handling. Sometimes, slightly<br />
imperfect dolls are available at a discounted rate. Anatomically correct paper<br />
dolls and puppets are also available for a significantly lower charge.<br />
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