Cystinosis Newsletter - Cystinosis Research Network
Cystinosis Newsletter - Cystinosis Research Network
Cystinosis Newsletter - Cystinosis Research Network
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Page 29 The <strong>Cystinosis</strong> <strong>Research</strong> <strong>Network</strong> Fall/Winter 2006<br />
Carnival for a Cure in honor of The LeBeaus<br />
By Brittney LeBeau<br />
After many, many long months of planning our first fundraiser, Carnival for a Cure occurred and with great<br />
success. Held at Community Christian Church (CCC) in Naperville on Friday October 6th, we had over 350<br />
people attend and raised over $18,000. There was a moon jump, slide, dance/dance revolution, food,<br />
games, face painting, pumpkin painting and much more for the youngest attendees as well as a silent auction,<br />
split the pot raffle and bake sale for the adults. The biggest success of the night was by far the Silent<br />
auction which brought in almost $7,000. Many items bid on were two pairs of Notre Dame tickets, Chicago<br />
Bears tickets, custom made furniture, jewelry, several vacation giveaways and many more.<br />
We have many people to thank and who were apart of making this such a successful year. From local businesses<br />
to CCC, CRN, our volunteers and our Community. The Naperville Sun, our local newspaper, played<br />
a key role in advertising the Carnival for a Cure and getting the word out about <strong>Cystinosis</strong> and CRN. Other<br />
ways we got the word out were hanging posters in our schools, church, doctor's office, sending emails and<br />
simply word of mouth.<br />
But none of this would have been possible if it weren't for our dearest friend Amber Stefanski! She guided<br />
the way and encouraged us to do this fundraiser from beginning to end. An Event Planner by vocation, she<br />
made many sacrifices with her time and money to make this come together. What a gift and blessing she<br />
has been to our family. We met her at church over 6 years ago when we were pregnant with Alexis, our first<br />
child. She carried us through our struggle to get a diagnosis for Alexis and eventually Evan. We had a<br />
shoulder to cry on, vent to, laugh with, and simply be real toward. No amount of vomitting, medications or<br />
hardships kept her from fulfilling her God-given purpose. A true Friend!<br />
Alexis and Evan LeBeau award the Pumpkin Painting winner<br />
Brittney, Evan, and Alexis LeBeau with their cousin,<br />
Katy Crotty<br />
Left: Games, amusements, and prizes will soon be<br />
swarmed with guests at the Carnival for a Cure
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