Cystinosis Newsletter - Cystinosis Research Network
Cystinosis Newsletter - Cystinosis Research Network
Cystinosis Newsletter - Cystinosis Research Network
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Page 37 The <strong>Cystinosis</strong> <strong>Research</strong> <strong>Network</strong> Fall/Winter 2006<br />
Gifts and Donations<br />
The <strong>Cystinosis</strong> <strong>Research</strong> <strong>Network</strong> expresses its gratitude for donations, memorial gifts, and “in your honor” gifts. Thanks to all for<br />
giving a gift that continues to give. With the financial support of members and friends, the <strong>Cystinosis</strong> <strong>Research</strong> <strong>Network</strong> continues<br />
our mission of supporting cystinosis research, cystinosis education programs, and providing family support. We wish to thank the<br />
following individuals and groups whose donations were received between May 23, 2006 and October 26, 2006.<br />
Leadership Circle ($5,000 - $15,000)<br />
Sigma Tau Pharmaceuticals<br />
Ambassadors ($2,500 - $4,999)<br />
A. Joseph DeNucci Golf Tournament in<br />
honor of Shea Hammond<br />
Dahn Maier through United Way of New<br />
York City in honor of Christian Morales<br />
Velyna Morales through United Way of<br />
New York City in honor of Christian<br />
Morales<br />
Amy Shelton McNutt Charitable Trust in<br />
honor of John Ben and Ava Shepperd<br />
Brandy and Jeremy Stanford & Friends<br />
Golf Tournament in honor of Neveah<br />
Stanford<br />
Tamarack Family Fun Day Cash Donations<br />
in honor of Jack Greeley<br />
Sharen Jester Turney through United<br />
Way of New York City in honor of Christian<br />
Morales<br />
Benefactors ($1,000 - $2,499)<br />
Larry and Pat LeBeau-Carnival for a<br />
Cure in honor of Alexis and Evan Le-<br />
Beau<br />
Mark and Denice Flerchinger in honor of<br />
Tina Flerchinger<br />
Ina Gardener Fundraiser in Honor of<br />
Victor Gardener, Jr.<br />
Madison Feis Committee - Trinity<br />
Booster Club in Honor of Kellen Binger<br />
David Pullen in honor of Mitchell Smith<br />
Sam's Club in honor of Jack Greeley<br />
Shirley Schindler in honor of Heidi<br />
Hughes<br />
Sponsors ($500 – $999)<br />
Baystate Properties Real Estate – De-<br />
Nucci Golf Tournament -in honor of<br />
Shea Hammond<br />
William and Cicily Brogan Fund in honor<br />
of Jack Greeley<br />
Jamie Goldberg in honor of Jack<br />
Greeley<br />
David, Diane, and Ketherine Hankle in<br />
honor of Garry, Carol, Jennell and Heidi<br />
Hughes<br />
Susanne Immell in honor of Jack<br />
Greeley<br />
Jim and Beth Konieczny in honor of<br />
Jack Greeley<br />
John and Carrie Larson- Carnival for a<br />
Cure in honor of Alexis and Evan Le-<br />
Beau<br />
Mark Maiocca - DeNucci Golf Tournament<br />
-in honor of Shea Hammond<br />
Sally and Gary Messner in honor of<br />
Kellen Binger<br />
Michael Morchower, Attorney in honor<br />
of Alex Weaver<br />
Charles and Donna Morrill in honor of<br />
Jill Morrill’s birthday and Megan Morrill<br />
Maggie Nowicki- Carnival for a Cure in<br />
honor of Alexis and Evan LeBeau<br />
John and Stacey Paolello- Carnival for<br />
a Cure in honor of Alexis and Evan<br />
LeBeau<br />
Ernest Sacco - DeNucci Golf Tournament<br />
-in honor of Shea Hammond<br />
Molly Shapiro in honor of Jack Greeley<br />
Ben and Samantha Sommerness- Carnival<br />
for a Cure in honor of Alexis and<br />
Evan LeBeau<br />
Rudy and Amber Stefanski- Carnival<br />
for a Cure in honor of Alexis and Evan<br />
LeBeau<br />
David and Theresa Wilson- Carnival<br />
for a Cure in honor of Alexis and Evan<br />
LeBeau<br />
Patrons ($250 – 499)<br />
Sam Bloodgood in honor of Jack<br />
Greeley<br />
Christopher Burke LLC, John and<br />
Marianne Wills- Carnival for a Cure in<br />
honor of Alexis and Evan LeBeau<br />
Yvonne and Wallace Dvorak in honor<br />
of Jack Greeley<br />
Michelle Crotty- Carnival for a Cure in<br />
honor of Alexis and Evan LeBeau<br />
Darci Drury- Carnival for a Cure in<br />
honor of Alexis and Evan LeBeau<br />
Grover Consulting LTD in honor of<br />
Jack Greeley<br />
Gretchen Funck in honor of Jack<br />
Greeley<br />
Nick and Julie Giannasi- Carnival for a<br />
Cure in honor of Alexis and Evan Le-<br />
Beau<br />
Kathy Gordon in honor of Jack Greeley<br />
David and Joy Holecek in honor of<br />
Jack Greeley<br />
Cheryl -Anne and Daniel Howell -<br />
DeNucci Golf Tournament -in honor<br />
of Shea Hammond<br />
Michelle Kaplan in honor of Jack<br />
Greeley<br />
Les and Connie Larson- Carnival for<br />
a Cure in honor of Alexis and Evan<br />
LeBeau<br />
Linda and Michael Leone - DeNucci<br />
Golf Tournament - in honor of Shea<br />
Hammond<br />
Mark and Mindy Leonard in honor of<br />
Jack Greeley<br />
Daniel and Leigh Martin- Carnival for<br />
a Cure in honor of Alexis and Evan<br />
LeBeau<br />
Mike and Rae Mattson- Carnival for<br />
a Cure in honor of Alexis and Evan<br />
LeBeau<br />
Eric and Erin Melby- Carnival for a<br />
Cure in honor of Alexis and Evan<br />
LeBeau<br />
Rosalind Moore in honor of Victor<br />
Gardener, Jr.<br />
Michael and Julie Muth in honor of<br />
Jack Greeley<br />
Panson Electrical Services<br />
John and Susan Ruddy- Carnival for<br />
a Cure in honor of Alexis and Evan<br />
LeBeau<br />
Dan and Theresa Schindler- Carnival<br />
for a Cure in honor of Alexis and<br />
Evan LeBeau<br />
Jerry Smith- Carnival for a Cure in<br />
honor of Alexis and Evan LeBeau<br />
Michael and Jennifer Qualley in<br />
honor of Jack Greeley<br />
Paul and Laura Russo in honor of<br />
Jack Greeley<br />
Elva Smith in commemoration of the<br />
wedding of Antonya Jandacek and<br />
Ryan Sanders and in honor of<br />
Mitchell Smith<br />
Thomas Terrio - DeNucci Golf Tournament<br />
- in honor of Shea Hammond<br />
John and Pucky Zimmerman- Carnival<br />
for a Cure in honor of Alexis and<br />
Evan LeBeau