Clinical Trials Brochure - Cystic Fibrosis Foundation

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Join the searCh For new treatMents and a Potential Cure Join Today, there are more opportunities than ever before to join clinical trials that test potential new antibiotics, enzymes and other drugs that could improve the lives of people with CF. Because CF affects a relatively small group of people, those with CF cannot simply count on “someone else” signing up to test much-needed potential CF drugs. We hope that everyone will consider taking part in clinical trials to help find new and better treatments for CF. After you’ve learned more about CF clinical trials, you will work with the team at your CF care center to explore trials you might consider joining. Not every trial will be right for you. Your team will help you find out if you or your child is eligible to participate in a specific trial. The team will also explain the potential benefits and risks of each clinical trial and what you will need to do to join a trial. Joining a CliniCal trial is a Personal deCision. your rights as a PartiCiPant will be resPeCted. • Taking part in CF research is always your choice. Choosing not to participate will not affect the routine care you receive at your CF care center. • You will be given full details about the possible benefits and risks of joining any CF clinical trial. You can ask as many questions as you want before you make a decision. • You must give your informed consent before enrolling in a trial. • If you are a parent, you must give your consent for your child to participate. • Your identity and medical information will be kept private, in keeping with the law. • You can stop taking part in a clinical trial at any time, for any reason. 6 CystiC <strong>Fibrosis</strong> <strong>Foundation</strong>
“I’ve been involved in CF clinical trials literally from the week I was diagnosed as a child. Since turning 18, it’s been my decision whether to join trials. As I see it, ‘If not me, who?’” brian, 22, College student and CliniCal trials volunteer
Page 1 and 2: I am the key to finding new treatme
Page 3 and 4: dear Friends, For more than 50 year
Page 5 and 6: “Participating in clinical trials
Page 7: ask your CF Care Center teaM about
Page 11 and 12: to learn about PartiCiPating in a C

Clinical Trials Brochure - Cystic Fibrosis Foundation

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