Dear Friends - National Alopecia Areata Foundation
Dear Friends - National Alopecia Areata Foundation
Dear Friends - National Alopecia Areata Foundation
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Public Awareness Efforts<br />
Boundin’ Private Screening<br />
Raises Funds<br />
NAAF’s primary fundraiser for<br />
2004 was a private screening of<br />
the animated short film Boundin’.<br />
Working closely with Pixar Animation<br />
Studios, NAAF was able<br />
to host a benefit on October 16<br />
in San Francisco. The event attracted<br />
all ages and raised about<br />
$22,000.<br />
The Oscar-nominated Boundin’,<br />
currently available on DVD<br />
alongside the feature-length animated<br />
film The Incredibles, tells<br />
the tale of a lamb whose pride<br />
suffers when his lustrous wool<br />
coat is sheared for the first time. It<br />
takes a wise jackalope—a mythical<br />
horn-adorned rabbit—to teach<br />
the forlorn lamb that, wooly or<br />
not, it’s what’s inside that counts.<br />
This message dovetails nicely<br />
with NAAF’s mission to improve<br />
the self-esteem and the public<br />
acceptance of individuals with<br />
alopecia areata, and we were<br />
therefore very excited to have the<br />
opportunity to work with Pixar on<br />
this film’s early introduction.<br />
Boundin’ Release Spurs<br />
Community Awareness Events<br />
Boundin’ and The Incredibles<br />
were released nationwide on November<br />
5, 2004, and many NAAF<br />
support group members and their<br />
families and friends attended their<br />
local premieres to raise awareness.<br />
Below are some of their<br />
experiences.<br />
Chico, California, Family<br />
The Nilsson family from Chico,<br />
California, invited their friends<br />
and family to attend the premiere<br />
of The Incredibles and Boundin’.<br />
Their group totaled 35 people at<br />
the theater, and they all applauded<br />
generously at the conclusion of<br />
the short film. To raise awareness<br />
of alopecia areata, the Nilsson<br />
family wore the “Free to be me”<br />
t-shirts that they had received at<br />
the 2004 NAAF Conference.<br />
Northeast Ohio Support Group<br />
The Northeast Ohio Support<br />
Group members who attended<br />
the opening of Boundin’ and The<br />
Incredibles included Emily Tetzloff<br />
and Stephanie Schroth, both age<br />
6; their moms, Laura and Tammy;<br />
and Cindy Molnar. Poignantly put<br />
in Emily’s words, “It made me sad,<br />
because his (the little lamb’s)<br />
friends made fun of him. It made<br />
me happy when the jackalope<br />
was his friend even though he<br />
didn’t have any hair—like me and<br />
how my friends are.”<br />
Southeast Michigan<br />
Support Group<br />
Twelve members of the Southeast<br />
Michigan Support Group<br />
gathered on November 5 at the<br />
Birmingham Palladium 12 in<br />
Birmingham, Michigan, for the<br />
premieres of Boundin’ and The Incredibles.<br />
The attendees included<br />
Troy Dunbar, age 4, and his mom,<br />
Deborah Dunbar, as well as Patrick<br />
Olmstead, age 6, and his parents,<br />
Paul and Laurie Olmstead. They all<br />
agreed that the short film’s lesson<br />
was an important one. Of course,<br />
for the youngest kids, Boundin’<br />
was just a cute story!<br />
Harrisburg/Hershey,<br />
Pennsylvania Support Group<br />
On November 5, Harrisburg/<br />
Hershey (PA) Support Group<br />
Leader Dee Connelly and group<br />
member Doug Francis drove to<br />
the AMC Theater in Camp Hill to<br />
attend the film’s premiere. “Two<br />
thumbs up!” was the reaction from<br />
these two intrepid movie reviewers.<br />
The short film touched a full<br />
range of emotions within Dee;<br />
she said the lamb’s experience<br />
mirrored her own experience with<br />
alopecia areata. As the little lamb<br />
adapted to his situation and grew<br />
emotionally stronger, Dee could<br />
relate to him, and she noted that<br />
the audience was relating to him<br />
also. By the end of the film, the<br />
lamb is once again boundin’ with<br />
confidence, and Dee could sense<br />
that the audience had learned a<br />
valuable lesson along with the<br />
star of the show.<br />
4 NATIONAL ALOPECIA AREATA FOUNDATION ANNUAL REPORT 2004