Young Adult Carers in the UK - The Princess Royal Trust for Carers
Young Adult Carers in the UK - The Princess Royal Trust for Carers
Young Adult Carers in the UK - The Princess Royal Trust for Carers
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Chapter 4 - Manag<strong>in</strong>g car<strong>in</strong>g tasks and responsibilities<br />
<strong>Young</strong> carers aged 16-17 years<br />
�e chang<strong>in</strong>g nature of car<strong>in</strong>g<br />
Many young carers <strong>in</strong> our sample have cared throughout <strong>the</strong>ir childhood, often start<strong>in</strong>g<br />
to care at an early age: “Car<strong>in</strong>g is <strong>the</strong> only th<strong>in</strong>g I know and that’s what I’ve been brought<br />
up with”. Our focus group participants reported that <strong>the</strong>y often found <strong>the</strong>ir care work<br />
both physically demand<strong>in</strong>g (lead<strong>in</strong>g <strong>in</strong> some cases to <strong>in</strong>juries), and emotionally dra<strong>in</strong><strong>in</strong>g:<br />
“It sometimes gets difficult <strong>for</strong> me because like when I’m out with me mum do<strong>in</strong>g heavy<br />
lift<strong>in</strong>g and stuff like that, <strong>the</strong>re’s been a lot of times when I’ve gone <strong>in</strong> college and I’ve just<br />
been, I’m <strong>in</strong> so much pa<strong>in</strong> like I’ve hurt me back”.<br />
“Emotionally I f<strong>in</strong>d it really hard, because like when like mum’s <strong>in</strong> and out of hospital and<br />
it’s like really hard to see her like <strong>in</strong> that situation while she’s feel<strong>in</strong>g down and sometimes<br />
when she’s got tubes and th<strong>in</strong>gs on her it’s really hard, and <strong>the</strong>n you have to go home and<br />
look after your sister and that and <strong>the</strong>n you’ve got to try and push that aside, because my<br />
sister has learn<strong>in</strong>g difficulties you’ve got to try and not take it out on her, and she also gets<br />
upset when my mum’s <strong>in</strong> and out of hospital, so it’s really hard emotionally”.<br />
In cases where car<strong>in</strong>g has become ‘<strong>in</strong>stitutionalised’ with<strong>in</strong> <strong>the</strong> family, young carers often<br />
place <strong>the</strong>ir own needs second to those of <strong>the</strong> person <strong>the</strong>y provide care <strong>for</strong>: “Your family<br />
comes first and <strong>the</strong>n school or college, well with my life anyway, and <strong>the</strong>n you’re right<br />
at <strong>the</strong> bottom, you’re k<strong>in</strong>d of <strong>the</strong> last th<strong>in</strong>g you have to th<strong>in</strong>k about”. Large scale research<br />
(Dearden and Becker, 2004) found that as young carers get older <strong>the</strong>y often take on more<br />
car<strong>in</strong>g roles and responsibilities which are more personal/<strong>in</strong>timate care-related as well as<br />
responsibilities <strong>for</strong> household management. Many of <strong>the</strong> project workers we surveyed<br />
confirmed that <strong>the</strong>re was “Explicit or implicit pressure [on 16-17 year old carers] to devote<br />
as much time and energy as possible to help<strong>in</strong>g at home”. It is not surpris<strong>in</strong>g, <strong>the</strong>re<strong>for</strong>e,<br />
that some young carers <strong>in</strong> our focus groups also acknowledged that <strong>the</strong>ir car<strong>in</strong>g roles<br />
had <strong>in</strong>creased around <strong>the</strong> age of 16, partly because <strong>the</strong>ir parent(s) had greater<br />
expectations of <strong>the</strong>m and what <strong>the</strong>y could and should do <strong>in</strong> <strong>the</strong> home:<br />
“she relies on me to do more th<strong>in</strong>gs to help her with everyth<strong>in</strong>g… S<strong>in</strong>ce I turned 16,<br />
my mum’s relied on me so much s<strong>in</strong>ce I was like seven… she just expects me to be able<br />
to do th<strong>in</strong>gs because I’m <strong>in</strong> college and I have like, I f<strong>in</strong>ish like 20 to 1, and, or I have<br />
like free periods <strong>in</strong> <strong>the</strong> middle and she expects me to come home and do stuff”.<br />
“now I’ve got a lot more stuff <strong>for</strong> me, with college and everyth<strong>in</strong>g, so I actually have less<br />
time, and my mum’s expect<strong>in</strong>g me to do more because I’m older, but I don’t have as<br />
much time as I did when I was younger”.<br />
As young carers get older, and as <strong>the</strong> person <strong>the</strong>y support gets older, some young carers<br />
have to undertake more ‘gendered car<strong>in</strong>g roles’ which <strong>in</strong> <strong>the</strong> past might have been<br />
conducted by parents, o<strong>the</strong>r adults or older sibl<strong>in</strong>gs:<br />
“I have an older bro<strong>the</strong>r but th<strong>in</strong>gs like my mum has to do with my little sister because she’s<br />
11 now, it’s k<strong>in</strong>d of like <strong>the</strong>re’s th<strong>in</strong>gs basically that boys cannot do, because she’s got to<br />
that k<strong>in</strong>d of age it’s th<strong>in</strong>gs like nappy chang<strong>in</strong>g or gett<strong>in</strong>g dressed, or gett<strong>in</strong>g showers and<br />
th<strong>in</strong>gs, th<strong>in</strong>gs he can’t k<strong>in</strong>d of do. And my step-dad has got a k<strong>in</strong>d of fear about do<strong>in</strong>g that<br />
too because of her age. So <strong>the</strong>re’s only me and my mum to do everyth<strong>in</strong>g like that <strong>for</strong> her.<br />
We can’t really leave it <strong>for</strong> any of <strong>the</strong> boys to do”.<br />
20