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D EFIN IN G M O M EN TS - Barnes-Jewish Hospital

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too young to settle<br />

for a life of limitations<br />

Rory McCue’s life changed when he was 20.<br />

In 2003, McCue was on the precipice of launching<br />

his adult life. He was healthy, athletic and a little<br />

more than a year away from graduating from college.<br />

All of that changed in a single evening during a fire<br />

in his fraternity house.<br />

Suffering from extreme smoke inhalation, he was<br />

in a hospital in Springfield, Ill., for eight weeks, five<br />

of them on a ventilator. Even after he was released,<br />

he never fully recovered. He experienced shortness<br />

of breath constantly, and because of recurrent<br />

infections, both of his lungs were scarred.<br />

“In the blink of an eye, I went from being on top of the<br />

world in so many ways, to living the life of a frail shut-in<br />

wearing an oxygen mask 24 hours a day,” says McCue.<br />

McCue admits he was afraid of having to live the rest<br />

of his life this way. But he was even more afraid of the<br />

alternative–a lung transplant. His local physician began<br />

encouraging him to contact the Washington University<br />

and <strong>Barnes</strong>-<strong>Jewish</strong> Transplant Center. McCue did<br />

visit and was even evaluated in fall 2004, but it was<br />

2007 before he agreed to have his name placed on<br />

the transplant list.<br />

Although McCue was often sick and had a few scares<br />

and hospitalizations, he took himself off the transplant<br />

list in 2009. “I think I was still reeling from the whole<br />

accident and my heart just wasn’t in it.”<br />

Seven years passed since the fire and all of his friends<br />

had moved on. Wanda Panus, RN, his pre-transplant<br />

coordinator at <strong>Barnes</strong>-<strong>Jewish</strong>, and the rest of the<br />

transplant team knew the transplant was right for McCue<br />

Rory McCue<br />

but they also knew it was necessary for the patient<br />

to make that decision. “Understandably, Rory was<br />

afraid to go through with the transplant for fear of the<br />

unknown,” says Panus.<br />

With so much working against him, McCue said it came<br />

down to a quality-of-life issue. “The hope of having<br />

a better life outweighed the fear and uncertainty<br />

of a transplant. I was ready to see what the world had<br />

in store for me and I was going to make it or fail with<br />

that decision,” says McCue.<br />

In August 2010, McCue decided it was time to be<br />

reactivated on the transplant list. Eleven months later,<br />

he got the call from <strong>Barnes</strong>-<strong>Jewish</strong> that it was time for<br />

the transplant. “It’s funny because in some ways that<br />

day is so vivid and clear in my mind and in other ways,<br />

it is just a blur,” he says.<br />

Rory McCue’s life changed again when he was 28.<br />

On July 14, 2011, McCue received two lungs. McCue’s<br />

right lung was not as bad as the left but physicians were<br />

concerned the right lung would infect the new one if both<br />

weren’t replaced.<br />

In the blink of an eye, McCue went from a life of no hope<br />

and desperation to one with unlimited possibilities.<br />

“It has been a complete 180,” he says. Before the transplant,<br />

McCue admits he avoided stairs like the plague. In April<br />

2012, he was hiking in the Rocky Mountains.<br />

McCue is extremely grateful to the entire transplant<br />

team at <strong>Barnes</strong>-<strong>Jewish</strong> as well as the nurses on unit<br />

7100, thoracic surgery, who cared for him after the<br />

transplant. “Most importantly,” he says, “I’m thankful<br />

and appreciate the decision that a family had to make<br />

that night. It has given me all that I have now.”<br />

4 BARNES-JEWISH HOSPITAL • 2011 Annual Report<br />

D<strong>EF<strong>IN</strong></strong><strong>IN</strong>G MOM<strong>EN</strong><strong>TS</strong><br />

5<br />

TR ANS PL ANT

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