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SELPA CAC Winter 2012 - Hemet Unified School District

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Riverside County Special Education Local Plan Area<br />

(<strong>SELPA</strong>) Community Advisory Committee (<strong>CAC</strong>)<br />

<strong>Winter</strong> <strong>2012</strong>—2013 Newsletter<br />

DESCRIPTION OF <strong>CAC</strong><br />

The Community Advisory Committee (<strong>CAC</strong>) is a<br />

team of parents of children enrolled in special<br />

education and individuals with a personal or<br />

professional interest in securing appropriate<br />

services for students with disabilities. The <strong>CAC</strong><br />

membership represents each of the 22 Riverside<br />

County Special Education Local Plan Areas<br />

(<strong>SELPA</strong>) member Local Education Agencies<br />

(LEAs), including the Riverside County Office of<br />

Education. The <strong>CAC</strong> works collaboratively with<br />

the <strong>SELPA</strong> and districts in the review and<br />

development of the Local Plan. <strong>CAC</strong> members<br />

support parents’ efforts to meet the special needs<br />

of each and every child. We encourage you to ask<br />

questions and seek the information you need to<br />

make wise decisions about your child’s education<br />

and future life successes.<br />

GOAL AND VISION<br />

The broad goal of the <strong>CAC</strong> is to involve<br />

interested parents, students, teachers, and<br />

education specialists in advising the County and<br />

<strong>District</strong> Boards of Education and their<br />

administrative and professional staff of the<br />

unique requirements of students with<br />

exceptional needs, and to assist the <strong>SELPA</strong><br />

administration in furthering and improving the<br />

functioning of the Riverside County <strong>SELPA</strong>.<br />

Our vision is to encourage parents to actively<br />

participate and become knowledgeable,<br />

empowered, and effective partners in the<br />

development and implementation of learning<br />

experiences for students with exceptional needs.<br />

http://www.rcselpa.org/Home/<strong>CAC</strong><br />

The Holiday is a time together, feasting, and gratitude. Keep this in<br />

mind when a child at your gathering acts out or melts down because<br />

his routine is upset, his anxieties are triggered by large groups, his<br />

senses are affronted by smells and tastes and sounds that are<br />

unusual to him, and is overwhelmed by the expectation to act a<br />

certain way because company is in town. Don’t glare and stare and<br />

say, “if he lived with me, he’d know how to behave.” Realize that<br />

some children have very real but invisible special needs, like autism,<br />

Asperger's PDD, ADHD, FASD, anxiety, OCD and mood disorders.<br />

Know that parents of kids with these brain-based disabilities work<br />

very hard to help their kids succeed in a world that’s always<br />

difficult and sometime hostile. And in the spirit of the holiday,<br />

while you are busy letting go of judgment and accepting our<br />

children for their differences, be grateful that your brain is flexible<br />

and adaptable. Be thankful that you can control your action. Many<br />

times they cannot.<br />

Presidents Message<br />

<strong>Winter</strong> is here! And with it comes exciting holidays, family gatherings and parties<br />

with friends. As we are busy preparing for all of these, please take time out to<br />

spend with our family members who don’t understand these times that disrupt<br />

their structured schedules. As you take time out, be sure to give THANKS for all<br />

those you LOVE and who LOVE you. This is a season to love one another in spite<br />

of our busy schedules.<br />

The year 2013 is almost upon us and we are all looking forward to interesting and<br />

helpful training in January and March. We are expecting our March and April<br />

workshops to be of great asset to all who attend. Thank you Alvord and Beaumont<br />

for hosting by providing us with a place to meet.<br />

I would also like to take this time to express my Thanks to all <strong>CAC</strong> members,<br />

<strong>SELPA</strong> staff, and Special Education Administration for their time and efforts. I<br />

look forward to continued success while working with each of you!<br />

Send <strong>2012</strong> out with love and joy while expecting 2013 to be even better!<br />

Jessie<br />

<strong>2012</strong>—2013 <strong>CAC</strong> Calendar of Events—Business Meetings (Tuesday)<br />

6:00 p.m. Riverside County <strong>SELPA</strong> Office<br />

CVUSD, DSUSD & PSUSD (via teleconference)<br />

1-15-13 “Winning” Strategies (ADR)”<br />

3-19-13 “Finding Ability in Disability”<br />

5-14-13 “Recognition Event & Elections”<br />

Parent Training (Saturday)<br />

3-2-13 (Alvord USD, Villegas MS) Panel Discussion: “Understanding<br />

Neurological Disorders in Children”<br />

April, 2013—Secondary Transition Workshop (day TBD) Beaumont High <strong>School</strong>


The holiday season can be a time of great beauty & joy spending time with<br />

family & friends. For Individuals & families with special needs, it can also be a<br />

time of great frustrations & bad behavior when routines are rearranged and<br />

situations are uncomfortable for everyone. In the interest of helping to make<br />

this season more joyful for our children, our <strong>CAC</strong> Members have given TIPS<br />

for what has worked for them. Our wish is for a Happy & Peaceful Holiday<br />

Season for all.<br />

�Structure & routine are important to your children; try to keep in<br />

place as much as you can. During this time try to keep most of the<br />

routine in your child’s day.<br />

�Decorate & show that you are celebrating something special.<br />

�Play games, music & sing & dance.<br />

�If visiting w/family, or family visiting in your home, give your child a<br />

safe place to escape to & permission to do so if he/she needs to.<br />

�Allow extra time for all activities & events.<br />

�Include everyone in all activities.<br />

�Try to remain calm. . . . Remember give & take.<br />

�Children love music—have music available for the child.<br />

�Behavior isn’t personal, try to keep your cool & your sense of humor.<br />

�Take shifts on the holiday to give everyone a break.<br />

�Practice skills your child needs ahead of time to work on to negotiate<br />

the holidays.<br />

�Use words/hand signals to communicate with your child & them with<br />

you.<br />

�Holidays can be stressful as well as joyful, remember if your child’s<br />

behavior isn’t perfect, understand you are both doing the best you<br />

can.<br />

�HAVE FUN!!!!<br />

Coping Strategies & Community<br />

Resources for Parents<br />

Dr. Tasha Arneson<br />

The Invisible Disability<br />

�There is not a lot of rhyme or reason as to who gets what child. Kids<br />

with special needs come to families across the board. I have learned<br />

more from parents than I have from my education, titles or licenses<br />

and admire the strength, perseveration, patience and advocacy it<br />

takes to be a parent of a challenging child with an ―invisible disability‖.<br />

Folks tend to be more understanding and accommodating of<br />

disabilities that can be physically seen. Parents of kids who struggle<br />

with intense social/emotional difficulties often feel blamed for their<br />

children’s behavior and have to do a lot of advocating to get the accommodations<br />

needed.<br />

�Challenging kids are like Mercedes Benzes with the brakes of a<br />

Model T. They are often blessed with abundant energy, great potential,<br />

strong intelligence, and curious and creative natures, but they<br />

have limited internal patterning and limited tools and skills to manage<br />

their incredible flow of energy, emotion and thought. They are children<br />

with a disorder of self-control.<br />

�To characterize the quality of being challenging is to describe children<br />

HAVE who FUN are struggling frequently to control or maintain appropriate<br />

behavior.<br />

. . . Coping Strategies cont.<br />

�These children require much greater effort, focus, inner-guidance and<br />

self-control than the average child to achieve and maintain success.<br />

Just as you have to work harder to meet the real demands of working<br />

with such a child, an intense child has to work much harder than the<br />

average child to appropriately control and channel his intensity.<br />

�Challenging children struggle with lack of inhibition. There are times<br />

when they cannot conjure up the inner control required to override<br />

their impulses to do the inappropriate . . . often in ways that place<br />

them in extreme conflict with their environment or the people close to<br />

them even when they are trying to please or succeed. Without tools<br />

and structure to deal with their intensity, these children are prone to<br />

failure in most conventional systems.<br />

Holidays with Challenging Kids<br />

�Most think about relaxing over the holidays but you can’t with intense<br />

kids. We see more hospitalizations during breaks with the lack of<br />

structure. It is important to continue to advocate for your kids during<br />

the holidays. They still have a disability, need your advocacy and<br />

accommodations to function successfully: Share responsibility with<br />

others; instead of inviting folks over, go to their house so you can<br />

leave if things get too overwhelming; praise your children’s efforts<br />

that often go unnoticed as they fall short of other’s expectations; don’t<br />

forget to see the invisible disability during break, your child is counting<br />

on you to be the their shield from others who don’t understand.<br />

Supports and Services<br />

�Assure you have the support you need. You may want to contact<br />

―Parent Partners‖ [(888) 358-3622] to talk with parents of children<br />

with disabilities hired by Riverside County Department of Mental<br />

Health who know what you are going through, have learned effective<br />

coping skills, and support others via support groups with parents.<br />

�Ross Green’s Collaborative Problem Solving (CPS) approach (see<br />

www.livesinthebalance.org) is highly effective with kids often described<br />

as challenging, angry, defiant, and oppositional. This website<br />

contains a ton of resources to help you learn about the strategies and<br />

support you need to help these kids in ways that are compassionate<br />

and effective.<br />

�Be a good consumer – ask for school personnel to identify your<br />

child’s ―lagging skill set‖, which most parents know, and to provide<br />

targeted intervention. <strong>School</strong> districts are now implementing mental<br />

health intervention programs, some particularly designed for students<br />

with intense social, emotional and/or behavioral needs. To learn<br />

more about what is available in your area, contact your IEP team<br />

members. The district can also provide linkages to community based<br />

services that may be free to the family, particularly those that are<br />

Medi-Cal eligible. Our goal is to have a continuum of supports to<br />

serve our students in the least restrictive environment. We can meet<br />

this goal by working together as partners on behalf of our kids!<br />

Happy Holidays


Parent Resources<br />

� Coachella Valley Autism<br />

Society America<br />

Contact ASA Family Resource<br />

Center at (760) 772-1000<br />

www.cvasa.org<br />

� Inland Empire Autism<br />

Society of America (ASA)<br />

Contact (951) 220-6922 or<br />

www.ieautism.com<br />

� Parents of Adults with Autism<br />

Contact Jacquelyn Speaker<br />

(909) 590-9668<br />

� Teen/Young Adult<br />

Contact Kelly Londenberg (951) 678-8666 or<br />

Autismtoday@aol.com<br />

� Our Nicholas Foundation<br />

Contact (951) 303-8732 or<br />

TeamOF@gmail.com<br />

� Team of Advocates for Special Kids (TASK)<br />

Contact Information & Resource Center (714) 533-TASK<br />

(8275) or (866) 828-8275 (CA only)<br />

� Fiesta Educativa, Inc. Contact Alma Rodriguez<br />

(951) 567-4943<br />

� Down Syndrome Association of <strong>Hemet</strong><br />

Contact Adele Cox (951) 852-1054 or<br />

dsahemet@ymail.com<br />

� Down Syndrome Association Riverside County West<br />

http://dsarcw.org/links.htm<br />

� Blindness Support Services (BSS)<br />

http://blindnesssupport.com/<br />

� Deaf Education & Families Project<br />

www.csun.edu/deafproject<br />

� Parent Links<br />

www.myparentlinks.com<br />

� “Through Your Child’s Eyes” American Sign Language<br />

www.throughyourchildseyes.com<br />

� California Department of Education Deaf & Hard<br />

of Hearing<br />

www.cde.ca.gov/sp/ss/dh<br />

� American Society for Deaf Children<br />

www.handsandvoices.org<br />

� Office of Deaf Access<br />

www.dss.cahwnet.gov/cdssweb<br />

Resources, cont.<br />

� National Association of the Deaf<br />

www.nad.org<br />

� California <strong>School</strong> for the Deaf—<br />

Riverside<br />

www.csdr-cde.ca.gov<br />

� California Department of Education<br />

www.cde.ca.gov<br />

� Epilepsy Center<br />

www.theepilepsycenter.org<br />

� Inland Regional Center<br />

www.inlandrc.org<br />

� National Dissemination Center for Children w/Disabilities<br />

(NICHCY)<br />

www.nichcy.org<br />

� CA Foundation for Independent Living Centers—YO<br />

www.yodisabledproud.org/organize/disability-history-week.php<br />

� Department of Mental Health<br />

www.dmh.org<br />

� Wrights Law-Self Advocacy Help<br />

www.wrightslaw.com<br />

� International Dyslexia Association<br />

www.interdys.org/<br />

� United Cerebral Palsy<br />

www.Unitedcerebralpalsyie.com<br />

� Office of Special Education & Rehabilitative Services<br />

http://www2.ed.gov/about/offices/list/osers/index.html<br />

� California Department of Health Care Services<br />

http://www.dhcs.ca.gov/pages/contacts.aspx<br />

� Riverside County Children’s Mental Health Services &<br />

Support, Parent-to-Parent Telephone Support Line: (951) 358<br />

-3622 or toll free (888) 358-3622 or visit the website at:<br />

http://mentalhealth.co.riverside.ca.us<br />

� Riverside County Resources, Referrals & Support Line: (800)<br />

464-1123 or simply dial 2-1-1. Cell phone users must dial the 800<br />

number. 2-1-1 is available 24 hours everyday.<br />

� NAMI—National Alliance on Mental Illness. Information, referrals<br />

and support. Phone: (800) 950-NAMI(6264) email:<br />

info@nami.org Website:<br />

www.nami.org<br />

� Partner Partners—Parents helping Parents navigate the<br />

Mental Health System<br />

Central: 951-358-5862<br />

Desert: 760-863-8587<br />

Western: 951-358-4840<br />

or 888-358-3622 to find an office County Wide


<strong>2012</strong>—2013<br />

<strong>CAC</strong> Executive Board<br />

President~ Jessie Mann ~ Jurupa<br />

(951) 961-0032<br />

jessie_mann@yahoo.com<br />

Vice President ~ Corey Stacy ~ Perris Union<br />

(951) 244-4550 or (951) 805-3745<br />

corey.stacy@verizon.net<br />

Secretary ~ Debbie Zimmer ~ Menifee<br />

(951) 672-3437<br />

dzimmer6@verizon.net<br />

Public Informationion Officer ~ Lori Enroth ~ Desert Sands<br />

(760) 862-9982 or (760) 485-7087<br />

miraclebaby99@aol.com<br />

Member at Large ~ Selene Bermudez ~ Jurupa<br />

(951) 333-2933<br />

Selene.email@gmail.com<br />

Member at Large ~ Phil Stein ~ Desert Sands<br />

(760) 832-4699 or (760) 469-2006<br />

pstein2@dc.rr.com or philswindycity@gmail.com<br />

Past President ~ Marie Smith ~ Lake Elsinore<br />

(951) 245-9961 or (951) 491-3592<br />

leas_mom@hotmail.com or marie.smith@leusd.k12.ca.us<br />

<strong>SELPA</strong> Representative ~ Sue Balt, Ph.D. ~ Ex. Director<br />

(951) 490-0375 sue@rcselpa.org<br />

Secretarial Support ~ Delores Hartin<br />

(951) 490-0375 delores@rcselpa.org<br />

(Para español comuníquese con) ~ Maribel Caparas (al o por<br />

correo electrónico maribel@rcselpa.org )<br />

Community Events<br />

Capable Girls Group<br />

A Social Network for girls 13—17 looking to make friends and have<br />

Fun!! 1/9/13 to 4/24/13—Each Wednesday: 5 p.m. to 6:30 PM<br />

For more information: https://ieautism.com/<br />

or call 951-683-5193<br />

Autism Research Group<br />

ADVANCED BEHAVIORAL INTERVENTION WORKSHOP<br />

. . .for professionals working with children with autism<br />

1/17/13—8:30 AM.—4:00 PM<br />

Airtel Plaza Hotel Concorde Ballroom<br />

7277 Valjean Ave., Van Nuys, 91406<br />

For more information: dplump@autismresearchgroup.org<br />

Or call 818-345-2345 x 322<br />

1st Business Meeting of New Year<br />

Tuesday, 1/15/13—Time—6:00 p.m. to 8:30 p.m.<br />

Topic “Winning Strategies” (ADR)<br />

Presented by Christa Smith—<strong>SELPA</strong> Coordinator<br />

―Working Together to Develop a Winning IEP‖& learn easy tips on facilitating<br />

communication for a positive IEP meeting outcome.<br />

Parent Workshop—Saturday, 3/2/13——8:30 a.m.—2:00 p.m.<br />

Alvord USD at Villegas Middle <strong>School</strong>—MP RM—3754 Harvill Lane, Riverside<br />

Topic “Understanding Neurological Disorders In Children”<br />

Presented by Tasha Arneson, Ph.D. <strong>SELPA</strong> Mental Health Case Manager<br />

Darlene Wheeler, Ph.D., and others! LOOK FOR FLYER—COMING SOON<br />

Alvord USD<br />

(951) 509-5045<br />

Banning USD<br />

(951) 922-0224<br />

Beaumont USD<br />

(951) 845-2681 Ext. 2215<br />

Coachella Valley USD<br />

(760) 399-5137 Ext. 227<br />

Desert Center USD<br />

(760) 392-4227<br />

Desert Sands USD<br />

(760) 771-8652<br />

<strong>Hemet</strong> USD<br />

(951) 765-5100 Ext. 4001<br />

<strong>CAC</strong> Business Meeting<br />

Tuesday, 3/19/13—Time 6:00 p.m. to 8:30 p.m.<br />

Topic “Finding Ability in Disability”<br />

LOOK FOR FLYER—COMING SOON<br />

California Active Learning Conference<br />

January 25 & 26, 2013—Braille Institute of Los Angeles<br />

For more Information:<br />

Contact Conference Coordinator Lori Enroth @ 760-485-7087<br />

UCLA CART 5th Annual Autism Symposium<br />

Hope you can join us February 1, 2013—8 AM—5 PM—<br />

Keynote Speakers – Drs. Lynn & Robert Koegel (UCSB) (310) 825-9041<br />

NRB Auditorium Registration details coming soon!!<br />

Epilepsy Empowerment Conference 2013<br />

February 16, 2013—10 AM to 3 PM<br />

California Baptist University—8432 Magnolia Ave., Riverside, 92504<br />

Free Childcare & Spanish sessions—for more information call 951-281-9892<br />

SEARCH & SERVE<br />

Every child with a disability between the ages of birth to 22 is entitled to a Free Appropriate Public Education<br />

(FAPE) in the Least Restrictive Environment (LRE). <strong>District</strong>s within the Riverside County <strong>SELPA</strong> offer<br />

programs with special needs in.: Behavioral ~ Cognitive ~ Emotional Health ~ Learning ~ Motor~<br />

Physical ~ Speech/Language & other areas. To find out more, contact your local <strong>District</strong> Office<br />

Jurupa USD<br />

(951) 360-4144<br />

Lake Elsinore USD<br />

(951) 253-7130<br />

Menifee Union SD<br />

(951) 672-1851<br />

Murrieta Valley USD<br />

(951) 696-1600 Ext.1161<br />

Nuview E. SD<br />

(951) 928-1841<br />

Palm Springs USD<br />

(760) 416-8402<br />

Palo Verde USD<br />

(760) 922-4164 Ext. 1242<br />

Perris E. SD<br />

(951) 940-4942<br />

Perris Union HSD<br />

(951) 943-6531<br />

River Springs Charter<br />

(951) 252-8881<br />

Romoland E. SD<br />

(951) 926-9244 Ext. 239<br />

San Jacinto USD<br />

(951) 929-7700 Ext. 4249<br />

Temecula Valley USD<br />

(951) 506-7981<br />

Val Verde USD<br />

(951) 940-6104

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