hope for children with autism - Marianjoy Rehabilitation Hospital
hope for children with autism - Marianjoy Rehabilitation Hospital
hope for children with autism - Marianjoy Rehabilitation Hospital
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Physical <strong>Rehabilitation</strong> <strong>for</strong> Adults and and Children<br />
Share Your <strong>Marianjoy</strong> Story<br />
Help us Celebrate <strong>Marianjoy</strong>’s<br />
40th Anniversary<br />
VOLUME 14 Issue 1<br />
HOPE FOR CHILDREN<br />
WITH AUTISM<br />
Modern Testing & Therapy<br />
Techniques at <strong>Marianjoy</strong><br />
Stories of Everyday People<br />
Living Life after a Stroke<br />
Off and Running<br />
<strong>Marianjoy</strong>’s 1st Running<br />
Fundamentals Clinic a Success
<strong>Marianjoy</strong> Matters<br />
2<br />
Stories of Everyday People<br />
Living Life after a Stroke<br />
Amanda Fowler, Contributor<br />
Mark Kirk, the first-term republican U.S. Senator from Illinois likely faces a challenging recovery after sustaining a stroke in January.<br />
After checking himself into the hospital, tests confirmed Kirk suffered an ischemic stroke and doctors per<strong>for</strong>med emergency surgery<br />
to relieve brain swelling. “This is the most common type of stroke and occurs when a blood clot or blockage restricts blood flow to<br />
the brain,” explains Dr. Richard Krieger, Medical Director of the <strong>Marianjoy</strong> Stroke Program. “Kirk’s quick decision to seek medical<br />
attention likely saved his life.”<br />
Every day, patients and families who sustain a stroke choose <strong>Marianjoy</strong> as a partner <strong>for</strong> rehabilitation. The following is the<br />
inspirational story of a successful businessman and father who triumphed over a stroke through perseverance and patience.<br />
Triumphing Through Perseverance<br />
and Patience<br />
At 51, Robert Riley juggled a demanding<br />
job as a successful businessman and<br />
spending time <strong>with</strong> his daughter, Laila.<br />
A general manager <strong>for</strong> a national car rental<br />
firm <strong>for</strong> thirty years, he managed a fleet<br />
of 1,900 cars and 80 employees, traveled<br />
extensively, and had little time to cook or<br />
exercise. He was a self-proclaimed fastfood<br />
junkie, had high blood pressure and a<br />
family history of stroke.<br />
His fast-paced lifestyle dramatically<br />
changed on March 28, 2010. After<br />
returning home from church, he felt<br />
ill, stumbled and fell. Unalarmed, he<br />
continued <strong>with</strong> his day. Around 2:00 a.m.,<br />
he awoke and discovered he could not lift<br />
his left arm or leg. He made his way to the<br />
bathroom but passed out.<br />
Laila was able to wake him and he decided<br />
to drive to the nearest hospital. “While<br />
driving, my left hand slid off the wheel.<br />
I realized I was having a stroke.”<br />
Robert Riley (R) and Millie Carson (L)<br />
provide support to patients, families,<br />
and visitors as members of <strong>Marianjoy</strong><br />
Guest Services.<br />
<strong>Hospital</strong> tests confirmed he had suffered<br />
a stroke. After five days in intensive care,<br />
the hospital staff suggested transferring<br />
him to <strong>Marianjoy</strong>, which he researched<br />
online. “The more I read, the more excited<br />
I became,” he says. His friend, Tony, who<br />
had also suffered a stroke and understood<br />
the recovery Robert was about to face, told<br />
him; “You’re going to a good place. Listen<br />
to them, do what they tell you. You’ll be<br />
okay. You’ll beat this.”<br />
The <strong>Rehabilitation</strong> Journey Begins<br />
Robert arrived at <strong>Marianjoy</strong> and<br />
immediately felt welcome.<br />
Along <strong>with</strong> his doctors<br />
and therapists, he<br />
focused hard on<br />
his recovery. The<br />
speech therapists<br />
helped him<br />
<strong>with</strong> his<br />
swallowing difficulties while the physical<br />
and occupational therapists worked <strong>with</strong><br />
him on his rehabilitation goals. “I felt<br />
like I had everything on my side. All I<br />
had to do was commit to it.” However,<br />
recovery didn’t come easily. On the first<br />
day, his occupational therapist asked him<br />
to roll something <strong>with</strong> his arm, and when<br />
he couldn’t, he cried. “I wondered if I’d be<br />
in that wheelchair <strong>for</strong>ever. I thought my<br />
life was over.” Fortunately, he had a good<br />
support system from family, and his fiancé,<br />
Wanda, and Laila who was a constant<br />
source of motivation. “She was only six at<br />
the time. I would look at her picture and<br />
say, ‘I’m going to beat this. I’m going to<br />
push today to get better <strong>for</strong> her.’”<br />
Robert’s other support source was his<br />
faith. “Faith is instrumental in my life,”<br />
he says. “I’ve always prayed, so I didn’t<br />
feel like I was just asking <strong>for</strong> a favor. But<br />
immediately after my stroke, my words to<br />
God were ‘if you give me a chance and get<br />
me through this, I promise I’ll get it right<br />
this time.’ And I meant it.”<br />
After thirty days in inpatient therapy,<br />
Robert entered <strong>Marianjoy</strong>’s outpatient<br />
program. Although his left leg was still<br />
weak, he used a brace and a walker to<br />
get around. He continued his exercise<br />
program at home, strengthening his left<br />
leg while also regaining almost full use of<br />
his left arm. One evening, Robert stood up<br />
from the couch and his left leg moved as it<br />
had prior to the stroke. Elated, he called<br />
his doctor. By the end of June, he had full<br />
use of his leg.
Returning to Work<br />
Robert returned to work in July 2010,<br />
but work felt different. “Now, everything<br />
is in perspective,” he says. “You have to<br />
put your health first. But when you’re<br />
this passionate about something, it’s ok.”<br />
His company offered some employees a<br />
buy-out and he took it. He retired, took<br />
time to travel, and began volunteering at<br />
<strong>Marianjoy</strong>.<br />
Robert did so well as a volunteer that he<br />
was hired as a supervisor in guest services<br />
at <strong>Marianjoy</strong> – and he is loving it. “I feel<br />
like this is where I should be. Recently,<br />
a patient told me I had inspired her,” he<br />
smiles. “I gave her a big hug. That’s what<br />
I want to be a part of!”<br />
Robert’s persistence has truly paid off.<br />
“I’ve recovered 99 percent. My only<br />
limitation is my left leg– it gets a little<br />
tired sometimes. I thank God every<br />
day – this experience really did change<br />
my life.”<br />
Time, Perseverance, Faith & Patience<br />
“If there is one thing I learned from my<br />
entire experience, it would be patience,”<br />
he says. “I lived in the corporate<br />
world of rushing to and from work,<br />
surrounded by concrete plans and<br />
deadlines that must be met. But when<br />
you have a stroke and you’re sitting in a<br />
wheelchair hoping to walk again, there is<br />
no deadline. It takes time, perseverance<br />
and faith. And especially, it takes<br />
patience.”<br />
REHAB<br />
SUCCESS<br />
Every day, patients and families who<br />
sustain a stroke choose <strong>Marianjoy</strong> as a<br />
partner <strong>for</strong> rehabilitation.<br />
Tips to Reduce Your Risk of Stroke<br />
According to Dr. Krieger, there are a number<br />
of lifestyle changes you can make at any<br />
age to lower your risk of stroke:<br />
• Eat Healthy. Statistics show that eating<br />
a balanced diet low in saturated fat and<br />
cholesterol may help reduce the risk of<br />
heart disease and stroke.<br />
• Control Diabetes. High blood sugar<br />
(hyperglycemia) can increase your risk<br />
of stroke, so managing it appropriately is<br />
important.<br />
• Quit Smoking/Tobacco Use. Smoking<br />
nearly doubles the risk of sustaining a<br />
stroke.<br />
• Exercise Regularly. Exercise improves<br />
your cardiovascular health which will<br />
help reduce the risk of heart disease<br />
and stroke.<br />
• Limit Alcohol Intake. Excessive alcohol<br />
use has been linked to stroke in many<br />
cases.<br />
www.<strong>Marianjoy</strong>.org<br />
Stroke <strong>Rehabilitation</strong><br />
and Support<br />
<strong>Marianjoy</strong>’s Stroke <strong>Rehabilitation</strong> Program is<br />
dedicated to the promotion of wellness and<br />
com<strong>for</strong>t <strong>for</strong> a lifetime. Whether someone<br />
has experienced a mild, moderate or severe<br />
stroke, our goal is the same: returning them to<br />
their families and communities, easing pain,<br />
promoting mobility and function and advocating<br />
<strong>for</strong> a productive future.<br />
<strong>Marianjoy</strong> offers resources to help individuals<br />
continue their progress, including support<br />
groups and individual consultations. Support<br />
groups are provided at no cost as a service to<br />
the community by <strong>Marianjoy</strong>. All groups meet<br />
at <strong>Marianjoy</strong> <strong>Rehabilitation</strong> <strong>Hospital</strong> in Wheaton,<br />
Illinois unless otherwise noted. For more<br />
in<strong>for</strong>mation about all of the support groups<br />
offered by <strong>Marianjoy</strong>, visit www.<strong>Marianjoy</strong>.org.<br />
Stroke and Aphasia Support Group<br />
This group provides speakers who offer<br />
education via socialization and support so that<br />
life continues <strong>with</strong> joy and happiness. They<br />
meet the first Tuesday of every month, except in<br />
January and February, from 4:15 to 5:30 p.m.<br />
For more in<strong>for</strong>mation, please contact Sarah<br />
Keller at 630-909-8410 or Karen Ng at<br />
630-909-8418.<br />
Dr. Richard Krieger,<br />
Medical Director,<br />
<strong>Marianjoy</strong> Stroke Program<br />
EXPERT REHABILITATION,<br />
CLOSE TO HOME<br />
To learn more about <strong>Marianjoy</strong>’s<br />
Stroke Program, call 630-909-8000<br />
or visit www.<strong>Marianjoy</strong>.org. 3
Dr. Anjum Sayyad<br />
<strong>Marianjoy</strong> Medical Group Physician<br />
4<br />
Ask the Expert<br />
Dr. Sayyad joined the <strong>Marianjoy</strong> Medical Group<br />
in 2011 as a staff physiatrist. She graduated<br />
from the Chicago Medical School at Rosalind<br />
Franklin University and completed her residency<br />
at <strong>Rehabilitation</strong> Institute of Chicago affiliated <strong>with</strong><br />
Northwestern University.<br />
Dr. Sayyad focuses on all levels of rehabilitation<br />
and sees patients at <strong>Marianjoy</strong> <strong>Rehabilitation</strong><br />
<strong>Hospital</strong>’s Wheaton Campus. Dr. Sayyad is a<br />
member of the American Academy of Physical<br />
Medicine and <strong>Rehabilitation</strong>, the Association of<br />
Academic Physiatrists, and the American Congress<br />
of <strong>Rehabilitation</strong> Medicine.<br />
COMMUNITY<br />
SUPPORT<br />
Question:<br />
I run a few miles a week and lately, I have been experiencing a pain in my left heel.<br />
It hurts <strong>for</strong> about a quarter mile into my run, and then subsides, but then returns.<br />
It seems to be at its worst when I get out of bed in the morning. Should I be concerned<br />
or is this something that will go away on its own?<br />
Achilles tendon<br />
Inflammation of<br />
the plantar fascia<br />
can cause heel pain<br />
Plantar fascia<br />
Answer:<br />
Given your symptoms, it could be<br />
plantar fasciitis, a condition that can<br />
occur when the plantar fascia—the<br />
tissue that connects the heel bone to<br />
your toes—becomes weak, resulting in<br />
microtears and inflammation. It is the<br />
most common cause of rear foot pain<br />
and common in runners. People will<br />
often complain that the first few steps<br />
in the morning are the worst. Runners<br />
note the pain occurs at the beginning of the run, improves, and then returns after<br />
the completion of the run. Individuals <strong>with</strong> either high arches or flat feet are at<br />
risk <strong>for</strong> plantar fasciitis as are individuals who are older or heavier.<br />
Caring <strong>for</strong> Plantar Fasciitis As a physiatrist, I would examine the range of motion<br />
in your foot, determining if your foot pronates (turns inward) or supinates (turns<br />
outward) when you walk, causing stress on the plantar fascia. I would also evaluate<br />
the flexibility of your calf muscles to see<br />
if they are overly tight. By prescribing<br />
physical therapy, I would recommend<br />
the therapist show you proper stretches<br />
<strong>for</strong> the plantar fascia as well as your leg<br />
and calf muscles. Another option may<br />
be an orthotic or taping to help <strong>with</strong><br />
supporting the arch. For now, I would<br />
recommend taking a break from running,<br />
ice the area a few times a day, and use<br />
an anti-inflammatory until you can have<br />
your healthcare provider evaluate the<br />
condition.<br />
FOR MORE INFORMATION, OR TO<br />
MAKE AN APPOINTMENT, CALL<br />
630-909-7150
OFF AND RUNNING<br />
<strong>Marianjoy</strong>’s 1st Running Fundamentals<br />
Clinic a Success<br />
Amid the chill of a brisk March morning,<br />
runners made their way through the winding<br />
paths of the 60-acre wooded campus at<br />
<strong>Marianjoy</strong>. The fun run followed a morning<br />
of presentations offered by <strong>Marianjoy</strong><br />
clinicians—avid runners and marathoners<br />
themselves—on the fundamentals of running.<br />
Both seasoned runners and those interested<br />
in starting a running program attended the<br />
Saturday morning event.<br />
“Whether you’re a new or experienced<br />
runner, there is always a new training<br />
tip or piece of equipment to help make<br />
your running experience a better one,”<br />
explains Dr. Anjum Sayyad, <strong>Marianjoy</strong><br />
Medical Group physiatrist specializing in<br />
physical medicine and rehabilitation. “Our<br />
intention was to cover a variety of topics<br />
<strong>for</strong> those who enjoy running <strong>for</strong> sport or<br />
leisure, and as runners, we were able to<br />
give personal insight by sharing our own<br />
experiences.”<br />
Topics included choosing running<br />
equipment and clothing; determining the<br />
proper running shoe and fit; establishing<br />
a training program; the benefits of crosstraining;<br />
and understanding proper<br />
hydration and nutrition while training, as<br />
well as be<strong>for</strong>e, during and after an event.<br />
“Proper nutrition and hydration are<br />
essential elements of any exercise program,”<br />
explains Amy Seghi, <strong>Marianjoy</strong> physical<br />
therapist and presenter at the clinic. “The<br />
presentation focused on the importance<br />
of maintaining a balanced diet of<br />
carbohydrates, protein, and fat based on<br />
energy needs, whether you’re training <strong>for</strong> a<br />
long distance race or beginning a running<br />
program.”<br />
“Sometimes people just slip on their<br />
running shoes and head out to run a few<br />
miles <strong>with</strong>out giving it much thought. As<br />
healthcare providers, we wanted to design<br />
each presentation to be in<strong>for</strong>mational<br />
but to also emphasize safety and avoiding<br />
injuries,” notes Kelly Conrad, physical<br />
therapist at <strong>Marianjoy</strong>’s Oakbrook<br />
Terrace location. “So <strong>for</strong> example, when<br />
talking about proper running clothing<br />
and equipment, we not only emphasized<br />
com<strong>for</strong>t but safety. We talked about the<br />
importance of reflective gear, not using<br />
headphones, and carrying identification in<br />
case of an emergency.”<br />
Dr. Anjum Sayyad along <strong>with</strong> Natalie Look,<br />
<strong>Marianjoy</strong> physical therapist, outlined the<br />
most common running injuries—from<br />
hamstring strains to injuries involving the<br />
Achilles tendon. As Dr. Sayyad described<br />
the physical symptoms of a particular injury<br />
along <strong>with</strong> treatment options, Natalie<br />
demonstrated a series of exercises that<br />
could be done to help avoid the particular<br />
injury. After the presentations, attendees<br />
participated in a run, accompanied by<br />
<strong>Marianjoy</strong> clinicians, and then returned to<br />
a demonstration on the proper stretching<br />
techniques and cool-down exercises to<br />
prevent injuries.<br />
Tips <strong>for</strong> Better Training and Preventing<br />
Injuries Available on <strong>Marianjoy</strong>.org<br />
Check out the Runners Network page at<br />
www.<strong>Marianjoy</strong>.org/RunnersNetwork<br />
<strong>for</strong> expert in<strong>for</strong>mation as individuals train<br />
<strong>for</strong> upcoming events or begin their leisure<br />
running program, or scan the QR code<br />
<strong>with</strong> your smart phone.<br />
www.<strong>Marianjoy</strong>.org<br />
For Runners of All Levels of Ability<br />
5
6<br />
<strong>Marianjoy</strong> Matters<br />
April is Autism Awareness Month<br />
Hope <strong>for</strong> Children <strong>with</strong> Autism<br />
According to the Centers <strong>for</strong> Disease Control, one in every 88 <strong>children</strong> is diagnosed <strong>with</strong> Autism Spectrum Disorder<br />
(ASD) <strong>with</strong> boys being at an increased rate of diagnosis than girls. ASDs are a group of complex developmental<br />
disorders. Autistic Disorder is the most common but additional ASDs include Asperger Syndrome and Pervasive<br />
Developmental Disorder-Not Otherwise Specified (PDD-NOS). All three types of ASDs vary in degree of social,<br />
communicative, and behavioral challenges and last throughout a person’s life.<br />
Early Intervention is Key<br />
“Autistic <strong>children</strong> communicate, interact,<br />
behave and learn in ways that are<br />
different than other <strong>children</strong>,” explains<br />
Dr. Mary Keen, Medical Director of the<br />
<strong>Marianjoy</strong> Pediatric Program. “These<br />
deficits appear very early in life. We<br />
encourage parents to pay close attention<br />
to their child’s developmental milestones.<br />
For example, at six months old, a baby<br />
should be making sounds, responding<br />
to others, and be curious about their<br />
surroundings. At 16 months, the child<br />
should know several words, be able<br />
to show affection, and follow simple<br />
commands. If a parent has concerns<br />
about their child’s development, they<br />
should address them <strong>with</strong> their healthcare<br />
provider.”<br />
Research has shown that early<br />
intervention is especially important <strong>for</strong><br />
<strong>children</strong> diagnosed <strong>with</strong> Autism.<br />
“Because each child is different, a<br />
thorough evaluation is completed<br />
to determine the most<br />
appropriate course of action <strong>for</strong><br />
the child’s particular needs,”<br />
notes Keen. “For example,<br />
many <strong>children</strong> <strong>with</strong> Autism<br />
have additional physical and<br />
mental impairments that<br />
accompany the ASD diagnosis<br />
which may require a more<br />
complex treatment plan.”<br />
Autism Diagnostic<br />
Observation Schedule<br />
(ADOS) Testing<br />
An accurate diagnosis is<br />
essential <strong>for</strong> developing an<br />
appropriate treatment plan.<br />
ADOS testing is considered<br />
to be the gold standard instrument<br />
<strong>for</strong> diagnosing and assessing Autism<br />
Spectrum Disorders across age groups,<br />
developmental levels, and language skills.<br />
The tests are individually administered to<br />
<strong>children</strong> beginning at 24 months through<br />
adulthood.<br />
“The testing uses a variety of modules that<br />
are based on the individual’s expressive<br />
language skills and chronological age,”<br />
explains Dr. Christine Valessares, pediatric<br />
neuropsychologist at <strong>Marianjoy</strong>. “Using a<br />
variety of activities, we are able to evaluate<br />
the child’s communication skills, social<br />
interactions, play, and behaviors. This<br />
helps us determine if the behaviors are<br />
consistent <strong>with</strong> the diagnosis of ASD. If<br />
an ASD diagnosis is confirmed, we work<br />
<strong>with</strong> the patient’s physician to determine<br />
the best course of treatment, including<br />
individualized physical, occupational,<br />
speech and behavioral therapy programs.<br />
Our clinicians use a variety of therapy<br />
techniques and strategies to help the child<br />
and family make daily tasks and activities<br />
less challenging.”<br />
Therapy Approaches<br />
For <strong>children</strong> <strong>with</strong> <strong>autism</strong>, the primary<br />
goal of speech therapy is to help them<br />
effectively communicate their wants and<br />
needs. “For some <strong>children</strong>, the focus<br />
of speech therapy may be to help them<br />
engage in conversation, make eye contact<br />
and understand non-verbal language,”<br />
explains Rachel Frens, speech language<br />
pathologist at <strong>Marianjoy</strong>. “We may also<br />
use Picture Exchange Communication<br />
Systems, also known as PECS, or<br />
other augmentative and alternative<br />
communication devices.
“A common characteristic of ASD is<br />
the repeating of phrases or specific<br />
words that may not appropriately<br />
fit the conversation,” Fren explains.<br />
“Sometimes a child’s responses can<br />
sound canned or robotic which is<br />
known as echolalia. We use therapy<br />
as an opportunity to work on their<br />
language skills and their vocal pitch<br />
to help them convey meaning, such as<br />
when they are asking a question versus<br />
making a statement.”<br />
In occupational therapy, clinicians<br />
typically use sensory integration therapy<br />
<strong>with</strong> a child who has ASD. While most<br />
<strong>children</strong> unconsciously combine and use<br />
their senses to learn about themselves<br />
and the environment, this does not<br />
come naturally to <strong>children</strong> <strong>with</strong> Autism.<br />
“I usually challenge their senses through<br />
movement and play which promotes<br />
eye contact, social interaction and is<br />
meant to engage the child,” explains<br />
Shonna Dhawan, occupational therapist<br />
at <strong>Marianjoy</strong>. “These activities are<br />
designed to promote things like touch,<br />
motor planning, and movement. After<br />
these activities, the child is usually more<br />
prepared to work on their self-help skills<br />
such as brushing their teeth, tying their<br />
shoes, dressing, feeding and utensil use,<br />
handwriting and cutting, and other<br />
important daily living activities.”<br />
Physical therapy supplements these<br />
other treatments by addressing motor<br />
planning, postural awareness, safety<br />
awareness, and general strength and<br />
balance. It also assists <strong>with</strong> the child’s<br />
development of gross motor skills.<br />
PEDIATRIC<br />
REHABILITATION<br />
Group Classes <strong>for</strong> Children <strong>with</strong><br />
Autism<br />
<strong>Marianjoy</strong> offers a variety of classes <strong>for</strong><br />
<strong>children</strong> <strong>with</strong> special needs, including<br />
those <strong>with</strong> Autism. The classes are an<br />
opportunity <strong>for</strong> the <strong>children</strong> to practice<br />
what they’ve learned in one-on-one<br />
therapy sessions and apply these skills in<br />
a practical way <strong>for</strong> different situations<br />
they may encounter in society. These<br />
small group classes emphasize a variety<br />
of skills including taking turns, making<br />
eye contact, initiating conversations,<br />
empathizing <strong>with</strong> others while showing<br />
emotional and social support.<br />
Classes are offered throughout the year.<br />
A current list of classes is available on<br />
the <strong>Marianjoy</strong> website at <strong>Marianjoy</strong>.org.<br />
www.<strong>Marianjoy</strong>.org<br />
Signs of Autism Spectrum Disorders*<br />
People <strong>with</strong> Autism Spectrum Disorders (ASDs)<br />
often have problems <strong>with</strong> social, emotional,<br />
and communication skills. They may repeat<br />
certain behaviors or refuse to change their daily<br />
activities. Other signs include:<br />
� not playing “pretend” games<br />
� not pointing at objects to show interest<br />
� not looking at objects when another person<br />
points at them<br />
� having trouble relating to others or not<br />
having an interest in other people at all<br />
� avoiding eye contact and wanting to be alone<br />
� having trouble understanding other people’s<br />
feelings or talking about their own feelings<br />
� preferring not to be held or cuddled<br />
� appearing to be unaware when other people<br />
talk to them but responds to other sounds<br />
� being very interested in people, but not<br />
knowing how to talk, play, or relate to them<br />
� repeating or echoing words or phrases<br />
� repeating words or phrases in place of<br />
normal language (echolalia)<br />
� having trouble expressing their needs using<br />
typical words or motions<br />
� repeating actions over and over again<br />
� having trouble adapting when a routine<br />
changes<br />
� having unusual reactions to the way things<br />
smell, taste, look, feel, or sound<br />
� losing skills they once had (<strong>for</strong> instance,<br />
stop saying words they were once using)<br />
<strong>Marianjoy</strong> Cares <strong>for</strong> Kids<br />
Contact your child’s doctor or healthcare<br />
provider if your child experiences a<br />
dramatic loss of skills at any age.<br />
FOR MORE INFORMATION, OR TO MAKE<br />
AN APPOINTMENT, CALL 630-909-8542<br />
OR VISIT WWW.MARIANJOY.ORG.<br />
*Source: Centers <strong>for</strong> Disease Control<br />
7<br />
37
<strong>Marianjoy</strong> Matters<br />
Dr. Mary Keen<br />
Medical Director, <strong>Marianjoy</strong> Pediatric Program<br />
Dr. Mary Keen is the Medical Director of the<br />
<strong>Marianjoy</strong> Pediatric Program. She is board-<br />
certified in physical medicine and rehabilitation,<br />
pediatrics, and neuro-developmental pediatrics.<br />
Areas of interest include:<br />
• Pediatric <strong>Rehabilitation</strong><br />
• Spina Bifida and Cerebral Palsy<br />
• Neuromuscular Disorders<br />
• Traumatic Brain Injury<br />
• Spasticity Management<br />
She was named a “Top Doctor” in Chicago<br />
Magazine, in addition to being named to the list<br />
of “Best Doctors in America ® ” and listed in the<br />
“2012 Chicago Super Doctors.”<br />
With input from Dr. Keen, <strong>Marianjoy</strong> has created<br />
a website <strong>for</strong> parents of <strong>children</strong> <strong>with</strong> chronic<br />
diseases. In<strong>for</strong>mationConnections.org is a<br />
website linking to trusted in<strong>for</strong>mation on Autism,<br />
ADHD, Cerebral Palsy, Down Syndrome, Brain<br />
Injury and other conditions.<br />
8<br />
REHAB<br />
ESSENTIALS<br />
Enhancing Communication <strong>with</strong> the<br />
Augmentative and Alternative<br />
Communication Devices (AACs)<br />
Stop playing cars and go to bed.<br />
Many parents of <strong>children</strong> <strong>with</strong> Autism Spectrum Disorders have been<br />
using Augmentative and Alternative Communication (AAC) devices, such<br />
as an iPad/iPod, to enhance communication. Speech-language pathologists<br />
recommend the use of these devices to adults and <strong>children</strong> <strong>with</strong> cognitivecommunication<br />
disorders and pathological voice disorders to aid language<br />
development and restoration through programmed practice therapy tasks.<br />
It can also be used to organize recall of appointments, compensatory<br />
strategies, and schedules, and to access email and other environmental<br />
systems via voice activation.<br />
Children and adults <strong>with</strong> the following may benefit from an AAC:<br />
• Cognitive-communication disorders impacting their ability to speak<br />
• Pathological voice disorders<br />
• Cognitive-communication disorders impacting general cognition<br />
• Spinal cord injuries who require access to environmental controls<br />
What does an AAC do?<br />
AACs access thousands of applications to allow <strong>for</strong>:<br />
• Internet access to email and various webpages<br />
• Personal storage of books, movies, photos, music, etc.<br />
• Keyboarding and note taking<br />
Advantages of using an AAC:<br />
• Easily accessible,<br />
portable and af<strong>for</strong>dable<br />
• Offers way to communicate<br />
and participate in daily<br />
activities<br />
• Socially accepted
DONOR FOCUS<br />
www.<strong>Marianjoy</strong>.org<br />
MARIANJOY LEGACY CAMPAIGN<br />
Create a Ripple! Help Build <strong>Marianjoy</strong>’s<br />
New Aquatic Therapy and Fitness Center!<br />
<strong>Marianjoy</strong> will soon be replacing its 25-year old pool <strong>with</strong> a state-of-the-art<br />
Aquatic Therapy and Fitness Center.<br />
Each week, over 200 warm water pool sessions are provided to patients of all ages.<br />
Using proven aquatic therapy techniques, a warm water pool increases muscle relaxation<br />
and joint mobility. Aquatic Therapy also improves circulation, balance and confidence.<br />
For patients <strong>with</strong> disabilities, this new Aquatic Therapy and Fitness Center<br />
will offer the opportunity to establish an active fitness routine and<br />
enhance their overall quality of life.<br />
The New Aquatic Therapy Center featuring:<br />
• An enlarged warm water therapeutic pool to accommodate<br />
a greater number of patients including pediatric, adult, and<br />
seniors<br />
• A graduated entry to allow <strong>for</strong> easy access and expanded<br />
pediatric therapy capabilities<br />
• Specialized underwater exercise and lift equipment<br />
• An eco-friendly, salt water sanitizing system that is cost<br />
effective, gentler on skin, increases buoyancy,<br />
relaxes muscles, and improves circulation and balance<br />
• Separate male, female, and family locker rooms to<br />
facilitate caregiving <strong>for</strong> <strong>children</strong> <strong>with</strong> disabilities<br />
• An observation area <strong>for</strong> family members<br />
A gift to <strong>Marianjoy</strong> is an affirmation of your<br />
faith and trust in our work. Your donation will create<br />
a ripple at every level of care and help us build<br />
an exciting new environment of healing that will<br />
serve our community <strong>for</strong> decades to come.<br />
Thank you <strong>for</strong> your consideration and support!<br />
For more in<strong>for</strong>mation about the<br />
<strong>Marianjoy</strong> Legacy Campaign, or to<br />
request a Legacy Campaign booklet,<br />
please visit www.<strong>Marianjoy</strong>.org.<br />
<strong>Marianjoy</strong> <strong>Rehabilitation</strong> <strong>Hospital</strong> is a 501 (c) 3 organization.<br />
Your gift is tax deductible to the fullest extent of the law. <strong>Marianjoy</strong>’s tax ID# is 35-2165613.<br />
9
10<br />
Save-The-Date<br />
Your are invited!<br />
May 3, 2012<br />
Spring is in Bloom!<br />
The <strong>Marianjoy</strong> Auxiliary<br />
Annual Spring Luncheon<br />
The <strong>Marianjoy</strong> Auxiliary invites you to their<br />
Annual Spring Luncheon at College of<br />
DuPage’s Waterleaf Restaurant in the Culinary<br />
and <strong>Hospital</strong>ity Center at 11:30 a.m. on<br />
Thursday, May 3. The Waterleaf Restaurant<br />
is located on the northeast edge of the<br />
campus near the McAninch Arts Center. Arron<br />
Heitmann, Restaurant Manager, will briefly talk<br />
about this new restaurant!<br />
Come and support the<br />
good work of the<br />
<strong>Marianjoy</strong> Auxiliary<br />
while enjoying a<br />
four-star dining<br />
experience!<br />
Tickets are $40/person.<br />
Reserve your seats today– contact<br />
Mary Lou Becker at 630-469-8669.<br />
June 7, 2012<br />
Join Us <strong>for</strong> a Celebration of<br />
Academic Achievement<br />
<strong>Marianjoy</strong> Scholarship Program<br />
Join us! The Annual<br />
Scholarship Awards<br />
Presentation will<br />
be held at 7 p.m.<br />
on June 7, 2012<br />
in the <strong>Marianjoy</strong><br />
Conference Center.<br />
<strong>Marianjoy</strong> proudly<br />
awards scholarships<br />
to students <strong>with</strong><br />
disabilities to help<br />
them to pursue<br />
educational<br />
programs at accredited two and four year<br />
colleges, universities, or vocational technical<br />
schools in the United States. Named<br />
scholarship opportunities are available.<br />
If you would like to make a donation to the<br />
scholarship fund or attend the event, contact<br />
Eileen Belokin, Foundation Manager at<br />
630-909-7390.<br />
MARIANJOY<br />
FOUNDATION<br />
Celebrating Our 40th Anniversary<br />
<strong>Marianjoy</strong> –<br />
Sharing <strong>with</strong> Spirit!<br />
In celebration of <strong>Marianjoy</strong>’s 40th anniversary, <strong>Marianjoy</strong> has entered the “Spirit<br />
at Work” Creative Video Contest, hosted by the Centre <strong>for</strong> Spirituality and<br />
the Workplace. This video illustrates our deep connection to spirituality and<br />
exemplifies a tradition of healing and a legacy of <strong>hope</strong> originally established by<br />
the Wheaton Franciscan Sisters. We invite you to view our vision by visiting<br />
http://goo.gl/Edmqe.<br />
Now it’s your turn to Share Your <strong>Marianjoy</strong> Spirit!<br />
Former <strong>Marianjoy</strong> Patients…How has <strong>Marianjoy</strong> affected your life?<br />
To honor <strong>Marianjoy</strong>’s “ruby” anniversary, we’re looking <strong>for</strong> stories of inspiration<br />
and perseverance. If you or a loved one is a <strong>for</strong>mer <strong>Marianjoy</strong> patient, we’d love to<br />
hear from you.<br />
These <strong>Marianjoy</strong> Patient Stories of Spirit will provide others <strong>with</strong> <strong>hope</strong> and great<br />
insight as they go through their own rehabilitation experience. Your story may<br />
even be selected as part of a featured article in an upcoming edition of <strong>Marianjoy</strong><br />
Matters, on our website, and more!<br />
To participate, contact the <strong>Marianjoy</strong> Marketing department at 630-909-7100<br />
or 630-909-7105. You can also send an email to marketing@<strong>Marianjoy</strong>.org <strong>with</strong><br />
a subject line – My <strong>Marianjoy</strong> Story. Please provide a brief description of your<br />
experience at <strong>Marianjoy</strong> and how we helped your recovery.<br />
Save-The-Date and Join Us at<br />
<strong>Marianjoy</strong>’s 40th Anniversary Legacy Ball. Join us <strong>for</strong> a fabulous Cabaret<br />
extravaganza that will provide vital support <strong>for</strong> the mission of <strong>Marianjoy</strong><br />
<strong>Rehabilitation</strong> <strong>Hospital</strong>, serving <strong>children</strong> and adults <strong>with</strong> disabilities <strong>for</strong> 40 years.<br />
Come to the<br />
Saturday, November 10, 2012 • The Carlisle, Lombard<br />
Call the <strong>Marianjoy</strong> event hotline, 630-909-7333 <strong>for</strong> questions, to make<br />
reservations or to inquire about event sponsorships.
Special Thank You to our Premier Sponsor:<br />
Thank You to our Additional Sponsors:<br />
MARIANJOY<br />
FOUNDATION<br />
Join us <strong>for</strong> <strong>Marianjoy</strong>’s 24th Annual Golf<br />
Invitational and reserve your foursome today!<br />
Monday,<br />
July 16, 2012<br />
Cantigny Golf Club, Wheaton, Illinois<br />
Support the Work of <strong>Marianjoy</strong> while you and your guests<br />
enjoy 18 holes of world class challenging golf. Start the day <strong>with</strong> a<br />
hearty, all-American lunch and receive a premium gift <strong>for</strong> each<br />
attendee. Golf begins at noon <strong>with</strong> a shotgun start, includes<br />
on-course refreshments and concludes <strong>with</strong> a cocktail reception,<br />
gourmet dinner, fabulous awards, and silent auction.<br />
Demonstrate Your Commitment to the Community<br />
<strong>with</strong> sponsorship and participation in <strong>Marianjoy</strong>’s Golf<br />
Invitational. Many sponsors use this outing as an employee<br />
incentive or a corporate hospitality event to reward their<br />
most loyal clients. This exclusive event is an opportunity to<br />
accomplish your organization’s business and philanthropic goals,<br />
while enjoying a great day of golf <strong>with</strong> other professionals.<br />
Advance <strong>Marianjoy</strong>’s Mission of helping people <strong>with</strong><br />
disabilities surpass the limitations that often result from a stroke,<br />
traumatic brain injury, spinal cord injury, or catastrophic illness.<br />
Reserve your Foursome Today! For more in<strong>for</strong>mation on<br />
sponsorship and participation opportunities please contact<br />
the <strong>Marianjoy</strong> Foundation at 630-909-7333 or visit<br />
www.<strong>Marianjoy</strong>Foundation.org.<br />
Thank you to last year’s sponsors:<br />
• McCormick Foundation<br />
• Scheck & Siress<br />
• G&W Electric<br />
• Swanson, Martin & Bell LLP<br />
• Molex<br />
• National Van Lines<br />
ADDITIONAL SPONSORSHIPS ARE<br />
AVAILABLE. FOR RESERVATIONS, CALL<br />
630-909-7333 OR VISIT<br />
WWW.MARIANJOYFOUNDATION.ORG.<br />
• Packey Webb Ford<br />
• Dick Phelan Merrill Lynch<br />
• Cadillac of Naperville<br />
• Fitzgerald Lighting<br />
• Cunningham, Meyer &<br />
Vedrine P.C.<br />
11
MARIANJOY<br />
<strong>Rehabilitation</strong> <strong>Hospital</strong><br />
Wheaton Franciscan Healthcare<br />
26W171 Roosevelt Road<br />
Wheaton, Illinois 60187<br />
800-462-2366 • www.<strong>Marianjoy</strong>.org<br />
Facebook.com/<strong>Marianjoy</strong>Rehab<br />
@<strong>Marianjoy</strong>Rehab<br />
NON-PROFIT<br />
ORGANIZATION<br />
U.S. POSTAGE<br />
PAID<br />
Permit No. 6042<br />
Carol Stream, IL<br />
ABOUT MARIANJOY <strong>Marianjoy</strong> <strong>Rehabilitation</strong> <strong>Hospital</strong> is a one-of-a-kind facility <strong>with</strong> 120 private rooms offering inpatient rehabilitation programs in stroke,<br />
brain and spinal cord injury, musculoskeletal and neuromuscular disorders, and pediatrics. The new flagship facility features uniquely designed accessible<br />
gardens, a labyrinth, chapel, and a meditation room. <strong>Marianjoy</strong> <strong>Rehabilitation</strong> <strong>Hospital</strong> was founded in 1972 by the Wheaton Franciscan Sisters, and maintains<br />
an extensive network of inpatient, subacute, and outpatient sites and physician clinics throughout the Chicagoland area. <strong>Marianjoy</strong> is a member of Wheaton<br />
Franciscan Healthcare.<br />
Get Back in the Game!<br />
<strong>Marianjoy</strong><br />
MarIanjOy—at the H eart Of rehabIlItatIOn<br />
Therapeutic Golf Program<br />
Is arthritis, an injury, a disability or pain<br />
keeping you from enjoying the game of golf?<br />
It’s Tee Time! FREE Introductory Clinic<br />
designed <strong>for</strong> experienced players or beginners,<br />
<strong>Marianjoy</strong>’s team consists of golf pros and therapists<br />
who are experts in adaptive golf. You’ll learn valuable<br />
techniques including how to adjust your stance, swing,<br />
and body mechanics to help you overcome pain or the<br />
physical barriers that are keeping you from enjoying<br />
golf.<br />
<strong>Marianjoy</strong> Therapeutic Golf Program Clinic<br />
May 17, 6-7 p.m. at Cantigny Golf Course<br />
For more in<strong>for</strong>mation or to register,<br />
call 630-909-6010.<br />
26W171 Roosevelt Road, Wheaton, Il 60187 • 800-462-2366 • www.<strong>Marianjoy</strong>.org<br />
InpatIent • OutpatIent • Subacute • phySIcIan clInIcS<br />
Wheaton • Downers Grove • Oakbrook Terrace • Oak Park • Palos Heights