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Reach Out, April 2016, isue 103

The latest news from Tuberous Sclerosis Australia and up to date information on tuberous sclerosis information, support and research.

The latest news from Tuberous Sclerosis Australia and up to date information on tuberous sclerosis information, support and research.

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Fundraising<br />

Thank You To Our<br />

Fundraisers<br />

Your Friends Will Surprise You<br />

When Janet Norris turned 70 last year, she decided she<br />

didn’t need any more stuff so she suggested to her friends<br />

that they donate to TSA or TSCNZ instead of giving presents.<br />

Her friends did indeed surprise her – the donations rolled in<br />

from England, New Zealand and Australia with the final tally<br />

being $NZ950 to TSCNZ and $A890 to TSA.<br />

“Before Liam’s diagnosis in 2008 we had never heard of tuberous<br />

sclerosis, but quickly became aware of the work of TSA in<br />

supporting families. We have seen the progress of early diagnosis<br />

and the success of topical rapamycin. I’m delighted that my friends<br />

contributed to TSA and TSCNZ” said Janet.<br />

Steve and Koby<br />

Steve’s celebration inspired by Koby<br />

Steve Mason, whose grandson Koby has tuberous sclerosis,<br />

had a milestone birthday recently. By asking his party<br />

guests to make a donation in lieu of presents, Steve was able<br />

to make a large donation to help other families living with<br />

TSC. Thanks Steve, and happy birthday!<br />

If you’d like to donate to TSA at your upcoming celebration,<br />

get in touch and see how we can help.<br />

Janet and Liam<br />

Remembering Bevyn<br />

Thank you to the friends and family of Bevyn<br />

Schmidt for honouring him with donations to<br />

Tuberous Sclerosis Australia at his funeral recently.<br />

Bevyn’s grandson Justin has tuberous sclerosis.<br />

22<br />

<strong>Reach</strong><br />

<strong>Out</strong><br />

Bevyn and Justin<br />

APRIL <strong>2016</strong> ISSUE <strong>103</strong>

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