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Creating A World That Works For Everyone! - The Advocacy Center

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<strong>Creating</strong> A <strong>World</strong> <strong>That</strong> <strong>Works</strong> <strong>For</strong> <strong>Everyone</strong>!<br />

YOUR RIGHTS YOUR ISSUES YOUR CHOICES<br />

THE<br />

ADVOCACY CENTER<br />

P u t t i n g P e o p l e F i r s t<br />

A N N U A L R E P O R T 2 0 1 1


Dear Friends,<br />

It is our pleasure to present to you <strong>The</strong><br />

<strong>Advocacy</strong> <strong>Center</strong>’s Annual Report for<br />

2011: <strong>Creating</strong> a <strong>World</strong> that <strong>Works</strong> for<br />

<strong>Everyone</strong>.<br />

<strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> is committed<br />

to helping individuals, families, and<br />

communities create positive change,<br />

whether it is improved educational<br />

outcomes, enhanced employability, reduced family stresses<br />

or more inclusive communities. Our support takes many<br />

forms. However, our goal is always the same: to empower<br />

people with disabilities and their families to realize their<br />

goals and to enrich communities to be able to support and<br />

value all individuals. Together, we can create a world that<br />

works for everyone.<br />

In this report, you’ll see examples of how we support people<br />

in realizing their dreams and making positive changes.<br />

Stefanie Boise wants to work. Her service coordinator at<br />

<strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> helped her obtain adaptive technology<br />

she needs to do that. Grisel Gonzalez wants her daughter<br />

to achieve in school so she can be successful in life. Support<br />

from <strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> empowered Grisel to be more<br />

effective in her daughter’s educational planning, so she can<br />

access proper educational services. D Chen learned valuable<br />

skills as a TIES student volunteer, supporting a peer who has<br />

disabilities. As a result, the community is able to witness<br />

what someone with a disability is capable of every time they<br />

see D and his friend Nick Schaertel working out at the gym.<br />

In the words of Nick’s mom, Maria, “Nick’s involvement<br />

gives community members the opportunity to welcome and<br />

embrace him …. to say to each other, ‘We want you here. We<br />

are happier and stronger when we are together.’ ”<br />

Indeed, we are stronger together. Thank you for the part you<br />

played in supporting our mission in 2011. We look forward to<br />

continuing to work together with you to create positive change.<br />

All the best,<br />

Adam Anolik Paul J. Shew<br />

President Executive Director


Change<br />

When asked what is most important to her, Stefanie<br />

Boise replied, “My independence. I only ask for help<br />

when I have to.” A strong advocate for herself, Stefanie lives<br />

in her own apartment and is very active in her community.<br />

She describes Diane Porcelli, her service coordinator from<br />

<strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong>, as “awesome,” someone who is there<br />

for her when Stefanie needs her.<br />

One thing Stefanie needed help with was being able to<br />

use the computer, because available mouse-driven and<br />

voice recognition systems did not work with her physical<br />

limitations. Diane found a mouth-driven mouse system,<br />

and now Stefanie regularly uses her computer. “I need it to<br />

be employable,” she commented.<br />

Stefanie’s next step is to work as an Advocate and<br />

Mentor for <strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong>’s <strong>Creating</strong> a Life<br />

After High School series. In that role, she will be<br />

encouraging teens to advocate for themselves and<br />

to create positive change.<br />

C H A N G E F O R T H E I N D I V I D U A L


C H A N G E F O R T H E I N D I V I D U A L<br />

Preparing Adults for Competitive Employment<br />

<strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> hosted Dr. Lou Brown, who presented on “<strong>The</strong><br />

Quest for Ordinary Life: Preparing Individuals with Disabilities to<br />

Function Productively in the Real <strong>World</strong> of Work” to an audience of<br />

two hundred individuals on October 20, 2011.<br />

Pictured at left are Elizabeth Campbell and Dr. Lou Brown.<br />

“This conference was very informative and gave me<br />

many new perspectives and experiences from others.”<br />

Success from the Start Conference<br />

-Success from the Start conference participant<br />

“It’s never too early to start planning” was the message at a conference<br />

presented by <strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> and the Ralph C. Wilson, Jr. School<br />

of Education at St. John Fisher College on September 24, 2011. <strong>The</strong><br />

conference, titled “Success from the Start: Strategies for the Journey to<br />

Adulthood,” featured keynote speaker, Dr. Loujeania Bost, Director of<br />

the National Dropout Prevention <strong>Center</strong> for Students with Disabilities<br />

at Clemson University. Over one hundred participants attended.<br />

Pictured at left are Courtney Dolan, lunch keynote speaker; Paul Shew,<br />

Executive Director; and Dr. Loujeania Bost, keynote speaker.


3,911 individuals connected to<br />

<strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> at community<br />

outreach events.<br />

5,536 callers received information<br />

and technical assistance to help them<br />

advocate for themselves or a family<br />

member.<br />

405 individuals worked with an<br />

advocate on complex advocacy issues,<br />

such as appropriate educational services.<br />

156 individuals worked with service<br />

coordinators at <strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> to<br />

plan and coordinate their supports.<br />

1,810 individuals received<br />

information and advocacy assistance<br />

from WNYADD, Inc., our affiliate<br />

agency.<br />

94% of individuals receiving<br />

information and advocacy assistance<br />

reported they learned new skills or<br />

strategies to help them advocate.<br />

“We have been<br />

very pleased with<br />

the personal<br />

attention and<br />

careful assistance<br />

we’ve received<br />

from both<br />

our <strong>Advocacy</strong><br />

<strong>Center</strong> service<br />

coordinators.”<br />

-Family member<br />

Change


C H A N G E F O R T H E F A M I L Y<br />

Change<br />

Grisel Gonzalez is glad that she met Maritza Cubi of<br />

<strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> at a workshop that Maritza<br />

presented in collaboration with Hillside Family of Agencies<br />

and Ibero-American Action League. With Maritza’s advice<br />

and coaching, Grisel was able to obtain an evaluation<br />

for her 11-year-old daughter, Alenis. <strong>The</strong> evaluation<br />

recommended a change in services for Alenis, and Grisel is<br />

looking forward to her daughter receiving the support she<br />

needs to succeed in school. “I am very grateful to Maritza,”<br />

she commented, “thanks to her, I was able to learn about<br />

my rights and the supports available for my daughter.”<br />

With information and encouragement from <strong>The</strong><br />

<strong>Advocacy</strong> <strong>Center</strong>, Grisel is securing the support her<br />

daughter needs to learn and to flourish. Alenis is on<br />

her way to a successful future.


Providing Education Online<br />

Webinars proved to be a successful way to provide information to people in a<br />

way that is convenient for them. <strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> hosted its first webinar in<br />

collaboration with Westchester Independent Living <strong>Center</strong> and Littman Krooks,<br />

LLP. <strong>The</strong> topic was transition; 53 people participated. Our second webinar, on<br />

Response to Intervention (RTI), drew 45 participants.<br />

Parents as Transition Helpers<br />

<strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong>’s Family-School Partnership piloted a series of PATH<br />

(Parents as Transition Helpers) conferences in a variety of locations. <strong>The</strong><br />

conferences provided tools and information to help parents work with their<br />

children to plan their futures.<br />

Parent Training & Information <strong>Center</strong> to Continue its Work<br />

<strong>The</strong> United States Department of Education, Office of Special Education<br />

Programs, awarded <strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> $524,874 for its Parent Training and<br />

Information <strong>Center</strong>, which serves all of New York State outside the five boroughs<br />

of New York City. <strong>The</strong> award is expected to continue annually for the next four<br />

years. Congresswoman Louise Slaughter notified <strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> of the<br />

grant. “I am delighted that <strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> has been recognized and will<br />

be able to continue their programming for parents of children with disabilities,”<br />

said Slaughter. “<strong>The</strong>y have a proven track record of helping tens of thousands of<br />

parents of children with a wide range of disabilities.”<br />

C H A N G E F O R T H E F A M I L Y


“<strong>The</strong> workshops<br />

I have attended<br />

have helped<br />

me organize<br />

my paperwork,<br />

document my<br />

issues with my<br />

child, and help<br />

communicate our<br />

needs and concerns<br />

effectively.”<br />

-Parent<br />

Change<br />

92 families received funding for<br />

needed goods and services through our<br />

family cash reimbursement program.<br />

89% of parents who received<br />

information and advocacy support<br />

reported that because of the<br />

information they received from <strong>The</strong><br />

<strong>Advocacy</strong> <strong>Center</strong>, they were able to<br />

work with the school to address a<br />

critical need for their child’s education.<br />

97% of parents who attended a<br />

workshop reported that because<br />

of the information they received<br />

at the workshop, they were more<br />

knowledgeable about how to work<br />

with schools.<br />

8,330 individuals participated in<br />

workshops to build their knowledge<br />

and skills.<br />

11,835 individuals in 57 counties<br />

received information, education,<br />

and advocacy assistance through our<br />

PTIC Core Community Partners.<br />

Core Community Partners<br />

Long Island <strong>Advocacy</strong> <strong>Center</strong><br />

Northern Regional <strong>Center</strong> for<br />

Independent Living<br />

Parent to Parent of the Capital District<br />

Parent Network of Western New York<br />

Westchester Independent<br />

Living <strong>Center</strong>


Change<br />

Nick Schaertel works out in his high school’s weight<br />

room every Monday with his friend, D Chen. As a<br />

volunteer for TIES (Together Including Every Student),<br />

D received training from <strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong>’s Kathy<br />

Costello on how to effectively support individuals with<br />

disabilities in recreational activities. When asked what he<br />

likes about being a TIES volunteer, D said, “I normally<br />

come to work out anyway. Now I have a friend to do<br />

it with.” He added that volunteering has helped him<br />

develop communication and interpersonal skills that will<br />

help him in other areas of his life.<br />

Maria Schaertel, Nick’s mother, notes how the<br />

whole community benefits from TIES: “Nick’s<br />

involvement gives community members the<br />

opportunity to welcome and embrace him. It helps<br />

to fill the basic human need to extend ourselves to<br />

others, to say to each other, ‘We want you here. We<br />

are happier and stronger when we are together.’”<br />

C H A N G E F O R T H E C O M M U N I T Y


C H A N G E F O R T H E C O M M U N I T Y<br />

Newsletter for Supporters<br />

<strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> published the first issue of <strong>Advocacy</strong> <strong>Works</strong>, a newsletter for<br />

supporters of the agency. <strong>The</strong> newsletter is available at www.advocacycenter.com.<br />

New Edition of <strong>Works</strong>hop Catalog Published<br />

<strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> published a new edition of its catalog for <strong>The</strong> <strong>Center</strong> for<br />

Community Education. Several new workshops were featured in the catalog,<br />

including Bullying: Intervention Strategies for Parents and Professionals, Diploma<br />

Options, and Getting and Keeping the First Job.<br />

End the r-word<br />

<strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> joined with people all over the world to take a stand against<br />

use of use of the r-word on March 2, 2011, the official Spread the Word to End the<br />

Word Day.<br />

Special Education <strong>Advocacy</strong> Series for Professionals<br />

<strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> offered its first five-part series for professionals on the topic<br />

of Special Education <strong>Advocacy</strong>. Professionals attended this series and learned the<br />

information and skills necessary to be effective advocates.<br />

TIES Expands<br />

TIES (Together Including Every Student), a program of <strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong>,<br />

received funding from the Finger Lakes and Western New York Developmental<br />

Disabilities Service Offices to expand its services into new areas. <strong>The</strong> program<br />

provides natural support from trained volunteers so that students with disabilities<br />

can participate in extracurricular and recreational activities.


4,747 readers received <strong>The</strong> Bridge<br />

newsletter, and 851 readers received the<br />

Family-School Partnership’s Roundtable<br />

newsletter.<br />

76 youths enjoyed activities of their choice<br />

with the one-on-one support of a TIES<br />

volunteer.<br />

49 individuals from accross New York State<br />

graduated from Partners in Policymaking,<br />

ready to create positive change in their<br />

communities.<br />

98% of individuals who attended<br />

a disability awareness workshop<br />

reported they increased their<br />

understanding of disabilities.<br />

3 local school districts collaborated<br />

with the <strong>Advocacy</strong> <strong>Center</strong> to provide<br />

Disability Awareness Days to fourth<br />

and fifth grade students. <strong>The</strong> full<br />

day of hands-on activities provides<br />

students with opportunities to<br />

understand some of the challenges of<br />

having a disability as well as ways they<br />

can support peers who happen to have<br />

a disability.<br />

“This organization<br />

has brought<br />

incredible<br />

perspective and<br />

quality experiences<br />

to our children.”<br />

- School principal<br />

Change


Supporting<br />

Change<br />

Friends<br />

of <strong>The</strong><br />

<strong>Advocacy</strong><br />

<strong>Center</strong><br />

Thank you for<br />

your contributions.<br />

Anonymous<br />

Terri Abrams<br />

Lisa B. Adkins<br />

J.B. Afoh-Manin<br />

Gloribel Albert<br />

Nancy Alvut<br />

Adam & Jennifer Anolik<br />

Cathie Armstrong<br />

Emily Arnold<br />

Jerry Baker<br />

Adepeju Bakrin<br />

Roland & Anna Barnard<br />

Michelle Battersby<br />

Robert & Susan Bayley<br />

Gary & Sue Baylor<br />

Michael Beatty<br />

William Belecz &<br />

Christopher Penders<br />

James & Bonnie Bendschneider<br />

Berkshire Farm <strong>Center</strong><br />

Erin Beyers<br />

Sheldon Biren<br />

John Biuso<br />

George Blais<br />

Jennifer Blais<br />

Judith L. Bovet-Egnor<br />

Kristin Boyle<br />

Ercel & Jean Brashear<br />

Seneca Brashear<br />

Nancy & Mike Brisbane<br />

Colleen Brown<br />

Elizabeth Buckley<br />

Julie M. Buick<br />

Beth Bullen<br />

Ken & Debra Bulter<br />

Scott & Kelly Burke<br />

Carrie & Paul Burkin<br />

David & Margaret Burns<br />

Michael & Karen Burns<br />

Michelle Cain<br />

Robert & Myra Carrier<br />

Diane Caselli<br />

Dawn Marie Castellana<br />

Barbara J. Catallo<br />

Linda Chadderdon<br />

Dr. Marie Cianca<br />

Doris Clevinger<br />

Erica Cline<br />

Kristin Conway<br />

Adele Cook<br />

Ann Costello<br />

Lillian A. Courtheoux<br />

Peter & Dorothy Crean<br />

Matthew Crowley<br />

Janet & Jay Cruz<br />

Robin Curtis<br />

John DasFaias<br />

Gary T. DeBruyn<br />

Nicholas DeLucenay<br />

Scott & Mary Ann DeLucenay<br />

Eileen Demko<br />

Barb DiMartino<br />

Amanda DiMicheli<br />

Paul DiStefano<br />

April Dixon<br />

John Doerr<br />

Lynn Donahue<br />

Linda M. Doran<br />

Carol Dovidio<br />

Geraldine Drasch<br />

Kenneth & Robin Drury<br />

Michelle Dundas<br />

Lisa Durant-Jones<br />

Keith Egnor<br />

Rosemary Eichenlaub<br />

Laurie F. Elkins<br />

Johan Engstrom<br />

Wendy Engstrom<br />

Scott & Mary Beth Fairchild<br />

Edward & Jennifer Faringer<br />

Elizabeth Fell-Dewalt<br />

Owen & Patricia Finnigan<br />

Falisha Fleisher<br />

Ruth Fried


Timothy & Barbara Galli<br />

Christine & Thomas Gibson<br />

Margaret & Francis Gilhooly<br />

Christopher Giordano<br />

Gina Gligora<br />

Martin, Donna, Jess & Joe Graen<br />

Bill & JoAnn Green<br />

Mr. & Mrs. James Grossman<br />

Brenda C. Hamling<br />

Charlotte Harvey<br />

Cindy Hempel<br />

Tracy D. Hendershott<br />

Sarah Hersey<br />

Karen Hodgeman<br />

Susan Hoh<br />

Mary E. Hotchkiss<br />

Leslie A. Hulbert<br />

Carol & Walter Hutkowski<br />

Michelle Ingle<br />

Jeffrey & Gretchen Jackson<br />

Marvin & Christina Johncox<br />

Nancy E. Johncox<br />

Laura Johnson<br />

<strong>The</strong>resa Kabes<br />

Suzanne Kahn<br />

Virginia Karl<br />

Olga Karwowski<br />

Aylanah L. Katz<br />

Kimberly Kazdan<br />

Debra & James Kenyon<br />

Greg & Kathy Kerr<br />

Neil Kerr<br />

Laura & Stephen<br />

Khederian<br />

Jean Kiedrowski<br />

Joan Kircher<br />

<strong>The</strong>odore Kitze<br />

Thomas & Barbara Klein<br />

Charles Konar<br />

Jeanne Krautwurst<br />

Cindy Kredo<br />

Tina Kreitzman<br />

Dr. & Mrs. Richard K. Kurz<br />

David Landon<br />

Lawn Maids Mowing<br />

Service<br />

Susan Lederer<br />

Sandra D. Lee<br />

Georgette Lesnak<br />

Jacqui Liebman<br />

Bill & Cindy Lill<br />

Karen Lukasiewicz<br />

Robert Lukasiewicz<br />

Jason Mancari<br />

Kristen Mancari-Koppers<br />

Berge & Elisabeth Mangerian<br />

Julie Marks<br />

Terese Mason<br />

Diane H. Mattys<br />

Heather McAdoo<br />

Kathleen McCarthy-Proulx<br />

Sharon McGovern<br />

Karen & Rob McGraw<br />

Molly Meath<br />

William & Patricia Mehls<br />

Eileen Mendoza<br />

Bruce & Pam Merkle<br />

Janet S. Merz<br />

Kathy Meskill<br />

Lenard Metzger<br />

Daniel & Rhonda Miga<br />

Richard Miga<br />

Joan F. Mitchell<br />

Calliope & Thomas Monna<br />

Robert Morse<br />

Sheila Murphy<br />

John & Susan Nettleton<br />

Emile & Ursula Nicholson<br />

Lisa Noll<br />

Craig & Lori Northrup<br />

Marybeth Nowak<br />

Kerri Noyes<br />

Obaida Omar<br />

Melinda Ophardt<br />

Teresa Ordway<br />

Jude O’Rourke<br />

Gillian Paku<br />

Michael Paolotto<br />

Margaret Pearson<br />

Skye Peebles<br />

Frank Pellegrino, Sr.<br />

Dr. Lori Jeanne Peloquin<br />

Marisa Perez<br />

Jim & Jean Perlet<br />

Charles Perotti<br />

Gina Perotti<br />

Anne Marie Perrault<br />

Jaime & Brian Pettit<br />

Sherie Pickering<br />

Sandra Hickey Pierce<br />

Darlene Pitt<br />

Pittsford Mendon High<br />

School Building Association<br />

Plymouth Spiritualist Church<br />

Thomas & Jacqueline Polito<br />

Arnold Pommerening<br />

Cindy Poole<br />

Donna Porcelli<br />

Rod & Becky Potter<br />

Diane Premnath<br />

Michael Proulx<br />

Robin Pulver


Funding Partners<br />

US Department of Education,<br />

Office of Special Education<br />

Programs<br />

NYS Office for People With<br />

Developmental Disabilities<br />

NYS Medicaid<br />

Monroe County Office of<br />

Mental Health<br />

NYS Education Department<br />

Neighborhood Legal Services, Inc.<br />

NYS Interest on Lawyer<br />

Account Fund<br />

University of Rochester<br />

Medical <strong>Center</strong>, LEND<br />

Cornell University, with NYS<br />

Developmental Disabilities<br />

Planning Council<br />

United Way Designated Donors<br />

Golisano Foundation<br />

Fred and Floy Willmott<br />

Foundation<br />

S U P P O R T I N G C H A N G E <strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong><br />

WNYADD Affiliate<br />

Funding Partner<br />

NYS Commission on<br />

Quality of Care<br />

Linda Ratliff<br />

Patricia Reagan<br />

Kim Reisch<br />

Giovanna Reynolds<br />

Deborah Ribson<br />

Mary Richardson Family<br />

David & Nancy Rose<br />

Scott & Virginia Rose<br />

Deborah Rowe-Jarrett<br />

Jodi & Stu Sacks<br />

Christine Sands<br />

Mary R. Saporito<br />

Melinda R. Saran<br />

Maureen Scherer<br />

Pam & Greg Schwarz<br />

Stephen Schwarz<br />

Bill & Karen Schwingel<br />

Kristine Scialdone-Barrett<br />

Susan M. Sears<br />

Kevin & Julie Segerson<br />

Deborah Shaughnessy<br />

Paula Silvestrone & Paul<br />

Shew<br />

Mercedes Simmons<br />

R. Judson Sloman<br />

David L. Smith<br />

Greg & Sue Smith<br />

Stephanie Smith<br />

Eileen M. Snyder<br />

Peter Snyder<br />

Shaun & Mary Beth Speicher<br />

Joanne R. Spencer<br />

Sheila Sperr<br />

Lee & Deirdre Staley<br />

Joyce Steel & Scott Williams<br />

Sarah Stein<br />

Allyn Stelljes<br />

Lisa Stephenson<br />

Sharon Stettner<br />

Denise M. Stowell<br />

Kathleen Strojny<br />

Daniel & Joann Sudillo<br />

Laura J. Sugarwala<br />

Jeanne M. Sutton<br />

Lawrence S. Taylor<br />

Stephen L. Teitel<br />

Donna Terry<br />

Sue Tharrett<br />

Antonio Toscano<br />

Jean Tydings<br />

Sandra & Patrick Tydings<br />

Lilliam Valle<br />

David Vanable<br />

Judith A. Vavonese<br />

Mark Verdi<br />

Richard P. Versprille<br />

Victoria A. Vignare<br />

Paul Visca<br />

Harry B. Vought<br />

Janine Wagner<br />

Helene Waltz<br />

Bonnie L. Watson<br />

Betsy & Rick Waugh<br />

Wegmans<br />

Jerry Wein<br />

Joyce Weir<br />

Jillian K. & John T. Welch<br />

Robert W. Weston<br />

David Wheeler<br />

Robert & Mary Jo Wich<br />

Kathleen S. Wihlen<br />

Charles & Deborah Wilke<br />

David & Donna Willome<br />

Michael & Barbara<br />

Wischnowski<br />

Ricky Wright<br />

Adelheid Wurster<br />

Ray & Jackie Yingling<br />

Yee-hung Zimmer<br />

Kathryn Zipeto<br />

Brian & Beth Zorn<br />

Matthew Zyla


<strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong>’s 6th annual major fundraising event was held June 4, 2011,<br />

at George Eastman House, a National Historic Landmark providing an exciting<br />

backdrop to the event.<br />

In addition to a wide variety of music, guests enjoyed the opportunity to: bid on artwork<br />

by local artists featured in the silent auction; stroll through the gardens; attend guided<br />

mansion tours; view gallery exhibits; and participate in a live auction. Evan Dawson of<br />

13WHAM News served as Emcee for the event.<br />

Presenting Sponsor<br />

MVP Health Care<br />

Music Sponsor<br />

AT&T<br />

Faraci Lange, LLP<br />

Art Sponsor<br />

Beth Platt & Associates, Inc.<br />

Manasi & Michael Ladrigan<br />

<strong>The</strong> ROI Companies<br />

Tru Salon<br />

Wells Fargo<br />

Dessert Sponsor<br />

Wegmans<br />

Patron Sponsor<br />

Corporate Woods<br />

Associates, LLC<br />

Diamond Packaging<br />

EOS CCA<br />

Hiscock & Barclay, LLP<br />

Islamic <strong>Center</strong> of Rochester<br />

KeyBank<br />

Mengel, Metzger, Barr<br />

& Co. LLP<br />

Mercantile Adjustment<br />

Bureau<br />

Randy Raetz, DDS<br />

Xtend Healthcare<br />

General Sponsor<br />

<strong>The</strong> Anolik Family<br />

Anonymous<br />

William Belecz &<br />

Christopher Penders<br />

Brighton Dental PLLC<br />

<strong>The</strong> Burke Group<br />

CBCS<br />

Corporate Communications<br />

Paul DiStefano<br />

EBS-RMSCO, Inc.<br />

Epoch Health Solutions, LLC<br />

FM Office Products<br />

Robert Morse<br />

Craig & Lori Northrup<br />

& Family<br />

<strong>The</strong> Pike Company, Inc.<br />

Mary Richardson Family<br />

Paula Silvestrone &<br />

Paul Shew<br />

Usherwood Office Technology<br />

Scott Williams &<br />

Joyce Steel, in memory<br />

of Charlotte Steel<br />

Supporting<br />

Change<br />

An<br />

Evening<br />

of Art<br />

and Jazz<br />

Thank you for<br />

your generous<br />

contributions.


S U P P O R T I N G C H A N G E<br />

Artists<br />

Sarah Anolik<br />

Jason Belicove<br />

Nathan Bettencourt<br />

Kristine Bouyoucos<br />

Tom Bringley<br />

Julie Buick<br />

Marlene Caroselli<br />

Cynthia Cawley<br />

Doris Clevinger<br />

Janet Cruz<br />

Paul DiStefano<br />

Elizabeth Fedison<br />

Karl Feuerherm<br />

Judith Gilvey<br />

Barbara Giordano<br />

Kathy Giordano<br />

Bill Gloss<br />

Denise Goetz<br />

Jennifer Grabowski<br />

Stephanie Gunderson<br />

Pat Gurnett<br />

Alex Holm<br />

Joe Jackson<br />

Andrew Jurman<br />

Jennie Keefer<br />

Nate Klein<br />

Tom Klein<br />

Paul Klonowski<br />

Harry Koller<br />

John Kosboth<br />

Aidan Ladrigan<br />

Manasi Ladrigan<br />

John Lenhard<br />

Shawn Lovejoy<br />

Tim Mack<br />

Jack Mars<br />

Paul Martin<br />

Kelly McGrogan<br />

Kristina Nelson<br />

Marty Ness<br />

Paul Nisbet<br />

Jeannie Nutting<br />

Michael Paolotto<br />

Sue Porcelli<br />

Kayla Rivera<br />

Michael Rivera<br />

Joan Scherff<br />

Matthew Scherff<br />

Alex Spinello<br />

Tom Sweeney<br />

Michael Teres<br />

Christine Waara<br />

Henry J. Yasses<br />

Kathleen York<br />

Diana Yurchak<br />

Auction & Event Donors<br />

2Vine<br />

Marvell Adams<br />

Albright-Knox Art Gallery<br />

Adam Anolik<br />

Arena’s Florist<br />

Laura & Kermit Arrington<br />

Janet Austin Cruz<br />

Baker Street Bakery<br />

Lori Barnard-Northrup<br />

William Belecz &<br />

Christopher Penders<br />

Jennifer Blais<br />

Blueground Jewelry<br />

Seneca Brashear<br />

Colleen Brown<br />

Buffalo Athletic Club<br />

Buffalo Bills<br />

Buffalo Sabres<br />

Julie Buick<br />

Joann Burns<br />

Brenda Cahill<br />

Casa Larga Vineyards


Linda Chadderdon<br />

Cheesy Eddie’s<br />

Chester Cab Pizza<br />

Classy Cookie & Deli<br />

Darien Lake<br />

Deltasonic<br />

Jim Diem & Family<br />

D’Marie Photography<br />

Downstairs Cabaret <strong>The</strong>atre<br />

Eagle Vale<br />

Don Eaton & Family<br />

Margaret Edinburgh<br />

Esperanza Rose<br />

Essentials Salon and Day Spa<br />

Friends of <strong>The</strong> <strong>Advocacy</strong><br />

<strong>Center</strong><br />

George Eastman House<br />

Christine Gibson<br />

Glen Moscoe Jewelers<br />

Hedonist Artisan Chocolates<br />

Cindy Hempel<br />

Tommye Hinton-Arnold<br />

Eric & Felicia Johansen<br />

Christina Johncox<br />

Edward Kennedy, Jr.<br />

Kathy Kerr<br />

Phil Kettell & Family<br />

Kittelberger Florist & Gifts<br />

Chris Klitgaard<br />

Land’s End<br />

LifeStream Rochester<br />

William & Cindy Lill<br />

Little Venice Pizzeria<br />

Lotus Salon<br />

Julie Marks<br />

Kathy McCarthy-Proulx<br />

Suzanne & Katherine McKim<br />

Memorial Art Gallery<br />

Mengel, Metzger, Barr<br />

& Co., LLP<br />

Pam Merkle<br />

Midtown Athletic Club<br />

Rhonda Miga<br />

Robert Morse<br />

Steven Morse<br />

Nazareth College Arts <strong>Center</strong><br />

Nouveau Wine & Spirits<br />

One of a Kind<br />

Open Face Eatery<br />

Palmer Food Services<br />

Payment Processing<br />

Consultants, Inc.<br />

Mike Radel & Family<br />

Ravenwood Golf Club<br />

Mary Richardson<br />

RMSC<br />

Rochester Amerks<br />

Rochester City Ballet<br />

Rochester International<br />

Jazz Festival<br />

Rochester Knighthawks<br />

RockVentures<br />

Salena’s<br />

Savoia Pastry Shoppe<br />

SeaBreeze<br />

Seneca Park Zoo<br />

Paul Shew<br />

Mercedes Simmons<br />

Southeast Family YMCA<br />

J. Claud Stewart<br />

Sticky Lips BBQ<br />

Susan B. Anthony House<br />

Tantalo Photography<br />

<strong>The</strong> Comedy Club<br />

<strong>The</strong> Pizza Chef<br />

<strong>The</strong> Sandbox Playground<br />

Thinh Nguyen Studio<br />

TP Signs<br />

Walmart<br />

Wegmans<br />

Jazz Committee<br />

William Belecz, Co-chair<br />

Joyce Steel, Co-chair<br />

Adam Anolik<br />

Janet Austin<br />

Lori Barnard-Northrup<br />

Jason Blackwell<br />

Seneca Brashear<br />

Patty Corvaia<br />

Paul DiStefano<br />

Jimmie Highsmith Jr.<br />

Christina Johncox<br />

Megan Johncox<br />

Cindy Lill<br />

Pam Merkle<br />

Yesenia Ramos<br />

Paul Shew<br />

Allyn Stelljes<br />

Lisa Stephenson<br />

Rick Wright<br />

Jazz Volunteers<br />

Nabiha Ahsan<br />

Kathleen Allen<br />

Sarah Anolik<br />

Laura Arrington


S U P P O R T I N G C H A N G E<br />

Molly Blackwell<br />

Joel Boyer<br />

Colleen Brown<br />

Julie Buick<br />

Lauren Burdett<br />

Carrie Burkin<br />

Ana Casserly<br />

Linda Chadderdon<br />

Lisa Chidsey<br />

Jay Cruz<br />

Maritza Cubi<br />

Evan Dawson<br />

April Dixon<br />

Linda Frey<br />

Kathy & Tony Giordano<br />

Cheri Greenauer<br />

Meg Henning<br />

Gretchen, Jeff, Elyse &<br />

Joe Jackson<br />

Justin & Ashlee Joachimiak<br />

Emily Johncox<br />

Katrina Jones<br />

Kathy Kerr<br />

Barb, Tom, Nate<br />

& Adam Klein<br />

Garry Koppers<br />

Kathy Koppers<br />

Bob Lukasiewicz<br />

Julie Marks<br />

Kathy McCarthy-Proulx<br />

Bruce & Dave Merkle<br />

Salah Najim<br />

Jessie Nimeh<br />

Kerri Noyes<br />

Deena Omar<br />

Nadeem Omar<br />

Obaida Omar<br />

Diane Porcelli<br />

Maria, Dave, Nick<br />

& Andrea Schaertel<br />

Norann Shiner<br />

Konstantin Silin<br />

Sarah Stein<br />

Sally Stelljes<br />

Adam Szczesny<br />

Debra Terry<br />

Jean Tydings<br />

Gwynne Wetherall<br />

Lillie Whitt<br />

Danielle Wigley<br />

Scott Williams<br />

Jackie, Ray, Rachel &<br />

Emma Yingling


REVENUES 2011 2010<br />

State & County Program Contracts 818,665 783,609<br />

Federal Program Income 675,018 625,813<br />

Medicaid 400,683 473,993<br />

Grants - Other 170,242 161,254<br />

WNYADD Affiliate 117,600 121,650<br />

Fee for Service 59,138 39,994<br />

Foundation Support 16,000 21,000<br />

Donations & Fundraising 104,068 84,340<br />

Total Revenues $2,361,414 $2,311,653<br />

EXPENSES 2011 2010<br />

Program Services 1,901,381 1,895,123<br />

Affiliate Program Services 118,080 122,638<br />

Administration 270,778 232,176<br />

Board Governance 2,311 2,922<br />

Fundraising 20,018 21,883<br />

Total Expenses $2,312,568 $2,274,742<br />

Surplus / (Deficit) $48,846 $36,911<br />

Financial Information extracted from the 2011 Independent Auditor’s Report from Mengel Metzger Barr & Co., LLP<br />

Supporting<br />

Change<br />

Financial<br />

Highlights<br />

<strong>The</strong> <strong>Advocacy</strong><br />

<strong>Center</strong>, Inc. &<br />

WNYADD, Inc.<br />

<strong>For</strong> the twelve<br />

months ending<br />

December 31, 2011


Supporting<br />

Change<br />

Volunteers<br />

Thank you for<br />

contributing your<br />

time and talents.<br />

Lay Advocates<br />

Graduates of this multisession<br />

training volunteer<br />

to assist other families<br />

with special education<br />

advocacy issues<br />

Kay Allen<br />

Tami Ayers<br />

Randy Belcher<br />

Maria Bizardi<br />

Loretta Boerman<br />

Carol Brannaka<br />

Jennifer Burdett<br />

Sara Chetney<br />

Genevieve Clark<br />

Tara A. Dantzler<br />

Kimberly Drake<br />

Carol English<br />

Tara Ferriter<br />

Colleen Gates<br />

Amanda Gleason<br />

Noreen Goodman<br />

Barbara Harris<br />

Cindy Jay<br />

Maria Kurniawan<br />

Jennifer LaBombard<br />

Suzanne Lewandoski<br />

Lisa Lockwood<br />

Terry Mann<br />

Jean McMillan<br />

Michelle Nelson<br />

Jo Ann Rawleigh<br />

Tere I. Rivera<br />

Cynthia Rivera<br />

Christine Rogers<br />

Dawn Russell<br />

Karen Sayers<br />

Stacy Shepherd-White<br />

Kathleen Skinner<br />

Mark Speck<br />

Debra Terry<br />

Denise Thomson<br />

Maria Marta Tyler<br />

Christina Van Lieshout<br />

Sarah R. Ward<br />

June Ward<br />

Deborah Wilke<br />

Rachel Wood<br />

Office Volunteers<br />

Lauren Burdette<br />

Jennifer Butwid<br />

Cindy Lill<br />

Family<br />

Reimbursement<br />

Program Advisory<br />

Committee<br />

Diane Gudonis<br />

Bruce Merkle<br />

Sueanne Paprocki<br />

Michael Root<br />

Susan Solomon<br />

Tracie Taylor<br />

Ray Yingling<br />

Disability<br />

Awareness<br />

Speakers provide<br />

disability awareness<br />

experiences to schools<br />

and community<br />

organizations<br />

Pam Boy<br />

Samantha Brown<br />

Elaine Buchovecky<br />

Kathleen Buick<br />

Brennan Coon<br />

Nancy Cox<br />

Nancy Cubi


Jim DePuy<br />

Linda DePuy<br />

Jacob Dixon<br />

Natalie Dixon<br />

Marjorie Dobra<br />

Cindy Frank<br />

Navoline Giordano<br />

Tyler Giordano<br />

Philip Greenauer<br />

Barb Harris<br />

Diane Hecht<br />

Tom Klein<br />

Kathy Kostarellis<br />

Carla Piccaretto<br />

Becky Reinhart<br />

Bethany Reinhart<br />

Dee Staley<br />

Adam Szczesny<br />

Beth Simpson<br />

Susan Vreeland<br />

Phyllis Wickerham<br />

Partners in<br />

Policymaking<br />

Volunteers<br />

Terri Abrams<br />

Jason Belicove<br />

Susan Bergmann<br />

Stacy Berman<br />

Julie Buick<br />

Jan Campito<br />

Bridget Cariello<br />

Helene Fallon<br />

Joe Gerardi<br />

Marisol Getchius<br />

Larry Greenstein<br />

Roberta Grogan<br />

Laverne Hamilton<br />

Liberty Livecchi<br />

Ellen McHugh<br />

Rosemarie Burbank Miller<br />

Namita Modasra<br />

Lee Ann Piazza<br />

Susan Platkin<br />

Stacy Rebello<br />

Jim Swart<br />

Veronica Swart<br />

Tina Veale<br />

Trish Washburn<br />

<strong>Creating</strong> A Life<br />

After High School<br />

Jason Belicove<br />

Stefanie Boise<br />

Colleen Dox-Griffith<br />

Jeanne Ricigliano<br />

Jim Sandle<br />

Joe Santecesaria<br />

Caitlin Weir<br />

Family-School<br />

Partnership<br />

Advisory<br />

Committee<br />

Nancy Consol<br />

Nancy Cubi<br />

Kelly Endres<br />

Lia Festenstein<br />

Sharon Johnson<br />

Anne McAndrew<br />

Elva McBride<br />

Jill Mundy<br />

Susie Nettleton<br />

Eileen Peters<br />

Karen Sayers<br />

S U P P O R T I N G C H A N G E


2011 board of directors<br />

Adam Anolik, President<br />

Stephen G. Schwarz, Esq., Vice President<br />

Lori Barnard-Northrup, Treasurer<br />

Paul DiStefano, Secretary<br />

Peju Bakrin, Member at Large<br />

William E. Belecz, Member at Large<br />

Rev. J. Claud Stewart, Member at Large<br />

Matthew E. Crowley<br />

Donald B. Eaton<br />

Mary Beth Fairchild<br />

Jimmie Highsmith Jr.<br />

Kevin Judge<br />

Manasi Kadam Ladrigan, MD<br />

Robert Morse<br />

Obaida Omar<br />

Mary Richardson<br />

Agnes M. Seneway<br />

Shaun P. Speicher<br />

Lisa Stephenson<br />

Tabita Torres Rodriguez<br />

Paul Visca<br />

Jeanne Krautwurst, Honorary Life Member<br />

Maythorne Winterkorn, Honorary Life Member<br />

<strong>The</strong> <strong>Advocacy</strong><br />

<strong>Center</strong> Staff 2011<br />

Terri Abrams<br />

Laura Arrington<br />

Janet Austin<br />

Jason Blackwell<br />

Jennifer Blais<br />

Angela Blue<br />

Seneca Brashear<br />

Colleen Brown<br />

Shawn Brown<br />

Tamara Bruce<br />

Julie Buick<br />

Carrie Burkin<br />

Ana Casserly<br />

Linda Chadderdon<br />

Andrew Chinappi<br />

Kathy Costello<br />

Maritza Cubi<br />

April Dixon<br />

Carol Eustace<br />

Kathy Giordano<br />

Cheri Greenauer<br />

Cindy Hempel<br />

Jenny Hutkowski<br />

Christina Johncox<br />

Kathy Kerr<br />

Barb Klein<br />

Julie Marks<br />

Kathy McCarthy-Proulx<br />

Tracey Menapace<br />

Pam Merkle<br />

Ursula Nicholson<br />

Shayla Norton<br />

Kerri Noyes<br />

Diane Porcelli<br />

Maria Schaertel<br />

Ann Scherff<br />

Paul Shew<br />

Norann Shiner<br />

Deirdre Staley<br />

Joyce Steel<br />

Allyn Stelljes<br />

Debbie Terry<br />

Danielle Wigley<br />

Rick Wright<br />

Jackie Yingling<br />

interns<br />

Marc DeMoras<br />

Victoria Makofske<br />

WNYADD STAFF 2011<br />

Gretchen Jackson<br />

Roger Nellist<br />

Jean Tydings


<strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong> empowers individuals<br />

with disabilities and their families to advocate for<br />

themselves and realize their personal goals.<br />

Together we build strong, inclusive communities<br />

by increasing the ability of community members to<br />

support and value all individuals.


<strong>The</strong> <strong>Advocacy</strong> <strong>Center</strong><br />

provides information,<br />

advocacy, service<br />

coordination,<br />

and educational<br />

opportunities for<br />

people with disabilities,<br />

their families, and the<br />

community.<br />

Contact us at<br />

585-546-1700<br />

or 1-800-650-4967<br />

(in New York State)<br />

www.advocacycenter.com<br />

Find us on facebook.<br />

Follow us on twitter.<br />

YOUR RIGHTS YOUR ISSUES YOUR CHOICES<br />

THE<br />

ADVOCACY CENTER<br />

P u t t i n g P e o p l e F i r s t<br />

590 South Avenue<br />

Rochester, NY 14620<br />

Non-Prot<br />

US POSTAGE<br />

PAID<br />

Rochester, NY<br />

Permit No. 139

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