PDA_Booklet

Recommendations

Info

Since writing this Mollie’s new school placement did breakdown. This was through no fault of the school but was due to Mollie’s increasing self-awareness of her difficulties and differences. Her controlling nature had led to the breakdown of new friendships which lowered her selfesteem. Mollie’s inability to tolerate the structure and boredom of a mainstream classroom and her difficulties with peers resulted in her becoming more and more isolated and spending more and more time in her own room with only her TA’s for company. She began having regular outbursts at school which increased her anxiety about attending because she would be very embarrassed that school staff and pupils were witnessing her outbursts. She said to me “I don’t fit in anymore, I don’t fit in anywhere, I just want to go to a school where other kids have problems like me.” We are now waiting for Mollie to attend a specialised ASD school that have experience of other pupils with PDA. Visit my blog at Shiggs55.wordpress.com
USEFUL WEBSITES NAS Autism Helpline Offers confidential information and advice on PDA and related issues. Tel: 0845 070 4004 (open 10am-4pm, Monday-Friday) Email: autismhelpline@nas.org.uk National Autistic Society www.autism.org.uk The PDA Contact Group A predominantly online support group for parents and professionals learning about PDA, it incorporates a website featuring information about PDA, it’s history and management guidelines for home and school, with a forum where parents and professionals can share ideas and strategies. Web: http://www.pdacontact.org.uk Support Forum: http://ccgi.pdacontact.org.uk/forum/index.php Tel: 0114 2589 670 (Margaret Duncan, National Coordinator for the group) Calls are preferred on Wednesdays or Thursdays but please leave an answer machine message if there is no-one to take your call. The Elizabeth Newson Centre Advice, support, training and a range of publications are available through the Elizabeth Newson Centre, part of NORSACAs Sutherland House Children’s Services in Nottingham. Web: http://www.norsaca.org.uk or http://www.sutherlandhouse.org.uk The Maze Group The Maze in Nottingham offers a drop-in centre providing support for and advice for parents, and training in Autism and PDA. Web: http://www.themazegroup.org CLEAR AND PRECISE INFO ON PDA Written and Presented by a parent of a child with PDA and ideal for teaching staff. www.youtube.com/user/bluemillicent Sensory Processing Disorder Everything you need to know about sensory processing disorder including a checklist of behaviours that can help you identify your own child’s sensory issues. http://www.sensory-processing-disorder.com/ Books Understanding Pathological Demand Avoidance Syndrome in Children: A Guide for Parents, Teachers and Other Professionals by Phil Christie, Margaret Duncan, Zara Healy and Ruth Fidler The Explosive Child by Ross W Greene, PH.D. Managing Meltdowns by Deborah Lipsky and Will Richards Raising a Sensory Smart Child by Lindsey Biel, M.A., OTR/L and Nancy Peske All available from Amazon
Page 1 and 2: PATHOLOGICAL DEMAND AVOIDANCE SYNDR
Page 3 and 4: PATHOLOGICAL DEMAND AVOIDANCE This
Page 5 and 6: PDA WHAT IS PATHOLOGICAL DEMAND AVO
Page 7 and 8: 4. Comfortable (sometimes to an ext
Page 9 and 10: What is a diagnosis? A diagnosis is
Page 11 and 12: A MANUAL FOR PARENTS, TEACHERS, SOC
Page 13 and 14: HANDLING AT SCHOOL AND AT HOME The
Page 15 and 16: Home-school liaison Teachers need c
Page 17 and 18: . You may wish to get support from
Page 19 and 20: ASPERGER’S or PDA WHAT’S THE DI
Page 21 and 22: this’, ‘I don’t have to, you
Page 23 and 24: 6. Language delay, seems result of
Page 25 and 26: Sensory Processing Disorders TACTIL
Page 27 and 28: It is important for us to break the
Page 29 and 30: It is so very difficult for them. L
Page 31 and 32: Life with a Child with PDA and our
Page 33 and 34: Home • Major tantrums if she can
Page 35 and 36: with a husband who has OCD is at an
Page 37: November 2011 On May 13th 2011 Moll

PDA_Booklet

You also want an ePaper? Increase the reach of your titles

Delete template?

Save as template?