Study No Date Data JSLE - MINI BILAG (Page 1 of 4)

* 47 Cerebellar ataxia
48 Movement disorder
* 49 Headache severe, unremitting
50 Episodic migrainous headaches
* 54 Organic depressive illness
* 57 Organic brain syndrome
Musculoskeletal
* 58 Definite myositis
60 Mild chronic myositis
61 Myalgia
* 62 Severe polyarthritis - with loss of function
* 63 Arthritis
64 Arthralgia
* 65 Tendonitis
66 Tendon contractures
and fixed deformity
Y N
67 Aseptic necrosis Y N
JSLE - MINI BILAG (Page 2 of 4)
For all questions use codes: 1 = improving; 2 = same; 3 = worse; 4 = new; 0 = not present (except for Y/N and numeric questions)
Neurological continued
51 Tension headache
52 Cluster headache
53 Headache from IC hypertension
55 Mood disorder (depression/mania)
56 Anxiety disorder
59 Myositis with incomplete criteria
Cardiovascular & Respiratory
* 68 Pleuropericardial pain
* 69 Dyspnoea
* 70 Cardiac failure
* 71 Friction rub
* 72 Effusion (pericardial or pleural)
73 Mild or intermittent chest pain
* 74 Progressive CXR
changes - lung fields
* 75 Progressive CXR
changes - heart size
* 76 ECG evidence of
pericarditis/myocarditis
* 77 Cardiac arrhythmias including
tachycardia (>100 no fever)
Y N
Y N
Y N
Y N
* 78 Pulmonary function fall by > 20% Y N
* 79 Cytohistological evidence of
inflammatory lung disease
80 Myocarditis - mild
81 New valvular dysfunction
82 Cardiac tamponade
83 Pleural effusion with dyspnoea
84 Pulmonary haemorrhage/vasculitis
85 Interstitial alveolitis/pneumonitis
86 Shrinking lung syndrome
87 Aortitis
88 Coronary vasculitis
Survey : 7120 Serial : 1 Page : 2
UK JSLE Study Group © - Version 2
Y N