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GRPCC Newsletter - Winter 2011 - GHA Central

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life & death matters<br />

<strong>Newsletter</strong> of Gippsland Region Palliative Care Consortium<br />

NO.16 WINTER <strong>2011</strong><br />

www.gha.net.au/<strong>GRPCC</strong><br />

This Issue:<br />

New Manager for <strong>GRPCC</strong><br />

Gippsland Region Palliative<br />

Care Conference<br />

– Reports & Comments<br />

Palliative Care Nurse<br />

Practitioner Candidates<br />

– An update<br />

Nurse Pactitioner Candidate<br />

– <strong>Central</strong> west region<br />

Intro to Palliative Care Short<br />

Course Graduates<br />

<strong>GRPCC</strong> Clinical Practice Group<br />

Contacts:<br />

Anne Curtin<br />

- Chair, <strong>GRPCC</strong><br />

t. (03) 5623 0614<br />

e. anne.curtin@wghg.com.au<br />

Vicki Doherty<br />

- Consortium Manager<br />

t. 0419 797 513<br />

e. vicki.doherty@bcrh.com.au<br />

Maggie Goss<br />

- Regional Volunteer Support<br />

t. (03) 5155 8300<br />

e. maggieg@glch.org.au<br />

Steve Kirkbright<br />

- Communications<br />

t. 041 202 6522<br />

e. steve@pgws.com.au<br />

Anny Byrne<br />

- PICD<br />

t. (03) 5623 0684<br />

e. anny.byrne@wghg.com.au<br />

Mary Ross-Heazlewood<br />

- Clinical Practice & Education<br />

t. (03) 5667 5661<br />

e. mary.ross-heazlewood@gshs.com.au<br />

Toine Bovill & Maryann Bills<br />

- MND Shared Care<br />

t. (03) 5623 0870<br />

e. toine.bovill@wghg.com.au<br />

Office Hours:<br />

8.30am - 4.30pm Tuesday<br />

8.30am - 4.30pm Thursday<br />

Phone Judy (03) 5623 0684<br />

From the Chair<br />

Welcome Vicki<br />

It is with great pleasure that we welcome Vicki<br />

Doherty as Consortium Manager. We know that she<br />

will fit in well and hope that you all make yourself<br />

known to her as she meets with Services and works<br />

across Gippsland Region.<br />

Introducing<br />

Vicki Doherty<br />

New Consortium Manager<br />

I am delighted and feel very privileged to be<br />

joining the Consortium at this important time. The<br />

Department of Health is in the final stages of preparing<br />

their revised palliative care<br />

policy Strengthening palliative<br />

care: Policy and strategic<br />

directions <strong>2011</strong>-2015<br />

and the Consortium is close<br />

to finalizing the Regional<br />

Palliative Care Consultancy<br />

Service Model – Operational<br />

Plan <strong>2011</strong>-2015.<br />

As an outsider, I am<br />

enormously impressed by<br />

the achievements of the<br />

Consortium to date. The high level of collaboration<br />

and support fostered by members of this Consortium is<br />

very rare. I understand that many of you are very passionate<br />

about palliative care, which is reflected in the<br />

commitment you have shown to improving the quality<br />

of palliative care in our communities.<br />

My background is primarily in primary care policy<br />

development and implementation, and program management.<br />

I have also worked in research and evaluation<br />

and community development. Having worked<br />

in government for the past five years, I am pleased to<br />

be moving back to a grass roots organization that is<br />

making a real difference on the ground.<br />

I’m a Bairnsdale bairn, lived in Sale for six years<br />

and spent many years on the move, both interstate<br />

and overseas. I’m excited to be living in Gippsland<br />

again – in Inverloch with my partner, son and golden<br />

retriever. I am often on the road but my office is<br />

located at Wonthaggi Hospital. If you are passing by<br />

please drop in and say hello, or call or email me. Otherwise,<br />

I look forward to meeting you when I visit the<br />

member services in this wonderful region shortly.<br />

The 4th Annual Gippsland Palliative Care Conference<br />

provided delegates from across Gippsland with expert<br />

keynote speakers and a full program of workshops.<br />

Conference reports & feedback inside.<br />

Conference proceedings are available on<br />

the website www.gha.net.au/<strong>GRPCC</strong><br />

Gippsland<br />

Palliative Care<br />

Conference<br />

Reports & Feedback inside<br />

As organisers of the Gippsland<br />

Palliative Care Conference we<br />

were once again delighted at the<br />

response with registrations filled<br />

within a couple of weeks. Expressions<br />

of interest came from all<br />

disciplines, but the majority were<br />

nurses from acute, aged care,<br />

community and volunteers. The<br />

conference also attracted radiologists,<br />

pharmacists and GPs.<br />

The conference was a great<br />

opportunity to network and put<br />

faces to names and voices. We can<br />

now visualise those doing such a<br />

great job at the ‘coal face’ reflecting<br />

the passion, level of care and<br />

enthusiasm we have in Gippsland<br />

Services.<br />

Feedback indicated that<br />

participants on the whole were<br />

ready and willing to embrace new<br />

ideas to improve palliative care<br />

for patients. The educational value<br />

was rated highly commending the<br />

speakers and workshop presenters.<br />

Delegates were challenged and<br />

inspired with many saying they<br />

could apply what they learned<br />

to their practice. Feedback also<br />

confirmed that opportunities for<br />

further networking would be<br />

valuable.<br />

Please read the reports and<br />

feedback inside this newsletter.<br />

Thankyou to all who contributed<br />

to another successful conference.<br />

See you next time!<br />

Life & Death<br />

Matters –the<br />

whole person<br />

Gippsland Palliative<br />

Care Conference<br />

GIPPSLAND REGION PALLIATIVE CARE CONSORTIUM NEWSLETTER NO.16 WINTER <strong>2011</strong>


Maggie Goss –Regional<br />

Volunteer Support, <strong>GRPCC</strong><br />

Some may be surprised that one of the<br />

highlights for me at the conference was the<br />

tour of the William Buckland Radiotherapy<br />

Unit.<br />

I found the whole experience confronting<br />

and at times felt quite overwhelmed<br />

emotionally as I listened to the process of<br />

undergoing radiotherapy which many of the<br />

palliative clients we support must endure.<br />

However, the whole tour was very organized,<br />

informative and I was<br />

most impressed by<br />

the patient centered<br />

approach to this<br />

mode of treatment<br />

in Traralgon. As<br />

I listened to the<br />

presenter explain the<br />

I found the<br />

whole experience<br />

confronting and at<br />

times I felt quite<br />

overwhelmed<br />

emotionally...<br />

process around the creation and use of the<br />

mask for radiotherapy clients, I found myself<br />

holding back tears as I reflected on many of<br />

the clients I have supported post this type<br />

of treatment, some so traumatized by the<br />

process that they suffered post traumatic<br />

stress.<br />

In summary, this tour was a fantastic<br />

learning experience and I now feel informed<br />

about the whole process enabling me to<br />

support clients about to undergo radiotherapy<br />

at the William Buckland Radiotherapy<br />

unit. The staff attitude towards the client’s<br />

individual needs which in some instances are<br />

often secondary to the process was positive.<br />

Big gold star for effort. I also love the<br />

beautiful “butterfly” display hanging from<br />

the ceiling for clients to see while having<br />

treatment.<br />

Life & Death<br />

Matters –the<br />

whole person<br />

Gippsland Palliative<br />

Care Conference<br />

27–28 May <strong>2011</strong><br />

Robyn Butler –Practice Nurse,<br />

Leongatha Medical Group<br />

I came away from the Palliative Care<br />

Conference inspired and encouraged after<br />

listening to Catherine Crock and parent<br />

advocates Julie and Sue. Having recently<br />

been on a journey with my husband through<br />

the public health care system, it gave me<br />

hope that things<br />

will change and that<br />

‘patient centered<br />

care’ is a possibility.<br />

It is more than<br />

unfortunate that in<br />

<strong>2011</strong> patients/family<br />

need to facilitate and<br />

advocate in a medical<br />

I encourage<br />

all health<br />

professionals<br />

to adopt the<br />

principles of<br />

‘Listening” and<br />

‘giving the patient<br />

a seat at the table’<br />

system that is not structured to give them a<br />

voice and partnership in care.<br />

I am fortunate to work in General Practice<br />

where patient centered care is a reality and<br />

I encourage all health professionals to adopt<br />

the principles of ‘Listening” and ‘giving the<br />

patient a seat at the table’. The reward is<br />

financial (as proven by Catherine) but more<br />

importantly patient health outcomes are<br />

greatly improved.<br />

Over 150 people attended the the 4th Annual<br />

Gippsland Palliative Care Conference on 27-28 May<br />

<strong>2011</strong>. The Conference attracted participants from<br />

across Gippsland and provided delegates with expert<br />

keynote speakers and a full program of workshops.<br />

Some reports and feedback are included here.<br />

Conference proceedings and most speaker’s papers<br />

are available at www.gha.net.au/<strong>GRPCC</strong>.<br />

Amanda Blandford –<br />

Integrated Care Coordinator,<br />

Bairnsdale Regional Health<br />

Service<br />

I was inspired by the conference and so<br />

pleased I went. Following the conference<br />

colleagues have met after hours with the<br />

intention of formulating a group called<br />

East Gippsland Palliative Care network. So<br />

far we have representatives from acute,<br />

community and residential aged care all<br />

focused on palliative care and patient<br />

centred care. Not sure exactly where we<br />

are heading but we have some wonderful,<br />

knowledgeable people on board. One<br />

of the most inspiring speakers for me was<br />

Dr Crock who spoke about the changes<br />

she made at the RCH. I think the parents<br />

had the most impact on me. The Human<br />

Room was very inspiring and we are in<br />

the process of doing something similar<br />

in the hospital setting. I also believe that<br />

the paging system is being looked at for<br />

oncology patients.<br />

Feedback...<br />

Just keep on<br />

doing the<br />

brilliant job<br />

and bringing<br />

these wonderful<br />

speakers to<br />

share with us.<br />

Would love to<br />

see the human<br />

room.<br />

–says AHP<br />

Patient centred<br />

approach is so<br />

worthwhile!<br />

Can change<br />

systems!<br />

–says doctor<br />

Conference Keynote Speakers (L-R) Dr Odette Spruyt. Dr Ben Hindson. Dr Catherine Crock. Dr Michael Barbarto<br />

...doctors<br />

especially need<br />

to be trained in<br />

Palliative Care<br />

–says doctor<br />

...there is no<br />

such thing as<br />

an unconscious<br />

state - Cool!<br />

–says doctor<br />

...pain and<br />

symptom relief<br />

benefits for<br />

palliation ><br />

amazing stats.<br />

–says med<br />

student<br />

GIPPSLAND REGION PALLIATIVE CARE CONSORTIUM NEWSLETTER NO.16 WINTER <strong>2011</strong>


Sue Allen –Nurse, West<br />

Gippsland Healthcare Group<br />

Dr Catherine Crock’s presentation about<br />

her experiences with Family Centred Care<br />

was fascinating. I hardly moved throughout<br />

her presentation except to maybe lean a little<br />

closer. I wanted to make sure I didn’t miss<br />

anything she or the two renegade mums she<br />

brought with her said. I found these three<br />

speakers to be delightful, inspiring and dedicated<br />

women.<br />

Catherine talked openly about her<br />

journey into developing a Family Centered<br />

Care approach at<br />

the Royal Childrens<br />

Hospital. She was<br />

very honest about<br />

the areas of her work<br />

that needed to be<br />

changed and how she<br />

went about this with<br />

a group of dedicated<br />

parents.<br />

I hardly moved<br />

throughout [this]<br />

presentation<br />

except to maybe<br />

lean a little closer.<br />

I wanted to make<br />

sure I didn’t miss<br />

anything said...<br />

Catherine was a GP and mother of five<br />

children living at Cape Patterson and working<br />

part-time at the Royal Children’s Hospital in<br />

Melbourne. Catherine was aware of the difficulties<br />

children and parents faced in relation<br />

to their treatments which was confirmed by<br />

the nurses in one unit. The room children<br />

attended for these painful procedures was<br />

now soundproof so their screaming couldn’t<br />

be heard outside the room. Catherine was<br />

very honest as she told her audience about<br />

culture on some of the wards which needed<br />

to be turned around. She faced opposition<br />

from colleagues and other healthcare professionals.<br />

This became very evident when she<br />

wanted to introduce change in the delivery<br />

of healthcare to children. These changes<br />

included giving children anaesthetics prior<br />

to Lumbar Punctures and Bone Marrow<br />

aspirates and the playing of soothing music<br />

in waiting and procedure rooms as well as<br />

providing easy to understand information<br />

(including video) about procedures responding<br />

directly to the needs of parents and<br />

children.<br />

Catherine also relayed the importance<br />

of involving parents and family members in<br />

the decision making process. Parents were<br />

encouraged to become actively involved in<br />

hospital committees which was not without<br />

it’s own difficulties. One of the parents<br />

on the committee reported that she was<br />

speaking “Duck” when everyone else was<br />

speaking “Goose”. Parents were actively<br />

involved in the development of the music<br />

and video resources (segments of which were<br />

featured at the conference)<br />

She was advised not to fraternise with<br />

the “vocal, difficult parents” Two of these<br />

“difficult” parents presented at the conference<br />

with Catherine. We were able to listen<br />

to the perspective from mums who had<br />

desperately ill children. As a mum, I listened<br />

to their stories with a lump in my throat and<br />

thought that I would want these determined,<br />

resilient, courageous women on my team if<br />

I ever had a sick child. We listened to one of<br />

the mums, who was also a nurse, talk about<br />

the challenges of traversing the health<br />

system. Even with her health background<br />

this was a challenging process which you<br />

wonder how those without medical knowledge<br />

manage.<br />

Catherine was awarded a Churchill Fellowship<br />

which took her on a research trip to<br />

the USA. She shared her findings with us on<br />

Family Centered Care and it’s delivery in the<br />

United States. One hospital had developed<br />

gardens that could be seen from windows<br />

in corridors and rooms. And for those well<br />

enough, they were able to sit in or wander<br />

through this tranquil setting. Another innovative<br />

idea which would be of great value in<br />

every work place, was a traffic light system<br />

which monitored noise levels. Lights were<br />

set up in clearly visible areas and if it was<br />

green then the noise was at an acceptable<br />

level. Amber was an indicator that the noise<br />

level was getting too high and red meant<br />

that everyone had to quieten down. It was<br />

said that studies have shown that when<br />

noise levels are kept to a minimum there<br />

was greater staff satisfaction, less medication<br />

errors and quicker patient recovery in a calm<br />

quiet environment, which ultimately leads to<br />

cost savings of the health dollar.<br />

The talk on Family Centered Care for me<br />

was engaging, funny, moving and thought<br />

provoking. Dr Crock was instrumental in<br />

setting up the ‘HUSH‘ collection of music<br />

CDs. Music on the CD’s is a collaboration<br />

from many talented musicians and plays<br />

throughout the Children’s Hospital. This has<br />

raised a significant amount of funding for<br />

the RCH and is now being incorporated into<br />

many other Children’s wards across Australia.<br />

online...<br />

View Conference proceedings at<br />

www.gha.net.au/<strong>GRPCC</strong>. See the inspiring<br />

video segment of the RCH patient centred<br />

approach developed by Dr Catherine Crock.<br />

Conference Workshop Presenters and participants (L–R)<br />

Louise Cristofaro (GRICS) & Dr Brian McDonald. Jo Kelly and Bronwyn Williams with colleagues from Bass Coast Community Health. Mary Ross-Heazlewood, Amanda Blandford, Efterpi Soropos<br />

Great<br />

interaction<br />

and good<br />

discussions on<br />

case study.<br />

–says allied<br />

health<br />

professional<br />

Be Brave, ask<br />

questions,<br />

challenge<br />

routines to<br />

better provide<br />

patient centred<br />

care<br />

–says nurse<br />

Interesting<br />

discussion on<br />

the unconscious<br />

state that<br />

challenged<br />

some current<br />

beliefs.<br />

–says nurse<br />

Very good<br />

information<br />

can use in daily<br />

practice<br />

–says nurse<br />

Thankyou to<br />

the conference<br />

delegates for<br />

these reports<br />

and valuable<br />

feedback. We<br />

look forward to<br />

meeting you all<br />

again soon.<br />

–says <strong>GRPCC</strong><br />

GIPPSLAND REGION PALLIATIVE CARE CONSORTIUM NEWSLETTER NO.16 WINTER <strong>2011</strong>


Palliative Care Nurse Practitioner Candidates<br />

From the middle of August there will be three Nurse Practitioner Candidate in Gippsland<br />

Jo Kelly from Southern region, and Jenny Turra from <strong>Central</strong> West<br />

region will soon be joined by Nicola Gorwell from the Eastern region.<br />

Throughout her nursing career Nicola has been working predominantly<br />

in Palliative Care in both community and inpatient settings in<br />

metro areas, but has more recently been working at Orbost, Mallacoota<br />

and Cann River undertaking a more diverse role while continuing<br />

to utilize her palliative care expertise.<br />

Nicola will be employed by Gippsland Lakes Community Health<br />

but her role will cover the East Gippsland region.<br />

Introducing Jenny Turra<br />

Nurse Practitioner Candidate – <strong>Central</strong> west region<br />

Jenny Turra was recently appointed as the Nurse Practitioner<br />

Candidate at Latrobe Community Health Service for the <strong>Central</strong> West<br />

Gippsland region. Jenny is working towards being an endorsed<br />

Nurse Practitioner in palliative care. This includes completing a<br />

Master of Nursing (Nurse Practitioner) through Flinders University.<br />

Jenny will be provided with local workplace training and mentoring<br />

and will also spend time with specialised palliative care services in<br />

Melbourne. She is currently working with the Palliative Care team from<br />

Calvary Healthcare Bethlehem in improving better access to specialist palliative care services in<br />

Gippsland.<br />

Once endorsed as a Nurse Practitioner, Jenny will be able to work independently at the<br />

highest clinical level in nursing. This means that Jenny will be able to:<br />

• perform advanced physical assessments<br />

• order relevant tests and interpret the results of these tests<br />

• work with the palliative care specialist<br />

• prescribe a limited range of medications and write scripts<br />

These high level skills and knowledge will help provide services to clients who have complex<br />

physical, social, psychological, and/or spiritual needs.<br />

<strong>GRPCC</strong> Clinical Practice Group<br />

membership update<br />

Cheryl Bush<br />

Dr Jane Fischer<br />

Dr Brian McDonald<br />

Vacant<br />

Jenny Turra<br />

Maryanne Bills<br />

Rachelle McKay<br />

Dr Liz Wearne<br />

Nicola Gorwell<br />

Sandy Joiner<br />

Dr Bronwyn Williams<br />

Jo Kelly<br />

Megan Daly<br />

Rosie Steele<br />

Marg Bogart<br />

Vicki Doherty<br />

Mary Ross-Heazlewood<br />

Anny Byrne<br />

Judy Coombe<br />

Chair<br />

Palliative Care Physician (Calvary Health Care Bethlehem)<br />

Palliative Care Physician (Peninsula Health)<br />

<strong>Central</strong> West Region GPs<br />

<strong>Central</strong> West Region Nurse Practitioner Candidate (Latrobe CHS)<br />

<strong>Central</strong> West Region (West Gippsland Healthcare Group)<br />

<strong>Central</strong> West Region (Latrobe CHS)<br />

Eastern Region GPs<br />

Eastern Region Nurse Practitioner Candidate (Gippsland Lakes CH)<br />

Eastern Region<br />

Southern Region GPs<br />

Southern Region Nurse Practitioner Candidate (Bass Coast CHS)<br />

Southern Region (KooWeeRup RHS)<br />

Southern Region Allied Health (Gippsland Lakes CH)<br />

Divisions of GP (<strong>Central</strong> West Gippsland DGP)<br />

<strong>GRPCC</strong> Manager<br />

<strong>GRPCC</strong> Project Worker<br />

<strong>GRPCC</strong> Project Worker<br />

<strong>GRPCC</strong> Admin Support<br />

A palliative care nurse practitioner candidate is a registered nurse<br />

engaged by a service/organisation as they work toward meeting the<br />

academic (eg approved NP Masters) and clinical requirements for<br />

endorsement as a Nurse Practitioner. The actual period of candidature<br />

varies in length according to the individuals requirements in attaining<br />

and consolidating competence at the level of a nurse practitioner.<br />

The essential components for effective skill development of the nurse<br />

practitioner candidate include mentorship in terms of medical and<br />

senior nursing support, management skills and clinical teaching.<br />

For more information about the Clinical<br />

Practice Group contact Cheryl Bush<br />

cherylb@glch.org.au<br />

Monash University<br />

Short Course<br />

Graduates of Introduction to<br />

Palliative Care Short Course<br />

The presentation ceremony for graduates<br />

of the Introduction to Palliative Care<br />

Short Course at Monash University was<br />

held on 29 July at the Churchill campus.<br />

<strong>GRPCC</strong> staff members Anthony Hooper<br />

and Mary Ross-Heazlewood were pleased<br />

to attend and Anthony is seen here receiving<br />

acknowledgement of support of the<br />

<strong>GRPCC</strong> from Dr Susan Lee.<br />

Anthony says “this course represents<br />

an effective collaboration in improving<br />

the capacity of health care providers to<br />

support people approaching end of life<br />

and their families”.<br />

Mary reported “it seemed fitting that<br />

it was Anthony’s last ‘duty’ as <strong>GRPCC</strong><br />

Manager and I just wanted you to know<br />

how valued the short course is to the<br />

participants and to the generalist health<br />

workforce within the Gippsland region as<br />

word spreads about this undergraduate<br />

course”.<br />

For more details contact Mary Ross-<br />

Heazlewood<br />

The Gippsland Region Palliative Care Consortium (<strong>GRPCC</strong>)<br />

newsletter “Life and Death Matters” aims to establish a framework for<br />

promoting and delivering high quality palliative health care services in<br />

partnership with clients, carers, families and the community into the<br />

next decade and beyond for the people in Gippsland Region.<br />

The opinions expressed in “Life and Death Matters” are those of<br />

contributors and not necessarily shared by the <strong>GRPCC</strong> or its individual<br />

member health services. The Department of Health provides <strong>GRPCC</strong><br />

with core operational funding. “Life and Death Matters” is produced<br />

quarterly and distributed free of charge. To subscribe, email your<br />

contact details to grpcc@gha.net.au<br />

The “Life and Death Matters” editorial group is Vicki Doherty<br />

(Manager, <strong>GRPCC</strong>), Steve Kirkbright (Design & Production); with regular<br />

contributors Anny Byrne, Maggie Goss, Mary Ross-Heazlewood, Toine<br />

Bovill, member health services and friends of <strong>GRPCC</strong>.<br />

Letters to the editor are welcome. Please email these to:<br />

grpcc@gha.net.au or send to: The Editor “Life and Death Matters” c/-<br />

West Gippsland Healthcare Group 41 Landsborough St Warragul 3820<br />

Victoria Australia. Phone (03) 5623 0684<br />

“Life and Death Matters” articles are identified against the relevant<br />

<strong>GRPCC</strong> priority area. For more details please refer to the <strong>GRPCC</strong><br />

Regional Plan available on the website or contact the Consortium<br />

Manager Vicki Doherty.<br />

GIPPSLAND REGION PALLIATIVE CARE CONSORTIUM NEWSLETTER NO.16 WINTER <strong>2011</strong>

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