HEFA-1999 Part 1/2nd proof - Human Fertilisation & Embryology ...

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HUMAN FERTILISATION AND EMBRYOLOGY AUTHORITY <strong>1999</strong> ANNUAL REPORT & ACCOUNTS monitor the situation. Patients concerned should be encouraged to discuss this with their doctor. Guidance for Centres Regarding the Use of Blastocyst Transfer in Treatment The WGNDRT has recognised that the practice of embryo transfer at the blastocyst stage has become widespread. Work on cattle and sheep shows that prolonged embryo culture followed by blastocyst transfer can, in some cases, give rise to neonatal problems, notably increased birthweight and fetal abnormalities. There is no evidence so far of similar changes following the transfer of human blastocysts. Nevertheless the WGNDRT felt that centres should pay particular attention to the outcome of this new form of treatment and caution patients accordingly in their patient information. 32
Communications 7 The HFE Act requires the HFEA to “publicise the services provided to the public by the HFEA or provided in pursuance of licences” and to “provide, to such extent as it considers appropriate, advice and information for persons to whom licences apply or who are receiving treatment services or providing gametes or embryos ... or may wish to do so.” 16 In fulfilling this function the HFEA offers a comprehensive range of information for current or prospective patients, donors and the general public (listed at the end of this chapter). We receive, on average, 150 requests per week for our publications. About twice a year the HFEA circulates a newsletter, HFEA Update, to licensed clinics and interested bodies, informing them of recent policy decisions and discussing areas of concern. The HFEA works closely with journalists and media researchers and supplies speakers for national and international conferences and for press, radio and television interviews. In addition, HFEA Members and staff have written articles for mainstream, specialist and patient publications. This year the HFEA’s website (www.hfea.gov.uk) was expanded to include the Patients’ Guide, the Annual Report and the Code of Practice, as well as recent press releases and summary minutes of HFEA meetings. Since 1995 the HFEA has produced an annual Patients’ Guide to DI and IVF Clinics. This is designed to be a comprehensive guide to people seeking, or considering, treatments licensed by the HFEA. During 1998–9 the HFEA has been fundamentally reassessing all aspects of the Guide. The presentation of individual patient data has changed this year to more readily reflect the different patient mixes in respect to age. We are committed to producing clinic data that is both fair to clinics and informative and understandable for patients. INTRODUCTION REVIEW OF THE PATIENTS’ GUIDE TO DI AND IVF CLINICS AND OTHER PATIENT LITERATURE 16 HFE Act 1990, section 8(c)., 33
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Page 37 and 38: CHAPTER 5 RESEARCH At 31 August 199
Page 39 and 40: CHAPTER 6 POLICY UPDATE AND ISSUES
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Page 53 and 54: Professor M H Kaufman Professor of
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