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As Seen on TV<br />

<strong>Shepherd</strong>TV.org offers<br />

SpinalColumn<br />

videos on <strong>the</strong> Web.<br />

The Magazine of <strong>Shepherd</strong> <strong>Center</strong>: Providing Medical Treatment, Research and Rehabilitation | www.shepherd.org<br />

New<br />

Voice<br />

Technology restores<br />

communication.<br />

Complex<br />

Cases<br />

<strong>Shepherd</strong> resolves<br />

medical complications.<br />

Patient<br />

Profile<br />

Former patient is<br />

flying <strong>the</strong> skies.<br />

Breathing<br />

Easier<br />

System helps patients<br />

brea<strong>the</strong> on <strong>the</strong>ir own.<br />

Fall 2009<br />

HEALING<br />

<strong>the</strong> <strong>BRAIN</strong><br />

<strong>Shepherd</strong> <strong>Center</strong> brain injury programs<br />

include specialized treatment for young<br />

stroke patients, people in semi-comatose<br />

states and soldiers injured in battle.


Letter from James <strong>Shepherd</strong><br />

Dear Friends,<br />

Photo by Gary Meek<br />

As state and federal governments push for improved and more efficient medical<br />

care for citizens, a trend is emerging among a few leading healthcare facilities,<br />

including <strong>Shepherd</strong> <strong>Center</strong>. It’s a trend toward transparency – specifically, <strong>the</strong><br />

readily available publication of data on patient outcomes and satisfaction at<br />

hospitals and o<strong>the</strong>r medical facilities.<br />

<strong>Shepherd</strong> <strong>Center</strong> has begun publishing this information on its Web site (see<br />

<strong>the</strong> Patient Care section of www.shepherd.org) – updating it quarterly – and<br />

is making it available in printed form (see <strong>the</strong> fold-out attachment on page 21<br />

in this issue of Spinal Column) to referring facilities, case managers, payers, and<br />

patients and <strong>the</strong>ir families. A few o<strong>the</strong>r facilities are publishing this information,<br />

but generally, hospitals have been slow to take this proactive step. The time has<br />

come, however, for healthcare facilities to make this information directly available<br />

to <strong>the</strong>ir customers – not relying solely upon any third party to ga<strong>the</strong>r and publish<br />

it. Our customers deserve <strong>the</strong> opportunity to make good, informed healthcare<br />

decisions based upon solid data.<br />

Organizations that publish <strong>the</strong>ir data on patient outcomes and customer<br />

satisfaction – even if it’s not perfect – convey <strong>the</strong> message that <strong>the</strong>ir institution<br />

is one of integrity and progressive thinking. <strong>Shepherd</strong> <strong>Center</strong>’s data also lets you<br />

see what an excellent job our staff does in caring for patients and meeting <strong>the</strong><br />

needs of <strong>the</strong>ir families, as well. For example, <strong>the</strong> numbers show our low, hospitalacquired<br />

infection rates, which we attribute to our dedicated respiratory <strong>the</strong>rapy<br />

and nursing staffs, as well as rigorous quality control measures. Specifically,<br />

<strong>Shepherd</strong> has been able to sustain a no-infection rate in ventilator-associated<br />

pneumonia for more than a year. That’s practically unheard of among hospitals.<br />

Ano<strong>the</strong>r reason <strong>Shepherd</strong> <strong>Center</strong> excels across <strong>the</strong> data measured is our broad<br />

continuum of care. We are one of <strong>the</strong> few places that can provide true continuity<br />

of care across all levels – from <strong>the</strong> intensive care unit to inpatient and outpatient<br />

rehabilitation <strong>the</strong>rapy to adaptive driver training to <strong>the</strong> community reintegration<br />

assistance provided by our Marcus Community Bridge Program.<br />

As our nation engages in a discussion about healthcare reform, it is our hope<br />

that transparency in patient outcomes and customer satisfaction will become <strong>the</strong><br />

norm among medical facilities. <strong>Shepherd</strong> <strong>Center</strong> is proud to be on <strong>the</strong> leading<br />

edge of this trend, which will ultimately benefit every American faced with<br />

making decisions about where to obtain healthcare services.<br />

Warm regards,<br />

SpinalColumn<br />

T h e m a g a z i n e o f S h e p h e r d C e n t e r<br />

Fa l l 2 0 0 9<br />

<strong>Shepherd</strong> <strong>Center</strong><br />

2020 Peachtree Road, NW<br />

Atlanta, Georgia 30309<br />

404-352-2020<br />

spinalcolumn@shepherd.org<br />

www.spinalcolumn.org<br />

Editor<br />

Jane M. Sanders<br />

Design<br />

Soloflight Design<br />

Contributing Writers<br />

Lauren Angelo, Sara Baxter, Larry<br />

Bowie, Pete Collman, Amanda Crowe,<br />

Kayla Eubanks, Caroline Hemingway,<br />

Dean Melcher, Anne Pearce, Bill<br />

Sanders, Scott Sikes<br />

Contributing Photographers<br />

Leita Cowart, Jim Fitts, Anthony Orig,<br />

Eric Schultz, Gary Meek, Owen Riley<br />

Board of Directors<br />

James H. <strong>Shepherd</strong>, Jr., Chairman<br />

Gary Ulicny, Ph.D., President and CEO<br />

Emory A. Schwall, Vice President<br />

William C. Fowler, Treasurer<br />

Stephen B. Goot, Corporate Secretary<br />

Alana <strong>Shepherd</strong>, Recording Secretary<br />

Members<br />

Fred V. Alias, Gregory P. Anderson,<br />

David F. Apple, Jr., M.D., Brock Bowman,<br />

M.D.*, Wilma Bunch*, James M. Caswell,<br />

Jr., Sara S. Chapman, John S. Dryman,<br />

Mitchell J. Fillhaber*, David H. Flint,<br />

Stephen B. Holleman*, Michael L. Jones,<br />

Ph.D.*, Tammy King*, Donald Peck<br />

Leslie, M.D., Bernie Marcus, Joseph R.<br />

Moderow, Julian B. Mohr, Charles T.<br />

Nunnally III, Sally D. Nunnally, Clyde<br />

<strong>Shepherd</strong> III, J. Harold <strong>Shepherd</strong>, Scott<br />

H. Sikes*, James E. Stephenson, James<br />

D. Thompson, Goodloe H. Yancey III<br />

*Ex Officio<br />

Spinal Column is published quarterly by<br />

<strong>Shepherd</strong> <strong>Center</strong>, a private, not-for-profit<br />

hospital specializing in <strong>the</strong> treatment<br />

of people with spinal cord injury and<br />

disease, acquired brain injury, multiple<br />

sclerosis and o<strong>the</strong>r neuromuscular<br />

disorders, and urological problems.<br />

E-mail change of address information or<br />

request to be removed from our mailing<br />

list to spinalcolumn@shepherd.org, or<br />

by mail to <strong>Shepherd</strong> <strong>Center</strong>, Attn: Spinal<br />

Column Mailing List, 2020 Peachtree<br />

Road, NW, Atlanta, Georgia, 30309.<br />

Please include mailing label. Spinal<br />

Column accepts no advertising. Spinal<br />

Column is a registered trademark of<br />

<strong>Shepherd</strong> <strong>Center</strong>.<br />

James H. <strong>Shepherd</strong>, Jr.<br />

Chairman of <strong>the</strong> Board


Fall2009Contents<br />

Photo by Leita Cowart<br />

SpinalColumn<br />

The Magazine of <strong>Shepherd</strong> <strong>Center</strong>:<br />

Providing Medical Treatment, Research and Rehabilitation<br />

12<br />

14<br />

Features<br />

Breathing Easier:<br />

Pacing system gives ventilator-dependent<br />

patients hope for improved quality of life.<br />

Eye Control:<br />

<strong>Shepherd</strong> evaluates vision-based<br />

communication system.<br />

15<br />

Building Professional Relationships:<br />

<strong>Shepherd</strong> <strong>Center</strong> emphasizes outreach to<br />

referring facilities and physicians.<br />

16<br />

Uncomplicating SCI Complications:<br />

<strong>Shepherd</strong> has success in resolving associated<br />

health problems in people with SCI.<br />

Cover<br />

Story<br />

19<br />

On <strong>the</strong> Net:<br />

“Catch Me on <strong>Shepherd</strong>TV.org” message<br />

debuts during Peachtree Road Race.<br />

Healing <strong>the</strong> Brain<br />

<strong>Shepherd</strong> <strong>Center</strong> brain injury<br />

programs include specialized<br />

treatment for young stroke patients,<br />

people in semi-comatose states and<br />

soldiers injured in battle.<br />

Departments<br />

2 Short Takes<br />

20 Research: Addressing Barriers to a Cure<br />

21 Managed Care Corner<br />

22 Patient Profile: Mal Zackery<br />

24 Ask <strong>the</strong> Doc Q & A<br />

25 Medical Staff Profile: John Lin, M.D.<br />

26 <strong>Shepherd</strong> Alums<br />

28 Foundation Features<br />

38 Loving Tributes<br />

About <strong>the</strong> cover:<br />

Lauren Rushen, 25, of Hartselle, Ala., experienced a<br />

stroke in September 2008. She has made tremendous<br />

progress and continues to work toward a full recovery<br />

with <strong>the</strong> help of <strong>Shepherd</strong> <strong>Center</strong>'s Acquired Brain Injury<br />

Program. Photo by Gary Meek<br />

Photo by Credit Here<br />

Photo by Leita Cowart<br />

22<br />

If you would like to make a gift to support <strong>the</strong> work<br />

you have read about, please contact Scott Sikes at <strong>the</strong><br />

<strong>Shepherd</strong> <strong>Center</strong> Foundation at 404-350-7305 or visit<br />

shepherd.org.


ShortTakes<br />

<strong>Shepherd</strong> Snapshots: A Look at News and O<strong>the</strong>r Notes<br />

Dr. Keith Tansey Appointed<br />

to ASIA Board of Directors<br />

Keith Tansey, M.D., Ph.D.,<br />

director of spinal cord injury research<br />

at <strong>Shepherd</strong> <strong>Center</strong>, has been<br />

appointed to <strong>the</strong> prestigious Board<br />

of Directors of <strong>the</strong> American Spinal<br />

Injury Association (ASIA).<br />

ASIA’s Board of Directors consists<br />

of 11 representatives, each serving<br />

a two-year term. A director is eligible to be reappointed twice<br />

following his/her initial term, for a maximum of six years. This is<br />

Dr. Tansey's first term.<br />

He has been a member of ASIA for some time and recently<br />

served as chairman of <strong>the</strong> Membership Committee. His primary<br />

board assignment for <strong>the</strong> next year will be to co-chair an effort to<br />

upgrade <strong>the</strong> ASIA Web site at www.asia-spinalinjury.org.<br />

Dr. Tansey joins two o<strong>the</strong>r <strong>Shepherd</strong> <strong>Center</strong> physicians –<br />

David Apple, Jr., M.D., and Bruce G. Green, M.D. – who have<br />

also served as ASIA board members in <strong>the</strong> past,. The National<br />

Office of ASIA is located within <strong>the</strong> Crawford Research<br />

Institute at <strong>Shepherd</strong> <strong>Center</strong>. — Caroline Hemingway<br />

Photo by Leita Cowart<br />

<strong>Shepherd</strong> <strong>Center</strong> Conducts<br />

Inpatient Satisfaction Surveys<br />

<strong>Shepherd</strong> <strong>Center</strong> is now conducting inpatient satisfaction surveys<br />

on a regular basis through a company called NRC Picker.<br />

Former patients will receive a call from Discovery Research<br />

Group on behalf of <strong>Shepherd</strong> <strong>Center</strong>. The caller will request a<br />

few minutes of time to complete a set of prepared questions.<br />

Discovery Research makes five call attempts starting about<br />

two weeks after <strong>the</strong> month of <strong>the</strong> patient’s discharge.<br />

The goal of <strong>the</strong> survey is to obtain feedback, information<br />

and opinion on <strong>the</strong> inpatient experience at <strong>Shepherd</strong> <strong>Center</strong>,<br />

and to establish and execute improvements and changes<br />

moving forward.<br />

<strong>Shepherd</strong> <strong>Center</strong> has taken previous survey results into<br />

consideration, and will implement a number of improvements,<br />

including a comprehensive handbook for <strong>the</strong><br />

families of patients, white boards in patients’ rooms<br />

to improve <strong>the</strong> level of communication, an indepth<br />

injury explanation on <strong>Shepherd</strong> <strong>Center</strong>’s<br />

site at www.shepherd.org and a permanent<br />

notebook in each Woodruff Family Residence<br />

<strong>Center</strong> apartment with information relevant<br />

to housing needs. — Caroline Hemingway<br />

Hurry and register! All Sports Camp<br />

Scheduled for Oct. 16-18<br />

<strong>Shepherd</strong> <strong>Center</strong>’s annual All Sports Camp is scheduled for<br />

Oct. 16-18 at Roosevelt Warm Springs Camp Dream in Warm<br />

Springs, Ga. The camp includes hands-on adaptive sports<br />

instruction in wheelchair basketball, quad rugby, swimming,<br />

wheelchair tennis, canoeing and kayaking, handcycling, track,<br />

field, scuba, wheelchair football and wheelchair team handball.<br />

The camp is open to adults ages 18 and up. The cost of $150<br />

includes lodging and meals. For more information, contact<br />

Matt Edens at 404-367-1287 or matt_edens@shepherd.org.<br />

Register online at: www.shepherd.org/allsportscamp.<br />

<strong>Shepherd</strong> <strong>Center</strong> File Photo<br />

<strong>Shepherd</strong> <strong>Center</strong> Physical<br />

Therapist Named Emerging Leader<br />

<strong>Shepherd</strong> <strong>Center</strong> spinal cord injury<br />

physical <strong>the</strong>rapist Joy Bruce recently<br />

received <strong>the</strong> American<br />

Physical Therapy Association’s<br />

Emerging Leader Award for 2008.<br />

This honor is given to one PT who<br />

demonstrates extraordinary service<br />

and makes exceptional contributions<br />

to APTA and <strong>the</strong> physical<br />

<strong>the</strong>rapy profession.<br />

Aside from her role as a PT, Bruce conducts clinical<br />

research with <strong>Shepherd</strong> <strong>Center</strong>’s new Spinal Cord Injury<br />

Research Laboratory. Studies she’s coordinating include a<br />

project with <strong>the</strong> Georgia Institute of Technology investigating<br />

<strong>the</strong> Tongue Drive wheelchair navigation system for people<br />

with quadriplegia and a project with <strong>the</strong> University of Georgia<br />

on <strong>the</strong> effects on muscle plasticity and glucose tolerance of<br />

an electrically stimulated streng<strong>the</strong>ning program.<br />

“It is an honor to be recognized by my peers,” Bruce says.<br />

“We cannot overestimate <strong>the</strong> importance of having strong<br />

leaders to guide research and education, and to advocate for<br />

patients and <strong>the</strong> profession.”<br />

Bruce praises <strong>the</strong> mentorship she receives from <strong>Shepherd</strong>’s<br />

clinicians and managers as a guiding force in her ability to<br />

emerge as a leader in her profession. — Kayla Eubanks<br />

Photo by Kayla Eubanks<br />

2 Spinal Column<br />

w w w. s h e p h e r d . o r g


Newly Integrated Sip-and-Puff System<br />

Gives Patients More Independence<br />

When <strong>Shepherd</strong> patient James Brown wants a little more light in his<br />

room, it’s as easy as a simple blow into a straw, <strong>the</strong>n a puff, thanks to a<br />

new, integrated sip-and-puff control system developed by <strong>Shepherd</strong>’s<br />

Assistive Technology <strong>Center</strong>.<br />

The system gives James <strong>the</strong> ability to control <strong>the</strong> lights and o<strong>the</strong>r<br />

technology in his room through a single device, which gives quadriplegic<br />

patients like him as much control as possible over <strong>the</strong>ir surroundings,<br />

says Assistive Technology <strong>Center</strong> manager John Anschutz, who<br />

developed <strong>the</strong> system with help from Jiasheng He, a Georgia Institute<br />

of Technology student who interned at <strong>Shepherd</strong> this past summer.<br />

“It gives <strong>the</strong> patient a sense of controlling <strong>the</strong>ir environment, which<br />

is important,” John says. “James told us that 16 years ago, when he<br />

was first injured, he had no control and felt stuck, like he couldn’t do<br />

anything. This system takes that away.”<br />

James helped John and his staff test <strong>the</strong> system, which allows <strong>the</strong><br />

user to adjust lights, control a television’s power and channels, make<br />

phone calls and summon a nurse.<br />

The system represents a huge upgrade, James says.<br />

“Controlling your environment is huge,” he explains. “This is really<br />

cutting-edge technology compared to where we were 16 years ago.<br />

When I was first injured, I had to call my mom all <strong>the</strong> time to do<br />

things for me.”<br />

Ultimately, John and his staff want to provide a cost-effective version<br />

of <strong>the</strong> integrated sip-and-puff system to patients like James for<br />

use in <strong>the</strong>ir homes.<br />

“First, we want to get this system into <strong>the</strong> hospital rooms of all<br />

patients who need <strong>the</strong>m, and <strong>the</strong>n get systems into <strong>the</strong>ir homes,” John<br />

says. “We have some steep hills to climb to get <strong>the</strong>re. We want to keep it<br />

simple and cheap and fill a niche where <strong>the</strong>re isn’t a lot out <strong>the</strong>re that is<br />

inexpensive.” — Bill Sanders<br />

Above: <strong>Shepherd</strong> <strong>Center</strong> Assistive Technology <strong>Center</strong> manager John<br />

Anschutz and Georgia Tech student Jiasheng He developed a new,<br />

integrated sip-and-puff control system with input from patient James<br />

Brown of Conyers, Ga.<br />

Photo by Gary Meek<br />

<strong>Shepherd</strong> <strong>Center</strong> and SkiMore Tours<br />

Offer Annual Adaptive Skiing Trip<br />

<strong>Shepherd</strong> <strong>Center</strong> and SkiMore Tours have planned<br />

a trip to Breckenridge, Colo., this winter for adaptive<br />

snow skiing for beginners to advanced skiers<br />

with physical disabilities.<br />

The trip, scheduled for Jan. 17-22, 2010,<br />

includes private adaptive skiing lessons, lift tickets,<br />

equipment, hotel accommodations, transportation<br />

from <strong>the</strong> airport to <strong>the</strong> hotel and two group dinners.<br />

People of all abilities are welcome, as well as<br />

<strong>the</strong>ir families and friends. Advance registration<br />

is required.<br />

For more information, contact <strong>Shepherd</strong> <strong>Center</strong><br />

<strong>the</strong>rapeutic recreation <strong>the</strong>rapist Katie Murphy at<br />

404-350-7488 or katie_murphy@shepherd.org. Or,<br />

go to www.skimoretours.com.<br />

<strong>Shepherd</strong> Launches<br />

New Web Site<br />

<strong>Shepherd</strong> <strong>Center</strong> has a new home on <strong>the</strong> Internet.<br />

This fall, <strong>the</strong> <strong>Center</strong> launched a redesigned Web<br />

site to keep pace with <strong>the</strong> overwhelming number<br />

of people who visit <strong>the</strong> site each day to learn more<br />

about <strong>the</strong> <strong>Shepherd</strong> experience.<br />

The new site, at www.shepherd.org, features<br />

several new features, including an updated overview<br />

of care programs, patient and program videos, and<br />

new online functions for submitting a referral or<br />

joining a research study.<br />

More and more people are now using <strong>the</strong> Internet<br />

when choosing a rehabilitation facility for <strong>the</strong>ir loved<br />

one. The new site is geared<br />

to helping people who are<br />

considering <strong>Shepherd</strong> as a<br />

rehabilitation option.<br />

In addition, a number<br />

of o<strong>the</strong>r types of visitors<br />

will find something of<br />

interest on <strong>the</strong> new site,<br />

including people interested<br />

in <strong>Shepherd</strong>’s research<br />

programs, clinical trials,<br />

volunteering or giving<br />

opportunities. There is<br />

also information available for download on injury<br />

prevention tips and resources related to disabilities.<br />

<strong>Shepherd</strong> <strong>Center</strong> expects to continue upgrading<br />

and improving <strong>the</strong> site. If you have any feedback<br />

about something you’d like to see, please contact<br />

Larry Bowie at larry_bowie@shepherd.org.<br />

Fall 2009 3


CoverStory<br />

Photo by Gary Meek<br />

Lauren Rushen, 25, of Hartselle, Ala.,<br />

experienced a stroke in September 2008. She<br />

completed <strong>Shepherd</strong> <strong>Center</strong>'s Young Stroke<br />

Rehabilitation Program. Recently, she returned<br />

to visit with several of her <strong>the</strong>rapists, left to right,<br />

Erin Mattingly, Jane Woodward and Lora Harvey.<br />

4 Spinal Column<br />

w w w. s h e p h e r d . o r g


HEALING<br />

<strong>the</strong> brain<br />

<strong>Shepherd</strong> <strong>Center</strong> brain injury programs include specialized treatment for young stroke<br />

patients, people in semi-comatose states and soldiers injured in battle. By Bill Sanders<br />

Twenty-five-year-olds aren’t supposed to have strokes, particularly those in good<br />

health and with few, if any, risk factors.<br />

And nei<strong>the</strong>r should 20-year-olds spend five weeks in a coma, nor should 22-<br />

year-olds experience <strong>the</strong> death and destruction of war.<br />

But, in reality, <strong>the</strong>se things happen, and that’s why <strong>Shepherd</strong> <strong>Center</strong>’s Acquired<br />

Brain Injury (ABI) Program has designed three unique, specialized programs<br />

among <strong>the</strong> many in its broad continuum of care.<br />

<strong>Shepherd</strong>’s Young Stroke Program treats stroke patients in <strong>the</strong>ir 20s, 30s and<br />

40s, helping <strong>the</strong>m with parenting skills, work re-entry or academic skills if <strong>the</strong>y are<br />

still in school.<br />

“For just about all of <strong>the</strong>m, <strong>the</strong>re is a change in lifestyle,” says ABI program director<br />

Susan Johnson, MA, CCC, CCM. “We teach <strong>the</strong>m strategies to live to <strong>the</strong>ir highest<br />

level of independence while focusing on re-integrating into <strong>the</strong>ir community.”<br />

<strong>Shepherd</strong>’s Pre-Rehabilitation and Education Program (PREP) admits patients who<br />

are semi-comatose or in a minimally conscious state for a five-week program that<br />

focuses on medical, pharmacological and equipment needs, while optimizing <strong>the</strong>ir<br />

recovery for emergence from <strong>the</strong>ir coma. The program also focuses on educating<br />

<strong>the</strong> patient’s family on how to take care of <strong>the</strong>ir loved one once he or she goes home.<br />

Patients who emerge from <strong>the</strong>ir coma go directly into <strong>Shepherd</strong>’s intensive rehabilitation<br />

program. Those who do not are discharged to <strong>the</strong>ir home or an alternative setting<br />

that supports <strong>the</strong>ir ongoing needs until <strong>the</strong>y are ready for more intensive <strong>the</strong>rapy.<br />

“We started PREP nine years ago because managed care policies were forcing<br />

families to take 18- or 19-year-old semi-comatose or minimally conscious patients to<br />

nursing homes because <strong>the</strong>re were little to no o<strong>the</strong>r alternatives,” Johnson explains.<br />

Fall 2009 5


“<strong>Shepherd</strong> brought her<br />

back from <strong>the</strong> dead.<br />

Had God not led us<br />

to <strong>Shepherd</strong>, Lauren<br />

wouldn’t have gotten well.”<br />

—Donna Rushen, mo<strong>the</strong>r of<br />

patient Lauren Rushen<br />

“Initially, only a few insurance companies agreed to pay for this level<br />

of care. In time, many insurance companies began to see <strong>the</strong> benefits<br />

with fewer rehospitalizations down <strong>the</strong> road.”<br />

And <strong>Shepherd</strong>’s SHARE Initiative, which began in early 2008,<br />

provides additional care to U.S. soldiers who sustain brain and/or<br />

spinal cord injuries while serving in Iraq or Afghanistan. SHARE is a<br />

partnership between <strong>Shepherd</strong>, <strong>the</strong> military’s healthcare services provider<br />

and Atlanta philanthropist Bernie Marcus, whose gift started <strong>the</strong><br />

program. SHARE funds cover needs and services outside <strong>the</strong> scope of<br />

benefits provided by <strong>the</strong> Department of Veterans Affairs and Humana<br />

Military Healthcare Services. Examples include personal support<br />

services, transportation, housing for family members, groceries and<br />

<strong>Shepherd</strong>’s Beyond Therapy activity-based <strong>the</strong>rapy program.<br />

Photo by Eric Schultz<br />

Above: After more than a year since her<br />

stroke, Lauren Rushen is working part<br />

time and living with her family, enjoying<br />

<strong>the</strong>ir horses, dogs and pond that sit on<br />

<strong>the</strong> family's 40-acre farm southwest<br />

of Huntsville. Her mo<strong>the</strong>r, Donna,<br />

thanks God that Lauren came to<br />

<strong>Shepherd</strong> for rehabilitation.<br />

Young Stroke Program<br />

Fortunately for Lauren Rushen, 25, of Hartselle, Ala., <strong>Shepherd</strong> <strong>Center</strong><br />

has a subspecialty program designed specifically for patients like her.<br />

On Sept. 17, 2008, Lauren got a bad headache – or toothache, she<br />

thought. She couldn’t specify exactly where <strong>the</strong> pain originated. But it<br />

was bad. And <strong>the</strong> timing for it was bad, too. Lauren, a case manager at<br />

<strong>the</strong> North Central Alabama Mental Retardation Authority in Decatur,<br />

Ala., was preparing for a visit <strong>the</strong> next day by Medicaid reviewers, who<br />

routinely examine <strong>the</strong> agency’s files.<br />

“I woke up Sept. 18 and couldn’t go to work,” Lauren recalls. “And on<br />

that day, it was a big deal. I had gone to <strong>the</strong> dentist <strong>the</strong> day before, and<br />

he thought maybe I needed a root canal, and he gave me some penicillin<br />

and Percocet. Then on this day, I got up and went to <strong>the</strong> chiropractor,<br />

thinking it might be TMJ (a jaw condition that causes pain).<br />

“I went to my mom’s house, and she was sick with a stomach virus, and<br />

we were both kind of reclining, her on <strong>the</strong> couch, me on a chair. I tried to<br />

get up and slid into <strong>the</strong> floor as my left side just collapsed. I couldn’t get<br />

up. My mom called 911, which we all thought was an overreaction.”<br />

But Lauren’s mom, Donna Rushen, wasn’t overreacting.<br />

Lauren had experienced a stroke that was severe enough for doctors<br />

in Huntsville, Ala., to put her in an induced paralytic state for 12 days<br />

and perform a craniotomy to help relieve <strong>the</strong> swelling of her brain.<br />

Initially, doctors were unable to offer <strong>the</strong> Rushen family any hope for<br />

Lauren’s recovery.<br />

But now, a year later, Lauren is home, working part time and living<br />

with her family, enjoying <strong>the</strong>ir horses, swimming pool and pond that<br />

sit on <strong>the</strong>ir 40-acre farm southwest of Huntsville. Mom and daughter<br />

bicker a bit at one ano<strong>the</strong>r: “She calls me Attila,” Donna says. But it’s<br />

good-natured ribbing – born from relief and fed by <strong>the</strong> reality that<br />

<strong>the</strong>y came close to losing one ano<strong>the</strong>r. Recalling Lauren’s initial prognosis<br />

still brings tears to Donna’s eyes.<br />

“When we left Huntsville for <strong>Shepherd</strong> <strong>Center</strong>, I had no idea she’d<br />

be like she is now,” Donna recalls as she makes iced tea in her kitchen.<br />

“We’d never heard of <strong>Shepherd</strong>, but while we were at <strong>the</strong> hospital in<br />

Huntsville, we heard from nurses who told us, ‘Don’t go anywhere but<br />

<strong>Shepherd</strong>.’ God took us <strong>the</strong>re. I’m sure of that.”<br />

6 Spinal Column w w w. s h e p h e r d . o r g


ain injury statistics<br />

<strong>Shepherd</strong> <strong>Center</strong> Brain Injury Inpatient<br />

Admissions by Injury Type, Fiscal Year 2009<br />

<strong>Shepherd</strong> Pathways Post-Acute<br />

Admissions by Injury Type, Fiscal Year 2009 SHARE Initiative Admissions, March 2008-July 2009<br />

144<br />

ATV<br />

Falls<br />

Automobile<br />

Traumatic Brain Injury<br />

Anoxia,<br />

Encephalopathies<br />

21<br />

Traumatic<br />

Brain Injury<br />

Non-Traumatic<br />

25<br />

= 143<br />

Brain Injury<br />

34<br />

Non-Traumatic Brain Injury<br />

Stroke<br />

43<br />

Clinical<br />

Population:<br />

Brain<br />

63%<br />

Spinal Cord<br />

Injury<br />

30%<br />

Pain<br />

Management<br />

7%<br />

For statistics on patient outcomes, see <strong>the</strong> “Why <strong>Shepherd</strong>?” tear-out information<br />

attached to page 21 in this issue of Spinal Column.<br />

Patient Military Service Status:<br />

53% = active duty<br />

47% = separated<br />

94<br />

Total<br />

Lauren’s treatment at <strong>Shepherd</strong> was nothing out of <strong>the</strong> ordinary<br />

by <strong>Shepherd</strong> standards. But try telling that to a mom who had visited<br />

a couple of general rehabilitation facilities that were potential<br />

alternatives for her daughter.<br />

“<strong>Shepherd</strong> – I’m going to start crying now – brought her back<br />

from <strong>the</strong> dead,” Donna says. “When she got <strong>the</strong>re, her voice wasn’t<br />

even a whisper. She couldn’t swallow, hadn’t sat up in 34 days, and<br />

we walked in <strong>the</strong>re, and on <strong>the</strong> first day, <strong>the</strong>y had her sitting up. I<br />

was afraid <strong>the</strong>y were hurting her, but <strong>the</strong>y knew what <strong>the</strong>y were<br />

doing. Then <strong>the</strong>y had her standing, and she’d feel ligh<strong>the</strong>aded and<br />

nauseated, and I’d worry. But again, <strong>the</strong>y knew best. Had God not<br />

led us to <strong>Shepherd</strong>, Lauren wouldn’t have gotten well.”<br />

Trauma doctors told Donna and her family that Lauren was<br />

brain damaged. At <strong>Shepherd</strong>, <strong>the</strong> staff told her that Lauren had<br />

a brain injury. Subtle difference? Maybe. But to Donna, it meant<br />

hope versus despair, dignity versus stigma. Even today, saying ‘brain<br />

damaged versus a brain injury’ brings tears to Donna’s eyes.<br />

As for Lauren, she returned to work part time in spring 2009,<br />

and she believes she’s almost 100 percent back to her former life.<br />

In reality, she’s not yet, but she may be soon, Donna says. Young<br />

stroke patients who rehabilitate at <strong>Shepherd</strong> often continue<br />

recovering for years.<br />

“They say my reaction time is still a bit slow and that my reasoning<br />

and judgment and problem-solving abilities are still affected,”<br />

Lauren says. “I don’t see that, don’t really believe it. But <strong>the</strong>y tell me<br />

that denial is part of it. So maybe it is.”<br />

Today, Lauren walks with a slight limp in her left leg, and she<br />

has perhaps <strong>the</strong> slightest droop on one side of her mouth. But that<br />

disappears when Lauren smiles, which is often, and in time, it will<br />

probably disappear altoge<strong>the</strong>r.<br />

Lauren has not returned to driving or living alone yet, but just<br />

about every o<strong>the</strong>r part of her life is back to how it used to be.<br />

Her boss, Earl Brightwell, says it was a delight to have Lauren<br />

return to work and that her responsibilities will increase in time.<br />

“She’s assisting with office chores, and it is great to see how<br />

much recovery she has made,” he adds. “We are looking forward<br />

to her continued recovery. She is a great asset to us as we serve<br />

people with intellectual disabilities. She is an excellent coordinator<br />

and has a sincere interest in <strong>the</strong> people she serves. They are all very<br />

excited to have her back.”<br />

PREP Program<br />

Joel Rodriguez, 20, of Gulf Breeze, Fla., sustained a traumatic<br />

brain injury in a T-bone automobile crash on April 1, 2009. The<br />

crash, which was caused by a drunk driver, killed one of his best<br />

friends and left Joel in a semi-comatose state. He came to<br />

<strong>Shepherd</strong> as a PREP patient.<br />

“The PREP program helps medically stabilize semi-comatose<br />

or minimally conscious patients and prepare <strong>the</strong>m for <strong>the</strong> intensity<br />

of a full rehabilitation program,” explains Darryl Kaelin,<br />

M.D., medical director of <strong>the</strong> Acquired Brain Injury Program.<br />

Fall 2009 7


“Sixty to 70 percent of <strong>the</strong>se patients end up getting into a regular<br />

rehabilitation program.”<br />

PREP also addresses <strong>the</strong> patient’s family’s concerns about caring<br />

for <strong>the</strong>ir loved one. “The physicians and ABI staff involve <strong>the</strong> family<br />

and educate <strong>the</strong>m about caring for <strong>the</strong> patient from <strong>the</strong> beginning,”<br />

Dr. Kaelin says.<br />

“From <strong>the</strong> first day we got <strong>the</strong>re, I was shocked to see a team<br />

here waiting for us,” recalls Joel’s mom, Nancy Rodriguez. “It was<br />

amazing. They checked him out and started to explain things to me.<br />

It was so calming <strong>the</strong> way <strong>the</strong> doctors talked to me, how thorough<br />

<strong>the</strong>y were in giving me test results, telling me everything <strong>the</strong>y were<br />

going to do.”<br />

After about two weeks in <strong>the</strong> PREP program, Joel emerged<br />

from <strong>the</strong> semi-comatose state he was in. Then he underwent<br />

<strong>the</strong>rapy in <strong>Shepherd</strong>’s inpatient program and continued rehabilitation<br />

in <strong>the</strong> post-acute residential program at <strong>Shepherd</strong> Pathways.<br />

Joel does not remember much of <strong>the</strong> first few weeks he spent at<br />

<strong>Shepherd</strong>. His perception of <strong>the</strong> time he spent in <strong>the</strong>rapy at<br />

<strong>Shepherd</strong> is skewed, and just a week or so into his <strong>the</strong>rapy at<br />

Pathways, he felt like he was ready to return home. Like many braininjured<br />

patients, Joel’s lack of insight into his injuries caused him to<br />

doubt his need for continued cognitive <strong>the</strong>rapy, Dr. Kaelin notes.<br />

But Joel’s mom knew it was best for her son to complete <strong>the</strong><br />

full continuum of care that <strong>Shepherd</strong> offers for people with brain<br />

injuries. “I have faith in this place,” Nancy says. “I wanted what was<br />

best for Joel, so we stayed until he was ready to be released. The<br />

people at <strong>Shepherd</strong> knew <strong>the</strong>re was still healing that needed to<br />

happen inside Joel’s brain.”<br />

At Pathways, Joel attended classes that challenged him to use<br />

cognitive reasoning and problem-solving skills. He also continued<br />

physical, occupational and speech <strong>the</strong>rapy, and participated in<br />

group and individual counseling. Joel worked to regain function<br />

in his paralyzed left arm and leg. He can walk short distances<br />

with some assistance now, but continues to use a wheelchair for<br />

longer walks.<br />

One thing he particularly enjoyed during his <strong>the</strong>rapy was<br />

playing Wii video games that helped improve his eye-hand<br />

coordination. He also kept in touch with his friends back home,<br />

some of whom visited him at <strong>Shepherd</strong>. And Joel imagined <strong>the</strong><br />

things he’ll do as he continues to recover.<br />

“I could dance really good,” Joel says. “I ought to get out of this<br />

chair and show you how good. I could run fast and liked playing<br />

basketball and football. I can’t play those now. Maybe later. I<br />

hope in a year or so. I think I’ll have everything back.”<br />

Sary Newman, a physical <strong>the</strong>rapist at Pathways, believes Joel<br />

will indeed be back to his old self in time.<br />

“From a physical standpoint, his prognosis is good,” she says.<br />

“But he’s not seeing <strong>the</strong> big picture right now and is frustrated.<br />

That can take a while – maybe a couple of years. But he’s got a<br />

great family who loves him, and he’s getting good care.”<br />

SHARE Initiative<br />

Smiles don’t flow easily from <strong>the</strong> face of 22-year-old U.S.<br />

Army Specialist Greg Hutchinson – even now, with his whole<br />

life ahead of him. The horrors of war are still very much a part<br />

of him. But thanks to <strong>the</strong> SHARE Initiative at <strong>Shepherd</strong><br />

<strong>Center</strong>, <strong>the</strong>y are no longer <strong>the</strong> sole defining statement of who<br />

he is or who he can become.<br />

“Six months ago, I couldn’t make it out to lunch,” Greg says.<br />

“I’m a totally different person now. I have a different outlook.<br />

Six months ago, if you were wearing a jacket, I’d be wondering<br />

Photos by Gary Meek<br />

8 Spinal Column w w w. s h e p h e r d . o r g


what you had underneath <strong>the</strong> jacket. My physical pain was<br />

through <strong>the</strong> roof, but I was also hyper-alert, hyper-sensitive,<br />

paranoid, isolated.”<br />

Today, Greg is none of those things. But he knows he’s still<br />

a work in progress. The difficult task of putting his life back<br />

toge<strong>the</strong>r is not done – not by a long shot. But <strong>the</strong>re is hope<br />

where <strong>the</strong>re once was only fear and despair.<br />

Greg doesn’t talk about his combat experience in Iraq. But<br />

he was injured in a blast explosion in October 2007 – one<br />

that damaged his brain, back and legs. He came back home a<br />

broken and battered man.<br />

“His lingering effects included PTSD (post-traumatic<br />

stress disorder), headaches, memory problems, dizziness,<br />

multiple musculo-skeletal pains and insomnia,” Dr. Kaelin<br />

says. “We look at this kind of patient as an onion with many<br />

layers that you have to peel back one at a time.<br />

“Greg was one of <strong>the</strong> more affected or impaired patients of<br />

anyone we’d seen,” Dr. Kaelin adds. “But he decided we knew<br />

what we were doing and jumped on board with us and gave it<br />

his all. He’s gotten better control of his pain and his emotional<br />

state – with less medication. He more independently<br />

manages his stressors and is emotionally stable.”<br />

Greg gives all <strong>the</strong> credit for his improvement to <strong>the</strong><br />

SHARE Initiative.<br />

“I’ve been to all <strong>the</strong> big places that <strong>the</strong>y tend to send<br />

patients like me,” Greg says. “Nothing has come close to this<br />

place. I came here thinking I was weird, that something was<br />

not right with me. What I learned here, through group sessions<br />

and informal talks with o<strong>the</strong>r patients, was that what I<br />

was feeling was normal for someone who had gone through<br />

what I had gone through.”<br />

Photo by Gary Meek<br />

“From <strong>the</strong> first day we got <strong>the</strong>re, I was shocked to see a<br />

team here waiting for us. It was amazing. They checked him<br />

out and started to explain things to me. It was so calming<br />

<strong>the</strong> way <strong>the</strong> doctors talked to me”<br />

—Nancy Rodriguez, mo<strong>the</strong>r of patient Joel Rodriguez<br />

Far Left: Darryl Kaelin, M.D., is medical director of <strong>Shepherd</strong>'s Acquired Brain Injury Program. Left: Even though<br />

her son Joel Rodriguez thought he was ready to return home after a couple of weeks at <strong>Shepherd</strong> Pathways,<br />

Nancy Rodriguez decided her son should stay until he completed <strong>the</strong> full continuum of care <strong>Shepherd</strong> offers for<br />

brain injury patients.<br />

Above: Sary Newman, right, one of Joel Rodriguez' <strong>the</strong>rapists at <strong>Shepherd</strong> Pathways, says his physical prognosis<br />

is good, and she thinks he will recover cognitively in time.<br />

Fall 2009 9


Photo by Gary Meek<br />

Photo by Leita Cowart<br />

Below: Greg Hutchinson discharged from <strong>the</strong><br />

SHARE Initiative at <strong>Shepherd</strong> <strong>Center</strong> this past<br />

summer. His treatment team believes he is<br />

prepared to face <strong>the</strong> challenges ahead. While<br />

in <strong>the</strong> program, he participated in equestrian<br />

<strong>the</strong>rapy at Chastain Horse Park in Atlanta.<br />

In <strong>the</strong> SHARE program, soldiers are housed<br />

toge<strong>the</strong>r near <strong>Shepherd</strong> – much like <strong>the</strong>y would<br />

be when on active duty – and go through <strong>the</strong> long<br />

process of healing toge<strong>the</strong>r. The military-like setup<br />

is part of <strong>the</strong> reason <strong>the</strong> program is so effective, Dr.<br />

Kaelin says.<br />

“Wounded soldiers tend to be more comfortable if<br />

<strong>the</strong>y are left in a military environment,” he explains.<br />

“So we house <strong>the</strong> patients toge<strong>the</strong>r instead of mixing<br />

<strong>the</strong>m into <strong>the</strong> civilian patient population. They get to<br />

be around o<strong>the</strong>r patients who are in similar situations,<br />

and that helps <strong>the</strong>m in <strong>the</strong>rapy – even informally.”<br />

Greg’s healing began once he realized he could<br />

let his guard down around staff and o<strong>the</strong>r patients –<br />

including ones who outranked him, he says.<br />

“You had to practice what you were learning, and<br />

that’s hard to do <strong>the</strong> first few weeks,” Greg recalls.<br />

“When you’re in <strong>the</strong> Army, you are taught to always<br />

have your dukes up. Once you figure out that you can<br />

let your hands down and trust people, and that <strong>the</strong>re<br />

were no ranks in <strong>the</strong> groups, <strong>the</strong>n you could start<br />

healing. I’ve been able to help o<strong>the</strong>rs go through that<br />

process. Most of us don’t have anyone else. I might<br />

have had experiences in combat and working through<br />

those issues that can help someone else. Or <strong>the</strong>y might<br />

have strategies that can help me. The PTSD – and all<br />

of <strong>the</strong> emotions – is <strong>the</strong> hardest thing to get fixed.”<br />

Greg discharged from <strong>the</strong> SHARE Initiative this<br />

past summer – feeling both eager and apprehensive<br />

about leaving <strong>the</strong> program. He has no long-term<br />

goals yet. Instead, he focuses on <strong>the</strong> more immediate<br />

future. He expects to be medically discharged from<br />

<strong>the</strong> Army soon.<br />

“I’m moving to Wisconsin with an Army buddy<br />

and starting life over <strong>the</strong>re,” Greg says. “It’s a<br />

Catch-22 because I want to get out and go on with<br />

my life so badly, but I also know that this part of my<br />

support will be missing, and that’ll be scary. Every<br />

transition is tough, but <strong>the</strong> transition out of<br />

<strong>Shepherd</strong> will be very scary. Being on my own,<br />

where I can’t just go knock on someone’s door and<br />

talk, and have <strong>the</strong>m understand what’s going on,<br />

that’s intimidating.”<br />

Terri Kohn, LPC, Greg’s counselor at <strong>Shepherd</strong>,<br />

knows, maybe even more than Greg does, just how<br />

far he has come. “He has had several bumps in <strong>the</strong><br />

road and will continue to face challenges that might<br />

set him back,” Kohn says. “But he definitely makes<br />

use of <strong>the</strong> strategies he has learned to get through<br />

<strong>the</strong> more difficult times.”<br />

It’s a challenge Greg appears prepared to take on<br />

and one he is now better equipped to face.<br />

1 0 Spinal Column w w w. s h e p h e r d . o r g


+<br />

CoverStorySidebar<br />

Praise on<br />

Peachtree<br />

Former Young Stroke Program patient gives thanks for<br />

his recovery during Atlanta’s Peachtree Road Race.<br />

By Bill Sanders<br />

This year, while everyone else celebrated Independence Day on<br />

July 4th, Wes Varda celebrated Thanksgiving.<br />

As he ran up Cardiac Hill in Atlanta’s Peachtree Road Race,<br />

he stopped to thank staff and supporters of <strong>Shepherd</strong> <strong>Center</strong>. He<br />

wanted <strong>the</strong>m to know how grateful he was to be alive – much less<br />

running again.<br />

In December 2008, 32-year-old Wes had a stroke so severe<br />

that doctors and Wes’ parents thought he was dying. Taken to<br />

Northside Hospital in Atlanta, Wes was unable to speak or move,<br />

but could see, hear and understand. He knew a priest was coming<br />

to give him Last Rites.<br />

But doctors performed a two-hour, life-saving surgery in which<br />

a ca<strong>the</strong>ter carrying a clot-busting chemical was threaded from<br />

Wes’ groin into his brain stem. The chemical worked, <strong>the</strong> clot<br />

dissolved and Wes was soon admitted to <strong>Shepherd</strong> <strong>Center</strong> for<br />

rehabilitation. Staff in <strong>the</strong> hospital’s Young Stroke Program set<br />

out to help Wes put his life back toge<strong>the</strong>r.<br />

“When admitted, Wes was weak in all of his extremities,”<br />

recalls Payal Fadia, M.D., Wes’ physician at <strong>Shepherd</strong>. “His<br />

ability to communicate was limited, and he required a feeding<br />

tube for nutrition due to difficulty swallowing. In addition, he had<br />

difficulty with balance, dizziness and coordination of movements.<br />

The sort of stroke Wes had is life-threatening and can have a very<br />

poor prognosis if not immediately treated.”<br />

Wes did not realize his prognosis when he first came to<br />

<strong>Shepherd</strong>. But he did sense he was in <strong>the</strong> right place to get <strong>the</strong><br />

help he needed.<br />

“When I got <strong>the</strong>re, I was still wondering what was going on,<br />

but I knew enough to know that it was a great hospital, so my<br />

spirits were a little better because of that,” Wes recalls. “I was out<br />

of <strong>the</strong> woods as far as living or dying, but I still had some major<br />

health concerns. I couldn’t walk and could barely talk.”<br />

But things soon began to improve for Wes.<br />

“Everyone was so warm and nice <strong>the</strong>re,” he says. “They were<br />

patient with me. I didn’t really have many expectations when I<br />

got <strong>the</strong>re because I was still so dazed. But <strong>the</strong> recovery has been<br />

much greater than I could have expected. Just nine months<br />

after my stroke, I am almost fully functioning. All of my doctors<br />

are optimistic.”<br />

Wes deserves a lot of <strong>the</strong> credit for his recovery, says Kendra<br />

Moon, his case manager at <strong>Shepherd</strong>.<br />

Above: Wes Varda, 32, of Atlanta had a severe<br />

stroke in December 2008. Today, he is back to<br />

running and now volunteers at <strong>Shepherd</strong> <strong>Center</strong>.<br />

“Wes was open and willing to acknowledge <strong>the</strong> differences in his<br />

condition, both physically and cognitively, as a result of his brain<br />

injury,” she explains. “When he got here, he was in a wheelchair<br />

and required physical assistance and supervision with his personal<br />

care. He had visual and speech difficulties, and he had lost a lot of<br />

strength, coordination, and fluidity of movement in his arms and<br />

legs. He required 24-hour supervision and care.”<br />

After completing <strong>the</strong> inpatient Young Stroke Program at<br />

<strong>Shepherd</strong>, Wes moved on to <strong>the</strong> post-acute day program at<br />

<strong>Shepherd</strong> Pathways. It included physical, occupational, speechlanguage-cognitive<br />

<strong>the</strong>rapies, <strong>the</strong>rapeutic recreation, counseling and<br />

vocational services. After two months, he transitioned to Pathways’<br />

outpatient <strong>the</strong>rapy program, where he participated in rehabilitation<br />

<strong>the</strong>rapy twice a week.<br />

By July 4th, Wes was ready to say thanks publicly. He chose <strong>the</strong><br />

Peachtree Road Race for his mission because it takes participants<br />

past <strong>Shepherd</strong> <strong>Center</strong>. Patients and staff line <strong>the</strong> sidewalk to cheer<br />

participants as <strong>the</strong>y pass by, but on this day, Wes cheered <strong>the</strong>m.<br />

“That was truly one of <strong>the</strong> highlights of my recovery,” Wes recalls.<br />

“Getting to run past <strong>Shepherd</strong> and talk to patients in wheelchairs<br />

and tell <strong>the</strong>m I was where <strong>the</strong>y are just a few months ago, that made<br />

me very happy. I didn’t get emotional, like fighting back tears, but I<br />

felt very blessed.”<br />

Wes is not sure what <strong>the</strong> future holds for him. He is volunteering<br />

at <strong>Shepherd</strong> – now as a greeter in <strong>the</strong> cafeteria and later with a peer<br />

volunteer group. O<strong>the</strong>r than that: “The future is wide open,” he says.<br />

And Wes knows he’ll have plenty of support from friends and<br />

family, which is vital in rehabilitation.”<br />

Dr. Fadia says Wes’ recovery has surprised everyone, even at<br />

<strong>Shepherd</strong> – a place where incredible recoveries often occur.<br />

“His stroke is extremely rare in a person of Wes’ age and good<br />

general health,” Dr. Fadia says. “And as for where he is now, I did<br />

not expect this. Wes has made an unbelievably remarkable recovery<br />

in an extremely short period of time.”<br />

Photo by Gary Meek<br />

Fall 2009 1 1


PacingSystemFeature<br />

Breathing<br />

NeuRx Diaphragmatic Pacing System<br />

gives ventilator-dependent patients hope<br />

for an improved quality of life.<br />

By Bill Sanders<br />

For Jenny Sorenson, not having a voice with which to speak<br />

meant it was hard to have a voice in how she would raise her<br />

children, how she would keep friends informed, and how<br />

she would thank her husband for his faithful support.<br />

Thanks to new technology being implemented at <strong>Shepherd</strong><br />

<strong>Center</strong>, Jenny – and o<strong>the</strong>r patients who are dependent upon<br />

a ventilator to make <strong>the</strong>m brea<strong>the</strong> – can now wean off <strong>the</strong><br />

ventilator and instead use an implantable device called <strong>the</strong><br />

NeuRx Diaphragmatic Pacing System (DPS). The system<br />

has made all <strong>the</strong> difference in <strong>the</strong> world for Jenny, who no<br />

longer has to rely upon her friends and family to read her<br />

lips.“They had gotten pretty good at it,” she says. “But that<br />

wasn’t a solution long-term.”<br />

Now, Jenny uses <strong>the</strong> NeuRx DPS most of <strong>the</strong> time, but<br />

still relies upon a ventilator occasionally. Dual dependency is<br />

normal for a while, but eventually, Jenny expects <strong>the</strong> ventilator<br />

to be a thing of <strong>the</strong> past in her life.<br />

The NeuRx DPS, which was developed by researchers at<br />

Case Western Reserve University and is licensed by Synapse<br />

Biomedical Inc., works like this: Four small wires are surgically<br />

attached to <strong>the</strong> diaphragm, <strong>the</strong> breathing muscle in <strong>the</strong><br />

chest. This procedure requires minimally invasive laparoscopic<br />

surgery. These wires exit <strong>the</strong> chest wall and are attached to an<br />

external stimulator, <strong>the</strong> NeuRx DPS. The stimulator provides<br />

electrical stimulation through <strong>the</strong> wires to <strong>the</strong> diaphragm and<br />

nerves that run through <strong>the</strong> diaphragm. When stimulated, <strong>the</strong><br />

diaphragm contracts, mimicking natural breathing. Air is allowed<br />

to fill <strong>the</strong> upper and lower parts of <strong>the</strong> lungs ra<strong>the</strong>r than<br />

forcing air in with a mechanical ventilator.<br />

Following clinical trials of NeuRx DPS in patients at<br />

<strong>Shepherd</strong> <strong>Center</strong> and elsewhere, <strong>the</strong> FDA approved <strong>the</strong> use of<br />

<strong>the</strong> device in June 2008. After that approval, Jenny was <strong>the</strong> first<br />

patient in <strong>the</strong> nation to undergo <strong>the</strong> procedure and begin using<br />

<strong>the</strong> pacing system, says Cathy Gragg, <strong>the</strong> <strong>Shepherd</strong> program<br />

coordinator for NeuRx DPS. Since <strong>the</strong>n, <strong>Shepherd</strong> <strong>Center</strong><br />

physicians have implanted <strong>the</strong> device in 10 patients with spinal<br />

cord injury (SCI). Most are now in various stages of weaning<br />

from <strong>the</strong> ventilator.<br />

Jenny’s success with <strong>the</strong> NeuRx DPS stems from<br />

determination and hard work on her part, as well as her<br />

caregivers, which include family members. She has come a long<br />

way since <strong>the</strong> diagnosis of <strong>the</strong> medical condition that left her a<br />

quadriplegic in early 2008. Doctors at Johns Hopkins Hospital<br />

in Baltimore determined <strong>the</strong>re was an abnormal tangle of<br />

vessels in Jenny’s spinal cord, which cut off blood supply to her<br />

cord. She underwent surgery and transferred to <strong>Shepherd</strong> for<br />

rehabilitation in May 2008.<br />

While she was undergoing rehabilitation, Andrew Zadoff,<br />

M.D., medical director of <strong>Shepherd</strong>’s Intensive Care Unit (ICU)<br />

and Pulmonary Services, screened Jenny as a potential candidate<br />

for <strong>the</strong> NeuRx DPS.<br />

“I had been at <strong>Shepherd</strong> for two months, and Johns Hopkins<br />

before that, so when <strong>the</strong>y first suggested <strong>the</strong> pacing system, I just<br />

wanted to go home and see my family,” Jenny recalls. “But after<br />

getting home and clearing my head a little, I realized I really<br />

needed to do this.<br />

“For <strong>the</strong> first four months on <strong>the</strong> ventilator, all I did was lie in<br />

bed,” Jenny says. “I didn’t speak clearly with a voice until I got to<br />

1 2 Spinal Column<br />

w w w. s h e p h e r d . o r g


Photo by Owen Riley<br />

Photo by Leita Cowart<br />

“Now, with <strong>the</strong> pacing system, my voice is much stronger. Even if<br />

I’m not strictly on <strong>the</strong> pacer, I have it on, and my breathing is a<br />

lot stronger. It’s just easier to brea<strong>the</strong>.” — Jenny Sorenson<br />

<strong>Shepherd</strong>. People had learned to read my lips, but trying to communicate<br />

with my kids (twin 10-year-olds and a 7-year old) was<br />

very hard at times.<br />

“Now, with <strong>the</strong> pacing system, my voice is much stronger,” she<br />

adds. “Even if I’m not strictly on <strong>the</strong> pacer, I have it on, and my<br />

breathing is a lot stronger. It’s just easier to brea<strong>the</strong>.”<br />

Dr. Zadoff, who screens all <strong>Shepherd</strong> ventilator-dependent<br />

SCI inpatients and outpatients to see if <strong>the</strong>y are medically appropriate<br />

for <strong>the</strong> NeuRx DPS, attributes Jenny’s success with<br />

<strong>the</strong> device to several factors – most importantly her desire to<br />

make a change that would improve her quality of life.<br />

“First of all, <strong>the</strong> patient has to have a willingness to get off<br />

<strong>the</strong> ventilator,” Dr. Zadoff says. “It is hard work that begins<br />

within 24 hours after <strong>the</strong> procedure. Vent-weaning can <strong>the</strong>n<br />

take up to seven weeks after that. In <strong>the</strong>ory, <strong>the</strong>re’s no reason<br />

why <strong>the</strong>y cannot be completely weaned off <strong>the</strong> ventilator and use<br />

<strong>the</strong> pacing system 24 hours a day. But some patients feel more<br />

comfortable continuing to use <strong>the</strong> ventilator at night, even after<br />

<strong>the</strong> procedure is done.”<br />

Ano<strong>the</strong>r requirement for NeuRx DPS patients and caregivers<br />

are pre- and post-operative training sessions. “We want<br />

patients to have a good understanding of how <strong>the</strong> pacing system<br />

works and what we’re trying to do,” Dr. Zadoff notes.<br />

Once <strong>the</strong> screening process indicates a patient is a good<br />

candidate for <strong>the</strong> NeuRx DPS, <strong>Shepherd</strong> <strong>Center</strong> consulting<br />

surgeon Saeid Khansarinia, M.D., performs an exploratory<br />

laparoscopy on <strong>the</strong> patient at neighboring Piedmont Hospital.<br />

In that procedure, he attaches electrodes to <strong>the</strong> patient’s phrenic<br />

nerve, which helps control breathing, to see if it can cause <strong>the</strong><br />

diaphragm to be stimulated. If so, <strong>the</strong>n <strong>the</strong> surgery is done, and<br />

soon <strong>the</strong>reafter, <strong>the</strong> vent-weaning process begins.<br />

Dr. Khansarinia says <strong>the</strong> NeuRx DPS can make a significant<br />

and dramatic change in patients’ lives. He looks forward<br />

to future generations of <strong>the</strong> device that may make it entirely<br />

implantable, thus eliminating <strong>the</strong> need for any external wires<br />

and machines, he adds.<br />

Inpatients who are interested in <strong>the</strong> NeuRx DPS can<br />

initiate <strong>the</strong> screening process by simply asking <strong>the</strong>ir doctor.<br />

Outpatients are asked to contact <strong>Shepherd</strong> <strong>Center</strong> case manager<br />

Brenna Blocker at 404-367-1253 or brenna_blocker@shepherd.<br />

org. More information is available at www.shepherd.org/dps.<br />

For Jenny, <strong>the</strong> decision to get <strong>the</strong> NeuRx DPS was a good<br />

one, she says. Though she’s not sure when, if ever, things will get<br />

back to normal for her, she’s thrilled to have a voice again and to<br />

have a family that loves her so much.<br />

“My husband has been wonderful,” Jenny says. “I couldn’t get<br />

through it without him. My kids want <strong>the</strong> old mom back, but<br />

we’ve adapted how we do things, such as hugs and going places.<br />

They put <strong>the</strong>ir hand on my hand when we’re out. It’s not by any<br />

means normal for <strong>the</strong>m, but <strong>the</strong>y like it that I can come to <strong>the</strong>ir<br />

swim practices, can go out to eat and not just be in a bed. So<br />

that’s some normalcy.”<br />

Above: Jenny Sorenson, her husband Scott and <strong>the</strong>ir children are<br />

returning to some normalcy in <strong>the</strong>ir lives in Irmo, S.C., since Jenny<br />

started using <strong>the</strong> NeuRx DPS system to help her brea<strong>the</strong>.<br />

Andrew Zadoff, M.D., screens all ventilator-dependent SCI patients<br />

to see if <strong>the</strong>y are appropriate for <strong>the</strong> pacing system.<br />

Fall 2009 1 3


AssistiveTechnologyFeature<br />

Photo by Gary Meek<br />

Edge with appropriate <strong>Shepherd</strong> patients to see how it can<br />

help <strong>the</strong>m and <strong>the</strong>n determine if it’s an affordable solution<br />

for <strong>the</strong>m. Results elsewhere indicate <strong>the</strong>re is reason to be<br />

optimistic, John notes.<br />

Eyegaze Edge appears to be a promising piece of<br />

technology for improving patients’ quality<br />

of life and restoring some of <strong>the</strong>ir independence.<br />

Eye Control<br />

<strong>Shepherd</strong>’s Assistive Technology <strong>Center</strong> evaluates<br />

vision-based communication and control system<br />

for patients who cannot speak.<br />

By Bill Sanders<br />

<strong>Shepherd</strong> <strong>Center</strong> patient Julius Singleton struggled a bit <strong>the</strong><br />

first time he stared at a computer screen and tried to type out<br />

his name, using nothing but his eyes.<br />

But, with a little practice using a vision-based communication and<br />

control technology called Eyegaze Edge, Julius, a college professor from<br />

Burnsville, W.Va., made progress.<br />

“This technology has <strong>the</strong> potential to transform <strong>the</strong> lives of quadriplegics<br />

whose high-level injuries make it difficult for <strong>the</strong>m to speak and<br />

communicate,” says John Anschutz, director of <strong>the</strong> Assistive Technology<br />

<strong>Center</strong> at <strong>Shepherd</strong> <strong>Center</strong>.<br />

The technology, developed by LC Technologies Inc., gives users numerous<br />

functions including: speech generation, environmental control<br />

(lights, appliances), typing, and running both mouse- and keyboardcontrolled<br />

applications on <strong>the</strong> company’s Edge screen. Also, <strong>the</strong> Edge<br />

can serve as a keyboard and mouse interface for a user’s own computer.<br />

Users make selections by looking at boxes or “keys” displayed on <strong>the</strong><br />

Edge screen. The system uses a pupil-center/corneal-reflection method<br />

to determine where a user is looking on <strong>the</strong> screen. An infrared-sensitive<br />

video camera, mounted beneath <strong>the</strong> system’s screen, takes 60 pictures per<br />

second of <strong>the</strong> user’s eye. The Edge calculates <strong>the</strong> person’s gazepoint (i.e.,<br />

<strong>the</strong> coordinates of where he is looking on <strong>the</strong> screen) based on <strong>the</strong> relative<br />

positions of <strong>the</strong> pupil center and corneal reflection within <strong>the</strong> video<br />

image of <strong>the</strong> eye.<br />

The technology isn’t new to <strong>the</strong> market, but it’s new to <strong>Shepherd</strong><br />

<strong>Center</strong> and its patient population. Ruth Fierman, an occupational<br />

<strong>the</strong>rapist in <strong>the</strong> Assistive Technology <strong>Center</strong>, is testing <strong>the</strong> Eyegaze<br />

If Ruth determines <strong>the</strong>re is potential for <strong>the</strong> Eyegaze Edge<br />

system to be a good match for a patient, one of <strong>Shepherd</strong>’s<br />

speech and language pathology <strong>the</strong>rapists determines if <strong>the</strong><br />

system will provide efficient communication for <strong>the</strong> patient.<br />

As a technology demonstration with Julius shows, Eyegaze<br />

requires practice. Users must learn how to focus on a letter or<br />

statement, such as “I am thirsty,” for <strong>the</strong> right amount of time.<br />

“It can be intimidating until you are familiar with it,” John<br />

says. “Once <strong>the</strong>y get <strong>the</strong> hang of it, though, <strong>the</strong>y want us to<br />

speed it up.”<br />

Physicians expect Julius to regain his voice, but some<br />

o<strong>the</strong>r high-level quadriplegics do not regain that function.<br />

And if <strong>the</strong>y are unable to use a mouse stick in <strong>the</strong>ir mouth,<br />

<strong>the</strong>y have virtually no ability to communicate, John notes.<br />

So Eyegaze Edge appears to be a promising technology for<br />

improving patients’ quality of life and restoring some of <strong>the</strong>ir<br />

independence.<br />

“If someone can’t communicate at all, it is amazingly<br />

frustrating for that person,” John explains. “So, once we finish<br />

evaluating <strong>the</strong> Eyegaze Edge system we have at <strong>Shepherd</strong><br />

now, we hope to get some funding through grants to help<br />

more people. The price of <strong>the</strong>se units has come down from<br />

about $18,000 to $9,000, so we hope, in time, that we can get<br />

<strong>the</strong>m into some homes of people who need <strong>the</strong>m.”<br />

Above: Ruth Fierman, center, an occupational <strong>the</strong>rapist<br />

in <strong>Shepherd</strong> <strong>Center</strong>'s Assistive Technology <strong>Center</strong> (ATC),<br />

evaluates whe<strong>the</strong>r <strong>the</strong> Eyegaze Edge system is appropriate for<br />

quadriplegics who have lost use of <strong>the</strong>ir voice. John Anschutz,<br />

manager of <strong>the</strong> ATC, assists with a demonstration for patient<br />

Julius Singleton of Burnsville, W. Va.<br />

Photo by Gary Meek<br />

1 4 Spinal Column<br />

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OutreachFeature<br />

Building<br />

Professional<br />

Relationships<br />

<strong>Shepherd</strong> <strong>Center</strong> emphasizes outreach to referring<br />

facilities and physicians.<br />

By Kayla Eubanks<br />

The <strong>Shepherd</strong> <strong>Center</strong> Marketing and Public Relations<br />

departments have teamed up to create a special outreach<br />

plan to <strong>the</strong> hundreds of referring facilities and physicians<br />

who work with <strong>the</strong> hospital each year.<br />

To build better relationships and improve communications,<br />

<strong>the</strong> team created new strategies to effectively communicate<br />

news at <strong>Shepherd</strong> and update referring physicians on how <strong>the</strong>ir<br />

patients are doing in rehabilitation, explains Mitch Fillhaber, vice<br />

president of marketing and managed care. The goal is to improve<br />

access to <strong>Shepherd</strong> <strong>Center</strong> physicians for <strong>the</strong> trauma physicians<br />

and neurosurgeons who initiate life-saving interventions at <strong>the</strong><br />

facilities that refer patients to <strong>Shepherd</strong>.<br />

Fillhaber outlines <strong>the</strong> details of <strong>the</strong> plan:<br />

MD-to-MD Communication<br />

As part of <strong>the</strong> new plan, <strong>Shepherd</strong> <strong>Center</strong> doctors call referring<br />

physicians to provide insight into <strong>the</strong>ir patient’s transition and rehabilitation<br />

plan following admission. Although most physicians<br />

already call <strong>the</strong> referring hospital or physician once a patient has<br />

arrived, <strong>Shepherd</strong> created an internal standard to ensure that this<br />

happens regularly.<br />

If a patient is admitted to <strong>the</strong> ICU, <strong>the</strong> admitting physician<br />

will contact <strong>the</strong> referring physician within 24 hours to confirm<br />

<strong>the</strong> patient arrived. The physician also will provide information<br />

on <strong>the</strong> patient’s medical status and immediate plan of care. If a<br />

patient is admitted on a Friday, <strong>the</strong> referring physician will be<br />

contacted by Monday.<br />

For acute rehabilitation patients, <strong>the</strong> standard is to call <strong>the</strong><br />

referring physician within 24 hours of <strong>the</strong> first team meeting,<br />

which is typically held during <strong>the</strong> patient’s first week at<br />

<strong>Shepherd</strong>. Team meetings involve <strong>the</strong> patient’s physician, case<br />

manager, <strong>the</strong>rapists and nurses. The team discusses <strong>the</strong> patient’s<br />

plan of care, including anticipated <strong>the</strong>rapies and any medical issues<br />

<strong>the</strong> patient may be having. Referring physicians will be told<br />

<strong>the</strong> medical status, care plan and anticipated length of stay.<br />

Enhancing Discharge Summaries<br />

Ano<strong>the</strong>r way <strong>Shepherd</strong> <strong>Center</strong> is intent on improving its direct<br />

communication with outside physicians is through enhanced<br />

Above: <strong>Shepherd</strong> <strong>Center</strong> physicians, including<br />

Medical Director Donald Peck Leslie, M.D., call referring<br />

physicians to provide insight into <strong>the</strong>ir patient’s transition<br />

and rehabilitation plan following admission.<br />

information in its discharge summaries. The hospital’s 13 admissions<br />

liaisons have been meeting with referring physicians from<br />

trauma centers to determine what additional information would be<br />

beneficial for <strong>the</strong>m to have in anticipation of serving patients upon<br />

<strong>the</strong>ir return to <strong>the</strong> community.<br />

New Newsletters<br />

<strong>Shepherd</strong> <strong>Center</strong> also will be expanding its physician publications<br />

to include two new newsletters that will complement Consulting<br />

Physician, a newsletter <strong>the</strong> hospital started earlier this year. The two<br />

new bi-annual newsletters include one written for neurosurgeons<br />

and trauma physicians and <strong>the</strong> o<strong>the</strong>r for physiatrists. The newsletters<br />

provide information on hospital practices, ICU processes,<br />

research trials, continuing education opportunities and more. The<br />

first issue of Consulting Physician is available at www.shepherd.org/<br />

publications. The o<strong>the</strong>rs are under development.<br />

Photo and Video Updates<br />

A great way to understand <strong>Shepherd</strong> <strong>Center</strong> practices is to see<br />

firsthand how a patient is improving. For a visual update, referring<br />

facilities can receive a photo or video of <strong>the</strong>ir former patient. Photos<br />

are taken during <strong>the</strong>rapy sessions to demonstrate something <strong>the</strong><br />

patient is working to improve, such as lifting <strong>the</strong>ir arms or writing<br />

<strong>the</strong>ir name. The photos also give <strong>the</strong> patient an opportunity to say<br />

thank you to <strong>the</strong> referring team.<br />

Video updates include recorded messages from <strong>the</strong> patient, his<br />

or her physician and sometimes even family members. It shows<br />

<strong>the</strong> patient in multiple <strong>the</strong>rapy sessions and tells <strong>the</strong> story of <strong>the</strong>ir<br />

recovery since arriving at <strong>Shepherd</strong>. The admissions team can take<br />

<strong>the</strong>se to referring hospitals when <strong>the</strong>y visit to show physicians and<br />

case managers how <strong>the</strong>ir prior referrals improved.<br />

Photo by Gary Meek<br />

Fall 2009 1 5


ICUFeature<br />

Photos by Gary Meek<br />

Above and Right: <strong>Shepherd</strong><br />

<strong>Center</strong> ICU nurses, such as Kim<br />

Whitlock, have training in both<br />

critical care and rehabilitation.<br />

Acquired Brain Injury Program<br />

Medical Director Darryl Kaelin,<br />

M.D., left, discusses a case wtih<br />

Whitlock and Emory University<br />

resident Dionne Cas<strong>the</strong>ly, M.D.<br />

1 6 Spinal Column<br />

w w w. s h e p h e r d . o r g


Un-<br />

Adapting to life after a spinal cord injury is no easy task.<br />

Unlike o<strong>the</strong>r less severe injuries, spinal cord injury (SCI) often<br />

comes with a host of o<strong>the</strong>r complications – a cascade of health issues<br />

that can result from damaged nerves, sudden immobility, loss<br />

of sensation and paralysis of <strong>the</strong> breathing muscles, among o<strong>the</strong>rs.<br />

Some of <strong>the</strong> most common problems patients may encounter<br />

include skin sores, ventilator-assisted pneumonia, and bowel and<br />

bladder control issues.<br />

It’s important for people with SCI and <strong>the</strong>ir loved ones to<br />

remember that many of <strong>the</strong>se health issues are not inevitable<br />

and can be controlled or managed. Knowing how to recognize,<br />

anticipate and treat complications early on is essential for quality<br />

patient care and recovery – and has long been a major priority for<br />

treatment teams at <strong>Shepherd</strong> <strong>Center</strong>.<br />

<strong>Shepherd</strong>’s acute-care capabilities and expert medical staff help<br />

resolve SCI-related complications quickly – often simultaneously<br />

to starting patients in a coordinated rehabilitation program to<br />

maximize recovery and avoid delays.<br />

Keys to Success<br />

“We spend a lot of time making sure our staff understand <strong>the</strong><br />

physiology and anatomy of catastrophic injuries,” says Tammy<br />

King, RN, chief nurse executive at <strong>Shepherd</strong> <strong>Center</strong>.<br />

That’s because what appears as “normal” body functioning for<br />

any o<strong>the</strong>r person is not for someone with a spinal cord injury.<br />

“Their bladder functions differently, <strong>the</strong> skin is at risk for breakdown,<br />

and patients who appear normal may actually be cognitively<br />

impaired, which means <strong>the</strong>y can’t be relied upon for medical<br />

histories,” she says.<br />

The sheer volume of patients cared for means <strong>Shepherd</strong> is<br />

accustomed to assessing complications early on and determining<br />

what is <strong>the</strong> “norm” for neurological problems.<br />

“One marker of success is our ability to wean patients from <strong>the</strong><br />

ventilator, a machine that helps <strong>the</strong>m brea<strong>the</strong>,” King says. “It’s <strong>the</strong><br />

difference between a patient going around with a machine every<br />

day and being able to brea<strong>the</strong> on his or her own, which is a huge<br />

quality-of-life issue – not to mention <strong>the</strong> additional medical and<br />

financial burdens that come with using a ventilator.”<br />

In 2008, nearly 86 percent of <strong>Shepherd</strong> SCI patients with injuries<br />

ranging from C-4 to C-7 or T-1 to T-12 were weaned from<br />

<strong>Shepherd</strong> has success in resolving associated health problems<br />

in people with spinal cord injury. By Amanda Crowe, MA, MPH<br />

complicating<br />

SCI<br />

<strong>the</strong> ventilator during <strong>the</strong>ir inpatient stay<br />

at <strong>the</strong> hospital in an average of 20 days.<br />

The hospital also prides itself on low,<br />

hospital-acquired infection rates thanks<br />

to its dedicated respiratory <strong>the</strong>rapy and<br />

nursing staff and rigorous quality control<br />

measures, which track <strong>the</strong> incidence of complications.<br />

<strong>Shepherd</strong> has been able to sustain<br />

a no-infection rate in ventilator-associated<br />

pneumonia for more than a year. Efforts to<br />

prevent <strong>the</strong> transmission of o<strong>the</strong>r hospitalacquired<br />

infections (for example, MRSA, a<br />

virulent staph infection, and ca<strong>the</strong>ter-related<br />

bloodstream infections) are taken very seriously.<br />

These include education of staff on hand<br />

hygiene, proper disinfection of equipment and<br />

adhering to protocols to isolate infected patients,<br />

among o<strong>the</strong>r evidence-based precautions.<br />

The intensive care unit (ICU) staff also pays<br />

careful attention to <strong>the</strong> use of antibiotics, which<br />

can kill <strong>the</strong> good bacteria in <strong>the</strong> body and cause<br />

a c. difficile infection in a patient’s intestines.<br />

Staff minimizes use of antibiotics to avoid <strong>the</strong>se<br />

infections.<br />

A Central Resource for O<strong>the</strong>rs<br />

Because of <strong>Shepherd</strong>’s success, ICUs and trauma<br />

centers at o<strong>the</strong>r facilities often call on <strong>Shepherd</strong> for<br />

assistance and best practices to identify complications<br />

and prevent common problems. Managing hospitalacquired<br />

infections or problems among SCI patients<br />

has become increasingly important to o<strong>the</strong>r facilities<br />

amid new policies by <strong>the</strong> <strong>Center</strong>s for Medicare &<br />

Medicaid Services and managed care organizations.<br />

These policies are aimed at reducing “never events,”<br />

which are considered serious, preventable and costly<br />

Fall 2009 1 7


medical errors. Medicare and o<strong>the</strong>r plans<br />

no longer pay for <strong>the</strong> treatment of <strong>the</strong>se<br />

complications, and several states have<br />

enacted laws requiring <strong>the</strong> disclosure of<br />

“never events” at hospitals.<br />

Possible Complications from SCI<br />

• Skin breakdown or “pressure sores”<br />

• Urinary tract and bowel management<br />

problems, including loss of bladder or<br />

bowel control that increases <strong>the</strong> risk of<br />

urinary tract infections<br />

• Respiratory problems, including pneumonia<br />

or ventilator dependence<br />

• Muscle spasms<br />

• Blood clots<br />

• Weight loss and muscle atrophy<br />

• Pain<br />

• Increased likelihood of new injuries, especially<br />

where <strong>the</strong>re is impaired sensation<br />

“<strong>Shepherd</strong> is both a teacher and an asset<br />

for hospitals worried about never-event costs<br />

because it’s all we do,” says Mitch Fillhaber, vice<br />

president of marketing and managed care at<br />

<strong>Shepherd</strong>. “Our acute-care capabilities provide<br />

added value for <strong>the</strong> patient, facilitate earlier referrals<br />

and also can help trauma centers turn over<br />

beds more quickly and help transition patients<br />

into rehab more quickly.”<br />

The rehabilitative environment at <strong>Shepherd</strong> gives<br />

patients – even <strong>the</strong> most severely injured – a sense<br />

of control over <strong>the</strong>ir situation. Even in <strong>the</strong> ICU,<br />

aggressive physical <strong>the</strong>rapy is started at some level,<br />

and patients are often helped out of bed and into a<br />

wheelchair.<br />

“<strong>Shepherd</strong> <strong>Center</strong> appears to have one of <strong>the</strong> most<br />

advanced programs for early treatment and strategic<br />

planning for spinal cord injury management, including<br />

having <strong>the</strong>ir own ICU,” says Julian E. Bailes,<br />

M.D., chairman of <strong>the</strong> Department of Neurosurgery<br />

at West Virginia University School of Medicine.<br />

King is most proud of <strong>the</strong> careful attention<br />

<strong>Shepherd</strong> clinicians give to every body system, from<br />

<strong>the</strong> heart and bladder to <strong>the</strong>ir sexuality and spirituality.<br />

“Our long-term outcomes are a reflection of everything<br />

we’ve done throughout <strong>the</strong> continuum of care,”<br />

she says. “And we don’t consider only acute medical or<br />

physical issues. We also take time to focus on patients’<br />

spiritual and emotional well-being.”<br />

Ahead of Its Time<br />

<strong>Shepherd</strong>’s on-site intensive care unit ensures continuity of care.<br />

Even though <strong>Shepherd</strong> <strong>Center</strong> was established 34 years ago, its founders had <strong>the</strong> foresight to<br />

structure <strong>the</strong> hospital’s care model so every aspect of spinal cord injury care would be available<br />

under one roof.<br />

In doing so, patients receive seamless, comprehensive care – from acute medical services<br />

and cutting-edge interventions that maximize rehabilitation and recovery to bridge programs that<br />

help <strong>the</strong>m transition back to <strong>the</strong>ir communities.<br />

“The founders developed a hospital for <strong>the</strong> future, where catastrophically injured patients<br />

wouldn’t have to be transferred and <strong>the</strong>re would be no disruption in care,” says Mitch Fillhaber,<br />

vice president of marketing and managed care at <strong>Shepherd</strong> <strong>Center</strong>. “Such early intervention and<br />

coordinated rehabilitation are critical for long-term recovery.”<br />

Beginning a rehabilitation regimen within two weeks of injury can lead to increases in<br />

functional improvement and more cost-effective care for people with spinal cord injury (SCI),<br />

experts say. Today, <strong>Shepherd</strong> <strong>Center</strong> remains one of only a few facilities that has an on-site<br />

intensive care unit (ICU). <strong>Shepherd</strong> accepts patients directly from a trauma center’s emergency<br />

department and aggressively starts rehabilitation from day one.<br />

“This capability allows us to admit patients earlier in <strong>the</strong> acute stage and possibly shorten<br />

<strong>the</strong>ir hospital stay by reducing <strong>the</strong> number of complications,” says Andrew Zadoff, M.D.,<br />

medical director of <strong>Shepherd</strong>’s 10-bed ICU. “We can start patients in rehabilitation even<br />

while <strong>the</strong>y’re still in <strong>the</strong> ICU. We get <strong>the</strong>m out of <strong>the</strong> bed, and that improves <strong>the</strong>ir mobility.”<br />

A team of rehabilitation and medical professionals – including orthopedists, internists<br />

and urologists – who have extensive experience in catastrophic care address individual<br />

patient needs and establish short- and long-term rehabilitation goals from <strong>the</strong> start. The<br />

ICU staff works alongside physical, occupational and speech <strong>the</strong>rapists to begin rehab as<br />

soon as possible and can draw upon <strong>the</strong> expertise of o<strong>the</strong>r specialists as needed.<br />

Dr. Zadoff is proud of <strong>Shepherd</strong>’s dedicated respiratory <strong>the</strong>rapy and nursing staffs that<br />

work collaboratively to minimize SCI-related complications (for example, skin, bladder<br />

and bowel problems, blood clots, nutritional deficiencies) and have helped contribute to<br />

low, hospital-acquired infection rates.<br />

“Our ICU nurses have both rehabilitation and critical care training, so <strong>the</strong>y look at both<br />

medical issues (<strong>the</strong> injury itself, as well as related complications) at <strong>the</strong> same time, and<br />

that benefits patients greatly,” he says. “For example, our ventilator-associated pneumonia<br />

rate is next to zero. That’s because of <strong>the</strong> way we wean patients and our careful<br />

attention to secretion control. A rate this low is unheard of in an ICU environment.”<br />

This is important because such infections can cost an extra $40,000 per episode<br />

and greatly leng<strong>the</strong>n a patient’s stay in <strong>the</strong> ICU, potentially hindering <strong>the</strong>ir rehabilitation.<br />

Having an on-site ICU has clear clinical benefits for patients. Much of <strong>the</strong> care that<br />

starts in <strong>the</strong> ICU will continue as <strong>the</strong> patient moves to a regular room and through<br />

rehabilitation to ensure seamless care for patients – and provides reassurance for<br />

patients and families who already have enough to worry about. — Amanda Crowe<br />

Photo by Gary Meek<br />

Left: <strong>Shepherd</strong> ICU<br />

charge nurse Anneka<br />

Maguigan checks on<br />

patient Tyler Epps<br />

of Lincolnton, Ga.<br />

Patients benefit from<br />

<strong>the</strong> depth and breadth<br />

of experience of<br />

<strong>Shepherd</strong> nurses like<br />

Maguigan.<br />

1 8 Spinal Column<br />

w w w. s h e p h e r d . o r g


<strong>Shepherd</strong>TVFeature<br />

<strong>Shepherd</strong> asked KPKi to incorporate <strong>the</strong> videos into a<br />

Web site linked to <strong>Shepherd</strong>’s main site. <strong>Shepherd</strong>TV.org<br />

went live in late January and has garnered nearly 1 million<br />

hits with 12,700 unique visitors from across <strong>the</strong> world.<br />

In addition, KPKi produces videos for <strong>Shepherd</strong>TV.org,<br />

following <strong>Shepherd</strong> patients during <strong>the</strong>ir stays and once<br />

<strong>the</strong>y are back home. In <strong>the</strong> past two months, <strong>the</strong> company<br />

has traveled to Lake Martin, Ala.; Nashville, Tenn.; and<br />

Boca Raton and Delray Beach, Fla., to create Stories of<br />

Hope on <strong>Shepherd</strong> graduates.<br />

Some “Stories of Hope” featured on <strong>Shepherd</strong>TV.org<br />

include:<br />

On <strong>the</strong> Net<br />

“Catch Me on <strong>Shepherd</strong>TV.org” message debuts on<br />

wheelchair sweeper vans during Peachtree Road Race.<br />

<strong>Shepherd</strong> <strong>Center</strong> has rolled out <strong>the</strong> first of several vans<br />

in its transportation fleet that are slated for a cosmetic<br />

update with colorful vehicle wraps promoting <strong>Shepherd</strong><br />

<strong>Center</strong>’s people and programs.<br />

Peachtree Road Race enthusiasts lining <strong>the</strong> race route were<br />

<strong>the</strong> first to see <strong>Shepherd</strong>’s sweeper van during <strong>the</strong> July 4 race.<br />

The vehicle wrap features messages about <strong>the</strong> <strong>Center</strong> and its<br />

video Web site, <strong>Shepherd</strong>TV.org.<br />

The van is wrapped in large photographs of <strong>Shepherd</strong><br />

Wheelchair Division Peachtree Road Race participants, along<br />

with <strong>the</strong> message “Catch Me on <strong>Shepherd</strong>TV.org.” The sweeper<br />

van travels alongside wheelchair racers competing in <strong>the</strong> race in<br />

case any of <strong>the</strong>m need help or don’t clear <strong>the</strong> course in <strong>the</strong> time<br />

allotted before foot racers begin.<br />

<strong>Shepherd</strong>TV.org was launched earlier this year to put<br />

<strong>Shepherd</strong> <strong>Center</strong>’s messages and patient success stories –<br />

called “Stories of Hope” – online with compelling, feature-style<br />

videos about <strong>Shepherd</strong> and its patients.<br />

“Online video has become an important tool to introduce a<br />

facility such as ours to families whose loved one may have just<br />

sustained a catastrophic injury or been diagnosed with a chronic<br />

illness,” says Larry Bowie, public relations director for <strong>Shepherd</strong><br />

<strong>Center</strong>. “Seeing <strong>the</strong> facility in quality HD video and hearing<br />

from our patients, <strong>the</strong>ir families, our founders, staff and physicians<br />

offers a firsthand, realistic look at a place that may become<br />

a ‘home away from home.’”<br />

<strong>Shepherd</strong>TV.org was created by KPKinteractive (KPKi) after<br />

<strong>the</strong> company completed a series of nine videos for <strong>Shepherd</strong> in<br />

2008. Because of enthusiastic reception to <strong>the</strong> videos,<br />

<strong>Shepherd</strong> <strong>Center</strong> File Photo<br />

• Stephanie Beard of Adams, Tenn., who sustained a<br />

spinal cord injury in an automobile crash in April 2007<br />

and now walks unassisted and limp-free, is a college<br />

student in Nashville, Tenn.<br />

• Jennifer Lindquist of Sussex, Wis., who sustained a<br />

spinal cord injury in a skiing accident in January 2007,<br />

can now walk with forearm crutches.<br />

• Parker King of Atlanta, who sustained brain and spinal<br />

cord injuries when he was hit by a truck in August<br />

2003, is now a student at <strong>the</strong> University of Georgia.<br />

• Alex Vazquez of Boca Raton, Fla., who sustained a<br />

severe brain injury when he was hit by a car in August<br />

2007, is now pursuing a career in video production.<br />

O<strong>the</strong>r content available on <strong>Shepherd</strong>TV.org includes videos<br />

on <strong>Shepherd</strong>’s spinal cord and brain injury rehabilitation<br />

programs, research, special events such as patients reunions,<br />

<strong>the</strong> annual Adventure Skills Workshop and <strong>the</strong> Wheelchair<br />

Division of <strong>the</strong> Peachtree Road Race.<br />

Above: <strong>Shepherd</strong> <strong>Center</strong> vans are getting a cosmetic update<br />

with colorful vehicle wraps that promote <strong>Shepherd</strong>'s people and<br />

programs, including video content posted at <strong>Shepherd</strong>TV.org.<br />

Fall 2009 1 9


Research<br />

It’s an exciting time for neuroscience, including <strong>the</strong> hope for<br />

new <strong>the</strong>rapies to treat spinal cord injury (SCI). While basic<br />

scientists and clinicians are making important advances, <strong>the</strong>y<br />

face daunting challenges when it comes to moving promising<br />

research from <strong>the</strong> bench to <strong>the</strong> bedside.<br />

To identify and address <strong>the</strong>se barriers, leading experts in neuroscience<br />

and stem cells recently came toge<strong>the</strong>r for <strong>the</strong> one-day<br />

workshop at <strong>the</strong> University of Georgia.<br />

“The concept of this workshop grew out of a need for better<br />

communication between stem cells scientists, who dared to use<br />

<strong>the</strong> term ‘cure’ for spinal cord injury, and care providers, who are<br />

worried about raising ‘false hopes’ and setting unrealistic goals<br />

for people with spinal cord injury,” says Ann Kiessling, Ph.D.,<br />

associate professor of surgery at Harvard Medical School and<br />

director of <strong>the</strong> Bedford Stem Cell Research Foundation, which<br />

organized <strong>the</strong> second annual ga<strong>the</strong>ring in cooperation with<br />

<strong>Shepherd</strong> <strong>Center</strong>. “Both groups clearly have <strong>the</strong> patient’s best<br />

interest at heart, but were not hearing each o<strong>the</strong>r’s concerns.”<br />

A key challenge for people with SCI is <strong>the</strong> concern among<br />

clinicians that any direct intervention at <strong>the</strong> site of <strong>the</strong> injury<br />

could impose fur<strong>the</strong>r damage and additional loss of function,<br />

Dr. Kiessling says. “They are understandably reluctant to expose<br />

<strong>the</strong>ir patients to <strong>the</strong> risk of fur<strong>the</strong>r spinal cord damage for<br />

research purposes,” she adds.<br />

There is also a lack of infrastructure within <strong>the</strong> SCI research<br />

community to support multi-center studies, and to define how<br />

studies in SCI can be made safe and relevant to human patients.<br />

Keith Tansey, M.D., Ph.D., director of spinal cord injury research<br />

at <strong>Shepherd</strong>, spoke to <strong>the</strong> group about <strong>the</strong> need to ensure<br />

animal studies are more relevant to humans.<br />

“Humans aren’t necessarily just big rats, and we need to better<br />

understand how and why animals are recovering from SCI<br />

because <strong>the</strong> mechanisms may not be <strong>the</strong> same in humans,”<br />

Dr. Tansey says. “Studies of animals and humans with incomplete<br />

injuries reveal a bias toward spinal plasticity in animals<br />

and brain plasticity in humans as <strong>the</strong> reason for functional<br />

recovery, so treatments may need to be different. In complete<br />

injuries, spinal circuits in rodents can regain stepping, but<br />

humans can’t, so we need to learn how to make human spinal<br />

cords function like rats’.”<br />

Dr. Kiessling agrees, adding that animal model research needs<br />

to be more carefully aligned with human injuries and <strong>the</strong> outto<br />

Bedside<br />

From Bench<br />

Leading experts in basic science and clinical care discuss barriers to a “cure”<br />

for spinal cord injury. By Amanda Crowe, MA, MPH<br />

come goals for human <strong>the</strong>rapies. “If walking is <strong>the</strong> outcome<br />

measure, animal models need to reflect that. But if bladder<br />

control is what’s important, a different animal model may be<br />

needed,” she says.<br />

Researchers and clinicians must gain a better understanding<br />

of how much recovery is due to re-establishment of brainspinal<br />

cord connections versus improvements in interpreting<br />

and using sensory information in <strong>the</strong> spinal cord below <strong>the</strong><br />

level of injury. Dr. Tansey challenged <strong>the</strong> traditional view of<br />

translational research in which discoveries at <strong>the</strong> cellular level<br />

move from <strong>the</strong> lab to clinical practice, arguing that it should<br />

be more of a two-way street. That is, questions that arise in <strong>the</strong><br />

clinical setting can go back to <strong>the</strong> lab to find answers. O<strong>the</strong>r<br />

attendees said this model could help inspire greater communication<br />

and partnership, as well.<br />

A memorable highlight of <strong>the</strong> workshop was a tour of<br />

<strong>Shepherd</strong> <strong>Center</strong>, <strong>the</strong> only specialty rehabilitation center in<br />

<strong>the</strong> country that combines intensive medical care, rehabilitation<br />

and a clinical research program under one roof. This visit<br />

gave basic scientists a chance to see what <strong>the</strong>ir work can do at<br />

<strong>the</strong> human level, well beyond studying cell biology in <strong>the</strong> lab.<br />

“We could have held this workshop anywhere in <strong>the</strong><br />

country, but we were impressed by <strong>the</strong> clear enthusiasm and<br />

determination of <strong>Shepherd</strong>’s leadership, particularly Alana<br />

<strong>Shepherd</strong>, in creating a unique center of excellence in patient<br />

care,” Dr. Kiessling says.<br />

Still, experts say <strong>the</strong> complexity of SCI cannot be overstated,<br />

and <strong>the</strong>re is no silver bullet – no single cell, no single<br />

surgery, no single nerve-growth factor that will solve <strong>the</strong><br />

whole riddle. “The more realistic expectation is that a combination<br />

of incremental steps is needed to improve recovery and<br />

maximize function,” Dr. Tansey says. “There is huge potential<br />

with stem cell biology and cell-replacement <strong>the</strong>rapies, but<br />

<strong>the</strong>re’s also a long distance between where we are today and<br />

where we need to be to find a ‘cure.’”<br />

Collaborations among <strong>the</strong>se leading experts will help<br />

forge <strong>the</strong> path forward. In <strong>the</strong> meantime, patients and <strong>the</strong>ir<br />

families should be encouraged by <strong>the</strong> progress made thus far,<br />

experts say. Prevention and early intervention, regeneration<br />

<strong>the</strong>rapies at <strong>the</strong> cellular and extra-cellular levels and aggressive<br />

rehabilitation are all contributing to significant neurological<br />

recovery after SCI.<br />

2 0 Spinal Column<br />

w w w. s h e p h e r d . o r g


ManagedCareCorner<br />

Why <strong>Shepherd</strong><br />

By Colleen McCrory, <strong>Shepherd</strong> <strong>Center</strong> Director of Marketing and Managed Care<br />

Photo by Gary Meek<br />

I am continually challenged by<br />

managed care payers, referring hospital<br />

systems, patients and families<br />

with <strong>the</strong> question “Why <strong>Shepherd</strong>?”<br />

when <strong>the</strong>y are considering rehabilitation<br />

options.<br />

While I try to verbalize our<br />

strengths, outcomes, and earlyintervention<br />

ICU and o<strong>the</strong>r levels<br />

along our continuum of care, <strong>the</strong><br />

message sometimes isn’t conveyed or<br />

received – as compelling as I think <strong>the</strong> verbal “evidence” might be.<br />

Showcasing <strong>Shepherd</strong> <strong>Center</strong>’s specialization in <strong>the</strong> treatment of<br />

spinal cord and brain injuries and multiple traumas in a conversation<br />

just isn’t enough.<br />

Working in conjunction with our Quality, Resources and<br />

Outcomes Department, we’ve assembled a compelling outcomes<br />

scorecard. It illustrates why we are not a general rehabilitation<br />

hospital like <strong>the</strong> majority of facilities you encounter or consider for<br />

<strong>the</strong> care of your member, patient, client or loved one. Here’s why:<br />

<strong>Shepherd</strong> <strong>Center</strong> is ranked by U.S. News and World Report<br />

as one of <strong>the</strong> top 10 best rehabilitation hospitals in <strong>the</strong> nation.<br />

This is <strong>the</strong> type of news<br />

you expect to hear about<br />

<strong>Shepherd</strong> <strong>Center</strong>. After all,<br />

we’re <strong>the</strong> only rehabilitation<br />

facility in <strong>the</strong> nation with an<br />

intensive care unit and acute<br />

medical component on site,<br />

allowing us to begin <strong>the</strong> rehabilitation process sooner than o<strong>the</strong>r<br />

rehabilitation hospitals.<br />

Our specialization has enabled our staff to develop higher levels<br />

of expertise and achieve better results and outcomes for our<br />

patients. When it comes to independence, functional improvement<br />

and prevention of secondary complications, our patients are<br />

more independent and have better outcomes than <strong>the</strong> national<br />

average. In fact our patient outcomes are among <strong>the</strong> best in <strong>the</strong><br />

United States.<br />

As part of <strong>Shepherd</strong> <strong>Center</strong>’s efforts and a growing trend<br />

among hospitals to be transparent in terms of patient outcomes,<br />

Transparency of data can help families,<br />

referral sources and <strong>the</strong> medical community<br />

make more informed decisions on <strong>the</strong> care<br />

of <strong>the</strong>ir loved ones and patients.<br />

we have included our data in this issue of Spinal Column in a<br />

removable fact sheet attached to this page. So when you ask,<br />

“Why <strong>Shepherd</strong>?,” you have documentation of <strong>the</strong> evidence.<br />

The fact sheet is composed of four sections – data on early<br />

intervention, independence, prevention and evidence.<br />

Early intervention focuses on <strong>Shepherd</strong> <strong>Center</strong>’s ventilatorweaning<br />

rates with respect to clinical acuity, secondary<br />

diagnoses and co-morbidities. The prevention data reflects<br />

<strong>the</strong> “never-event” occurrences and an approximate cost of<br />

such occurrences, which highlights potential cost-savings<br />

associated with admissions to <strong>Shepherd</strong> <strong>Center</strong>.<br />

All rehabilitation hospitals measure patient results in terms<br />

of “functional improvement” as measured by <strong>the</strong> FIM rating<br />

scale. The independence section of outcomes showcases<br />

<strong>Shepherd</strong> <strong>Center</strong>’s average FIM change for both spinal<br />

cord and brain injuries, as well as <strong>the</strong> percentage of patients<br />

returned to <strong>the</strong>ir home community ra<strong>the</strong>r than a long-term<br />

care facility.<br />

Finally, <strong>the</strong> evidence quadrant focuses on <strong>Shepherd</strong>’s<br />

dedication to a unique patient population, <strong>the</strong> specialization<br />

associated with more than 33 years of care for <strong>the</strong>se patients,<br />

<strong>the</strong> volume of patients seen and <strong>the</strong>ir average age. And, as <strong>the</strong><br />

only free-standing rehabilitation<br />

facility in <strong>the</strong> country<br />

with an ICU level-of-care,<br />

<strong>Shepherd</strong> <strong>Center</strong>’s average<br />

length-of-stay in ICU and <strong>the</strong><br />

number of admissions to our<br />

ICU quarterly fur<strong>the</strong>r reflect<br />

<strong>Shepherd</strong> <strong>Center</strong>’s highly specialized continuum of care.<br />

As I am continually challenged by our potential referring<br />

hospitals, payers and patients, I challenge each of you to ask<br />

for <strong>the</strong> same outcomes data from our rehabilitation facility<br />

peers. Transparency of data can help families, referral sources<br />

and <strong>the</strong> medical community make more informed decisions<br />

on <strong>the</strong> care of <strong>the</strong>ir loved ones and patients.<br />

If you have any questions or would like to discuss <strong>the</strong>se<br />

outcomes in more detail, please contact me or Susan Bowen,<br />

director of our Quality, Resources and Outcomes<br />

Department, at 404-352-2020.<br />

Fall 2009 2 1


Early Intervention<br />

Level of Injury<br />

C1 - C2 7<br />

C3<br />

C4<br />

C5 - C7<br />

T1 - T12<br />

L1 - L5<br />

Rancho 1 - 3<br />

Total Volume<br />

6<br />

25<br />

25<br />

6<br />

1<br />

13<br />

2007 2008<br />

Ventilator-weaning data is analyzed<br />

annually by Andrew Zadoff,<br />

M.D., medical director, ICU and<br />

PulmonaryServices.<br />

Data includes patients admitted within<br />

<strong>the</strong> calendar year.<br />

# D/C Home on Vent<br />

4<br />

2<br />

3<br />

3<br />

0<br />

0<br />

3<br />

# Weaned<br />

3<br />

4<br />

22<br />

22<br />

6<br />

1<br />

10<br />

Avg Days to Wean<br />

-<br />

8<br />

23<br />

16<br />

18<br />

8<br />

7<br />

Wean Rate<br />

42.9%<br />

66.7%<br />

88%<br />

88%<br />

100%<br />

100%<br />

76.9%<br />

Level of Injury<br />

C1 - C2<br />

C3<br />

C4<br />

C5 - C7<br />

T1 - T12<br />

Rancho 1 - 3<br />

Total Volume<br />

12<br />

6<br />

27<br />

26<br />

18<br />

6<br />

# D/C Home on Vent<br />

9<br />

4<br />

4<br />

2<br />

2<br />

1<br />

# Weaned<br />

3<br />

2<br />

22<br />

24<br />

15<br />

5<br />

Avg Days to Wean<br />

27<br />

21<br />

24<br />

13<br />

20<br />

12<br />

Wean Rate<br />

25%<br />

33.3%<br />

81.5%<br />

92.3%<br />

83.3%<br />

83.3%<br />

Patients excluded from population:<br />

• Patients with a primary diagnosis<br />

o<strong>the</strong>r than SCI or ABI.<br />

• Patients who have not<br />

discharged by reporting cut-off<br />

date.<br />

• Patients whose injury level is<br />

not complex and are, <strong>the</strong>refore,<br />

“expected” to wean.<br />

SCI/ABI dual diagnosis patients are<br />

reported according to <strong>the</strong>ir spinal<br />

cord injury level.<br />

Independence<br />

90<br />

75<br />

60<br />

45<br />

Discharge Total FIM ®<br />

Total Spinal Cord Injury<br />

85.0<br />

80.1<br />

Q3<br />

2008<br />

83.3<br />

81.6<br />

Q4<br />

2008<br />

88.4<br />

83.2<br />

Q1<br />

2009<br />

85.8<br />

80.9<br />

Q2<br />

2009<br />

40<br />

30<br />

20<br />

10<br />

28.7<br />

28.9<br />

Q3<br />

2008<br />

<strong>Shepherd</strong><br />

Nation<br />

Total FIM ® Change<br />

Total Brain Injury<br />

33.2<br />

29.7<br />

Q4<br />

2008<br />

30.1<br />

26.9<br />

Q1<br />

2009<br />

30.3<br />

29.0<br />

Q2<br />

2009<br />

Story Behind <strong>the</strong> Data<br />

Wean Rates<br />

• Data represents medically complex patients only.<br />

• Influenced by clinical acuity and primary/<br />

secondary diagnoses, <strong>the</strong> following are<br />

considered significant influences in determining<br />

<strong>the</strong> potential capability to wean a patient from<br />

ventilator assistance:<br />

• Level of injury<br />

• Patient age<br />

• Complete vs. incomplete spinal cord injury<br />

• Co-morbidity<br />

Discharge to Community<br />

• Rate is high because of <strong>Shepherd</strong> <strong>Center</strong> family<br />

education programs and continued support of<br />

families in <strong>the</strong>ir homes.<br />

Discharge to Community<br />

100%<br />

75%<br />

50%<br />

25%<br />

Total Spinal Cord Injury<br />

90.1%<br />

74.2%<br />

Q3<br />

2008<br />

92.8%<br />

74.7%<br />

Q4<br />

2008<br />

93.1%<br />

73.1%<br />

Q1<br />

2009<br />

87.8%<br />

74.8%<br />

Q2<br />

2009<br />

100%<br />

75%<br />

50%<br />

25%<br />

Total Brain Injury<br />

Source: UDS Quarterly Trends Report M240_9021 (July 1, 2008 – June 30, 2009) unless o<strong>the</strong>rwise cited.<br />

91.9%<br />

70.0%<br />

Q3<br />

2008<br />

93.5%<br />

68.8%<br />

Q4<br />

2008<br />

92.2%<br />

70.0%<br />

Q1<br />

2009<br />

91.0%<br />

70.7%<br />

Q2<br />

2009<br />

• Discharge Total FIM ® (Total SCI) Published quarterly by UDS.<br />

The functional assessment instrument is composed of 18<br />

items rated on a seven-level scale that represents gradations<br />

in function from independence to complete dependence.<br />

Measured at discharge to <strong>the</strong> rehabilitation program.<br />

• Total FIM ® Change (Total Brain Injury) Published quarterly<br />

by UDS. The difference in FIM ® Score as measured at<br />

discharge to <strong>the</strong> rehabilitation program and admission to <strong>the</strong><br />

rehabilitation program.<br />

• Discharge to Community (Total Spinal Cord Injury and Total Brain<br />

Injury) Published quarterly by UDS. The percentage of patients<br />

who return to a community-based setting, including a home<br />

(of <strong>the</strong> patient, relative or ano<strong>the</strong>r person), transitional living<br />

setting, board and care setting, or assisted living residence.


Why <strong>Shepherd</strong><br />

Evidence<br />

ICU Statistics<br />

General Statistics<br />

6.0<br />

5.0<br />

4.0<br />

3.0<br />

2.0<br />

1.0<br />

0.0<br />

ICU Average LOS<br />

(in days)<br />

5.64<br />

Q3<br />

2008<br />

5.70<br />

Q4<br />

2008<br />

5.60<br />

Q1<br />

2009<br />

5.09<br />

Q2<br />

2009<br />

Source for Both ICU Statistics: <strong>Shepherd</strong> <strong>Center</strong> Internal Databases<br />

Prevention<br />

Raw # Cases/Month<br />

Raw # Cases/Month<br />

Raw # Cases/Month<br />

5<br />

4<br />

3<br />

2<br />

1<br />

0<br />

5<br />

4<br />

3<br />

2<br />

1<br />

0<br />

5<br />

4<br />

3<br />

2<br />

1<br />

0<br />

Jul<br />

08<br />

Jul<br />

08<br />

Jul<br />

08<br />

Aug<br />

08<br />

Ventilator-Associated Pneumonia<br />

Oct<br />

08<br />

Wounds Requiring Surgical Intervention<br />

Aug<br />

08<br />

Oct<br />

08<br />

Ca<strong>the</strong>ter-Related Blood Stream Infections<br />

Aug<br />

08<br />

Sept<br />

08<br />

Sept<br />

08<br />

Sept<br />

08<br />

Oct<br />

08<br />

60<br />

40<br />

20<br />

0<br />

Nov<br />

08<br />

Nov<br />

08<br />

Nov<br />

08<br />

57<br />

ICU Admissions<br />

Source for Chart Data Below (Not Cost<br />

Data): <strong>Shepherd</strong> <strong>Center</strong> Internal Databases<br />

Dec<br />

08<br />

Dec<br />

08<br />

Dec<br />

08<br />

Jan<br />

09<br />

Cost = $40,000/infection<br />

Cost = $1,600/day; Patients<br />

three times more likely to D/C to LTCH<br />

Jan<br />

09<br />

Jan<br />

09<br />

Feb<br />

09<br />

Feb<br />

09<br />

Feb<br />

09<br />

Mar<br />

09<br />

Mar<br />

09<br />

Cost = $45,000/infection<br />

Mar<br />

09<br />

Apr<br />

09<br />

Apr<br />

09<br />

Apr<br />

09<br />

May<br />

09<br />

Source: UDS Office of Quality and Performance (10Q). FY 2008, Q1 technical manual for <strong>the</strong><br />

VHA performance measurement system. Washington (DC); 2007 Oct 31. 315 p.<br />

May<br />

09<br />

Source: Russo, C.A. (Thomson Reuters), Steiner, C. (AHRQ) and Spector, W. (AHRQ).<br />

Hospitalizations Related to Pressure Ulcers, 2006. HCUP Statistical Brief #64. December 2008.<br />

Agency for Healthcare Research and Quality, Rockville, MD.<br />

May<br />

09<br />

Source: "An intervention to decrease ca<strong>the</strong>ter-related bloodstream infections in <strong>the</strong> ICU,"<br />

by Dr. Pronovost, Dale Needham, M.D., Ph.D., Sean Berenholtz, M.D., and o<strong>the</strong>rs, in <strong>the</strong><br />

December 28, 2006, New England Journal of Medicine 355(26), pp. 2725-2732.<br />

43<br />

Q3<br />

2008<br />

51<br />

29<br />

Q4<br />

2008<br />

38<br />

25<br />

Q1<br />

2009<br />

57<br />

39<br />

Q2<br />

2009<br />

All Patients Admitted Directly to ICU<br />

ICU Patients Admitted Within 30<br />

Days of Injury<br />

160<br />

140<br />

120<br />

100<br />

80<br />

60<br />

40<br />

20<br />

0<br />

Jun<br />

09<br />

Jun<br />

09<br />

Jun<br />

09<br />

ABI SCI All Patients<br />

300<br />

77<br />

Discharge Volume<br />

216 207 249 249<br />

107<br />

Q3<br />

2008<br />

77<br />

95<br />

Q4<br />

2008<br />

93<br />

96<br />

Q1<br />

2009<br />

91<br />

87<br />

Q2<br />

2009<br />

250<br />

200<br />

150<br />

100<br />

50<br />

Source: <strong>Shepherd</strong> <strong>Center</strong> Internal Databases<br />

0<br />

Average Patient Age/# <strong>Shepherd</strong> Cases<br />

<strong>Shepherd</strong><br />

Total SCI<br />

Nation<br />

Total SCI<br />

<strong>Shepherd</strong><br />

Total Brain<br />

Nation<br />

Total Brain<br />

<strong>Shepherd</strong><br />

Total Stroke<br />

Nation<br />

Total Stroke<br />

Q3<br />

2008<br />

Q4<br />

2008<br />

Q1<br />

2009<br />

Q2<br />

2009<br />

Avg. Age 37.3 38.5 41.2 37.9<br />

# Cases<br />

Avg. Age<br />

Avg. Age<br />

# Cases<br />

Avg. Age<br />

Avg. Age<br />

# Cases<br />

Avg. Age<br />

71 69 72 82<br />

47.1 50.5 52.3 50.4<br />

33.3 32.5 33.4 32.9<br />

37 46 51 67<br />

58.1 56.8 61.1 59.8<br />

45.3 44.8 48.6 42.8<br />

9 15 11 18<br />

67.2 67.7 68.2 67.5<br />

Source: UDS Quarterly Trends Report M240_9021 (July 1,<br />

2008 – June 30, 2009)<br />

Evidence<br />

General Statistics<br />

Discharge Volume<br />

• ABI population includes: Medical and rehabilitation patients with an<br />

impairment code of “ABI” (no dual diagnosis patients).<br />

• SCI population includes: Medical and rehabilitation patients with an<br />

impairment code of “SCI” (no dual diagnosis patients).<br />

• Average Patient Age / # <strong>Shepherd</strong> Cases: Published quarterly by Uniform<br />

Data System (UDS). All <strong>Shepherd</strong> patients are not reported to UDS. UDS<br />

requires patients to receive at least three hours of <strong>the</strong>rapy per day to be<br />

included in <strong>the</strong> dataset.<br />

ICU Statistics<br />

• ICU Average Length of Stay (LOS): Data collected from <strong>Shepherd</strong><br />

financial system. Average number of days <strong>Shepherd</strong> patients stayed in<br />

ICU per episode of care during <strong>the</strong> reporting period.<br />

•ICU Admissions: Data collected from <strong>Shepherd</strong> financial system. All<br />

patients admitted directly to ICU (compares first date of stay in ICU to a<br />

patient’s admission date to see if <strong>the</strong>y were admitted directly to ICU). ICU<br />

patients admitted within 30 days of injury (from <strong>the</strong> above pool of patients<br />

who were admitted directly to ICU; compares date of injury to admission<br />

date to see if <strong>the</strong>y were admitted to <strong>Shepherd</strong> within 30 days of injury).<br />

Prevention<br />

• Ventilator-Associated Pneumonia: Cases reported by <strong>Shepherd</strong> <strong>Center</strong><br />

Infection Control. Figure reflects number of healthcare-associated<br />

infections of patients on ventilators.<br />

• Wounds Requiring Surgical Intervention Cases reported by <strong>Shepherd</strong><br />

<strong>Center</strong> wound nurse. Figure reflects number of<br />

patients with hospital-acquired wounds.<br />

• Ca<strong>the</strong>ter-Related Blood Stream Infection: Cases reported by<br />

<strong>Shepherd</strong> <strong>Center</strong> Infection Control. Figure reflects blood stream infections<br />

where central venous line (CVL) or peripherally inserted central ca<strong>the</strong>ter<br />

(PICC) is <strong>the</strong> primary source of infection.


PatientProfile<br />

Flying<br />

HighBy Bill Sanders<br />

Former patient<br />

overcomes trauma and<br />

tense situation, <strong>the</strong>n<br />

earns a pilot’s license.<br />

Above and Following Page: Mal Zackery, a former<br />

spinal cord injury patient from Atlanta, underwent<br />

flight training through <strong>the</strong> Able Flight scholarship<br />

program in an adapted Sky Arrow 600 LSA with Matt<br />

Hansen of Hansen Air Group based at McCollum<br />

Field in Kennesaw, Ga. Some 38 hours of flying time<br />

later, Mal earned his pilot’s license – but not until<br />

after an emergency landing incident.<br />

Photos by Leita Cowart<br />

Somehow, Mal Zackery doesn’t seem shell-shocked at all. In<br />

<strong>the</strong> course of less than two years, <strong>the</strong> 29-year-old Atlantan was<br />

shot during a robbery and left paralyzed below <strong>the</strong> waist and<br />

was <strong>the</strong>n involved in a harrowing emergency landing of a small<br />

airplane on a busy Georgia highway. The latter captured live<br />

national media coverage.<br />

That Mal lived through those two incidents is miracle enough. That<br />

he came out determined, happy and focused is more than a miracle. It’s<br />

a testament to his inner strength and <strong>the</strong> positive spirit that <strong>Shepherd</strong><br />

<strong>Center</strong> staff reinforced in him every day he spent in rehabilitation at<br />

<strong>the</strong> hospital.<br />

“The care at <strong>Shepherd</strong> was <strong>the</strong> best,” Mal says. “They taught me<br />

how to do <strong>the</strong> things I’d need to do in my everyday life, and <strong>the</strong>y kept<br />

it real upbeat. It’s a hard enough time as it is, and <strong>the</strong> last thing you’d<br />

need is for people to be all heavy and depressing. It wasn’t like that at<br />

all. They informed me of everything I needed to know, but <strong>the</strong>y always<br />

kept it positive.”<br />

Mal came to <strong>Shepherd</strong> after being shot by a gunman in Montgomery,<br />

Ala., who robbed him and a fellow employee as <strong>the</strong>y were making a bank<br />

deposit after hours. The gunman demanded <strong>the</strong> money and Mal’s car.<br />

“The next thing I know, I hear a gunshot and I collapse,” Mal<br />

recalls. “There was no blood really, but I went down and couldn’t move<br />

my legs, had no feeling, and I knew what had happened.”<br />

Mal spent about 10 days at Jackson Hospital in Montgomery.<br />

Almost from <strong>the</strong> beginning, <strong>the</strong> staff <strong>the</strong>re encouraged him to transfer<br />

to <strong>Shepherd</strong> for rehabilitation. “They were very nice, showing me<br />

brochures about <strong>Shepherd</strong>,” he recalls. “When I got to <strong>Shepherd</strong>, it was<br />

<strong>the</strong> best.”<br />

Mal sustained a T-12 to L-1 incomplete spinal cord injury. But it<br />

was <strong>the</strong> worst kind of incomplete injury, Mal says, and he has regained<br />

very little movement in his legs.<br />

During his time as both an inpatient and outpatient, <strong>Shepherd</strong>’s<br />

<strong>the</strong>rapeutic recreation <strong>the</strong>rapists urged Mal to find an activity that<br />

2 2 Spinal Column<br />

w w w. s h e p h e r d . o r g


interested him. They suggested basketball or swimming, but Mal<br />

just wasn’t interested.<br />

“I tried every angle possible to get him involved, and <strong>the</strong>re<br />

wasn’t much that got through,” recalls Ashleigh Koontz, a <strong>the</strong>rapeutic<br />

recreation specialist. “He was resistant to participating in<br />

much more than physical and occupational <strong>the</strong>rapy because he<br />

was not someone who was open to <strong>the</strong> idea of participating in<br />

those things he once loved to do – now from a wheelchair.”<br />

Then someone told him about Able Flight, which provides<br />

flight training scholarships for people with disabilities.<br />

“It was <strong>the</strong> first time I saw a sparkle in his eye, and from what<br />

I can remember, <strong>the</strong> first time in a long time I saw that smile,”<br />

Ashleigh says. “It wasn’t long after hearing about Able Flight that<br />

Mal took <strong>the</strong> necessary steps and applied for <strong>the</strong> scholarship.”<br />

Mal wrote an essay for <strong>the</strong> scholarship application and was<br />

accepted into <strong>the</strong><br />

program. Within a<br />

few weeks, he began<br />

flight training in an<br />

adapted Sky Arrow<br />

600 LSA with Matt<br />

Hansen of Hansen<br />

Air Group based at<br />

McCollum Field<br />

in Kennesaw, Ga.<br />

Some 38 hours of flying time later, Mal earned his pilot’s license<br />

– but not until after <strong>the</strong> emergency landing incident.<br />

Here’s Mal’s recollection, in his words:<br />

“We had some hints that things weren’t perfect. The oil<br />

temperature was high as it had been on <strong>the</strong> previous flight, but<br />

no one thought that was a big deal. So I was flying it, and we’d<br />

climbed to about 2,500 feet when my instructor and I started<br />

smelling smoke.<br />

We looked around to see if <strong>the</strong>re was something burning on<br />

<strong>the</strong> ground, but we saw smoke coming from <strong>the</strong> cockpit.<br />

“The instructor took over and shut off most of <strong>the</strong> electrical<br />

stuff. Then he had me try to turn <strong>the</strong> radio back on, and it<br />

wouldn’t work. He told me to try <strong>the</strong> master switch, and when I<br />

switched it, everything went off. We were flying with no engine,<br />

and <strong>the</strong>re was nowhere to land except Cobb Parkway (a busy<br />

four-lane highway in suburban Atlanta).<br />

“We flew right over two trucks, whose drivers saw what was<br />

happening, and <strong>the</strong>y stopped and blocked traffic behind <strong>the</strong>m.<br />

And we landed <strong>the</strong>re on <strong>the</strong> road. It was a perfect landing. It<br />

really wasn’t that scary because we train for that, and we knew<br />

<strong>the</strong> landing itself would be<br />

easy. It was just a matter of<br />

having a place to land.”<br />

Within a couple weeks<br />

later, Mal was back in<br />

<strong>the</strong> cockpit of <strong>the</strong> same<br />

airplane. “The first time was<br />

a bit tense,” he recalls. “But<br />

after that, all was good.”<br />

Mal’s instructor, Matt<br />

Hansen, praises both Able Flight and Mal, who was <strong>the</strong><br />

organization’s 12th scholarship student.<br />

“We’ve worked with Able Flight from <strong>the</strong> beginning because<br />

it’s something we feel strongly about,” Matt says. “Mal’s done<br />

great. He’s right where he ought to be in his flying schedule.”<br />

“It was <strong>the</strong> first time I saw a sparkle in his eye, and from<br />

what I can remember, <strong>the</strong> first time in a long time I saw<br />

that smile. It wasn’t long after hearing about Able Flight<br />

that Mal took <strong>the</strong> necessary steps and applied for <strong>the</strong><br />

scholarship.” — Ashleigh Koontz, <strong>Shepherd</strong> <strong>Center</strong> recreation <strong>the</strong>rapist<br />

Fall 2009 2 3


Q+A<br />

ask <strong>the</strong> Doc<br />

<strong>Shepherd</strong> <strong>Center</strong> physicians answer medical questions from patients and family members.<br />

Q: What infertility problems are found in people with<br />

spinal cord injury?<br />

A: Most spinal cord injury (SCI) patients with infertility issues<br />

are men. Women may be concerned about obstetrical<br />

issues and complications – depending on whe<strong>the</strong>r <strong>the</strong>y<br />

have lung, kidney, neurologic and clotting problems. If<br />

women are over 35, <strong>the</strong> normal issues with achieving<br />

a pregnancy relate to age, ra<strong>the</strong>r than <strong>the</strong>ir SCI status.<br />

But if <strong>the</strong>re are medical concerns regarding carrying a<br />

pregnancy successfully, a gestational carrier (surrogate)<br />

can be used through in vitro fertilization (IVF).<br />

Men with SCI may have varying types of erectile<br />

dysfunction (ED) that may lead to infertility. It is important<br />

to have a semen analysis (SA) to determine what options<br />

are available for treatment. But many men with more<br />

extensive injuries may need to have electroejaculation<br />

(EEJ) to determine what treatment is indicated for<br />

achieving a pregnancy.<br />

If <strong>the</strong> SA is normal and <strong>the</strong> spouse is under age 35,<br />

ovulation induction with Clomid can be used with<br />

intrauterine inseminations (IUI) with a success rate<br />

of 8 to 12 percent per cycle. If <strong>the</strong> woman is over 35,<br />

medications may need to be more extensive with<br />

injectable drugs that can increase results up to 20<br />

percent. EEJ can cause concern because it may have<br />

to be done under anes<strong>the</strong>sia, and repeated procedures<br />

may irritate <strong>the</strong> rectal mucosa.<br />

Most couples in <strong>the</strong>se situations should do IVF so an EEJ<br />

may be done only once, if possible. The success rate can<br />

be 45 to 50 percent, depending on <strong>the</strong> woman’s age. If<br />

sperm aspiration or testicular sperm extraction (TESE) is<br />

needed due to a failed EEJ or extremely low sperm count,<br />

IVF is <strong>the</strong> only option for achieving a pregnancy.<br />

When a couple is considering a pregnancy with known<br />

issues, <strong>the</strong>y should consult with a urologist specializing<br />

in male infertility. This may be done in combination with<br />

a reproductive endocrinologist and infertility specialist.<br />

Each case is individualized. Overall, pregnancy rates are<br />

excellent, and if IVF is considered, most couples will have<br />

a sufficient number of embryos stored to complete <strong>the</strong>ir<br />

family with one cycle if all factors are optimal.<br />

— Dorothy Mitchell-Leef, M.D.<br />

Q: Do I really need to start one of <strong>the</strong> injectable medications if I've<br />

just been diagnosed with relapsing-remitting MS? Can’t I just<br />

wait and see how things go over <strong>the</strong> next couple of years?<br />

A: There are several reasons to strongly consider starting an injectable<br />

medication soon after a diagnosis of relapsing-remitting MS.<br />

1) Nerve fiber damage may occur early in MS. For years, MS was<br />

thought to involve mainly damage to <strong>the</strong> insulation (myelin) of <strong>the</strong><br />

nerve fibers (axons) in <strong>the</strong> brain and/or spinal cord. This is referred to<br />

as demyelination. In 1998, researchers confirmed that MS also can<br />

damage axons <strong>the</strong>mselves. This damage is permanent and leads to<br />

disability. It has been shown to occur early in MS. Starting<br />

an injectable MS <strong>the</strong>rapy early may help prevent this.<br />

2) MS changes over time. Without treatment, most people with<br />

relapsing-remitting MS will move toward secondary progressive<br />

MS. This form of MS does not respond well to currently approved<br />

<strong>the</strong>rapies and is characterized by a steady accumulation of disability.<br />

Starting treatment early may slow or prevent this move from<br />

relapsing-remitting to secondary progressive MS.<br />

3) While benign forms of MS exist, we are not good at predicting who<br />

might follow a milder course. We have some clues in early MS that<br />

may point toward someone doing well versus someone who’s<br />

going to have a more aggressive course, but most MS healthcare<br />

providers would not feel confident enough in <strong>the</strong>m to recommend<br />

absolutely against starting <strong>the</strong>rapy. — Ben Thrower, M.D.<br />

contributors<br />

Submit your questions for “Ask <strong>the</strong> Doc”<br />

to jane_sanders@shepherd.org or via<br />

fax at 404-350-3145<br />

Dorothy Mitchell-Leef, M.D.,<br />

<strong>Shepherd</strong> consulting physician,<br />

reproductive endocrinologist<br />

and infertility<br />

specialist with Reproductive<br />

Biology Associates<br />

Ben Thrower, M.D., medical<br />

director of <strong>the</strong> Andrew C.<br />

Carlos Multiple Sclerosis<br />

Institute at <strong>Shepherd</strong> <strong>Center</strong><br />

2 4 Spinal Column<br />

w w w. s h e p h e r d . o r g


Q&A<br />

Q+A<br />

with John Lin, M.D., Associate Medical<br />

Director of Post-Acute Services<br />

Interviewed by Kayla Eubanks<br />

Q: How did you come to <strong>Shepherd</strong> <strong>Center</strong> – both as a<br />

patient and a doctor?<br />

A: In 1991, I had an aneurysm-like condition known as epidural<br />

arteriovenous malformation, which left me paralyzed. At <strong>the</strong><br />

time, I was on summer break from college, visiting my parents<br />

in Charleston. A <strong>Shepherd</strong> <strong>Center</strong> admissions liaison came to<br />

my hospital to discuss rehabilitation options. I had never heard<br />

of <strong>Shepherd</strong> <strong>Center</strong> before – like most people who had no<br />

reason to. However, it was apparent to me that <strong>the</strong> <strong>Center</strong> had<br />

<strong>the</strong> expertise I needed since it treated more spinal cord injuries<br />

than <strong>the</strong> average rehabilitation facility.<br />

After my discharge, I wanted to practice medicine. I spoke<br />

with (Medical Director) Dr. Donald Leslie who mentored me<br />

before, during and after medical school. When I completed my<br />

residency, we discussed my joining <strong>Shepherd</strong>, but <strong>the</strong> timing<br />

wasn’t right. I practiced general rehab medicine for a while and<br />

worked at a VA hospital for a few years. Then in 2005, I joined<br />

<strong>the</strong> <strong>Shepherd</strong> medical staff.<br />

Q: What is it like going from patient to doctor? Does that<br />

make your approach unique from o<strong>the</strong>r physicians?<br />

A: It was a transformative process. At first, it was difficult to<br />

readjust my mindset. I found myself getting lost in patients’<br />

tragic stories. It became difficult to hear again and again. To<br />

be emotionally immersed was draining and did not allow me<br />

to be as objective as necessary. As a doctor, you have to<br />

be objective. Today, I am better able to find a balance: Be<br />

empathic when I can, but be objective when possible.<br />

Q: Explain how your experience in internal medicine and<br />

physical medicine and rehabilitation (PM&R) work<br />

toge<strong>the</strong>r to benefit your patients.<br />

A: Internal medicine is <strong>the</strong> prevention, diagnosis and care of<br />

general illness, disease and injury. Having knowledge in both<br />

fields makes it easier to take patients from acute injury to<br />

preventative treatment.<br />

I find myself able to see things happening and prevent it, ra<strong>the</strong>r<br />

than having to deal with <strong>the</strong> consequences. For <strong>the</strong> patient,<br />

it’s better because <strong>the</strong>re are many interactions with <strong>the</strong> various<br />

medications that require deeper knowledge of <strong>the</strong> drugs and<br />

<strong>the</strong>ir effects.<br />

Q: How important is research to patients with SCI? What<br />

expectations should people have about discoveries in<br />

<strong>the</strong> future?<br />

A: Research is critical to advance <strong>the</strong> field and impacts people<br />

worldwide. Without it, we would be stuck in <strong>the</strong> past. With<br />

as many clinical trials as our staff conduct and <strong>the</strong> tremendous<br />

number of patients we see with SCI, we are becoming leaders in<br />

SCI research. Our experience and knowledge in this field goes<br />

beyond what people can get at many o<strong>the</strong>r facilities because <strong>the</strong>y<br />

simply don’t have <strong>the</strong> same volume of cases.<br />

When setting expectations, it’s important for patients and families<br />

to realize <strong>the</strong>re are two types of research – bench research, which<br />

is conducted prior to human trials, and clinical research, which<br />

is <strong>the</strong> phase when studies start being tested on humans. For<br />

research like stem cells, which is moving to <strong>the</strong> clinical phase,<br />

it will take many years to see any impact. However, <strong>the</strong>re will<br />

be a more immediate impact from testing new medications or<br />

<strong>the</strong>rapies. Some of this research will have an effect within months<br />

or a year. But a cure will take many years.<br />

Q: What advice do you give patients and <strong>the</strong>ir family members<br />

when <strong>the</strong>y arrive at <strong>Shepherd</strong>?<br />

A: When patients first arrive, I tell <strong>the</strong>m to keep an open mind. A lot<br />

of things are possible here. Don’t be confined by presumptions of<br />

what your injury will or will not allow you to do. You have <strong>the</strong> chance<br />

to become a person with an SCI, not an SCI person.<br />

When patients return home, it’s important to jump back into life.<br />

The most successful patients are <strong>the</strong> ones who integrate back into<br />

society and do well enough that we only see <strong>the</strong>m every year or so.<br />

INTERESTING FACTS<br />

John Lin, M.D.<br />

<strong>Shepherd</strong> File Photo<br />

Residency:<br />

Internal Medicine and<br />

Rehabilitation Medicine at<br />

Temple University<br />

Medical School:<br />

Medical University of<br />

South Carolina<br />

Undergraduate Degree:<br />

Emory University<br />

Board Certification:<br />

Physical medicine and<br />

rehabilitation, spinal cord injury<br />

medicine and internal medicine<br />

Experience:<br />

Joined <strong>Shepherd</strong> medical staff in<br />

January 2005<br />

Random Facts:<br />

• English was Dr. Lin’s fourth<br />

language. He learned<br />

Taiwanese, Mandarin-Chinese<br />

and Spanish first.<br />

• Dr. Lin is an avid wheelchair<br />

tennis player and competes in<br />

local league tournaments.<br />

• He travels to a new country<br />

every year.<br />

Fall 2009 2 5


<strong>Shepherd</strong>Alums<br />

By sara baxter<br />

John Trimbath,<br />

of Cleveland, Ohio<br />

Susan Gaudet,<br />

of Falmouth, Maine<br />

Traci Pauls, of<br />

Blackville, S.C.<br />

Mike McHale,<br />

of Ruston, La.<br />

Vicki Karnes,<br />

of Atlanta, Ga.<br />

FROM NEAR<br />

AND FAR<br />

Former <strong>Shepherd</strong> <strong>Center</strong> patients<br />

from across <strong>the</strong> nation report on <strong>the</strong>ir<br />

productive lives post-injury.<br />

As a spinal cord injury patient, Susan<br />

Gaudet, of Falmouth, Maine, did<br />

something unusual when she came to<br />

<strong>Shepherd</strong>: She walked in.<br />

“It wasn’t pretty,” she recalls. “I was on<br />

a walker, and I looked like a drunkard.”<br />

Susan was on her way to a doctor’s<br />

appointment in March 2009 when she<br />

slipped on some ice. To prevent herself<br />

from falling, she contorted her body<br />

in a way that herniated two disks. At<br />

<strong>the</strong> doctor’s visit, she was simply given<br />

medication to help <strong>the</strong> pain.<br />

Three days later, Susan woke up and<br />

couldn’t feel her legs and lost bowel and<br />

bladder function.<br />

The swelling in her back had strangulated<br />

a network of peripheral nerves<br />

at <strong>the</strong> lower end of <strong>the</strong> spinal cord.<br />

The condition, known as cauda equina<br />

syndrome, can lead to permanent loss<br />

of bowel and bladder control, as well<br />

as sensation and weakness of <strong>the</strong> legs.<br />

Despite this, Susan is able to walk and is<br />

referred to as a “walking paraplegic.”<br />

After stays at Maine Medical <strong>Center</strong> and<br />

a rehabilitation hospital in Portland, Susan<br />

transferred to <strong>Shepherd</strong> <strong>Center</strong>. Here, she<br />

learned <strong>the</strong> daily living skills of bowel and<br />

bladder management, caring for herself,<br />

and worked on regaining strength in her<br />

legs. She stayed just 12 days.<br />

“My goal was to make it home in time<br />

to spend Easter with my family,” says<br />

Susan, who has a husband and three<br />

daughters.<br />

Susan’s recovery has been slow, but<br />

steady. She can now walk unassisted and<br />

is back at work as a rehabilitation counselor,<br />

helping those with various degrees<br />

of injury.<br />

Though <strong>the</strong> road to recovery has been<br />

rough, Susan remains grateful for her<br />

progress.<br />

“Every step I take, however painful, is<br />

precious,” she says. “I also have a huge<br />

amount of respect and gratitude for all<br />

<strong>the</strong> people who have helped me.” She<br />

also is optimistic on a full recovery: “I’m<br />

not hopeful – I’m expecting it.”<br />

Vicki Karnes, of Atlanta, credits <strong>the</strong> staff<br />

at <strong>Shepherd</strong> <strong>Center</strong>’s Andrew C. Carlos<br />

Multiple Sclerosis Institute for helping prepare<br />

her for new changes – and challenges<br />

– in her life after being diagnosed with MS<br />

in 1998.<br />

“I felt 100 percent supported by my care<br />

team at <strong>Shepherd</strong> <strong>Center</strong> when I decided<br />

to retire from a career as an airline pilot<br />

in 2003,” she says. “It was time to put my<br />

health first.”<br />

Vicki, who had flown for Delta Air Lines<br />

for nearly 20 years, initially found enjoyment<br />

playing <strong>the</strong> mandolin and taking<br />

Spanish classes after retirement. But she<br />

wanted more interaction with people.<br />

“I began volunteering in <strong>Shepherd</strong>’s<br />

Noble Learning Resource <strong>Center</strong> in 2004,”<br />

Vicki says. “Being surrounded by <strong>the</strong><br />

medical books, journals and videos in <strong>the</strong><br />

library reminded me how much I enjoyed<br />

learning and helping o<strong>the</strong>r people to learn.”<br />

After two years of weekly volunteering,<br />

Vicki decided to embark on a new career<br />

as a registered nurse and enrolled in <strong>the</strong><br />

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nursing program at Georgia Perimeter<br />

College.<br />

“I had my concerns about managing<br />

<strong>the</strong> fatigue that comes with living with<br />

MS,” Vicki says. But with <strong>the</strong> support of<br />

her family and her new friends in nursing<br />

school, she completed seven semesters<br />

of nursing school and graduated in May<br />

2009. She even became a mentor to o<strong>the</strong>r<br />

students, developing study guides and<br />

helping <strong>the</strong>m get organized.<br />

After graduating in May 2009, Vicki took<br />

a job in community health, working at a<br />

Snellville, Ga., clinic providing diabetes<br />

education and disease management.<br />

“In helping those with diabetes, I can<br />

draw upon my experience of living with a<br />

chronic illness,” she says. “I feel like I can<br />

make a difference.”<br />

Mike McHale, from Ruston, La., learned<br />

so much from <strong>Shepherd</strong> <strong>Center</strong> about<br />

daily living that he’s often asked for advice<br />

by people in wheelchairs who didn’t go to<br />

<strong>Shepherd</strong>, he says.<br />

“They ask me, ‘What do you do about<br />

this?’ or ‘How did you learn to do that?’”<br />

Mike explains. “<strong>Shepherd</strong> did a wonderful<br />

job of teaching me <strong>the</strong> little things.”<br />

Mike was injured on Sept. 14, 2006 when<br />

he fell 30 feet from a deer stand he had<br />

been building. He severed his spinal cord<br />

at <strong>the</strong> T-12 level and is paralyzed from <strong>the</strong><br />

waist down.<br />

Before his accident, he owned a convenience<br />

store and an adjacent storage facility.<br />

While at <strong>Shepherd</strong>, he realized he was not<br />

going to be able to handle running <strong>the</strong> store<br />

and sold both businesses as a package.<br />

A year after <strong>the</strong> accident, Mike went to<br />

work for a good friend who owns an air<br />

conditioning service company and was looking<br />

for someone to take care of <strong>the</strong> business<br />

side. Mike now calls on new customers<br />

in <strong>the</strong> morning and works on finance and<br />

accounting in <strong>the</strong> afternoon. Thanks to<br />

Mike’s business expertise and his friend’s<br />

knowledge of <strong>the</strong> industry, <strong>the</strong> company is<br />

thriving.<br />

Today, Mike drives an adapted truck and<br />

is accompanied by a service dog who helps<br />

him with daily tasks. He enjoys woodworking<br />

and loves to work in <strong>the</strong> yard. Mike has<br />

a vegetable garden, which he named in<br />

honor of <strong>Shepherd</strong> horticultural <strong>the</strong>rapist<br />

Debi Cziok, who helped show him<br />

how to create a garden.<br />

Mike was active before his accident<br />

and was determined to stay that way.<br />

“Before my accident, I got up at 6 a.m.<br />

and didn’t quit until 9 p.m.,” he says.<br />

“The chair has slowed me down, but my<br />

quality of life has improved thanks to<br />

<strong>the</strong> training I received at <strong>Shepherd</strong>.”<br />

Traci Pauls, of Blackville, S.C., was<br />

so inspired by <strong>the</strong> work of speech<br />

pathologists at <strong>Shepherd</strong> <strong>Center</strong>, she<br />

has decided that one day she will<br />

become one.<br />

Traci was a sophomore at Winthrop<br />

College in Rock Hill, S.C., when she<br />

sustained a T-4 spinal cord injury in a<br />

car accident in 2007. Originally a biology<br />

major, Traci returned to Winthrop<br />

in January 2009 and changed her major.<br />

“Through my own work with <strong>the</strong><br />

speech pathologist and what I saw<br />

<strong>the</strong>m do with o<strong>the</strong>rs, I was inspired,”<br />

Traci says.<br />

Though she was excited about a career<br />

change, she was a little nervous about<br />

returning to school after taking a year<br />

off. “I didn’t know what to expect,” Traci<br />

says, “or how I would get around.” She<br />

credits her mo<strong>the</strong>r with giving her <strong>the</strong><br />

confidence and motivation she needed.<br />

“She told me I could do it and said she’d<br />

be <strong>the</strong>re to help whenever I needed it.”<br />

Also <strong>the</strong>re to help is her twin bro<strong>the</strong>r,<br />

who also is a student at Winthrop and<br />

shares an apartment with her. “He<br />

pushes me to class if I’m running late<br />

and helps in many o<strong>the</strong>r ways,” Traci<br />

says. She also receives a lot of support<br />

from her friends.<br />

Now Traci is turning her attention to<br />

helping o<strong>the</strong>rs in her situation. She has<br />

created Project Live, a campus club for<br />

students with disabilities. “This will be<br />

a place for us to come toge<strong>the</strong>r to share<br />

our experiences and suggest ways to<br />

improve things at Winthrop,” Traci says.<br />

She also hopes <strong>the</strong> organization will<br />

be a place for <strong>the</strong> community to learn<br />

about those with physical disabilities.<br />

As a physician’s assistant, John<br />

Trimbath, of Cleveland, Ohio, knew<br />

something was seriously wrong <strong>the</strong> moment<br />

he was thrown from a mechanical<br />

bull in October 2008.<br />

“I couldn’t feel my arms and legs, and I<br />

had difficulty breathing,” John recalls.<br />

“Being a PA, I knew what was happening.”<br />

When he arrived at <strong>the</strong> hospital, he<br />

asked physicians to put him in traction.<br />

That request was prescient: John had<br />

sustained a C-4 spinal cord injury, which<br />

left him a quadriplegic.<br />

John came to <strong>Shepherd</strong> <strong>Center</strong> on Feb.<br />

10, 2009, and <strong>the</strong> seven weeks he spent as<br />

an inpatient brought a profound change<br />

of perspective. “The surgeons and pulmonologists<br />

saved my life,” he says, “but<br />

<strong>Shepherd</strong> gave me back my will to live.”<br />

One important aspect of his recovery,<br />

John says, was <strong>the</strong> support he received<br />

from both his family and <strong>the</strong> o<strong>the</strong>r patients<br />

– both of which <strong>Shepherd</strong> helped<br />

facilitate.<br />

“<strong>Shepherd</strong> helped with <strong>the</strong> social and<br />

emotional aspects of my recovery,” John<br />

says. “It was so helpful meeting o<strong>the</strong>r<br />

people who had gone through what I had.<br />

The upbeat staff helped me stay motivated<br />

– and learn that <strong>the</strong> hurdles you have to<br />

face aren’t insurmountable.”<br />

John, who worked full time in a hospital<br />

emergency department, hopes to return<br />

to work in some capacity, even if it’s not<br />

direct patient care. He’s also continuing his<br />

volunteer work with American Academy<br />

of Physician’s Assistants, where he just<br />

finished a two-year term on <strong>the</strong> organization’s<br />

board of directors.<br />

John is continuing his rehabilitation<br />

through <strong>the</strong> Cleveland VA hospital and<br />

is regaining movement in his arms and<br />

hands. His short-term goal is to continue<br />

his recovery so he can meet his long-term<br />

goal: celebrating his 20th wedding anniversary<br />

in Egypt with wife Diane in 2012.<br />

What’s New?<br />

We want to stay current on any personal or<br />

professional news in your life. Send us an<br />

update and a photo (we’ll return it to you):<br />

Jane Sanders, Spinal Column Magazine, 2020<br />

Peachtree Rd., N.W., Atlanta, GA, 30309. You can<br />

also e-mail us at spinalcolumn@shepherd.org.<br />

Fall 2009 2 7


FoundationFeatures<br />

Photo by Gary Meek<br />

Fall 2009<br />

“It was an awful year, and I lived through <strong>the</strong> family<br />

trauma of what a devastating diagnosis can do to <strong>the</strong> life of<br />

not just <strong>the</strong> patient, but <strong>the</strong> family as a whole,” Vida says. “I<br />

learned a lot from that experience and felt that I might be a<br />

good fit and useful volunteer at <strong>Shepherd</strong> <strong>Center</strong>.”<br />

Vida volunteers three days a week, dividing her time<br />

between staffing <strong>the</strong> welcome desk, feeding lunches to<br />

patients and assisting with Family Support Services. She<br />

has logged more than 500 volunteer hours in <strong>the</strong> year and<br />

“I’d say some key life lessons are: Don’t take<br />

things for granted, count your blessings –<br />

both big and small – daily, stay focused on<br />

what’s really important and practice humility.<br />

It is a virtue. Adversity can be a lesson, as<br />

well as an opportunity.” — Vida Harmon<br />

Volunteer Profile<br />

Vida Harmon<br />

Former New Yorker finds fulfilling volunteer work<br />

at <strong>Shepherd</strong> <strong>Center</strong>. By Lauren Angelo<br />

When Vida Harmon moved to Atlanta from New York<br />

City two years ago, she had no idea her new home would<br />

be within walking distance of <strong>Shepherd</strong> <strong>Center</strong>, or that her<br />

frequent walks throughout her neighborhood would lead to<br />

such a fulfilling volunteer opportunity.<br />

But after passing <strong>Shepherd</strong> <strong>Center</strong> several times and<br />

learning more about <strong>the</strong> highly specialized care <strong>the</strong> hospital<br />

offers, Vida was impressed and wanted to give her time to<br />

contribute to <strong>the</strong> patients and families at <strong>Shepherd</strong>.<br />

After losing her bro<strong>the</strong>r to a brain tumor in 2001, Vida<br />

says she feels an especially strong connection to families<br />

facing <strong>the</strong> same fear and uncertainty her family experienced.<br />

Her bro<strong>the</strong>r’s struggle with cancer lasted eight months, and<br />

instead of pulling her family closer toge<strong>the</strong>r, <strong>the</strong> tragedy<br />

pushed <strong>the</strong>m fur<strong>the</strong>r apart, she says. He was <strong>the</strong> patriarch of<br />

her family, and <strong>the</strong>y found <strong>the</strong>mselves lost without him.<br />

a half she has been volunteering at <strong>Shepherd</strong>, and Vida<br />

says she has loved every minute of it. Her time with Family<br />

Support Services allows her to meet <strong>the</strong> families of <strong>the</strong><br />

patients and fur<strong>the</strong>r her goal of helping families survive<br />

difficult circumstances and emerge from <strong>the</strong>m even stronger.<br />

She also makes a great effort to answer families’ questions<br />

and help in any way she can during <strong>the</strong> time she spends at<br />

<strong>the</strong> welcome desk.<br />

“It’s a wonderful feeling to know that you can make a<br />

difference in ano<strong>the</strong>r person’s life, even if only for a short<br />

time,” Vida says. “As in any area of life, I believe that a kind<br />

word and a smile can go a long way.”<br />

Jackie Gehner, <strong>Shepherd</strong> <strong>Center</strong>’s former volunteer<br />

manager, says Vida is known for doing favors for people<br />

throughout <strong>the</strong> hospital and is someone <strong>the</strong>y really count on.<br />

Vida says she has learned a lot from volunteering and<br />

believes it is a learning experience on both ends. Through<br />

her own life experiences and her volunteer experience at<br />

<strong>Shepherd</strong>, Vida has a wealth of knowledge to share.<br />

“I’d say some key life lessons are: Don’t take things<br />

for granted, count your blessings – both big and small –<br />

daily, stay focused on what’s really important and practice<br />

humility,” Vida says. “It is a virtue. Adversity can be a lesson,<br />

as well as an opportunity.”<br />

Above: Vida Harmon, left, of Atlanta is a frequent volunteer<br />

at <strong>Shepherd</strong> <strong>Center</strong>. She splits her volunteer time between<br />

staffing <strong>the</strong> welcome desk, feeding lunches to patients and<br />

assisting with Family Support Services. Here, she chats with<br />

patient Keith Champion of Forest City, N.C.<br />

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Partners for<br />

Passengers<br />

<strong>Shepherd</strong>’s relationships with two Atlanta-based airlines<br />

help ease travel woes for patients. By Sara Baxter<br />

Many people find air travel somewhat stressful. But for people<br />

in a wheelchair who travel by plane, that level of stress can take<br />

on a whole new dimension.<br />

That’s why <strong>Shepherd</strong> <strong>Center</strong> has partnered with Delta Air<br />

Lines and AirTran Airways to make it easier for <strong>Shepherd</strong> patients<br />

to readjust to air travel.<br />

“Some patients have to fly home after <strong>the</strong>ir discharge from<br />

<strong>Shepherd</strong>, so <strong>the</strong>y are flying for <strong>the</strong> first time with a wheelchair,”<br />

says Dean Melcher, <strong>Shepherd</strong>’s director of annual giving. “That can<br />

be very stressful.”<br />

The trauma can be mitigated with a lot of knowledge and a<br />

little practice, however. Delta donated airline seats and transfer<br />

chairs to <strong>Shepherd</strong> for occupational and recreational <strong>the</strong>rapists to<br />

help patients learn how to make <strong>the</strong> transition from <strong>the</strong> wheelchair<br />

to <strong>the</strong> aircraft seat. Therapists also take patients on outings<br />

to Atlanta’s Hartsfield-Jackson International Airport, where <strong>the</strong>y<br />

practice checking luggage, going through security and getting to<br />

<strong>the</strong> gate. Then <strong>the</strong>y board an empty Delta jet to become familiar<br />

with <strong>the</strong> transfer and boarding procedures and learn more about<br />

<strong>the</strong> onboard accessibility features on Delta aircraft.<br />

“Delta has been instrumental in this training,” Melcher says.<br />

“Travelers with disabilities have to be comfortable, and <strong>the</strong>y have to<br />

do it correctly so <strong>the</strong>y don’t hurt <strong>the</strong>mselves. These trial runs help<br />

<strong>the</strong>m know what to expect and can take away a lot of <strong>the</strong> anxiety.”<br />

“Delta’s relationship with <strong>Shepherd</strong> <strong>Center</strong>, now entering its<br />

20th year, reflects our commitment to serving people with disabilities<br />

and compliance to federal regulations that protect <strong>the</strong><br />

rights of customers with disabilities in air travel,” says David S.<br />

Martin, Delta’s disabilities program manager. “This relationship<br />

reminds me that what we are providing is not just an educational<br />

experience. We are giving people back <strong>the</strong>ir independence and<br />

hope for <strong>the</strong>ir future.”<br />

To facilitate transferring from a wheelchair to a seat where <strong>the</strong><br />

armrest does not come up (common in older planes), Delta has<br />

developed a hydraulic transfer chair that elevates patients above<br />

<strong>the</strong> armrest. This decreases <strong>the</strong> chance of <strong>the</strong> passenger scraping<br />

<strong>the</strong> armrest, which could cause problems on already sensitive skin.<br />

“This is ano<strong>the</strong>r example of how Delta listens to <strong>the</strong> needs of<br />

<strong>the</strong> disabled community,” says Pete Collman, <strong>Shepherd</strong>’s community<br />

relations coordinator, who also uses a wheelchair and travels<br />

extensively with <strong>the</strong> <strong>Shepherd</strong> fencing team. “They saw this as a<br />

customer service issue and fixed it.”<br />

Like Delta, AirTran is also stepping up its customer service for<br />

travelers with disabilities. The airline is working with <strong>Shepherd</strong><br />

on a training video for its employees on disability awareness. The<br />

video, which will feature <strong>Shepherd</strong> staff members, will give an<br />

overview of how to accommodate disabled travelers, including<br />

how to safely transfer <strong>the</strong>m into a seat.<br />

“A video is so much more helpful and educational than someone<br />

telling <strong>the</strong>m or having <strong>the</strong>m read about it,” Melcher says.<br />

“Staff training is imperative – it’s <strong>the</strong> o<strong>the</strong>r half of <strong>the</strong> equation.”<br />

Aside from training, Melcher says both airlines have generously<br />

provided free tickets and frequent flyer miles to fly<br />

patients and family members to and from Atlanta, as well as<br />

donating tickets for <strong>Shepherd</strong> fundraisers.<br />

Photos by Kayla Eubanks<br />

Above: <strong>Shepherd</strong> <strong>Center</strong> <strong>the</strong>rapists take patients on outings to<br />

Atlanta’s Hartsfield-Jackson International Airport, where <strong>the</strong>y<br />

practice checking luggage, going through security and getting to <strong>the</strong><br />

gate. Then <strong>the</strong>y board an empty Delta jet to become familiar with <strong>the</strong><br />

transfer and boarding procedures and learn more about <strong>the</strong> onboard<br />

accessibility features on Delta aircraft.<br />

Fall 2009 2 9


FoundationFeatures<br />

A Desire to<br />

SHARE<br />

The generosity of individuals and<br />

organizations enables <strong>Shepherd</strong> <strong>Center</strong><br />

to extend its specialty care to military<br />

service personnel. By Sara Baxter<br />

Photo by Anthony Orig<br />

Mat<strong>the</strong>w Sanchez and three friends biked 4,500 miles across <strong>the</strong> country this past summer –<br />

not just for thrills, but to raise awareness and funds for a <strong>Shepherd</strong> <strong>Center</strong> program that serves<br />

active and separated service members.<br />

The program is SHARE – Shaping Hope and Recovery<br />

Excellence – and it extends <strong>Shepherd</strong>’s continuum of care<br />

to U.S. service men and women who have served in Iraq and<br />

Afghanistan. Through <strong>the</strong>ir cross-country odyssey, Mat<strong>the</strong>w<br />

and his team raised $9,625, and donations are still coming in.<br />

“We talked to as many people as we could along <strong>the</strong> way to<br />

let <strong>the</strong>m know about <strong>the</strong> program, what it does and why we<br />

were raising <strong>the</strong> money for it,” Mat<strong>the</strong>w says. “In many cases,<br />

people approached us and asked us about it because we had<br />

car magnets on our support vehicle.”<br />

Mat<strong>the</strong>w’s commitment to bicycle thousands of miles was<br />

born out of a simple desire to give back to those who make<br />

<strong>the</strong> ultimate sacrifice for country.<br />

“I feel that <strong>the</strong> men and women serving our nation should<br />

have access to <strong>the</strong> best treatment available,” he says, “and I<br />

believe this to be at <strong>Shepherd</strong> <strong>Center</strong>.”<br />

Mat<strong>the</strong>w experienced <strong>Shepherd</strong> care first hand: He spent<br />

time at <strong>the</strong> hospital after sustaining an incomplete C-5 spinal<br />

cord injury in a high school football game in 2005.<br />

The Tyrone, Ga., native walked out of <strong>Shepherd</strong> and has<br />

been running, biking and swimming ever since.<br />

Mat<strong>the</strong>w is far from alone in his quest to support<br />

<strong>the</strong> SHARE Initiative. Funded by an initial gift from<br />

philanthropist Bernie Marcus, who also believes <strong>the</strong><br />

men and women fighting for our country should have<br />

<strong>the</strong> best care possible, <strong>the</strong> program has received support<br />

from o<strong>the</strong>r foundations, organizations and individuals.<br />

While <strong>the</strong> bulk of medical payments for service<br />

members is provided through <strong>the</strong> military’s healthcare<br />

benefits provider, SHARE helps service members<br />

cover a wide range of o<strong>the</strong>r expenses associated with<br />

<strong>the</strong>ir injuries.“I see this as <strong>the</strong> vehicle through which<br />

we can help eliminate barriers associated with coming<br />

to <strong>Shepherd</strong> for care,” says Terran Cooper, SHARE<br />

project manager. “The things we pay for are a little off<br />

<strong>the</strong> beaten path.”<br />

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As examples, Cooper cites money for groceries and monthly bills, all<br />

<strong>the</strong> way up to big expenses, such as providing in-home care or airline<br />

tickets. SHARE donations also cover operational costs, such as staff<br />

travel expenses for visits to U.S. Department of Veterans Affairs hospitals,<br />

as well as equipment and items not covered by insurance.<br />

Cooper tells a story of a service member in Florida who wanted to<br />

receive treatment at <strong>Shepherd</strong>, but was hesitant because he had no one<br />

to care for his dog, which he couldn’t afford to board. “We found a kennel<br />

for his dog in Atlanta,” Cooper says. “They gave us a discounted rate,<br />

and <strong>the</strong> dog received veterinary care for no charge.”<br />

Photo by Gary Meek<br />

“We work with each service member on a case-bycase<br />

basis. We help each one establish individual<br />

goals and <strong>the</strong>n give <strong>the</strong>m <strong>the</strong> tools and skills<br />

needed to meet those goals. We want to help <strong>the</strong>m<br />

become as independent as possible, whe<strong>the</strong>r that<br />

means returning to active duty or living back at<br />

home in <strong>the</strong> civilian community.” — Terran Cooper<br />

Ano<strong>the</strong>r service member wanted to receive outpatient care at<br />

<strong>Shepherd</strong>, but couldn’t live on his own in an apartment. SHARE paid<br />

for an attendant so <strong>the</strong> man could come to <strong>the</strong>rapy at <strong>Shepherd</strong>.<br />

“The funding is not so much covering care, but quality-of-life issues,”<br />

says Dean Melcher, director of annual giving for <strong>Shepherd</strong>. “This is a<br />

different group. They need more specialized help.”<br />

In addition to brain and/or spinal cord injuries, injured troops may<br />

be dealing with skeletal issues from carrying <strong>the</strong>ir equipment packs or<br />

suffer from severe headaches, Melcher says. Some have substance abuse<br />

problems, and most suffer from some level of post-traumatic stress<br />

disorder. Service men and women who are not returning to active duty<br />

may need help with re-entering <strong>the</strong> job market, planning <strong>the</strong>ir finances<br />

or related activities.<br />

No matter <strong>the</strong> need, SHARE has an answer. “We work with each service<br />

member on a case-by-case basis,” Cooper says. “We help each one<br />

establish individual goals and <strong>the</strong>n give <strong>the</strong>m <strong>the</strong> tools and skills needed<br />

to meet those goals. We want to help <strong>the</strong>m become as independent as<br />

possible, whe<strong>the</strong>r that means returning to active duty or living back at<br />

home in <strong>the</strong> civilian community.”<br />

Because of <strong>the</strong>ir specialized needs, patients in <strong>the</strong> SHARE<br />

Initiative are treated separately from <strong>the</strong> general patient population.<br />

“They are unique in psychology and temperament,” Melcher says. “They<br />

don’t respond to <strong>the</strong> same <strong>the</strong>rapy and stimulus that o<strong>the</strong>rs do, based on<br />

<strong>the</strong>ir training and demeanor. We found <strong>the</strong>y respond better in <strong>the</strong>ir own<br />

environment.”<br />

Thus, <strong>Shepherd</strong> renovated six apartments at Biscayne Place, which is<br />

near <strong>the</strong> hospital. The apartments had been used in <strong>the</strong> past for family<br />

housing, but now that <strong>Shepherd</strong> has <strong>the</strong> Irene and George Woodruff<br />

Family Residence <strong>Center</strong>, <strong>the</strong> Biscayne apartments are available to<br />

service members and <strong>the</strong>ir families.<br />

Support for SHARE also goes beyond monetary contributions.<br />

Volunteers shop for groceries and run o<strong>the</strong>r errands, and businesses have<br />

donated <strong>the</strong>ir products and services at no charge or for a discounted rate.<br />

“It’s amazing how much <strong>the</strong> whole community wants to help,”<br />

Cooper says. “The support we’ve received has been absolutely wonderful.”<br />

Photo Courtesy of Anthony Orig<br />

Above: Dillon Cannon of Sugar Land, Texas, sustained<br />

a spinal cord injury while serving in Iraq. He received<br />

treatment in <strong>Shepherd</strong>'s SCI Day Program through <strong>the</strong><br />

SHARE Initiative.<br />

Mat<strong>the</strong>w Sanchez, right, and his friends decided to raise<br />

money for SHARE because <strong>the</strong>y believe all soldiers should<br />

have access to <strong>the</strong> best possible care. Left to right are:<br />

Anthony Orig, Jonny Cromwell, Marina Fleming, Peter<br />

Zhang and Mat<strong>the</strong>w.<br />

Previous Page: Former spinal cord injury patient Mat<strong>the</strong>w<br />

Sanchez and some friends, including Marina Fleming,<br />

biked 4,500 miles across <strong>the</strong> United States this past<br />

summer to raise money for military patients being treated<br />

in <strong>Shepherd</strong>'s SHARE Initiative.<br />

Fall 2009 3 1


FoundationFeatures<br />

<strong>Shepherd</strong> Injury Prevention Program<br />

Launches Online Effort to Reach<br />

More Teens and Young Adults<br />

By Pete Collman, <strong>Shepherd</strong> <strong>Center</strong> Community Relations Coordinator<br />

and Think First Director of Georgia<br />

It is said that an ounce of prevention<br />

is worth a pound of cure. This<br />

proverb describes <strong>the</strong> foundation on<br />

which <strong>Shepherd</strong> <strong>Center</strong>’s Think First<br />

and injury prevention programs are<br />

built. For nearly 20 years, <strong>Shepherd</strong><br />

<strong>Center</strong>’s injury prevention message<br />

has been delivered by speakers living<br />

with disabilities, explaining <strong>the</strong>ir<br />

unique stories of injury and teaching<br />

youth on how to avoid brain and<br />

Pete Collman<br />

spinal cord trauma.<br />

Having managed <strong>the</strong> Think First Program at <strong>Shepherd</strong> for<br />

Photo by Leita Cowart<br />

<strong>the</strong> past 10 years, I have found that teens and young adults<br />

don’t easily seek out information on injury prevention. The<br />

challenge lies in getting <strong>the</strong> message to <strong>the</strong>m. That is why we<br />

are creating a new, socially<br />

dynamic outreach program<br />

called YiPES!! (Youth and<br />

Injury Prevention Education<br />

at <strong>Shepherd</strong>).<br />

<strong>Shepherd</strong>’s adolescent team<br />

orthopedic physician, Herndon<br />

Murray, M.D., proposed a<br />

new approach to reach young<br />

people on <strong>the</strong> perils of diving<br />

and o<strong>the</strong>r risky behaviors related to water recreation. “I wanted<br />

to see a specific focus on preventing diving and skim-boarding<br />

injuries in <strong>the</strong> Sou<strong>the</strong>ast,” he says. “What Pete (Collman) and<br />

his team have done has given this injury prevention message a<br />

vehicle to reach even more young people than <strong>the</strong> 13,000 reached<br />

through <strong>Shepherd</strong> <strong>Center</strong>’s current Think First Program.”<br />

YiPES!! is designed to use social networking sites, such as<br />

Facebook, Twitter and YouTube, to get an “edgier” message out to<br />

teens and young adults. This addition to <strong>the</strong> Think First Program<br />

will help in <strong>the</strong> broadening of our audience through <strong>the</strong> World<br />

Wide Web. Activities such as diving, skim boarding, skateboarding,<br />

ATV riding and o<strong>the</strong>r extreme sports will be highlighted. Also, a<br />

special emphasis will be placed upon distracted driving with a preventative<br />

approach to educating drivers on <strong>the</strong> perils of texting and<br />

phone usage while behind <strong>the</strong> wheel.<br />

Video public service announcements (PSAs) will be created to<br />

capture <strong>the</strong> attention of <strong>the</strong> adolescent Web surfer. Those will be<br />

followed by a message from a current <strong>Shepherd</strong> <strong>Center</strong> patient explaining<br />

<strong>the</strong>ir injury and how to avoid spinal cord and brain trauma.<br />

“I feel this is a great effort to get behind and show support for<br />

our injury prevention programs<br />

here at <strong>Shepherd</strong>,” Dr.<br />

Murray says. “I will be<br />

presenting our efforts on<br />

Think First and YiPES!! at<br />

<strong>the</strong> International Spinal Cord<br />

Society Convention this October<br />

in Florence, Italy. I feel<br />

this may just jump-start o<strong>the</strong>r<br />

organizations to follow suit<br />

in decreasing <strong>the</strong>se catastrophic injuries among our young people.”<br />

The YiPES!! Facebook page is active and is linked from <strong>the</strong><br />

<strong>Shepherd</strong> <strong>Center</strong> Facebook homepage at www.facebook.com/shepherd.<br />

The YouTube and Twitter endeavors are under construction.<br />

“I wanted to see a specific focus on preventing diving and<br />

skim-boarding injuries in <strong>the</strong> Sou<strong>the</strong>ast. What Pete (Collman)<br />

and his team have done has given this injury prevention<br />

message a vehicle to reach even more young people than<br />

<strong>the</strong> 13,000 reached through <strong>Shepherd</strong> <strong>Center</strong>’s current<br />

Think First Program.” — Herndon Murray, M.D.<br />

3 2 Spinal Column<br />

w w w. s h e p h e r d . o r g


A Holiday Gift with Meaning<br />

The true spirit of <strong>the</strong> holidays is conveyed through<br />

giving. Many of our friends and supporters plan to give<br />

a personal and special gift to <strong>the</strong>ir friends and family –<br />

<strong>the</strong> gift of hope for <strong>Shepherd</strong> <strong>Center</strong>’s patients –<br />

by making a “Holiday Tribute” gift to <strong>Shepherd</strong> <strong>Center</strong><br />

Foundation in honor of <strong>the</strong>ir family and associates.<br />

The Foundation sends personalized cards with our<br />

donors’ own greetings to <strong>the</strong>ir holiday card mailing lists.<br />

In addition, <strong>the</strong>ir friends and families are included in<br />

Spinal Column’s annual Holiday Tribute listing.<br />

Long-time <strong>Shepherd</strong> <strong>Center</strong> supporters Forrest<br />

Leef and Dorothy Mitchell-Leef and Becca and<br />

Rudy Harrell have a tradition of sharing <strong>the</strong>ir spirit<br />

of philanthropy by making Holiday Tributes for<br />

<strong>the</strong>ir friends and associates. Stan Topol & Associates<br />

was among <strong>the</strong> businesses that chose to honor <strong>the</strong>ir<br />

customers by making gifts to <strong>the</strong> Foundation to help<br />

<strong>Shepherd</strong> in its mission to restore our patients’ lives with<br />

hope, dignity and independence.<br />

For information about <strong>Shepherd</strong>’s Holiday Tribute<br />

program, contact Dean Melcher at 404-350-7306 or<br />

dean_melcher@shepherd.org.<br />

Gritz at <strong>the</strong> Ritz Honors Dell Sikes<br />

The Phoenix Society hosted its annual<br />

Gritz at <strong>the</strong> Ritz fashion show luncheon<br />

at <strong>the</strong> Ritz-Carlton, Buckhead on July 26.<br />

The guests enjoyed a delicious meal featuring<br />

a fashion show from Belk at Phipps<br />

Plaza and an entertaining and enlightening<br />

presentation by <strong>Shepherd</strong> <strong>Center</strong><br />

Chief Nurse Executive Tammy King.<br />

Ty Tippett, Senior Director of Planned<br />

Giving for <strong>Shepherd</strong> <strong>Center</strong> Foundation,<br />

served as master of ceremonies and had<br />

<strong>the</strong> pleasure of recognizing his friend and<br />

mentor, Dell Sikes, who was honorary<br />

chairman of <strong>the</strong> event. Dell served<br />

as vice-president of development for<br />

<strong>Shepherd</strong> <strong>Center</strong> form 1986-2002 and<br />

has been serving as special advisor to <strong>the</strong><br />

Foundation since 2002.<br />

The 2009 Phoenix Debutantes were introduced<br />

and recognized for <strong>the</strong>ir outstanding<br />

efforts in volunteering with <strong>Shepherd</strong><br />

<strong>Center</strong>’s patients and families, and particularly<br />

for <strong>the</strong>ir wonderful work at <strong>the</strong><br />

Wheelchair Division of <strong>the</strong> Peachtree Road<br />

Race. Alli Gombolay was awarded <strong>the</strong> prize<br />

of Debutante of <strong>the</strong> Year for her tireless<br />

volunteerism and outstanding commitment<br />

to <strong>the</strong> Phoenix Society.<br />

This year’s highly successful luncheon<br />

was thanks to <strong>the</strong> hard work and careful<br />

planning of Co-Chairmen Robin<br />

Phillips and Melinda Dabbiere. Leslie<br />

Grace, Connie Kushner, Karen Martin<br />

and Lois Puckett served as planning<br />

committee members. — Dean Melcher<br />

Above: <strong>Shepherd</strong> <strong>Center</strong> Foundation<br />

advisor Dell Sikes, second from right,<br />

was honored by <strong>the</strong> Phoenix Society and<br />

<strong>Shepherd</strong> <strong>Center</strong> for his many years of<br />

service. Also pictured, left to right, are event<br />

Co-Chairman Robin Phillips, Hugh McLeod,<br />

M.D., and Alana <strong>Shepherd</strong>.<br />

<strong>Shepherd</strong> <strong>Center</strong> co-founder Alana<br />

<strong>Shepherd</strong>, left, congratulates Phoenix<br />

Society Debutante of <strong>the</strong> Year Alli Gombolay.<br />

<strong>Shepherd</strong> <strong>Center</strong><br />

Auxiliary Announces<br />

Pecans Fundraiser<br />

The <strong>Shepherd</strong> <strong>Center</strong> Auxiliary’s<br />

annual holiday fundraiser, Pecans<br />

on Peachtree, runs from Nov. 9 to<br />

Dec. 24. This is <strong>the</strong> 26th year for<br />

<strong>the</strong> fundraiser, which has raised<br />

more than $1.3 million for patientrelated<br />

programs and Auxiliary<br />

operations since 1982.<br />

Georgia pecan farmers report<br />

that this year’s pecan crop appears<br />

to be even better than last year’s.<br />

Plus, all of <strong>the</strong> fundraiser’s mouthwatering<br />

pecan varieties will be<br />

available again this year along with<br />

two new products – Sweet & Salty<br />

Pleasures and a Holiday Trio.<br />

The Auxiliary is busy signing up<br />

volunteers to work <strong>the</strong> sales tables<br />

inside <strong>Shepherd</strong> <strong>Center</strong> from 9 a.m.<br />

to 4 p.m. weekdays and to host<br />

“Pecan Parties” in <strong>the</strong>ir homes or<br />

businesses. If you would like to volunteer,<br />

receive a brochure or place<br />

an order, call 404-367-1322 or go to<br />

www.pecansonpeachtree.org.<br />

— Midge Tracy<br />

Fall 2009 3 3


FoundationFeatures<br />

Junior Ball<br />

Promises Great Times<br />

and Great Music<br />

Get ready for a fun-filled night of great times,<br />

good friends and terrific music. On Saturday, Nov.<br />

7, Junior Ball Chairmen Hea<strong>the</strong>r and Eli Flint and<br />

Junior Committee Co-Chairmen Miller Jackson<br />

and Kirk Martin will host “Back to <strong>the</strong> Future,”<br />

<strong>the</strong> annual Junior Ball held in conjunction with<br />

The Legendary Party, <strong>Shepherd</strong> <strong>Center</strong>’s black-tie<br />

gala. While The Legendary Party will celebrate <strong>the</strong><br />

historical dream of Jules Verne, <strong>the</strong> Junior Ball will<br />

party to his visions of time and space travel in a<br />

modern set-up.<br />

Not only is this a great party on its own, but<br />

<strong>the</strong> Junior Ball gives our younger crowd a chance<br />

to sample The Legendary Party and let <strong>the</strong>se two<br />

groups of <strong>Shepherd</strong> supporters mingle and have a<br />

great time for a great cause.<br />

This year’s bash will be at The Ritz-Carlton,<br />

Buckhead and will feature a terrific Atlanta party<br />

band, League of Decency, in <strong>the</strong> Plaza Ballroom.<br />

Guests will also party into <strong>the</strong> late night hours to<br />

DJ-led karaoke in <strong>the</strong> Reform Club.<br />

The party starts at 10 p.m. and ends at 2 a.m.<br />

with late-night buffets featuring The Ritz-<br />

Carlton’s famous waffle bar and a hosted bar.<br />

Tickets are $75 per person and include all festivities.<br />

For more information, please contact Anne<br />

Pearce at (404) 350-7302 or<br />

anne_pearce@shepherd.org. — Dean Melcher<br />

Below: Junior Ball Chairmen Hea<strong>the</strong>r and Eli Flint, center,<br />

along with Junior Committee Chairmen Miller Jackson<br />

and Kirk Martin (not pictured), will host this year's event,<br />

which coincides with The Legendary Party. Pictured with<br />

<strong>the</strong> Flints are party Chairman-elect Dorothy Mitchell-Leef,<br />

M.D., left, and Chairman Cyndae Arrendale.<br />

Photos by Jim Fitts<br />

Legendary Party to<br />

Dazzle and Amaze<br />

Much as Jules Verne’s classic character Phileas Fogg embarked on<br />

an 80-day journey filled with intrigue and excitement, <strong>the</strong> guests<br />

of The Legendary Party 2009 will experience a wondrous adventure<br />

filled with fun and glamour – and perhaps <strong>the</strong> unexpected.<br />

“Around <strong>the</strong> World in 80 Days, The Legend of Jules Verne”<br />

promises to be <strong>the</strong> most imaginative and thrilling gala yet.<br />

Chairman Cyndae Arrendale and her dear friend and<br />

Chairman-elect, Dororthy Mitchell-Leef, M.D., have been<br />

working hard with The Legendary Committee to plan a truly<br />

amazing event to celebrate <strong>the</strong> vision and accomplishments of<br />

Jules Verne and <strong>Shepherd</strong> <strong>Center</strong>.<br />

“Since <strong>Shepherd</strong> has seen patients from all 50 states and 44<br />

countries, what better <strong>the</strong>me for The Legendary Party than<br />

‘Around <strong>the</strong> World in 80 Days’?” Cyndae says. She is also delighted<br />

<strong>the</strong> ball will celebrate <strong>the</strong> devotion and accomplishment<br />

of long-time <strong>Shepherd</strong> <strong>Center</strong> supporter Jane Woodruff, who<br />

serves as honorary chairman.<br />

On Nov. 7, Tony Conway’s A Legendary Event will transform<br />

<strong>the</strong> Ritz-Carlton, Buckhead into a real-life adventure. Guests<br />

will explore <strong>the</strong> cultures of <strong>the</strong> Victorian world while <strong>the</strong>y dine<br />

on scrumptious food and dance <strong>the</strong> night away to Doc Scantlin’s<br />

Imperial Palms Orchestra. The late-night entertainment will<br />

feature DJ-led karaoke. Festivities begin with cocktails at 7 p.m.<br />

and dancing and carousing will continue until 2 a.m.<br />

For sponsorship or ticket information, please contact<br />

Cara Puckett at cara_puckett@shepherd.org or<br />

404-350-7778. — Dean Melcher<br />

Photo by Jim Fitts<br />

Above: Committee leaders for The Legendary Party 2009 are,<br />

left to right, Terri Vawter, Steve Lore, John Woodruff, Cyndae<br />

Arrendale and Dorothy Mitchell-Leef, M.D.<br />

Inset: Cyndae is chairman of <strong>the</strong> 2009 committee, and Dorothy<br />

is chairman-elect for next year's event.<br />

3 4 Spinal Column<br />

w w w. s h e p h e r d . o r g


Junior Committee Preparing for a Memorable Year<br />

Photo by Anne Pearce<br />

The Junior Committee is back from its summer break and ready to start ano<strong>the</strong>r<br />

year of fundraising and fun.<br />

Earlier this year, <strong>the</strong> Junior Committee’s annual fundraiser, Derby Day, raised<br />

$200,000 – an especially impressive figure considering <strong>the</strong> state of <strong>the</strong> economy.<br />

Derby Day 2010 Co-Chairs Miller Jackson and Kirk Martin got started with<br />

planning early this summer with what is sure to be <strong>the</strong> best event yet.<br />

This season’s first Junior Committee meeting was held on Sept.16. The first order<br />

of business was showing appreciation to last year’s co-chairs, Erin Jernigan and<br />

Ryan Hoyt, for all <strong>the</strong> time and hard work <strong>the</strong>y put into making Derby Day 2009<br />

so successful. After hearing from several members of <strong>the</strong> <strong>Shepherd</strong> <strong>Center</strong> staff, <strong>the</strong><br />

committee jumped right in with <strong>the</strong>ir plans for sponsorship, an auction and how to<br />

make Derby Day 2010 <strong>the</strong> best one to date.<br />

For more information on joining <strong>the</strong> Junior Committee or becoming a sponsor of<br />

Derby Day, please contact Anne Pearce at 404-350-7302 or anne_pearce@shepherd.org.<br />

2009-2010<br />

Executive Board:<br />

Derby Day Co-Chairs:<br />

Miller Jackson and Kirk Miller<br />

Sponsorship Co-Chairs:<br />

Dan Lenahan and Scott Tucker<br />

Auction Co-Chairs:<br />

Reagan Michaelis, Lauren Tucker<br />

and Philip Mize<br />

Membership Co-Chairs:<br />

Stuart Griswold and Shannon Shipley<br />

Beverage Co-Chairs:<br />

Brenden Harper and Hunter Ross<br />

Operations Committee:<br />

Hamilton Bridges, Orin Romain,<br />

Wesley Snapp and Trey Wea<strong>the</strong>rly<br />

Treasurer:<br />

Nadine Helal<br />

<strong>Shepherd</strong> <strong>Center</strong> Staff:<br />

Anne Pearce<br />

Above: The 2009-2010 Junior Committee<br />

Executive Board: front row, left to right –<br />

Nadine Helal, Wesley Snapp, Shannon<br />

Shipley, Lauren Tucker, Reagan Michaelis, Kirk<br />

Martin and Miller Jackson; back row: Brenden<br />

Harper, Orin Romain, Hamilton Bridges, Trey<br />

Wea<strong>the</strong>rly, Stuart Griswold, Scott Tucker,<br />

Hunter Ross and Philip Mize. Not pictured are<br />

Dan Lenahan and Anne Pearce.<br />

<strong>Shepherd</strong> <strong>Center</strong> Society Gets Its Second Year Under Way<br />

Photo by Anne Pearce<br />

Above: Daryn Schwartz, left,<br />

and Albie Whitaker are <strong>the</strong><br />

2009-2010 <strong>Shepherd</strong> <strong>Center</strong><br />

Society co-chairmen.<br />

Last summer, 16 individuals, many recent Junior<br />

Committee alumni, formed a new volunteer group<br />

to bridge <strong>the</strong> gap between <strong>the</strong> Junior<br />

Committee and <strong>Shepherd</strong> <strong>Center</strong>’s o<strong>the</strong>r two<br />

volunteer groups, Peach Corps and <strong>the</strong> <strong>Shepherd</strong><br />

<strong>Center</strong> Auxiliary.<br />

<strong>Shepherd</strong> <strong>Center</strong> Society (SCS) was born and<br />

couldn’t have had a more successful first year. Under<br />

SCS Co-Chairs Lauren Hooks and Alex Panos,<br />

<strong>the</strong> group grew to 167 members and raised a net of<br />

more than $10,000 for <strong>Shepherd</strong> <strong>Center</strong>.<br />

This fall, SCS has launched its second year under<br />

<strong>the</strong> guidance of new SCS Co-Chairs Daryn Schwartz and Albie Whitaker. With events<br />

in <strong>the</strong> fall, winter, spring and summer, <strong>the</strong>re’s sure to be something for everyone.<br />

For more information on joining SCS, please contact Anne Pearce at 404-350-7302<br />

or anne_pearce@shepherd.org — Anne Pearce<br />

SCS Leadership<br />

for 2009-2010<br />

SCS Co-Chairs:<br />

Daryn Schwartz and Albie Whitaker<br />

Kick-off Party Co-Chairs:<br />

Lucy King and Meredith Repp<br />

“Big Game” Bash Co-Chairs:<br />

Brandie Miner and Will Lovell<br />

Casino Night Co-Chairs:<br />

Lauren and Mike Imber<br />

Sarah and Jamie <strong>Shepherd</strong><br />

Summer In <strong>the</strong> City Co-Chairs:<br />

Leah Humphries, Caeser Pruett<br />

and Stacey Lucas<br />

Fall 2009 3 5


FoundationFeatures<br />

Photo by Leita Cowart<br />

Notes from Scott Sikes<br />

<strong>Shepherd</strong> <strong>Center</strong> Foundation Executive Director<br />

Giving Thanks!<br />

Dear <strong>Shepherd</strong> <strong>Center</strong> Volunteers and Donor Friends:<br />

I’m writing you this letter in <strong>the</strong> heat and humidity of an<br />

Atlanta summer. By <strong>the</strong> time you see this in print, fall has<br />

returned, and you are busy with all sorts of activities.<br />

Kids are back in school. Young adults are in college. The first<br />

cooler, drier days have arrived in Atlanta. The leaves are changing.<br />

College football is in full swing with many of you intently<br />

following scores nationwide. Those of you who are super-organized<br />

may be ga<strong>the</strong>ring your income tax-related information. Your<br />

meetings with your accountant or o<strong>the</strong>r tax preparer may involve<br />

pre-planning before <strong>the</strong> end of <strong>the</strong><br />

”These aren’t simply monetary<br />

values. Often, <strong>the</strong>y are a guidebook<br />

for living a generous life.”<br />

calendar/tax year. Normally, you consider<br />

accelerating any payments or gifts that<br />

might be deductible into this year and<br />

delaying any income into next year.<br />

Regardless of what you are doing<br />

this fall with family and/or friends or how sophisticated your<br />

tax planning is, consider what one Atlanta family has done for<br />

decades. They hold a family meeting after <strong>the</strong>ir Thanksgiving<br />

dinner and discuss <strong>the</strong> charitable organizations to which <strong>the</strong>y give<br />

and how large to make <strong>the</strong>ir contributions.<br />

Each family member brings with <strong>the</strong>m some of <strong>the</strong> charitable<br />

solicitations <strong>the</strong>y received during <strong>the</strong> year. Even <strong>the</strong> youngest<br />

family members are involved. The family members discuss each of<br />

<strong>the</strong>se charitable organizations: each organization’s return-on-gift<br />

“investment,” <strong>the</strong> impact of <strong>the</strong> organization on society, how<br />

<strong>the</strong> organization has benefited <strong>the</strong> family members’ loved ones<br />

and/or friends, etc. Afterward, family members vote on <strong>the</strong><br />

charitable organizations that will receive gifts and determine<br />

what size <strong>the</strong> contributions will be.<br />

This meeting serves as one way for grandparents and parents<br />

to transfer <strong>the</strong>ir own values and identities to <strong>the</strong>ir children and<br />

o<strong>the</strong>r loved ones at a significant time of year. The Thanksgiving<br />

holiday is a time when one can thank those organizations<br />

doing crucial work for important constituencies. Also, it is an<br />

excellent time to prepare prudently for <strong>the</strong><br />

end of <strong>the</strong> tax year.<br />

Sophisticated financial and estate<br />

planners don’t spend time with clients<br />

simply helping <strong>the</strong> clients transfer <strong>the</strong>ir<br />

money to heirs. Instead, planners spend<br />

time with clients helping <strong>the</strong>m to transfer <strong>the</strong>ir most deeply<br />

held convictions and values to <strong>the</strong> generation that follows.<br />

These aren’t simply monetary values. Often, <strong>the</strong>y are a<br />

guidebook for living a generous life.<br />

If you would like to leave a legacy to <strong>the</strong> next generation<br />

of your family on Thanksgiving Day, please call me, and I can<br />

help you organize a game plan. Thank you for your generous<br />

investments in our work, which helps better <strong>the</strong> lives of<br />

patients and families.<br />

Seasons<br />

of <strong>Shepherd</strong> <strong>Center</strong><br />

Supporters<br />

From season to season, <strong>Shepherd</strong><br />

<strong>Center</strong> supporters combine generous<br />

giving with fun events and<br />

activities to benefit patients and <strong>the</strong>ir<br />

families. From The Legendary Party<br />

to Casino Night to Derby Day, supporters<br />

consistently donate <strong>the</strong>ir time<br />

and money to help patients rebuild<br />

<strong>the</strong>ir lives with hope, dignity and<br />

independence.<br />

3 6 Spinal Column<br />

w w w. s h e p h e r d . o r g


Alyson Roth:<br />

Advocate and Surfing Competitor<br />

Former <strong>Shepherd</strong> <strong>Center</strong> spinal cord<br />

injury patient Alyson Roth of Irvine,<br />

Calif., was crowned Ms. Wheelchair<br />

California in April and placed second<br />

in <strong>the</strong> Ms. Wheelchair America<br />

competition in August. The California<br />

and national pageants are competitions<br />

designed to select <strong>the</strong> most accomplished<br />

and articulate spokeswoman for <strong>the</strong><br />

millions of Americans with disabilities.<br />

Alyson has been involved in advocacy<br />

work for nearly a decade. She is now<br />

<strong>the</strong> development manager for Free<br />

Wheelchair Mission, a non-profit organization that distributes wheelchairs<br />

to poor people with disabilities in 71 countries around <strong>the</strong> world. For more<br />

information on Alyson and <strong>the</strong> pageant, see www.mswheelchairca.org and<br />

www.mswheelchaircalifornia2009.blogspot.com.<br />

Also, in July, Alyson became <strong>the</strong> first woman with a disability to ever<br />

surf in <strong>the</strong> Hurley U.S. Open of Surfing in Huntington Beach, Calif.<br />

More than half a million people attended <strong>the</strong> event to witness this<br />

history-making moment.<br />

“I was truly honored to have been chosen and to represent not only<br />

women, but all people with disabilities and let <strong>the</strong>m know that life<br />

doesn't stop after injury!” Alyson says.<br />

You can read more about <strong>the</strong> event on Alyson’s blog at<br />

http://alysonroth.blogspot.com/2009/07/us-open-of-surfing.html.<br />

Photo Courtesy of Alyson Roth<br />

Above: Former patient Alyson Roth of Irvine, Calif., was crowned<br />

Ms. Wheelchair California and placed second in <strong>the</strong> Ms. Wheelchair<br />

America pageant.<br />

<strong>Shepherd</strong> <strong>Center</strong>’s<br />

2009 Annual Report<br />

Available Online<br />

<strong>Shepherd</strong> <strong>Center</strong>’s 2009 Annual Report is<br />

available both online and in printed format.<br />

The report includes statistical information<br />

about <strong>Shepherd</strong> patients, financial information<br />

about <strong>the</strong> hospital and information about<br />

philanthropic gifts to<br />

<strong>the</strong> <strong>Shepherd</strong> <strong>Center</strong><br />

Foundation.<br />

It also includes features<br />

on <strong>Shepherd</strong>’s programs<br />

in <strong>the</strong>rapeutic recreation<br />

and assistive technology,<br />

<strong>the</strong> Marcus Community<br />

Bridge Program, animalassisted<br />

<strong>the</strong>rapy and <strong>the</strong><br />

Patient Care and Patient<br />

Equipment funds.<br />

Also available both<br />

online and in print is a<br />

separate donor directory<br />

that lists individual and organizational donors,<br />

as well as Bridge Builders and endowed funds.<br />

To request copies, contact Dean Melcher at<br />

404-350-7306 or dean_melcher@shepherd.<br />

org. Also, you can download electronic copies<br />

in PDF format from our Web site at<br />

www.shepherd.org/publications.<br />

Fall 2009 3 7


LovingTributes<br />

Honorariums<br />

Honorees are listed first in bold print followed by <strong>the</strong> names of<br />

those making gifts in <strong>the</strong>ir honor. This list reflects gifts made to<br />

<strong>Shepherd</strong> <strong>Center</strong> between June 1, 2009 and July 31, 2009.<br />

Cyndae Arrendale’s Birthday<br />

Mr. and Mrs. Steve A. Williams<br />

Winkie Arrendale’s Birthday<br />

Mr. and Mrs. Steve A. Williams<br />

Marla Jones Bennett’s Birthday<br />

Mr. and Mrs. Thomas J. Bennett<br />

Irene Berson’s Recovery<br />

Mrs. William Schwartz<br />

Rachel D. Betzler – “Thanks for<br />

C.V. help.”<br />

Dr. David F. Apple, Jr.<br />

Susan Bowen – “Congratulations on<br />

<strong>the</strong> JCAHO results.”<br />

Dr. David F. Apple, Jr.<br />

Richard Brazones’ Birthday<br />

Mr. and Mrs. Patrick T. Hickey, Jr.<br />

Wanda Buckley’s Marriage to<br />

Dr. Steven Morganstern<br />

Mr. and Mrs. Joel K. Isenberg<br />

William F. Bundy<br />

Ms. Susan Gregory<br />

Dr. and Mrs. Christopher Clare – For<br />

<strong>the</strong>ir Unending Love and Support<br />

Ms. Carol A. Clare<br />

Jonathan R. Cromwell – We Ride<br />

for <strong>Shepherd</strong><br />

Mr. R. James Cromwell<br />

Hill Daniel<br />

Mr. Phillip Lee<br />

Mr. and Mrs. Douglas S. Simpson<br />

Jason DiSanto<br />

Mr. and Mrs. Giuseppe Vitulli<br />

Carol Chambers and Col. Jack<br />

Gibson’s Wedding<br />

Mr. and Mrs. Joel K. Isenberg<br />

Kim Harrison<br />

Mr. Dan Chase<br />

Cathy Ellis and Greg Hendrix’s<br />

Wedding<br />

Mr. and Mrs. Jere V. Garde<br />

Steve Holleman – Great CFO of<br />

<strong>the</strong> Year<br />

Dr. David F. Apple, Jr.<br />

Captain Brian Jantzen<br />

Mr. and Mrs. Robert Jantzen<br />

Linda Jones, PT – “Thanks for all<br />

your hard work.”<br />

Dr. David F. Apple, Jr.<br />

Kings County Bicyclists<br />

Mr. Gary Chuba<br />

Joan Latiolais<br />

Mr. Stan Topol<br />

Mae Laverty<br />

Mr. and Mrs. William Laverty<br />

Above: Donor Sydell<br />

Harris, right, founder of Spa<br />

Sydell based in Atlanta,<br />

volunteers her time to provide<br />

makeovers to female patients<br />

at <strong>Shepherd</strong> <strong>Center</strong>.<br />

Donald Peck Leslie, M.D.<br />

Mrs. Morris I. McDonald<br />

Donald Peck Leslie, M.D. – “For<br />

saving lives and changing lives<br />

for <strong>the</strong> better forever”<br />

Ms. Carol A. Clare<br />

Leslie and Hugh McLeod<br />

Dr. and Mrs. William A. Blincoe<br />

Brian Mock’s Recovery<br />

Mr. and Mrs. Ronald L. Mock<br />

Michael Moderow<br />

Mr. and Mrs. Joseph Moderow<br />

Laurence Moore – “Thanks for your<br />

great job.”<br />

Dr. David F. Apple, Jr.<br />

Anthony Orig’s Ride for <strong>Shepherd</strong><br />

Carroll County Nephrology, PC<br />

Mr. Jim LaRocca<br />

Dr. Harry Uy<br />

Carrie Ann Patterson’s Graduation<br />

– Receipt of Doctor of Physical<br />

Therapy Degree<br />

Ms. Teresa L. Little<br />

Libby Pearce<br />

Mrs. Virginia Roe<br />

Matt Sanchez’s Efforts for our Troops<br />

Mr. William E. Barry<br />

Mr. Steve Branigan<br />

Mr. John Brucato<br />

Mtn. View RV, Inc.<br />

Dr. Harry Uy<br />

Janis Sheftel’s Retirement<br />

The UPS Foundation<br />

Beverly and Jack Shields<br />

Mr. John R. Simmerman<br />

Dell Sikes – Gritz at <strong>the</strong> Ritz<br />

Mr. and Mrs. Louie A. Pittman, Jr.<br />

Elizabeth Fowler Smith<br />

Mr. K. Boynton Smith<br />

Nicole Smith and Bryan Wynn’s<br />

Engagement<br />

Mrs. Mary E. Forgione<br />

LTG Stephen Speakes<br />

Captain Brennan Speakes<br />

Smith Wallace’s Birthday<br />

Mr. Harold R. Smith<br />

Phillip Watters<br />

Ms. Christine Lynn<br />

Photo by Gary Meek<br />

Molly Welch<br />

Mrs. Kyle Watzman<br />

Mr. Gerald Welch<br />

The Birth of Audrey Turner Wilson<br />

Mr. and Mrs. James H. <strong>Shepherd</strong> III<br />

Mr. and Mrs. Mark M. Whitney<br />

Above: The fifth floor of <strong>the</strong> Marcus-Woodruff Building is almost complete. Staff and patients from <strong>the</strong><br />

Spinal Cord Injury Unit expect to move in soon.<br />

Hortense B. Wolf<br />

Mr. and Mrs. David D. Wolf<br />

3 8 Spinal Column<br />

w w w. s h e p h e r d . o r g


LovingTributes<br />

Memorials<br />

Deceased friends of <strong>Shepherd</strong> <strong>Center</strong> are listed first in bold<br />

print followed by <strong>the</strong> names of those making gifts in <strong>the</strong>ir<br />

memory. This list reflects gifts made to <strong>Shepherd</strong> <strong>Center</strong><br />

between June 1, 2009 and July 31, 2009.<br />

Craig Alford<br />

Mr. and Mrs. Edwin Cowart<br />

Danforth P. Bearse<br />

Mrs. Frank C. Bowen, Jr.<br />

Mr. and Mrs. Edwin Cowart<br />

Griffin B. Bell<br />

Mr. and Mrs. Geoffrey S. Fishman<br />

Jonathan M. Be<strong>the</strong>l – In Loving<br />

Memory<br />

Mr. and Mrs. Robert M. Slider<br />

Lauren Clark<br />

Mr. and Mrs. William T. Hopkins<br />

David and Billy Foster<br />

Ms. Jane S. Taylor<br />

W. A. Gardner<br />

Mr. and Mrs. Gary Roques<br />

Malissa L. Grady<br />

Mr. and Mrs. Richard W. Sorenson<br />

Silas G. Gurley, Jr.<br />

Mr. and Mrs. Donald Atcheson<br />

Mr. John R. Atcheson<br />

Delree, Annette and Bob Friant<br />

Dr. Aprille Holland<br />

Mr. and Mrs. Jack Julian and Family<br />

McKenney's, Inc.<br />

John Drayton Conley, M.D.<br />

Mr. and Mrs. Larry Anderson<br />

Mrs. Sandra S. Biggs<br />

Mr. and Mrs. Lanny W. Marsh<br />

Suzanne Schilling Doughtie<br />

Mrs. Frank C. Bowen, Jr.<br />

Larry Doyal<br />

Mr. and Mrs. James M. Caswell, Jr.<br />

Mrs. Patricia C. Williams<br />

Paul A. Duke<br />

Mr. and Mrs. Edwin Cowart<br />

Mr. and Mrs. Theodore M. Forbes, Jr.<br />

Mr. and Mrs. Connor F. Nelson, Jr.<br />

Mr. and Mrs. William R. Newton<br />

Mr. and Mrs. Louie A. Pittman, Jr.<br />

Lil Hankey<br />

Elizabeth and Mark Pope<br />

Zuma W. Harris<br />

Mr. and Mrs. Nick Brink<br />

Mr. and Mrs. Grifton Carden<br />

Mrs. Peg Confer<br />

Mr. and Mrs. Paul Corley<br />

Captain and Mrs. James C. Hatch<br />

Mrs. Betty Ann Inman<br />

Mr. and Mrs. Daniel Kuerner<br />

Mr. and Mrs. Benjamin L. Mason<br />

Mr. and Mrs. William D. Morrison<br />

Mr. and Mrs. William H. Schneidewind, Jr.<br />

Ms. Rebecca Shuler<br />

Ms. Nancy B. Thomas<br />

Mr. and Mrs. Almand J. Westbrook, Sr.<br />

Mr. and Mrs. Randolph Wolfe<br />

Above: Players and cheerleaders for <strong>the</strong> Atlanta Falcons visited<br />

<strong>Shepherd</strong> <strong>Center</strong> rehabilitation inpatients at <strong>the</strong> hospital this<br />

past summer.<br />

Paul Bowen<br />

1924-2009<br />

<strong>Shepherd</strong> <strong>Center</strong> celebrates <strong>the</strong> life of beloved<br />

volunteer Paul Bowen, who passed away on Aug.<br />

26. Paul had been a donor and volunteer since<br />

1985. In 2003, Paul was honored as one of <strong>the</strong><br />

11Alive Community Service Award recipients<br />

for founding “The Breakfast Club,” a group of<br />

volunteers who assist with feeding breakfast to our<br />

patients. The Breakfast Club and <strong>Shepherd</strong> <strong>Center</strong><br />

salute his faithful service to volunteering for this<br />

program for many years.<br />

Paul personally recorded more than 3,500<br />

volunteer hours since 1992 and earned himself <strong>the</strong><br />

nickname “The Colonel” by <strong>the</strong> o<strong>the</strong>r Breakfast<br />

Club members for his take-charge, former Marine<br />

approach. In 2002, <strong>Shepherd</strong> <strong>Center</strong> presented Paul<br />

with a Bronze Star for his excellent customer service<br />

to our patients and staff. In 2007, Paul was named<br />

<strong>Shepherd</strong> <strong>Center</strong> Angel of <strong>the</strong> Year to honor his<br />

service to our patients and <strong>the</strong>ir families.<br />

Fall 2009 3 9


LovingTributes<br />

John W. McIntyre, Sr.<br />

Mr. and Mrs. James M. Caswell, Jr.<br />

Mrs. Joan Woodall<br />

Rebecca Cox McKinley<br />

Mr. and Mrs. James M. Caswell, Jr.<br />

Alice Davis McKnight<br />

Mrs. Frank C. Bowen, Jr.<br />

Mr. and Mrs. Edwin Cowart<br />

John O. Mitchell<br />

Mrs. John Jungman<br />

Caleb C. Moffat<br />

Jacksonville Hockey Boosters<br />

Club, Inc.<br />

B. Waldo “Buck” Moore, M.D.<br />

Ms. Marcia J. Hubbard<br />

Ms. Mabel A. Nicholson<br />

Mr. and Mrs. J. Harold <strong>Shepherd</strong><br />

Joseph K. Orr III<br />

Mr. and Mrs. William C. Rawson, Sr.<br />

Ronald Parker<br />

Mrs. John R. Robinson<br />

David C. Patrick II<br />

Dr. and Mrs. C. W. Bolinger<br />

Ms. Jeanne K. Costigan<br />

Mr. and Mrs. William Eller<br />

Mr. and Mrs. Walter P. Ledet<br />

Mrs. Frances F. Outland<br />

Above: Former spinal cord injury patients Mat<strong>the</strong>w Sanchez, left, and Dillon Cannon, center,<br />

were interviewed in August by CNN's Dr. Sanjay Gupta. Mat<strong>the</strong>w and some friends completed<br />

a cross-country bicycle ride this past summer to raise money for <strong>the</strong> SHARE Initiative, which<br />

funds care for soldiers and veterans, such as Dillon.<br />

Alexander Radev<br />

Mr. and Mrs. Skip Foley<br />

Claire Rappaport<br />

Ms. Sally Atwell<br />

Nathan Robertson<br />

Mr. and Mrs. Milton Jacobson<br />

Robert Lee Harvey<br />

Mrs. R. B. Lippincott, Jr.<br />

Charles E. Houswirth, Sr.<br />

Mrs. Lindsey Hopkins III<br />

Ken Hawkins<br />

Mr. Alex Painter<br />

Jennings Hertz, Jr.<br />

Mr. and Mrs. J. Harold <strong>Shepherd</strong><br />

McArba Hunter<br />

Mr. and Mrs. Joel K. Isenberg<br />

Jack Izard<br />

Mr. and Mrs. James M. Caswell, Jr.<br />

Robert Joel<br />

Mrs. Patricia C. Williams<br />

Ralph “RNK” Kelley<br />

Mr. and Mrs. Thomas J. Bennett, Jr.<br />

Dr. John Dudley King, Sr.<br />

Mr. and Mrs. Marshall J. Bachman<br />

Mr. and Mrs. Rhea Bowden<br />

Mr. and Mrs. Lawrence W. Gillespie<br />

Mrs. Frank S. Goodman<br />

Ms. Peggy Hatcher<br />

Mr. and Mrs. William C. Hatcher<br />

Ms. Mary Klein<br />

Pat and Tricia McConathy<br />

Elizabeth and Mark Pope<br />

Mr. Richard F. Romeo<br />

Mr. and Mrs. J. Harold <strong>Shepherd</strong><br />

Mrs. Patricia C. Williams<br />

Tom King<br />

Harp & Callier, LP<br />

O. David Kulman<br />

Dr. and Mrs. David F. Apple, Jr.<br />

Mavis P. Leslie<br />

Dr. and Mrs. David DuBose<br />

Roberta Letton<br />

Mrs. J. Lucian Smith<br />

Tim Lovelace<br />

Ms. Jane S. Taylor<br />

Donald M. Lynch<br />

Mr. and Mrs. Christopher W. Cay<br />

Nathan “Nat” Manning<br />

U.S. Customs Law Enforcement<br />

Explorers Post 4601, Newark, NJ<br />

Elizabeth Deckle Marks<br />

Mr. John Barton Marks, Jr.<br />

Ellen Marrs’ Mo<strong>the</strong>r<br />

Mr. and Mrs. Mark W. Slonaker<br />

Lawrence F. McArdle<br />

Mrs. Barbara McArdle<br />

Madlyn McCollum<br />

Dr. and Mrs. David F. Apple, Jr.<br />

Don McDaniel<br />

Dr. and Mrs. Brock Bowman<br />

Ms. Nora Mangrum<br />

<strong>Shepherd</strong> <strong>Center</strong> Financial<br />

Services and Materials<br />

Management Staff<br />

<strong>Shepherd</strong> <strong>Center</strong> Foundation Staff<br />

Dr. and Mrs. David L. Smith<br />

Dr. Allen McDonough<br />

Mr. and Mrs. Theodore M.<br />

Forbes, Jr.<br />

Harold C. McKenzie<br />

Mr. and Mrs. J. Harold <strong>Shepherd</strong><br />

Mrs. Joan Woodall<br />

Sherri Rudd<br />

Mr. and Mrs. Bruce Barkley<br />

Mr. Gerald Barnes<br />

Benchmark Rehabilitation<br />

Mr. and Mrs. Wayne Cranford<br />

Mr. and Mrs. Lewis J. DiPrima<br />

Ms. Patricia Harwell<br />

Mr. and Mrs. Byrne E. Heninger<br />

Dr. and Mrs. Mark Lobstein<br />

Ms. Betsy McDaniel<br />

Ms. Mary L. Rudd<br />

Ms. Pat Walter<br />

White County Middle School<br />

Mr. and Mrs. Mark Winchester<br />

Dr. Leigh Scott<br />

Mr. and Mrs. James M. Caswell, Jr.<br />

Sallie Sellers<br />

Mr. John M. Tinley<br />

Charles R. <strong>Shepherd</strong><br />

Mr. and Mrs. Louie A. Pittman, Jr.<br />

Captain Sean P. Sims<br />

Mr. Thomas Sims<br />

Wyman P. Sloan, M.D.<br />

Mr. and Mrs. J. Harold <strong>Shepherd</strong><br />

Mrs. Patricia C. Williams<br />

4 0 Spinal Column<br />

w w w. s h e p h e r d . o r g


Anita M. Smith<br />

Mrs. Frank C. Bowen, Jr.<br />

Laura Maddox Smith<br />

Dr. and Mrs. David F. Apple, Jr.<br />

Mr. and Mrs. James M. Caswell, Jr.<br />

Mr. and Mrs. Theodore M. Forbes, Jr.<br />

Mr. and Mrs. J. Harold <strong>Shepherd</strong><br />

Wilfred Sollenberger<br />

Mrs. R. B. Lippincott, Jr.<br />

Mrs. Stark – Ruth Baxter’s Mo<strong>the</strong>r<br />

Mr. and Mrs. T. Ray Logan<br />

Doris Rose Thomas<br />

Mr. and Mrs. James R. Balkcom, Jr.<br />

Mr. and Mrs. Jack J. Berlin<br />

Mr. and Mrs. Ronald B. Bobo<br />

Mr. Broughton Ferguson<br />

Mr. and Mrs. William M. Graves<br />

Governor and Mrs. Joe F. Harris<br />

Mr. and Mrs. Wilder G. Little<br />

Mr. and Mrs. Bryan E. Marshall<br />

Mr. and Mrs. Kenneth W. Miller, Jr.<br />

Mr. and Mrs. James M. Morris<br />

Ms. Ann P. Morriss<br />

Mr. David C. Mulkey<br />

Mr. and Mrs. Arthur J. Schwartz<br />

Mr. and Mrs. Richard W. Taylor<br />

Mr. and Mrs. Ken Thrasher<br />

Mr. Andrew Turner<br />

Mr. Jerry Wi<strong>the</strong>rs<br />

Frank “Bubba” Thurmond<br />

Mr. David G. Hall<br />

Above: Atlanta Falcons players found some fans when <strong>the</strong>y visited <strong>Shepherd</strong> <strong>Center</strong><br />

inpatients this past summer.<br />

Lee Timberlake<br />

Ms. Linda Crowley<br />

Mark P. Tomlinson<br />

Mr. and Mrs. James M. Caswell, Jr.<br />

Hardon McDonald Wade III<br />

Mrs. Virginia Iszard<br />

John Watt<br />

Mr. Spencer W. Smith, Sr.<br />

Walter C. Wattles<br />

Mr. and Mrs. William R. Newton<br />

Elizabeth and Mark Pope<br />

Brenda White<br />

Mr. and Mrs. William T. Hopkins<br />

Tate Wright, Jr.<br />

Mr. and Mrs. C. Alexander Peterson<br />

Margaret <strong>Shepherd</strong> Yates<br />

Cobb Community Foundation<br />

Mr. and Mrs. P. Daniel Yates III<br />

Lawson Yow<br />

Mr. and Mrs. James M. Caswell, Jr.<br />

Mr. and Mrs. J. Harold <strong>Shepherd</strong><br />

Josephine Zachary<br />

Dr. and Mrs. Brock Bowman<br />

Mr. and Mrs. Stephen B. Goot<br />

Mr. and Mrs. J. Harold <strong>Shepherd</strong><br />

The <strong>Shepherd</strong> <strong>Center</strong> Auxiliary<br />

Mr. and Mrs. Dell B. Sikes<br />

Mr. and Mrs. Terrence M. Tracy<br />

Above: Former brain injury patient Brooke Albright of Troy, Tenn., participates in art <strong>the</strong>rapy with<br />

lead Acquired Brain Injury Unit recreation <strong>the</strong>rapist Ashley Haynes.<br />

Fall 2009 4 1


Address Service Requested<br />

Read <strong>the</strong> magazine<br />

online at:<br />

spinalcolumn.org<br />

Photo Courtesy of Brian Waldersen<br />

A Dream No Longer Deferred<br />

Brian Waldersen’s dream to go to medical school was sidelined after a February<br />

2007 car accident injured his C-5 to C-7 vertebrae, leaving him a quadriplegic.<br />

But Brian’s dream is back on track.<br />

This past summer, he moved from Phoenix to Baltimore and began studying<br />

medicine at Johns Hopkins University on Aug. 17. He will be <strong>the</strong> first person in<br />

a wheelchair ever to attend medical school at <strong>the</strong> university.<br />

“It feels good to be focused on something and have a true purpose,” says<br />

Brian, who spent four months at <strong>Shepherd</strong>. “Before <strong>the</strong> accident, I had been<br />

thinking about med school for four or five years. Now it’s here, and I’m ready to<br />

get going.”<br />

While Johns Hopkins held Brian to <strong>the</strong> same standards as all o<strong>the</strong>r applicants,<br />

<strong>the</strong> university is making some adjustments in environment and equipment to accommodate<br />

him. The medical school purchased a specialized power wheelchair<br />

that allows Brian to stand and move around, as well as adapted standard equipment<br />

and instruments such as his stethoscope. Brian plans to review Webcasts<br />

and online class notes and complete assignments using voice-activated software.<br />

“It will definitely be a challenge because I’m not at <strong>the</strong> same physical level as<br />

everyone else,” Brian says. “But I’m up for it.”<br />

Brian is interested in shaping health policy, possibly by working in an academic<br />

setting, although he hasn’t ruled out treating patients. “I’m especially interested<br />

in working to address health disparities within <strong>the</strong> disabled community,” he says.

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