FEIBA Patient Information Booklet - Haemophilia Care

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FEIBA and inhibitors If you or someone you care for has been told they have an inhibitor, you may understandably have some questions and concerns about how this will affect you and your family. Thankfully, treatment has come a long way in recent years and today inhibitor patients and their families can generally manage treatment themselves and continue with daily activities. FEIBA has been used for inhibitor treatment for over three decades, which means that there is a long history of clinical data to support its use. This booklet has been designed for patients who have been prescribed FEIBA. It will provide you with comprehensive information about FEIBA treatment and inhibitors. However, if you have any further questions, please make a note of them to discuss with your Doctor or Nurse at your next appointment. Contents Introduction to inhibitors 4 From hospital to home: the evolution of inhibitor treatment 5 What is FEIBA? 6 How does FEIBA work? 6 Who can use FEIBA? 7 What dose of FEIBA should I take? 8 Why is it important that I keep taking FEIBA? 9 What are the potential side-effects? 9 Using FEIBA safely 10 What should I do if I take too much FEIBA? 10 What should I do if I miss a dose of FEIBA? 10 What’s inside a FEIBA pack? 11 Preparing FEIBA for use 12 How should I store FEIBA? 16 How should I dispose of unused solution and waste material? 17 Protecting patients: the Baxter plasma safety programme 18 Further information 23 3
Introduction to inhibitors Patients with haemophilia generally receive treatment (known as ‘factor replacement therapy’) to help their blood to clot. Some patients develop antibodies to their haemophilia treatment. Antibodies are produced by the immune system to destroy substances the body perceives as foreign. The antibodies to haemophilia treatment are known as ‘inhibitors’. The inhibitor neutralises the haemophilia treatment and prevents it from doing its job. Inhibitors stop haemophilia treatment from doing its work From hospital to home: the evolution of inhibitor treatment The good news is that today there are many things that can be done to help people who develop inhibitors. Immune Tolerance Induction (ITI) When an inhibitor is first detected, ITI may be tried in order to eliminate it. The idea behind this is to infuse haemophilia treatment in high doses on a regular basis (sometimes as often as twice a day) so that the body will get used to the treatment and stop producing antibodies. Next Steps If ITI is unsuccessful, the patient will receive a treatment such as FEIBA. Treatment can either be given as a regular infusion (‘prophylaxis’) in order to try and prevent the bleed from occurring or be given to control the bleed when it occurs (‘on- demand’ treatment). A treatment such as FEIBA can also be used to treat breakthrough bleeds during ITI. Treatment At Home Patients on FEIBA treatment may be able to manage their treatment at home. This has been a truly life-changing advance. Being able to treat the bleed at the time it starts means that the bleed can be controlled faster. It also means that you may not need to go to your Haemophilia Centre for every treatment. Guidance of how to treat a bleeding episode will be given by your care team at the centre. Treating within the home environment will help to free up time and means much less disruption to schooling or work and, perhaps most importantly, gives you more time to get on with the things you want to do. 4 5
Page 1: Baxter Healthcare Ltd, Wallingford
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Page 11 and 12: PCR and Serology testing of plasma

FEIBA Patient Information Booklet - Haemophilia Care

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