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FEIBA Patient Information Booklet - Haemophilia Care

FEIBA Patient Information Booklet - Haemophilia Care

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Why is it important that I keep<br />

taking <strong>FEIBA</strong>?<br />

When medication has been prescribed, it is important to continue taking<br />

it regularly as recommended by your <strong>Haemophilia</strong> Centre, as this will reduce<br />

the risk of ‘spontaneous’ bleeds. Prophylactic treatment enables patients to<br />

get on with their lives more easily.<br />

For those with haemophilia, prophylaxis can prevent bleeds and joint damage,<br />

which can be painful and debilitating. By protecting joints the likelihood of<br />

requiring orthopaedic surgery later in life can also be reduced.<br />

What dose of <strong>FEIBA</strong> should I take?<br />

Your haemophilia Doctor or Nurse will give you clear guidance as to the dose<br />

you need and how often you should infuse.<br />

For regular infusions (prophylaxis) the recommended dose is 50–100 units per<br />

kilogram of body weight from daily to three times a week. When administered<br />

during ITI, a daily dose of 50 U/kg body weight may be sufficient.<br />

For prophylactic treatment, <strong>FEIBA</strong> can be infused as regularly as daily or as<br />

little as three times a week. <strong>Patient</strong>s will be treated individually to assess their<br />

needs. Regular appointments to track progress and assess symptoms will<br />

enable your haemophilia care team to ensure you are using the optimum dose.<br />

What are the potential<br />

side-effects?<br />

As with all injected products, allergic reactions are possible. As a result<br />

the most frequently reported side-effects of <strong>FEIBA</strong> include allergic and<br />

hypersensitivity reactions such as shortness of breath, hives, rash<br />

and flushing.<br />

Rarely, other more serious side-effects may occur. Please read the<br />

leaflet inside your <strong>FEIBA</strong> packaging carefully and seek medical attention<br />

immediately if you become concerned about any potential reactions<br />

to <strong>FEIBA</strong>.<br />

To treat a spontaneous bleed (on-demand treatment), you will be given clear<br />

guidance by your haemophilia care team, as the dose and dosing interval will<br />

depend on the nature and severity of the bleed. Depending on the nature<br />

of the bleed and how confident you feel about home infusion, you may need<br />

to go to your <strong>Haemophilia</strong> Centre to deal with a spontaneous bleed.<br />

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