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<strong>Self</strong>-<strong>Help</strong> <strong>Groups</strong> <strong>in</strong> F<strong>in</strong>land -<br />

<strong>cooperation</strong> <strong>with</strong> various partners<br />

Marianne Nylund<br />

Diaconia University of Applied Sciences<br />

marianne.nylund@diak.fi<br />

European Expert Meet<strong>in</strong>g on <strong>Self</strong> <strong>Help</strong> Support<br />

Järvenpää, F<strong>in</strong>land<br />

June 16th, 2011


Content of the presentation<br />

Introduction<br />

Def<strong>in</strong>ition<br />

Historical background<br />

Organisational structures<br />

Chang<strong>in</strong>g roles of self-help groups and<br />

professionals<br />

Current issues – Future challenges<br />

Marianne Nylund 16.6.2011


Introduction<br />

• <strong>Self</strong>-help groups and mutual support<br />

<strong>in</strong>creased <strong>in</strong> F<strong>in</strong>land dur<strong>in</strong>g last 20 years<br />

• All citizens can be part of a self-help group <strong>in</strong><br />

some stage <strong>in</strong> their life cycle<br />

• The issues varies from questions concern<strong>in</strong>g<br />

prevent<strong>in</strong>g perspective of child rais<strong>in</strong>g and<br />

social relations to improv<strong>in</strong>g people’s life<br />

situations concern<strong>in</strong>g addictive behavior,<br />

mental health problems, illness, disability,<br />

divorce, death of a family member etc.<br />

Marianne Nylund 16.6.2011


Why <strong>in</strong>creased <strong>in</strong>terest<br />

<strong>in</strong> SHGs<br />

• Crisis <strong>in</strong> welfare state/society<br />

• Is there a lack of professional support Long<br />

wait<strong>in</strong>g times to receive help<br />

• Lack of social networks<br />

• Citizen <strong>in</strong>itiatives are grow<strong>in</strong>g<br />

belief <strong>in</strong> experiential knowledge<br />

Criticism of professional/theoretical<br />

knowledge<br />

Marianne Nylund 16.6.2011


Def<strong>in</strong>ition <strong>in</strong> the<br />

F<strong>in</strong>nish context<br />

• A group of people who meet each other<br />

regularly (face-to-face or virtually) to share<br />

experiences and to receive <strong>in</strong>formation <strong>in</strong> a<br />

personal life situation, health or social issue.<br />

• ”Based on mutual support & shar<strong>in</strong>g similar<br />

life situation or concern” (Nylund 2000, 20)<br />

Marianne Nylund 16.6.2011


Def<strong>in</strong>ition by a SHG member<br />

”Mutual support means<br />

that k<strong>in</strong>d of help and support<br />

that only people who have experienced<br />

similar k<strong>in</strong>ds of life situations,<br />

can give to each other to cope <strong>with</strong> the<br />

situation –<br />

and no one else can give that k<strong>in</strong>d of<br />

support.”<br />

Marianne Nylund 16.6.2011


Historical background<br />

• Mutual support and reciprocial help have long<br />

traditions <strong>in</strong> the F<strong>in</strong>nish social policy start<strong>in</strong>g from the<br />

end of 1800s (Jaakkola 1996)<br />

• Ideas of mutualism came to F<strong>in</strong>land from Germany<br />

and United K<strong>in</strong>gdom<br />

• Work<strong>in</strong>g class people established mutual aid<br />

associations to create cont<strong>in</strong>gency funds to provide<br />

protection from social risks, such as sickness, burial<br />

and retirement<br />

• These <strong>in</strong>surance societies became part of the state<br />

pension and <strong>in</strong>surance systems <strong>in</strong> 1937 (the Pension<br />

Law) and 1963 (the Sickness Insurance).<br />

Marianne Nylund 16.6.2011


Modern SHGs 1940-80s<br />

• AA-groups <strong>in</strong> 1946, one of the first ones <strong>in</strong><br />

Europe (Mäkelä 1988)<br />

• Modern SHGs based on immaterial support,<br />

<strong>in</strong>stead of material support (mutual aid<br />

groups): identity, well-be<strong>in</strong>g, personal growth<br />

• SHGs deal<strong>in</strong>g <strong>with</strong> social and health issues:<br />

psychical disabilities and mental health, s<strong>in</strong>gle<br />

parenthood, parents of children <strong>with</strong> special<br />

needs<br />

• -> similar patterns <strong>with</strong> other European<br />

countries and USA<br />

Marianne Nylund 16.6.2011


SHGs <strong>in</strong> 1990s<br />

• In the 1990s, <strong>in</strong>crease of groups for<br />

unemployed people, people <strong>with</strong> mental<br />

health issues, and care givers for relatives<br />

<strong>with</strong> long term illness (Nylund 1999, 2005)<br />

• Accord<strong>in</strong>g to a national mapp<strong>in</strong>g of self-help<br />

groups <strong>in</strong> 1994s (n=173 groups)<br />

ma<strong>in</strong> issues discussed <strong>in</strong> the groups were:<br />

mental health, substance abuse, physical<br />

illness or disability, life crises (divorce, death<br />

of a spouse or children), and women issues<br />

(Nylund 2000b).<br />

Marianne Nylund 16.6.2011


Types of groups <strong>in</strong><br />

1990-2000s<br />

• <strong>Groups</strong> for children and young people (Taitto 2003;<br />

L<strong>in</strong>droos).<br />

These groups differ from adults’ groups because<br />

they are often lead by professionals or adult<br />

volunteers because the vulnerability of children<br />

and young people (Nylund 2005, 200)<br />

• <strong>Groups</strong> for immigrants, differ.ethnic backgrounds<br />

(Martika<strong>in</strong>en 2006): Grow<strong>in</strong>g number of immigrants <strong>in</strong><br />

F<strong>in</strong>land after early 1990s (refugees, asylum<br />

seekers, marriages, work and studies; EU labour<br />

marget)<br />

Marianne Nylund 16.6.2011


Research <strong>in</strong>terests <strong>in</strong> self-help groups<br />

• Research on AA-groups, comparative studies<br />

(Mäkelä 1980-1990s)<br />

• Phd thesis (social policy, social work, sociology)<br />

AA-groups: therapeutic <strong>in</strong>teraction (Arm<strong>in</strong>en 1998)<br />

<br />

Overview, groups for unemployed people (Nylund<br />

2000)<br />

Mental health, substance abuse (Hyväri 2001)<br />

Chronic illnesses (Mikkonen 2009)<br />

• Licenciate thesis (social work)<br />

Immigrant women (Harju-Tolppa 2004)<br />

<br />

Depression (Jantunen 2008/nurs<strong>in</strong>g)<br />

Women and substance abuse (Palojärvi 2009)<br />

Marianne Nylund 16.6.2011


Organisational structures<br />

• Many self-help groups operate under nonprofit<br />

social and health associations<br />

• <strong>Groups</strong> meet at the localities of<br />

organisations, self-<strong>in</strong>itiated or <strong>in</strong>itiated by<br />

professionals<br />

• No self-help centres or clear<strong>in</strong>ghouses <strong>in</strong><br />

F<strong>in</strong>land<br />

Recruition and <strong>in</strong>formation through NGOs<br />

(eg. Citizen Arena), municipal social and<br />

health centers, hospitals<br />

Marianne Nylund 16.6.2011


Types of SHGs<br />

(Nylund 2000)<br />

Background<br />

organisation<br />

% N<br />

Citizen groups 8 14<br />

Third sector groups 32 57<br />

Public sector groups 12 22<br />

Mixed groups 48 85<br />

Total 100 178<br />

Marianne Nylund 16.6.2011


Initiators and leaders (%)<br />

(Nylund 2000)<br />

I<br />

Initiator of the group<br />

Leader of the group<br />

Private citizen 39 -<br />

Volunteer/ student - 15<br />

Group member - 42<br />

No leader - 9<br />

NGO 19 -<br />

Professional 29 34<br />

Municipality 8 -<br />

Lutheran parish 5 -<br />

Total % 100 100<br />

N=178* (more than one<br />

<strong>in</strong>itiator/leader)<br />

211 194<br />

Marianne Nylund 16.6.2011


Fund<strong>in</strong>g<br />

• <strong>Self</strong>-help support projects funded by different<br />

sources:<br />

Slot Mach<strong>in</strong>e Association<br />

(http://www.ray.fi/<strong>in</strong>english/)<br />

NGOs (voluntary social and health organis.)<br />

Municipalities<br />

Members’ <strong>in</strong>dividual contributions<br />

Fund<strong>in</strong>g can be <strong>in</strong> form of meet<strong>in</strong>g places,<br />

network<strong>in</strong>g, free advertis<strong>in</strong>g, leaflets, etc.<br />

Marianne Nylund 16.6.2011


Chang<strong>in</strong>g role of SHGs and<br />

professionals<br />

• <strong>Self</strong>-help groups and mutual support is<br />

sometimes understood as a work<strong>in</strong>g method of<br />

social and health professionals or a rival of<br />

professionals (Hyväri 2005)<br />

• In the F<strong>in</strong>nish context, self-help groups<br />

cooperate very closely <strong>with</strong> public welfare<br />

services, professionals, lay persons and<br />

volunteers<br />

• Politicians see groups as a way to save public<br />

fund<strong>in</strong>g<br />

Marianne Nylund 16.6.2011


Chang<strong>in</strong>g role of SHGs and<br />

professionals<br />

Three different types of <strong>cooperation</strong> (Hyväri 2005):<br />

1) Professionals ”take over” self-help group<br />

activities<br />

2) <strong>Self</strong>-help groups as <strong>in</strong>dependent actors<br />

beside professionals<br />

3) <strong>Self</strong>-help groups act <strong>in</strong> close <strong>in</strong>teraction <strong>with</strong><br />

public services<br />

Marianne Nylund 16.6.2011


1)Professionals ”take over” self-help<br />

group activities<br />

• Professionals ”tame” all attempts for<br />

opposite op<strong>in</strong>ions and new ideas<br />

• Professionals use self-help groups as a<br />

social work or therapy method<br />

• Examples <strong>in</strong> F<strong>in</strong>land how lay activities <strong>in</strong> AAgroups<br />

become part of official substance<br />

abuse care and professional activities (Mäkelä<br />

et al. 1996; Niemelä 1999)<br />

Marianne Nylund 16.6.2011


2) <strong>Self</strong>-help groups as <strong>in</strong>dependent<br />

actors beside professionals<br />

• Voluntary and self-<strong>in</strong>itiated action should not<br />

be mixed <strong>with</strong> professional work<br />

• <strong>Self</strong>-help activities are lead by ideological<br />

goals that differ from professional social and<br />

health work<br />

• Public welfare system can provide support<br />

and promote different types of self-help<br />

group activities by offer<strong>in</strong>g meet<strong>in</strong>g places,<br />

tools (technical etc.) and f<strong>in</strong>ancial support<br />

Marianne Nylund 16.6.2011


3) <strong>Self</strong>-help groups act <strong>in</strong> close<br />

<strong>in</strong>teraction <strong>with</strong> public services<br />

• When group members and professionals<br />

<strong>in</strong>teract and communicate closely, both<br />

parties benefit<br />

• Need for professionals who understand the<br />

ideology of mutual support and importance<br />

of shar<strong>in</strong>g experiences <strong>with</strong> peers<br />

• Professional can refer people to self-help<br />

groups when therapeutical support is not<br />

enough, is not available or is not needed<br />

anymore<br />

Marianne Nylund 16.6.2011


Current issues –<br />

Future challenges<br />

• <strong>Self</strong>-help groups have no legal position <strong>in</strong><br />

the F<strong>in</strong>nish welfare system or legislation<br />

• Despite of positive development, some<br />

professionals still have negative attitudes<br />

and lack of knowledge of SHGs<br />

• Need to tra<strong>in</strong> and cooperate more between<br />

self-help group actors and professionals<br />

• Researchers <strong>in</strong>vited to sem<strong>in</strong>ars <strong>in</strong>stead of<br />

local self-help group members<br />

Marianne Nylund 16.6.2011


Current issues –<br />

Future challeges<br />

• Members of self-help groups acquire plenty<br />

of <strong>in</strong>formation of various social and health<br />

issues<br />

• Critiques of social and health services and<br />

ways how professionals work<br />

• How this <strong>in</strong>formation can be cumulated and<br />

critics turned to constructive tool for change<br />

Marianne Nylund 16.6.2011


Current issues –<br />

Future challeges<br />

• How members can be active actors and tell<br />

their stories and ideas to professionals,<br />

authorities and decision makers<br />

• What k<strong>in</strong>d of need there are to have<br />

someone as a mediator between self-help<br />

groups and professionals /decision makers<br />

Marianne Nylund 16.6.2011


Current issues –<br />

Future challeges<br />

• What k<strong>in</strong>ds of possibilities members have<br />

to <strong>in</strong>fluence their personal life<br />

to make changes <strong>in</strong> social and health<br />

services<br />

• What k<strong>in</strong>ds of best practices <strong>in</strong> self-help<br />

support there exist <strong>in</strong> different countries<br />

Marianne Nylund 16.6.2011

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