07.01.2015 Views

Rehabilitation Care Pathway - East Midlands Cancer Network

Rehabilitation Care Pathway - East Midlands Cancer Network

Rehabilitation Care Pathway - East Midlands Cancer Network

SHOW MORE
SHOW LESS

You also want an ePaper? Increase the reach of your titles

YUMPU automatically turns print PDFs into web optimized ePapers that Google loves.

National <strong>Cancer</strong> Action Team<br />

<strong>Rehabilitation</strong><br />

<strong>Care</strong> <strong>Pathway</strong><br />

Head & Neck


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Head & Neck<br />

Pre Diagnosis<br />

Drop Down <strong>Pathway</strong>s<br />

Anorexia & cachexia<br />

Dysphagia<br />

Fatigue & energy management<br />

PD1 Assessment<br />

a Assess respiratory, functional & mobility status and<br />

treat as necessary<br />

b Ensure optimum and timely access to specialist<br />

assessment & rehabilitation service for all patients.<br />

PD2 Cognitive & Psychological Factors<br />

a Assess & plan anxiety management programme in<br />

order to provide confidence for patient &/ or carers in<br />

management of condition & lifestyle<br />

PD3 Communication<br />

PD4 Information/Support<br />

a Provide information on role & scope of specific AHPs,<br />

referral process & development of therapeutic<br />

relationship<br />

b Advise on AHP clinic availability for patients requiring<br />

rapid access to supportive care<br />

PD5 Nutrition<br />

a Assess nutritional requirements & factors affecting<br />

potential nutritional status<br />

b Provide practical dietary advice<br />

c Influence organisational approach to provision of food<br />

PD6 Referral/Liaison<br />

a Refer to identified AHP for assessment<br />

b Refer using generic AHP/oncology assessment tool<br />

during assessment by medical/nursing/AHP staff doing<br />

the screening<br />

a As specific cancer symptoms emerge, undertake<br />

swallowing & communication assessment<br />

2


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Head & Neck<br />

Diagnosis & <strong>Care</strong> Planning<br />

Drop Down <strong>Pathway</strong>s<br />

Anorexia & cachexia<br />

Fatigue & energy management<br />

Mobility problems/ loss of function<br />

Dysphagia<br />

D1 Assessment<br />

a Undertake baseline holistic care assessment<br />

considering quality of life, anxiety & depression,<br />

smoking & alcohol use, lifestyle & treat as appropriate<br />

b Integrate with pre-treatment assessment & provide<br />

follow-up clinics<br />

c Support patient consent process<br />

d Ensure understanding of high risk patients & comorbidities<br />

e Assess speech, voice and swallowing<br />

D2 Communication<br />

a Establish case history, current extent of disease &<br />

proposed form of treatment.<br />

b Screen for communication difficulties<br />

c Liaise with previous AHPs, social services, PCT<br />

colleagues & provide AHP differential diagnosis<br />

d Provide pre-treatment AHP clinic<br />

e Assess current communication skills & level of cognitive<br />

functioning<br />

f Ensure onward appropriate referral to colleagues &<br />

other AHPs<br />

g Provide equipment &/ or intervention to support<br />

communication<br />

h Liaise with medical staff on proposed cancer treatment<br />

plan<br />

i surgical voice restoration (SVR) programme – advise<br />

surgeon on appropriate method of rehabilitation of<br />

communication<br />

j Provide prophylactic therapy programme before<br />

treatment starts<br />

k Link with other centres / teams on hand over of care<br />

l Facilitate contact with other patients & make referral<br />

to support groups<br />

m Provide information & ensure patient choice in<br />

decision of treatment (advocate)<br />

D3 Exercise & Physical Well Being<br />

a Optimise physical & respiratory fitness prior to<br />

treatment<br />

3


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Head & Neck<br />

D4 Nutrition<br />

a Influence organisational approach to provision of food<br />

b Implement nutritional screening<br />

c<br />

Assess nutritional requirements & status<br />

d Assess factors affecting nutritional intake<br />

e Assess patient’s circumstances & ability to act on<br />

dietetic and SLT advice<br />

f Provide practical dietary advice, including written<br />

information tailored to individual’s needs, prognosis &<br />

circumstances<br />

g Liaise with other health professionals in the oncology<br />

team<br />

h Provide ongoing monitoring & support to patient,<br />

family & carers<br />

i Draw up & review nutritional care plans to achieve<br />

optimal nutritional status<br />

j Where necessary, consider alternative methods of<br />

nutrition support & provide advice & support for<br />

health care professionals, patients & relatives<br />

D5 Referral/Liaison<br />

a Liaise with MDT on treatment planning and<br />

management of primary disease<br />

b Attend AHP led independent or combined clinic/<br />

appointment<br />

Treatment<br />

Drop Down <strong>Pathway</strong>s<br />

Anorexia / Cachexia<br />

Breathlessness<br />

Dysphagia<br />

Fatigue & energy management<br />

Lymphoedema<br />

Mobility problems/ loss of function<br />

Pain<br />

Intervention<br />

T1 Assessment<br />

a Provide ongoing holistic assessment of function,<br />

quality of life, anxiety & depression as appropriate<br />

b Assess respiratory status, functional status & mobility<br />

status<br />

c Assess mobility & provide treatment<br />

d Undertake musculoskeletal assessment<br />

e Carry out interventional assessments<br />

f Undertake joint dietetic & speech and language<br />

therapy assessments<br />

g Undertake assessment & provide rehabilitation for all<br />

patients with emergence of symptoms/ side effects<br />

affecting independent functional status<br />

4


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Head & Neck<br />

h Undertake pre-surgical assessment in clinic as<br />

appropriate<br />

i<br />

j<br />

Undertake instrumental assessments of communication<br />

& / or swallowing<br />

Carry out holistic communication assessment<br />

k Undertake airway assessment<br />

l<br />

Re assess swallow function & instigate dysphagia<br />

therapy (see dysphagia pathway)<br />

T2 Cognitive & Psychological Factors<br />

a Provide techniques to help manage anxiety and mood<br />

b Provide body image management<br />

T3 Communication<br />

a Re assess communication status<br />

b Work with MDT to ascertain the cause of speech,<br />

language, swallowing or voice difficulty<br />

c<br />

Check & analyse medical & surgical notes & decide on<br />

appropriate treatment plan<br />

d Attend theatre & liaise with surgeons on SVR<br />

techniques<br />

e Support, teach & advise relatives of appropriate<br />

communication channels<br />

f<br />

Provide equipment & materials and teach their use to<br />

patients and carers<br />

g Carry out voice, speech & communication therapy<br />

h Carry out videofluoroscopy X-ray if appropriate for<br />

investigation of poor voicing<br />

i<br />

j<br />

Liaise with family<br />

Liaise with local services<br />

k Liaise with MDT<br />

l Instigate the whole programme for surgical voice<br />

restoration (SVR) and prepare for voice prosthesis<br />

fitting including selection of appropriate prosthesis &<br />

preparation of patient<br />

m Fit voice prosthesis & teach patient, family, carers,<br />

nursing staff as appropriate about care & maintenance<br />

n Trouble shoot re voice prosthesis management & liaise<br />

with MDT<br />

o Give patient appropriate oro-motor range of motion &<br />

strengthening exercises in collaboration with the<br />

medical/surgical teams<br />

T4 Exercise & Physical Well Being<br />

a Teach exercises for neck, shoulder, facial,<br />

temperomandibular joint & any other area affected by<br />

plastic reconstruction to ensure reduction in pain,<br />

recovery of movement & improve function<br />

5


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Head & Neck<br />

b Advise on fibrosis pre treatment & treat if appropriate<br />

with soft tissue massage<br />

c<br />

Undertake musculo-skeletal assessment of neck and<br />

TMJ and treat as appropriate<br />

d Assess/ manage range of movement – assess any other<br />

musculoskeletal problems related to any plastic surgery<br />

e Advise on exercise programme in conjunction with SLT<br />

f<br />

Assess & treat facial nerve palsy<br />

g Advise on symptom control<br />

h Advise on support services<br />

T5 Nutrition<br />

a Manage rehabilitation for feeding tube dependent<br />

patients<br />

b Manage nutritional status<br />

c<br />

Start/continue nutritional support (oral/ enteral/<br />

parenteral nutrition)<br />

d Advise on specific diets<br />

e Provide advice on weaning from enteral tube feeding<br />

to oral diet<br />

f<br />

Provide education regarding feed tube management &<br />

the administration of feed<br />

g Coordinate enteral feeding tube discharges & ensure<br />

referral to community services for continued support<br />

h Provide on-going advice on diet, texture modification<br />

& quantity of food based on treatment side effects &<br />

nutritional status<br />

i Start/continue enteral nutritional support &<br />

management for type of feeding tube & on-going<br />

education regarding care<br />

j Liaise with home enteral feeding team for changes to<br />

feeding regime<br />

k Influence organisational approach to provision of food<br />

T6 Referral/Liaison<br />

a Refer to extended members of the team<br />

b Screen for facial problems & refer to other AHPs for<br />

assessment & management<br />

c Contribute to complex discharge planning as part of<br />

MDT<br />

d Ensure dedicated oncology specialist is made available<br />

for all head & neck patients<br />

e Identify complex discharge needs & instigate discharge<br />

planning in liaison with MDT in Assessment Clinic<br />

T7 Respiratory<br />

a Carry out respiratory assessment<br />

b Assist patient to manage respiratory function including<br />

tracheostomy care & weaning<br />

6


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Head & Neck<br />

c Identify patient with or without pre-existing<br />

respiratory disease if patient is to be referred for<br />

surgery<br />

d Commence chest physiotherapy to suit individual<br />

requirements<br />

e Advise on selection, care and use of laryngectomy<br />

tracheostoma valves<br />

f Advise on selection, use & care of laryngectomy stoma<br />

filters/ heat & moisture exchangers<br />

T8 Work, Leisure & Activities of Daily Living<br />

a Advise, assess, treat & support as indicated to maintain<br />

patient’s independence in all activities of daily living<br />

b Advise on compensatory techniques especially<br />

following major head & neck reconstructions<br />

c Assist patient to manage lifestyle & symptoms<br />

d Provide rehabilitation classes to help improve<br />

functional ability<br />

e Respond to variations in functional status<br />

f Maintain awareness of wider issues of cancer prognosis<br />

& the impact of treatment on self image<br />

g Provide ongoing monitoring<br />

Post Treatment<br />

Drop Down <strong>Pathway</strong>s<br />

Anorexia / Cachexia<br />

Dysphagia<br />

Fatigue & energy management<br />

Lymphoedema<br />

Pain<br />

Intervention<br />

PT1 Assessment<br />

a Provide outreach or locality based multi-disciplinary<br />

AHP team for ongoing monitoring & reassessment of<br />

needs in line with changing clinical condition/<br />

functional status at home<br />

b Undertake ongoing respiratory assessment & manage<br />

respiratory problems including tracheostomy care &<br />

weaning<br />

c Undertake mobility assessment & treat if appropriate<br />

d Assess for timely removal & coordination of procedure<br />

for removal of the feeding tube<br />

e Provide ongoing interventional assessment &<br />

therapeutic intervention for swallowing problems &<br />

communication disorders<br />

f Undertake joint dietetic & speech & language therapy<br />

assessments including communication status<br />

7


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Head & Neck<br />

PT2 Cognitive & Psychological Factors<br />

a Help provide psychological support on side effects of<br />

treatment & refer as necessary to psychological services<br />

PT3 Communication<br />

a Re-assess status of Surgical Voice Restoration<br />

b Change prosthesis when necessary and troubleshoot<br />

problems<br />

c<br />

Undertake assessment (endoscopy) & treat any<br />

identified vocal cord palsy/ dysfunction<br />

d Ensure out-patient follow up with specialist AHP<br />

e Train & provide support to local services<br />

f<br />

Agree protocol with family<br />

g Carry out assessment at X-ray for voice problems with<br />

laryngectomy patients & advise re appropriateness of<br />

Botox injections<br />

h Refer to self-help group<br />

i Continue oromotor range of motion, articulation &<br />

strengthening exercises to facilitate oral<br />

communication<br />

j Provide & maintain equipment and teach patients &<br />

carers appropriate use<br />

k Refer to other health care professionals for assessment<br />

as necessary<br />

l<br />

Advise MDT on signs of recurrence or complications &<br />

provide appropriate advice & interventions<br />

PT4 Exercise & Physical Well being<br />

a Provide exercises for neck, shoulder, facial,<br />

temperomandibular joint & relevant area of plastic<br />

reconstruction to ensure reduction in pain, return of<br />

movement & to improve function<br />

b Provide advice on scar management & posture<br />

PT5 Information/Support<br />

a Provide SLT led clinic session<br />

PT6 Nutrition<br />

a Continue to monitor nutritional status & manage<br />

symptoms secondary to treatment related symptoms<br />

b Provide rehabilitation for feeding tube dependent<br />

patients<br />

c Provide ongoing nutritional support & symptom<br />

control with weaning from enteral tube feeding to<br />

oral diet<br />

d Monitor ongoing changes to home enteral feeding<br />

needs & communicate with relevant individuals<br />

e Undertake joint dietetic & speech & language therapy<br />

assessments<br />

8


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Head & Neck<br />

PT7 Referral/Liaison<br />

a Attend MDT & contribute to discussions re ongoing<br />

treatment plan<br />

b Ensure AHP representation within the MDT Clinic<br />

(acute or community based)<br />

c<br />

Refer to outpatient physiotherapy with specific<br />

physical problems following treatment<br />

d Screen for facial problems & refer to AHPs for<br />

assessment & management<br />

e AHPs to liaise with keyworker<br />

f<br />

Refer to local support team<br />

g Communicate with relevant professionals involved in<br />

patient care<br />

h Ensure joint working between AHPs & CNS for<br />

intensive rehabilitation & ongoing assessment of<br />

quality of life, anxiety & depression as appropriate<br />

PT8 Work, Leisure & Activities of Daily<br />

Living<br />

a Respond to variations in functional status<br />

b Maintain awareness of wider issues of cancer prognosis<br />

& impact of surgery on self image<br />

c Provide ongoing monitoring & support to maintain<br />

patient’s independence in all activities of daily living<br />

Monitoring & Survivorship<br />

Drop Down <strong>Pathway</strong>s<br />

Anorexia / Cachexia<br />

Dysphagia<br />

Fatigue & energy management<br />

Lymphoedema<br />

Pain<br />

Poor Mobility and loss of function<br />

Intervention<br />

M1 Assessment<br />

a Provide ongoing assessment of quality of life, anxiety<br />

& depression as appropriate<br />

b Undertake interventional assessments<br />

c Undertake joint dietetic & speech & language therapy<br />

assessments<br />

M2 Cognitive and Psychological Factors<br />

a Complete holistic initial assessment including social,<br />

psychological, functional, cognitive & perceptual areas<br />

b Assess & plan anxiety management programme in<br />

order to provide confidence for patient &/ or carers in<br />

management of condition<br />

9


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Head & Neck<br />

M3 Communication<br />

a Check for signs of recurrence & deteriorating<br />

symptoms and refer to medical / surgical teams if<br />

concerned<br />

b Liaise with core MDT clinic on regular basis to review<br />

patient progress<br />

c Liaise with work environment re communication needs<br />

and aids<br />

d Select, provide and maintain communication aids<br />

e Liaise to provide financial support as appropriate<br />

f Provide ongoing support to PCT colleagues<br />

g Link with user partnership group<br />

h Undertake re-assessment of needs on a regular basis<br />

i Re-assess status of Surgical Voice Restoration (SVR)<br />

j Change prosthesis when necessary and troubleshoot<br />

problems<br />

k Carry out assessment at X-ray for voice problems with<br />

laryngectomy patients & advise re appropriateness of<br />

Botox injections<br />

l Provide & maintain equipment and teach patients &<br />

carers appropriate use<br />

m Refer to other health care professionals for assessment<br />

as necessary<br />

n Advise MDT on signs of recurrence or complications &<br />

provide appropriate advice & interventions<br />

M4 Information/Support<br />

a Encourage links to support groups<br />

b Manage longer term effects of treatment<br />

M5 Nutrition<br />

a Provide rehabilitation for feeding tube dependent<br />

patients<br />

b Influence organisational approach to provision of food<br />

M6 Referral/ Liaison<br />

a Attend MDT & make recommendations on changing<br />

treatment plan<br />

b Support patients to re-engage in graded social<br />

activities<br />

M7 Work, Leisure & Activities of Daily<br />

Living<br />

a Advise on maintaining role at work or re-engaging in<br />

work place<br />

b Support patients to re-engage in graded social<br />

activities<br />

c Encourage lifestyle modifications<br />

d Assess patients for needs such as psychological support<br />

& other support groups<br />

10


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Palliative & EOL<br />

Palliative <strong>Care</strong><br />

Drop Down <strong>Pathway</strong>s<br />

Anorexia/cachexia<br />

Breathlessness<br />

Communication<br />

Dysphagia<br />

Fatigue<br />

Lymphoedema<br />

Pain<br />

Mobility & loss of function<br />

Spinal cord compression<br />

Intervention<br />

P1 Assessment<br />

a Carry out comprehensive social assessment<br />

b Undertake functional assessment<br />

c Undertake assessment of cognitive & psychological<br />

ability<br />

d Undertake holistic needs assessment<br />

e Provide ongoing assessment of quality of life, anxiety<br />

& depression, psychological & social needs as<br />

appropriate<br />

f Provide ongoing assessment and feedback to multidisciplinary<br />

team about symptoms such as pain,<br />

breathlessness, fatigue, depression, low mood<br />

g Agree patient centred goals<br />

P2 Cognitive & Psychological Factors<br />

a Assess & assist in management of anxiety & refer on to<br />

appropriate specialist<br />

b Provide anxiety management, relaxation & structured<br />

sleep strategies<br />

c Manage mood through compensatory strategies &<br />

engagement in meaningful occupations<br />

d Retrain and/or educate as necessary in order to help<br />

patient with cognitive & perceptual dysfunction<br />

e Identify psychological needs & provide psychological<br />

support to patients & carers<br />

P3 Communication<br />

a Assess communication skills and capacity to make<br />

informed decisions<br />

b Assess ability to communicate/ convey needs relating to<br />

pain, care, place of death & drawing up will<br />

c Educate patient, carers and healthcare professionals on<br />

optimal communication methods for individual patient<br />

d Implement communication strategies to optimise<br />

communication function<br />

e Trial, prescribe and train in use of communication aids<br />

if required<br />

11


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Palliative & EOL<br />

P4 Exercise & Physical Well Being<br />

a Assess current function, mobility, muscle power,<br />

fatigue and general weakness<br />

b Apply restorative or compensatory therapy<br />

interventions where appropriate<br />

c<br />

Advise on pacing, relaxation and controlled exercise<br />

d Provide exercise classes to maintain/improve physical<br />

and psychological functioning and quality of life taking<br />

into account variations in health status<br />

P5 Equipment Provision<br />

a Provide aids/ equipment to support daily living & self<br />

management techniques to optimise management of<br />

activities of daily living<br />

P6 Fatigue<br />

a Assessment and intervention as appropriate with<br />

energy conservation techniques, goal planning, pacing,<br />

diet, exercise and anxiety management<br />

b Ensure treatable causes of fatigue are ruled out by<br />

referral to other disciplines<br />

P7 Information/ Support<br />

a Ensure good communication and coordination<br />

between the various care settings and professions<br />

b Be involved in discussions on preferred priorities and<br />

place of care<br />

c Provide education & support to patient, family & carers<br />

d Provide information prescription & leaflet with links to<br />

charities & support groups<br />

e Enable informed decision making with regards to<br />

treatment & management<br />

f Consider ethical issues & goals of treatment to improve<br />

quality of life<br />

P8 Mobility<br />

a Assess mobility including function, strength, sensation,<br />

joint range, coordination and potential risks (refer to<br />

mobility and loss of function pathway)<br />

b Stabilise/immobilise unstable areas using braces, splints<br />

and positioning<br />

c Help patient to optimise function & assess risk assisting<br />

with activities for the treatment of physical<br />

dysfunction, impaired motor, sensory & self<br />

maintenance skills<br />

d Carry out wheelchair assessment & prescription<br />

including associated pressure relieving cushions<br />

e Assess for specialist & complex seating and/ or<br />

positioning in bed<br />

f Carry out manual handling training & assessment<br />

g Assess the need for and provide hoists at home<br />

12


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Palliative & EOL<br />

P9 Nutrition<br />

a Implement nutritional screening at each outpatient<br />

visit/ inpatient admission & refer on to dietitian as<br />

appropriate<br />

b Assess nutritional status & consider nutritional<br />

requirements if appropriate formulating a nutritional<br />

care plan for the patient<br />

c Assess factors affecting nutritional intake & barriers to<br />

optimising nutritional intake & quality of life<br />

d Provide practical nutritional advice including written<br />

information tailored to individuals needs, prognosis &<br />

circumstances<br />

e Consider modified consistency diet for palliative stents<br />

f Implement dietary adaptations to optimise nutrition<br />

related symptom management<br />

g Advise on symptom management, taste changes,<br />

nausea, vomiting, mouth care etc to help improve<br />

quality of life and liaise with palliative/ medical/<br />

nursing team regarding pharmacological management<br />

of symptoms<br />

h Work with family on understanding of & anxiety about<br />

eating & drinking<br />

i Provide dietetic monitoring & follow up including<br />

discharge planning of enterally fed patients where<br />

appropriate<br />

P10 Pain Management<br />

a Identify pain issues and apply non pharmacological<br />

pain management techniques (refer to pain pathway)<br />

P11 Referral/ Liaison<br />

a Refer on to other members of the team if appropriate<br />

b Signpost to other supportive care services as required<br />

dependent on need<br />

c Liaise with multi-disciplinary team and allocate key<br />

worker<br />

d Issues relating to sexual function and expression should<br />

be referred to the most appropriate local specialist<br />

P12 Respiratory<br />

a Maintain optimal respiratory function<br />

b Provide non-pharmacological management of<br />

breathlessness (refer to breathlessness pathway)<br />

P13 Skin <strong>Care</strong><br />

a Manage sensory impairment and tissue viability,<br />

lymphoedema and lymphorrhoea as appropriate (refer<br />

to lymphoedema pathway)<br />

13


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Palliative & EOL<br />

P14 Swallowing<br />

a Assess swallow function and monitor regularly for<br />

change<br />

b Manage any dysphagia via compensatory strategies<br />

and/or direct intervention (refer dysphagia pathway)<br />

P15 Work, Leisure & Activities of Daily<br />

Living<br />

a Discuss lifestyle adjustment including roles, loss & self<br />

esteem<br />

b Assess impact illness has on occupational pursuits<br />

c Help patient to manage lifestyle including<br />

investigating meaningful hobbies, leisure, occupational<br />

pursuits and driving<br />

d Undertake environmental and functional assessment<br />

e Assess and support patient to carry out personal care<br />

and domestic activities<br />

f Provide aids/ equipment to support daily living, & self<br />

management techniques to optimise independent<br />

activities of daily living<br />

End of Life<br />

Drop Down <strong>Pathway</strong>s<br />

Anorexia/cachexia<br />

Breathlessness<br />

Communication<br />

Dysphagia<br />

Fatigue<br />

Lymphoedema<br />

Pain<br />

Mobility & loss of function<br />

Spinal cord compression<br />

Intervention<br />

E1 Assessment<br />

a Carry out comprehensive social and functional<br />

assessment<br />

b Assess functional & cognitive ability<br />

c Assess & assist in management of anxiety & refer on to<br />

appropriate specialist<br />

d Undertake holistic needs assessment<br />

14


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Palliative & EOL<br />

E2 Cognitive & Psychological Factors<br />

a Identify psychological needs<br />

b Undertake pre bereavement work with family<br />

c<br />

Apply spiritual care taking multi-disciplinary team<br />

approach<br />

d Provide ongoing psychological support with regards to<br />

adjusting to loss, deteriorating function, grief response<br />

e Assist in management of low moods<br />

f<br />

Apply sleep and relaxation techniques<br />

g Apply restorative or compensatory therapy<br />

interventions<br />

E4 Equipment Provision<br />

a Provide mobility aids for safe moving & handling if<br />

appropriate and manage deteriorating function<br />

E5 Fatigue<br />

a Assessment and intervention as appropriate with<br />

energy conservation techniques, goal planning, pacing,<br />

diet, exercise and anxiety management (refer to<br />

fatigue care pathway)<br />

b Ensure treatable causes of fatigue are ruled out by<br />

referral to other disciplines<br />

E3 Communication<br />

a Assess communication skills and capacity to make<br />

informed decisions<br />

b Assess ability to communicate/ convey needs relating to<br />

pain, care, place of death & drawing up will<br />

c<br />

Educate patient, carers and healthcare professionals on<br />

optimal communication methods for individual patient<br />

d Implement communication strategies to optimise<br />

communication function<br />

e Trial, prescribe and train in use of communication aids<br />

if required<br />

E6 Information/ Support<br />

a Ensure good communication and coordination<br />

between the various care settings and professions<br />

b Provide education & support to carers<br />

c Provide information prescription<br />

d Consider sudden events, scenario planning<br />

e Identify and help to facilitate preferred place of care<br />

(preferred place of dying) where this is home<br />

f Attend case conferences when complex discharge is<br />

apparent<br />

g With the MDT/key worker, identify the dying process<br />

and implement Liverpool <strong>Care</strong> <strong>Pathway</strong> ensuring that<br />

unnecessary and invasive treatment is avoided<br />

15


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Palliative & EOL<br />

E7 Mobility<br />

a Carry out risk assessment to optimise comfort (refer to<br />

mobility and loss of function pathway)<br />

b Prevent complications of inactivity<br />

c<br />

Provide seating, position & manual handling advice for<br />

patient & carers<br />

E8 Nutrition<br />

a Influence organisational approach to provision of food<br />

b Assess patients nutritional status, history & recent<br />

history & oral intake<br />

c<br />

Address concerns expressed by patient and their family<br />

regarding food and fluids.<br />

d Implement dietary adaptations to optimise nutrition<br />

related symptom management<br />

e Address feeding & hydration issues with patient, carer<br />

& relatives, MDT in conjunction with palliative care/<br />

medical team<br />

f Advise & encourage on mouth care strategies to<br />

reduce the use of artificial hydration<br />

g Make decisions with multi-disciplinary team around<br />

ethics for feeding & feeding withdrawal<br />

E9 Referral/ Liaison<br />

a Multi-disciplinary team liaison/ referral to other<br />

specialist professions<br />

b Address & support symptom control & quality of life<br />

issues as appropriate on an individual basis in<br />

conjunction with Palliative <strong>Care</strong> MDT, carers, patients &<br />

relatives<br />

c Ensure appropriate withdrawal of intervention in<br />

liaison with multi-disciplinary team<br />

d Show awareness of advance of symptoms, need for<br />

further palliative/ surgical intervention such as<br />

paracentesis, stenting & debulking & how this further<br />

affects quality of life<br />

E10 Respiratory<br />

a Apply breathing strategies (refer to breathlessness<br />

pathway)<br />

b Carry out respiratory & airway management<br />

16


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Palliative & EOL<br />

E11 Skin <strong>Care</strong><br />

a Assess positioning & provide simple<br />

massage/movement/comfort measures<br />

b Identify soft tissue viability & refer on as necessary<br />

c<br />

Assess & manage sensory changes and advise on<br />

suitable clothing<br />

d Manage ascites as appropriate<br />

e Manage lymphorrhoea (refer to lymphoedema<br />

pathway)<br />

E13 Work, Leisure & Activities of Daily<br />

Living<br />

a Undertake environmental and functional assessment<br />

b Manage deteriorating function<br />

c Assess and support patient to carry out personal care<br />

and domestic activities<br />

d Provide aids/ equipment to support daily living, & self<br />

management techniques to optimise independent<br />

activities of daily living<br />

E12 Swallowing<br />

a Assess swallow function and monitor regularly for<br />

change<br />

b Manage any dysphagia via compensatory strategies<br />

and in accordance with patients wishes (refer to<br />

dysphagia pathway)<br />

17


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Head & Neck<br />

Professional intervention matrix<br />

The rehabilitation interventions listed in the care<br />

pathways can either be carried out by a single profession<br />

or could be carried out by a number of professions. There<br />

is the potential for different professions to be involved in<br />

delivering some of the interventions for a number of<br />

reasons.<br />

• Unique skills are required which are within the scope<br />

of a single allied health profession eg videofluoroscopy<br />

is only carried out by Speech and Language Therapists<br />

• The intervention listed may be approached in different<br />

ways. For example P9b (Assess the factors affecting<br />

nutritional intake and barriers to optimising<br />

nutritional intake and quality of life) could involve:<br />

• the Dietitian focusing of nutritional intake and<br />

physiological barriers.<br />

• the Occupational Therapist focusing on cutlery,<br />

seating position and equipment that may help<br />

during feeding and<br />

• the Physiotherapist looking at postural stability and<br />

physical capacity<br />

SALT – Speech and Language Therapists<br />

OT – Occupational Therapy<br />

Other – Other professions including Clinical Nurse<br />

Specialists, Lymphoedema Practitioners<br />

18


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Head & Neck<br />

AHP<br />

Intervention Number<br />

Physio PD1 (a/ b)<br />

PD4 (a/ b)<br />

PD6 (a/ b)<br />

D1 (a/ b/ c/<br />

d)<br />

D2 (a)<br />

D3 (a)<br />

D5 (a/ b)<br />

T1 (b/ c/ d/ e/<br />

g/ h,k)<br />

T4 (a/ b/ c/ d<br />

/e/ f/ g/ h)<br />

T6 (a/ b)<br />

T7 (a/ b/ c/ d)<br />

T8 (a/ b/ c/ d/<br />

e/ f/ g)<br />

PT1 (a/ b/ c)<br />

PT4 (a/ b)<br />

PT7 (a/ b/ c/ d/<br />

e/ f/ g/ h)<br />

PT8 (a/ b / c)<br />

M1 (a/ b)<br />

M4 (a/ b)<br />

M6 (a)<br />

M7 (c/ d)<br />

P1 (a/ b/ c/ d/ e/ f/ g)<br />

P2 (a/ e)<br />

P4 (a/ b/ c/ d)<br />

P5 (a)<br />

P6 (a/ b)<br />

P7 (a/ b/ c/ d/ e/ f)<br />

P8 (a/ b/ c/ d/ e/ f/ g)<br />

P10 (a)<br />

P11 (a/ b/ c/ d)<br />

P12 (a/ b)<br />

P13 (a)<br />

P15 (d/ e/ f)<br />

E1 (a/ b/ c/ d)<br />

E2 (a/ b/ c/ d/ e/ f)<br />

E3 (a/ b/ c/ d)<br />

E4 (a)<br />

E5 (a/ b)<br />

E6 (a/ b/ c/ d/ e/ f/ g)<br />

E7 (a/ b)<br />

E9 (a/ b/ c/ d)<br />

E10 (a/ b)<br />

E11 (a/ b)<br />

E13 (b/ d)<br />

OT PD1 (a/ b)<br />

PD2 (a)<br />

PD4 (a/ b)<br />

PD6 (a/ b)<br />

D1 (a/ b/ c/<br />

d)<br />

D5 (a/ b)<br />

T1 (a/ c/ e/ g/<br />

h)<br />

T2 (a/ b)<br />

T5 (a)<br />

T6 (a/ c/ d/ e)<br />

T8 (a/ b/ c/ d/<br />

e/ f/ g)<br />

PT1 (a/ c)<br />

PT2 (a)<br />

PT7 (a/ b/ e/ f/<br />

g)<br />

PT8 (a/ b/ c)<br />

M1 (a/ b)<br />

M2 (a/ b)<br />

M4 (a/ b)<br />

M6 (a)<br />

M7 (a/ b/<br />

c/ d)<br />

P1 (a/ b/ c/ d/ e/ f/ g)<br />

P2 (a/ b/ c/ d/ e)<br />

P3 (a)<br />

P4 (a/ b/ c/ d)<br />

P5 (a)<br />

P6 (a/ b)<br />

P7 (a/ b/ c/ d/ e/ f)<br />

P8 (a/ b/ c/ d/ e/ f/ g)<br />

P9 (a/ b/ c/ h)<br />

P10 (a)<br />

P11 (a/ b/ c/ d)<br />

P12 (b)<br />

P13 (a)<br />

P15 (a/ b/ c/ d/ e/ f)<br />

E1 (a/ b/ c/ d)<br />

E2 (a/ b/ c/ d/ e/ f/ g)<br />

E3 (a/ b/ c/ d/ e)<br />

E4 (a)<br />

E5 (a/ b)<br />

E6 (a/ b/ c/ d/ e/ f/ g)<br />

E7 (a/ b/ c)<br />

E8 (c/ e)<br />

E9 (a/ b/ c/ d)<br />

E11 (a/ b/ c/ d)<br />

E13 (a/ b/ c/ d)<br />

19


<strong>Rehabilitation</strong> <strong>Care</strong> <strong>Pathway</strong> Head & Neck<br />

AHP<br />

Intervention Number<br />

Dietetic<br />

PD1 (b)<br />

PD4 (a/ b)<br />

PD5 (a/ b/<br />

c)<br />

PD6 (a/ b)<br />

D1 (a/ b/ c/<br />

d)<br />

D4 (a/ b/ c/<br />

d/ e/ f/ g/<br />

h/ i/ j)<br />

D5 (a/ b)<br />

T1 (e/ f/ h)<br />

T5 (a/ b/ c/ d/<br />

e/ f/ g/ h/ i/ j/<br />

k)<br />

T6 (a/ c/ d)<br />

T8 (a/ b/ c)<br />

PT1 (a/ d/ f)<br />

PT6 (a/ b/ c/ d/<br />

e)<br />

PT7 (a/ b/ e/ f/<br />

g/ h)<br />

PT8 (b)<br />

M1 (a/ b/ c)<br />

M4 (a/ b)<br />

M5 (a/ b)<br />

M6 (a)<br />

P1 (d/ e/ f/ g)<br />

P2 (a/ e)<br />

P5 (a)<br />

P6 (a)<br />

P7 (a/ b/ c/ d/ e/ f)<br />

P9 (a/ b/ c/ d/ e/ f/<br />

g/ h/ i)<br />

P11 (a/ b/ c)<br />

P15 (a/ b/ c)<br />

E1 (b/c)<br />

E2 (a/ b/ c/ d/ e/ f)<br />

E3 (a/b)<br />

E6 (a/ b/ c/ d/ e/ f/ g)<br />

E8 (a/ b/ c/ d/ e/ f/ g)<br />

E9 (a/ b/ c/ d)<br />

E11 (d)<br />

SALT<br />

PD1 (b)<br />

PD3 (a)<br />

PD4 (a/ b)<br />

PD6 (a)<br />

D1 (a,b/ c/<br />

d/ e)<br />

D2 (a/ b/ c/<br />

d/ e/ f/ g/<br />

h/ i/ j/ k/ l/<br />

m)<br />

D4<br />

d,e,g,h,j<br />

D5 (a/ b)<br />

T1 (a, e/ f/ g/<br />

h/ i/ j/ k, l)<br />

T2 a,b<br />

T3 (a/ b/ c/ d/<br />

e/ f/ g/ h/ i/ j/<br />

k/ l/ m/ n/ o)<br />

T4 (e/ f/ g/ h)<br />

T5 a,c,d,e,h<br />

T6 (a/ b/ c/ d/<br />

e)<br />

T7 b,e,f<br />

T8 (a/ e,f,g)<br />

PT1 (a/ b/ d/ e/<br />

f)<br />

PT2 (a)<br />

PT3 (a/ b/ c/ d/<br />

e/ f/ g/ h/ i/ j/ k/<br />

l)<br />

PT4 (a)<br />

PT5 (a)<br />

PT6 (a,b,c/ e)<br />

PT7 (a/ b/ d/ e/<br />

f/ g/ h)<br />

PT8 (a,b,c)<br />

M1 (a/ b/ c)<br />

M2 a<br />

M3 (a/ b/ c/ d/<br />

f/<br />

g,h,i,j,k,l,m,n)<br />

M4 (a/ b)<br />

M5 (a,b)<br />

M6 (a)<br />

M7 (a/ b/ c/ d)<br />

P1 (b/ d/ e/ f/ g)<br />

P2 (a/ e)<br />

P3 (a/ b/ c/ d/ e)<br />

P7 (a/ b/ c/ d/ e/ f)<br />

P9 (a/ c/ g/ h)<br />

P11 (a/ b/ c)<br />

P14 (a/ b)<br />

P15 (a/ b)<br />

E1 (b/ c/ d)<br />

E2 (a/ b/ c/ d/ e/ f/ g)<br />

E3 (a/ b/ c/ d/ e)<br />

E6 (a/ b/ c/ d/ e/ f/ g)<br />

E8 (c/ d/ e/ f/ g)<br />

E9 (a/ b/ c/ d)<br />

E12 (a/ b)<br />

Other<br />

PD1 (b)<br />

PD4 (a/ b)<br />

PD6 (a/ b)<br />

D1 (b/ c/<br />

d)<br />

D5 (a/ b)<br />

T1 (e/ h)<br />

T5 (a/ b)<br />

T7 (a/ c/ e,f)<br />

PT1 (a)<br />

PT7 (a/ b/ e/ f/<br />

g)<br />

PT8 (b)<br />

M1 (b)<br />

M3 (a/ b)<br />

M5 (a)<br />

P1 (d/ e/ f/ g)<br />

P2 (a/ e)<br />

P7 (a/ b/ c/ d/ e/ f)<br />

P8 (h)<br />

P11 (a/ b/ c)<br />

P13 (a)<br />

E1 (a/ b/ c)<br />

E2 (a/ b/ c/ d/ e/ f)<br />

E3 (a/ b/ c/ d)<br />

E6 (a/ b/ c/ d/ e/ f/ g)<br />

E9 (a/ b/ c/ d)<br />

E11 (a/ b/ e)<br />

E13 (b)<br />

20


National <strong>Cancer</strong> Action Team<br />

Designed and produced by Cynergy www.cynergy.co.uk<br />

All rights reserved © Crown Copyright 2009 National <strong>Cancer</strong> Action Team

Hooray! Your file is uploaded and ready to be published.

Saved successfully!

Ooh no, something went wrong!