AutismMATTERS - Autism Ontario
AutismMATTERS - Autism Ontario
AutismMATTERS - Autism Ontario
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FALL 2011 Volume 8 • Number 3<br />
A<br />
<strong><strong>Autism</strong>MATTERS</strong><br />
PUBLICATION OF AUTISM ONTARIO<br />
Annual Education Issue<br />
Housing Design for Adults<br />
with <strong>Autism</strong><br />
Page 20 à 29<br />
Info <strong>Autism</strong>e
table OF CONTENTS<br />
What’s Inside<br />
OUR FALL 2011 ISSUE<br />
Board of Directors<br />
Doris Barkley, Robert Brown, Jane Burke-Robertson, Susan<br />
Fitzhenry, Dr. Cynthia Goldfarb, Jane Houlden, Gail Laliberte,<br />
Mark Lyon (Treasurer), Amanda McNulty (Chair of President’s<br />
Council), Leah Miltchin (President), Dr. Jo-Ann Reitzel, Monica<br />
Richardson (Past-President), Michael Spicer (Secretary),<br />
Cathy White<br />
Local Chapters<br />
To find contact information for your local <strong>Autism</strong> <strong>Ontario</strong><br />
chapter, visit www.autismontario.com.<br />
features<br />
p. 8<br />
Non-Violent Crisis Intervention<br />
for Parents, by Sarah Duhaime<br />
Cover photo: Zack Phillips, 7, had a fun<br />
time at Sarnia-Lambton Chapter’s summer<br />
camp fun day. Photo credit: Jenny Van<br />
Bree, Camp Director<br />
4<br />
5<br />
7<br />
10<br />
12<br />
13<br />
20<br />
30<br />
32<br />
34<br />
38<br />
39<br />
New and Noteworthy<br />
Homework for Parents and Educators, by Leslie Broun<br />
Ride, Glide ’N Stride, by Marti Veliz<br />
From Gymnastics to Gastronomy, by Kelli VanBuskirk<br />
Simple Strategies That Work, by Brenda Smith Myles<br />
Living in the Community: Housing design for adults with autism, by<br />
Andrew Brand<br />
Info autisme<br />
Educational Scholarship Recipients 2011<br />
Shayam Kaushal Charitable Foundation<br />
Gerry Bloomfield Awards 2011<br />
Board Corner<br />
In Your Corner<br />
<strong>Autism</strong>ontario<br />
1179 King Street West, Suite 004<br />
Toronto, ON M6K 3C5<br />
Phone: 416-246-9592<br />
Fax: 416-246-9417<br />
mail@autismontario.com<br />
<strong>Autism</strong> <strong>Ontario</strong> is a registered charitable non-profit organization<br />
(#11924 8789 RR0001).<br />
OUR VISION: Acceptance and opportunities for all individuals<br />
with <strong>Autism</strong> Spectrum Disorders (ASD). Our Mission: To<br />
ensure that each individual with ASD is provided the means to<br />
achieve quality of life as a respected member of society. <strong>Autism</strong><br />
Matters is published four times per year. <strong>Autism</strong> Matters welcomes<br />
contributions from its readers. Send your articles, reviews,<br />
letters, comments, announcements, etc., to Margaret Spoelstra,<br />
<strong>Autism</strong> Matters Editor. For advertising rates and inquiries contact<br />
GEPM Group Inc., info@gepmgroup.com. Inclusions of information<br />
not directly related to <strong>Autism</strong> <strong>Ontario</strong> are for information<br />
only and individuals, events, therapies, treatments, etc., are not<br />
necessarily endorsed by <strong>Autism</strong> <strong>Ontario</strong>.<br />
2<br />
1<br />
3<br />
6<br />
4<br />
5<br />
Strategic Directions<br />
Look for these icons to identify articles in<br />
this issue with aspects of <strong>Autism</strong> <strong>Ontario</strong>’s<br />
strategic priorities:<br />
1 Effective marketing and fundraising<br />
2 Building a unified organization<br />
3 Opening doors for adults<br />
4 Educating educators and professionals<br />
5 Using information technology to<br />
collaborate, learn and share<br />
6 Expanding our reach<br />
Editing, design and printing services, GEPM Group Inc. • www.gepmgroup.com
New and Noteworthy<br />
Important information about autism research,<br />
government resources and supports, new<br />
books and our new social skills report<br />
by Margaret Spoelstra, Executive Director<br />
message EXECUTIVE DIRECTOR<br />
This issue of <strong>Autism</strong> Matters is one of the largest we’ve ever published.<br />
IMFAR 2012 coming to Toronto: On May 17-19, 2012 the International Society<br />
for <strong>Autism</strong> Research is holding its annual International Meeting for <strong>Autism</strong> Research<br />
in Toronto. This is the first time in 11 years that the conference will be held in<br />
Toronto and it is an incredible opportunity to hear about the most current ASD<br />
research from researchers from around the world. Check the INSAR website for<br />
details at www.autism-insar.org.<br />
Improving Health Care for People with Developmental Disabilities: In<br />
May 2011 the Canadian Family Physician published the Primary Care of Adults with<br />
Developmental Disabilities: Canadian Consensus Guidelines (DD Guidelines) and Tools for<br />
the Primary Care of People with Developmental Disabilities. The DD Guidelines is an<br />
update of the 2006 Guidelines.<br />
Tools for the Primary Care of People with Developmental Disabilities is a book of 28<br />
practical tools for the primary care of people with DD and relates to specific guideline<br />
recommendations as aids to implementing them. These have been distributed to family<br />
physicians and family medicine residents across <strong>Ontario</strong>. Electronic versions of the<br />
tools are available at no cost through the Surrey Place Centre website http://www.<br />
surreyplace.on.ca/Documents/Consensus-guidelines-for-health-care.pdf.<br />
Funding through DSO not for all: The launch of Developmental Services <strong>Ontario</strong><br />
in July 2011 has had its celebrations and its challenges. What many adults with<br />
Aspergers or HFA are already discovering is that they may not be eligible for these<br />
supports. It is important to note that neither a diagnosis nor one’s IQ is the sole<br />
determinant for eligibility. <strong>Autism</strong> <strong>Ontario</strong> continues to be in dialogue with <strong>Ontario</strong><br />
leaders about the lack of supports for adults with ASD and the continually growing<br />
numbers of individuals requiring health, mental health, housing, employment and<br />
meaningful day supports across <strong>Ontario</strong>. Speak with your local DSO office for more<br />
information. Visit http://www.dsontario.ca/.<br />
Via Rail http://www.viarail.ca/en/useful-info/special-needs/additional-assistance<br />
Passengers who need assistance in attending to their personal needs (eating, medical<br />
care, personal hygiene) during their trip must travel with a companion capable<br />
of providing such assistance. The companion travels free in the same class of service.<br />
Where necessary, the companion is expected to assist Via personnel in boarding<br />
and disembarking the passenger and in helping the passenger move about while on<br />
board.<br />
To take advantage of this privilege, the traveler with special needs must present,<br />
for each trip, a valid card from a recognized association or institution for persons with<br />
New Books<br />
Kitchen, Julian & Dean, Christopher (2010)<br />
Professionalism, Law, and the <strong>Ontario</strong><br />
Educator, Highland Press, ON. ISBN<br />
978-0-9865873-0-6<br />
This is a helpful resource for educators<br />
with a wealth of information which “conveys<br />
what teachers need to understand concerning<br />
this broader picture of who they are as<br />
teachers and what they do.” Chapters on<br />
safe classrooms and schools, the rights and<br />
responsibilities of students and parents and<br />
special education law will be of particular interest<br />
to <strong>Autism</strong> Matters readers.<br />
Hackney, I. Mary. Illustrated by Carly Hatton<br />
(2011) Limericks from the Animal Kingdom,<br />
Spiral Press, ON. ISBN 978-0-9867912-1-5<br />
The words, in limericks, of a psychologist,<br />
Mary Hackney, are beautifully combined<br />
with the illustrations of Carly Hatton,<br />
a 19-year-old autistic artist. A portion of<br />
the proceeds from this book goes to the<br />
Hackney-Hatton Fund to support families of<br />
children living with autism.<br />
FALL 2011 <strong><strong>Autism</strong>MATTERS</strong> 3
message EXECUTIVE DIRECTOR<br />
disabilities, or a recent letter dated within the last nine months (unless the letter states<br />
that the condition is permanent) and signed by a physician.<br />
To be valid, the letter must describe exactly which of the following personal<br />
needs the traveler cannot attend to by himself/herself (see examples):<br />
• Eating<br />
• Personal hygiene<br />
• Medical care (administration of medication, supervision by a nurse, etc.)<br />
Children: In cases where a child cannot travel alone, an escort is not allowed.<br />
Examples:<br />
• Child under the age of 8.<br />
• Child ages 8 to 11 on a trip where they are not entitled to travel alone according<br />
to our “unaccompanied children” service (travelling in sleeper or<br />
overnight for example).<br />
Easter Seals Canada promotes an accessible leisure program known as Access 2<br />
Entertainment, which consists of a personalized card for people with permanent<br />
disabilities who require the support of an attendant while going to the movies or<br />
other tourist attractions. The card grants one free admission to the attendant while<br />
the cardholder pays the regular admission fee. The card costs $20, valid for five years,<br />
and is accepted at many attractions such as movie theatres, museums, art galleries,<br />
and theatre productions. Visit www.access2.ca for more information, to download<br />
application forms, or to view an updated list of participating venues.<br />
Thank you, Flavia Orvitz (Niagara), for sending us this important information to share with our<br />
readers.<br />
Santé et équilibre . . . pour obtenir de meilleurs résultats au travail Cet atelier<br />
fait partie d’une série d’ateliers offerts par le Rifssso tout au long de l’année 2011-<br />
2012.<br />
Le conférencier, Michel Duval, offrira des outils pratiques pour obtenir plus<br />
de motivation et de succès au travail en visant une vie plus équilibrée. / Date : 17<br />
octobre 2011 de 10h30 à 16h30 / Date limite pour s’inscrire : 7 octobre 2011 / Lieu :<br />
Marriott, rue Yonge, Toronto ON / Le Rifssso profitera de cette occasion pour lancer<br />
la Communauté de pratique, esante-ontario, pour les intervenants francophones en<br />
santé et en services sociaux. Pour vous inscrire à l’atelier, vous devez d’abord devenir<br />
membre (voir www.cliquezsante.ca) et ensuite remplir le formulaire d’inscription. Pour<br />
plus d’information, communiquez avec Béatrix Lafosse à beatrix.lafosse@rifssso.ca.<br />
Social Matters Report: We are very<br />
excited about this issue and also about the<br />
release of Social Matters, our paper about<br />
what families look for in teaching social<br />
skills to their children with ASD, what<br />
<strong>Ontario</strong> professionals offer, what the<br />
literature currently tells us about social<br />
skills programs and future directions in<br />
<strong>Ontario</strong>. Watch our website for details,<br />
but our members will all receive copies<br />
in the mail later this month. <br />
<strong><strong>Autism</strong>MATTERS</strong><br />
FALL 2011 Volume 8 • Number 3<br />
A PUBLICATION OF AUTISM ONTARIO<br />
<strong>Autism</strong>matters<br />
The “go to” resource for parents and educators<br />
<strong>Autism</strong>matters is a publication of <strong>Autism</strong> <strong>Ontario</strong>. For $25, “Friends of <strong>Autism</strong> <strong>Ontario</strong>” can<br />
learn about autism all year round with a one-year subscription (4 issues). You’ll receive the most<br />
recent issue when you subscribe. Please provide full mailing information and a cheque payable to:<br />
Annual Education Issue<br />
Housing Design for Adults<br />
with <strong>Autism</strong><br />
Page 19 à 28<br />
Info <strong>Autism</strong>e<br />
<strong>Autism</strong>ontario<br />
1179 King St. W., Suite 004<br />
Toronto, ON M6K 3C5<br />
Members of <strong>Autism</strong> <strong>Ontario</strong> automatically receive a copy.<br />
Visit our website: www.autismontario.com to view back issues of our magazine.<br />
4 <strong><strong>Autism</strong>MATTERS</strong> FALL 2011
feature EDUCATION<br />
feature EDUCATION<br />
Homework for Parents and<br />
Educators<br />
Photo credit: MediaBakery<br />
Guidelines for the Effective Use of Educational<br />
Software with Students who have <strong>Autism</strong><br />
Spectrum Disorder and/or other Developmental<br />
Disabilities<br />
by Leslie Broun, M.Ed.<br />
Educational software can be a valuable component in the array of methods<br />
and materials used to teach students who have <strong>Autism</strong> Spectrum Disorder and/<br />
or other developmental disabilities. When making decisions about accessibility to the<br />
computer and the kinds of software programs that should be used, parents and educators<br />
must take into consideration certain factors regarding how their child or student<br />
responds to and interacts with computers:<br />
• The computer screen is a visual medium which allows the student to access her/<br />
his strength in the visual modality.<br />
• Computer programs offer unlimited opportunities to review concepts. Repeated<br />
trials allow opportunities to refine or consolidate a task or skill sequence.<br />
• Software programs that have been created for students who have learning difficulties<br />
generally maintain consistency in the language of instruction and in the<br />
program routines, as well as provide an element of predictability in how exercises<br />
will be presented.<br />
• Most educational software eliminates the need for using a pencil, particularly<br />
in the area of mathematics. Many students with ASD and other developmental<br />
disabilities have significant difficulty using a marking tool and this can seriously<br />
interfere with task performance. When the pencil is removed from the learning<br />
FALL 2011 <strong><strong>Autism</strong>MATTERS</strong> 5
feature EDUCATION<br />
experience, it frees the student’s focus<br />
and cognitive energy to deal with<br />
task expectations rather than struggle<br />
with numeral or letter formation.<br />
• Working with educational software<br />
allows for a focused instructional<br />
experience.<br />
• When software can be shared between<br />
school and home, the student<br />
may be more able to generalize information<br />
from one environment to<br />
the other.<br />
By allowing a student to access learning<br />
through the use of software, an instructor<br />
or parent is not restricting the student’s<br />
social experience, but rather enhancing<br />
that student’s learning opportunity. If a<br />
student with ASD must constantly confront<br />
challenges with social interaction<br />
during the learning experience, he or she<br />
may not be able to focus on either academic<br />
learning or social interaction. If<br />
skill acquisition is the goal in an instructional<br />
situation, the student may learn<br />
most efficiently if other distractions are<br />
eliminated so that he or she may focus<br />
on learning. There are some preliminary<br />
steps that instructors can take so that students<br />
can participate to the best of their<br />
ability and with a clear understanding of<br />
task expectations.<br />
• Make an informed decision about<br />
the software program you choose for<br />
your student.<br />
Ask other instructors about software<br />
programs that their students<br />
have used.<br />
Look at educational catalogues<br />
and brochures that advertise educational<br />
software.<br />
Go to the websites of companies<br />
that sell educational software.<br />
Many of these websites include<br />
free downloads and/or demonstration<br />
videos that explain the<br />
programs and that can be trialed.<br />
Some sites also offer software<br />
manuals that can be downloaded.<br />
<br />
Seek the advice of a software distributor<br />
who has a broad knowledge<br />
of what kinds of programs<br />
are available.<br />
When choosing educational software,<br />
preview its program components. Check<br />
to see if the cognitive level for intended<br />
users is indicated. It is critically important<br />
to study the software to determine<br />
which elements of a program are appropriate<br />
for the student. There are<br />
some important questions to ask in this<br />
process:<br />
Does the student have the preskills<br />
necessary to engage in the<br />
program<br />
What kinds of software has<br />
the student used in previous<br />
situations<br />
If a student with ASD must<br />
constantly confront challenges<br />
with social interaction during<br />
the learning experience, he or<br />
she may not be able to focus<br />
on either academic learning or<br />
social interaction.<br />
How did the student respond to<br />
other software programs<br />
Are there components of the<br />
program which may be too easy<br />
or too difficult for the student<br />
Does the program include audio<br />
Does it give verbal task instructions<br />
Does the student have adequate<br />
receptive language skills<br />
to understand the instructions or<br />
will they need explanation by an<br />
instructor<br />
Is there a reading component to<br />
the program Are the student’s<br />
reading skills adequate for effective<br />
participation in the program<br />
• Look for the software features that<br />
are most useful for students with<br />
ASD/DD:<br />
Clear visual images that do not<br />
veer too far from reality: either<br />
photographs or accurate<br />
drawings<br />
Well-articulated and clear language<br />
of instruction<br />
Single-step instructions whenever<br />
possible<br />
The availability of Pause and<br />
Repeat features<br />
Scaffolded tasks that do not become<br />
too complex too quickly<br />
Tasks that allow the student to<br />
work independently<br />
• Check the technical requirements of<br />
the program. Can the technical components<br />
be manipulated, e.g. voice,<br />
length of time between tasks, mouse,<br />
touch screen, keyboard or switch capability<br />
Determine which method<br />
of access will be most efficient for<br />
your student.<br />
• Does the program have a data collection<br />
component Can it be printed<br />
Can the student participate in her/<br />
his own data collection process<br />
There is a vast array of educational<br />
software available which addresses the<br />
broad spectrum of academic and social<br />
needs of students with <strong>Autism</strong> Spectrum<br />
Disorder and developmental disabilities.<br />
This software can be an extremely useful<br />
component in a well-rounded and comprehensive<br />
educational program for our<br />
students. <br />
Leslie Broun<br />
6 <strong><strong>Autism</strong>MATTERS</strong> FALL 2011
feature FUNDRAISING<br />
Advertisement<br />
Still waiting for services<br />
Copyright © 2011 Trumpet Behavioral Health<br />
ad_autism matter_0911_v02.indd 1<br />
9/29/2011 4:17:51 PM<br />
Ride, Glide ’N Stride<br />
Movin’ and shakin’ for autism awareness<br />
and fundraising<br />
by Marti Veliz, President – <strong>Autism</strong> <strong>Ontario</strong>,<br />
Toronto Chapter<br />
On Sunday, September 11, 2011, the Toronto Chapter held its Annual Ride,<br />
Glide ’N Stride for <strong>Autism</strong> Event. The hot summer weather added to the festivities<br />
out at Thistletown Regional Centre. Approximately 200 people were in attendance,<br />
many new to the Toronto Chapter. Participants journeyed in a five-kilometre walk<br />
along the scenic route of Rowntree Mills Park. The adventuresome ones participated<br />
in a 20-km cycle. It was all to raise awareness and funds which enable the Toronto<br />
Chapter with their initiatives (movie days, annual Christmas party, parent support<br />
group and two pilot programs – Cook & Chat and Social Skills) for the families living<br />
with ASD in Toronto.<br />
Kids of all ages were able to sit behind the wheel of a police cruiser or fire truck,<br />
jump on a bouncy castle or have their faces painted. Our lovable mascots, Bert and<br />
Ernie, Shrek and Smurf, dropped by for some fun and pictures. Participants and their<br />
families enjoyed a free BBQ while watching the magical talents of Magic Joe.<br />
The Toronto Chapter would like to thank the following:<br />
1. Our Sponsors:<br />
Longos<br />
Metro Foods<br />
Paula Stamp and Accident Benefits Group<br />
K. Jamson Luggage<br />
2. The Toronto Fire and Police Services<br />
3. All our volunteers<br />
The Toronto Chapter raised funds just shy of $8,000 (pledges still trickle in).<br />
The 2011 Ride, Glide ’N Stride Event for <strong>Autism</strong> was a success and raised much<br />
needed funds, thanks to everyone who participated, to our sponsors and the many<br />
volunteers who took time away from their families to assist and making a memorable<br />
day for our Toronto Chapter families. <br />
FALL 2011 <strong><strong>Autism</strong>MATTERS</strong> 7
feature WORKING TOGETHER<br />
Non-Violent Crisis<br />
Intervention for Parents<br />
Often interventions focus on<br />
identifying triggers in an effort to<br />
minimize the potential for escalation to<br />
an unsafe situation, but what happens if<br />
you miss the triggers<br />
by Sarah Duhaime, Family Support<br />
Coordinator, Toronto – Central West<br />
Connecting with families through my work with <strong>Autism</strong> <strong>Ontario</strong> (in the<br />
Family Support Coordinator role) has made it apparent that parents are looking for<br />
more information to keep their children and themselves physically safe during times<br />
of crisis. We know that melt-downs are a frequent occurrence for those living with<br />
ASD. We also know that self-injurous behaviour is quite common too. In order to ensure<br />
safety for individuals with autism during crisis there are a number of therapeutic<br />
supports offered by a variety of professionals.<br />
Recent media attention to the case of a nine-year-old boy with Asperger<br />
Syndrome in Toronto who was restrained by police officers through the use of handcuffs<br />
at his local daycare tells us that we need to focus more attention on this key issue.<br />
Follow-up interviews from key responders in the autism community confirm that the<br />
approach used by the police officers that day was not appropriate, but what can we<br />
do instead<br />
To answer these difficult questions, <strong>Autism</strong> <strong>Ontario</strong> Hamilton Chapter drew<br />
upon the expertise of Ed Mahony to share information with our local families. Ed is a<br />
Special Education Resource Teacher with the Hamilton Wentworth Catholic School<br />
Board. He also teaches courses on <strong>Autism</strong> Spectrum Disorder, Applied Behavioural<br />
Analysis and minimizing crisis behaviour within the Educational Assistant Programs<br />
of Mohawk and Conestoga College with campuses in Hamilton, Guelph, Kitchener,<br />
Waterloo and Stratford. Ed is a trained Non-Violent Crisis Intervention (NVCI)<br />
Instructor. NVCI training “focuses on prevention and offers proven strategies for<br />
safely defusing anxious, hostile, or violent behavior at the earliest possible stage”<br />
(NVCI, 2011).<br />
Through Ed’s front-line work with individuals affected by autism, and his specialized<br />
knowledge of NVCI, he was able to adapt a very practical two-day training<br />
program for a group of 15 community members (consisting of parents and a few<br />
volunteers). Over the two days, Ed shared some of his knowledge in understanding<br />
the development stages of crisis situations and how to apply non-violent de-escalation<br />
8 <strong><strong>Autism</strong>MATTERS</strong> FALL 2011
feature WORKING TOGETHER<br />
Advertisement<br />
Considering IBI<br />
Copyright © 2011 Trumpet Behavioral Health<br />
ad_autism matters_0911_final.indd 2<br />
techniques to avoid the need for physical<br />
intervention. Ed recognizes that due<br />
to the complex nature of ASD there is<br />
no “magic formula” or simple solution<br />
that will work to assist all children with<br />
autism. From the training, parents were<br />
given the tools to personalize strategies<br />
based on the needs of their children.<br />
Feedback from parents for this training<br />
included comments such as, “I like<br />
that it showed me how to control my<br />
son’s episodes and how to divert them<br />
to something else as well as doing it a<br />
safe manner,” and, “I really enjoyed Ed’s<br />
type of teaching (visual). He is a handson<br />
teacher and did a great job of ensuring<br />
everyone understood before moving<br />
on. Being able to ask direct questions and<br />
share information and concerns about<br />
our own children made it much more<br />
personal and helpful.” It is evident that<br />
“crisis training” information, which is<br />
usually reserved for professionals working<br />
in the autism field, was very well received<br />
by families living with autism.<br />
Some key” take-aways” from this<br />
training and literature on crisis management<br />
to minimize the use of physical restraint<br />
include:<br />
• Recognizing the potential sensory<br />
sensitivities in an environment that<br />
an individual with ASD may have.<br />
Try to make accommodations to<br />
the environment to maximize daily<br />
success. Be conscientious of the extra<br />
sensory issues that may present<br />
during transition times. (i.e., If at<br />
school, going from a quiet classroom<br />
to a busy hallway).<br />
• Understanding that individuals with<br />
ASD often experience high levels of<br />
anxiety and that deviations from the<br />
regular routine are likely to have a<br />
greater impact on them than the average<br />
neuro-typical person. Making<br />
arrangements to share information<br />
about a possible change to a routine<br />
is often helpful.<br />
• Ensuring consistency in a behaviour<br />
management or safety plan so that<br />
the same strategies are being applied<br />
among all support people and caregivers.<br />
Core elements of this plan<br />
should include how to respond when<br />
the child/adult indicates increased<br />
anxiety, and how to keep everyone<br />
involved calm.<br />
• Avoid making demands or increasing<br />
instruction if the individual is<br />
escalating. These requests can make<br />
the situation worse as the child/adult<br />
is often not able to process complex<br />
directions during a crisis.<br />
• Providing physical space. Cornering<br />
an individual into a small area may<br />
cause them to feel threatened. A<br />
quiet, calming space is often ideal to<br />
help with de-esclation.<br />
• Ensuring that safety accommodations<br />
are in place regardless of the<br />
space. Be mindful of sharp corners<br />
on tables, wall and floor space, etc.<br />
• Being mindful of the safety of others.<br />
In many circumstances, it is<br />
safer to remove others who may be<br />
in the room instead of removing the<br />
10/4/2011 10:32:52 AM<br />
individual in crisis.<br />
• Being reflective of how one’s own<br />
behaviour may contribute to the situation.<br />
Remember as a staff or parent<br />
to always try to stay calm.<br />
If you are working in the field of<br />
autism, connecting with your direct supervisor<br />
is a good way to start to gain<br />
more information about local training<br />
opportunities that will allow for an<br />
NVCI certification. This training will<br />
help an individual to gain a better understanding<br />
of safety planning and crisis<br />
management. (Note that parents who<br />
participated in the training provided by<br />
Ed Mahony were not eligible for an actual<br />
NVCI certification; however, they<br />
were able to take away many of the core<br />
principles). If you are looking for ASDspecific<br />
resources related to crisis management,<br />
you may also want to connect<br />
with your local <strong>Autism</strong> <strong>Ontario</strong> Chapter.<br />
Aside from this more intensive training<br />
described above, Ed often provides<br />
workshops on “Positive Intervention”<br />
and is in the process of a fall tour, making<br />
stops in Huron-Perth, Kingston and<br />
Peterborough. This workshop focuses<br />
on crisis prevention strategies to meet<br />
the unique needs of individuals with<br />
ASD, rituals and compulsive behaviour,<br />
self-injurious behaviour, agitation and<br />
the non-verbal student, and the limits<br />
and dangers of physical restraint. Ed<br />
presents for <strong>Autism</strong> <strong>Ontario</strong> in different<br />
parts of the province on a regular basis.<br />
Attending a workshop or training presented<br />
by Ed is time well spent. <br />
FALL 2011 <strong><strong>Autism</strong>MATTERS</strong> 9
feature WORKING TOGETHER<br />
From Gynmastics to<br />
Gastronomy<br />
HOW A GOOD IDEA FROM DUNDAS TOOK HOLD IN<br />
NORTH BAY<br />
by Kelli VanBuskirk, Manager of Chapter<br />
Development and Fundraising - North Bay<br />
and Area Chapter<br />
Penny Gill’s book, Coach in the Kitchen, was<br />
the inspiration in North Bay<br />
Fall brings many activities to the North Bay and Area chapter and things<br />
are even busier this year. We have a variety of weekly programs for our families to enjoy<br />
and none of these programs would be possible without the amazing partnerships<br />
we have developed with the people, businesses and service providers in and around<br />
North Bay.<br />
Our most popular program is gymnastics, run by Gymtrix Gymnastics and<br />
Trampoline Centre. Every Thursday we gather at Gymtrix and our children participate<br />
in a traditional gymnastics program, under the direction of their expert staff.<br />
The kids jump on the trampoline, launch themselves into the foam pit, run an obstacle<br />
course and have a ton of fun doing it, all the while getting much needed exercise<br />
and learning the benefits of things such as turn-taking and body awareness. This year<br />
we added an additional trampoline only class for teens.<br />
Every Sunday for two hours, a group meets at Dance Obsessed Studios. Led by<br />
Mabel Hernandez, they learn the latest dance moves in a non-competitive environment,<br />
then relax by doing yoga and honing their fine motor skills with crafts developed<br />
by Shannon Berger. Mabel also runs a camp for a week in the summer expressly<br />
for our children.<br />
Back by popular demand is the drama program, led by Can-Do Kids Theatre and<br />
its artistic director, Michelle Webster. This year’s play, designed for children ages 6<br />
to 12, is A Charlie Brown Christmas and promises to provide as much entertainment<br />
10 <strong><strong>Autism</strong>MATTERS</strong> FALL 2011
feature WORKING TOGETHER<br />
Consider <strong>Autism</strong>Pro.<br />
Advertisement<br />
<strong>Autism</strong>Pro and Leaps and Bounds are offering two new<br />
affordable, effective options to <strong>Ontario</strong> families waiting for services.<br />
To learn more please visit:<br />
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Better training. Better resources. Better outcomes.<br />
Copyright © 2011 Trumpet Behavioral Health<br />
ad_autism matters_011011_final.indd 3<br />
10/5/2011 10:26:14 AM<br />
as last year’s play. Michelle hasn’t forgotten about the teens, however, and plans for<br />
a teen program is in the works for the new year.<br />
An integral component of these programs are the workers who provide support<br />
in a variety of ways to our children and youth. Through the Group Activities<br />
Enhanced Respite funds at Hands [thefamilyhelpnetwork.ca], our programmers can<br />
apply for funding to help hire the extra staff needed to accommodate our group.<br />
Hands has been very generous and supportive of all our endeavours.<br />
One of our most successful partnerships is with Lee Anna Tremblay, the owner<br />
of One Stop Employment Shop. After being inspired by the program “Coach in the<br />
Kitchen” developed by Penny Gill, we searched for a way to make a cooking program<br />
available to teens and adults in our community. At the same time, Lee Anna, after<br />
spending several years working with organizations that provided service to people<br />
with special needs, decided to branch out on her own. A phone call and a few e-mails<br />
later, our Teen and Adult Cooking Program became a reality.<br />
The cooking class begins every Wednesday in the kitchen of One Kids Place,<br />
our children’s treatment centre, where they have very graciously opened their doors<br />
to us so that we can make full use of their wonderful facility. With the exception of<br />
the first class, participants plan the menu themselves, from appetizers to dessert. It<br />
is a collaborative effort, expertly facilitated by Lee Anna as each participant gives<br />
input and gets to choose their favourite food at least once during the session. You<br />
won’t find them boiling any wieners either! Vegetables are chopped, meat is prepared<br />
and a culinary trip around the world begins.<br />
Tasty examples include Greek salad – one of<br />
many different types of salad prepared, scalloped<br />
potatoes, chicken pot pie, homemade<br />
pizza, hamburgers, orange glazed ham, shrimp<br />
linguine and asparagus. The deliciousness<br />
continues into dessert with the preparation of<br />
yummy brownies, fruit turnovers and the best<br />
lemon meringue pie I have ever tasted, with a<br />
meringue that rivals a professional chef’s. At<br />
the end of the meal, the dishes are washed, the<br />
table, counters and stove are all cleaned and<br />
everyone goes home happy and full.<br />
We are extremely fortunate to be so supported<br />
in our community and are always on<br />
the lookout for even more partnerships. <br />
FALL 2011 <strong><strong>Autism</strong>MATTERS</strong> 11
feature EDUCATION<br />
Simple Strategies That Work<br />
techniques for working with students<br />
with high-functioning autism and aspergers<br />
syndrome<br />
Smith Myles, B., Adreon, D., & Gitlitz, D.<br />
(2006). Simple Strategies That Work, helpful<br />
hints for all educators of students with<br />
Asperger Syndrome, high-functioning autism,<br />
and related disorders. <strong>Autism</strong> Asperger<br />
Publishing Co. Kansas: Shawnee Mission.<br />
Veuillez noter que la version française de cet<br />
article est disponible à la page 28.<br />
1. Operate on Asperger time<br />
a. Twice as much time, half as much<br />
done<br />
b. Modify requirements<br />
c. Reduce or eliminate handwriting<br />
d. Avoid rushing<br />
2. Manage the environment<br />
a. Prepare for change<br />
b. Incorporate the student’s<br />
preferences<br />
c. Build in relaxation<br />
d. Provide choices<br />
3. Create a balanced agenda that conserves<br />
energy<br />
a. Monitor demands<br />
b. Engage the student in a familiar or<br />
calming activity early in the school<br />
12 <strong><strong>Autism</strong>MATTERS</strong> FALL 2011<br />
day to prepare him or her for<br />
work<br />
c. Incorporate special interests into<br />
assignments<br />
d. Alternate difficult and less difficult<br />
tasks as well as interchange preferred<br />
and non-preferred activities<br />
e. Provide “down time” in the<br />
schedule<br />
f. Use calming and alerting activities<br />
4. Share the agenda<br />
a. Use visual supports<br />
5. Simplify language<br />
a. Watch for literalness<br />
b. Teach “hidden curriculum” rules<br />
6. Set a calm, positive tone<br />
a. Model acceptance<br />
7. Live out loud<br />
a. Verbalize your actions<br />
8. Be generous with praise<br />
a. Foster attribution and understanding<br />
(for the student)<br />
9. Listen to the words<br />
a. Seek and offer clarification<br />
10.Provide reassurance<br />
a. Reduce uncertainty
feature living with autism<br />
Living in the Community:<br />
Housing design for adults<br />
with autism<br />
The environment in which an adult with<br />
autism lives can have a profound impact on<br />
their health and wellbeing. This UK study<br />
looks at how the design of residential<br />
accommodation can meet their needs<br />
by Andrew Brand, Research Associate,<br />
RCA Helen Hamlyn Centre<br />
This article was originally published in World<br />
Health Design, October 2010, 4:1:73-81,<br />
accessible at www.worldhealthdesign.com and<br />
reprinted with permission.<br />
Autistic spectrum conditions, including Asperger’s syndrome, affect<br />
one in 150 people. They are lifelong and complex neurological conditions that affect<br />
social development, interaction and communication, and can cause unusual behaviours<br />
and interests. The environment in which an adult with autism lives can have a<br />
profound impact on their wellbeing, exacerbating behaviours that may inhibit progress<br />
and diminish motivation and confidence. This article is an extract from the publication,<br />
Living in the Community, which summarises a one-year design research study<br />
that was conducted in partnership by autism charity Kingwood and the Royal College<br />
of Art Helen Hamlyn Centre with support from London-based design consultancy<br />
BEING. The work looked at autism from a design, rather than a behavioural or sociological,<br />
point of view. It recognises that a great deal more research is required in<br />
order to understand how design may benefit people with autism, their families and<br />
the people who support them.<br />
For the purposes of this article, the term autism is used to refer to all autistic<br />
spectrum conditions including Asperger’s syndrome, except when referring specifically<br />
to individuals who have this diagnosis.<br />
The study was concerned with the design of ordinary residential buildings in the<br />
community, and the guidelines and concepts presented in Living in the Community reflect<br />
this focus. This does not preclude these recommendations being used for other<br />
building types.<br />
The aims of the study were:<br />
• to understand how the built environment, and housing design in particular, affects<br />
the health and wellbeing of people with autism;<br />
• to look at how housing design impacts on the effective delivery of care and support<br />
for adults with autism;<br />
• to develop recommendations and concepts that show good practice in the design<br />
of residential accommodation for people with autism; and<br />
• to publish key findings and recommendations as a reference for planners, architects<br />
and other decision makers in the development of residential accommodation<br />
for people with autism.<br />
The study took a people-centred design approach to research, engaging people<br />
in their own homes as well as completing secondary research and interviewing<br />
experts in the field of autism. An understanding of people’s needs, constraints and<br />
FALL 2011 <strong><strong>Autism</strong>MATTERS</strong> 13
noteworthy feature living news with + autism views<br />
aspirations was built from observations<br />
and their stories. Key insights and patterns<br />
of behaviour were extracted from<br />
the data leading to the development of<br />
four design themes.<br />
The design themes are expressed in<br />
terms of qualities rather than physical<br />
variables and can be used as a framework<br />
for generating concepts and making decisions<br />
about all the different considerations<br />
involved in planning a building,<br />
from its location and orientation to details<br />
such as wall finishes.<br />
Recommendations and concepts relating<br />
directly to building elements are<br />
also presented. These are based on existing<br />
research, observations from site visits<br />
and insights from an expert reference<br />
group, as well as other professionals who<br />
work within autism. Together they represent<br />
a collection of recommendations<br />
that should be considered when commissioning<br />
or refurbishing residential accommodation<br />
but are not written to be<br />
mandatory or prescriptive.<br />
About autism<br />
<strong>Autism</strong> is a lifelong neurological and<br />
complex condition that affects the way a<br />
person perceives and interacts with other<br />
people and the world around them. It is<br />
a spectrum condition, which means that<br />
while all people with autism share certain<br />
difficulties, they will be affected by them<br />
in different ways.<br />
Adults with autism experience sensory<br />
perceptual differences and difficulties<br />
in communicating and organising. These<br />
characteristics can seriously affect their<br />
ability to live independently and they often<br />
need support in managing basic everyday<br />
tasks such as shopping, preparing<br />
meals and paying bills. Some may lead<br />
relatively independent lives while others<br />
require dedicated support every day.<br />
Historically, this has been provided<br />
in residential institutions but the emphasis<br />
has shifted to community-focused<br />
models of support that take place in people’s<br />
own homes. In the UK, up to half of<br />
adults with autism receive support in the<br />
homes of their foster families or parents. 1<br />
With an increasing number of people<br />
being diagnosed with autism and parents<br />
of autistic adults getting older and less<br />
able to provide care, many are seeking<br />
opportunities to live outside traditional<br />
institutions or their parental home and<br />
want or need to find alternative housing<br />
or accommodation.<br />
Some people with autism have accompanying<br />
learning disabilities, while<br />
others may possess high levels of intellectual<br />
ability. However, everyone living<br />
with the condition shares a difficulty in<br />
making sense of the world and exhibits<br />
difficulties in three main areas:<br />
Social interaction. This includes<br />
difficulty with social relationships, appearing<br />
aloof, showing compromised<br />
ability and little desire to live in communal<br />
situations, trouble in understanding<br />
social rules and prioritising their own<br />
needs over those of other people.<br />
Communication. There can be<br />
difficulty in interpreting verbal and<br />
non-verbal communication such as understanding<br />
the meaning of common<br />
gestures, facial expressions or tone of<br />
voice. In some cases, people may have<br />
limited or no ability to talk.<br />
Restricted repetitive behaviours.<br />
There can be difficulty in managing<br />
transitions and dealing with changes in<br />
routine. Repetitive behaviours, such as<br />
pacing, hand flapping or rocking, and<br />
persistent preoccupation with certain<br />
subjects and objects are typical.<br />
People with autism may also display<br />
some or all of the following characteristics,<br />
which can present themselves as<br />
either challenges or strengths, but all of<br />
which have implications for the design of<br />
their home environments:<br />
• sensory abnormalities such as unusual<br />
reactions to stimulation or<br />
difficulty in making sense of stimulation.<br />
Certain visual details, colours,<br />
sounds, smells, tastes or textures can<br />
cause both distress and enjoyment;<br />
• a need for more personal space and<br />
dislike of physical contact;<br />
• poor awareness of danger;<br />
• an inability to generalise concepts,<br />
which means skills learnt in one<br />
situation may not be transferred and<br />
employed in a similar situation;<br />
• poor coordination and balance;<br />
• seizures or periods of loss of<br />
consciousness;<br />
• special interests and sometimes high<br />
levels of ability in music, mathematics,<br />
technology or art;<br />
• vulnerability to mental health<br />
Parents rated their adults sons’ and daughters’ capabilities in a National Autistic Society England & Wales survey<br />
14 <strong><strong>Autism</strong>MATTERS</strong> FALL 2011
problems such as anxiety and<br />
depression.<br />
In March 2010, recognising the increasing<br />
urgency to meet the housing<br />
and support needs of this population,<br />
the UK government published an autism<br />
strategy, directing local councils to take<br />
into account the needs of adults with autism<br />
in the planning, design and allocation<br />
of local housing.<br />
However, while more housing opportunities<br />
are set to become available,<br />
there is a distinct lack of documented<br />
design guidance and, therefore, a risk of<br />
placing people in buildings that do not<br />
meet their needs or aspirations. The<br />
consequences of not providing appropriate<br />
accommodation can lead to family<br />
dependence, stress, incidences of aggression<br />
and social isolation.<br />
Residential building type<br />
Large institutional residences are not appropriate<br />
for most people with autism.<br />
They can be overstimulation environments,<br />
occupied by large numbers of<br />
feature living with autism<br />
people for whom daily routines are determined<br />
by staff rather than residents. In<br />
response to these older types of services,<br />
there has been a shift towards providing<br />
residential accommodation in domesticsized<br />
buildings in the community, not<br />
apart from it.<br />
Smaller living units, such as group<br />
homes or self-contained flats in a single<br />
building, have been shown to lessen the<br />
incidences of challenging behaviour,<br />
with individuals benefiting from more<br />
variety and stimulation from their living<br />
environment and inclusion in a community.<br />
2 While these new types of residential<br />
buildings form the focus of this study,<br />
it is recognised that they may not be suitable<br />
for all people with autism.<br />
Different models of accommodation<br />
and support exist in the form of clustered<br />
housing in one locality, sometimes referred<br />
to as villages or farmsteads.<br />
Personalisation of a bedroom with arts and crafts<br />
Research methods<br />
When designing for people with autism,<br />
it is essential to have an understanding<br />
of how they might experience the environment<br />
and perceive people and objects<br />
in it. <strong>Autism</strong> cannot be simulated with<br />
empathy tools such as age suits 3 or lowvision<br />
goggles. The way people with autism<br />
perceive the world is on the edge of<br />
our typical experiences. To build a better<br />
understanding, published works on<br />
the nature and complexities of sensory<br />
processing, behavioural and architectural<br />
research on the built environment<br />
and its effect on people with autism were<br />
reviewed. Biographical works by people<br />
with autism were also considered. They<br />
provided insightful and lyrical accounts<br />
that complemented pathological descriptions<br />
of autism.<br />
Interviews were conducted with<br />
adults with autism as well as with professionals<br />
who work with them, such as<br />
support workers, psychologists and architects,<br />
and an expert reference group<br />
was established.<br />
The third element of the research<br />
study included visits to supported living<br />
residences. Seven homes for autistic<br />
FALL 2011 <strong><strong>Autism</strong>MATTERS</strong> 15
noteworthy feature living news with + autism views<br />
adults were visited on a number of occasions.<br />
The purpose of conducting studies<br />
in situ was to observe firsthand how<br />
residents use and respond to their living<br />
environments, see how support workers<br />
interact with them and carry out contextual<br />
interviews.<br />
Throughout the project, contributors<br />
were invited to comment on the<br />
work. To get feedback on specific issues,<br />
illustrated concepts were reviewed in<br />
workshops with autistic adults. Insights<br />
were drawn from the stories and observations<br />
to develop universal themes and<br />
a design guide.<br />
Material gathered during the research<br />
phase was used to uncover patterns,<br />
decipher common themes and<br />
define a structure for understanding how<br />
the design of built environments can affect<br />
people with autism. From an analysis<br />
of what had been observed and recorded,<br />
key project findings and insights were<br />
defined.<br />
Key findings<br />
The design of residential buildings can<br />
profoundly impact on the health, wellbeing<br />
and behaviour of adults with autism.<br />
To enhance the confidence and independence<br />
of people with autism and complex<br />
needs, a holistic approach must be taken<br />
that aligns the building design and level<br />
of personal support with individual preferences<br />
and aspirations.<br />
The abilities and sensitivities of individuals<br />
on the autistic spectrum vary<br />
greatly, so reactions to the environment<br />
can differ. Unique groupings of behaviour<br />
have started to emerge from the research,<br />
but further study is required to<br />
prove their universality.<br />
Service staff, prospective residents<br />
and their families are rarely consulted<br />
in the writing of design briefs and are<br />
typically not involved in the preparation<br />
and initial stages of building projects.<br />
Post-occupancy evaluations are more<br />
common, though not universally performed,<br />
and while their findings may<br />
inform the next project, it can be difficult<br />
and expensive to modify the building<br />
The four design themes can help designers and architects ask the right questions at the briefing<br />
stage<br />
being evaluated, which may have several<br />
shortcomings. Architects and designers<br />
should involve end-users throughout the<br />
design-and-build process.<br />
There has been a shift from institutional<br />
care to community-focused, social<br />
models of support, which advocate<br />
personal planning rather than regulated<br />
schedules as fixed by staff. Emphasis is<br />
rightly placed on the individual needs<br />
and wishes of residents. However, in<br />
aiming to provide normal home-like<br />
environments, the requirements of staff<br />
have been overlooked and this affects<br />
their ability to provide appropriate levels<br />
of care and support. It must be remembered<br />
that, while residential buildings<br />
are people’s homes, they are also places<br />
of work.<br />
In addition, homes are more likely<br />
to be successful when the compatibility<br />
of residents has been assessed and people<br />
are cohabitating alongside those with<br />
similar needs, routines and life stage.<br />
Design themes<br />
These findings were distilled into four<br />
design themes that were used to drive<br />
the next stages of the project. They are<br />
expressed in terms of the qualities and<br />
performance criteria that are critical to<br />
improving housing for adults with autism.<br />
Some of the qualities are specific<br />
to people with autism while others may<br />
benefit wider groups of people. They are<br />
written in a manner that tries to help architects<br />
and designers ask the right sort<br />
of questions at the briefing stage. The<br />
aim is to inspire creative responses to<br />
these qualities rather than provide prescriptive<br />
rules or regulations.<br />
Design responses to these themes<br />
are expressed as guidance and concepts in<br />
the publication Living in the Community<br />
to practically show how they might be<br />
used and applied in real spaces.<br />
Growth and development. To improve<br />
the quality of life for adults with<br />
autism, there must be opportunities for<br />
16 <strong><strong>Autism</strong>MATTERS</strong> FALL 2011
them to make free choices and be independent.<br />
Simple activities like answering<br />
the front door and choosing who they<br />
invite in enhances their sense of ownership<br />
and engagement with the home environment.<br />
Similarly, enabling residents<br />
to make informed choices and take on<br />
responsibilities such as preparing food,<br />
cleaning and doing laundry can add<br />
meaning and purpose to everyday life.<br />
However, increased autonomy and<br />
multiple options present ambiguities,<br />
which people with autism may find difficult<br />
to process and this can lead to agitation<br />
or increased anxiety. The challenge,<br />
therefore, is to design environments that<br />
appear to have limited options while at<br />
the same time building in systems that allow<br />
them to be adapted to the changing<br />
needs of residents.<br />
Triggers. People with autism can<br />
be prone to acute and disabling anxiety,<br />
resulting in unusual reactions and complex<br />
behaviour. They can become easily<br />
overwhelmed or even fearful of ordinary<br />
daily experiences and activities. This can<br />
be compounded by communication issues<br />
and sensory abnormalities that affect<br />
the ways people with autism process<br />
and interpret stimuli in the environment.<br />
Through careful selection of design<br />
elements, triggers that lead to agitation<br />
or increased anxiety can be reduced.<br />
Adult residents living with autism<br />
may demonstrate underdeveloped or<br />
overdeveloped sensitivities to stimulation,<br />
resulting in adverse reactions to<br />
the presence or absence of certain visual<br />
details, colours, textures, noises or<br />
aromas. These triggers vary from one<br />
individual to another and so home environments<br />
may have to provide ranges of<br />
stimulation.<br />
People with autism can be particularly<br />
sensitive about the amount of personal<br />
space they occupy in group situations<br />
and may feel threatened if distances are<br />
insufficient. When overwhelmed, they<br />
may need to retreat to a private space.<br />
Robustness. People with autism<br />
can make unexpected, spontaneous<br />
movements or lack an appropriate fear<br />
of danger. They can also show an underdeveloped<br />
sensitivity to temperature or<br />
pain. These characteristics mean there<br />
can be significant risk to residents and<br />
staff and preventative actions many need<br />
to be taken to protect them from injury.<br />
Overtly protective features such as wall<br />
guards can look institutional and create<br />
a sense of containment or become<br />
the targets of challenging behaviour.<br />
feature living with autism<br />
Therefore, the specifications of safe, durable<br />
environments need to be balanced<br />
with the aim of providing aesthetically<br />
pleasing, homelike accommodation.<br />
People with autism can lose confidence<br />
quickly. If their home environment<br />
and the objects within are designed<br />
to withstand heavy or unintended use,<br />
both the physical and emotional impact<br />
on residents can be lessened and they<br />
will be more likely to engage in household<br />
activities. Residents can be further<br />
helped to complete tasks necessary for<br />
daily living by designing environments<br />
that are easy to clean and repair. This<br />
has the added benefit of giving staff more<br />
time to support residents in these activities<br />
and in developing skills for independent<br />
living.<br />
Support tools. While supportedliving<br />
residences are people’s homes,<br />
they are also places of work. The design<br />
of these buildings affects the quality of<br />
service and contributes to staff morale.<br />
People with autism have difficulties<br />
in conveying their wishes and feelings<br />
and in understanding verbal and gestural<br />
communications, which impacts<br />
on the relationship between them and<br />
support workers. By embedding nonverbal<br />
communication systems in home<br />
NOT FORGOTTEN<br />
If you care about someone with <strong>Autism</strong>, please help us to help them!<br />
In order to successfully advocate for adults with <strong>Autism</strong> and Aspergers we need you to add your voice.<br />
Go to our website www.autismontario.com/adults and fill out the “Count Me In” registration form. This registry consists of adults<br />
living with ASD in <strong>Ontario</strong>, their family members, their supporters and their service providers.<br />
Numbers are powerful tools<br />
to take to <strong>Ontario</strong> Government<br />
leaders. Please don’t<br />
wait, complete the form<br />
today.<br />
Those who need services<br />
and supports are counting<br />
on you!<br />
<strong>Ontario</strong> Partnership for<br />
Adults with Aspergers and <strong>Autism</strong><br />
COUNT ME IN!<br />
<strong>Autism</strong>ONTARIO<br />
FALL 2011 <strong><strong>Autism</strong>MATTERS</strong> 17
noteworthy feature living news with + autism views<br />
Concept plan for residential home for four residents<br />
environments, interactions between<br />
staff and residents can be rendered more<br />
meaningful and purposeful.<br />
Designing environments and the objects<br />
within in a way that helps residents<br />
better understand how their actions relate<br />
to outcomes can motivate them and<br />
make daily activities more manageable.<br />
As such, employing Norman’s design<br />
principles of feedback and natural mapping<br />
4 may have particular benefit for<br />
people with autism.<br />
If sufficient space is provided for staff<br />
to give one-to-one support, then residents<br />
are more likely to carry out household<br />
tasks. Embedding buildings with<br />
sensor technologies and clear sightlines<br />
can help staff to monitor residents from<br />
a distance without making them feel like<br />
they are constantly being watched. For<br />
residents who physically need more personal<br />
space, this may help to reduce their<br />
anxiety.<br />
Design guide and concepts<br />
Recommendations for the design of residential<br />
buildings for adults with autism<br />
have been published in the handbook<br />
Living in the Community, which is available<br />
upon request from Kingwood or<br />
the Royal College of Art Helen Hamlyn<br />
Centre.<br />
The publication contains concepts<br />
to illustrate some the design guidance<br />
and provide ideas for the layout (above),<br />
main living spaces such as the kitchen,<br />
bedroom and dining area and facilities<br />
such as bathrooms and toilets. These<br />
concepts are not presented as a universal<br />
design of housing for adults with autism.<br />
Meaningful design solutions can best<br />
be achieved by responding to the context<br />
of a building site and specific requirements<br />
of its residents.<br />
Conclusions<br />
The main contribution of this study is a<br />
set of design themes that can be used as<br />
a framework for generating concepts and<br />
making planning decisions for residential<br />
buildings for adults with autism.<br />
Design guidance has also been developed<br />
and is intended for use by planners,<br />
housing providers, architects and<br />
designers. Many of the ideas are drawn<br />
from the evidence of working schemes<br />
that are currently in existence, while others<br />
are potential solutions that have yet<br />
to be validated.<br />
As with most of the literature on<br />
autism and the built environment, this<br />
study has attributed observed patterns<br />
of behaviour to certain design decisions.<br />
In many cases, links between design elements<br />
and improvements in behaviour<br />
such as enhanced levels of confidence or<br />
social interaction, have been interpreted<br />
rather than measured.<br />
Recommendations presented in<br />
Living in the Community are expected to<br />
bring benefit. However to validate their<br />
impact and quantify how the design of<br />
individual design elements affect adults<br />
with autism, baseline or intervention<br />
studies are required.<br />
A large number of unmet design<br />
challenges emerged from this study, particularly<br />
with regard to how communication,<br />
sensory integration, and control of<br />
environments in domestic settings might<br />
be improved. More research needs to be<br />
done to understand ways in which people<br />
living with autism perceive spatial relationships<br />
and connect contextual information<br />
with detail information.<br />
This work might inform future studies<br />
that investigate how architectural<br />
principles and elements, such as colour<br />
and texture or embedded technologies,<br />
could be used to help adults with autism<br />
improve perception and understanding<br />
of their domestic environments and the<br />
objects within.<br />
The next phase of this project, taking<br />
place between October 2010 and<br />
September 2011, will focus on the detailed<br />
design of different spaces within<br />
residential buildings. Prototypes will be<br />
developed and tested to evaluate some of<br />
the ideas produced in this study.<br />
The design of residential buildings<br />
clearly makes a difference to the quality<br />
of life of adults with autism, but should<br />
not be considered in isolation. A holistic<br />
approach should be taken that includes<br />
the design of people-centred support<br />
plans, models for financing accommodation,<br />
inclusion in the community as well<br />
as meaningful employment and help developing<br />
friendships, relationships and<br />
interests that bring meaning and purpose<br />
to everyday life.<br />
No singular model of housing or<br />
support will meet all the needs of this<br />
population. Planners and design professionals<br />
are encouraged to stay up to<br />
date on literature in the field and consult<br />
adults with autism, their families and service<br />
providers to meet their individual<br />
condition and circumstances.<br />
18 <strong><strong>Autism</strong>MATTERS</strong> FALL 2011
Research partners<br />
A registered charity since November<br />
1994, Kingwood has worked steadily to<br />
provide a new approach to support for<br />
people with autism and Asperger’s. In<br />
ordinary houses, close to local shops and<br />
services, individuals and small groups of<br />
people are helped to take control of their<br />
lives and to develop interests and skills<br />
through which they may begin to reduce<br />
the most disabling aspects of their condition.<br />
Kingwood’s goal is to provide a<br />
full life within the community for people<br />
with autism and Asperger’s.<br />
The Helen Hamlyn Centre provides<br />
a focus for people-centred design research<br />
and innovation at the Royal College of<br />
Art, London. Originally founded in 1991<br />
to explore the design implications of an<br />
ageing society, the centre now works<br />
to advance a socially inclusive approach<br />
to design through practical research<br />
and projects with industry. Its Research<br />
Associates programme teams new RCA<br />
graduates with business and voluntary<br />
sector partners.<br />
BEING is a specialist business design<br />
consultancy that helps organisations<br />
in the public, private or charitable sectors<br />
achieve their goals through the effective<br />
application and management of design.<br />
Author<br />
Andrew Brand is a chartered mechanical<br />
engineer and a founding member of<br />
Squease, a start-up company which is developing<br />
smart clothing for people with<br />
autism, and the design collective BREAD.<br />
He holds Masters degrees in engineering<br />
from Loughborough University and in<br />
industrial design engineering from the<br />
Royal College of Art. <br />
feature living with autism<br />
Circulation space of supported living residence<br />
References<br />
1. Barnard J, Harvey V, Potter D, Prior A. Ignored or<br />
Ineligible The reality of adults with autism spectrum<br />
disorders. London: The National Autistic Society;<br />
2001.<br />
2. Heller T, Miller AB, Factor A. Environmental<br />
characteristics of nursing homes and communitybased<br />
settings, and the well-being of adults with<br />
intellectual disability. Journal of Intellectual Disability<br />
Research 1998; 42(5):418-428.<br />
3. An age suit recreates physical aspects of old age<br />
including: restricted joint movement, restricted neck<br />
movement, impaired vision and reduced dexterity of<br />
the hands and sensitivity of the fingertips.<br />
4. Norman D. The Design of Everyday Things. London:<br />
MIT Press; 1989.<br />
Bibliography<br />
Baird G, Simonoff E, Pickles A, Chandler S, Loucas T,<br />
Meldrum D, Charman T. Prevalence of Disorders<br />
of the <strong>Autism</strong> Spectrum in a Population Cohort<br />
of Children in South Thames: The Special Needs<br />
and <strong>Autism</strong> Project (SNAP). The Lancet 2006;<br />
368(9531):210-215.<br />
Beaver C. Breaking the Mould. Communication 2003;<br />
37(3):40.<br />
Beaver C. Designing Environments for Children and Adults<br />
with ASD. Paper delivered at 2nd World <strong>Autism</strong><br />
Congress and Exhibition, South Africa; 2006.<br />
Brugha T et al. <strong>Autism</strong> Spectrum Disorders in Adults Living<br />
in Households throughout England. NHS Information<br />
Centre; 2009.<br />
Burn R. The Leca Project: Learning environments for<br />
children with autism. Research <strong>Autism</strong> 2008.<br />
Charras K. Environnement et Santé Mentale: Des<br />
conceptions psycho-environnementales de la<br />
maladie d’Alzheimer à la définition de paramètres<br />
environnementaux pour une prise en charge adaptée<br />
des personnes avec autism. Paris: Université Paris<br />
Descartes; 2008.<br />
Department of Health. Care Homes for Younger Adults<br />
and Adult Placements. National Minimum Standards,<br />
Department of Health; 2002. Available at www.doh.<br />
gov.uk/ncsc.<br />
Department for Children, Schools and Families.<br />
Designing for Disabled Children and Children with<br />
Special Educational Needs. Building Bulletin 102 2008.<br />
Dunn W. The Impact of Sensory Processing Abilities on<br />
the Daily Lives of Young Children and their Families:<br />
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9(4):23-35.<br />
Frith U. <strong>Autism</strong>: A Very Short Introduction. Oxford:<br />
Oxford University Press; 2008.<br />
Harker M, King N. Designing for Special Needs. London:<br />
RIBA Books; 2002.<br />
Harker M, King N. Tomorrow’s Big Problem: Housing<br />
options for people with autism. London: The National<br />
Autistic Society; 2004.<br />
Helfin L, Alberto R. Establishing a Behavioural Context<br />
for Learning for Students with <strong>Autism</strong>. Focus on<br />
<strong>Autism</strong> and Other Developmental Disabilities 2001;<br />
16(2):93-101.<br />
Humphreys S. <strong>Autism</strong> and Architecture. <strong>Autism</strong> London<br />
Bulletin Feb-Mar 2005; pp.7-8.<br />
Magda M. An Architecture for <strong>Autism</strong>: Concepts of<br />
design intervention for the autistic user. Archnet-IJAR<br />
2008; 2(1):189-211.<br />
National Autistic Society. Creating autism friendly spaces.<br />
Available at www.autism.org.uk (accessed Aug 2010).<br />
Norman D. The Design of Everyday Things. London: MIT<br />
Press; 1989.<br />
Nguye A. Environment and Surroundings: How to make<br />
them autism-friendly. London: The National Autistic<br />
Society; 2006.<br />
O’Neill J. Through the Eyes of Aliens. Philadelphia PA:<br />
Jessica Kingsley Publishers; 1998.<br />
Resnik DD, Blackbourn J. Opening Doors: A discussion<br />
of residential options for adults living with autism and<br />
related disorders. Collaborative report by the Urban<br />
Land Institute Arizona, Southwest <strong>Autism</strong> Research<br />
& Resource Center and Arizona State University;<br />
2009.<br />
Scott I. Designing Learning Spaces for Children on the<br />
<strong>Autism</strong> Spectrum. Good <strong>Autism</strong> Practice 2009;10(1):<br />
36-51.<br />
Sergeant L, Dewsbury G, Johnstone S. Supporting<br />
People with Complex Behavioural Difficulties and<br />
Autistic Spectrum Disorder in a Community Setting:<br />
An inclusive approach. Housing, Care and Support<br />
2007; 10(1):23-30.<br />
Tomchek SD, Dunn W. Sensory Processing in Children<br />
with and without <strong>Autism</strong>: A comparative study<br />
using the short sensory profile. American Journal of<br />
Occupational Therapy 2007; 61(2):190-200.<br />
University of North Carolina School of Medicine.<br />
Introduction to TEACCH. Available at www.teacch.<br />
com (accessed Aug 2010).<br />
Vogel C. Classroom Design for Living and Learning with<br />
<strong>Autism</strong>. <strong>Autism</strong> Asperger’s Digest 2008; pp30-33.<br />
Webb T. A is for <strong>Autism</strong>. Channel 4, BFI Video Publishing;<br />
1992.<br />
Whitehurst T. Evaluation of Features Specific to an<br />
ASD Designed Living Accommodation. Designing living<br />
and learning environments for children with autism.<br />
Stourbridge UK: Sunfield; 2006.<br />
Whitehurst T. The Impact of Building Design on<br />
Children with Autistic Spectrum Disorders. Good<br />
<strong>Autism</strong> Practice 2006; 7(1):31-42.<br />
Ziesel J. Inquiry by Design: Environment/behavior/<br />
neuroscience in architecture, interiors, landscape, and<br />
planning (revised edition). New York: WW Norton;<br />
2006.<br />
Zeisel J, Hyde J, Levkoff S. Best practises: An<br />
environmental-behaviour (e-b) model for Alzheimer<br />
Special care units. American Journal of Alzheimer’s<br />
Disease 1997; 9(2):3-21.<br />
FALL 2011 <strong><strong>Autism</strong>MATTERS</strong> 19
info autisme<br />
À propos des emplois<br />
J’ai fait plusieurs différents CO-OPS<br />
par Richard Verville<br />
Je m’appelle Richard. J’ai 20 ans.<br />
Ceci est ma dernière année d’école.<br />
Pour me préparer à la vraie vie,<br />
j’ai fait plusieurs différents CO-OPS à<br />
l’extérieur de l’école.<br />
a) 4 magasins : Fortino’s, Canadian<br />
Tire, PJ’s Pet Center, Home<br />
Depot.<br />
b) Un gym : Goodlife Fitness.<br />
c) Une compagnie de courrier :<br />
Good Foot Delivery<br />
d) Aux étables : CARD (Community<br />
Association for Riding for the Disabled)<br />
Dans plusieurs magasins j’ai fait la<br />
même chose: prendre des boîtes en haut<br />
20 <strong><strong>Autism</strong>MATTERS</strong> AUTOMNE 2011<br />
de l’étagère pour vérifier des objets en<br />
ordre numérique avant de classer ensuite<br />
classer aux bonnes places en ordre numérique<br />
pour la vente, les boîtes vides de<br />
mettre dans un chariot pour mettre dans<br />
une machine à recyclage et peser sur un<br />
bouton START pour écraser et pousser<br />
les boîtes vides. J’ai aimé mon travail à<br />
Home Depot, cela m’intéresse et apprendre<br />
grâce une machine à recycler<br />
pour mon fonctionnement et placer des<br />
objets en ordre numérique pour la vente.<br />
Au magasin des animaux PJ Pet’s<br />
Centre, j’ai fait nourrir des animaux qui<br />
vivent dans des aquariums, servir à boire<br />
aux reptiles et donner du manger aux<br />
poissons aussi j’ai nettoyé des aquariums<br />
des poissons. Ceci j’ai aimé cette expérience<br />
puis aussi j’ai appris à nourrir des<br />
poissons à l’école comme habileté de vie.<br />
À Goodlife Fitness, j’ai fait du lavage<br />
des serviettes et de les plier après, ensuite<br />
classer des documents dans des plusieurs<br />
dossiers de Goodlife. Ceci m’intéresse<br />
parce que j’ai appris pour l’école et la<br />
maison.<br />
À Good Foot Delivery, on a voyagé<br />
en TTC pour envoyer des livraisons du<br />
courrier et aussi j’ai participé aux activités<br />
du YOGA puis ensuite on a été à Foot<br />
Chair pour se servir du manger gratuitement<br />
dans une cafétéria pour chaque<br />
mardi et jeudi. Ceci j’ai plus d’intérêt<br />
parce que j’ai voyagé partout en TTC<br />
pour envoyer des courriers partout au<br />
Centre-Ville. Par rapport en TTC, j’en<br />
connaissais bien mes routes par cœur,<br />
on a commencé d’acheter ma carte de<br />
METRO PASS. Ensuite j’ai appris à<br />
utiliser TTC de chez moi jusqu’au travail.<br />
Puis je me sens capable d’y rendre<br />
tout seul comme un professionnel et un<br />
adulte pour arriver à l’indépendance.<br />
À CARD, j’ai lavé les seaux des chevaux<br />
ensuite j’ai fait du lavage et sécher<br />
des linges puis les plier correctement. J’ai<br />
ramassé les excréments des chevaux avec<br />
une pelle pour herbe. Puis ensuite j’ai<br />
lavé les colliers pour tenir des chevaux<br />
et les bancs pour s’asseoir à cheval surtout<br />
j’ai brossé les chevaux deux fois par<br />
semaine. Ceci m’intéresse moins parce<br />
que j’aimerais ne pas trop rapprocher des<br />
chevaux sinon ils vont te botter peut-être<br />
et ça va faire très mal par exemple.<br />
Tous mes CO-OPS deviennent<br />
facile et m’ont aidé à d’être capable et<br />
adulte.<br />
C’est maintenant la fin de l’année et<br />
j’ai fini l’école secondaire et mes co-ops.<br />
L’année prochaine j’aurai des emplois<br />
payants parce que l’année prochaine<br />
je ne suis plus ici. Pour venir à<br />
l’indépendance, j’irais dans la communauté<br />
pour avoir un emploi pour travailler<br />
puis faire des salaires.<br />
Je me sens prêt.
info autisme<br />
J’ai couru avec un enfant<br />
par Ginette Pilon-Major<br />
J’ai la chance d’enseigner dans une école<br />
élémentaire. Cette école est une microsociété.<br />
Et cette microsociété est composée<br />
de personnes toutes aussi intéressantes<br />
les unes que les autres… Je les côtoie à<br />
tous les jours. Quel bonheur!<br />
Une partie de ma responsabilité<br />
consiste à « surveiller » les enfants qui<br />
jouent dans la cour de récréation. Cela<br />
fait plusieurs fois que je m’y retrouve et<br />
que j’observe un enfant courir en formant<br />
un triangle. Il rit tout au long… Je<br />
lui dis bonjour quand je le vois et il ne<br />
me répond pas… Je devine que nous ne<br />
parlons pas le même langage. J’ai donc<br />
essayé de parler le sien.<br />
Les élèves sont devenus assez habiles<br />
à résoudre leurs propres conflits. Jeudi<br />
passé, j’ai donc senti que je pouvais me<br />
permettre de m’amuser. Je me suis dirigée<br />
vers mon ami A. et je lui ai dit : « Tu<br />
es le chef, je te suis. Et lorsqu’il s’est mis<br />
à courir, je l’ai suivi. J’ai suivi sa piste en<br />
forme de triangle, j’ai frappé la clôture<br />
avec mon dos, pour faire comme lui, et<br />
j’ai éclaté de rire comme lui. Et alors que<br />
nous retournions à notre point de destination,<br />
je disais en riant : « Ah que je suis<br />
fatiguée! », ce qu’il répétait.<br />
Une de mes élèves nous voyant faire,<br />
est venue me demander si elle pouvait<br />
jouer elle aussi et elle a voulu connaître<br />
le jeu. Je lui ai dit que mon ami A était<br />
le chef et que nous devions le suivre. Ce<br />
qu’elle a fait avec moi. Quelques minutes<br />
plus tard, c’est une autre de mes élèves<br />
qui est venue courir avec nous. Vous<br />
pouvez peut-être vous imaginer la scène.<br />
D’autres nous regardaient courir le<br />
sourire aux lèvres parce que nous avions<br />
énormément de plaisir. (Heureusement,<br />
tout de même, que la récréation ne dure<br />
Félicitations à Valérie Guet,<br />
gagnante du tirage d’un iPod<br />
touch! À voir la mine réjouie<br />
de Benjamin, on comprend<br />
que maman lui en a fait<br />
cadeau. Le chanceux!<br />
que 15 minutes parce que je devenais de<br />
plus en plus essoufflée.)<br />
La première amie qui est venue nous<br />
rejoindre a demandé d’être le chef à son<br />
tour. J’aime tellement lorsque les enfants<br />
demandent quelque chose parce qu’ils<br />
nous permettent d’expérimenter. Je me<br />
suis retournée vers mon ami A et je lui<br />
ai dit : « S est maintenant le chef. Nous<br />
allons la suivre. » Et elle est partie…<br />
Et nous l’avons tous suivie, moi, mon<br />
ami A et l’autre amie qui s’était jointe à<br />
nous. Mais S a changé la trajectoire…<br />
Notre ami A ne nous a pas suivis… Il<br />
n’était pas avec nous au point de destination.<br />
Nous nous sommes donc posé des<br />
questions : « Pourquoi n’est-il pas ici<br />
Où est-il Qu’allons-nous faire »<br />
Nous avons décidé qu’il serait le chef<br />
pour le reste de la récréation. Et nous<br />
avons continué à le suivre en nous amusant<br />
« comme des enfants ».<br />
Et lorsque la cloche a sonné, il<br />
s’est arrêté et il est venu vers moi. Sans<br />
me regarder il m’a pris le bras avec les<br />
deux mains et il est resté ainsi pendant<br />
quelques instants. Et je suis restée là<br />
quelques instants avec lui. Nous avions<br />
réussi à communiquer… Nous avions<br />
parlé le même langage… J’en suis encore<br />
tellement touchée.<br />
Cette expérience m’a permis de<br />
grandir, mais je me pose encore énormément<br />
de questions. Quel est le langage<br />
des enfants Qu’essaient-ils de nous<br />
dire Pourquoi devons-nous absolument<br />
modifier leur trajectoire sans avoir vérifié<br />
auparavant les raisons qui les poussent<br />
à suivre cette voie Grâce à mon ami A,<br />
j’ai eu énormément de plaisir et certains<br />
de mes amis aussi. Je me suis aussi rendu<br />
compte que j’ai besoin de me mettre en<br />
forme.<br />
Je vais continuer à réfléchir à ces<br />
questions et j’espère que la prochaine fois<br />
que je surveillerai la cour de récréation,<br />
les élèves autour de moi pourront régler<br />
leurs propres conflits afin que je puisse<br />
m’amuser comme un enfant et surtout<br />
apprendre quelque chose de nouveau. <br />
AUTOMNE 2011 <strong><strong>Autism</strong>MATTERS</strong> 21
info autisme<br />
Directives pour<br />
l’utilisation efficace<br />
de logiciels éducatifs<br />
avec des élèves ayant<br />
un trouble du spectre<br />
de l’autisme et/ou<br />
d’autres troubles du<br />
développement<br />
par Leslie Broun, M.Ed.<br />
Texte adapté de l’ouvrage de Leslie Broun,<br />
M.ED., intitulé Guidelines for the Effective<br />
Use of Educational Software with Students<br />
who have <strong>Autism</strong> Spectrum Disorders and/<br />
or other Developmental Disabilities.<br />
Le logiciel éducatif peut être un élément précieux dans l’éventail de méthodes<br />
et de matériel pédagogiques utilisés pour enseigner à des élèves ayant un<br />
trouble du spectre de l’autisme (TSA) et/ou d’autres troubles du développement.<br />
Lorsqu’ils ont à prendre des décisions concernant l’accessibilité à l’ordinateur et le<br />
genre de logiciels à utiliser, les parents et les éducateurs doivent tenir compte de certains<br />
facteurs qui ont trait à la façon dont leur enfant ou leur élève réagit et interagit<br />
avec les ordinateurs :<br />
• L’écran de l’ordinateur est un médium qui permet à l’élève de prendre conscience<br />
de sa capacité d’utiliser le mode visuel.<br />
• Les programmes d’ordinateur offrent des possibilités illimitées de réviser des<br />
concepts. Les essais répétés fournissent des occasions de peaufiner ou de consolider<br />
une séquence de tâches ou d’habiletés.<br />
• Les logiciels créés à l’intention des élèves qui ont des difficultés d’apprentissage<br />
se caractérisent généralement par l’uniformité linguistique des instructions et des<br />
routines de programme ainsi que par la prévisibilité du mode de présentation des<br />
exercices.<br />
• La plupart des logiciels éducatifs suppriment la nécessité d’utiliser un crayon,<br />
en particulier dans le domaine des mathématiques. Les élèves ayant un TSA et<br />
d’autres troubles du développement ont souvent beaucoup de difficulté à utiliser<br />
un outil de marquage, et cette difficulté peut nuire sérieusement à leur<br />
capacité d’accomplir des tâches. Lorsque le crayon est retiré de l’expérience<br />
d’apprentissage, l’élève a tout loisir de concentrer son énergie cognitive sur la<br />
tâche à réaliser au lieu de peiner à former des chiffres ou des lettres.<br />
• L’utilisation d’un logiciel éducatif permet de centrer l’expérience pédagogique<br />
sur des éléments précis.<br />
• Lorsque le même logiciel est utilisé et à l’école et à la maison, l’élève a parfois<br />
plus de facilité à généraliser l’information.<br />
En permettant à un élève de réaliser un apprentissage à l’aide d’un logiciel,<br />
l’enseignant ou le parent ne restreint pas l’expérience sociale de l’enfant, mais renforce<br />
plutôt la possibilité d’apprentissage qui lui est offerte. En effet, l’élève ayant<br />
un TSA, qui est constamment confronté à ses difficultés d’interaction sociale durant<br />
l’expérience d’apprentissage, peut être incapable de se concentrer, ni sur<br />
l’apprentissage ni sur l’interaction sociale. Lorsqu’une activité pédagogique vise<br />
l’acquisition de compétences, il se peut que l’élève apprenne mieux si les autres distractions<br />
sont éliminées de façon à ce qu’il puisse se concentrer sur l’apprentissage.<br />
Les enseignants peuvent effectuer un certain nombre de démarches préparatoires qui<br />
aideront les élèves à participer à l’activité d’apprentissage au meilleur de leur capacité<br />
22 <strong><strong>Autism</strong>MATTERS</strong> AUTOMNE 2011
et en comprenant bien ce que l’on attend<br />
d’eux.<br />
• Choisissez avec soin et en toute connaissance<br />
de cause le logiciel que<br />
vous comptez utiliser avec votre<br />
élève.<br />
Renseignez-vous auprès d’autres<br />
enseignants au sujet des logiciels<br />
que leurs élèves ont déjà utilisés.<br />
Consultez des catalogues et des<br />
brochures qui font la promotion<br />
de logiciels éducatifs.<br />
Visitez les sites Web de sociétés<br />
qui vendent des logiciels éducatifs.<br />
Bon nombre de ces sites<br />
proposent des téléchargements<br />
gratuits et/ou des vidéos de démonstration<br />
qui expliquent les<br />
logiciels et vous invitent à en<br />
faire l’essai. Certains sites offrent<br />
également des manuels<br />
d’utilisation des logiciels, qui<br />
peuvent être téléchargés.<br />
Demandez l’avis d’un distributeur<br />
de logiciels qui possède<br />
habituellement une connaissance<br />
approfondie des différents<br />
logiciels présentement disponibles<br />
sur le marché.<br />
Avant d’arrêter votre choix sur un<br />
logiciel, prenez le temps d’en prévisualiser<br />
les composantes. Vérifiez si<br />
l’emballage indique le niveau cognitif<br />
que doivent posséder les utilisateurs visés.<br />
Il faut absolument étudier le logiciel<br />
afin de déterminer lesquels de ses<br />
éléments conviennent à l’élève. Au cours<br />
de ce processus, il y a des questions importantes<br />
à poser :<br />
Est-ce que l’élève possède les<br />
capacités requises pour utiliser<br />
adéquatement le logiciel<br />
Quels sont les types de logiciels<br />
que l’élève a déjà utilisés et en<br />
quelles circonstances<br />
Comment l’élève a-t-il réagi aux<br />
autres logiciels<br />
Est-ce que certains éléments<br />
du logiciel pourraient être trop<br />
faciles ou trop difficiles pour<br />
l’élève<br />
Est-ce que le logiciel comprend<br />
des éléments audio Est-ce que<br />
les directives sont données verbalement<br />
Est-ce que l’élève<br />
possède des aptitudes de langage<br />
réceptif suffisantes pour<br />
comprendre les directives ou ces<br />
directives devront-elles être expliquées<br />
par un enseignant<br />
Est-ce que le logiciel comprend<br />
une composante de lecture<br />
Est-ce que l’élève possède des<br />
aptitudes à la lecture suffisantes<br />
pour utiliser efficacement le<br />
logiciel<br />
• Essayez de déterminer les fonctionnalités<br />
du logiciel qui sont les plus<br />
utiles pour les élèves ayant un TSA<br />
et/ou d’autres troubles du développement<br />
:<br />
Des images visuelles claires qui<br />
info autisme<br />
ne s’éloignent pas trop de la réalité<br />
: des photos ou des dessins<br />
précis.<br />
Des directives claires et bien<br />
articulées.<br />
Des directives comportant une<br />
seule étape, si possible.<br />
L’accès aux fonctions Pause et<br />
Répétition.<br />
Des tâches progressives qui ne<br />
deviennent pas trop complexes<br />
trop rapidement.<br />
Des tâches qui permettent à<br />
l’élève de travailler de manière<br />
autonome.<br />
• Vérifiez les exigences techniques du<br />
logiciel. Est-il possible de modifier<br />
les composantes techniques telles que<br />
la voix, le temps alloué entre les différentes<br />
tâches, la souris, l’écran tactile,<br />
le clavier ou la capacité de commutation<br />
Déterminez la méthode d’accès<br />
qui sera la plus efficiente pour votre<br />
élève.<br />
• Est-ce que le logiciel possède une<br />
composante « collecte de données »<br />
Est-ce qu’elle peut être imprimée<br />
Est-ce que l’élève peut participer à<br />
son propre processus de collecte de<br />
données<br />
Les logiciels dont la conception est basée<br />
sur le style d’apprentissage des élèves<br />
ayant un TSA peuvent être extrêmement<br />
utiles dans le cadre d’un programme éducatif<br />
global et bien équilibré. <br />
Des ressources au service de la communauté<br />
À consulter absolument!<br />
<strong>Autism</strong>e <strong>Ontario</strong> a publié récemment un numéro spécial d’Info <strong>Autism</strong>e entièrement<br />
en français. Ce magazine constitue une ressource importante et regroupe des histoires<br />
inspirantes pour les familles et les professionnels. Celui-ci a été distribué dans les écoles<br />
de langue française et a été envoyé à des parents ainsi qu’à différents organismes.<br />
Nous avons écoulé les copies papier mais nous vous invitons à consulter la version<br />
électronique en ligne, à la section française du site www.autismontario.com. À noter<br />
que des feuillets informatifs appelés Conseils <strong>Autism</strong>e sont également accessibles au<br />
même endroit.<br />
Invitation à contribuer<br />
à notre magazine<br />
En prévision de futures publications<br />
d’Info <strong>Autism</strong>e, nous vous invitons<br />
à nous soumettre des articles, des<br />
lettres d’opinion, des suggestions,<br />
etc. aux coordonnées suivantes :<br />
rpcfrancais@autismontario.com ou<br />
1-800-472-7789, poste 240.<br />
AUTOMNE 2011 <strong><strong>Autism</strong>MATTERS</strong> 23
info autisme<br />
Les modifications de<br />
l’aménagement physique en<br />
classe distincte<br />
par Mélissa Balthazar<br />
Quand arrive septembre, les pédagogues ont une vision bien dressée de<br />
leur nouvelle salle de classe! Cependant, quand il s’agit d’un classe distincte TSA,<br />
l’organisation n’est pas la même qu’une classe typique! Certes, les éléments peuvent<br />
être présents, mais ils seront organisés de façon bien différente. Il est important<br />
d’aménager la salle de classe en fonction des besoins précis de chaque élève. Dans<br />
certains cas, il suffira même d’organiser différents coins d’apprentissage, de loisir et<br />
d’activités propices et adaptés pour chaque élève.<br />
Il doit y avoir mille et une façons d’organiser une salle de classe pour des élèves<br />
ayant un TSA. Cependant, les exemples que je mentionnerai pourront vous donner<br />
une idée, qui vous inspirera à trouver des stratégies gagnantes pour l’aménagement<br />
physique de votre salle de classe. Notez bien que la préparation de votre classe sera<br />
dépendante de plusieurs facteurs, dont le niveau d’âge, le profil de vos élèves, leurs<br />
besoins, leurs forces, leurs intérêts et les buts annuels que vous allez viser à atteindre<br />
dans leur plan d’enseignement individualisé (PEI), etc. Le défi survient parfois<br />
lorsque vous enseignez dans une classe à âges multiples, une classe avec des élèves<br />
ayant des profils bien différents l’un de l’autre ou une classe régulière avec un élève<br />
ayant un TSA. Bref, peu importe le regroupement d’élèves que vous avez, il n’y existe<br />
pas de classe homogène.<br />
En tenant compte des besoins de vos élèves, il serait inacceptable d’avoir des<br />
tables et des chaises trop grandes pour des enfants du préparatoire, tout comme il ne<br />
serait pas acceptable d’avoir des oursons en peluche pour des adolescents dans leur<br />
coin de loisir! Il y a toujours moyen d’adapter le milieu scolaire d’un élève. Toutefois,<br />
songez que chaque espace aménagé dans la classe doit y avoir un but et une utilisation<br />
précise pour chaque élève.<br />
Les activités de groupe sont parfois nombreuses et elles se déroulent à différentes<br />
occasions de la journée. Prévoyez des tables en formes de « U » pour les élèves au<br />
préparatoire et primaire, afin d’organiser les périodes de la causerie, de communication,<br />
de musique, de bricolages, de motricité fine, d’activité de<br />
cuisine, de collations, etc. Ces tables vous permettront d’avoir<br />
une proximité avec vos élèves et vous aurez l’occasion de mieux<br />
cerner leurs besoins pendant l’animation de l’activité en cours.<br />
C’est ainsi que vous pourrez travailler les attentes de proximité<br />
avec les autres, tels que de rester assis, avoir une bonne posture<br />
sur une chaise, etc. Identifiez la chaise et la partie de la table<br />
où les élèves vont s’asseoir avec leur prénom et leur photo. Les<br />
élèves plus âgés pourront apprendre à exécuter des activités de<br />
groupe sur une table ronde ou s’asseoir en arc sur une chaise en<br />
face d’un tableau.<br />
Les coins et les ateliers de travail autonome sont généralement<br />
placés en face d’un mur de sorte que l’élève ne se<br />
24 <strong><strong>Autism</strong>MATTERS</strong> AUTOMNE 2011
info autisme<br />
Crédit photo: MediaBakery/MED0000658<br />
laisse pas distraire par ce qui se passe<br />
devant lui, telle que dans une classe typique<br />
avec un pupitre. Notez bien qu’il<br />
ne faut pas aménager le pupitre d’un<br />
élève ayant un TSA face à un mur s’il est<br />
en classe régulière. L’intégration d’un<br />
élève ayant un TSA en classe régulière<br />
vise l’inclusion et non l’exclusion. Les<br />
modifications seront donc de nature<br />
pédagogique et non physique (ex : pictogramme<br />
« Rester assis » collé sur le<br />
pupitre d’un élève). En classe distincte<br />
TSA, les ateliers de travail peuvent être<br />
organisés sur une étagère où l’élève doit<br />
aller identifier son travail avec un pictogramme,<br />
une forme, un jeton, un chiffre,<br />
etc. Il faut toujours miser l’autonomie<br />
lorsque l’élève exécute son travail, donc<br />
fournissez-lui les outils nécessaires afin<br />
qu’il complète son travail avec le minimum<br />
d’aide possible de l’intervenant.<br />
Le coin de jeux est un lieu où les<br />
élèves devraient être en mesure de jouer<br />
en dyade ou même à trois. Déterminez<br />
d’abord le but de votre coin de jeux. Ceci<br />
vous aidera à mieux l’aménager. Est-ce<br />
que c’est pour apprendre à jouer en parallèle<br />
ou ensemble Est-ce pour explorer<br />
les objets Est-ce pour se divertir,<br />
etc. Lorsque votre but est précis, vous<br />
aurez une vision plus déterminée de votre<br />
coin de jeux. Prévoyez une table avec des<br />
chaises, des objets sensoriels, des jouets<br />
sonores, des ballons thérapeutiques, un<br />
miroir à reflet exagéré, des affiches de<br />
personnages fictifs, un petit trampoline,<br />
Liste d’envoi<br />
Si vous souhaitez faire partie de notre liste d’envoi<br />
EN FRANÇAIS et recevoir notre bulletin de nouvelles<br />
de même que des nouvelles relatives à<br />
l’autisme, veuillez nous contacter au rpcfrancais@<br />
autismontario.com ou 1-800-472-7789, poste 240.<br />
etc. Pour des élèves plus âgés, il s’agira<br />
plutôt d’un coin de loisir où ils pourront<br />
se divertir, apprendre à jouer des jeux<br />
de société, regarder des collections de<br />
cartes de hockey, tourner des pages de<br />
revues, etc. Il sera libre à vous et à votre<br />
équipe de décider si le coin de jeux sera<br />
disponible suite à un travail, pendant les<br />
transitions d’activités ou comme choix de<br />
récompense.<br />
Le coin de lecture peut être aménagé<br />
comme une petite bibliothèque avec<br />
une étagère et une table. Cependant,<br />
il peut être un lieu muni d’un petit divan<br />
confortable avec un grand panier de<br />
livres. Choisissez toujours des livres appropriés<br />
pour votre clientèle. Pour les<br />
plus petits, favorisez les livres colorés, à<br />
grandes images, des livres audio, en toile<br />
ou même en plastique. Les plus grands<br />
s’intéressent souvent aux bandes dessinés<br />
et aux romans. Vous pourrez même créer<br />
en équipe des livres ayant des histoires<br />
sociales, des photos avec les intervenants<br />
et les élèves de la classe, de photos sorties<br />
de classe, des règlements d’école, etc. Les<br />
élèves peuvent démontrer leur capacité<br />
à regarder les images d’un livre, tourner<br />
les pages de gauche à droite, s’abstenir de<br />
déchirer les pages, etc.<br />
Le coin de relaxation est bénéfique<br />
pour certains élèves qui souffrent<br />
d’anxiété ou qui ont besoin d’une pause<br />
en cours de journée. Vous pourrez<br />
aménager ce coin avec une bascule,<br />
une couverture mince en velours, un<br />
aquarium lumineux, etc. Utilisez ce coin<br />
suite à des activités mouvementées telles<br />
que, l’éducation physique, etc.<br />
Le poste d’écoute est un lieu où<br />
les élèves peuvent être installés seul<br />
ou en équipe de deux. Mettez en place<br />
une table, un lecteur de CD, des écouteurs,<br />
des instruments jouets, des livres.<br />
Certains élèves pourraient choisir et explorer<br />
différents styles de musique pendant<br />
leur période au poste d’écoute. Les<br />
plus jeunes s’intéressent à la musique répétitive,<br />
rythmée et ayant des variations<br />
divers dans la chanson. Il est important<br />
que vous ayez le contrôle du volume<br />
de l’appareil auditif, afin que les élèves<br />
n’abîment pas leur tympan. Certains<br />
élèves préfèrent des écouteurs à coussinets,<br />
d’autres ne peuvent pas en supporter<br />
sur la tête. De ce fait, préparez le<br />
poste d’écoute en conséquence.<br />
Comme déjà mentionné, il y a plusieurs<br />
façons d’aménager, de décorer et<br />
de préparer sa salle de classe pour une<br />
clientèle autiste. Dans certaines classes<br />
on y retrouve des coins de motricité globale<br />
avec une bicyclette d’exercice, des<br />
coins informatiques, des coins d’habileté<br />
de vie quotidienne, etc. Souvenez-vous<br />
que, votre classe accueillera des élèves<br />
en difficultés alors essayez de créer un<br />
milieu favorable qui leur permettra de<br />
s’épanouir tout en apprenant de nouvelles<br />
habiletés. <br />
AUTOMNE 2011 <strong><strong>Autism</strong>MATTERS</strong> 25
info autisme<br />
Postdiplôme : <strong>Autism</strong>e et<br />
sciences du comportement<br />
Hélène Boisvert<br />
Coordonnatrice/professeure<br />
<strong>Autism</strong>e et sciences du comportement<br />
Institut des services d’urgence et des sciences<br />
humaines<br />
La cité collégiale<br />
801, promenade de l’Aviation<br />
Ottawa (<strong>Ontario</strong>) K1K 4R3<br />
Tél. : (613)742-2493 poste 2384<br />
Téléc. :(613)742-2467<br />
hboisv@lacitec.on.ca<br />
Depuis maintenant six ans, La Cité collégiale est le seul collège francophone<br />
à offrir une formation en <strong>Autism</strong>e et sciences du comportement. Nous<br />
sommes fiers de pouvoir dire que nous participons à la mise en œuvre du plan du<br />
ministère de l’Éducation de l’<strong>Ontario</strong> relatif au soutien d’élèves ayant un trouble du<br />
spectre autistique. Entre autres, le Ministère dit vouloir augmenter le nombre de<br />
professionnels spécialisés en autisme recevant un diplôme du programme ontarien<br />
de certificat collégial.<br />
La Cité collégiale prépare ses étudiants à œuvrer auprès d’enfants ayant un<br />
trouble du spectre autistique comme thérapeute instructeur dans un environnement<br />
d’intervention comportementale intensive ou dans un milieu scolaire. Les recherches<br />
les plus récentes suggèrent qu’il est possible de réduire l’écart dans la trajectoire<br />
développementale de l’apprentissage de la personne ayant un trouble du spectre autistique<br />
à la condition d’utiliser des techniques d’interventions fondées sur des données<br />
probantes.<br />
Le programme, d’une durée d’un an à temps complet (2 semestres), peut aussi<br />
être suivi à temps partiel. Il permet aux étudiants de parfaire leurs connaissances sur<br />
les stratégies d’enseignement destinées aux élèves ayant un trouble du spectre autistique.<br />
Le curriculum offert comprend notamment un cours d’introduction à l’analyse<br />
appliquée du comportement et deux stages (en agence et en milieu scolaire) dans le<br />
cadre desquels les étudiants mettent en pratique leurs connaissances et leurs habiletés.<br />
Les étudiants ont aussi l’occasion d’être certifiés en Intervention non violente<br />
en situation de crise. Somme toute, les étudiants diplômés du certificat postdiplôme<br />
en <strong>Autism</strong>e et sciences du comportement ont ce qu’il leur faut pour intervenir avec<br />
succès auprès des enfants et des adultes autistes. <br />
26 <strong><strong>Autism</strong>MATTERS</strong> AUTOMNE 2011
info autisme<br />
Plus qu’un tableau!<br />
par André Bentivoglio<br />
« Papa, peut-on m’installer un tableau blanc interactif dans ma chambre,<br />
comme dans ta classe » demande mon fils de 6 ans. En quelques minutes seulement,<br />
mon fils a compris les avantages du tableau Smartboard. À ses yeux, les sites<br />
Web, les jeux éducatifs, les jeux vidéo sont tous plus intéressants et attrayants sur<br />
un Smartboard. Il peut toucher directement les personnages, sélectionner des outils<br />
« pour vrai » et manipuler l’écran. L’interaction est directe entre lui et l’écran, plus<br />
besoin de souris.<br />
Sans trop s’en rendre compte, nos élèves assistent au transfert de l’écran tactile<br />
commercial dans les salles de classe. L’écran tactile, auparavant le joujou des grandes<br />
entreprises, commence à se propager dans les écoles (comme le Blackberry ou, avant<br />
celui-ci, le Treo). Mes propres enfants, 6 ans et 10 ans, possèdent des iPod touch et des<br />
Nintendo DSi – deux produits dotés d’écrans tactiles. Personnellement, j’ai utilisé un<br />
Palm Preo et deux générations d’iPhone (je m’apprête à me procurer un iPhone 5).<br />
Grâce à toutes ces expériences, l’interactivité directe avec l’écran est devenue naturelle<br />
pour moi. Montrez un iPad à un enfant de deux ans et voyez avec quelle facilité il<br />
« apprendra » à s’en servir. D’où vient l’idée de manipuler un troisième objet (clavier<br />
ou souris) pour contrôler ce qui est à l’écran À peine capable de s’asseoir, l’enfant<br />
peut tenir un iPod dans une main et utiliser son autre main pour faire éclater des<br />
bulles sur un iPhone. Il est donc logique que l’école se mette à utiliser des outils semblables<br />
quotidiennement, mais sur une échelle beaucoup plus grande.<br />
Le tableau interactif commence tout doucement à remplacer les tableaux traditionnels.<br />
De plus en plus souvent, les directions d’école s’en servent pour « vendre »<br />
leurs écoles high-tech aux élèves, aux parents et aux membres du personnel. Le tableau<br />
traditionnel nécessitait l’utilisation de craies qui faisaient énormément de poussière,<br />
et il était plutôt difficile à garder propre. Le tableau blanc effaçable à sec (white erase)<br />
était une amélioration puisqu’il éliminait la poussière et n’avait pas besoin d’être nettoyé<br />
avec une éponge humide. Cependant, comme les téléphones cellulaires de base,<br />
ils n’avaient qu’une fonction et étaient alors appelés dumb, ce qui signifie « non intelligent<br />
» en langage informatique. Le Smartboard a fait pour le tableau de classe ce que<br />
le iPhone a fait pour l’ancien téléphone cellulaire. On a oublié la fonction de base qui<br />
lui a donné naissance pour se concentrer sur ses autres possibilités : visionner un film,<br />
manipuler des logiciels avec nos mains, intégrer des photos, des vidéos dans nos leçons,<br />
imprimer instantanément ce qui vient d’être écrit, garder une copie et l’envoyer par<br />
courriel aux élèves, suivre une route réelle sur Google Maps... Le tableau interactif<br />
aide les enseignants à attirer l’attention des élèves et à augmenter leur concentration.<br />
Les élèves manifestent davantage d’intérêt pour le message, en particulier les apprenants<br />
visuels et ceux qui ont un trouble du spectre de l’autisme (TSA).<br />
AUTOMNE 2011 <strong><strong>Autism</strong>MATTERS</strong> 27
info autisme<br />
Les élèves ayant un TSA entrent<br />
souvent dans la catégorie des apprenants<br />
visuels. Cette facilité d’apprentissage visuel<br />
est en quelque sorte renforcée par<br />
le Smartboard puisque l’enseignant peut<br />
préparer le texte de sa leçon et les informations<br />
importantes à l’avance en utilisant<br />
le logiciel de son choix : MS Word,<br />
Apple Pages, Powerpoint, etc. Il lui suffit<br />
ensuite de présenter les informations de<br />
façon graduelle et contrôlée en faisant<br />
« apparaître » peu à peu le texte grâce<br />
à la fonction d’écran tactile – avez-vous<br />
déjà assisté à une formation ou à une séance<br />
d’information où le présentateur<br />
obstrue l’écran LCD avec un papier<br />
Un écran gris virtuel dissimule le texte,<br />
et l’enseignant est libre de le baisser ou<br />
de le supprimer, au besoin. Grâce à la<br />
technologie, l’enseignant n’est plus obligé<br />
d’écrire les informations au tableau<br />
ou de donner des cours magistraux. Il a<br />
maintenant du temps pour raconter une<br />
histoire qui permet aux élèves de découvrir<br />
eux-mêmes les informations. Il peut<br />
utiliser un style de pédagogie plus dynamique.<br />
De plus, l’enseignant est alors<br />
libre de circuler en classe pour aider les<br />
élèves et/ou gérer leurs comportements<br />
de façon à favoriser leur pleine participation.<br />
Terminée l’époque où l’enseignant<br />
tournait le dos aux élèves pour écrire<br />
au tableau pendant que ces derniers en<br />
profitaient pour faire un mauvais coup,<br />
par exemple pour lancer des gommes à<br />
effacer ou des bouts de papier (un comportement<br />
dont je me suis peut-être<br />
moi-même rendu coupable…). Donc,<br />
grâce au tableau interactif, les élèves bénéficient<br />
d’une meilleure surveillance, la<br />
somme des informations transmises est<br />
contrôlée et le regard de l’élève est attiré<br />
vers le gros écran, là où la matière est<br />
présentée.<br />
De leur côté, les élèves ont aussi la<br />
possibilité d’utiliser l’écran tactile, avec<br />
accès à Internet, pour leurs propres<br />
présentations. Finies les présentations<br />
sur du papier de construction ou de gros<br />
rouleaux de papier brun. Les informations<br />
les plus importantes peuvent être<br />
28 <strong><strong>Autism</strong>MATTERS</strong> AUTOMNE 2011<br />
imprimées et distribuées aux élèves (ou<br />
même leur être envoyées par courriel).<br />
Cette stratégie permet aussi à l’enseignant<br />
de s’assurer que tous les élèves reçoivent<br />
les mêmes notes d’études. L’élève qui est<br />
incapable de prendre des notes en raison<br />
d’une difficulté de motricité fine n’est<br />
donc pas pénalisé. De plus, il n’a plus<br />
besoin de se casser la tête pour déchiffrer<br />
l’écriture de son enseignant, de son<br />
aide-enseignant ou d’un camarade de<br />
classe. Les notes qu’il reçoit sont tapées<br />
à l’ordinateur. Au besoin, il est également<br />
possible d’importer ces notes dans<br />
un logiciel de relecture de textes (comme<br />
Kurzweil ou Text To Speech), une méthode<br />
directe, facile et efficace.<br />
Une stratégie souvent utilisée pour<br />
réduire l’anxiété des élèves en classe consiste<br />
à présenter l’horaire de la journée<br />
aux élèves. De cette façon, les élèves<br />
savent à quoi s’attendre. En plus, ceux<br />
qui ne maîtrisent pas la notion de temps<br />
constatent que le nombre de tâches à<br />
exécuter doit diminuer avant d’avoir<br />
accès à un agent de renforcement : un<br />
temps libre, un jeu éducatif, une pause<br />
ou même la fin de la journée. Dans ma<br />
classe, les élèves se réfèrent au tableau<br />
interactif pour connaître l’horaire. La<br />
première page indique toute les activités<br />
de la journée. Un élève est chargé<br />
d’imprimer cette liste et de cocher les<br />
activités au fur et à mesure qu’elles sont<br />
complétées. Une diapositive accompagne<br />
chacune des activités inscrites au<br />
Smartboard. Le Smartboard reste allumé<br />
toute la journée (sauf pendant l’activité<br />
de yoga). Le tableau interactif indique alors<br />
quelle activité l’élève doit accomplir,<br />
avec quel membre de l’équipe, ainsi que<br />
la durée de l’activité, représentée par un<br />
minuteur « Time Timer ». De temps en<br />
temps, les élèves s’approchent du tableau<br />
et touchent les flèches virtuelles pour<br />
naviguer d’une page à l’autre. Ils prennent<br />
ainsi connaissance des activités planifiées<br />
pour la journée; aussi bien dire<br />
qu’ils s’approprient leur horaire, qu’ils le<br />
prennent en charge. Ils n’ont pas à se fier<br />
à nous donc ils développent une certaine<br />
autonomie. Parfois, il arrive qu’ils ne soient<br />
pas contents d’être obligés de faire<br />
certaines activités, mais ils ne refusent<br />
jamais. Difficile d’argumenter avec un<br />
tableau!<br />
Le tableau permet des activités pédagogiques<br />
plus approfondies. Comme<br />
le tableau est connecté à l’Internet, les<br />
hyperliens peuvent nous diriger vers des<br />
sites Web précis où des référentiels sont<br />
accessibles et utiles aux élèves (p. ex. un<br />
référentiel météo). L’élève peut alors<br />
basculer entre le fureteur et le logiciel du<br />
tableau pour compléter une leçon de sciences<br />
ou de mathématiques.<br />
Dans ma classe, j’insiste beaucoup<br />
sur le développement des habiletés de la<br />
vie quotidienne. Nous faisons une sortie<br />
dans la communauté à chaque semaine.<br />
Le tableau interactif nous sert à planifier<br />
nos déplacements et à nous donner<br />
un aperçu de notre trajet. Pour préparer<br />
nos sorties et tracer nos itinéraires,<br />
nous nous rendons sur Google Maps (ça<br />
coûte moins cher que des GPS) à l’aide<br />
du tableau interactif. Une fois que nous<br />
avons établi notre trajet, nous choisissons<br />
l’option Street View. Cela ajoute<br />
une toute autre dynamique à la planification<br />
de la sortie. Les élèves visualisent le<br />
trajet. Ils touchent l’écran pour se diriger<br />
dans la rue et s’y « promènent » de façon<br />
virtuelle. Cet exercice préparatoire<br />
diminue le niveau d’anxiété des élèves<br />
(et des adultes) parce que, encore une<br />
fois, ils savent un peu à quoi s’attendre.<br />
Nous repérons les intersections des rues,<br />
les arrêts d’autobus et même les cafés<br />
Starbucks où nous arrêterons… pour<br />
une pause-santé, bien sûr.<br />
Le tableau interactif est donc un<br />
outil qui contribue à rendre les cours plus<br />
attrayants et plus vivants. Nous pouvons<br />
l’utiliser pour réduire ou éliminer les<br />
tâches répétitives d’écriture et favoriser<br />
une participation plus active des élèves.<br />
L’anxiété des élèves diminue lorsque les<br />
informations leur sont présentées clairement<br />
et concrètement. Le tableau interactif<br />
nous permet donc de jeter un pont<br />
vers l’avenir de nos élèves.
info autisme<br />
Des stratégies simples,<br />
mais efficaces<br />
L’autisme de haut niveau et le<br />
syndrome d’Asperger<br />
SMITH MYLES, B., D. Adreon, D. et D. Gitlitz.<br />
Simple Strategies That Work, helpful hints<br />
for all educators of students with Asperger<br />
Syndrome, high-functioning autism, and<br />
related disorders, Shawness Mission, KS,<br />
<strong>Autism</strong> Asperger Publishing Co., 2006.<br />
Extrait traduit de l’anglais avec l’aimable<br />
autorisation d’<strong>Autism</strong>, Asperger Publishing Co.<br />
1. Passer à l’heure « Asperger »<br />
a. Deux fois plus de temps, la<br />
moitié des résultats prévus<br />
b. Modifier les attentes<br />
c. Réduire ou éliminer les travaux<br />
d’écriture<br />
d. Éviter les situations où l’élève se<br />
sent bousculé ou sous pression<br />
2. Gérer l’environnement<br />
a. Préparer l’élève aux<br />
changements<br />
b. Tenir compte des préférences<br />
de l’élève<br />
c. Prévoir des moments de détente<br />
d. Proposer des choix<br />
3. Créer un horaire équilibré qui<br />
préserve l’énergie<br />
a. Surveiller les exigences des<br />
tâches<br />
b. Tôt dans la journée, proposer<br />
à l’élève une activité familière<br />
et apaisante qui va le préparer à<br />
bien travailler<br />
c. Incorporer les intérêts particuliers<br />
de l’élève dans les travaux<br />
scolaires<br />
d. Alterner les tâches difficiles avec<br />
les tâches faciles ainsi que les activités<br />
préférées avec les activités<br />
moins appréciées<br />
e. Inscrire les « moments de détente<br />
» à l’horaire<br />
f. Proposer successivement des<br />
activités apaisantes et des activités<br />
d’éveil<br />
4. Préparer et expliquer l’horaire à<br />
l’élève<br />
a. Utiliser des appuis visuels<br />
5. Simplifier le langage<br />
a. Être attentif à l’interprétation<br />
littérale<br />
b. Enseigner les règles non écrites<br />
(hidden curriculum)<br />
6. Créer une atmosphère calme et<br />
positive<br />
a. Donner l’exemple de l’acceptation<br />
7. Vivre « à voix haute »<br />
a. Verbaliser ce que vous faites<br />
8. Multiplier les éloges<br />
a. Encourager les élèves à développer<br />
leur capacité d’attribution et<br />
de compréhension<br />
9. Être à l’écoute des mots<br />
a. Solliciter et fournir des<br />
éclaircissements<br />
10. Rassurer l’élève<br />
a. Réduire l’incertitude <br />
AUTOMNE 2011 <strong><strong>Autism</strong>MATTERS</strong> 29
feature SCHOLARSHIPS<br />
Educational Scholarship<br />
Recipients 2011<br />
With the support of our Chapters, <strong>Autism</strong><br />
<strong>Ontario</strong> is able to provide post-secondary<br />
education scholarships to people on the<br />
spectrum and their siblings.<br />
by Kristen Mayne<br />
Every year we look forward to awarding these scholarships. We wish the recipients<br />
all the best as they enter this exciting phase of their lives.<br />
p Andrew Arbour<br />
Eleanor Ritchie Scholarship<br />
This award was given to four people on the autism spectrum who have graduated<br />
from secondary school and are entering a post-secondary program this fall.<br />
Andrew Arbour is at the Computer Engineer Technician program at Niagara<br />
College.<br />
Thomas Hodge-Warrick is attending in the Interactive Media Design and<br />
Production program at Fanshawe College.<br />
Evan MacRae is studying in the Social Work program at Redeemer University<br />
College.<br />
Rachel Sears (no photo available) is enrolled in the Graphic Design program at<br />
Georgian College.<br />
Special thanks to Jordan Lim of The Jordan Walker Group (neighbour of<br />
<strong>Autism</strong> <strong>Ontario</strong>’s Provincial Office) for drawing the names of the Eleanor Ritchie<br />
Scholarship.<br />
“My future goal is to attend and<br />
successfully graduate from Redeemer<br />
University College taking courses in Social<br />
Work so that I can help troubled people or<br />
people with disabilities live better lives.”<br />
Evan MacRae<br />
p Thomas Hodge-Warrick<br />
p Evan MacRae<br />
30 <strong><strong>Autism</strong>MATTERS</strong> FALL 2011
feature scholarships<br />
Jeanette Holden Scholarship Recipients<br />
This award has been accepted by four young people who are siblings of a person on<br />
the autism spectrum and who have graduated from secondary school and are entering<br />
a post-secondary program this fall.<br />
Amanda Toufeili has been accepted to several Honour Bachelor of Science programs<br />
and was in the process of making her selection at press time.<br />
Karissa Holyer is studying at the University of Western <strong>Ontario</strong> in the<br />
Biomedical program.<br />
Rebecca Alves is attending the Concurrent Education/Primary Junior (Focus<br />
on Exceptional Learners) program at the University of Toronto<br />
Megan McCreary has headed off to the Vancouver Island University to study<br />
Art and Psychology.<br />
Thank you to Jane Houlden, Cynthia Goldfarb and Cathy White, members of<br />
the Board of Director’s Education Scholarship Committee, for reviewing the applications<br />
for the Jeanette Holden Scholarship. <br />
“...it is Ali who inspires me every day through<br />
his struggles and perseverance to face the<br />
confusing world around him. While I teach him<br />
math, science and social skills, he has taught me<br />
the value of communication and allowed me to<br />
gain an appreciation for life and has shaped me<br />
to become the person I am today.”<br />
Amanda Toufeili<br />
p Karissa Holyer with Josiah<br />
u Amanda Toufeili with Ali<br />
p Megan McCreary<br />
p Rebecca Alves with Todd (left) and Alex<br />
FALL 2011 <strong><strong>Autism</strong>MATTERS</strong> 31
feature SCHOLARSHIPS<br />
Shayam Kaushal Charitable<br />
Foundation<br />
The foundation’s generosity supports families<br />
across ontario<br />
by Kristen Mayne<br />
p Nicholas Chow receives his award from<br />
Tripta Kushal, Shayam’s mother<br />
p Shayam’s father, Amar Kushal, and<br />
Shayam’s daughter, Karishma, present the<br />
award to Ian Wilgus<br />
<strong>Autism</strong> <strong>Ontario</strong> is thrilled to be the recipient of a $60,000 donation from<br />
the Shayam Kaushal Charitable Foundation. Providing community and family support<br />
was a key factor in the Foundation’s decision to support <strong>Autism</strong> <strong>Ontario</strong>. We are<br />
excited to announce that the funds will go to the following:<br />
• Summer camp programming<br />
• IBI training for parents across the province<br />
• Post-secondary education achievement awards<br />
The money was raised in one evening at what was only the Foundation’s second<br />
gala – a real testament to this group’s incredible work and dedication. Created to<br />
honour the memory and life of Shayam Kaushal, the Foundation is guided by hope,<br />
strength and determination – qualities that were an integral part of Shayam’s everyday<br />
life.*<br />
The gala, held on May 14, was a wonderful, inspiring evening and featured the<br />
post-secondary achievement award ceremony. Five awards of $1,500 were offered to<br />
recognize the achievements of students with ASD who were entering post-secondary<br />
education this fall. Available to Greater Toronto Area residents, 16 very worthy applications<br />
were received and five were selected by a draw.<br />
We are pleased to recognize four of the recipients (one recipient wishes to remain<br />
anonymous).<br />
Cody Caughill (not pictured) is attending Niagara College’s Motive Power<br />
Technician Program.<br />
Nicholas Chow is enrolled at the College Vocational Program at Seneca College.<br />
Raymond Phu has entered the General Arts Program at Seneca College.<br />
Ian Wilgus is pursuing a double major in History and Political Science at York<br />
University.<br />
<strong>Autism</strong> <strong>Ontario</strong> thanks the Shayam Kaushal Foundation for their generous donation<br />
and welcomes them into our family of Foundation Champions. <br />
p <strong>Autism</strong> <strong>Ontario</strong>’s Kristen Mayne accepts<br />
the awards on behalf of those who could not<br />
attend, presented by Shayam’s son, Keshiv<br />
*Read more about Shayam Kaushal and the Foundation’s inspiring story at www.the shayamkaushalfoundation.com.<br />
32 <strong><strong>Autism</strong>MATTERS</strong> FALL 2011
feature scholarships<br />
Image credit: BigStockPhoto.com/1663034<br />
Families in your community need<br />
your help every month<br />
You can help those families today. Please, consider joining The<br />
Champions’ Circle, our dedicated group of monthly donors. You<br />
can make a monthly gift in the amount of your choice from your<br />
Visa or MasterCard. You save paper and stamps, and you get one<br />
consolidated tax receipt at the end of the year, but perhaps most<br />
importantly, you make a difference in your community.<br />
There are three ways to become a Champion today!<br />
• Contact Len Milley at 416-246-9592 Ext. 241, or len@autismontario.com<br />
to join The Champions’ Circle<br />
• Donate online at www.autismontario.com (click on the Donate<br />
button)<br />
• Mail your cheque, payable to <strong>Autism</strong> <strong>Ontario</strong>, to 1179 Street<br />
West, Suite 004, Toronto, ON M6K 3C5<br />
Thank you for your generosity, and for helping us to help others see<br />
the potential!<br />
Learn to read, understand<br />
and create maps!<br />
Explore the common features of maps,<br />
and the significance of maps and mapping<br />
to Canadian history, in this colourful<br />
book for kids. Learn about symbols, scale<br />
and colour – and about a great Canadian<br />
cartographer, David Thompson.<br />
For kids 7 and up – and for everyone who<br />
loves a map!<br />
FALL 2011 <strong><strong>Autism</strong>MATTERS</strong> 33
feature WORKING TOGETHER<br />
2011<br />
Gerry Bloomfield Awards<br />
Gerry Bloomfield was a founding<br />
member of OSAC (<strong>Ontario</strong> Society<br />
for Autistic Children), which later<br />
became <strong>Autism</strong> <strong>Ontario</strong>. These<br />
awards are in recognition of his<br />
outstanding contributions to <strong>Autism</strong><br />
<strong>Ontario</strong> and to the cause of <strong>Autism</strong><br />
Spectrum Disorder.<br />
Each year the Gerry Bloomfield award is given to someone whose efforts have<br />
had direct influence in making a significant change in the lives of the people with<br />
autism and their families. It may be given to a person or group for outstanding contributions<br />
to the field of <strong>Autism</strong> Spectrum Disorder or to <strong>Autism</strong> <strong>Ontario</strong>.<br />
Gerry Bloomfield Volunteer Award - 2011<br />
About seven years ago a fine, partly-retired gentleman came to <strong>Autism</strong> <strong>Ontario</strong>’s<br />
provincial office as a volunteer to take a look at a couple of computers that were giving<br />
us trouble and to assess whether we needed to tweak a few things, take them in<br />
to be fixed by the wizards of computer repair or to finally lay them to rest. Since that<br />
time he has helped us as we grew from an organization with three or four computers<br />
to a place where laptops are the norm and about 30 of them are spread out across the<br />
province, yet linked to a central server in Toronto. As an organization that struggles<br />
to find operating funds, this year’s recipient has in fact contributed an astounding<br />
amount of in-kind computer tech support – a value estimated at $90,000!<br />
Without the support from this year’s award recipient, we simply would not have<br />
been able to meet our technical needs regarding computers and their functioning. Our<br />
online communication with thousands of parents of children, youth and adults with<br />
ASD, and our chapter leaders would not take place in the way it now does through<br />
e-mail, the creation of shared documents and access to the internet<br />
as a direct result of the magic worked out by the 2011 Gerry<br />
Bloomfield Volunteer Award recipient – Jon Duerdoth.<br />
p Margaret Spoelstra presents the Gerry Bloomfield Volunteer<br />
Award to Jon Duerdoth.<br />
Gerry Bloomfield Professional Award - 2011<br />
This year’s award was presented to a person who started out as a<br />
volunteer with our York Chapter and was instrumental in helping<br />
with its chapter activities, its summer camp program, and<br />
representing <strong>Autism</strong> <strong>Ontario</strong> on Ministry Committees such as<br />
Making Services Work for People. After logging years of chapter<br />
volunteer hours, she began to volunteer for the provincial<br />
office, then working a couple of hours for the provincial office<br />
which became a few more hours and ultimately much more than<br />
a full time job.<br />
As a professional in the field, she was called upon to be the<br />
glue that kept a growing grassroots organization together. At<br />
one time she was, in fact, the only employee at <strong>Autism</strong> <strong>Ontario</strong>’s<br />
34 <strong><strong>Autism</strong>MATTERS</strong> FALL 2011
feature WORKING TOGETHER<br />
u There were many speeches and presentations<br />
made to Ethel Berry on her last day at<br />
<strong>Autism</strong> <strong>Ontario</strong>. New Board President, Leah<br />
Miltchin (L), presented flowers on behalf of<br />
the Board.<br />
Provincial Office. That was about 15 years ago. Since that time she has worked in the<br />
front and in the middle, but mostly behind the scenes, giving hundreds of hours of<br />
her volunteer time beyond her paid professional work to <strong>Autism</strong> <strong>Ontario</strong> events and<br />
activities.<br />
As a professional, her role has changed continually, sometimes weekly over the<br />
past 10 years, to help us absorb and support an ever growing and changing organization.<br />
Although those changes likely had her wondering what on earth she was still<br />
doing at such a crazy place, she worked with staff, board members and volunteers to<br />
keep the organization moving.<br />
She took a course from Toast Masters that served her well in making non-boring,<br />
well-communicated, yet heartfelt speeches. She reminded us over the years to keep it<br />
shorter rather than longer, reviewed many a document for over-fussiness and typos,<br />
unjammed a million photocopier jams and prepared all of you for dozens of meetings<br />
over the years. A professional appearance has been one of her hallmarks.<br />
Administrative work is seldom the stuff of public awards but her contributions<br />
helped all of our changing chapters to grow at a time when no one else was around<br />
to do it.<br />
She has given a listening ear to thousands of parents and professionals. To be on<br />
the phone or e-mail end of her words meant that you would be heard, sympathized<br />
or empathized with, and then at times, be given a sharp jolt of reality. She will tell you<br />
that you can and should cry about the fears, frustrations and unfairness, but then get<br />
on with it and start making changes. From her, an <strong>Ontario</strong> parent can expect both a<br />
hug and a sharp verbal shove into action. “That’s terrible, mmm, mmm, mmm. Have<br />
you filled in that form for ODSP yet”<br />
Children with autism grow up to be adults with autism. Her daughter Stacy grew<br />
up to be an adult with autism and that made her even more determined to remind<br />
people that you never know what lies ahead and what you need to think about. She<br />
and Stacy’s father began a fund to help families pay for a support staff for people with<br />
ASD in extended hospital settings. In memory of her daughter they also started the<br />
Stacy Lynne McNeice Memorial award for excellence in <strong>Autism</strong> Research, which has<br />
honoured the work of Dr. Margaret Bauman and Dr. Jeanette Holden.<br />
Not Goodbye!<br />
As my final days at the Provincial Office<br />
of <strong>Autism</strong> <strong>Ontario</strong> rapidly approached,<br />
I reflected on how much we have<br />
grown as an organization. Many major<br />
changes in the field of autism awareness<br />
and understanding have taken<br />
place since I first started as a volunteer<br />
and then as staff over 20 years ago. My<br />
hope for <strong>Autism</strong> <strong>Ontario</strong> is that it continues<br />
to grow and help parents navigate<br />
the maze that autism can be.<br />
As I move into the next phase of my<br />
life I will take with me the memories of<br />
the people that have helped me with<br />
my daughter and our own personal<br />
journey with autism, as well as those<br />
during my years at <strong>Autism</strong> <strong>Ontario</strong><br />
who have become dear friends. The<br />
autism family as I have experienced it is<br />
real and always comes through to give<br />
the support and encouragement that is<br />
needed. I wish all of you much courage<br />
and strength as you continue your<br />
journey with autism.<br />
Ethel Berry<br />
FALL 2011 <strong><strong>Autism</strong>MATTERS</strong> 35
Photo credit: Marg Spoelstra<br />
feature AUTISM AWARENESS<br />
She encouraged parents to always<br />
be planning for the future. She became<br />
a member of the <strong>Ontario</strong> Partnership for<br />
Adults with Aspergers and <strong>Autism</strong> and<br />
supported the Adult Working Group<br />
and helped us to work with many organizations,<br />
professionals, researchers, parents<br />
and self-advocates to produce the<br />
“Forgotten” paper.<br />
And although it was she who came<br />
up with the name of our “Forgotten”<br />
paper, and even though she retires this<br />
fall from the paid work world, we’ll never<br />
forget her. This year’s Gerry Bloomfield<br />
professional award was presented to<br />
Ethel Berry. <br />
t <strong>Autism</strong> <strong>Ontario</strong> staff bade a special farewell<br />
to Ethel Berry on her retirement at the<br />
end of August.<br />
www.<strong>Autism</strong>Research.com<br />
The <strong>Autism</strong> Spectrum Disorders —<br />
Canadian-American Research Consortium<br />
Invites You to Participate<br />
in ASD Research<br />
Join the ASD-CARC<br />
Research Registry Today!<br />
“Together we can discover a better tomorrow.”<br />
Contact 1-866-273-2272; e-mail autism.research@queensu.ca,<br />
or write to ASD-CARC, c/o <strong>Autism</strong> Research Program,<br />
191 Portsmouth Ave., Queen’s University, Kingston, ON K7M 8A6<br />
36 <strong><strong>Autism</strong>MATTERS</strong> FALL 2011
noteworthy news + views<br />
Board Corner<br />
Message from the Board Chair, Leah Miltchin:<br />
The board members recently had<br />
1½ days of learning, pondering, questioning<br />
and planning in Toronto. At the Friday<br />
afternoon interactive workshop, governance<br />
expert Catherine Raso took us through<br />
“Governance 101.” Catherine impressed<br />
upon us that the purpose of any board of<br />
directors is to shape policies and directions<br />
on behalf of its organization’s membership.<br />
In the case of <strong>Autism</strong> <strong>Ontario</strong>, this includes<br />
not only paid members, but <strong>Ontario</strong>’s ASD<br />
community as a whole. We reviewed some<br />
of our current policies with a view to updating<br />
and/or rewording them to ensure that<br />
they remain relevant and responsible, and<br />
that we remain accountable to our stakeholders.<br />
(For those of you who might prefer<br />
to think of governance training as dull and<br />
dry, I won’t elaborate on our use of Play-<br />
Doh, food colouring, markers, and “squishy<br />
balls” during the workshop!)<br />
We were fortunate to have <strong>Autism</strong> <strong>Ontario</strong>’s<br />
fundraiser, Len Milley, update us on<br />
the many exciting developments on the fundraising<br />
front. Marilyn Thompson, Program<br />
Manager for the Potential Programme (formerly<br />
RCP) talked about news and changes<br />
related to the program’s expansion across<br />
<strong>Ontario</strong>. Together with the other talented<br />
and hardworking staff at the provincial office,<br />
Len and Marilyn are making great things<br />
happen towards achieving our vision of acceptance<br />
and opportunities for all individuals<br />
with autism spectrum disorders. We were<br />
also joined via teleconference by <strong>Autism</strong><br />
Society Canada’s executive director, Kathleen<br />
Provost, to learn about the Canadian<br />
<strong>Autism</strong> Spectrum Disorders Alliance (CAS-<br />
DA), a lobbying consortium of organizations<br />
concerned with ASD matters of national<br />
relevance.<br />
Our autumn face-to-face board meeting<br />
was thought-provoking and productive.<br />
Your board of directors is motivated and<br />
dedicated to ensuring that <strong>Autism</strong> <strong>Ontario</strong><br />
continues to make progress in improving the<br />
quality of life for Ontarians with ASD.<br />
Getting to know Gail Laliberte<br />
Why do you enjoy volunteering with the<br />
board I became involved with our local<br />
AO Chapter in 1999 and joining the board<br />
seemed like a natural progression. Volunteering<br />
my time with our local Chapter and<br />
then on the CLC gave me a great opportunity<br />
to discuss and discover our community’s<br />
needs and strengths. As a board member<br />
I am given the opportunity to see <strong>Autism</strong><br />
<strong>Ontario</strong> as a whole with a global perspective.<br />
Both are unique and have an important<br />
role to play. For me it completes a package.<br />
I also enjoy spending time with current<br />
and past board members through monthly<br />
meetings of discussion and training.<br />
What’s one thing you’d like members to<br />
know about the board I would like members<br />
to know that we take what they tell us<br />
seriously and we encourage open communication.<br />
It helps us to do our job better.<br />
Tell us a little about your family. I live in Peterborough<br />
and was brought up in Montreal.<br />
I am married for a second time to an amazing<br />
man and between us we have raised<br />
seven children now between the ages of 20<br />
and 29 – one married, one to be married<br />
soon and I am sure more to follow quickly<br />
afterwards. I am not a grandparent yet but I<br />
wait in excitement. I do not have anyone in<br />
my family on the Spectrum but my work involves<br />
ASD as I am the Program Manager of<br />
the IBI program and the new ABA program.<br />
What book are you reading right now I<br />
would love to say I am reading a book for<br />
pleasure, but about all I read is for work –<br />
journals, e-mails (which seem to consume<br />
me) and other work-related material. When<br />
I do stop at night, I either “call it a night” or<br />
try to knit a<br />
bit. <br />
Gail Laliberte<br />
If you have feedback about the Board Corner or would like to ask a question, please e-mail Board Chair at info@autismontario.com.<br />
FALL 2011 <strong><strong>Autism</strong>MATTERS</strong> 37
noteworthy news + views<br />
In Your Corner<br />
this is your space to share Chapter activities,<br />
generate ideas and find ways to fill gaps locally<br />
by Erin Roza, Chapter Development Coordinator<br />
Top: Jerry Fletcher enjoys the water at Glenbrook<br />
Day Camp, York Chapter.<br />
Middle: Counsellor Alia Oudeh and camper<br />
Devin Walters, enroute to African Lion Safari<br />
for a day trip.<br />
Photo credit: (both photos) AOK Camp Assistant<br />
Director, Robyn Katz.<br />
Bottom: McKenna Ross, 8, assists Hoppy the<br />
Clown at Sarnia-Lambton’s Summer Camp<br />
Fun Day. Hoppy’s magic trick was to make<br />
a birthday cake for McKenna appear out<br />
of nowhere. Photo credit: Jenny VanBree,<br />
Camp Director.<br />
School was out and the sun was shining, but this didn’t mean things slowed down<br />
for <strong>Autism</strong> <strong>Ontario</strong> Chapters.<br />
It was an amazing summer for campers and counsellors alike at our chapter camps. York<br />
Chapter’s Kids Camp and Adult Summer Program had a blast visiting Canada’s Wonderland,<br />
the Toronto Zoo and <strong>Ontario</strong> Place, and participating in such activities as foam play, raspberry<br />
picking and a sleepover. Visits to the splash pad, bowling alley and Canatara Park and<br />
Animal Farm were camper favourites at Sarnia-Lambton’s P.A.L. Zone (Peers, Adventures,<br />
Life Skills Zone), as was a trip to Greenview Aviaries Park and Zoo. Camp ended on a<br />
high note with their first Annual Walk for <strong>Autism</strong> Summer Camp for campers, staff and their<br />
families. Children and youth campers at Niagara Region Chapter’s Summer Day Camp<br />
had a great time playing sports and games, participating in video-making, and expressing their<br />
creative side with arts and crafts, among other activities. Campers at C.A.M.P. (Children with<br />
<strong>Autism</strong> Maximizing Potential), a collaborative effort between the City of Burlington and the<br />
Halton Chapter, enjoyed weekly themes, spending time at the splash pad, and going along<br />
the many walking trails.<br />
While the kids were off at camp, workshops and speaker events kept parents busy<br />
this summer. Suzanne Murphy presented her way through Thunder Bay and District,<br />
stopping in many communities to speak about Stress, Anxiety and Escalation in ASD. The<br />
Huron-Perth Chapter hosted Ed Mahony presenting Positive Intervention, which was<br />
the first stop of his tour which has continued into the fall with workshops planned for the<br />
Peterborough and Kingston Chapters.<br />
Picnics and BBQs were a popular event this summer, with the Sault Ste. Marie Chapter<br />
‘s Saturday in the Park, Grey-Bruce’s event in Story Book Park, and Windsor’s Summer<br />
Picnic attracting a combined total of more than 600 people.<br />
The fun didn’t stop there. The Simcoe Chapter marked the end of the summer with<br />
Summer Fun Week – one last hoorah for kids before heading back to school. Activities<br />
included go karting, visits to the beach and Santa’s Village, and even a boat cruise.<br />
This is just a peek into the many wonderful programs and events put on by the Chapters.<br />
An entire magazine would be needed to list them all. Thank you to everyone for your hard<br />
work and dedication in what was sure to be a memorable summer for all. If you have something<br />
to add to the next Chapter Corner, please don’t hesitate to send it in. <br />
Send your Chapter news to erin@autismontario.com.<br />
38 <strong><strong>Autism</strong>MATTERS</strong> FALL 2011
feature research AND PRACTICE<br />
FALL 2011 <strong><strong>Autism</strong>MATTERS</strong> 39
Celebrate World <strong>Autism</strong> Awareness Day on April<br />
2nd with our special Evening Guest Speaker<br />
John Elder Robison<br />
Author of two books: “Look Me in the<br />
Eye” and “Be Different”, John offers<br />
a witty, highly personal and<br />
insightful perspective to living with<br />
Asperger Syndrome.<br />
A book signing will follow his<br />
Stages of presentation. <strong>Autism</strong>:<br />
Adolescence & Beyond<br />
Celebrate World <strong>Autism</strong> Awareness Day on April<br />
2nd with our special Evening Guest Speaker<br />
John Elder Robison<br />
4th BIENNIAL CONFERENCE<br />
Author of two books: “Look Me in the<br />
SAVE THE DATES<br />
Eye” and “Be Different”, John offers<br />
April 2nd a witty, & 3rd, highly 2012 personal and<br />
insightful John Elder perspective Robison to living with<br />
Hamilton Convention Asperger Syndrome. Centre<br />
1 Summer’s Lane<br />
Author of two books: “Look Me in the<br />
Hamilton,<br />
A book<br />
<strong>Ontario</strong><br />
Eye” and “Be signing Different”, will follow John his offers<br />
Canada<br />
a witty, presentation. highly personal and<br />
insightful perspective to living with<br />
Asperger Syndrome.<br />
Celebrate World <strong>Autism</strong> Awareness Day on April<br />
2nd with our special Evening Guest Speaker<br />
SAVE THE DATES<br />
presentation.<br />
A book signing will follow his<br />
Informative speakers and Topics:<br />
Dr. Isabelle Henault<br />
Informative Carol Latimer/Lea Speakers and Pollard Topics: -Bill 77 and DSO<br />
Dr. Isabelle Dr. Elizabeth Henault<br />
Hamilton Convention Centre<br />
Kelley 1 Summer’s Lane<br />
Carol Latimer/Lea<br />
Sibling SAVE Pollard –<br />
Panel on Hamilton,<br />
THE Bill 77 and<br />
AgingDATES<br />
DSO<br />
<strong>Ontario</strong><br />
Dr. Elizabeth Kelley<br />
Woodview April Manor 2nd - Canada & Adult 3rd, 2012 Services Model<br />
Sibling Panel on Aging<br />
Woodview Manor Hamilton - Adult Services Convention Model Centre<br />
With more to 1 Summer’s come Lane<br />
With more to come Hamilton, <strong>Ontario</strong><br />
Canada<br />
Dr. Isabelle Henault<br />
April 2nd & 3rd, 2012<br />
Informative speakers and Topics:<br />
SAVE THE DATES: April 2-3, 2012<br />
Hamilton Convention Centre<br />
Keynote Speakers<br />
Stages of <strong>Autism</strong>:<br />
Adolescence & Beyond<br />
Stages of <strong>Autism</strong>:<br />
Hamilton<br />
Dr. Liz Laugeson - UCLA<br />
Presenting the PEERS<br />
social skills model<br />
Dr. Peter Szatmari<br />
Presenting “DSM-5: Two steps<br />
forward, One step back”<br />
Special Presentations by:<br />
Hamilton<br />
Dr. Liz Laugeson - UCLA Dr. Peter Szatmari<br />
Presenting the PEERS Presenting “DSM-5: Two steps<br />
social skills model<br />
forward, One step back”<br />
Dr. Kevin Stoddart<br />
Celeste Carter<br />
The Redpath Centre TEACCH - UNC Chapel Hill<br />
Dr. Liz Stoddart Laugeson Special<br />
will - be UCLA Presentations<br />
part “Using Dr. Peter Video Szatmari by:<br />
Modeling and<br />
Presenting of a Justice the system PEERS panel<br />
Presenting “DSM-5: Two steps<br />
Structured Teaching to Develop<br />
social<br />
as well<br />
skills<br />
as presenting<br />
model<br />
forward, One step back”<br />
on Life Skills” and “The Top Ten<br />
The Asperger Spectrum Things Every Adolescent Needs<br />
Special Presentations to Learn in Order by: to be Successful<br />
as an Adult”<br />
www.woodview.ca 1 Summer’s Lane for Toronto,<br />
Carol Latimer/Lea Pollard<br />
Conference ON M6K 3C5<br />
-Bill 77 and DSOupdates and registration information<br />
Hamilton, <strong>Ontario</strong>, Canada<br />
Informative Dr. Elizabeth speakers Kelley and Topics:<br />
Sibling Panel on Aging<br />
www.woodview.ca Dr. Isabelle Henault<br />
Woodview Manor<br />
for<br />
- Adult Services Model<br />
Conference Carol Latimer/Lea updates and Pollard -Bill 77 and DSO<br />
registration Dr. Elizabeth Kelley<br />
Sibling<br />
With more<br />
information<br />
Panel<br />
to<br />
on<br />
come<br />
Aging<br />
Woodview Manor - Adult Services Model<br />
With more to come<br />
<strong>Autism</strong>ontario<br />
1179 King Street West, Suite 004<br />
Keynote Speakers<br />
4th<br />
Hamilton<br />
BIENNIAL<br />
C ONFEREN C E<br />
Adolescence & Beyond<br />
Keynote Speakers<br />
Dr. Kevin Stoddart<br />
Celeste Carter<br />
The Redpath Centre TEACCH - UNC Chapel Hill<br />
Dr. Stoddart will be part “Using Video Modeling and<br />
of a Justice system panel Structured Teaching to Develop<br />
Dr. as Kevin well Stoddart as presenting on Life Celeste Skills” Carter and “The Top Ten<br />
The The Redpath Asperger Centre SpectrumTEACCH Things - UNC Every Chapel Adolescent Hill Needs<br />
“Using to Video Learn Modeling Order and to be Successful<br />
Structured as an Teaching Adult” to Develop<br />
www.woodview.ca for Conference updates and registration as an Adult” information<br />
4th<br />
Dr. Stoddart will be part<br />
of a Justice system panel<br />
as well as presenting on<br />
The Asperger Spectrum<br />
BIENNIAL<br />
C ONFEREN C E<br />
Keynote Speakers<br />
Life Skills” and “The Top Ten<br />
Things Every Adolescent Needs<br />
to Learn in Order to be Successful