24 April (PDF, 133Kb) - Information Standards Board for Health and ...

INFORMATION STANDARDS BOARD FOR HEALTH AND SOCIAL CARE
24 April 2013, 10.30am
Boardroom, NHS Connecting for Health, Vantage House, Leeds
&
Video Conference with Tavistock House, London
Members Present
Richard Popplewell
Vice-Chairman (meeting chair)
Martin Severs
Chairman (not in chair)
Paul Amos
Clinical Domain Lead
John Varlow
Health and Social Care Information Centre
Neil McCrirrick
Interim Director of ISMS
Gerry Firkins
Management Domain Lead
David Riley
Social Care Domain Lead
Members present by Video Conference, London
Tom Ward
Care Quality Commission
Tony Kilcoyne
General Dental Council
Jeff Seneviratne
Health and Care Professions Council
Mark Treleaven
Intellect
Mark Smith
Monitor
Phil Shoesmith
Nursing and Midwifery Council
In Attendance
Kathy Farndon
NHS England
Noshaba Khan
ISMS Secretariat
Apologies
Sally Greenway
Information Standards Wales (Observer)
Judith Richardson
National Institute for Health and Clinical Excellence
Marisa Dias
National Institute for Health and Clinical Excellence
Jeremy Thorp
NIRS Programme Delivery Director
Clare Sanderson
ROCR Cost and Burden
Heidi Wright
Royal Pharmaceutical Society
Ken Lunn
Information Standards Delivery, HSCIC
Nicholas Oughtibridge
Information Standards Delivery, HSCIC (Observer)
Approved minutes of meeting held on 24 April 2013 Page 1 of 6

1. WELCOME AND APOLOGIES FOR ABSENCE
1.1. The Vice-Chairman welcomed all members to the meeting.
1.2. The apologies were noted as above.
2. CONFLICTS OF INTEREST
2.1. John Varlow advised the Health and Social Care Information Centre (HSCIC) act
as developers of Information standards and he is the HSCIC representative. This
was noted but is an area of interest only.
2.2. There were no further conflicts of interest declared.
3. MINUTES OF THE MEETING HELD ON 27 March 2013
3.1. Jeff raised 2 points:
3.1.1. Conflicts of interest – Jeff advised he was not involved in the work of the
Workforce Data Set directly with the developers but with the Modernising
Scientific Careers Team.
3.1.2. On page 6, point 9.2 – Jeff confirmed it was the deletion of protected titles
rather than the use of protected titles.
3.2. Both points have been updated.
3.3. There were no further changes made to the minutes and they were confirmed as
an accurate reflection of the meeting.
4. ACTION ITEMS AND MATTERS ARISING
Action Action Item Action Taken By Status Due Date
1303-01 To invite ISP to the next ISB
meeting
1303-02 To write to the chair of ISP,
copying Professor Mike
Catchpole advising of the
issues raised with regards to
Notification of Causative
Agents.
1303-03 Jeff to email his concerns
about Workforce Data Set
and NHS Occupation Code
Manual to Gerry.
Neil McCrirrick Closed April
Gerry Firkins Closed April
Jeff Seneviratne Closed April
4.1. There were no further actions outstanding.
Approved minutes of meeting held on 24 April 2013 Page 2 of 6

4.2. Richard Popplewell raised 2 matters relating to standards discussed at the last
meeting on 27 March 2013:
Information Governance Toolkit – Change
David advised some actions are yet to be signed off but should be completed by
the end of the month.
NHS Occupation Code Manual and National Workforce Data Set – Change
To be covered later in the agenda.
4.3. There were no other matters arising.
5. TRANSITION UPDATE
5.1. Richard introduced the topic. In the new world, NHS England has formed the
Informatics Services Commissioning Group (ISCG). This group will have
membership from the Department of Health (DH) and Public Health England
(PHE). There will be several sub groups created to support ISCG, these are
currently being formed. In this transformation period, while the sub groups and
processes are created, ISB has been asked to assume delegated responsibility to
continue with assurance of Information Standards and Data Collections. Richard
suggested that in support of this new working arrangement, ISB should invite the
DH and PHE to attend ISB.
5.2. The suggested transformation arrangements require that ISB will recommend
Information Standards for approval to the ISCG, using the words “meets the
criteria for this stage”. In terms of the “development stages”, i.e. requirement and
draft, the suggested approach is that ISB will continue to approve the stages and
inform ISCG of those standards in development. We will provide clarity between
collections and information standards, and in the short term, (likely to be until the
end of September), we will continue to publish under the ISB logo and on the ISB
website. Richard made clear that referring Information Standards at full ISCG
could potentially lead to delays in publication. This is a risk that must be managed
with regard to ISNs and implementation dates with Sponsors and developers.
5.3. Martin commented that the transition arrangements document in the director‟s
report, describes the difference between Collections and Information Standards.
The document will be made available on the ISB website as an advisory note.
Collections and standards are separate and as per the Act, they mandate a
different way of handling things. It is also a requirement to have implementation
guidance by law. An SRO is also essential to guarantee funding. NHS England,
PHE, and DH are in charge and need to be part of ISB through transformation.
As we move forward with publication of ISNs, Martin suggested, as per the paper
that we annotate ISNs to indicate which part of the Act is applicable.
5.4. Neil added, in support of Richard‟s comments regarding the risk of ISN and
implementation dates that there is an operational issue that needs exposing. ISB
tries to give at least 6 months for trusts and software suppliers to implement. In
the new world, ISB will assure the full standard but the length of time to add in for
approval from ISCG, will inevitably lead to a delay in publication. Martin advised
Approved minutes of meeting held on 24 April 2013 Page 3 of 6

that if there is a pressing needs for a decision by the ISCG, he will write to them
directly as the decision has to be made by them. Gerry advised that the ODS local
authority codes is scheduled for May ISB and will need a quick ratification of the
ISB decision.
Action – ISB to invite DH and PHE to be members.
6. NHS Occupation Code Manual and Workforce Data Set Update
6.1. Gerry Firkins presented the item. This was deferred at last board due to the
deletion of protected titles and specialism that were allowed to be recorded. Since
then, these issues have been raised with the developer, Nick Armitage and both
concerns have been resolved.
6.2. Jeff advised that there is a distinction between job role and job title. The proposal
now is to simplify and clarify the data set as to the type of people that are allowed
to be appointed in these roles.
6.3. Guidance will be published.
6.4. Richard confirmed the changes to NHS Occupation Code Manual and Workforce
Data Set are now approved.
6.5. Richard asked if ISB require agreement from ISCG. Martin confirmed it does not
as this Standard was approved at March Board and the conditions have now been
met.
7. ISB 1520 Improving Access to Psychological Therapies Data Set – Requirement
Stage
7.1. Paul introduced the release. The submission document outlines the changes. It
monitors the interventions with patients with depression/anxiety conditions and
how interventions are carried out. This particular set of changes alters the scope of
the standard, introducing Payment by Results (PbR). Paul advised that the criteria
have been met for approval although there are issues which can be resolved for
the next stage. The main issue is that the sponsor is not in place. In addition there
are issues around IG due to the changing role of the HSCIC and the loss of NIGB,
and as part of the new process, a public consultation is required. ISB would also
like all standards to use XML and the developers have been asked to put forward
a plan for migration.
7.2. Martin commented that advice is needed on IG and to fundamentally think through
the flow making it legal. This is a particularly sensitive data set and someone
needs to sign off IG issues. John Varlow added that the IAPT data is flowing to the
HSCIC and there is a code of practice for the HSCIC and others to cover all data
handled. We can hold clear data and the issue is with onward transmission. The
HSCIC is going to transmit nothing identifiable unless there is a legal basis to
cover it.
7.3. Jeff asked if this is a collection or a data set. Martin advised if it is used to
establish items then it would be a collection. Jeff then asked if IG applies to both
parts. Martin advised that it applies to collections.
Approved minutes of meeting held on 24 April 2013 Page 4 of 6

7.4. Martin commented that in terms of output we expect to see evidence that the
HSCIC is being formally consulted.
7.5. Richard confirmed that the criteria have been met at this stage. For the next stage,
issues discussed need addressing in terms of the legality of information flows,
consultation and lack of sponsor.
7.6. The release was approved at Requirement stage.
8. ISB 0011 Mental Health Minimum Data Set – Requirement Stage
8.1. David Riley introduced the release. Richard asked if the same issues apply for
next stage as with IAPT. David confirmed they do. This is a change submission in
2 stages. When version 4 was established, a review was undertaken and it was
agreed that there would be a development process that planned 3 further
releases. Version 4.1 was approved at Board in September 2012 and further
developments were confirmed. The proposals for change in version 4.5 are more
substantive. This brings in learning disabilities information as a result of the
Winterbourne review, resulting in re-aligning the two needs. There has been
extensive consultation with the service and suppliers. Version 4.5 will become
version 1 with a new name to include learning disabilities. There are other
changes which were anticipated, some changes to improve data linkage to
support PbR. This carries information from 2 other data sets including Care
Clusters. Some data processing updates were made to improve quality.
8.2. Gerry suggested the change of name to include „Adults‟. David advised this will be
considered.
8.3. Martin commented that the changes have been made based on a review but there
is also the Francis Report that needs to be taken into account. This puts specialty
first not patients as was recommended. David advised this was not discussed at
the appraisal but will be considered during the next stages.
8.4. Richard summarised that the criteria have been met for this stage. The issues
raised with IAPT need to be resolved along with the renaming of the standard and
the Francis report requires consideration.
8.5. The release is approved at Requirement stage.
9. Portfolio Review
9.1. Neil provided an overview as to why we are reviewing the portfolio of work for the
benefit of Kathy Farndon. He advised 69 releases of standards require further
investigation and 145 standards still require a decision. However, all work should
be complete by next board for ISB to agree those going through for withdrawal.
Richard advised a fuller in house picture is required.
10. CHAIRMAN’S REPORT
10.1. The Vice-Chairman‟s report was noted.
11. DIRECTOR’S REPORT
Approved minutes of meeting held on 24 April 2013 Page 5 of 6

11.1. The Director‟s report was noted.
11.2. Neil brought 2 items to the board‟s attention. Firstly, to the Fundamental review
which has now been published. This will affect standards. The withdrawal process
where recommended needs looking at. Secondly, there has been the launch of
the Professional Record Standards Body (PRSB). Martin asked if this is an
executive or advisory body. It has a board but has it got regulatory approval
Martin also asked what is the value of it in terms of power and authority. David
advised it had no statutory status. The legal status was that of a limited liability
partnership [i.e. a not for profit limited company]. Richard added that if it is
advisory and becomes authoritative by the competence of its view, that would be
ok. Martin also asked if it should receive funding from the NHS and should the
board be represented in NHS groups. David advised that there is an early terms
of reference but amongst the list of items, it has an oversight of the development
of standards therefore it would seem advisory.
Mark Treleaven advised he is attending a PRSB meeting and Richard asked if
these questions could be raised at the meeting and for Mark to send round a note
to ISB members.
Action – Mark Treleaven to send a note to board members with regards to the
questions raised in relation to the PRSB.
12. ANY OTHER BUSINESS
12.1. Tom Ward asked if the Friends and Family Test is fixed as a standard yet. Gerry
advised it isn‟t. Richard asked Gerry to write a brief on the Friends and Family
Test.
12.2. There was no other business.
12.3. The meeting closed at 12.30.
Action: Gerry to write a brief on the Friends and Family Test for the next board
meeting.
13. DATE AND TIME OF NEXT MEETING
13.1. The date and time of the next meeting was scheduled for Wednesday 29 May
2013 at 10.30am.
Chairman……………….........……...... Date 29 May 2013
Approved minutes of meeting held on 24 April 2013 Page 6 of 6