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Gaucher Community News - National Gaucher Foundation

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Suzanne has been a registered<br />

physical therapist since 1978. She has<br />

experienced multiple symptoms from<br />

<strong>Gaucher</strong> disease since being diagnosed<br />

in 1981. She is an advocate and speaker<br />

on the subject of exercise and physical<br />

therapy and has written many articles<br />

on its importance for those who are<br />

living with <strong>Gaucher</strong> disease. She can be<br />

reached by calling the NGF or by email<br />

at suzkrup@comcast.net.<br />

Knee limitations after surgery and<br />

teoporosis in spine<br />

By Suzanne Krupskas<br />

1) Q: Six months ago I had a left knee replacement.<br />

In general, the knee is strong and I am painfree. However,<br />

I’m still not able to fully straighten it. When I was<br />

discharged from physical therapy, (which was three months<br />

ago), my therapist told me that I am lacking 15 degrees<br />

of knee extension. My orthopedist says that I may have to<br />

live with this limitation or possibly be manipulated under<br />

anesthesia to break-up the scar tissue. In lieu of undergoing<br />

this procedure are there any exercises I can do at this point<br />

to help get my knee straighter<br />

S.P. from TN<br />

A: Knee limitations are a challenge, especially six months<br />

after surgery. The soft tissue (muscles, tendons, ligaments)<br />

has become extremely tight and possible adhesions<br />

or scar tissue may develop (as your orthopedist indicated).<br />

Before starting any exercise program inform your doctor. I<br />

would suggest pool exercises if you have access to a heated<br />

pool. The warmth of the water would assist in loosening<br />

the soft tissue surrounding the joint. The following pool<br />

exercises would be beneficial: Place your left heel on a<br />

step with the knee straight and your right leg behind.<br />

Bend forward feeling the stretch in the hamstrings (back<br />

of the thigh) and behind the knee. Hold the stretch for 20<br />

seconds. Rest and then repeat for a total of 3 sets. Walk<br />

back and forth in the shallow end accentuating heel to toe<br />

as you’re stepping for 10 laps. Use a noodle to simulate<br />

biking – accentuating knee straightening for 2-3 minutes<br />

I would also suggest the following exercises: hamstring<br />

stretches on land: Sit on a chair and place a foot-stool in<br />

front of you. Place your left foot on the stool with your foot<br />

facing straight up and your right foot down on floor. With<br />

both hands push your thigh down as you lean your body<br />

slightly forward feeling the stretch in the hamstrings and<br />

behind the knee. Stay in that position for 3-4 minutes.<br />

If the stool is too high, place your left leg in front of you<br />

(heel down) on the floor and push your thigh down with<br />

both hands and hold the stretch for 20 seconds for 3 sets.<br />

Step stretch: Place your left heel on a step, knee is straight<br />

as it can be, right leg on the floor. Lean your body<br />

forward slightly and hold the stretch for 20 seconds.<br />

Rest and repeat 3 sets. Just to remind you, by doing these<br />

exercises it does not guarantee full and normal extension.<br />

However, you still would benefit from doing them to assist<br />

in elongating the muscles, tendons and ligaments with the<br />

possibility of gaining more flexibility and more range of<br />

movement.<br />

******<br />

2) Q: I have osteoporosis in my spine. What exercises<br />

would be beneficial for me I sit in front of the computer<br />

most of the day approximately 7-8 hours. I am sedentary<br />

and need guidance on what to do. Thank you. I’m looking<br />

forward to receive your expert advice.<br />

M.T. from VT<br />

A: Osteoporosis is definitely a disease that requires<br />

immediate attention. If you lead a sedentary lifestyle (as<br />

you say you do) the skeletal system is going to be more<br />

compromised and more at risk for further bone resorption<br />

(breakdown). Bone is living tissue that is constantly being<br />

broken down and rebuilt. This balance leads to healthy<br />

bone. However, if there is more breakdown than rebuild<br />

the result is osteoporosis. To prevent further breakdown and<br />

to assist in strengthening the bones, it is medically proven<br />

that bones need loading type of exercises to become denser<br />

such as weight-bearing and weight-resistance exercises.<br />

Although I suggest you start with the following three exercises<br />

4-5 times weekly, it is a necessity for you to discuss these<br />

exercises with your physician. The following routine hones<br />

in on the erector spinae muscle group; this long muscle is<br />

responsible for stabilizing the entire spine. 1) Stand Shoulder<br />

Blade Pinching: Stand with legs shoulder-width apart, knees<br />

slightly bent, stomach tight (tuck your navel towards your<br />

spine), hold onto 3lb. dumbbells in each hand, elbows bent<br />

90 degrees, palms facing each other, with both hands reaching<br />

out in front of you (do not fully straighten elbows), then<br />

pull arms towards chest as you pinch the shoulder blades<br />

together. Hold the contraction for 3 seconds – repeat for 10<br />

times / 3 sets. 2) Modified Standing Military Press: Standing<br />

position as #1, with both hands start at your shoulders,<br />

palms face forward – elbows are bent, push both arms (at<br />

the same time) up above eye level extending your elbows<br />

then return to starting position. Repeat for 10 times / 3<br />

sets. 3) Trunk Extension: Lie on your stomach (either on your<br />

bed but preferably the floor). Place a small pillow under<br />

your pelvis, head down (face is parallel to the floor), arms<br />

by your sides, raise your head (face is still parallel to the<br />

floor) and chest off the bed/floor and hold that position for 3<br />

seconds – repeat for 10 times / 3 sets.<br />

25

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