Gaucher Community News - National Gaucher Foundation
Gaucher Community News - National Gaucher Foundation
Gaucher Community News - National Gaucher Foundation
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Robin A. Ely, M.D.<br />
Medical Director<br />
800-504-3189<br />
Fax: 770-934-2911<br />
robinbmd@aol.com<br />
Brian E. Berman<br />
President<br />
800-504-3189<br />
Fax: 770-934-2911<br />
ngf@gaucherdisease.org<br />
Contact Us at the NGF<br />
Rhonda P. Buyers<br />
CEO/Executive Director<br />
800-504-3189<br />
FAX: 770-934-2911<br />
rhonda@gaucherdisease.org<br />
..............................<br />
Rosina M. Papantonio<br />
Marketing Director<br />
800-541-7549<br />
850-934-0377 or 850-934-0378<br />
Fax: 904-339-9980<br />
rosina@gaucherdisease.org<br />
Cynthia J. Frank<br />
Director of Development<br />
877-649-2742 or 415-839-5155<br />
Fax: 415-839-5189<br />
cyndi@gaucherdisease.org<br />
Linda Gometz<br />
Executive Assistant and Member Services<br />
800-504-3189 or 770-934-2910<br />
Fax: 770-934-2911<br />
linda@gaucherdisease.org<br />
Kristin D. Matthews<br />
Meeting Coordinator and Project Assistant<br />
800-504-3189 or 770-934-2910<br />
Fax: 770-934-2911<br />
kristin@gaucherdisease.org<br />
Barbara Lichtenstein<br />
Programs Director <strong>National</strong> <strong>Gaucher</strong> Care <strong>Foundation</strong><br />
CARE Program & CARE+PLUS Program,<br />
Care and Care+Plus.<br />
866-346-8176<br />
Fax: 301-963-4489<br />
blichtenstein@comcast.net<br />
NATIONAL GAUCHER CARE<br />
FOUNDATION, INC. (NGCF)<br />
CARE & CARE+PLUS PROGRAMS<br />
Much has changed in the <strong>Gaucher</strong> community. There<br />
have been new treatments approved, new treatment<br />
facilities identified, and many changes in protocol.<br />
We at the <strong>National</strong> <strong>Gaucher</strong> CARE <strong>Foundation</strong> want<br />
everyone to know that the CARE and CARE+PLUS<br />
Programs are available to all individuals, whether they<br />
are on therapy or not. It also makes no difference what<br />
drug has been prescribed by your physician.<br />
The following is a brief summary of both programs:<br />
CARE Program<br />
Eligible Expenses:<br />
Insurance premiums (primary, secondary or both)<br />
Eligibility Criteria:<br />
Anyone with a diagnosis of <strong>Gaucher</strong> disease who cannot<br />
afford their insurance premiums (as defined by the<br />
Advisory Board)<br />
CARE+PLUS Program<br />
Eligible Expenses:<br />
Diagnostic tests and other ancillary medical expenses<br />
for <strong>Gaucher</strong> disease not covered by insurance (excludes<br />
deductibles and co-payments). Infusion charges for enzyme<br />
replacement therapy not covered by insurance (excludes<br />
deductibles and co-payments). Travel expenses for<br />
<strong>Gaucher</strong> evaluations and/or to and from infusion sites.<br />
Over-the-counter medications prescribed for <strong>Gaucher</strong><br />
disease. Other <strong>Gaucher</strong>-related expenses deemed<br />
eligible by the Advisory Board.<br />
Eligibility Criteria:<br />
Anyone with a diagnosis of <strong>Gaucher</strong> disease who<br />
demonstrates an extraordinary financial hardship for<br />
eligible <strong>Gaucher</strong>-related expenses (as defined by the<br />
Board).<br />
If you are interested in these programs or have any<br />
questions, please call (301) 963-4489 or 866-346-8176.<br />
Printable brochures and forms and an application<br />
are online at the NGF website<br />
www.gaucherdisease.org<br />
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