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Thank you to Larrie & Diane Grenz! - The ALS Association Greater ...

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<strong>Thank</strong> <strong>you</strong> <strong>to</strong> <strong>Larrie</strong> & <strong>Diane</strong> <strong>Grenz</strong>! <strong>The</strong><br />

Summer Soiree was a hit!<br />

<strong>The</strong> <strong>ALS</strong> <strong>Association</strong>, <strong>Greater</strong> Sacramen<strong>to</strong> Chapter Newsletter<br />

Patients • Caregivers • Families • Donors<br />

Proudly serving 24 counties in Northern California<br />

from the Sierras <strong>to</strong> the Oregon Border<br />

2717 Cottage Way, Suite 17<br />

Sacramen<strong>to</strong>, CA 95825<br />

Phone (916) 979-9265<br />

Fax (916) 979-9271<br />

www.alssac.org<br />

Oc<strong>to</strong>ber 2011<br />

Support Groups<br />

& Special Events<br />

2<br />

Lend a Hand 3<br />

Ask the Doc 5<br />

Ladies Night Out 6<br />

Understanding<br />

Medi-Care<br />

7<br />

Resources 8<br />

Dear Friends:<br />

As <strong>you</strong> may know, we recently announced that two<br />

<strong>ALS</strong> <strong>Association</strong>-funded independent studies found<br />

a genetic abnormality that, according <strong>to</strong> researchers,<br />

is the most common cause of amyotrophic lateral<br />

sclerosis (<strong>ALS</strong>) and fron<strong>to</strong>temporal dementia (FTD).<br />

This is, without a doubt, an incredibly groundbreaking<br />

discovery that would not have been possible<br />

without the support of people like <strong>you</strong>.<br />

As reported in the recent online issue of the scientific<br />

journal Neuron, an unusual mutation was discovered,<br />

where a short DNA sequence is repeated<br />

many more times as compared <strong>to</strong> healthy individuals.<br />

<strong>The</strong> research projects were funded by <strong>The</strong> <strong>ALS</strong><br />

<strong>Association</strong>’s Abendroth <strong>ALS</strong> Genetic Discovery<br />

Fund, <strong>The</strong> <strong>ALS</strong> <strong>Association</strong>’s Florida Chapter and<br />

Richard Essey.<br />

“This finding has the potential <strong>to</strong> lead <strong>to</strong> significant<br />

insights in<strong>to</strong> how both of these neurodegenerative<br />

diseases develop, and may give us much needed<br />

leads in<strong>to</strong> new ways <strong>to</strong> treat our patients,” said Senior<br />

Investiga<strong>to</strong>r Rosa Rademakers,Ph.D., a neuroscientist<br />

at the Mayo Clinic campus in Florida.<br />

Advocacy and<br />

Public Policy<br />

Research<br />

Put <strong>you</strong>r Taxes<br />

<strong>to</strong> Work!<br />

Research<br />

<strong>Thank</strong> You ‘s<br />

9<br />

10,<br />

11<br />

12<br />

12,<br />

13<br />

14,<br />

15<br />

Investiga<strong>to</strong>rs worldwide have been committed <strong>to</strong> identifying the gene alteration, and<br />

until now it had remained elusive. This DNA sequence repeat accounts for nearly<br />

50% of familial <strong>ALS</strong> cases in Finland and more than a third of familial cases in other<br />

European populations. “<strong>The</strong> repeat expansion was highly associated with <strong>ALS</strong> and<br />

FTD in the Finnish population,” said lead investiga<strong>to</strong>r Bryan J. Traynor, M.D., Labora<strong>to</strong>ry<br />

of Neurogenetics, National Institute on Aging.<br />

Please take a moment <strong>to</strong> read the full research update at www.alssac.org. I encourage<br />

<strong>you</strong> share the research update on <strong>you</strong>r Facebook page of the newsletter <strong>to</strong> all<br />

<strong>you</strong>r family and friends.<br />

<strong>Thank</strong> <strong>you</strong> again for helping <strong>to</strong> make this <strong>ALS</strong> research breakthrough a reality.<br />

Sincerely,<br />

Amy Sugimo<strong>to</strong>, Executive Direc<strong>to</strong>r


Support Group Meetings and Special Events<br />

Page 2<br />

S A C R A M EN T O ( D o w n t o w n )<br />

S u t t e r C a n c e r C e n t e r<br />

2 8 0 0 L S t r e e t<br />

S a c r a m e n t o , C A 9 5 8 1 6<br />

Saturday, Oc<strong>to</strong>ber 15th<br />

Holiday Party —Saturday, November 19th<br />

10:30am-12:30pm<br />

P<strong>ALS</strong> & C<strong>ALS</strong><br />

(Breakout Session)<br />

Snacks and Beverages are<br />

provided at no cost.<br />

Parking: Patients can be dropped off at<br />

the front of Sutter Cancer Center near<br />

the valet.<br />

If <strong>you</strong> are in need of financial assistance<br />

for parking, please let us know—<br />

reimbursements are available for P<strong>ALS</strong><br />

and C<strong>ALS</strong>.<br />

S A C R A M EN T O ( F u l t o n A v e )<br />

C a r lt on Plaza<br />

1 0 7 1 Fu lt on Ave.<br />

S a cr am en <strong>to</strong> , C A 9 58 2 5<br />

Thursday, November 10th<br />

Thursday, December 8th<br />

Noon-2 pm<br />

P<strong>ALS</strong> & C<strong>ALS</strong><br />

(Combined Session)<br />

Snacks and Beverages are provided<br />

at no cost.<br />

R E D D I N G — P L E A S E N O T E<br />

A D D R E S S C H A N G E F O R<br />

R E D D I N G S U P P O R T G R O U P :<br />

S h a s t a R e g i o n a l M e d i c a l<br />

C e n t e r<br />

1 1 0 0 B u t t e S t .<br />

R e d d i n g , C A 9 6 0 0 1<br />

Oc<strong>to</strong>ber 27th<br />

November 24th<br />

No meeting on 12/22<br />

Noon-2 pm<br />

P<strong>ALS</strong> & C<strong>ALS</strong><br />

(Combined Session)<br />

Pizza lunch and beverages will be<br />

provided.<br />

Call 916-979-9265 for directions.<br />

STOCKTON<br />

Plymouth Square<br />

1319 North Madison Street<br />

6th Floor Conference Room<br />

S<strong>to</strong>ck<strong>to</strong>n, CA 95207<br />

Thursday, November 3rd<br />

Thursday, December 1st<br />

10am-Noon<br />

P<strong>ALS</strong> & C<strong>ALS</strong><br />

(Combined Session)<br />

Snacks and Beverages are provided<br />

at no cost.<br />

<br />

UPCOMING EVENTS:<br />

Holiday Party—Saturday, 11/19<br />

<br />

<br />

William Jessup University<br />

Basketball Tournament 11/11<br />

Sac State University Pack the<br />

House—stay tuned for dates<br />

Spring Fashion Show—more <strong>to</strong><br />

come<br />

<strong>Thank</strong> <strong>you</strong> for a successful<br />

Walk! Please watch for a<br />

special Walk edition of the<br />

newsletter in November.<br />

Contact Amy Sugimo<strong>to</strong> @ 916-979-9265 for<br />

information on how <strong>you</strong> can make <strong>you</strong>r promise <strong>to</strong>day.


Lend a Hand<br />

Page 3<br />

VOLUNTEERS WANTED:<br />

Office Help: If <strong>you</strong> have office and/or<br />

computer experience and would like <strong>to</strong><br />

volunteer at our Chapter office, please<br />

contact Amy Sugimo<strong>to</strong> at the Chapter.<br />

Duties include: data entry, answering<br />

phones and pho<strong>to</strong>copying.<br />

Driver: If <strong>you</strong> live in the Northern California<br />

area and would like <strong>to</strong> pick up or<br />

drop off loaned medical equipment <strong>to</strong><br />

our P<strong>ALS</strong>, we are looking for occasional<br />

help.<br />

Health Fair Ambassadors: Help us create<br />

<strong>ALS</strong> Awareness in conjunction with<br />

Community Health Charities.<br />

Special Events: Call Juliana Swars for<br />

more info. 916-979-9265.<br />

Our Leadership Team for 2011<br />

Scott Ehlen, President, American Greetings<br />

Rich Kline, Financial Advisor, Morgan Stanley<br />

Cherie Felsch, Secretary, UC Davis School of Veterinary Medicine<br />

Dianne Jared, Sacramen<strong>to</strong> <strong>The</strong>atre and Lighting<br />

Linda Hays, Sierra Property Management<br />

Steve Pereira, Owner, ADL (Aids for Daily Living)<br />

Sandie Ferguson, Neurology / Sutter Neuroscience Institute<br />

Dr. Bjorn Oskarsson, UC Davis Department of Neurology<br />

Beth Hassett, CEO, WEAVE (Women Escaping a Violent Environment )<br />

Mary Odbert, Consultant, MCO Associates<br />

Bob Osborne, R.N, Forbes Norris Center of Excellence<br />

Staff:<br />

Amy Sugimo<strong>to</strong>, Executive Direc<strong>to</strong>r<br />

Nancy Wakefield, Patient Service Manager<br />

Becki Moeller, Patient Services Coordina<strong>to</strong>r<br />

Alycia Cahill, Office Administra<strong>to</strong>r<br />

Juliana Swars, Development Associate


Ask the Doc Q & A with Edward Kasarskis, MD, PhD<br />

Page 4<br />

Edward Kasarskis, M.D., Ph.D. is Direc<strong>to</strong>r of the multidisciplinary <strong>ALS</strong> Center at the<br />

University of Kentucky Neuroscience Center in Lexing<strong>to</strong>n, Kentucky, professor in<br />

the Department of Neurology at the University of Kentucky, and Chief of Neurology<br />

at the VA Medical Center in Lexing<strong>to</strong>n KY.<br />

Q: I know two people with <strong>ALS</strong>, and both experienced a lot of stress in their lives.<br />

Could there be a connection between experiencing a great deal of stress and getting<br />

<strong>ALS</strong> And does pseudobulbar affect the course of <strong>ALS</strong><br />

Dr. Kasarskis<br />

A: Honestly, there is so much stress in people’s lives, if there were a direct connection between<br />

stress and developing <strong>ALS</strong>, we would most likely be seeing many, many more people with <strong>ALS</strong> than<br />

we actually do. But there is very little in the medical literature on this <strong>to</strong>pic.<br />

My personal observations support the concept that people who manage their stress well, who have<br />

adapted well <strong>to</strong> changing circumstances, and who have good social support systems, make informed,<br />

timely decisions about their disease and its management. <strong>The</strong> ability <strong>to</strong> deal effectively with<br />

stress certainly after being diagnosed with <strong>ALS</strong> involves focusing the mind on constructive approaches<br />

<strong>to</strong> the illness, which contributes <strong>to</strong> better survival and quality of life. <strong>The</strong>se issues need<br />

more research. We also know that people who go <strong>to</strong> multi-disciplinary <strong>ALS</strong> clinics experience enhanced<br />

survival as compared <strong>to</strong> those going <strong>to</strong> a single practitioner’s office for care. I frequently tell<br />

patients that "<strong>you</strong> can’t do <strong>ALS</strong> by <strong>you</strong>rself,” and our multi-disciplinary clinics offer <strong>ALS</strong> patients a<br />

variety of expertise, counseling, and support.<br />

How might all this be related <strong>to</strong> pseudobulbar affect, or PBA I wrote about PBA a few months ago<br />

concentrating on the clinical findings and the new treatment for PBA. To recap, PBA can occur with<br />

many neurologic diseases, including <strong>ALS</strong>, brain injury, or stroke. Patients may find themselves crying<br />

uncontrollably at something that is only moderately sad or laughing uncontrollably at mildly<br />

amusing things. In a broader context, PBA can be part of a constellation of additional symp<strong>to</strong>ms of<br />

cognitive difficulties, impaired planning, and impulsive behaviors (<strong>to</strong>gether labeled FTD, or fron<strong>to</strong>temporal<br />

dementia). Hence some, but not all patients with PBA, may have trouble planning and<br />

executing activities or actions with an eye <strong>to</strong> the future, or can find it hard <strong>to</strong> follow simple directions.<br />

<strong>The</strong>y can have difficulty following the health team’s recommendations or seeing the consequences<br />

of their actions, or inactions in this regard. In many ways these issues likely cause stress for the patient<br />

(they certainly do for the family) as they add confusion and complexity <strong>to</strong> the patient’s environment.<br />

Although the issues of stress, PBA, and FTD have not formally been linked in the research literature,<br />

common sense argues that stress is not helping the situation at all. <strong>The</strong> bot<strong>to</strong>m line about stress<br />

and <strong>ALS</strong> is relatively simple: To the extent <strong>you</strong> can find effective coping skills for dealing with the<br />

disease, <strong>you</strong> can expect <strong>to</strong> find real benefit.<br />

For more information on local services and programs for <strong>ALS</strong> patients and Caregivers please call 916-979-9265 or<br />

visit www.alssac.org<br />

Nancy Wakefield: Patient Care Manager, Becki Moeller, Patient Care Coordina<strong>to</strong>r


Care Services<br />

Page 5<br />

This Year’s Flu Season…and You<br />

It’s almost fall, time <strong>to</strong> talk about flu shots. Updated guidance for influenza<br />

vaccination for the upcoming 2011-2012 flu season has been released by<br />

the Centers for Disease Control and Prevention (CDC). This year’s flu vaccine<br />

virus strains are identical <strong>to</strong> those in last year’s vaccine. Although the<br />

strains are the same as those used in last year’s vaccine, even people who<br />

got vaccinated last year should get the flu shot again this season.<br />

Highlights of the recommendations include:<br />

Supply is expected <strong>to</strong> be good. <strong>The</strong> CDC is anticipating that about 166 million<br />

or so doses of vaccine will be produced this year, as compared <strong>to</strong> 157<br />

million doses that were distributed last year.<br />

Your best bet is <strong>to</strong> get the flu vaccine before the flu hits <strong>you</strong>r community. Ideal months are September<br />

and Oc<strong>to</strong>ber. But should <strong>you</strong> not get vaccinated then, it’s better later than not at all.<br />

A variety of different types of influenza vaccines are expected <strong>to</strong> be available during the upcoming<br />

influenza season, all containing the same antigenic composition.<br />

For more information, visit http://www.cdc.gov/flu.<br />

Medication S<strong>to</strong>rage: Avoid Heat, Cold and Humidity<br />

Extreme temperatures and humidity can have a big effect on both prescription<br />

and over-the-counter drugs. Most pharmaceutical companies recommend<br />

their products be s<strong>to</strong>red at a temperature of 68 <strong>to</strong> 77 degrees <strong>to</strong><br />

guarantee product integrity. Some experts say anything between 58 and 86<br />

degrees is probably fine. But during the heat of summer and the cold of<br />

winter, depending on where <strong>you</strong> keep <strong>you</strong>r medications, temperatures<br />

could go outside the recommended limits and either lose potency, physically<br />

change or be dangerous <strong>to</strong> take.<br />

Test strips are very sensitive <strong>to</strong> humidity, and antibiotics, when decaying, can cause s<strong>to</strong>mach or kidney<br />

problems. Some drugs, such as anticoagulants, hormones, and insulin and seizure medications<br />

can be especially sensitive.<br />

Experts suggest <strong>you</strong> avoid keeping medications in the bathroom because it’s a high-humidity environment.<br />

S<strong>to</strong>re them in a cool dry place like a kitchen cabinet or a closet. If possible, keep the medication<br />

in its original packaging. If <strong>you</strong> take insulin, keep unopened bottles in the refrigera<strong>to</strong>r and<br />

open bottles at room temperature.


Ladies Night Out!<br />

Page 6<br />

A very special thank <strong>you</strong><br />

<strong>to</strong> the <strong>Grenz</strong> and De-<br />

Fazio family for their<br />

hard work and effort in<br />

putting on the 2nd Annual<br />

‘Ladies Night Out’!<br />

<strong>Diane</strong> <strong>Grenz</strong> opened her<br />

beautiful Carmichael<br />

estate <strong>to</strong> the lovely ladies on Thursday, September<br />

1st. A wonderful array of food and wine was served<br />

with line dancing immediately following. <strong>The</strong> evening<br />

raised over $4,485 <strong>to</strong> help <strong>The</strong> <strong>ALS</strong> <strong>Association</strong>,<br />

<strong>Greater</strong> Sacramen<strong>to</strong> with its programs and services.<br />

<strong>Thank</strong> <strong>you</strong>!!


Understanding Medi-Care<br />

Page 7<br />

Attention Medicare Beneficiaries!<br />

Get Ready for the 2012 Medicare Part D Drug<br />

and Medicare Advantage Plans New Fall Open<br />

Enrollment dates which are Oc<strong>to</strong>ber 15 <strong>to</strong> December<br />

7<br />

During this Fall Open Enrollment, people with<br />

Medicare have the right <strong>to</strong> change their Medicare<br />

health and drug coverage options without restrictions.<br />

<strong>The</strong>ir changes will take effect on January 1,<br />

2012.<br />

You should review all <strong>you</strong>r coverage options<br />

even if <strong>you</strong> are happy with <strong>you</strong>r current coverage,<br />

because plans change their costs and<br />

benefits every year.<br />

Medicare Supplements (often called Medigap) only change premiums not coverage.<br />

You should receive the changes from <strong>you</strong>r Drug plans and Medicare Advantage Plans by Oc<strong>to</strong>ber 1.<br />

My Medicare 2012 Newsletter will have all the changes regarding Medicare, Part D, Advantage and Supplemental<br />

Plans as well a explanations about all of the types of plans and other miscellaneous helpful information.<br />

Go <strong>to</strong> my web site www.patsmedicalinsurancecounseling.com or call me at 916-408-0411 for me <strong>to</strong><br />

send <strong>you</strong> a copy or just call with questions.<br />

How You Can Help<br />

Remembering Loved Ones & Fighting <strong>ALS</strong> - Using the Right Words<br />

If providing compassionate care <strong>to</strong> people living with <strong>ALS</strong>, funding research for treatments and a cure and advancing<br />

public policy are important <strong>to</strong> <strong>you</strong>, we invite <strong>you</strong> <strong>to</strong> consider a bequest through <strong>you</strong>r will or living trust <strong>to</strong> <strong>The</strong> <strong>ALS</strong> <strong>Association</strong><br />

Blueprint Chapter. Below is language <strong>you</strong> can take <strong>to</strong> <strong>you</strong>r financial advisor for including our Chapter in <strong>you</strong>r will<br />

or living trust:<br />

General bequest.<br />

This is an outright bequest and is usually a gift of a stated sum of money.<br />

Sample language: I give $25,000 <strong>to</strong> <strong>The</strong> <strong>ALS</strong> <strong>Association</strong> , <strong>Greater</strong> Sacramen<strong>to</strong> Chapter, Sacramen<strong>to</strong>, CA for its general<br />

purposes.<br />

Percentage of remainder.<br />

This bequest gives a percentage of what is left of <strong>you</strong>r estate after taking care of loved ones.<br />

Sample language: I give <strong>The</strong> <strong>ALS</strong> <strong>Association</strong>, <strong>Greater</strong> Sacramen<strong>to</strong> Chapter, Sacramen<strong>to</strong>, CA __ percent of the rest,<br />

residue and remainder of my estate, for its general purposes.<br />

Contingent bequest.<br />

You can arrange <strong>you</strong>r bequest so that it is made on the condition that a certain event must occur before distribution <strong>to</strong><br />

our Chapter.<br />

Sample language: I give $20,000 <strong>to</strong> my daughter Shelly, provided she survives me; otherwise, I give it <strong>to</strong> <strong>The</strong> <strong>ALS</strong> <strong>Association</strong>,<br />

<strong>Greater</strong> Sacramen<strong>to</strong> Chapter, Sacramen<strong>to</strong>, CA for its general purposes.<br />

One of the reasons bequests are so popular is that <strong>you</strong> can change <strong>you</strong>r beneficiaries at any time. No matter which type<br />

of bequest <strong>you</strong> choose, <strong>you</strong>r generosity will leave a lasting legacy on people living with <strong>ALS</strong> and those who love them.<br />

Please feel free <strong>to</strong> Amy Sugimo<strong>to</strong> at (916) 979-9265 if <strong>you</strong> have any questions.


Resources<br />

Helpful Web Sites<br />

Americans with Disabilities Act<br />

www.usdoj.gov<br />

Page 8<br />

<strong>The</strong> Joint Commissions on the Accreditation Healthcare<br />

Organizations<br />

www.jointcommission.org<br />

Paralyzed Veterans of America<br />

www.pva.org<br />

Medicare<br />

www.medicare.gov<br />

National <strong>Association</strong> of Area Agencies on Aging<br />

www.n4a.org<br />

U.S. House of Representatives<br />

www.house.gov<br />

U.S. Senate<br />

www.senate.gov<br />

Legislation Status<br />

thomas.loc.gov<br />

Identify <strong>you</strong>r Member of Congress<br />

https://writerep.house.gove/writerep/welcome.shtlm<br />

California Department of Veterans Affairs (CDVA)<br />

Tele: 800-952-5626 (<strong>to</strong>ll free) Web: www.cdva.ca.gov<br />

Reno VA Medical Center<br />

SCI Telehealth Clinic Tele: 775-786-7200< ext. 1378<br />

VA Northern California<br />

Julie Moua, MSW, SCI/D Coordina<strong>to</strong>r Tele: 916-843-9130<br />

Social Security Administration<br />

Tele:800-772-1213 (<strong>to</strong>ll free) Web:www.ssa.gov<br />

Free App for the IPAD<br />

Developed by an <strong>ALS</strong> Patient. For more information please<br />

visit:<br />

www.verballyapp.com<br />

In Memoriam:<br />

We extend our deepest sympathy and support<br />

<strong>to</strong> those families and friends who have recently<br />

lost their loved ones <strong>to</strong> <strong>ALS</strong>:<br />

Robert Allen Newell<br />

David Rogers<br />

Jan Pinks<strong>to</strong>n


Advocacy and Public Policy<br />

PAGE 9<br />

Advocacy and Public Policy—<br />

Senate Committee Approves $6 Million for the <strong>ALS</strong> Registry<br />

Great news! <strong>The</strong> Senate Appropriations Committee has voted <strong>to</strong> provide<br />

an additional $6 million for the <strong>ALS</strong> Registry in 2012!! <strong>The</strong><br />

funding will allow the Registry <strong>to</strong> continue <strong>to</strong> identify cases of <strong>ALS</strong><br />

across the country, collect additional information about the disease<br />

and expand exciting projects such as adding a bioreposi<strong>to</strong>ry and <strong>to</strong>ols<br />

<strong>to</strong> help people with <strong>ALS</strong> learn about and enroll in clinical trials.<br />

This is a tremendous vic<strong>to</strong>ry for every person with <strong>ALS</strong>. It is a clear<br />

sign that Congress recognizes the critical role the Registry can play in<br />

the fight <strong>to</strong> find the cause, treatment and cure for <strong>ALS</strong>. It also is clear<br />

that <strong>ALS</strong> is a priority for the Senate. <strong>The</strong> Committee reduced funding,<br />

or eliminated it entirely, for most other health care programs. In fact,<br />

funding for the entire Department of Health and Human Services was<br />

reduced. Yet, the Senate maintained strong support for the Registry<br />

by keeping funding at the current level.<br />

David Buchannan, P<strong>ALS</strong>, Dan Lungren,<br />

Amy Sugimo<strong>to</strong><br />

<strong>The</strong> full Senate still must vote on the Department of Health and Human<br />

Services Appropriations bill that includes the Registry funding,<br />

and the House Appropriations Committee also must vote on their version<br />

of the bill. <strong>The</strong>refore, there are a number of steps remaining in the legislative process before we can declare vic<strong>to</strong>ry this year.<br />

We will keep <strong>you</strong> updated on the latest news and let <strong>you</strong> know when <strong>you</strong>r outreach <strong>to</strong> Congress is needed. <strong>Thank</strong> <strong>you</strong>!<br />

Protect Your Children with Maximum Credi<strong>to</strong>r and Divorce Protection—<br />

An irrevocable trust set up by someone other than the beneficiary provides ultimate credi<strong>to</strong>r protection. With divorce rate soaring, and an increase<br />

in lawsuits, credi<strong>to</strong>r protection should be a very important objective for clients who prepare an estate plan. Generally, a Gran<strong>to</strong>r of a trust can decide<br />

who may receive the benefit of the trust assets, and under what circumstances assets may be distributed. Property distributed outright <strong>to</strong> a<br />

trust beneficiary is subject <strong>to</strong> credi<strong>to</strong>rs’ claims. Property passed in trust may be protected.<br />

“I want my children <strong>to</strong> get one-third at age 25, one-third at age 30, and the final third at age 35.” STOP!! Don’t do it! This distribution scheme does<br />

not take in<strong>to</strong> account that many of our beneficiaries will at some point in life, be sued or divorce. When assets are distributed, they are unshielded<br />

from the safety-net of the trust and exposed <strong>to</strong> credi<strong>to</strong>rs and soon-<strong>to</strong>-be ex-spouses.<br />

An Estate Planning At<strong>to</strong>rney is able <strong>to</strong> draft a trust <strong>to</strong> protect trust beneficiaries, such as surviving spouses and children, from credi<strong>to</strong>rs and divorcing<br />

spouses. This means that when <strong>you</strong> die, and <strong>you</strong>r spouse remarries, the assests <strong>you</strong> left in trust are protected and directed <strong>to</strong> <strong>you</strong>r beneficiaries<br />

of choice.<br />

Beneficiaries may even serve as the trustee of Support trusts. This way, they are able <strong>to</strong> use the trust assets for nearly any reason, but still have<br />

protection from credi<strong>to</strong>rs. Language of the trust is careful <strong>to</strong> limit distributions of both trust income and principal <strong>to</strong> reasons such as health, education,<br />

maintenance, and support. Further, the trust directs the trustee not <strong>to</strong> distribute assets <strong>to</strong> the beneficiary’s estate, his credi<strong>to</strong>rs, or credi<strong>to</strong>rs of<br />

his estate. This language keeps the trust out of the beneficiaries’ estate for estate tax purposes as well as provides credi<strong>to</strong>r protection. Discretionary<br />

Trusts, which give an independent trustee complete discretion over distributions, provide the best credi<strong>to</strong>r and divorce protection. Trusts drafted<br />

with manda<strong>to</strong>ry distributions are inadequate. Forced trust distributions unnecessarily expose <strong>you</strong>r beneficiaries <strong>to</strong> credi<strong>to</strong>rs and divorce. Support<br />

Trusts do a better job, and Discretionary Trusts offer maximum protection against credi<strong>to</strong>rs and divorce.<br />

This article is based on an article written by Steven J. Oshins in<br />

November 2008.<br />

Dustin MacFarane, At<strong>to</strong>ney<br />

Health Care Estate Planning<br />

www.MacFarlaneLegal.com<br />

Bob Scrivano<br />

www.AssetsandAging.com<br />

800-999-8007


Research<br />

PAGE 10<br />

Proposed PDUFA Agreement: the Right Prescription for People with Lou Gehrig's Disease<br />

<strong>The</strong> <strong>ALS</strong> <strong>Association</strong> applauds the proposed agreement for the reauthorization of the Prescription Drug User Fee<br />

Act (PDUFA), which includes provisions that would help <strong>to</strong> encourage and expedite the approval of new treatments<br />

for rare diseases like <strong>ALS</strong>, also known as Lou Gehrig’s Disease. <strong>The</strong> proposed agreement was released by the<br />

Food and Drug Administration (FDA) on September 1.<br />

PDUFA authorizes the FDA <strong>to</strong> collect fees from companies that develop drugs and biologic products. <strong>The</strong>se fees<br />

help the agency cover the costs of drug reviews and currently account for about half of the agency’s drug review<br />

costs. <strong>The</strong> law originally was established in 1992 and has been reauthorized every five years since that time. <strong>The</strong><br />

current law expires next year unless it is reauthorized by September 30, 2012.<br />

“<strong>The</strong> reauthorization of PDUFA is critical <strong>to</strong> discovering a treatment and cure for <strong>ALS</strong>,” said Jane Gilbert, President<br />

and CEO of <strong>The</strong> <strong>ALS</strong> <strong>Association</strong>. “<strong>The</strong>re is no effective treatment for <strong>ALS</strong> and it is fatal in an average of just two<br />

<strong>to</strong> five years. By providing the agency with the resources it needs <strong>to</strong> review new treatments and ensure their efficacy<br />

and safety, PDUFA helps <strong>to</strong> make sure that funding limitations do not block innovative treatments from reaching<br />

the patients who so urgently need them.”<br />

“<strong>The</strong> additional resources and the establishment of drug review timeframes are important elements of PDUFA,”<br />

said Steve Gibson, <strong>The</strong> <strong>ALS</strong> <strong>Association</strong>’s Chief Public Policy Officer. “This proposal is particularly significant because<br />

it was developed with the input of the patient community in partnership with the FDA and industry. And it is<br />

significant because it includes key provisions that promote the development of new treatments and recognize that<br />

the practice of medicine is not a one-size-fits-all proposition, especially when it comes <strong>to</strong> a disease like Lou Gehrig’s<br />

Disease.”<br />

Since July 2010, <strong>The</strong> <strong>ALS</strong> <strong>Association</strong> participated in monthly meetings with FDA officials <strong>to</strong> bring the perspective<br />

of people with <strong>ALS</strong> <strong>to</strong> the discussion on the reauthorization of PDUFA. Three key provisions advocated by <strong>The</strong><br />

<strong>Association</strong> were included in the proposed agreement. <strong>The</strong>y include:<br />

Developing Treatments for Rare Diseases: Directs FDA <strong>to</strong> issue regula<strong>to</strong>ry policies and guidance that encourage<br />

the development of drugs <strong>to</strong> treat rare diseases and <strong>to</strong> include patients as active participants in this<br />

process.<br />

Assessing Risk-Benefit: Instructs the agency <strong>to</strong> develop an objective and qualitative framework for assessing<br />

risk and benefit during the drug review process and <strong>to</strong> ensure patient involvement. <strong>The</strong> provision takes in<strong>to</strong><br />

account the fact that people with <strong>ALS</strong> who have no treatment options and who will die in just two <strong>to</strong> five years<br />

have a much different view of risk and benefit than does someone with a treatable or chronic condition.<br />

Utilizing Biomarkers in Clinical Trials: <strong>The</strong> proposal encourages greater use of biomarkers and other markers,<br />

or “sign-posts,” <strong>to</strong> help determine risk and benefit when reviewing new drugs. Biomarkers have the potential<br />

<strong>to</strong> significantly accelerate access <strong>to</strong> new drugs by helping <strong>to</strong> determine much sooner whether a treatment<br />

works and in which patients.<br />

“Congress has authorized PDUFA four times beginning in 1992. But perhaps no other version of the law is as important<br />

<strong>to</strong> people with <strong>ALS</strong> as PDUFA V,” said Gibson. “Right now people with <strong>ALS</strong> have no way <strong>to</strong> defend themselves<br />

in the fight against the disease. It will take their lives. But PDUFA V can help them fight back. It promotes<br />

new treatments. It speeds access. And it makes sense. We urge Congress <strong>to</strong> swiftly adopt the PDUFA V proposal<br />

in 2012.”<br />

<strong>The</strong> proposed agreement released by the FDA is available on the FDA website here:<br />

http://www.fda.gov/downloads/ForIndustry/UserFees/PrescriptionDrugUserFee/UCM270412.pdf.<br />

<strong>The</strong> <strong>ALS</strong> <strong>Association</strong> is the only non-profit organization fighting Lou Gehrig’s Disease on every front. By leading<br />

the way in global research, providing assistance for people with <strong>ALS</strong> through a nationwide network of chapters,<br />

coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships,<br />

<strong>The</strong> <strong>Association</strong> builds hope and enhances quality of life while aggressively searching for new treatments and a<br />

cure.


Research<br />

PAGE 11<br />

Research Indicates TDP-43 and FUS/TLS Work Together<br />

Although several new genes have now been linked <strong>to</strong> <strong>ALS</strong> including the recent exciting finding of mutations in the<br />

gene Ubiquilin-2 linked <strong>to</strong> familial <strong>ALS</strong>, exactly how these mutations cause disease remains unclear and is the focus<br />

of research in labs world-wide. Two proteins with similar structure and function, TDP43 and FUS, linked <strong>to</strong><br />

familial <strong>ALS</strong> with and without fron<strong>to</strong>temporal dementia are thought <strong>to</strong> be involved in the disease, either by causing<br />

some new <strong>to</strong>xic property or by a loss of their normal function.<br />

To identify the potential mechanism, investiga<strong>to</strong>rs led by Brian McCabe, Ph.D., assistant professor of pathology &<br />

cell biology in the Taub Institute for Research on Alzheimer’s Disease and the Aging Brain and a member of the<br />

Center for Mo<strong>to</strong>r Neuron Biology and Disease at Columbia University Medical Center used the Drosophila-fly<br />

model. <strong>The</strong>y demonstrated that these two proteins work in tandem <strong>to</strong> support the long-term survival of mo<strong>to</strong>r neurons.<br />

<strong>The</strong> findings were published in the September 1, 2011 online edition of the Journal of Clinical Investigation.<br />

<strong>The</strong> investiga<strong>to</strong>rs demonstrate that<br />

the drosophila TDP-43 and FUS/TLS<br />

proteins bind <strong>to</strong> each other, and using<br />

the mutant proteins linked <strong>to</strong> familial-<strong>ALS</strong>,<br />

they show that these proteins<br />

work <strong>to</strong>gether in a common genetic<br />

pathway. <strong>The</strong>y show that<br />

FUS/TLS mutant Drosophila can be<br />

fully rescued by wild type human<br />

FUS/TLS but not familial <strong>ALS</strong> mutant<br />

versions. Finally they show that over<br />

expression of FUS/TLS can effectively<br />

rescue TDP-43 mutants. <strong>The</strong>ir<br />

results argue that loss of a common<br />

molecular activity that requires TDP-<br />

43 and FUS/TLS could contribute <strong>to</strong><br />

<strong>ALS</strong>, in contrast <strong>to</strong> current models<br />

suggesting <strong>to</strong>xic accumulation.<br />

“<strong>The</strong> two genes make proteins with<br />

similar form and function, which suggested<br />

<strong>to</strong> us that they could work<br />

<strong>to</strong>gether, and that disruptions of either<br />

gene would affect neuronal survival,”<br />

said Dr. McCabe, who was<br />

awarded his first grant for <strong>ALS</strong> research<br />

from <strong>The</strong> <strong>Association</strong>. “I am<br />

very grateful <strong>to</strong> <strong>The</strong> <strong>ALS</strong> <strong>Association</strong><br />

for my first <strong>ALS</strong> grant on <strong>ALS</strong>2,<br />

which set us off on this path,” added<br />

Dr. McCabe.<br />

“Understanding how these two proteins<br />

cause disease is critical for<br />

therapeutic development. Further<br />

studies <strong>to</strong>gether with this new finding<br />

will provide the necessary clues <strong>to</strong><br />

help intervene and develop appropriate<br />

treatments," commented <strong>ALS</strong><br />

<strong>Association</strong> Chief Scientist Lucie<br />

Bruijn, Ph.D.


Put <strong>you</strong>r taxes <strong>to</strong> work!<br />

Page 12


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Tim Hor<strong>to</strong>n<br />

Steve Howe<br />

Bonnie Howell<br />

Katherine Hrundas<br />

Rachel Huang<br />

Christine Hucks<br />

Eilene Hudgins<br />

Kimmie Huffman<br />

Thomas Hughes<br />

Rebecca Hulsey<br />

Alexis Humphrey<br />

Jacque Humphrey<br />

Michele Humphrey<br />

Elizabeth Husmann<br />

Amanda Hutchinson<br />

Valerie Hut<strong>to</strong>n<br />

Patricia Huyssoon<br />

Teresa Hyl<strong>to</strong>n<br />

Edith Ignacio Neumiller<br />

Linda Ikeda<br />

Raymond/Dorothy Ille<br />

Cynthia Irvine-Johnson<br />

Cindy Isdahl<br />

Isabel Isherwood<br />

Paula Islas<br />

Steve & Gwen I<strong>to</strong><br />

Kim Ivans<br />

Jean Jackman<br />

Marcella Jaeger<br />

Vic<strong>to</strong>r James<br />

David Janis<br />

Dianne Jared<br />

Kathleen Jared<br />

Lee Jared<br />

Darlene Jemmings<br />

Rennie Jemmings<br />

Samantha Jenkins<br />

Daniel Jensen<br />

Joanne Jensen<br />

Madeleine Jensen<br />

Yasmina Jimenez<br />

Brad Johansen<br />

Bob And Karen Johnson<br />

Carole Johnson<br />

Heather Johnson<br />

Jackel Johnson<br />

Janet Johnson<br />

Judy Johnson<br />

Pat Johnson<br />

Patricia Johnson<br />

Patricia Jones<br />

Rexanne Jones<br />

Janet Jopson<br />

James Jorgensen<br />

Lori Ann Joseph<br />

Anna Juarez-Gutierrez<br />

Nancy Judkins<br />

Juanita Jue<br />

Rich Juhasz<br />

Wendy Kagiyama-Yee<br />

Janet Kaminsky<br />

Marian Kammerer<br />

Kathy Kanaske<br />

Laurie Kandel<br />

Jose Karry<br />

Dallas Kassing<br />

Paul Kawata<br />

Taralyn Kawata<br />

Skip Kearney<br />

Darlene Keeter<br />

Gloria Kelley<br />

Mary Kelley<br />

Maryanne Kelly<br />

Tamra Kelly<br />

Judith Kenefick<br />

Marlana Kenilvort<br />

Esther Kennedy<br />

Julie Kennedy-Naus<br />

Kathy Kenney<br />

Anita Kermes<br />

Carol Ker<strong>to</strong>n<br />

Doris Keyes<br />

Kathryn Keyes<br />

James Khov<br />

Jernee Killgore<br />

Caroline Kilvein<br />

Min Kim-Allen<br />

Janice Kimmel<br />

Donelle Kincaid<br />

Dianne King<br />

M King<br />

Martha King<br />

Dane Kingrey<br />

Anthony Kirk<br />

Bonnie Kirschman<br />

Mary Kirschman<br />

Thomas Kish<br />

Stephanie Kjensrud<br />

Jody Klatt<br />

Lynette Klein<br />

Laura Kline<br />

Erica Knauff<br />

Jon Knight<br />

Michael Koessel<br />

Linda Koire<br />

Carole Kovnick<br />

Jacquie Kramm<br />

Barbara Kranz<br />

Vicki Kretsinger Grabert<br />

Tyler Krueger<br />

Linda Kuk<br />

Norb Kumagai<br />

Parmeswar Kumar<br />

Sarah Kunka<br />

Carr Kunze<br />

Sarah Kutter<br />

Melissa L<br />

Laura Lacy<br />

Kristina Lagana<br />

Leonard Lagden<br />

Rachel Lagomarsino<br />

Barbara Laroa<br />

Ilah Larson<br />

Nicole Laubach<br />

Law Offices Of David<br />

Robert Lawson<br />

Laurie Lea<br />

KC Leader<br />

Kim Leclaire<br />

Tina Ledger<br />

Judy Lee<br />

Justin Lee<br />

Rebecca Lee<br />

Ronald Lee<br />

Bruce Lee<br />

<strong>Diane</strong> Leeds<br />

Annie Legnon<br />

Justin Lehr<br />

Donald & Zale Leigh<br />

Patty Leliakov<br />

Clint Lemay<br />

Janet Lenocker<br />

Mark Lenocker<br />

Norma Leopold<br />

Vince Lepera<br />

Bridget Levich<br />

Julia Levine<br />

Dale Lewis<br />

Nancy Libbey<br />

Heather Lim<br />

Pamela Lim<br />

Steffany Lim<br />

Ty Lim<br />

Vinee Lim<br />

Carolyn Lincoln<br />

Generosa Lit<strong>to</strong>n<br />

IUE-CWA Local 89119<br />

Peggy Loch<br />

Helen Locke<br />

Heidi Lockwood<br />

John Loera<br />

Jan Logan<br />

Chris Logan<br />

Mable Logo<br />

Bronwyn Long<br />

Cecilia Long<br />

Catherine Lopez<br />

Amy Lopez-Buescher<br />

Jacklyn Loret De Mola<br />

David Low<br />

Kermit Lowe<br />

Laura Lozano<br />

Rafael Luevano<br />

Steve Lujan<br />

Rob Luntz<br />

Sara Lustbader<br />

James Luthin<br />

Ron Lutsock<br />

Carol Lynn<br />

Scott Macdonald<br />

Bernadete Macedo<br />

Joe Macedo<br />

Francisco Macias<br />

Patrick Mackin<br />

Glenna Madeiros<br />

Griselda Madrigal<br />

Janine Ma-Golding<br />

Nancy Mah<br />

Saneil Maharaj<br />

Dominick Maio<br />

Amy Maldonado<br />

Joann Maldonado<br />

Dave Mang<br />

Zafima Mangornong<br />

<strong>Diane</strong> Mannina<br />

Hans Manseth<br />

Nancy Mansfield<br />

Alan Marchick<br />

Lee Marengo<br />

Gayle Margarin<br />

Sharon Margetts<br />

Kristin Margolis<br />

Jeannie Markham<br />

Bette Marley<br />

Karen Marquez<br />

Dawn Marriott<br />

Chad Marshall<br />

Polly Marshall<br />

Renee Marshall<br />

Tom & Jane Marshall<br />

Lily Martinez<br />

Melissa Martinez<br />

Janet Martin-Mccoey<br />

Ken Marzion<br />

Robert Matamoros<br />

John Matheny<br />

Gail Mathis<br />

Katherine Matista<br />

Lynn Matsuda<br />

Christina Maxsom<br />

John Mayhew<br />

Pamela Mayhew<br />

John Mayhew Sr<br />

Cathy Mcalister<br />

Nancy McBeen<br />

Robert McCabe<br />

Linda McCoy<br />

Lois McCray<br />

Erin McDermand<br />

Jeanine McElwain<br />

Barby McGinnis<br />

Richard McGinnis<br />

Brigitte McGuire<br />

Kathryn McGuire<br />

Laura McHugh<br />

Gail McKay<br />

Judi McKeehan<br />

Taylor McKillop<br />

Terri McKillop<br />

Jennifer McLane<br />

JoAnn McLennan<br />

Sharon McLin<br />

Sean McNabb<br />

Michael McNamara<br />

Amy McNece<br />

Brandi McNeil<br />

Pat McVicar<br />

Jasmine Mead<br />

Jane Means<br />

Paula Meehan<br />

Dolores Mejias<br />

Debbie Mello<br />

Michaella Meltzer<br />

Patricia Mendez<br />

Anapatricia Mercado<br />

Dennis Merrill<br />

Ruth Messersmith<br />

Carrie Mettler<br />

Michele Metz<br />

Beth Meyer<br />

Kathy Meyer<br />

Georgia Mikacich<br />

Cynthia Milford<br />

Beau Miller<br />

Judy Miller<br />

Justin Miller<br />

Mark Miller<br />

Sharon Miller<br />

Stacy Miller<br />

Jan Mills<br />

Sandra Milota<br />

Susan Mincks<br />

Toni Minoletti<br />

Sena Minshew<br />

Carol Misquez<br />

Joan Mitchell<br />

Julia Mitchell<br />

Robert Mjos<br />

Lucy Mochuziki<br />

Kevin & Cindy Mongan<br />

Jenny Montenegro<br />

Laura Montenegro<br />

Jennifer Montero<br />

John Montero<br />

Darcy Montevaldo<br />

Tara Montgomery<br />

Vanessa Mon<strong>to</strong>ya<br />

Gary Moore<br />

Nancy Moore<br />

Jan Moreno<br />

Amanda Morgan<br />

James Morgan<br />

Judy Morgan<br />

Liane Morgan<br />

Terry Morgan<br />

Yuki Mori<br />

Jan Moroni<br />

Janet Moroni<br />

Alan Morris<br />

David Morrow<br />

Kathi Morser<br />

John A Mor<strong>to</strong>n<br />

Leslie Moser<br />

Wai Moy<br />

Joanne Moylanaube<br />

Lisa Mueller<br />

Joseph Mullin<br />

Charlene Mullins<br />

Bonnie Munson<br />

Pearlene Munson<br />

Cherie Myers<br />

Debbie Myers<br />

Pritesh Naidu<br />

Regina Narbarte<br />

Raymond Narducy<br />

Lisa Navarrete<br />

Julie Neberman<br />

Kris Needles<br />

Janine Neely<br />

Tom & Linda Nelson<br />

Cynthia Nelson<br />

Elaine Nerland<br />

Gaudelia Newhart<br />

Jerry Newman<br />

Mary Newman<br />

Karen New<strong>to</strong>n<br />

Cindy Ng<br />

Jenny Ngo<br />

Lan Ngo<br />

Mai Ngo<br />

Tawnie Ngo<br />

Huyen Ngo<br />

Erick Nguyen<br />

Huyen Nguyen<br />

Tri Nguyen<br />

Nhu Nhan<br />

Norma Nicholson<br />

Nancy Nielsen<br />

Marilyn Nielson<br />

Ross Nishio<br />

Garrett Nishio<br />

Grant Nishio<br />

John Nishio<br />

Marilyn Nishio<br />

Sandora Nishio<br />

Thoy Nishio<br />

Wayne Nishio<br />

Tina Nop<br />

Nor Cal Mobility<br />

Tom North<br />

Albert Novo<br />

Joe Novo<br />

Mary Novo<br />

Rebecca Nugent<br />

William & Arlene Nyikes<br />

Diana Nyman<br />

David O'Brien<br />

Gail O'Connell<br />

Bobbie Odehnal<br />

Kimberly Ogg<br />

Joanne Ojima<br />

Leslie Olaya<br />

Mary Oliver<br />

Mary Ann Olson<br />

Wayne Olson<br />

Nelia Ordona<br />

Martha Ortega<br />

Matthew Ortega<br />

Melinda Ortega<br />

Kyle Osa<strong>to</strong><br />

Jayna Osborne<br />

Shannon Osdol<br />

Bjorn Oskarsson<br />

Isabel Ott<br />

Sharon Overbagh<br />

Pacific Mobile Recorders<br />

Jessica Page<br />

Joanne Page<br />

Richard Paine<br />

Jonathan Palfreyman<br />

Ralph Palmer<br />

Kathryn Palmieri<br />

Kim Palmos Weikel<br />

Ann Panek<br />

Teresa Pappas<br />

Dale Parker


Marilyn Partrite<br />

Gerry Pasquetti<br />

Southsada Pathammavong<br />

Tia Boatman Patterson<br />

Nancy Paul<br />

Jewel Payne<br />

Linda Pechnik<br />

Patricia Pechtel<br />

<strong>Diane</strong> Peck<br />

Carmen Pena<br />

Julie Pendergast<br />

Gladis Perez<br />

Julio Perez<br />

Maria Perez<br />

Joann Peters<br />

Jean Petersen<br />

Cathi Peterson<br />

Jamie Peterson<br />

Beverly Petrovic<br />

Amber Philips<br />

Karen Phillips<br />

Kendra Phillips<br />

Warner Phillips<br />

Wendy Phillips<br />

Diana Phung<br />

Rose Phung<br />

Michelle Pignataro<br />

Heather Pilmanis<br />

Marty Pilmanis<br />

Danielle Pin<strong>to</strong><br />

John Piotrowski<br />

Jeff Plank<br />

Regina Pluckebaum<br />

Linda Podany<br />

Cam Poggensee<br />

Daniel Pollard<br />

Carol Poncia<br />

Tony & Blanche Pontarolo<br />

Claire Poole<br />

Jane Pope<br />

Vicki Pope<br />

Jennifer Porter<br />

Virginia Porter<br />

Marjorie Powell<br />

Greg Prax<br />

Premier Medical<br />

Justin Prewitt<br />

Shirley Priebe<br />

Prostate & Cancer Research<br />

Tessa Puccinelli<br />

Janet Puckett<br />

Johnnie Pugh<br />

John Pyle<br />

Christine Pyles<br />

Debra Quealy<br />

Mary Raffanti<br />

Nariman Rahimzadeh<br />

<strong>Thank</strong> <strong>you</strong> <strong>to</strong> our September Donors! You make our programs and services possible.<br />

Christine Rakela<br />

Carolyn Ramos<br />

Rancho Cordova Emblem<br />

Rancho Cordova Loom<br />

Marcia Rapoza<br />

Laura Rasmussen<br />

Real Mex Restaurants<br />

Edith Recendez<br />

Recolect<br />

Thomas Reddy<br />

Francine Reid<br />

Sigrida Reinis<br />

Marita Reitano<br />

Darcy Rhinehart<br />

Carol Ribet<br />

Jeanette Rice<br />

Carol Richardson-Cole<br />

Bill Richmond<br />

Lane Richmond<br />

Betty Richter<br />

Jacklynne Riley<br />

Marie Rim<br />

Constance Ring<br />

Melissa Riqueros<br />

Oscar Rivas<br />

Emilie Robba<br />

Jeffrey Robbins<br />

Robert Lumber Co<br />

Margaret Robertson<br />

Lana Roberts-Smiley<br />

Kathleen Robins<br />

Kara Robinson<br />

Kyrie Robinson<br />

Cara Rodoni<br />

Brandon Rogers<br />

Ann Roland<br />

Dennis Rollins<br />

Charolette Romine<br />

Luis Rosales<br />

Jeanette Rosenberg<br />

Sharon Ross<br />

Dian Rossotti<br />

Sue Roth<br />

Paul Rowan<br />

Barette Roznowski<br />

Susan Rupert<br />

Jung Ryu<br />

Karen Saba<br />

Mouang Saephan<br />

Melanie Sakia<br />

Peter Salamon<br />

Carin Sanchez<br />

Cordelia Sander<br />

Michael Sarachman<br />

Barbara Sargent<br />

Cynthia Sasser<br />

Nancy Sa<strong>to</strong><br />

Elizabeth Sawyer<br />

Paul Scanlan<br />

Karen Schaefer<br />

Kristina Schasker<br />

Shari Scheller<br />

Noelle Schenone<br />

Eric Scher<br />

Jesse Schester<br />

Peter Schiessl<br />

Cindy Schlenz<br />

John Schmidt<br />

Gary Schoennauer<br />

Joseph Schoennauer<br />

Anne Schroder<br />

Stephanie Schroeer<br />

Pamela Schubert<br />

Bob Schultz<br />

Gail Schurr<br />

Ellen Schwartzmeyer<br />

Karen Scofield<br />

Wes Scott<br />

John Se<strong>to</strong><br />

Robin Shakely<br />

Sharma Shalendra<br />

Adrienne Shapiro<br />

Dr. Shawa<br />

Jean Sheehan<br />

Sonja Shelly<br />

Patricia Shel<strong>to</strong>n<br />

Ellen Sherman<br />

Jennifer Shin<br />

Chiyo Shingu<br />

Lillie Shiroi<br />

Matthew Shiroi<br />

Ryan Shiroi<br />

Sharon Shiroma-Lee<br />

Justin Shobe<br />

<strong>The</strong>resa Short<br />

Marian Sideris<br />

Jerry Siegfried<br />

Jordan Sienkiewicz<br />

Mark Sienkiewicz<br />

Taylor Sienkiewicz<br />

Tiffani Sienkiewicz<br />

Francesca Sigerseth<br />

Allegra Silberstein<br />

Susan Siligo<br />

Joseph Silva<br />

Shawn Silveria<br />

Bill Silvershield<br />

Susan Silverstein<br />

Angela Simon<br />

Pinky Singh<br />

Lee Sizemore<br />

Skydance Skydiving<br />

Julie Sly<br />

Linda Smalridge<br />

Jerry Smart<br />

Allissa Smith<br />

Cassandra Smith<br />

Darlene Smith<br />

Dona Smith<br />

George Smith<br />

Joyce Smith<br />

Kathleen Smith<br />

Leslie Smith<br />

Marguerite Smith<br />

Melodie Smith<br />

Ronald Smith<br />

Sharon Smith<br />

Shirley Smith<br />

Toni Smith<br />

Angela Snyder<br />

Lawrence Snyder<br />

Ken Snyder<br />

John Soderbaum<br />

Mora Som<br />

Laurie Soper<br />

Vivian Sophia<br />

J. So<strong>to</strong> Mukai<br />

Eguene Speck<br />

Maria Sperber<br />

Janice St. Amant<br />

Richard St. Clair<br />

Shirley St. Clair<br />

Kyle Steele<br />

Johanna Stek<br />

Timothy Stenvick<br />

John Stevens<br />

Mart and Jeanne Stevenson<br />

Marty Stevenson<br />

Rose Stewert<br />

Gina Stingley<br />

Anneliese Stites<br />

Ryan Stites<br />

Patricia Stith<br />

Tami and Matt S<strong>to</strong>lte<br />

M'Lisse S<strong>to</strong>ne<br />

Patsy S<strong>to</strong>neking<br />

Shirley S<strong>to</strong>rmes<br />

Deb S<strong>to</strong>ut<br />

Jean Stribling<br />

Linda Strike<br />

Sheila Strong<br />

Shirley Strong<br />

Mary Suchow<br />

Amy Sugimo<strong>to</strong><br />

Laura Suliven<br />

Celine Sullivan<br />

Pamela Sullivan<br />

Midori Sunahara<br />

Judith Sutherland<br />

Gail Sut<strong>to</strong>n<br />

Erin Swientek<br />

Kelly Switzler<br />

Alice Sykes<br />

Beverly Sykes<br />

Jerilyn Sykes<br />

Tom Sykes<br />

Tammy T<br />

Ashley Takimo<strong>to</strong><br />

Glenda Takimo<strong>to</strong><br />

Hisayo Takimo<strong>to</strong><br />

Jordan Takimo<strong>to</strong><br />

Joshua Takimo<strong>to</strong><br />

Justin Takimo<strong>to</strong><br />

Stephen Takimo<strong>to</strong><br />

Edward Talley<br />

Elaine Talley<br />

Steven Talley<br />

Wilson Talley<br />

Thosana Tan<br />

Glenn Taniguchi<br />

Larry Tanner<br />

Eileen Tasam<br />

Gail Tateyama<br />

Evelynn Taylor<br />

Pam Taylor<br />

Megan Teculver<br />

Debra Teculver<br />

K E Teel<br />

Jennifer Terra<br />

Stanley Terra<br />

Dianne Terwilliger<br />

Margaret Tharladson<br />

Cindy Thatcher<br />

Brian Thiede<br />

Charmaine Thomas<br />

Kiersten Thomas<br />

Lexi Thomas<br />

Janice Thomas<br />

Al Thompson<br />

Bob Thompson<br />

Jeff (T$) Thompson<br />

Mary Thompson<br />

Ron Thompson<br />

Barbara Thorne<br />

Teresa Thurs<strong>to</strong>n<br />

Nancy Tilman<br />

Ottis Timm<br />

Patricia Timothy<br />

David Tipp<br />

Sue Tipp<br />

Company Tobi Ati<br />

Tobi Ati<br />

Carl Toft<br />

Tracy Tomasky<br />

Sadye Tow<br />

Susan Tuana<br />

Daniel Tupper<br />

Rhonda Turner<br />

Staci Tye Anne Wilkinson<br />

UC Davis Betty Williams<br />

United Way Ken Williams<br />

Alan Utzig Kevin Williams<br />

Mary Valentine Stephanie Williams<br />

Tammy Vallejo Charlie Wilson<br />

Isidro Valverde Tamara Wilson<br />

Linda Van Rees Amy Wind<br />

Glen Vandyke Ashli Winkler<br />

Shannon Vaneil Nicki Winter<br />

Kathy Vanina Carolyn Wischhusen<br />

Jescalyn Vazquez Mary Wise<br />

Andre Vazquez Ellie Wolpaw<br />

Michelle Veo Daniel Wood<br />

Regina Viani Haley Wood<br />

Teresa Viles-Reed <strong>Diane</strong> Woodruff<br />

Alejandro Vivas Patricia Woods<br />

Melinda Vivas Kathy Woodward<br />

Susan Vlautin Illinois Tool Works<br />

Lori Voelker Doris Wright<br />

Dean Vogel Randy Wright<br />

Todd Voth Emily Wu<br />

Steve Waldman Garry Wyndham<br />

Lois Walker Michele Yake<br />

Marion Walker Ronald Yamada<br />

Chris Wall Karen Yamashita<br />

Kenneth Wallace Sheryl Yamashita<br />

Stephen Wallraven May Yang<br />

Walmart 5192 Alan Yee<br />

Jeanine Walter Helen Yee<br />

Terry Walter Ivan Yee<br />

Carol Walters Janice Yenovkian<br />

Charles Walters Ron & Shuyi Yi<br />

Chris Wal<strong>to</strong>n Patricia Yocum<br />

Christine Wal<strong>to</strong>n Linda York<br />

Chrislynn Warner Cristina Young<br />

Warren G Bender Regina Zehnder<br />

Jacqueline Warych Robert Zehnder<br />

Kathy Waterhouse Vic<strong>to</strong>r Zeiter<br />

Joey Waters Adelina Zendejas<br />

Lori Waters<br />

<strong>Diane</strong> Watkins<br />

Ron Watkins<br />

John Way<br />

William Webb<br />

Nancy Weddell<br />

Melinda Welsh<br />

Delores Welte<br />

Margaret Werminski<br />

Patricia Whipple<br />

Bethany White<br />

Emiley White<br />

Nancy White<br />

Daron Whittle<br />

Randelle Wichert<br />

Aileen Wiggins<br />

Laura Wiley<br />

Your commitment <strong>to</strong> <strong>The</strong> Walk <strong>to</strong> Defeat <strong>ALS</strong>, <strong>Greater</strong> Sacramen<strong>to</strong> Chapter allows us <strong>to</strong> serve P<strong>ALS</strong> and C<strong>ALS</strong> with support<br />

services throughout the following counties:<br />

Sacramen<strong>to</strong>, Yolo, El Dorado, Placer, Amador, Alpine, Modoc, Trinity, Shasta, Lassen, Tehama, Plumas, Butte, Glenn,<br />

Sierra, Colusa, Sutter, Yuba, Siski<strong>you</strong>, Nevada, San Joaquin, Calaveras, Tuolumne, and Mono.

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