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Table of Contents Thursday 29 May page 1 OPENING SESSION 399 2 PLENARY SESSION 1 400 3 ORAL COMMUNICATIONS: Family and Children 401 4 THEMED SESSION: Divide et impera: by joint forces and disciplines alleviate suffering from cachexia 402 5 ORAL COMMUNICATION: End of life care and quality of death 403 6 THEMED SESSION: Implementation of research into clinical practice: What makes sustained research work in daily practice 405 7 ORAL COMMUNICATIONS: Medical sociology and Policy 406 8 ORAL COMMUNICATIONS Cachexia 408 9 THEMED SESSION: Systematic Reviews - what they can and what they can't do 410 Friday 30 May 14 PLENARY SESSION 2 411 15 ORAL COMMUNICATION Assessment and measurement tools 411 16 THEMED SESSION: Best Supportive Care versus chemotherapy The right question to ask 413 17 THEMED SESSION: The Trial of Trials in Palliative Care Research 414 18 THEMED SESSION: EPCRC, IASP and WHO: A step forward in Cancer Pain diagnosis and treatment 415 19 ORAL COMMUNICATION: Education and Epidemiology 416 20 ORAL COMMUNICATION: Poster discussion session 1 21 ORAL COMMUNICATION: Other symptoms 418 22 ORAL COMMUNICATION: Subjective outcomes in palliative care research and their analysis 420 23 ORAL COMMUNICATION Ethics 420 24 ORAL COMMUNICATION: Pain 1 423 25 ORAL COMMUNICATION: Organisation of Care and Services 425 Saturday 27 May 30 THEMED: How to improve research funding and capacity building in a world wide perspective 427 31 ORAL COMMUNICATION: Research methodology and Audit 429 32 THEMED: The complexity in the understanding and treatment of Depression in PC 430 33 ORAL COMMUNICATION: Palliative Sedation 431 34 THEMED: EU Funded Research Projects and Collaboratives 433 35 ORAL COMMUNICATION: Non Cancer 435 36 ORAL COMMUNICATION: Other symptoms: Respiratory, Cognitive and Cachexia 437 37 THEMED: Mixed methods 439 38 WORKSHOP: Reflections on the EU Funded Research Projects 39 ORAL COMMUNICATION Pain 2 439 40 Poster discussion session 2 41 ORAL COMMUNICATION Assessment & measurement of quality of life and other symptoms 441 14 PLENARY SESSION 3 443 Poster presentations First group – 29 & 30 May page Assessment & measurement tools 443 Basic & translational research 2 457 Cognitive symptoms and delirium 457 Dyspnoa & breathelessness 458 End of life care & quality of death 462 Epidemiology 474 HIV / AIDS 476 Pain 477 Palliative care in Children and Adolescents 490 Research into policy 492 Research into the organization of services 495 Second group – 30 & 31 May Audit & quality control 502 Bereavement 511 Ethics 513 Evaluation of education programmes 516 Family & care givers 519 Fatigue & cachexia 521 Neurological disorders 528 Other non-cancer 529 Other symptoms 531 Palliative care in elderly 542 Psychology & communication 545 Research methodology 550
Palliative Medicine 2008; 22: 399–558 EAPC Abstracts 1 Welcome Address Opening Session International collaboration in Palliative Care Research Authors: Stein Kaasa Palliative Medicine Unit St. Olav’s Hospital NORWAY Palliative care (PC) focus on management of patients with progressive advanced disease. The primary focus is to maintain or to improve patients’ quality of life and to support the care givers. To improve symptom and maintain function within a health care system that focus on cost effectiveness is one of the many goals, also for palliative care. As far as possible, intervention and organizations should be research-evidence based. Several barriers have been identified within PC research: At the patient level, in order to optimize symptom treatment, the lack of symptom assessment of pain and other symptoms is evident. At the health care provider level the lack of training in palliative care research can be a challenge, and in many environments, scepticism to research which include fragile, old patients. National evaluations in the UK and Canada in Palliative Care Research have pointed out that palliative care is basically based upon clinical experience, most studies are small and of descriptive nature. Small groups or single researcher initiatives make a long lasting, robust research strategy difficult and fragile. Research in PC is in its infancy. European Association for Palliative Care Research Network (EAPC RN) was established in 1996, and the Palliative Care Research society in the UK became a membership organization in 1998. For the time being, a very positive development is seen in many countries, with national funded collaboratives and projects in UK, Canada, Germany, Australia, as well as at the European level. The emerging collaboration, project and support for infrastructure is promising. However there are still some barriers to solve before PC Research has reached the number of sustainable groups of a substantial size, with permanent investigators and/or hospital funding and chairs within several of the academic fields of PC. The development of both quality and quantity of the contributions to the EAPC research forum is very promising, with a steady increase from 200 abstracts in 2000 in Berlin to 532 in Trondheim in 2008 at the time of writing. We need to collaborate internationally to share knowledge, perform international studies, and improve the understanding of the complexity of palliative care at the patient, family and health care organization level among others. International, national and regional research agenda are needed. Common research language including assessment and classification need to be agreed upon. Studies need to move from small descriptive studies to intervention studies. The EAPC RN sees the potential and the need for international collaboration. The Research Network will continue to organize the bi-annual conferences, Palliative Medicine will be further prioritized as the research journal of EAPC, and initiatives will be taken in order to move from small descriptive studies to multi-centre intervention prospective studies. The EAPC RN will prioritize to build up an infrastructure in order to conduct such studies. Furthermore, the EAPC RN will open up and include all researchers who find it appropriate to participate in an international collaboration, and they will thereby become members of the EAPC RN. During the present meeting, the EAPC RN Junior Forum will be established for PhD, Postdoc students and other researchers at a junior level in order to facilitate collaboration and perform teaching of young researchers within PC Research. 2 Welcome Address Opening Session EAPC a Platform for communication and an umbrella for common actions Authors: Lukas Radbruch Department of Palliative Medicine University of Aachen GERMANY Palliative care on a European level. The Task Force on the Development of Palliative Care led by Carlos Centeno and David Clark has recently released the Atlas of Palliative Care in Europe, showing the progress of palliative care in many European countries. Palliative care is receiving more and more media coverage. Increasing support is also evident for palliative care research in Europe. Recently several large palliative care research collaboratives have been received grants from the 6th and 7th framework and from the European Commission’s Executive Agency for the Public Health Programme (PHEA). EPCRC; PRISMA and OPCARE will forster the collaboration between renowned research centers. They are large enough to reach critical mass, cross-fertilizing with other research areas and breeding new ideas with other researchers, and thus will lead to a steep increase in the quality and amount of palliative care research in Europe. The EAPC and its Research Network will use its communication structure and its congresses and research fora to offer a platform for communication for these research collaboratives. This should produce additional synergistic effects. Some topics are attended in several workgroups in parallel, and communication between the collaboratives may reduce redundancy. Already here in Trondheim two sessions have been dedicated to presentation of and exchange between the European collaboratives. We will continue to do so in future EAPC congresses. Next steps: the Budapest Commitments, common goals and a common language. Together with the International Association of Hospice and Palliative Care and the Word-wide Palliative Care Alliance, EAPC in close collaboration with the International Association for Hospice and Palliative Care (IAHPC) and the Worldwide Palliative Care Alliance (WPCA) has launched a campaign with a political initiative in June 2007, the Budapest Commitments. The national associations have been asked to define clear goals within a common framework, and commit themselves to reach these goals in the next two years. The framework covers five domains: access to medication, policy, education, quality and research, allowing the national associations to focus on those domains they find most suitable in relation to the state of development of palliative care in their country. With this campaign synergistic energies will be raised, with additional motivation from the collaboration with other national associations and using other associations projects and methods as examples for one’s own project. The campaign will receive continuous support from an EAPC Task Force on National Associations, chaired by David Praill. First results from the Budapest Commitments will be presented at the EAPC Congress in Vienna in 2009. As a second important step, supporting and extending the Budapest Commitments and in response to the criticism on the lack of a common language in European palliative care EAPC will produce European norms on palliative care. EAPC has given a remit for a white paper on norms, providing guidance and recommendations for service providers, stakeholders and decision makers. EAPC will develop these norms in close collaboration with the national associations. Expectations. © SAGE Publications 2008, Los Angeles, London, New Delhi and Singapore 10.1177/0269216308091582
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