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30 Winter Street, Suite 1004<br />

Bos<strong>to</strong>n, MA 02108<br />

T 617-338-5241<br />

F 617-338-5242<br />

W www.healthlawadvocates.org<br />

Board of Direc<strong>to</strong>rs<br />

Mala M. Rafik, President<br />

Brian P. Carey, Treasurer<br />

Lisa Fleming, Clerk<br />

Jeffrey N. Catalano<br />

Michael S. Dukakis<br />

Paul W. Finnegan<br />

Ruth Ellen Fitch<br />

Paula Gold<br />

Joshua Greenberg<br />

Daniel J. Jackson<br />

Wendy E. Parmet<br />

S. Stephen Rosenfeld<br />

Amy Whitcomb Slemmer<br />

Eleanor H. Soeffing<br />

Executive Direc<strong>to</strong>r<br />

Matt Selig<br />

Legal Staff<br />

Litigation Direc<strong>to</strong>r<br />

Lorianne Sainsbury-Wong<br />

Staff At<strong>to</strong>rneys<br />

Leslie Bennett<br />

Jenifer Bosco<br />

Laura Goodman<br />

Samuel Leadholm<br />

Meira Russ<br />

Nancy Ryan<br />

Legal Fellows<br />

Gavi Bogin-Farber<br />

Amy Katzen<br />

Paralegal/Intake Coordina<strong>to</strong>r<br />

Kelsey Meagher<br />

Administrative Staff<br />

Chief Operating Officer<br />

Robert MacPherson<br />

Development Direc<strong>to</strong>r<br />

Scott Bryson<br />

Program and Development<br />

Associate<br />

Grace Rosenthal<br />

Oc<strong>to</strong>ber 29, 2012<br />

VIA ELECTRONIC SUBMISSION at http://www.regulations.gov<br />

<strong>Centers</strong> <strong>for</strong> <strong>Medicare</strong> & <strong>Medicaid</strong> Services<br />

Department of Health and Human Services<br />

Attention: CMS–9995–IFC2<br />

P.O. Box 8016<br />

Baltimore, MD 21244–8016<br />

RE:<br />

CMS–9995–IFC2<br />

Comments on Interim Final Rule Changes <strong>to</strong> Definition of “Lawfully<br />

Present” in <strong>the</strong> Pre-Existing Condition Insurance Plan Program of<br />

<strong>the</strong> Af<strong>for</strong>dable Care Act of 2010<br />

Dear Sir/Madam:<br />

This letter provides <strong>comments</strong> <strong>to</strong> <strong>the</strong> Department of Health and Human Services<br />

(DHHS) <strong>Centers</strong> <strong>for</strong> <strong>Medicare</strong> and <strong>Medicaid</strong> Services (CMS) regarding CMS–<br />

9995–IFC2, relating <strong>to</strong> interim final rule changes <strong>to</strong> <strong>the</strong> definition of “lawfully<br />

present” under <strong>the</strong> Pre-Existing Condition Insurance Plan (PCIP) program of <strong>the</strong><br />

Af<strong>for</strong>dable Care Act of 2010 (ACA). 1<br />

Health Law Advocates (<strong>HLA</strong>) is a non-profit public interest law firm that serves<br />

some of <strong>the</strong> Commonwealth of Massachusetts’ most vulnerable populations.<br />

<strong>HLA</strong> provides pro bono legal representation <strong>to</strong> low-income Massachusetts<br />

residents who have been unjustly denied health care access. We are affiliated<br />

with Health Care For All, <strong>the</strong> premier consumer health policy organization in<br />

Massachusetts.<br />

As a consumer-driven health care access organization, <strong>HLA</strong> recognizes <strong>the</strong><br />

commitment of <strong>the</strong> DHHS with respect <strong>to</strong> its role in implementing Federal health<br />

care re<strong>for</strong>m, and <strong>HLA</strong> is pleased <strong>to</strong> offer <strong>comments</strong> <strong>to</strong> CMS as it applies certain<br />

provisions of <strong>the</strong> ACA that affect disadvantaged populations. It is <strong>the</strong> position<br />

of <strong>HLA</strong> that <strong>the</strong> restriction in <strong>the</strong> definition of “lawfully present” creates a<br />

barrier <strong>to</strong> accessing health care coverage <strong>for</strong> young residents living in <strong>the</strong> United<br />

States and granted deferred action status under <strong>the</strong> Deferred Action <strong>for</strong><br />

Childhood Arrivals (DACA) program.<br />

I. Although deferred action status permits access <strong>to</strong> federally<br />

subsidized health care under <strong>the</strong> ACA, young adults who are DACA<br />

recipients are excluded from <strong>the</strong>se critical benefits.<br />

The objectives of Federal health care re<strong>for</strong>m are <strong>to</strong> provide health care coverage<br />

and <strong>to</strong> reduce <strong>the</strong> number of uninsured residents. 2 Sections 1401 and 2001 of <strong>the</strong>


ACA provide that significant expansions of access <strong>to</strong> federally subsidized<br />

coverage options become effective in 2014, such as graduated Federal subsidies<br />

<strong>for</strong> residents with household incomes between 133 percent and 400 percent of<br />

<strong>the</strong> Federal poverty level <strong>to</strong> enable <strong>the</strong>m <strong>to</strong> purchase health insurance, and<br />

expansions in <strong>Medicaid</strong> <strong>to</strong> include opening eligibility standards <strong>to</strong> low-income<br />

adults who would o<strong>the</strong>rwise not qualify <strong>for</strong> federally subsidized health insurance<br />

due <strong>to</strong> inability <strong>to</strong> meet existing <strong>Medicaid</strong> eligibility requirements.<br />

Despite <strong>the</strong>se ACA expansions, CMS removes DACA young adults from<br />

federally supported insurance coverage by adding paragraph 8 <strong>to</strong> <strong>the</strong> definition<br />

of “lawfully present” under 45 CFR 152.2 (excluding only DACA recipients<br />

from deferred action status).<br />

In 2014, residents with deferred action status – o<strong>the</strong>r than DACA recipients –<br />

will be eligible <strong>for</strong> ACA benefits under <strong>the</strong> insurance exchanges and PCIP. 3<br />

Although deferred action does not confer lawful status, residents who are<br />

granted deferred action are not considered <strong>to</strong> be accruing unlawful presence in<br />

<strong>the</strong> United States during <strong>the</strong> effective dates of <strong>the</strong>ir deferred action status. 4<br />

Deferred action is an exercise of <strong>the</strong> Department of Homeland Security’s (DHS)<br />

prosecu<strong>to</strong>rial discretion <strong>to</strong> defer removal of certain persons, and it ensures “that<br />

governmental resources <strong>for</strong> <strong>the</strong> removal of individuals are focused on high<br />

priority cases.” 5 According <strong>to</strong> CMS in its August 28, 2012 guidance sent <strong>to</strong> state<br />

health officials, <strong>the</strong> justification <strong>for</strong> taking DACA young adults out of <strong>the</strong><br />

insurance pool of eligible residents and denying <strong>the</strong>m access <strong>to</strong> federallysponsored<br />

health care coverage is that “<strong>the</strong> reasons that DHS offered <strong>for</strong><br />

adopting <strong>the</strong> DACA process do not pertain <strong>to</strong> eligibility <strong>for</strong> <strong>Medicaid</strong> or<br />

CHIP[.]” 6<br />

It was unreasonable <strong>for</strong> CMS <strong>to</strong> exclude <strong>the</strong>se young adult DACA recipients.<br />

II.<br />

Excluding DACA recipients from federally supported health care<br />

coverage under <strong>the</strong> ACA will leave most of <strong>the</strong>se young adults<br />

uninsured.<br />

Like o<strong>the</strong>r recipients of a USCIS-approved deferred action status, DACA<br />

recipients who demonstrate an “economic necessity” <strong>to</strong> work in <strong>the</strong> United<br />

States are authorized <strong>to</strong> apply <strong>for</strong> employment authorization effective <strong>for</strong> <strong>the</strong><br />

duration of <strong>the</strong>ir deferred action status. 7 However, even employment<br />

authorization does not eliminate uninsurance among <strong>the</strong>se young adults. DACA<br />

recipients are young and may not be able <strong>to</strong> access employer-sponsored<br />

insurance (ESI) because <strong>the</strong>y do not work <strong>the</strong> requisite number of hours <strong>to</strong> be<br />

eligible <strong>for</strong> ESI enrollment. For those who are offered ESI, it may be<br />

unaf<strong>for</strong>dable.<br />

Without PCIP access <strong>to</strong> federally-sponsored insurance coverage, <strong>the</strong>se young<br />

adults will be left uninsured. DACA recipients are, in general, <strong>the</strong> children of<br />

undocumented immigrant parents, have incurred a lapsed lawful immigration<br />

status as of June 15, 2012, and are persons who are ineligible <strong>for</strong> adjustment of<br />

immigration status under traditional USCIS processes such as family-based<br />

petitions and work certifications. Although health insurance exchanges under<br />

2


<strong>the</strong> ACA will become marketplaces <strong>for</strong> af<strong>for</strong>dable, quality health care coverage<br />

options <strong>for</strong> individuals and small businesses, states may opt <strong>for</strong> flexibility in<br />

implementing exchanges. Even if DACA recipients work <strong>for</strong> employers offering<br />

af<strong>for</strong>dable ESI through federally-supported exchanges, it remains uncertain<br />

whe<strong>the</strong>r <strong>the</strong>se young adults would be eligible <strong>to</strong> enroll due <strong>to</strong> immigration status<br />

and alienage. A higher percentage of working, yet uninsured, DACA recipients<br />

is a <strong>for</strong>eseeable consequence of <strong>the</strong>ir removal from PCIP eligibility, and it can be<br />

presumed that most of <strong>the</strong>se young adults will be left without health insurance. 8<br />

By rendering DACA recipients ineligible <strong>for</strong> <strong>the</strong> PCIP program, CMS prevents<br />

<strong>the</strong>se young adults from accessing needed health coverage by one of <strong>the</strong> primary<br />

means <strong>the</strong>y would o<strong>the</strong>rwise have had available <strong>to</strong> <strong>the</strong>m.<br />

Conversely, if allowed <strong>to</strong> access <strong>the</strong> PCIP program, <strong>the</strong>se young adults would be<br />

economically advantageous contribu<strong>to</strong>rs <strong>to</strong> <strong>the</strong> exchange risk pool because <strong>the</strong>y<br />

are between <strong>the</strong> ages of 15 and 30 years old as of June 15, 2012, 9 and as young<br />

adults <strong>the</strong>y are less costly <strong>to</strong> cover. They would offset <strong>the</strong> medical costs of older<br />

members and help exchanges avoid <strong>the</strong> concerns of adverse risk selection. 10 It is<br />

clear, however, that if excluded from Federal health care access, <strong>the</strong>se young<br />

adults will be compelled <strong>to</strong> obtain services at emergency rooms and urgent care<br />

facilities when <strong>the</strong>y do need care, and this will increase overall health care costs.<br />

III.<br />

DACA recipients are arbitrarily excluded from <strong>the</strong> widely used<br />

definition of “lawful presence,” and <strong>the</strong> requisites of DREAM Act<br />

eligibility are undercut by exclusion from Federal health care<br />

re<strong>for</strong>m exchange provisions.<br />

Statu<strong>to</strong>ry and regula<strong>to</strong>ry definitions of “lawfully residing” and “lawfully<br />

present” under o<strong>the</strong>r public benefit programs demonstrate a Federal policy of<br />

including deferred action recipients in federally-sponsored programs, which may<br />

be adopted by <strong>the</strong> States. 11 In spite of this, CMS has chosen <strong>to</strong> exclude only<br />

DACA recipients from ACA coverage, which will leave most of <strong>the</strong>se young<br />

individuals uninsured.<br />

The Children's Health Insurance Program Reauthorization Act (CHIPRA) is <strong>the</strong><br />

benchmark <strong>for</strong> ACA eligibility with respect <strong>to</strong> noncitizens under its “lawful<br />

presence” standard, as set <strong>for</strong>th in July 1, 2010 CMS guidance. 12 CHIPRA<br />

allows states, such as Massachusetts, <strong>to</strong> cover immigrant children and pregnant<br />

immigrant women through <strong>Medicaid</strong> and CHIP, despite <strong>the</strong> Personal<br />

Responsibility and Work Opportunity Act. 13 CHIPRA provides that “lawfully<br />

present” status is accorded <strong>to</strong> those aliens who secure employment authorization<br />

as well as those granted Temporary Protected Status, asylum applicants, and<br />

residents with approved visa petitions who are awaiting adjustment of status. 14<br />

CHIPRA is indifferent with respect <strong>to</strong> State decisions <strong>to</strong> expand coverage under<br />

Federal/State <strong>Medicaid</strong> and CHIP programs. Accordingly, CMS authorizes<br />

States <strong>to</strong> extend Federal/State <strong>Medicaid</strong> programs and CHIPRA benefits <strong>to</strong><br />

immigrants who are lawfully present on <strong>the</strong> same basis as DACA recipients,<br />

namely deferred action. 15<br />

It is problematic that CMS leaves <strong>the</strong>se DACA children and young adults<br />

uninsured. The implications of this exclusion undercut <strong>the</strong> federal policy of<br />

3


near-universal health insurance and such actions are unjustifiably<br />

counterproductive <strong>to</strong> <strong>the</strong> establishment of a balanced risk pool of covered<br />

beneficiaries. It is equally concerning that DACA eligibility under <strong>the</strong> DREAM<br />

Act requires that applicants demonstrate enrollment in or completion of<br />

education in <strong>the</strong> United States. 16 While <strong>the</strong> DACA educational criterion is<br />

consistent with <strong>the</strong> United States Supreme Court decision in Plyler v. Doe, 457<br />

U.S. 202 (1982) (holding that children without lawful status are entitled <strong>to</strong> attend<br />

public schools), CMS’s expulsion of <strong>the</strong>se children and young adults results in a<br />

perpetuation of public health concerns in <strong>the</strong> public educational setting.<br />

Moreover, it is quite problematic that DACA applicants who do not meet <strong>the</strong><br />

DREAM Act educational criterion but who have been honorably discharged<br />

from <strong>the</strong> United States military may receive deferred action status; 17 however,<br />

as DACA recipients, <strong>the</strong>y may not receive federally supported coverage under<br />

<strong>the</strong> PCIP program.<br />

Ra<strong>the</strong>r than excluding DACA recipients from Federal health care re<strong>for</strong>m<br />

coverage, CMS should redress <strong>the</strong> consequences of expulsion from deferred<br />

action status and denial of eligibility under <strong>the</strong> PCIP program.<br />

IV.<br />

Conclusion<br />

For <strong>the</strong> reasons identified above, <strong>HLA</strong> advocates <strong>for</strong> <strong>the</strong> inclusiveness of <strong>the</strong><br />

term “lawfully present” under <strong>the</strong> ACA. <strong>HLA</strong> opposes <strong>the</strong> removal of children<br />

and young adults who are DACA recipients from federally- supported health<br />

insurance exchanges.<br />

Accordingly, <strong>HLA</strong> recommends that CMS delete subsection 8 of 45 CFR §<br />

152.2 and provide <strong>the</strong>se children and young adults with equal access <strong>to</strong> <strong>the</strong> PCIP<br />

program.<br />

If you should have any questions, please feel free <strong>to</strong> contact <strong>the</strong> undersigned.<br />

Sincerely,<br />

/s/ Lorianne M. Sainsbury-Wong<br />

Lorianne M. Sainsbury-Wong<br />

Litigation Direc<strong>to</strong>r<br />

Health Law Advocates<br />

30 Winter Street, Suite 1004<br />

Bos<strong>to</strong>n, MA 02108<br />

617-275-2987<br />

sainsbury_wong@hla-inc.org<br />

/s/ Gavriela M. Bogin-Farber<br />

Gavriela M. Bogin-Farber<br />

Legal Fellow<br />

Health Law Advocates<br />

30 Winter Street, Suite 1004<br />

Bos<strong>to</strong>n, MA 02108<br />

617-275-2891<br />

gbogin-farber@hla-inc.org<br />

4


1 77 Fed. Reg. 52614 (August 30, 2012).<br />

2 See 42 U.S.C. § 18091(2)(C).<br />

3 See 45 CFR 152.2(4)(v) and 152.14(a) (lawfully present individuals are eligible <strong>to</strong> enroll in a<br />

PCIP, and “lawfully present” includes “aliens currently in deferred action status”).<br />

4 See USCIS, Consideration of Deferred Action <strong>for</strong> Childhood Arrivals Process, Frequently<br />

Asked Questions (September 14, 2012), available at http://tinyurl.com/9t5maht.<br />

5 77 Fed. Reg. 52614 (August 30, 2012).<br />

6 Ctrs. For <strong>Medicare</strong> & <strong>Medicaid</strong> Servs., State Health Official Letter – Individuals with Deferred<br />

Action <strong>for</strong> Childhood Arrivals, August 28, 2012, SHO #12-002, available at<br />

http://www.medicaid.gov/Federal-Policy-Guidance/downloads/SHO-12-002.pdf.<br />

7 See 8 C.F.R. § 274a.12(c)(14); see also USCIS Frequently Asked Questions, supra note 4.<br />

8 Moreover, <strong>the</strong> majority of DACA recipients already have no access <strong>to</strong> ano<strong>the</strong>r corners<strong>to</strong>ne<br />

provision of <strong>the</strong> ACA: dependent coverage. Dependent coverage allows parents <strong>to</strong> keep <strong>the</strong>ir<br />

children on family health insurance plans until <strong>the</strong> children turn 26 years old. DACA young<br />

adults, however, are largely unable <strong>to</strong> access dependent coverage because of <strong>the</strong> unlawful status<br />

of <strong>the</strong>ir parents or parental ineligibility <strong>for</strong> group insurance coverage. These young adults,<br />

<strong>the</strong>re<strong>for</strong>e, demonstrate substantial inability <strong>to</strong> access health care insurance without coverage<br />

under <strong>the</strong> PCIP program.<br />

9 See USCIS, Consideration of Deferred Action <strong>for</strong> Childhood Arrivals Process (September 14,<br />

2012), available at http://tinyurl.com/7ksa6of (requiring that DACA applicants, in addition <strong>to</strong> <strong>the</strong><br />

o<strong>the</strong>r criteria, have been under <strong>the</strong> age of 31 as of June 15, 2012 and have arrived in <strong>the</strong> U.S.<br />

be<strong>for</strong>e turning 16 years old.)<br />

10 See Sharon Silow-Carroll and Diana Rodin et al, Commonwealth Fund, Health Insurance<br />

Exchanges: State Roles in Selecting Health Plans and Avoiding Adverse Selection, States in<br />

Action (February/March 2011), available at<br />

http://www.commonwealthfund.org/Newsletters/States-in-Action/2011/Mar/February-March-<br />

2011/Feature/Feature.aspx (“Adverse selection refers <strong>to</strong> <strong>the</strong> disproportionate enrollment of highrisk,<br />

high-cost individuals, resulting in a rise in costs and premiums. This could result from<br />

lower-risk people [such as young, healthy people] … dropping out of <strong>the</strong> exchange”).<br />

11 See Ctrs. For <strong>Medicare</strong> & <strong>Medicaid</strong> Servs., State Health Official Letter – <strong>Medicaid</strong> and CHIP<br />

Coverage of “Lawfully Residing” Children and Pregnant Women, July 1, 2010, SHO #10-006,<br />

CHIPRA #17, available at http://downloads.cms.gov/cmsgov/archiveddownloads/SMDL/downloads/SHO10006.pdf<br />

(stating that “lawfully present” includes certain<br />

aliens paroled <strong>for</strong> under a year, while disqualifying those “paroled <strong>for</strong> prosecution, <strong>for</strong> deferred<br />

inspection, or pending removal proceedings”).<br />

12 See id.<br />

13 See 42 U.S.C. 1396b(v)(4)(A).<br />

14 See CMS CHIPRA Letter, supra note 11; see also Lorianne Sainsbury-Wong and Nancy Ryan,<br />

Health care coverage <strong>for</strong> lawfully residing aliens: Massachusetts and federal perspectives,<br />

Massachusetts Lawyers Journal (July 2012).<br />

15 See CMS CHIPRA Letter, supra note 11.<br />

16 Specifically, <strong>the</strong> DACA applicant must show that he/she is currently attending school,<br />

graduated or obtained a certificate of completion from a high school, or that he/she o<strong>the</strong>rwise<br />

obtained a general education development certificate. See USCIS, Consideration of DACA<br />

Process, supra note 9.<br />

17 See id.<br />

5

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