EVALUATION OF THE ONTARIO COMMON ASSESSMENT ... - CCIM
EVALUATION OF THE ONTARIO COMMON ASSESSMENT ... - CCIM
EVALUATION OF THE ONTARIO COMMON ASSESSMENT ... - CCIM
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<strong>EVALUATION</strong> <strong>OF</strong> <strong>THE</strong><br />
<strong>ONTARIO</strong> <strong>COMMON</strong> <strong>ASSESSMENT</strong> <strong>OF</strong> NEED (OCAN) IN<br />
ABORIGINAL MENTAL HEALTH PROGRAMS<br />
PROLOGUE BY <strong>THE</strong> CMH CAP TEAM<br />
As part of gathering learnings about implementing OCAN within the NE LHIN, the project engaged with<br />
independent researchers to conduct an evaluation of how best to implement OCAN within the Aboriginal<br />
population.<br />
The evaluation involved a survey, focus groups and interviews with staff, service providers and clients at<br />
James Bay General Hospital Community Mental Health Program, Noojmowin Teg Health Centre and<br />
Mamaweswen, the North Shore Tribal Council who were participants in the NE LHIN OCAN implementation<br />
pilot.<br />
The focus was mainly on learning how well OCAN fits Aboriginal mental health programs, identifying<br />
implementation best practices, determining the needed cultural supports and the barriers and challenges<br />
experienced by those who did not use OCAN.<br />
The following report cites that the concept of a common assessment tool was supported by participating<br />
providers. However, a recommendation was made to devise cultural supports to better reflect the Aboriginal<br />
individual’s journey and community realities in order to improve uptake and implementation of OCAN. CMH<br />
CAP is currently in the process of investigating how this could best be accomplished.
<strong>EVALUATION</strong> <strong>OF</strong> <strong>THE</strong><br />
<strong>ONTARIO</strong> <strong>COMMON</strong> <strong>ASSESSMENT</strong> <strong>OF</strong> NEED (OCAN) IN<br />
ABORIGINAL MENTAL HEALTH PROGRAMS<br />
March 2010<br />
Evaluation Report of the<br />
OCAN Implementation in<br />
Aboriginal Mental Health Programs<br />
in the Ontario North East<br />
Local Health Integration Network<br />
Submitted to:<br />
Canadian Mental Health Association, Ontario Division on behalf<br />
of Community Care Information Management<br />
Submitted by:<br />
Mariette Sutherland, B.Eng.<br />
Whitefish River First Nation<br />
Birch Island, Ontario, P0P 1A0<br />
and<br />
Marion Maar, PhD<br />
Faculty of Medicine, Human Sciences Division<br />
Northern Ontario School of Medicine, Sudbury, Ontario
OCAN Evaluation for Aboriginal Mental Health Programs<br />
Table of Contents<br />
INTRODUCTION .....................................................................................................................................................................5<br />
BACKGROUND........................................................................................................................................................................6<br />
<strong>THE</strong> COMMUNITY CARE INFORMATION MANAGEMENT (<strong>CCIM</strong>) PROGRAM.............................................................................6<br />
COMMUNITY MENTAL HEALTH AND ADDICTIONS (CMH&A) ................................................................................................7<br />
<strong>ONTARIO</strong> <strong>COMMON</strong> <strong>ASSESSMENT</strong> PROJECT .............................................................................................................................8<br />
<strong>EVALUATION</strong> <strong>OF</strong> <strong>THE</strong> OCAN PILOT IN MAINSTREAM MENTAL HEALTH PROGRAMS .................................................................9<br />
<strong>EVALUATION</strong> <strong>OF</strong> <strong>THE</strong> OCAN PILOT IN ABORIGINAL MENTAL HEALTH PROGRAMS ..................................................................9<br />
The Evaluation Team..........................................................................................................................................................9<br />
PURPOSE <strong>OF</strong> <strong>THE</strong> <strong>EVALUATION</strong> <strong>OF</strong> <strong>THE</strong> OCAN IMPLEMENTATION IN ABORIGINAL MENTAL HEALTH<br />
PROGRAMS............................................................................................................................................................................10<br />
OBJECTIVES <strong>OF</strong> <strong>THE</strong> <strong>EVALUATION</strong> ..........................................................................................................................................10<br />
OUR APPROACH TO <strong>THE</strong> <strong>EVALUATION</strong> ...................................................................................................................................10<br />
<strong>EVALUATION</strong> QUESTIONS................................................................................................................................................13<br />
<strong>EVALUATION</strong> METHODOLOGY ......................................................................................................................................16<br />
OVERVIEW <strong>OF</strong> METHODS .......................................................................................................................................................16<br />
TIMELINES AND PARTICIPANTS AT EACH PARTICIPATING SITE ..............................................................................................17<br />
OVERVIEW <strong>OF</strong> PRESENTATION <strong>OF</strong> FINDINGS...........................................................................................................18<br />
RESULTS FOR <strong>THE</strong> JAMES BAY COAST SITES............................................................................................................19<br />
DESCRIPTION <strong>OF</strong> <strong>THE</strong> JAMES BAY COAST COMMUNITIES.......................................................................................................20<br />
<strong>THE</strong> SERVICE CONTEXT: <strong>THE</strong> JAMES BAY COMMUNITY MENTAL HEALTH PROGRAM ...........................................................21<br />
OVERVIEW <strong>OF</strong> <strong>THE</strong> OCAN IMPLEMENTATION AT <strong>THE</strong> JAMES BAY COAST.............................................................................22<br />
Providers’ Understanding of OCAN.................................................................................................................................22<br />
Perceived Adequacy of OCAN Staff Training and Support ..............................................................................................23<br />
Current status of OCAN implementation..........................................................................................................................23<br />
OCAN’S FIT WITHIN <strong>THE</strong> SERVICE DELIVERY MODEL AT JBCMHS .......................................................................................24<br />
Perceived importance of a standardized assessment tool.................................................................................................24<br />
The realities of implementing OCAN into the daily workflow ..........................................................................................24<br />
Fit of the automated OCAN tool.......................................................................................................................................25<br />
Fit of OCAN with Aboriginal client population and presenting concerns........................................................................25<br />
Fit of OCAN within Cree Language and Culture .............................................................................................................26<br />
RESULTS FOR NORTH CENTRAL <strong>ONTARIO</strong> REGION SITES ..................................................................................27<br />
DESCRIPTION <strong>OF</strong> NORTH SHORE AND MANITOULIN COMMUNITIES .......................................................................................27<br />
SERVICE CONTEXT: N'MNINOEYAA ABORIGINAL MENTAL HEALTH SERVICES.....................................................................28<br />
OVERVIEW <strong>OF</strong> <strong>THE</strong> OCAN IMPLEMENTATION AT N'MNINOEYAA ..........................................................................................28<br />
Providers’ Understanding of OCAN.................................................................................................................................28<br />
Perceived Adequacy of OCAN Staff Training and Support ..............................................................................................29<br />
Current status of OCAN implementation..........................................................................................................................29<br />
OCAN’S FIT WITHIN <strong>THE</strong> SERVICE DELIVERY ON <strong>THE</strong> NORTH SHORE ....................................................................................29<br />
Perceived importance of a standardized assessment tool.................................................................................................29<br />
The realities of implementation of OCAN into the daily workflow...................................................................................30<br />
Cross jurisdictional issues................................................................................................................................................31<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Fit of the automated OCAN tool.......................................................................................................................................31<br />
Fit of OCAN with Aboriginal client population and presenting concerns........................................................................32<br />
Fit of OCAN with Aboriginal Culture...............................................................................................................................33<br />
SERVICE CONTEXT: NOOJMOWIN TEG HEALTH ACCESS CENTRE ..........................................................................................34<br />
OVERVIEW <strong>OF</strong> <strong>THE</strong> OCAN IMPLEMENTATION AT NOOJMOWIN TEG ......................................................................................34<br />
Providers’ Understanding of OCAN.................................................................................................................................34<br />
Perceived Adequacy of OCAN Staff Training and Support ..............................................................................................35<br />
Current status of OCAN implementation..........................................................................................................................35<br />
OCAN’S FIT WITHIN <strong>THE</strong> SERVICE DELIVERY ON MANITOULIN ISLAND.................................................................................35<br />
Perceived importance of a standardized assessment tool.................................................................................................35<br />
The realities of implementation OCAN into the daily workflow.......................................................................................35<br />
Cross jurisdictional issues................................................................................................................................................36<br />
Fit of the automated OCAN tool.......................................................................................................................................36<br />
Overall workers stated that piloting the OCAN has lead to valuable networking with the NE LHIN and with other<br />
Aboriginal mental health services programs....................................................................................................................37<br />
Fit of OCAN with Aboriginal client population and presenting concerns........................................................................37<br />
Fit of OCAN with Aboriginal Culture...............................................................................................................................37<br />
IMPLICATIONS FOR OCAN IN ABORIGINAL MENTAL HEALTH SERVICES .....................................................38<br />
IMPLICATIONS FOR OCAN IN ABORIGINAL MENTAL HEALTH SERVICES .....................................................38<br />
COMPARISONS AND CONTRASTS REGARDING OCAN <strong>EVALUATION</strong> FINDINGS IN <strong>THE</strong> DIFFERENT ABORIGINAL CULTURES AND<br />
SERVICE CONTEXT..................................................................................................................................................................38<br />
Contrasts: .........................................................................................................................................................................38<br />
CULTURAL INCONGRUENCE RELATED TO SPECIFIC DOMAINS................................................................................................39<br />
Domain 1: Accommodation ..............................................................................................................................................39<br />
Domain 2: Food................................................................................................................................................................39<br />
Domain 17: Sexual Expression.........................................................................................................................................39<br />
Domain 21: Phone............................................................................................................................................................39<br />
Domain 22: Transport......................................................................................................................................................40<br />
Domain 23: Money ...........................................................................................................................................................40<br />
General comment on open ended questions......................................................................................................................40<br />
Open ended Question on Hopes and Dreams...................................................................................................................40<br />
Open ended Question on Spirituality................................................................................................................................40<br />
MISSING ELEMENTS...............................................................................................................................................................40<br />
Abuse history ....................................................................................................................................................................40<br />
Experience of discrimination and/or racism.....................................................................................................................41<br />
Education..........................................................................................................................................................................41<br />
SUGGESTIONS FOR FUTURE IMPLEMENTATION <strong>OF</strong> OCAN IN ABORIGINAL HEALTH SERVICES<br />
CONTEXT ...............................................................................................................................................................................42<br />
OPPORTUNITIES FOR FUTURE SUPPORT <strong>OF</strong> OCAN IMPLEMENTATION IN ABORIGINAL MENTAL HEALTH SERVICES .............42<br />
1. Readiness for the Implementation of a Common Assessment Tool...............................................................................42<br />
2. Training ........................................................................................................................................................................43<br />
3. Client population ..........................................................................................................................................................44<br />
4. Reliability, validity and cultural safety of the current version of the OCAN in Aboriginal mental health services .....44<br />
5. Automation ...................................................................................................................................................................45<br />
IMPORTANT CONTEXT OUTSIDE <strong>OF</strong> OCAN – SYSTEM IMPEDIMENTS......................................................................................46<br />
6. Impact on clinical and administrative processes..........................................................................................................46<br />
7. Policy implications .......................................................................................................................................................47<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
APPENDIX A: FOCUS GROUP AND INTERVIEW QUESTIONS FOR PROVIDERS/STAFF..................................49<br />
[PROVIDER PERSPECTIVES] ................................................................................................................................................49<br />
[FUTURE IMPLEMENTATION <strong>OF</strong> <strong>THE</strong> OCAN].....................................................................................................................50<br />
APPENDIX B: SURVEY TOOL FOR PROVIDERS/STAFF ............................................................................................51<br />
APPENDIX C: INTERVIEW QUESTIONS FOR CONSUMERS.....................................................................................55<br />
[CLIENT PERSPECTIVES] .....................................................................................................................................................55<br />
[FUTURE IMPLEMENTATION <strong>OF</strong> <strong>THE</strong> OCAN].....................................................................................................................56<br />
APPENDIX D: LETTERS <strong>OF</strong> INFORMATION AND CONSENT FOR PARTICIPANTS ...........................................57<br />
APPENDIX E: SURVEY RESULTS ....................................................................................................................................61<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
OCAN in Aboriginal Mental Health Services<br />
A Report on the Pilot Implementation of OCAN in Aboriginal Mental Health Programs in the<br />
Ontario North East Local Health Integration Network<br />
INTRODUCTION<br />
In 2008, the North East Local Health Integrated Network (NE LHIN) became the first LHIN to initiate a LHINwide<br />
implementation of an automated common assessment tool, the Ontario Common Assessment of Need<br />
(OCAN) to all its Community Mental Health (CMH) Programs. This implementation pilot of OCAN plays a key<br />
role in shaping the provincial framework for future use of the OCAN. Reflecting Ontario’s diversity in the NE<br />
LHIN, the OCAN will see use with Aboriginal, Anglophone and Francophone consumer populations and their<br />
service providers. In this document we report on the experience of the Aboriginal mental health services<br />
stakeholders with respect to the OCAN implementation in diverse regions of Northern Eastern Ontario. This<br />
evaluation of the pilot implementation of the OCAN in Aboriginal mental health programs was conducted<br />
during the winter of 2009/2010.<br />
The evaluation research was conducted by Mariette Sutherland (Consultant, Whitefish River First Nation) and<br />
Dr. Marion Maar (Faculty, Northern Ontario School of Medicine). Over the past 10 years, these researchers<br />
have collaborated on numerous mental health research projects within the Aboriginal communities and<br />
organizations, including First Nation health service organizations based in Northern Ontario, as well as<br />
provincial Aboriginal territorial organizations (PTOs) and provincial and federal government departments.<br />
This OCAN evaluation report of Aboriginal mental health programs is detailed in the following sections:<br />
Background to the OCAN in the NE LHIN and previous OCAN evaluation research<br />
Purpose of this evaluation & evaluation questions<br />
Methods and timelines of the evaluation<br />
Description and results for Ontario regions in the Far North and North Central area<br />
Discussion of results and implications for OCAN implementation in Aboriginal mental health services<br />
Recommendations for OCAN implementation in Aboriginal mental health services<br />
Appendices of research instruments<br />
Sutherland & Maar - March 2010 Page 5
OCAN Evaluation for Aboriginal Mental Health Programs<br />
BACKGROUND<br />
In this section we provide background on (1) Ontario’s relevant health information management programs, (2)<br />
community mental health programs in Ontario, (3) the Ontario Common Assessment of Need (OCAN) and (4)<br />
previous evaluation research of the OCAN implementation in mainstream services.<br />
The Community Care Information Management (<strong>CCIM</strong>) Program 1<br />
Since 2005, <strong>CCIM</strong> has played a critical role in improving the health care system for providers, residents, and<br />
consumers across the Long-Term Care, Community Mental Health & Addictions (CMH&A), Community Care<br />
Access Centres (CCACs), Community Support Services sectors and, more recently, Small & Chronic Care<br />
Hospitals and Community Health Centres. The implementation of common assessment tools and business<br />
systems solutions along with two integration initiatives enables access to standardized information for<br />
evidence-based care planning, operational improvements, and funding decisions that directly support the<br />
delivery of better health care to clients at home and in our communities.<br />
The RAI-MDS 2.0 common assessment tool in Long-term Care Homes and the OCAN tool in Community Mental<br />
Health agencies assist consumer-led decision-making at an individual level and make sharing information easy<br />
and timely across the sector. The purpose is to implement standard assessment practices that improve business<br />
processes and client care management by identifying needs, helping match needs to existing services and<br />
identifying service gaps.<br />
Also within the <strong>CCIM</strong> Common Assessment stream, an Integrated Assessment solution is being created, which<br />
will allow health care professionals to see community-based assessment data to help inform the treatment<br />
planning for people in their care. Plans are being made to begin a pilot in two or three volunteer LHINs this<br />
summer, prior to a provincial rollout.<br />
Two business systems solutions are being rolled-out in the CMH&A, Community Support Services, and Small &<br />
Chronic Care Hospitals sectors. A financial and statistical software solution (MIS) is currently being<br />
implemented in organizations to create consistent, reliable internal processes and systems and to meet<br />
external Ontario Healthcare Reporting Standards (OHRS) reporting requirements. This solution is also in the<br />
initiation stage in the Community Health Centres sector. The human resources and payroll software solution<br />
will make it easier for organizations to track the valuable services provided to clients and enable<br />
organizations to automate and streamline their payroll and human resources processes for improved<br />
efficiency, accountability and reporting. Both systems will make standardized reporting possible at the local<br />
level for Health Service Providers, Local Health Integration Networks (LHINs) and the Ministry.<br />
The Integrated Data Strategy is an overall initiative that builds on the past and present work being done in<br />
the Business Systems and Common Assessment project streams regarding the implementation of standardized<br />
data, tools, and processes across the community care sectors. Currently, information is being reported<br />
individually by these streams to reflect the sectors’ clinical, financial and HR information. The Integrated Data<br />
Strategy aims to combine this information to more clearly demonstrate the relationship between needs,<br />
services, outcomes, and cost.<br />
1 Information provided in the sections (i.e. <strong>CCIM</strong>, CMH&A and OCAN) are adapted from materials provided by the Ministry of<br />
Health and Long Term Care.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
All this is built on a foundation delivered and supported by the Solutions Group with its extensive expertise<br />
and focus on continuous development and service delivery through its core competency areas – Architecture &<br />
Integration; Standards; Security, Privacy and Risk Management; and Transition.<br />
A key success factor for <strong>CCIM</strong> is that every project team and initiative has the appropriate level of business<br />
and technical expertise to facilitate effective project planning and implementation.<br />
Community Mental Health and Addictions (CMH&A)<br />
The community mental health sector is a diverse sector providing a range of community mental health services<br />
by over 300 not-for-profit organizations of various sizes and in a variety of settings in Ontario.<br />
<strong>CCIM</strong> supports the CMH&A with tools to improve business processes and enhance the management of client<br />
care. <strong>CCIM</strong> is working with sector leaders to pilot and implement three projects that will help achieve this<br />
goal.<br />
1. CMH CAP is implementing a streamlined assessment process that will standardize current practices<br />
across the province. OCAN is a standardized, consumer-led decision-making tool that allows key<br />
information to be electronically gathered in a secure and efficient manner.<br />
Since the initial consultation with the CMH sector in December 2007, the project continues to work<br />
province-wide with sector stakeholders through information exchanges and consultations, steering<br />
committees and working groups to promote best practices across the sector. Most importantly,<br />
consumers are playing a critical role in the constant development and improvement of common<br />
assessment practices. Lessons learned from implementation pilots as well as research formed the basis<br />
for the <strong>CCIM</strong> CMH CAP Steering Committee’s recommendations to the Ministry of Health and Long-<br />
Term Care for province-wide implementation.<br />
2. The Human Resources Information Systems CMH&A project will provide a Payroll and HR software<br />
solution that is integrated with the current MIS/OHRS-compliant financial solution offered by the<br />
CMH&A MIS project. This information is needed by the LHINs, the Ministry and by service providers to<br />
have better indicators for evidence-based resource planning. The project aligns with multiple LHIN<br />
priorities.<br />
3. The Community Mental Health and Addictions Management Information Systems Project (CMH&A MIS)<br />
has standardized reporting within the CMH&A sector, providing integrated long-term financial and<br />
statistical information that is accurate and consistent across the mental health spectrum. The project is<br />
in Phase 3, which will introduce a financial and statistical management software solution to ensure<br />
there are reliable processes and systems in place within organizations for full MIS integration and<br />
ongoing reporting.<br />
These three complementary <strong>CCIM</strong> initiatives are building an improved, comprehensive solution for the sector<br />
by producing the following benefits:<br />
Client-focused, more individualized care delivery by streamlining intake processes and removing<br />
duplicate administrative processes<br />
Sutherland & Maar - March 2010 Page 7
OCAN Evaluation for Aboriginal Mental Health Programs<br />
Improved quality of information for planning and decision-making<br />
Standardized, consistent and reliable data and technical and business processes<br />
Enhanced information aids benchmarking, policy development and sector planning.<br />
Ontario Common Assessment Project<br />
Sponsored by <strong>CCIM</strong> and supported by the MOHLTC, the goal of CMH CAP is to streamline the assessment<br />
process by standardizing current practices in the form of an automated common assessment tool for use by<br />
community mental health providers. The project has finalized the automated common assessment tool, now<br />
called Ontario Common Assessment of Need (OCAN). OCAN is comprised of the Camberwell Assessment of<br />
Need (CAN-C) and additional data elements. This tool allows key information to be gathered quickly from<br />
both people seeking service and providers while ensuring consistent assessment practices across the province.<br />
OCAN provides consumers with an active role in their service planning, while supporting community mental<br />
health programs to share and re-use consumer-consented information in a way that provides structure and<br />
focus for comprehensive assessments. OCAN is designed to enable consumer-led decision making at the<br />
individual level of service; reduce repetitive information gathering; standardize, streamline and unify<br />
assessments; and provide an aggregate view of the mental health sector to support informed health care<br />
planning and decisions.<br />
In the fall of 2008, the North East Local Health Integrated Network (NE LHIN) expressed interest in being the<br />
first LHIN to implement OCAN to all its Community Mental Health (CMH) Programs. The NE LHIN<br />
implementation approach is a LHIN-wide implementation pilot of OCAN, and is playing a key role in shaping<br />
the provincial framework for future LHIN-wide use.<br />
This pilot implementation offers a landscape for developing a strategy that reflects Ontario’s diversity.<br />
Throughout this pilot, OCAN will see use with Aboriginal and Francophone consumer populations in the NE<br />
LHIN and their service providers.<br />
Stage One - piloting of OCAN was completed in 2008 and involved 16 community mental health<br />
organizations throughout Ontario. A number of reports summarizing the lessons and outcomes of that work are<br />
available for review.<br />
The project is currently in Stage Two, testing LHIN-wide implementation of OCAN in community mental health<br />
programs in Northeastern Ontario. A number of Aboriginal organizations and/or Aboriginal mental health<br />
programs are involved in this pilot implementation.<br />
Sutherland & Maar - March 2010 Page 8
OCAN Evaluation for Aboriginal Mental Health Programs<br />
Evaluation of the OCAN Pilot in mainstream mental health programs<br />
In 2008, the Community Mental Health Common Assessment Project CMH CAP commissioned Caislyn Consulting<br />
Inc. to conduct an independent evaluation study of the OCAN pilot in sixteen participating mental health<br />
programs to examine the following:<br />
The impact of the CMHCA approach on people seeking services and community mental health<br />
providers<br />
Emerging best practices regarding use of OCAN<br />
Feedback on the prescribed methods of the OCAN process 2<br />
The comprehensive report documented and described a number of key learnings about how the OCAN is<br />
being implemented in 16 selected pilot sites and suggested areas for improvement that could be further<br />
explored.<br />
Evaluation of the OCAN Pilot in Aboriginal mental health programs<br />
The CMH CAP released a request for proposals (RFP) in the fall of 2009 to evaluate the implementation of<br />
OCAN in Aboriginal mental health programs in selected Aboriginal mental health programs in the Ontario<br />
North East Local Health Integration Network.<br />
The Evaluation Team<br />
The CMH CAP commissioned the authors of this report (Mariette Sutherland and Marion Maar) to conduct this<br />
evaluation. The results of the evaluation and related recommendations are provided in this document.<br />
Mariette Sutherland is a health services research consultant from Whitefish River First Nation. Mariette’s work<br />
is focused on the planning and evaluation of health services for Aboriginal people in Ontario. Dr. Marion<br />
Maar is a fulltime faculty member at the Northern Ontario School of Medicine in Sudbury. Marion’s research<br />
focuses on Aboriginal health issues, including chronic care, mental health and e-health applications.<br />
2 2008. Kate Pautler. Common Assessment Evaluation Study Final Report. Caislyn Consulting Inc.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
PURPOSE <strong>OF</strong> <strong>THE</strong> <strong>EVALUATION</strong> <strong>OF</strong> <strong>THE</strong> OCAN IMPLEMENTATION IN<br />
ABORIGINAL MENTAL HEALTH PROGRAMS<br />
Objectives of the evaluation<br />
The goal of the evaluation was “to undertake an evaluation study examining the processes and content of the<br />
OCAN as it relates specifically to the Aboriginal populations in the Ontario NE LHIN CMH CAP pilot project.”<br />
CMH CAP developed the following OCAN evaluation objectives:<br />
Analyzing the degree of fit of the OCAN tool for completing assessments by staff and consumers<br />
within Aboriginal mental health programs.<br />
Using a variety of data collection methods, giving due consideration to the administrative burden<br />
on Community Mental Health organizations, clinicians and consumers, as well as the evaluation<br />
questions, timeframe, and budget.<br />
Determining what best practices were used during the process of completing OCAN.<br />
Collecting and using existing and proven or best practice tools. The Selected Proponent shall work<br />
with the project to propose, discuss and advise on the merits of validated tools for addressing<br />
quality, access, acceptability and cost.<br />
Evaluating what cultural supports need to be in place for both staff and consumers in completing<br />
the tool and incorporating OCAN processes in Aboriginal mental health programs.<br />
Examining barriers and challenges for using OCAN in Aboriginal programs that did not elect to<br />
participate in the NE LHIN pilot.<br />
Our Approach to the Evaluation<br />
Our approach to the evaluation was collaborative with the CMH CAP team. Furthermore, we used a<br />
participatory evaluation framework with Aboriginal stakeholders and participants.<br />
We utilized a variety of data collection methods, to document the experience of Aboriginal Mental Health<br />
organizations, clinicians and consumers. We were guided by the following conceptual framework:<br />
Building on what has been done already: The evaluation plan developed for Aboriginal mental<br />
health programs was designed to build on the previously completed evaluation of OCAN in<br />
mainstream mental health programs conducted by Caislyn Consulting in 2008. The framework used<br />
in that evaluation incorporated many aspects that are also relevant within the Aboriginal context.<br />
Therefore, similar - or at times even identical - evaluation questions were used whenever possible.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
This approach allowed for clear comparisons of the implementation of OCAN in mainstream and<br />
Aboriginal programs on several levels.<br />
Identifying unique aspects of Aboriginal services: While some aspects of the implementation of<br />
OCAN apply to Aboriginal programs as well as mainstream programs, there are other aspects that<br />
are unique to the Aboriginal service context. We therefore developed a research plan that<br />
included a review and examination of differences in the implementation of OCAN in Aboriginal<br />
mental health programs that may be a result of the diversity of Aboriginal peoples, cultures,<br />
service environments and geography. In addition, we examined potential differences in service<br />
provision in First Nations communities, funding and jurisdictional issues, cultural safety in mental<br />
health as well as historic issues.<br />
Cultural Safety: Cultural awareness, competence, sensitivity and safety have different meanings<br />
that their use is not always consistent in the academic literature. The concept of cultural safety<br />
originates with the Maori People of New Zealand, and embodies a concept that goes beyond<br />
providers learning about cultural differences. It describes an approach to service provision that<br />
incorporates provider self-reflection and understanding of power differentials that often exist<br />
between Aboriginal clients or patients and health services providers. Therefore it is vital that in<br />
culturally safe services, it is the client who defines "safe services” 3 4 . Of great importance to many<br />
Aboriginal people in the North Eastern Ontario is service provider acceptance of beliefs, religions,<br />
backgrounds, and history, and a focus on building on the strengths of Aboriginal people 5 .<br />
Respect for Aboriginal perspectives on research: Aboriginal people often feel that they have<br />
been over researched and are thus frequently critical of government or university interests in<br />
conducting research within their communities. Research initiated by outsiders may raise concerns,<br />
particularly when the topic of research is sensitive such as mental health research. Researchers who<br />
work in Aboriginal communities often come in contact with communities and individuals who have<br />
participated in research projects and have felt harmed or violated, despite the fact that research<br />
protocols received ethics approval from a university or hospital-based research ethics board (REB).<br />
Aboriginal people commonly see the lack of collaboration and community focus in research design<br />
and implementation as an ethical issue that must be resolved.<br />
Our evaluation team was committed to a research approach, informed by and respectful of cultural<br />
values of the Aboriginal people and communities who participated in this evaluation. We strived<br />
for transparency in the research process and sought feedback on evaluation instruments and<br />
methods from each participating organization. For example, we encouraged review and feedback<br />
on interview questions for clients from representatives from the Aboriginal community and partners<br />
3 Ramsden I: Cultural safety. N Z Nurs J 1990, 83(11):18-19.<br />
4 Varcoe C, McCormick J: Racing around the classroom margins: Race, racism and teaching nursing. In Teaching nursing:<br />
Developing a student-centred learning environment. Edited by: Young L, Paterson B. Philadelphia: Lippincott, Williams &<br />
Williams; 2006:437-466.<br />
5 2009 Maar, M.. , B. Erskine, L. McGregor, M. Sutherland, D. Graham, T. Larose, M. Shawande, and T. Gordon. Innovations on<br />
a shoestring: A Study of a Collaborative Community-based Aboriginal Mental Health Service Model in Rural Canada.<br />
International Journal of Mental Health Systems 3:27. Accessible at www.ijmhs.com/content/3/1/27<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
involved in this evaluation prior to implementation. We also respected all advice regarding the<br />
recruitment of participants for this project. In particular, issue surrounding the recruitment of clients<br />
(consumers) was discussed with providers at each site. Clients perspectives were only included in the<br />
evaluation if providers felt it was appropriate for outside evaluators to interview clients. Cultural<br />
safety of clients was of utmost importance. Focus groups with clients were found to be<br />
inappropriate due to confidentiality issues related to this method in small communities. Interviews<br />
with clients were only conducted if approved and supported by local providers. We learned that in<br />
this service environment, many mental health services clients simply do no trust outsiders enough to<br />
volunteer for an open discussion of their experience with the OCAN. In those cases where client<br />
interviews were deemed appropriate, local mental health workers explained the process prior to<br />
the interview to their clients; and often participated in the interviews along with their clients as well<br />
as participated in follow up debriefing discussions with the evaluation team interviewers. Follow up<br />
debriefings were also offered to clients.<br />
.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
<strong>EVALUATION</strong> QUESTIONS<br />
Generally speaking, a process evaluation examines if a program or process is implemented and running as<br />
envisioned when it was designed. This evaluation went beyond the normal parameters of a process evaluation<br />
to also elucidate cultural and systems challenges and facilitators associated with OCAN implementation in the<br />
Ontario Aboriginal mental health service systems. Therefore the evaluation was designed to answer questions<br />
related to OCAN that focus on<br />
• the fit of the design of the OCAN for Aboriginal services, providers and clients, as well as<br />
• the relative success of the implementation of the OCAN in Aboriginal programs.<br />
In short, the overarching question of the evaluation was<br />
How well was the OCAN implemented in Aboriginal populations in the Ontario NE LHIN CMH CAP<br />
pilot project?<br />
Table 1 provides a detailed overview our evaluation approach including:<br />
1. evaluation questions used in this project;<br />
2. their relationship to evaluation questions posed in the evaluation of OCAN in mainstream<br />
services (as conducted by Caislyn Consulting Inc. in 2008);<br />
3. additional questions posed to address the unique circumstances faced by Aboriginal mental<br />
health services; and<br />
4. tools used to address each question.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Table 1: Research domains, evaluation questions, methods and tools<br />
Research Domain<br />
Evaluation question from<br />
evaluation of mainstream<br />
(non-Aboriginal) Services<br />
by Caislyn<br />
Additional evaluation<br />
questions/objectives specific to<br />
Aboriginal services and culture<br />
Methodology and tools to<br />
collect this information<br />
Service Context (not covered) What is the service context of the OCAN<br />
in Aboriginal programs?<br />
What kind of mental health services<br />
exist? What are the main mental health<br />
concerns observed?<br />
Were there any cross jurisdictional<br />
issues that affected implementation?<br />
Program reports (to be<br />
requested from participating<br />
projects<br />
Key informant interviews<br />
(using staff interview schedule<br />
in Appendix)<br />
Was the OCAN implemented by all<br />
workers and as planned?<br />
Is integration/lack of integration of<br />
federal and provincial services affecting<br />
the implementation of OCAN?<br />
Were there any other issues that<br />
affected implementation?<br />
Provider perspectives<br />
What did assessors value in<br />
the common assessment<br />
approach?<br />
How did the common<br />
assessment compare with<br />
existing assessment<br />
processes?<br />
Did assessors think they were<br />
well prepared to implement<br />
use of the tool?<br />
How was OCAN introduced to clients?<br />
Which domains were particularly useful?<br />
Which domains - if any - were<br />
problematic or culturally inappropriate?<br />
Were translation services required?<br />
Where there concerns regarding the<br />
collection of electronic mental health<br />
information?<br />
Focus groups using staff focus<br />
group guide (see Appendix)<br />
Survey (using Survey Monkey<br />
tool in Appendix)<br />
How satisfied are assessors<br />
with the CA tool?<br />
Client perspectives<br />
Did participants appreciate the<br />
self assessment approach?<br />
What supports did participants<br />
find effective to completing the<br />
self-assessment?<br />
What features of the CA tool<br />
did participants endorse?<br />
How satisfied were<br />
Which domains were particularly useful?<br />
Which domains - if any - were<br />
problematic or culturally inappropriate?<br />
Were translation services required?<br />
Where there concerns regarding the<br />
collection of electronic mental health<br />
information?<br />
Key informant interviews with<br />
clients (if seen as appropriate<br />
by project staff)<br />
Client interview schedule (see<br />
Appendix)<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Research Domain<br />
Evaluation question from<br />
evaluation of mainstream<br />
(non-Aboriginal) Services<br />
by Caislyn<br />
Additional evaluation<br />
questions/objectives specific to<br />
Aboriginal services and culture<br />
Methodology and tools to<br />
collect this information<br />
participants with the process?<br />
Future of the OCAN<br />
process<br />
Is technology working in the<br />
common assessment<br />
process?<br />
What programs are best<br />
suited for implementation of<br />
the common assessment?<br />
What changes should be<br />
made to the CA tools and tool<br />
use?<br />
Are additional domains<br />
required/desirable for Aboriginal people?<br />
Are reports useful to program planning<br />
and reporting?<br />
Is integration/lack of integration of<br />
federal and provincial services affecting<br />
the implementation of OCAN?<br />
Focus groups, using staff<br />
focus group guide (see<br />
Appendix)<br />
Survey (using Survey Monkey<br />
tool in Appendix)<br />
Client interview schedule (see<br />
Appendix)<br />
What training and resources<br />
are essential to future<br />
implementation of the CA<br />
process?<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
<strong>EVALUATION</strong> METHODOLOGY<br />
This evaluation was a process evaluation of the pilot implementation of OCAN in Aboriginal mental health<br />
services. The evaluation was designed to allow for comparisons with the OCAN evaluation in mainstream<br />
mental health programs where possible while focusing on the unique aspects of Aboriginal culture and<br />
experiences.<br />
Overview of Methods<br />
We used mixed methods in this evaluation, however our main focus was on the collection of in depth,<br />
qualitative data. This was done for the following reasons:<br />
1. Research shows that questionnaires based research has only limited success with Aboriginal<br />
communities.<br />
2. Little is known about the fit of OCAN within Aboriginal culture and services, therefore open ended<br />
qualitative research allows researchers to explore topics that are brought up by participants, but<br />
were not anticipated by researchers.<br />
3. The unique cultural, service and geographic context of the OCAN implementation within Aboriginal<br />
mental health services is best captured and understood through the richness of qualitative research<br />
data.<br />
In summary, we conducted a review of local Aboriginal mental health program documents, interviews, focus<br />
groups and a short survey with providers/staff, as well as key informant interviews with clients as follows:<br />
1. Mental health services document review<br />
At each site we reviewed service information, regional and local program descriptions and any other reports<br />
made available to the evaluation team by local staff, prior to or following the site visits.<br />
2. Focus groups and interviews with service providers/staff<br />
Interviews and focus groups were audio recorded and thematically analyzed by the researchers. Summary<br />
reports for each site were sent back to participants to allow staff to verify the accuracy of the research teams<br />
findings.<br />
3. Short survey with service providers/staff<br />
We also used a survey tool using Survey Monkey to collect survey data from providers/staff to obtain<br />
quantitative data on key features of the OCAN implementation. This tool was developed to allow direct<br />
comparisons to the OCAN evaluation conducted with mainstream service providers. We provided the option<br />
of internet based contributions and paper surveys to ensure remote sites had equal opportunity to contribute<br />
to all areas of the evaluation.<br />
4. Interviews with clients<br />
Interviews with clients were also audio recorded. Clients’ experiences with the OCAN tool were thematically<br />
analyzed.<br />
Given that many Aboriginal communities have had poor experiences with research in the past, the researchers<br />
implemented a detailed informed consent process ( see Appendix D). All participants provided either written<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
or verbal consent to participate in the evaluation after reviewing all sections in the letter of information<br />
(Appendix D).<br />
Timelines and Participants at each Participating Site<br />
Data was collected during site visits conducted during February and March 2010. A total of 26<br />
providers/staff and 8 clients participated in the evaluation. Details for each site visit are provided in Table 2.<br />
Table 2: Timelines and Participants at each Participating Site<br />
Site Timelines for site visit Number of staff participants Number of consumer<br />
participants<br />
Interviews/focus<br />
groups<br />
survey<br />
James Bay Community<br />
Mental Health Program<br />
34 Revlon<br />
Moosonee, ON<br />
P0L 1Y0<br />
PH: 705-336-2164<br />
FAX: 705-336-2746<br />
Noojmowin Teg Health<br />
Centre<br />
Postal Bag 2002, Hwy<br />
540<br />
48 Hillside Rd., Aundeck<br />
Omni Kaning<br />
Little Current, Ontario<br />
P0P 1K0Phone: (705)<br />
368-2182<br />
North Shore Tribal<br />
Council<br />
Gloria Daybutch<br />
Box 28, Cutler, ON P0P<br />
1B0<br />
(705) 844-2021<br />
Feb 2-5, 2010 10 8 8<br />
Feb 10, 2010 4 2 0<br />
March 24, 2010 9 9 0<br />
April 19, 2010 3 3 0<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
OVERVIEW <strong>OF</strong> PRESENTATION <strong>OF</strong> FINDINGS<br />
The evaluation of the implementation of OCAN in Aboriginal mental health services included culturally,<br />
geographically and politically diverse Aboriginal regions in Northern Eastern Ontario. It should not come as a<br />
surprise that while we found some common themes, we also found distinct differences between sites, mainly<br />
based on the degree of isolation, languages spoken by staff and clients and the state of development of<br />
mental health services. Lumping these diverse realities into a single “results sections” would belie the diverse<br />
contexts, experiences and service realities of participating Aboriginal mental health services staff and clients.<br />
Furthermore we believe that specific information on the influence of geography, culture, language and the<br />
Aboriginal mental health service context is valuable information to determine the future of OCAN in<br />
Aboriginal mental health services.<br />
It is important to note that Aboriginal communities in Canada have experienced profound disruptions to their<br />
traditional lifestyles over several generations. Many communities have experienced major epidemics, losses of<br />
languages and lifestyles and multi-generational abuse within the residential school systems. A large body of<br />
research shows that these historical events have resulted in higher rates of mental illness, family violence,<br />
suicides and addictions in Aboriginal communities when compared with the mainstream population 6 . The<br />
impact of these events on the health and the determinants of health of Aboriginal populations has often been<br />
profound, however it has not necessarily affected communities in a uniform manner. We provide related<br />
background information relevant to the implementation of OCAN throughout this report.<br />
To avoid generalizations related to Aboriginal people and Aboriginal mental health issues, we divided the<br />
results section into 2 sections, representing the cultural and geographic areas where we conducted the<br />
evaluation.<br />
1. West Bank of the James Bay Coast;<br />
2. North Central Ontario, encompassing Manitoulin Island and the North Shore of Lake Huron;<br />
We paid particular attention to describe the geographic, cultural and service context in each of these areas<br />
to demonstrate the impact of these factors on the OCAN implementation.<br />
Following the results sections we discuss the findings and report on related implications for the<br />
implementation of OCAN in Aboriginal mental health services. Our discussion is focused on the following topics<br />
related to OCAN and its implementation:<br />
1. Aspects of OCAN that are easily compatible with Aboriginal services, and therefore should be<br />
continued;<br />
2. Aspects of OCAN that are not congruent with Aboriginal services and could be modified;<br />
3. Aspects of OCAN that are difficult to reconcile with Aboriginal services and require significant<br />
alteration.<br />
Finally we list recommendations for the implementation of OCAN in Aboriginal mental health services.<br />
6 For example see: Kirmayer LJ, Guthrie Valaskakis G. , (Eds.). Healing Traditions: The Mental Health of Aboriginal Peoples in<br />
Canada. Vancouver: UBC Press; 2009. Brave Heart MY, De Bruyn LM. The American Indian Holocaust: Healing historical unresolved<br />
grief. American Indian and Alaska Native Mental Health Research. 1998;8(2):56–78.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
RESULTS FOR <strong>THE</strong> JAMES BAY COAST SITES<br />
The James Bay Community Mental Health Program (JBCMHP) on the James Bay Coast in the Far North of<br />
Ontario took part in this evaluation of OCAN. This program provides services to Aboriginal people who live<br />
on-reserve in five Cree communities along the western coast of James Bay as well as one off-reserve<br />
community:<br />
1. Attawapiskat First Nation<br />
2. Kashechewan First Nation<br />
3. Fort Albany First Nation<br />
4. Moose Cree First Nation (Moose Factory)<br />
5. Peawanuck First Nation (Weenusk)<br />
6. Moosonee (off reserve town)<br />
Figure 1: Map of Ontario with James Bay Communities 7<br />
7 Atlas of Canada, accessible on the Natural Resources Canada website at<br />
www.atlas.nrcan.gc.ca/site/english/maps/reference/provincesterritories/ontario/referencemap_image_view<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Description of the James Bay Coast Communities<br />
There is no road access to the James Bay communities from the more southern towns of Ontario. However<br />
there is rail way service to Moosonee and there are air strips in all communities except Moose Factory. A<br />
ferry runs from Moose Factory to Moosonee in the summer and a helicopter service operates between these<br />
communities during freeze up and break up of the ice. Ice roads connect all the communities except<br />
Peawanuck starting in late winter 8 . Compared to other inhabited areas in north eastern Ontario the climate is<br />
harsh, with long dry winters with temperatures often reaching -40 degrees Celsius and short summers. The<br />
communities frequently have to deal with the effects of severe flooding and at times evacuation of their<br />
communities during the breakup of the spring ice.<br />
Moosonee is located on the Moose River 12 miles south of James Bay. Approximately 3,500 people live in<br />
Moosonee with about 85% being Cree. The main language spoken in this town is English with Cree as a<br />
second language. The town is not connected to the road system in Ontario, however it is accessible by a 4-5<br />
hour train ride from Cochrane, Ontario, the closest town accessible by train. Scheduled air service is provided<br />
by Air Creebec based in Timmins. In addition there are several small charter air companies based in<br />
Moosonee 9 . During the winter months, ice roads lead to the communities of Attawapiskat, Kashechewan, Fort<br />
Albany, Moose Factory.<br />
Moose Factory is located near the mouth of the Moose River on an island approximately 13 miles long. The<br />
neighbouring community of Moosonee which is located on the mainland approximately 5 km from Moose<br />
Factory is accessible by boat in the summer and by ice road in the winter. The total population is about<br />
2700 10 .<br />
Kashechewan is located on the north side of the Albany River at a distance of about 130km from Moosonee.<br />
It is accessible by year-round air service and a winter ice road. The majority of the people speak Cree as a<br />
first language and Cree is spoken in most homes.<br />
Fort Albany is located on the south side of the Albany River at approximately 128 km from Moosone by air.<br />
It is accessible by air year-round air service and a winter ice road. The majority of the people speak Cree as<br />
a first language and Cree is spoken in most homes.<br />
Attawapiskat is located approximately 260 km north of Moosonee (20 minute flight), near the mouth of the<br />
Attawapiskat River. It has an on-reserve population of approximately 1500 people. Air Creebec has<br />
regularly scheduled flights to Attawapiskat. In addition there is a winter road connecting the community to<br />
Mossonee and more northern communities in the winter and a barge runs during the summer. The majority of<br />
the people speak Cree as a first language and Cree is spoken in most homes.<br />
Peawanuck is at a distance of about 520 Km from Moosonee and is the most northern community services by<br />
JBMHP and has about 300 residents. It is accessible by year-round air service and by barge during the short<br />
8 Weeneebayko General Hospital website, accessible at www.wha.on.ca<br />
9 Moosonee website accessible at www.moosonee.ca<br />
10 Moose Cree website accessible at www.moosecree.com<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
time of open water (September). Recently, a winter road to Gillam, Manitoba has been prepared; it is the<br />
world’s longest winter road 11 .<br />
The Service Context: the James Bay Community Mental Health<br />
Program 12<br />
Alemotaeta, the James Bay Community Mental Health Program, is committed to establishing a healthier and<br />
happier environment for the people in each community along the James Bay Coast. The program provides<br />
services with a holistic approach, in a manner that recognizes the local cultures, heritages and traditions.<br />
Individuals, families and whole communities are offered ongoing support and developmental assistance to<br />
honestly face the aspects of their lives which stop them from being fully healthy, physically, emotionally,<br />
mentally and spiritually and to develop their strengths in living a more balanced life. The program networks<br />
with other community resources and agencies within the local communities and outside area.<br />
The program offers front-line services that are always respectful of the culture and language of the people.<br />
The service provides continuity of care for those people over the age 16 living in the James Bay area,<br />
particularly those struggling with depression, concurrent disorder, court support & diversion, follow-up and<br />
after care, grief, addiction to alcohol/drugs, effects of abuse, problems with relationships, low self-esteem,<br />
Moderate Mental Illness and Severe Mental Illness. The following service providers are available:<br />
Mental Health Counselor (available in all sites): To provide a variety of appropriate client-directed<br />
counseling services.<br />
Regional Team Leader: To provide counseling and professional support for program staff and community<br />
partners. To provide counseling and referral services for individuals, couples and families as appropriate.<br />
Regional Clinician Worker: To provide community based counseling services to persons with mental illness<br />
which are culturally relative, accessible, and effective in the client’s home community as part of the program’s<br />
clinical team. To provide joint clinical counseling with a Community Counselor in the coastal communities served<br />
by the James Bay Community Mental Health Program.<br />
Regional Concurrent Disorder Worker: To provide culturally appropriate assessment, crisis management,<br />
supportive counseling and referral services in their language of choice in home community for clients with SMI<br />
(Serious Mental Health Illness) and/or CD (Concurrent Disorders - a major mental illness in combination with<br />
addictions issues and substance misuse).<br />
Regional Court Worker/Case Manager: The primary goal of the program is to divert people with mental<br />
illness away from or out of the criminal justice system to more appropriate community mental health services.<br />
Regional Crisis Intervention/Early Episode Clinician: Provides comprehensive case management and crisis<br />
services to clients that are experiencing early psychosis.<br />
11 Peawanuck website accessible at www.peawanuckcree.myknet.org/index.html<br />
12 Adapted from the James Bay Community Mental Health Services Program literature, prepared by James Bay Community<br />
Mental Health Services Program staff<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Addictions Worker: The program provides intake, assessment, referral, community treatment, group<br />
intervention, public education and community awareness to adults, youth, family members and Problem<br />
Gamblers.<br />
The head office is located in Moosonee and regional specialized workers fly into the coastal communities to<br />
provide outresearch services; workers also provide sessions to clients over the phone. Due to the geographical<br />
barriers, workers see their clients only rarely in person (often 1-3 times per year) and some workers have<br />
never met some of their clients in person. Larger coastal communities have, in addition to visiting workers, also<br />
a full time worker in the community. Telehealth/telepsychiatry facilities are only accessible in Moosonee and<br />
Moosefactory, there is no telemedicine within the coast communities. Internet access is unreliable with slow<br />
connections when it is working. Phone access to the communities normally works, however even this connection is<br />
at times quite poor.<br />
The services are geared to address the broad range of need of the client population, including: family issues,<br />
crisis, court referrals for anger management, suicidal ideation, mood disorders, depression, trauma, Post<br />
Traumatic Stress Disorder and anxiety disorders. These presenting concerns are in most cases complicated by<br />
intergenerational trauma, that may include residential school trauma, physical and sexual abuse and other<br />
issues. Substance use is mostly confined to alcohol. Suicidal ideation is a major concern and suicide waves have<br />
occurred in some communities in the recent past.<br />
The current client case load for JBCMHS is approximately 600 -700 clients, however many more contact this<br />
team for brief mental health services and these clients often return for further brief services after a period of<br />
time.<br />
Common presenting concerns according to staff are: family issues, crisis, court referrals (e.g.,: for anger<br />
management) mood disorders, depression, anxiety disorder, trauma, complicated trauma, Post Traumatic<br />
Stress Disorder, suicidal ideation is a major issue as well as addictions to alcohol.<br />
During our site visit, local staff explained that need for services and travel demands are overwhelming for<br />
workers.<br />
Overview of the OCAN Implementation at the James Bay Coast<br />
In this section we report on successes and challenges of implementing OCAN in the JBCMHS program.<br />
Providers’ Understanding of OCAN<br />
Providers explained that their interest in participating in the OCAN pilot was rooted in their desire to be<br />
involved in important new initiatives that were implemented elsewhere in the province or region. They<br />
generally expressed a deep appreciation of the opportunity to provide feedback on an initiative that could<br />
potentially be rolled out in Aboriginal mental health services in the future. The James Bay service area is<br />
geographically quite isolated and providers felt that participating in the OCAN pilot might result in better<br />
connection and networking with other programs within the LHIN and the province as a whole.<br />
Providers clearly understood that the OCAN is a standardized tool that has been piloted in mental health<br />
programs in North Eastern Ontario, including some Aboriginal mental health services. They also understood<br />
that OCAN has not been used in Aboriginal services previously and that their feedback on the fit of OCAN<br />
with Aboriginal people and services was sought as part of the evaluation phase.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Staff generally felt that the evaluation was perhaps scheduled too early to provide definitive feedback on<br />
the fit of OCAN within the daily business of local service system, and more importantly the fit with the culture<br />
and presenting concerns of Aboriginal clients in the James Bay area. One provider even stated “it is too soon<br />
to tell if it is working, come back again next year!”<br />
The research team explored the underlying reasons for this sentiment throughout the two days spent on site.<br />
However one theme emerged almost immediately: While providers were initially interested in OCAN because<br />
it is a standardized tool and used elsewhere in North Eastern Ontario, they also reported that they<br />
increasingly questioned if OCAN information from the James Bay coast clients can be “read” accurately by<br />
service providers elsewhere in the province to reflect the clients story. There were concerns that the OCAN<br />
may not accurately portray the needs of the individual client or client population. Essentially, providers were<br />
questioning the reliability and validity of the tool within the Aboriginal client population of the James Bay<br />
area. We will elaborate more on this sentiment in the following sections.<br />
On a more positive note, providers shared the hope that the OCAN would collect the necessary evidence to<br />
support program development. Staff generally felt that the JBC mental health program is servicing many<br />
clients with extremely high needs and without the necessary range of specialized mental health services and<br />
resources.<br />
Perceived Adequacy of OCAN Staff Training and Support<br />
Staff felt that the OCAN training they received was a good start, however they agreed that it “felt rushed”<br />
and that is was too short. Most importantly the client scenarios used during the training session were not seen<br />
as very helpful since they did not match the reality of the Cree client population on the James Bay coast. For<br />
example, staff therefore felt they were not sufficiently prepared during the training sessions to implement<br />
OCAN in a service environment with clients who are predominantly Cree speakers and culturally quite<br />
different from mainstream Canadians. Only some providers are fluent speakers of Cree and translation is<br />
frequently required to complete the OCAN. Providers experienced that the OCAN was very challenging to<br />
translate into Cree, since many of the concepts were based on Western culture or clinical mental health<br />
concepts that are difficult to translate into Cree. Frequently concepts used in OCAN and OCAN training do<br />
not exist in the Cree culture or language. Furthermore, some areas of the OCAN ask very direct and intrusive<br />
questions of the client, which is incongruent with Cree cultural norms and even violates cultural protocols.<br />
Providers felt that training session should include focused discussions on how to address these specific cultural<br />
issues, so that workers would not have to individually work this out through trial and error.<br />
Providers felt that the OCAN telephone support line was very helpful and allowed for quick access to more<br />
general questions related to OCAN use.<br />
The OCAN portal on the other hand has caused some difficulties. Providers report intermitted problems with<br />
(a) gaining access to the portal, (b) finding information and (c) downloading information.<br />
Current status of OCAN implementation<br />
Staff explained that most clients will see staff sporadically and often only during a crisis and it is therefore<br />
difficult to implement the OCAN with many of their clients. One provider explained: “mental health<br />
management is a very hard concept to get across to most of our clients”, as they are often struggling with<br />
many issues and are unable to focus on managing their mental health. After several attempts with various<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
clients, the staff members decided that, for the purpose of the OCAN pilot, to select clients with SMI who are<br />
relatively stable and are actively trying to manage their health and with whom they had already established<br />
a rapport and relationship. Staff felt these clients would be more suitable and able to work with an<br />
assessment tool. Providers also explained that several of the OCAN questions were seen as very intrusive by<br />
clients and required significant rapport and established trust between the provider and the client, which may<br />
take months or even years to establish in this client population.<br />
In contrast, providers felt that the tool was much less suitable for clients with addictions or those with trauma<br />
issues.<br />
OCAN’s fit within the service delivery model at JBCMHS<br />
Perceived importance of a standardized assessment tool<br />
Providers and clients alike agreed overwhelmingly that the implementation of a good and culturally<br />
appropriate standardized mental health assessment tool is very desirable for many reasons. For example,<br />
participants explained that the client population is fairly transient. For example a client may move to receive<br />
service in the more southern towns such as Timmins. It is seen as a very positive if the client could transfer their<br />
records and assessments and would thus not have to tell their story again. Clients we spoke to were also very<br />
open to sharing their OCAN data for this purpose.<br />
However providers questioned if the OCAN is truly collecting the right information to realize this potential.<br />
They felt that significant aspect of relevant information on their clients is not collected by the OCAN; while<br />
other information may be misleading without in-depth knowledge of the realties of coastal community life.<br />
Providers did not have a previous standardized assessment tool, since they felt that available assessment tools<br />
generally do not fit well with Aboriginal clients and their experiences. Instead staff often “cut and paste”<br />
various assessment tools in their intake (eg.: CAGE tool to assess alcohol use).<br />
The realities of implementing OCAN into the daily workflow<br />
OCAN is creating significant duplication of work for staff at this point. The self assessment as well as staff<br />
assessment has only been used in paper format so far and must be entered at a later point, due to the<br />
multiple technological and human challenges of using an automated tool in the James Bay communities. Staff<br />
members provide services by outreach to communities, either by phone or in person. When traveling to the<br />
communities, staff do not receive laptops to access the automated OCAN tool. Furthermore staff believe that<br />
they currently require an internet connection to input data into the automated OCAN tool; however coastal<br />
communities do not have high speed internet connections, making on site data entry impractical.<br />
Providers have also found that the clients generally cannot fill out the self assessment independently as many<br />
clients have only about a grade 3 education and have difficulty reading and writing. Finding a family<br />
member or friend to help clients with the self assessment creates major challenges, because clients are often<br />
not willing to disclose the self assessment to family friends, or even a local (paraprofessional) community<br />
worker. Clients seek out JBCMHS providers precisely because of the perceived level of confidentiality offered<br />
by this team who do not have the close community or families ties of community workers. The OCAN provider<br />
Sutherland & Maar - March 2010 Page 24
OCAN Evaluation for Aboriginal Mental Health Programs<br />
therefore normally helps the client fill out the consumer self assessment form. This can take quite some time,<br />
ranging from 30 minutes to about 2 hours.<br />
Clients and providers agreed that the coding is very difficult and confusing for clients, since codes such as “No<br />
Need”, “Met Need” and “Unmet Need” are very abstract concepts and do not directly answer the questions<br />
posed in the tool.<br />
When staff have to complete the OCAN over the phone these challenges are often compounded. Since the<br />
need for services is much greater than available resources, staff are often reluctant to spend an additional<br />
session on the OCAN, knowing that they have only few sessions with their clients in a given year.<br />
Fit of the automated OCAN tool<br />
Clients are generally accepting of the idea of having their information recorded in electronic format and<br />
potentially shared with other providers. Still, there are some trust issue related to the electronic record for<br />
some clients. At times, there is a need to keep paper records only, to ensure that the information is accessible<br />
only to one worker. This is an important issue due to the many family relationships in small communities, where<br />
electronic records might become inadvertently accessible to family members in the future who work in the<br />
system in the future. As on provider explained : “every one is related to everyone around here”. Consequently<br />
some mental health services clients are reluctant to be linked into a server at the hospital.<br />
Electronic medical records are currently being introduced within the health system at the James Bay Coast the<br />
system is ready for electronic records, although providers reported that there are currently frequent glitches<br />
to access electronic records.<br />
In order for clients to enter their own information, a computer dedicated to OCAN is seen as necessary,<br />
however even then providers believe direct entry is not feasible since they frequently have to rephrase the<br />
questions for clients in the self assessment tool to make them more appropriate for this population.<br />
Fit of OCAN with Aboriginal client population and presenting concerns<br />
The providers generally felt that a weakness of the tool is that it is too prescriptive in some areas without<br />
covering other areas adequately which are seen as essential in this client population. One provider stated: “it<br />
feels like you are putting the client into a box as you are fitting them into the categories of the OCAN” and<br />
there is resistance to do this from both providers and clients. Another criticism was that OCAN “doesn’t feel<br />
holistic [when used with a client] , although it is presented as a holistic tool”.<br />
Providers felt that OCAN is most useful for clients with SMI who are stable. There was agreement that it was<br />
difficult to use with clients with the following presenting concerns:<br />
• intergenerational trauma, including residential school trauma<br />
• people in crisis<br />
• clients who see workers “just to unload” because they have problems and no one to talk to<br />
• brief intervention with clients, who will potentially not be seen again for a year(s)<br />
• grief issues and complex issues<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Fit of OCAN within Cree Language and Culture<br />
Most of the Aboriginal people in the James Bay area speak Cree as a first language. While their comfort<br />
level with English varies, it is clear that most people prefer to speak Cree. Furthermore, translation from Cree<br />
into English and vice versa is difficult, particular with more abstract clinical/ Western concepts that may not<br />
have an equivalent counterpart in the Cree language or culture. Providers explained that many aspects of the<br />
OCAN are very difficult to translate. When the self assessment has to be translated it will often take 2<br />
sessions to complete.<br />
Those providers who are not bilingual rely on local staff or community members to act as translators (i.e. not<br />
designated and trained medical translators) and are unsure of the accuracy of the translation. Concepts that<br />
pose particular challenges are related to the scoring of met/unmet needs. Interviews with clients confirmed<br />
that the scoring concepts were very difficult to grasp. Some items are very difficult to translate and include<br />
the medical section, legal language and sexual terms.<br />
The tool has not yet been translated for Cree speakers and workers indicated that a OCAN tool translated<br />
and written in Cree syllabics is not desirable, since fewer and fewer people read syllabics. In addition, the<br />
different dialects would also pose a problem.<br />
There were also very specific difficulties with the translation of question 17, related to sexual expression.<br />
Fluent providers explained to us that words related to the domain of sexual expression have been lost from<br />
the Cree language in this geographic area. The reason cited was that local population went through at least<br />
four generations of residential schools, and one of the many impacts was that Cree words with a sexual<br />
meaning had became taboo and were even largely lost form the vocabulary. When translating the question<br />
into Cree, there is no fitting word that can be used for sexual expression, instead the translator has to actually<br />
describe a sexual act. Both providers and clients concurred that this was not only problematic, but highly<br />
offensive to many clients. We found that during interviews clients would only very reluctantly refer to the<br />
sexual expression domain. Most only euphemistically referred to it as “question 17” however would not use<br />
the words “sexual expression”. This strongly supports our conclusion that the question is problematic with this<br />
population.<br />
Furthermore, providers repeatedly told us that this kind of personal question cannot be asked by providers if<br />
they have not established a long rapport with the client previously. All clients had known and worked with the<br />
providers for over a year. Posing personal assessment questions early on in the therapeutic relationship was<br />
seen as culturally inappropriate and would interfere with the development of a trust relationship. One<br />
provider explained: “clients will sometimes just answer a question to be polite. They will then change the<br />
answer much later”. This provider explained that client will only answer personal questions accurately once<br />
trust has been established over a period of time. When clients are asked why they did not share certain<br />
information early they are known to reply to their workers “I didn’t know you then!”.<br />
Overall, those clients who completed the assessment told us that it helped the relationship with their worker<br />
and it helped to talk to the worker about what services were needed.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
RESULTS FOR NORTH CENTRAL <strong>ONTARIO</strong> REGION SITES<br />
The two participating programs are delivered by two provincially funded Aboriginal Health Access Centres.<br />
N'Mninoeyaa Aboriginal Mental Health Services provides mental health services to the communities of the<br />
North Shore Tribal Council located between Sault Ste Marie and Sudbury on the northern shore of Lake<br />
Huron. Noojmowin Teg Health Access Centre’s mental health team provides services to island communities in<br />
the Manitoulin District. Both organizations provide holistic culturally based services on and off reserve in rural<br />
North Central Ontario. The urban centers of Sault Ste. Marie and Sudbury are accessible by road from all<br />
communities. Manitoulin island communities are accessible year-round by a swing bridge. Driving distance to<br />
the urban centres ranges from 20 minutes to 3 hours. Figure 2 shows a map of the North Shore of Lake Huron<br />
and Manitoulin Island.<br />
Figure 2: Map of Manitoulin island and North Shore of Lake Huron<br />
Description of North Shore and Manitoulin Communities<br />
N'Mninoeyaa Aboriginal Mental Health Services provides services to seven First Nations of the North Shore<br />
Tribal Council as well as at the Indian Friendship Centre in the town of Sault Ste. Marie. The communities are<br />
located along highway 17 (see Figure 2):<br />
1. Batchewana First Nation<br />
2. Garden River First Nation<br />
3. Thessalon First Nation<br />
4. Mississauga First Nation<br />
5. Serpent River First Nation<br />
6. Sagamok Anishnawbek<br />
7. Atikameksheng Anishnawbek (Whitefish Lake First Nation)<br />
8. Sault Ste. Marie Indian Friendship Centre<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Noojmowin Teg Health Access Centre provides services to seven First Nations on Manitoulin Island, as well as<br />
the off reserve Aboriginal population in the Manitoulin District. The communities include:<br />
1. Aundeck Omni Kaning<br />
2. M'Chigeeng First Nation<br />
3. Sheguiandah First Nation<br />
4. Sheshegwaning First Nation<br />
5. Whitefish River First Nation<br />
6. Wikwemikong Unceded Indian Reserve<br />
7. Zhiibaahaasing First Nation<br />
8. Off reserve population in the Manitoulin District<br />
Service Context: N'Mninoeyaa Aboriginal Mental Health Services<br />
N'Mninoeyaa Aboriginal Mental Health Services provide both traditional and contemporary mental health<br />
counseling and treatment services to adult individuals (18 and over) with significant mental health challenges.<br />
Services are provided by outreach to communities. A Mental Health Program Coordinator works with an<br />
Aboriginal Mental Health Sub-committee, made up of one representative from each community including the<br />
Indian Friendship Centre, to provide program support, planning and guidance in implementing the regional<br />
mental health program 13 .<br />
Outreach services are provided at the community level, where other, less specialized (mainly federal), services<br />
also exist, such as the NNADAP and community mental health workers. Generally, the local workers provide<br />
brief services as well as referrals to outside services and visiting professionals.<br />
The visiting mental health staff complement includes a psychologist for Garden River, Batchewana, and the<br />
Indian Friendship Centre of Sault Ste. Marie on a purchased service contract , 3 hours per week per<br />
community; a purchased service Mental Health Therapist working in Atikameksheng Anishnawbek (4 hours per<br />
week); and a full time employee, Mental Health Case Worker for Sagamok Anishnawbek, Serpent River,<br />
Mississauga and Thessalon First Nations, providing services one day per week in each community.<br />
Overview of the OCAN Implementation at N'Mninoeyaa<br />
In this section we report on successes and challenges of implementing OCAN in mental health services with<br />
N'Mninoeyaa Aboriginal Mental Health Services and partner community sites.<br />
Providers’ Understanding of OCAN<br />
The providers had a clear understanding of the roll of OCAN in the NE LHIN and that it is currently pilot<br />
tested in Aboriginal mental health programs. Providers were very interested in sharing their experience with<br />
the OCAN tool in Aboriginal programs and also to influence the implementation of an assessment tool in order<br />
to establish a good fit with Aboriginal services. Participants also understood that the OCAN is based on a<br />
established assessment tool.<br />
13 Information adapted from North Shore Tribal Council Annual Report 2008-2009 accessible at<br />
www.mamaweswen.ca/arjul8-compiled4web.pdf<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
The providers generally welcome the concept of a standardized assessment tool. They had formulated a very<br />
concrete and strategic picture of their requirements for a standardized assessment tool and how such a tool<br />
could benefit clients and service development.<br />
Perceived Adequacy of OCAN Staff Training and Support<br />
A service coordinator took part in the “train the trainer” session provided by the CMH-CAP OCAN trainers.<br />
Local staff including two NSTC visiting mental health providers were then subsequently trained. The community<br />
level providers felt that the locally conducted training was quite good, however a refresher course was very<br />
necessary, particularly since the OCAN had not been used by many providers nor for all clients at this point.<br />
Workers believed that the client cases provided during the training sessions would benefit from an Aboriginal<br />
specific cultural component, as Aboriginal clients’ interaction related to the OCAN assessment tool vary<br />
considerably from the provided example cases. Developing Aboriginal client cases would better prepare<br />
workers to respond to the barriers and concerns perceived by many Aboriginal clients with respect to the<br />
OCAN.<br />
Current status of OCAN implementation<br />
At the time of this evaluation, staff has not been able to complete any of the staff or consumer assessments in<br />
all but two of the participating sites. None of the sites had been able to make significant progress<br />
implementing the OCAN in their service delivery model. Those sites that had completed some assessments had<br />
only managed to complete very few. The challenges related to the OCAN implementation are described in<br />
the following sections.<br />
OCAN’s fit within the service delivery on the North Shore<br />
Perceived importance of a standardized assessment tool<br />
Providers explained that there was lots of excitement, when the OCAN pilot was first discussed. The lack of a<br />
standardized assessment tool had long been perceived as a problem. In particular this lack of a standardized<br />
assessment tool has resulted in clients having to tell their story over and over. One worker explained that<br />
“clients are assessed to death” in the current system. The notion of a culturally appropriate standardized<br />
assessment tool is therefore strongly supported by staff as is the basic concept of an assessment tool with a<br />
broad range of domains designed to provide a holistic overview of each client’s individual situation.<br />
Furthermore, the prospect of collecting and accessing standardized information that can be summarized to<br />
provide current statistics on services and needs of clients is seen as a very important incentive to participate in<br />
the implementation of a standardized electronic assessment tool. Workers believed this would help in more<br />
strategic and evidence based development of mental health and supportive services. Finally, the<br />
implementation of a comprehensive assessment tool within the mental health services is also seen as<br />
contributing to building skills and capacity at the community level.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
The realities of implementation of OCAN into the daily workflow<br />
At the NSTC, the OCAN pilot was initially planned to occur with all client services funded under the NE LHIN. It<br />
was not to be restricted to clients with SMI or other groups; rather all providers and clients were to be invited<br />
to use the OCAN. It was also planned that a local worker was to complete the OCAN if he/she referred a<br />
client to a visiting professional (funded under the LHIN). Mangers believed that this approach would then<br />
encourage the use of OCAN as a case management tool. If however the client was not referred by the local<br />
worker, then the visiting professional was to complete the OCAN.<br />
While this approach was very well thought out, when it came to implementation, this model posed several<br />
unexpected but significant challenges in all of the service locations. Time and resources constraints were<br />
identified as a major barrier to completing OCAN, because visiting professionals have just a few hours per<br />
week to spend on client contact in each community. The services provided by visiting specialists are seen as<br />
scarce and urgently required by clients and providers. As a result, most visiting professionals feel that it does<br />
not make sense to use the few hours they have to provide direct services to complete the OCAN. Specialized<br />
providers were clear, that they would need to reduce their client load in order to implement OCAN. This<br />
sentiment is compounded by the fact that providers believe the OCAN does not provide any immediate<br />
benefit to their clients needs at this time. Most visiting providers feel that a better approach would be to have<br />
an intake worker complete all of the OCAN assessments.<br />
Some of the local (some federally, some provincially funded) community workers also faced barriers with<br />
clients when they attempted to complete the OCAN for the visiting professionals. Local workers who had in the<br />
past not been involved in the circle of care with visiting professionals faced resistance from clients. When they<br />
invited clients to participate in the OCAN, clients often perceived this as a significant and undesirable<br />
deviation from the way services were previously provided. Given the small community size, clients are<br />
frequently uncomfortable revealing in-depth sensitive information to local workers. Therefore, many clients<br />
refused to complete the OCAN in those cases.<br />
Furthermore workers reported that some clients were opposed to participate in OCAN right from the start,<br />
while others were initially willing to complete OCAN, but later did not want to follow up. “They just keep<br />
putting it off” explained one worker. Workers felt that for many of their clients the word “assessment”<br />
represented a significant barrier. Some clients were suspicious of reasons for the assessment, because trust in<br />
the health care system is an issue with many Aboriginal clients. Clients frequently questioned the worker: “Why<br />
all of a sudden do you want all this information?” or “You already know me! Why are you asking this” As the<br />
OCAN tool is explicitly voluntary and cannot become a barrier to access to services, many workers did not<br />
feel that they should press their clients any further. Many new clients already have to complete multiple<br />
lengthy forms for referrals etc. At this point, the OCAN cannot be shared with other services such as treatment<br />
centres or hospitals. From the perspective of clients and providers, OCAN therefore currently adds to an<br />
already overwhelming bureaucracy.<br />
Much more client awareness and client education is required to make the OCAN acceptable to Aboriginal<br />
clients. In addition, realistic client scenarios during the training sessions would better prepare worker to<br />
respond to the concerns Aboriginal clients might have regarding OCAN. Furthermore, implementation of<br />
OCAN in the hospital and addictions treatment, coupled with implementation of OCAN information sharing<br />
protocols are necessary to realize the potential important benefits associated with OCAN in these Aboriginal<br />
communities.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Cross jurisdictional issues<br />
As previously outlined, the OCAN implementation was planned for visiting professionals program funded by<br />
the NE LHIN only. Other services providers, working in the same service environment, but funded under<br />
Ontario’s Aboriginal Healing and Wellness Strategy or federal funded services (First Nations and Inuit Health<br />
Branch), were not included in the pilot implementation in all but one community due to jurisdictional issues.<br />
However the specialized services of the visiting professionals funded under LHIN are seen as particularly<br />
scarce and urgently required by clients in all communities. As a result, the specialized workers are very<br />
reluctant to spend their time on the completion of OCAN when their direct services allocation are felt to be<br />
already insufficient at the community level. Most of these workers believe that a lengthy standardized<br />
assessment tool is more appropriately completed by an intake worker. However there are no intake workers<br />
funded under the NE LHIN to complete the assessment.<br />
Contrary to this, some community workers felt OCAN was too detailed to be completed by an intake worker.<br />
Instead it may be best implemented as a case management tool if the local worker could act as the case<br />
manager, not as an intake worker. Under this model the specialized provider would act as a secondary<br />
provider with case management functions provided at the community level.<br />
NSTC stakeholders explained that further formal integration of the various funding streams is necessary to<br />
support the implementation of a common assessment tool and to harness the benefits of the tool. Currently this<br />
integration is still lacking and as a result there are significant cross jurisdictional challenges that hinder the<br />
implementation of a common assessment tool. Furthermore, there is a concern that OCAN is a LHIN funded<br />
project, and that data entered by federally funded service providers would skew the OCAN data<br />
significantly, since it is as a tool that can be used to identify need. Furthermore, the OCAN software is<br />
required by all Aboriginal mental health offices if integration is to occur, however there is no funding for this<br />
from the federal funding streams for the federally funded workers.<br />
Workers emphasized that they see the potential benefits of a common assessment tool, particularly as a case<br />
management tool, however due the lack of integration of OCAN within the broader Aboriginal mental health<br />
services, these benefits are currently not yet realized.<br />
Fit of the automated OCAN tool<br />
An automated tools fits very well with the North Shore Tribal Council strategic directions and current service<br />
environment. An ehealth project called the Giiwednong Health Link Project is currently underway and involves<br />
First Nations in the Manitoulin Island/North Shore region. From the perspective of the health directors, OCAN<br />
could be “just one more tool to add to this project”.<br />
However this does not mean that e-health records are completed accepted at the client level. Responses to e-<br />
records are still mixed. For some providers and clients it is a normal part of doing business, others are<br />
resisting it. Often, younger people are more open to this than the older generation. Workers believed that<br />
some of the younger clients would be able to enter their data into the automated self assessment tool directly<br />
in the future. Some younger clients might even be more open to provide information on the more intrusive<br />
Sutherland & Maar - March 2010 Page 31
OCAN Evaluation for Aboriginal Mental Health Programs<br />
subjects such as sexuality, since an automated tool may be less intimidating to clients when answering sensitive<br />
questions.<br />
Those who are resisting e-records report feeling uncertainty and even fear of who might access the records.<br />
Questions such as “Who might see it? Is it secure?” are currently raised by some clients and providers. Some<br />
providers are also concerned about: “What happens if the computer shuts down? Where are the records?”<br />
However from the perspective of most providers e-records ‘”just make sense”.<br />
Privacy issues regarding e-records still need to be carefully resolved, so that only those providers who need<br />
to know information have access. This is of course necessary in order to comply with privacy laws, but<br />
furthermore, in small rural communities there is the added issue that familial relationships may exist between<br />
clients and health care providers. Clients therefore often want to be assured that their records can only be<br />
accessed by specific individuals to ensure that professional and personal boundaries are not crossed. The<br />
circle of care must be clearly articulated.<br />
Many clients are not familiar enough with computers to enter their own data. They would require training to<br />
enter their own data. Providers were also concerned that clients might be able to navigate to other areas of<br />
the computer; i.e. that the data entry process is not secure.<br />
Workers therefore identified the need to develop protocols regarding the ownership of the data, storage<br />
and access. One worker summarized the sentiment of many workers as follows: “The e-health record fits<br />
generally very well with mental health services here, it would be an ideal way to provide services if it was<br />
very secure and also accessible to workers as necessary.”<br />
The current lack of integration with the mandatory Roxy database is leading to significant duplication of data<br />
entry for OCAN.<br />
Fit of OCAN with Aboriginal client population and presenting concerns<br />
Providers explained that many of their clients require urgent support, “they need something done, they need<br />
to talk, they may have multiple concerns” and in those situations the OCAN takes too long. Although it is<br />
helpful to have access to the information in the OCAN domains, there are too often very immediate concern<br />
that are very urgent. Workers felt that to present the option of OCAN in those cases is “disrespectful to the<br />
client”. Similarly, workers felt that particularly for clients in crisis or clients who have experienced trauma the<br />
OCAN is not an appropriate assessment tool. One worker explained: “We know it took a lot for the client to<br />
came in [to our office]. Once the clients begins to talk, bringing up OCAN… it would close them up.” Workers<br />
were also clear that OCAN does not support case management in the current service environment. Another<br />
worker explained: “We don’t have services here to refer them to, so why ask all the question? If we ask the<br />
client ‘what would you like to do about this?’ They will say “what [service] is available? Nothing!”<br />
For many clients, the literacy level is a barrier to complete the OCAN, particularly since the coding of “unmet”<br />
need and “met need” is very abstract. It becomes very confusing for them. Furthermore providers felt that<br />
younger clients were at times embarrassed by the topics covered in OCAN. Embarrassment is also an issue for<br />
clients with low literacy, because they may not understand the questions and for some elders.<br />
Some providers felt that it is difficult to add all of the relevant medications used by their clients since many of<br />
them also have significant physical health problems. Omitting some might lead to adverse reactions, however<br />
listing all is very time consuming. Workers also suggested that a question be included to capture traditional<br />
medicines that a client may be taking as well.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Fit of OCAN with Aboriginal Culture<br />
Workers challenged the notion that OCAN is a valid and reliable tool in indigenous populations. The OCAN<br />
has a clearly “Western and clinical feel” and workers feel they have to “sell somebody else’s culture when<br />
they implement OCAN” with their Aboriginal clients. One workers stated: “If it was designed to truly fit the<br />
Aboriginal communities then it would work, but if you take a Western tool and implement it in First Nations<br />
then you have missed the boat, and are implementing a tool that does not fit”.<br />
Workers were in agreement that OCAN would need some adjustment to fit with Aboriginal clients and their<br />
worldview. Workers suggested that OCAN could be adapted to the Aboriginal concept of the medicine<br />
wheel, to show clients how the wheel might be off balance when certain aspects are lacking. This approach<br />
would also support the visual learning orientation of many Aboriginal clients, and allow them to see where a<br />
healthy balance is lacking in their lives.<br />
Some workers felt that the idea of asking clients to rate the many domains of information upon intake is not<br />
compatible with clients’ culture, particularly since the questions are seen as intrusive. “It is a foreign idea.”<br />
Further, the OCAN as an “assessment tool” seems to resonate negatively with clients who view this as a means<br />
only of describing in almost clinical fashion a listing of deficits. Some suggested that clients might be more<br />
receptive to participate if the OCAN was described or depicted as a “personal wellness inventory” and the<br />
domains structured around the “medicine wheel” concept. A medicine wheel, which is also broad and holistic<br />
would be more accepted, because the approach is more familiar.<br />
Overall though workers did appreciate the broad spectrum of information collected with OCAN and believed<br />
that it has the potential to capture aspects that might otherwise be overlooked.<br />
Two questions were seen as particularly problematic: (1) the question on sexual expression and (2) the<br />
question on psychotic symptoms. The question on sexuality is often too intrusive for Aboriginal clients, although<br />
it might be significant. The worker needs to be skilled and know when and how to approach this subject. The<br />
question on psychotic symptoms needs to be carefully explored within the context of Aboriginal culture.<br />
Aboriginal spirituality can be expressed or experienced through visions or voices, and great care must be<br />
taken not to confuse this with psychotic symptoms.<br />
Some workers felt that all references to immigration status should be removed for use with indigenous<br />
populations.<br />
Sutherland & Maar - March 2010 Page 33
OCAN Evaluation for Aboriginal Mental Health Programs<br />
Service Context: Noojmowin Teg Health Access Centre<br />
Noojmowin Teg Health Access Centre offers a blend of traditional Aboriginal approaches to health and<br />
wellness along with contemporary primary and mental health care in a culturally appropriate setting 14 .<br />
Services are provided through outreach to seven First Nations communities as well as the off-reserve<br />
Aboriginal population in the Manitoulin district. Services are provided in partnership with six federally funded<br />
community health centres and two federally funded health services organizations within the First Nation<br />
communities. Each centre is visited regularly by this agency’s team of health practitioners.<br />
Noojmowin Teg provides mental health services through integrated services with Mnaamodzawin Health<br />
Services (MHS), a second regional Aboriginal health organization. MHS is a regional provider of First Nations<br />
community health services funded by Health Canada’s First Nations and Inuit Health Branch. Both<br />
organizations emphasize community-based Aboriginal approaches to mental health care and share a home<br />
office. Service integration in mental health, such as common intake, case coordination and seamless services is<br />
a common goal and was initiated with the formation of an interdisciplinary mental health care group, known<br />
as the Knaw Chi Ge Win (New Beginnings) team 15 . The OCAN tool however is used only by providers<br />
employed by Noojmowin Teg’s psychology services. Specifically OCA is currently used by 3 staff members<br />
who provide services to clients with a variety of issues ranging from addictions, mood disorders and anxiety,<br />
depression, bipolar, eating disorder, SM as well as domestic violence, intergenerational abuse, residential<br />
school abuse. These 3 providers have individual specialty areas:<br />
• One psychologist who provides treatment and cognitive behavioural therapy with a focus<br />
parenting issues with adults and children.<br />
• One psychologist with a focus on personality disorder<br />
• One psychological associate focusing on cognitive behavioural therapy and supportive<br />
counseling.<br />
Overview of the OCAN Implementation at Noojmowin Teg<br />
In this section we report on successes and challenges of implementing OCAN in psychology services at<br />
Noojmowin Teg Health Access Centre.<br />
Providers’ Understanding of OCAN<br />
The providers had a clear understanding of the rollout of OCAN in the NE LHIN and that it is currently pilot<br />
tested in Aboriginal mental health programs as well. Providers were very interested in sharing their<br />
experience with the OCAN tool and also very interested in hearing about the experience of other Aboriginal<br />
14 Information about Noojmowin Teg Health Access Centre is adapted from the Noojmowin Teg Website accessible at<br />
www.noojmowin-teg.ca<br />
15 2009 Maar, M.. , B. Erskine, L. McGregor, M. Sutherland, D. Graham, T. Larose, M. Shawande, and T. Gordon.<br />
Innovations on a shoestring: A Study of a Collaborative Community-based Aboriginal Mental Health Service Model in Rural<br />
Canada. International Journal of Mental Health Systems 3:27. Accessible at www.ijmhs.com/content/3/1/27<br />
Sutherland & Maar - March 2010 Page 34
OCAN Evaluation for Aboriginal Mental Health Programs<br />
sites. Participants also understood that the OCAN is based on a validated assessment tool, i.e. the<br />
Camberwell tool.<br />
Perceived Adequacy of OCAN Staff Training and Support<br />
The coordinator took part in the complete 5 day training session, composed of the coordinator training<br />
followed by the train the trainer session. The provider believed the training was extensive and sufficient to<br />
implement OCAN. However workers emphasized that there is high turnover in the Aboriginal mental health<br />
field and access to regular training is important.<br />
Current status of OCAN implementation<br />
The staff assessment is completed for each new adult client, however the self-assessment is completed only<br />
when necessary or deemed appropriate. The providers explained that OCAN appears to work well for<br />
people who need case management however, this is only a small portion of the case load at this site.<br />
Most clients access services specifically for mental health issues. Providers stated that their clients receive<br />
social support services from other agencies in their First Nation community, these include housing and other<br />
domains covered in the OCAN. They believe that clients are not looking to them as mental health providers<br />
for that type of service coordination. One provider explained it this: “by the time the clients get to me, they<br />
don’t want to get into [the OCAN domains], they know who to talk to if they need those services. They come to<br />
me for mental health counseling”.<br />
OCAN’s fit within the service delivery on Manitoulin Island<br />
Perceived importance of a standardized assessment tool<br />
Providers felt that a standardized assessment tool generally would be quite valuable, particularly if the<br />
information could be easily shared with other providers, such as hospitals, on-reserve social services providers<br />
and federally funded mental health services provides (Under First Nations and Inuit Health Branch). The<br />
importance of having access to a broad range of information related to each client was also seen as<br />
important as it could improve care.<br />
However workers cautioned that standardization would only lead to improved care if the information<br />
collected is relevant to the providers and culturally appropriate for clients.<br />
The realities of implementation OCAN into the daily workflow<br />
OCAN is creating significant duplication of work for staff at this point. Providers are concerned that the staff<br />
assessment has significant over lap with the CDS data set which they already enter into the Roxy data base<br />
as mandated by the LHIN.<br />
The providers explained that “OCAN overlaps and didn’t add anything to the normal intake we normally do.”<br />
Providers also felt that it is best used as tool during the intake process when clients are referred by federally<br />
funded workers. Once the clients are scheduled for appointments with specialized providers “they are not<br />
expecting to talk about the OCAN domains, they are expecting treatment!”<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Providers felt that OCAN takes up a lot of time and implementing OCAN with all of their clients would<br />
negatively impact the number of clients they can see in their clinical practice. They are generally very hesitant<br />
to do this, given the high need for services in the communities. They also felt that their old process was well<br />
designed to bring up difficult issues for discussion with clients at the appropriate time. OCAN did not add any<br />
new value from their perspective and even brought up some difficult topics at potentially inappropriate times<br />
in the therapeutic process.<br />
However they also indicated that given some modifications the OCAN could be completed at intake, by an<br />
intake worker.<br />
Cross jurisdictional issues<br />
Cross jurisdictional issues are a significant barrier to the implementation of a common assessment tool. The<br />
federal funded service providers within the local Aboriginal mental health network are currently considering<br />
implementation of a different assessment tool for mental health services. Social services providers on reserve<br />
are also federally funded and are not using OCAN either. At this time there is no opportunity to share the<br />
OCAN information and each organization is creating silos of information that are not useful to other service<br />
providers.<br />
Staff believed that the lack of crossover of the information systems between federal and provincial services<br />
was a significant barrier to the implementation of OCAN in Aboriginal mental health services. It means they<br />
can do very little with the information collected with OCAN. “It is not useful to the federally funded workers,<br />
since it would need to be translated into another format” because they do not share the software.<br />
Fit of the automated OCAN tool<br />
The idea of an automated tools fits very well with the Noojmowin Teg Health Access Centre service<br />
environment. In fact electronic records have been implemented and the expansion of electronic records is a<br />
strategic direction. An ehealth project called the Giiwednong Health Link Project is currently underway. The<br />
project is described as follows:<br />
“Giiwednong Health Link (GHL) represents a collective of health care organizations that are establishing a<br />
centre of excellence to use technology to support holistic health care services to First Nation community<br />
members in the Manitoulin Island/North Shore region. Noojmowin Teg is the Project Secretariat of this multistakeholder<br />
project to develop an integrated and centralized knowledge base to manage health information.<br />
The GHL is a complex project involving the development of broadband network capacity, applications and<br />
software, capacity development, information management policy and governance framework” 16 .<br />
Workers felt that clients as well as the organization are ready for the concept of e-health records, although<br />
there is some concern about government access to private records and data sharing between governmental<br />
sectors. However workers also cautioned that some of their clients may not be informed enough of electronic<br />
records to raise any concerns at this point.<br />
16 Website of Noojmowin Teg Health Centre at www.noojmowin-teg.ca<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Workers also felt that the circle of care needed to be more clearly defined with respect to OCAN to ensure<br />
all are clear regarding current and future access to OCAN records, which are potentially more easily shared<br />
than paper records.<br />
Overall workers stated that piloting the OCAN has lead to valuable networking with the NE LHIN and with<br />
other Aboriginal mental health services programs.<br />
Fit of OCAN with Aboriginal client population and presenting concerns<br />
The workers felt that generally the OCAN implementation has had limited success only, and this is a direct<br />
result of the lack of integration of services and the OCAN tool.<br />
Providers explained that while the information provided could be useful for various sectors, those sectors do<br />
not have access to the information due to jurisdictional issues. On the flip side, clients expect mental health<br />
counseling from them. They do not want to complete the OCAN by the time they are coming to receive<br />
specialized mental health services. One worker explained: “clients feel it is wasting their time, they didn’t<br />
come in to talk about this.” They want services. One worker described this as follows: “it can’t all be about<br />
recovery! Some treatment is necessary!”<br />
Workers also explained that while they supported the domains in general, they felt the anchor questions<br />
frequently posed a problem for their client population and would need to be rephrased to make them<br />
appropriate and useful, particularly sections on food, transportation, sexual expression and psychotic<br />
symptoms (concrete recommendations are provided in the final section of the report).<br />
Providers also found the literacy level of many clients is low, and they consequently experience difficulties<br />
with the interpretation of the consumer section and the scoring in particular, which providers felt required a<br />
particularly high literacy level. Consequently, clients frequently have difficulty with the met needs/unmet<br />
needs scoring, and find it very confusing.<br />
Similar to providers elsewhere, providers at Noojmowin Teg felt that the OCAN was a poor fit for clients with<br />
trauma or abuse history, however many of their clients have experienced these issues.<br />
Fit of OCAN with Aboriginal Culture<br />
Workers believed that the questions were generally too direct and there were too many of them; both<br />
aspects make the OCAN culturally inappropriate.<br />
Workers also felt that certain aspects of the OCAN such as the question in the consumer tool that prompts the<br />
client to describe his/her “mental health” is not well understood as the term because “mental health is just not<br />
in people’s vernacular”.<br />
The open ended questions were also at this site very well received, although suggestions for change were<br />
similar to those suggested at other sites, most notability including again the question on spirituality. Spirituality<br />
it is a very important thing for this many clients in this population., but clients frequently interpret is this<br />
question as referring to “native spirituality”. One participant explained: “People who are devout catholic will<br />
often not identify as spiritual, but will say they are religious. So why not include ‘religious’ in this question?”<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
IMPLICATIONS FOR OCAN IN ABORIGINAL MENTAL HEALTH SERVICES<br />
Comparisons and Contrasts regarding OCAN evaluation findings in<br />
the different Aboriginal cultures and service context<br />
Common issues related to OCAN:<br />
Despite distinct differences in Aboriginal cultures and mental health service model that we observed at the<br />
three participating sites, participants identified many issues related to OCAN consistently. Common issues<br />
included:<br />
1. The concept of a common assessment tool is very much supported by providers.<br />
2. A common assessment tool should be able to address trauma and abuse history and related need for<br />
services of Aboriginal clients.<br />
3. A common assessment tool must be culturally safe.<br />
4. In order to prepare mental health workers to complete an assessment tool with Aboriginal clients, there is<br />
a need for culturally specific, realistic case scenarios to be used during the worker training sessions.<br />
5. Specific to OCAN, several questions include the terms and language that are not commonly used should<br />
be rephrased for Aboriginal clients.<br />
6. Several sections of the OCAN appear to be neither reliable or valid in Aboriginal populations, because<br />
of cultural, language and literacy differences, the questions are interpreted differently.<br />
7. Lack of integration of provincial and federal mental health services is a significant barrier to realize the<br />
potential benefits of a common assessment tool.<br />
Contrasts:<br />
This evaluation found few if any substantial contrasts between the various Aboriginal mental health services<br />
sites. Differences that we did find were more a matter of degree or how strongly participants felt about<br />
certain issues. The topics of concern as well as community aspirations for a common assessment tool were<br />
surprisingly similar. The differences we found can be summarized as follows:<br />
1. Level of proficiency in the English language varies dramatically within and among Aboriginal communities<br />
in north eastern Ontario. This has a major impact on the suitability of OCAN for this population, because<br />
clients who are not very fluent in English have a much more difficult time with OCAN than those who are<br />
fluent English speakers<br />
2. Implementation models have varied in each community, and this has provided good information on the<br />
feasibility of various approaches to the OCAN implementation in Aboriginal mental health services.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Cultural Incongruence related to Specific Domains<br />
Several domains were consistently described as problematic within Aboriginal communities. They are<br />
identified and discussed below.<br />
Domain 1: Accommodation<br />
Crowding is a serious and longstanding issue particularly in the coastal James Bay communities, but also in<br />
other Aboriginal communities. Living in small reserve homes are often extended families of a dozen people or<br />
more and this is common enough to be regarded as “normal”. There are no plans or funds for additional<br />
housing developments and no waiting lists for clients to receive better housing. Therefore, if a client has a roof<br />
over their head, both the client and the provider will score this section as “no need”. However this serious level<br />
of over crowding would elsewhere be regarded has an “unmet need”. Providers are concerned that<br />
aggregate data will therefore show “no housing needs”, when actually quite the opposite is true.<br />
Moreover, while many clients have a place where they can stay, they are often living in constant conflict with<br />
individuals who are sharing the same accommodation, which in turn negatively affects their mental health.<br />
While this is a unmet housing need, it appears that it is not captured as an unmet need.<br />
On the positive side, many providers felt that this question allowed them to explore the living conditions of<br />
their clients in more detail and felt they gained important information.<br />
Domain 2: Food<br />
In the North Central area providers felt a more important question to ask here is not if a client has enough<br />
food, rather it is more about access to healthy foods. The issue that has to be frequently addressed by<br />
workers is that the client does not have enough money to buy healthy and nutritious foods. This is particularly<br />
important if the client also has a chronic illness such as diabetes.<br />
Domain 17: Sexual Expression<br />
The question can be very offensive particularly with clients who are predominately speakers of an Aboriginal<br />
language. All providers agreed that this question could only be broached with those clients where significant<br />
trust had been established over a period of time, but not early on in the interaction. Some providers believed<br />
it could take years under this service model to establish enough trust and rapport with a client.<br />
Some staff members felt comfortable with the question on sexual expression as it provided an opportunity to<br />
address this subject with the client. Most clients who were very fluent in English appeared to be open to this<br />
question, particularly if it was adapted to be more indirect. For example one provider suggested it should be<br />
phrased as follows: “I want to ask you about sexuality…are there any issues you want to discuss?”<br />
Other workers had a specific concern with the sequence of question 16 and 17, which, they believed could<br />
lead to transference with clients for whom sexuality poses an issue.<br />
Domain 21: Phone<br />
This question is often insulting to clients as all clients appear to know how to use the phone. The question should<br />
reflect access to phone. Many clients do not have access to a phone. That is the piece of information that is<br />
actually critical.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Domain 22: Transport<br />
This question is not reflective of Aboriginal communities. It reinforces that OCAN is not developed to fit<br />
Aboriginal people and alienates clients. Although some feel that the question is funny it nevertheless reinforces<br />
the notion that OCAN is for “people from the south” In the James Bay area for example, the mode of<br />
transportation is the plane or a local taxi. The wording in the self assessment tool should be changed for this<br />
population. Some providers felt that the anchor question missed the point. Public transportation does not exist<br />
in most Aboriginal communities and many clients do not have a ride to attend their appointments.<br />
Domain 23: Money<br />
This domain is very useful to providers, identifies lack of resources for basic needs quite frequently.<br />
General comment on open ended questions<br />
The open-ended questions are well received and are felt to be affirmative to the client. Some adjustments are<br />
suggested however.<br />
Open ended Question on Hopes and Dreams<br />
This question was generality liked by both providers and clients. However providers explained that many of<br />
their clients need help with this question, since they may have never had hopes or dreams. The question then<br />
becomes overwhelming if asked as suggested in the training sessions. Providers at one site have therefore<br />
revamped the question to “What are your hopes for today or for this week?”<br />
Open ended Question on Spirituality<br />
The question “Is spirituality an important part of your life?” is ambiguous within this population as well as with<br />
providers. Sometimes it is a difficult question to address. One provider stated that the response to “the<br />
spirituality question depends on the person and the community, as some people are reluctant to speak about<br />
their traditional beliefs. You need to know the person well, to bring these topics up, but some of our clients we<br />
have never met before…”(i.e.: only have spoken over the phone, as services are phone-based in some<br />
communities).<br />
Many participants (such as the person described in the last paragraph) interpreted the word “spirituality” as<br />
“Indigenous spirituality” which is contrasted against “Christian religious beliefs” which are strong in the<br />
communities. We found however that other participants did not make a distinction between “spirituality” and<br />
Christian beliefs.<br />
These are important distinctions for many clients living in Aboriginal communities. Due to the legacy of the<br />
residential school system and related spiritual abuses, some clients may find the question offensive and<br />
distressing. Question could be rephrased to include “Are traditional beliefs, spirituality or religion an<br />
important aspect of your life?”<br />
Missing Elements<br />
Abuse history<br />
Providers felt that important areas of information are missing from OCAN and that these gaps will prevent<br />
the ideal of “clients not having to tell their story twice”. Specifically, about things that can strongly affect their<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
lives. For example, one provider stressed: “the OCAN asks about accommodations. While clients may have a<br />
roof over their head living with family, what if they are not getting along with the family members they are<br />
living with”. This is very important information that is not captured. Furthermore, “questions about sexual abuse<br />
history is important, but it is not covered”.<br />
Experience of discrimination and/or racism<br />
Many of the Aboriginal clients have experiences racism and discrimination and the literature shows this is<br />
closely linked to mental health. This is an important aspect to explore with many clients. Providers were<br />
unaware that this was part of OCAN assessment.<br />
Education<br />
A basic question covering education and English literacy would be useful.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
SUGGESTIONS FOR FUTURE IMPLEMENTATION <strong>OF</strong> OCAN IN ABORIGINAL<br />
HEALTH SERVICES CONTEXT<br />
Opportunities for Future Support of OCAN Implementation in<br />
Aboriginal Mental Health Services<br />
In this section we provide concrete suggestions for activities that, based on our evaluation research, have the<br />
potential to support future roll out of OCAN in Aboriginal communities. We provide a rationale with each<br />
recommendation.<br />
1. Readiness for the Implementation of a Common Assessment Tool<br />
RECOMMENDATION 1:<br />
Continue to invite Aboriginal Mental Health Services to participate in the ongoing<br />
development and implementation of the OCAN as a LHIN-wide/province-wide<br />
assessment tool.<br />
Rationale:<br />
Participants were very receptive to the idea of a common assessment tool that captures important and<br />
consistent information about their clients.<br />
Their reasons for participating in the pilot were related to the perceived overall benefits including:<br />
The ability to enhance client centred, individualized care<br />
Streamlined intake and less duplication of administrative processes with the ability to have client<br />
information follow clients as they move between health care settings and communities<br />
Access to information to portray community and system needs as well as improved quality of<br />
information for local planning and decision-making<br />
Standardized, consistent and reliable processes and data on par with health services elsewhere in<br />
the province<br />
While communities perceive the OCAN as having the potential to improve their health service delivery, there<br />
are a number of impediments with OCAN in Aboriginal mental health services which limits its applicability in<br />
its current form and process.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
In particular, programs endorse widening the use of OCAN within other Aboriginal mental health programs<br />
only if there is a commitment to resolve key cultural issues as well as cross jurisdictional impediments to health<br />
information sharing. Results of the survey (see Appendix E) illustrate the hesitation of participating program<br />
staff to recommend the adoption of the tool as it exists currently in other Aboriginal mental health programs.<br />
One participant has suggested the following:<br />
“standardized assessment is a useful aspiration for communication between mental health services<br />
providers but some items in this tool are not capturing helpful information. We need a long term<br />
research strategy to amend and validate an improved version of this tool that will tap into Aboriginal<br />
health needs”<br />
We expand on this assertion in the following Recommendations.<br />
2. Training<br />
RECOMMENDATION 2:<br />
Develop Aboriginal service specific training modules and support groups, including:<br />
► Aboriginal specific cases for training that reflect the Aboriginal service environment,<br />
client realities as well as culture and language and literacy issues.<br />
► Opportunities for Cree speaking programs and staff to enhance their OCAN lexicon<br />
and vocabulary and develop translation aids to better support effective interpretation<br />
at the community level.<br />
► Refresher training at more frequent intervals.<br />
► Ensure that the portal is user-friendly and accessible for providers with good<br />
instructions on how to access and navigate the portal.<br />
Rationale:<br />
Program staff described a number of training enhancements that could better support Aboriginal program<br />
participation in the implementation of OCAN. For example, workers found they were met with language and<br />
cultural challenges when they implemented OCAN, and they were not prepared for these challenges based<br />
on the case scenarios. Participants were clear they did not expect nor want OCAN to be translated into<br />
Aboriginal languages, however they felt they needed to brainstorm with other Aboriginal mental health<br />
services providers on how to best present, communicate, interpret and implement OCAN.<br />
As discussed, providers felt that many of their clients were not willing to use OCAN, and therefore they filled<br />
out few assessments in a particular time period. Refresher courses would help those staff members who are<br />
relatively inexperienced with OCAN due to their relatively infrequent use. Online tutorials for Aboriginal<br />
mental health service providers may be one way to address this issue.<br />
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3. Client population<br />
RECOMMENDATION 3:<br />
In the Aboriginal Mental Health System, the implementation of a common assessment tool<br />
should focus on stable long-term clients, who have established trust relationships with<br />
service providers.<br />
Rationale:<br />
Although the OCAN is proposed as an assessment tool having universal applicability for all clients seeking<br />
mental health services, based on their experience and knowledge of their clientele, Aboriginal program<br />
participants suggest that OCAN implementation is not realistic for some of their clients. They believe that<br />
OCAN does not fit with the following presenting concerns:<br />
clients who are presenting in crisis, because they are not able to focus on OCAN due to more<br />
pressing immediate concerns.<br />
clients who are accessing brief services and are unlikely to return for months or even years. They<br />
will generally refuse to take the time to complete the OCAN.<br />
clients with abuse or trauma histories and presenting concerns, because OCAN is presently not<br />
designed to capture important culturally safe services provided to these clients, nor is it effectively<br />
capturing the relevant circumstances of these clients.<br />
Programs note that they’ve had most success with this tool with stable, long term clients with whom they’ve<br />
already established a relationship and note its usefulness potentially in case management.<br />
4. Reliability, validity and cultural safety of the current version of the OCAN in Aboriginal<br />
mental health services<br />
RECOMMENDATION 4:<br />
Develop a process to modify specific aspects of OCAN’s interface, protocols and several<br />
domains for use with Aboriginal Mental Health Services to ensure cultural safety of the<br />
tool. Focus on keeping the main data elements consistent in OCAN.<br />
Rationale:<br />
OCAN has not been validated in Aboriginal communities in Canada, nor any other Indigenous communities.<br />
Our research provides evidence that puts the validity and reliability of several OCAN domains with<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Aboriginal consumers in question. Furthermore, cultural safety is not adequately addressed for Aboriginal<br />
consumers. Participants described a number of limitations with both the OCAN tool and overall assessment<br />
process that are not aligned with Aboriginal cultural norms, language, spiritual belief systems and geographic<br />
and socioeconomic realities. In addition, the tools is at times incompatible with the historical and colonial<br />
impacts on people, their community and culture.<br />
We believe the tool’s interface and protocols for use can be modified while keeping the main data elements<br />
consistent in OCAN. Program participants feel strongly that if the tool is to be used with other Aboriginal<br />
populations or communities these improvements are necessary to better align with the Aboriginal experience<br />
in mental health service delivery.<br />
In particular, participants advocated that an Aboriginal driven process be instituted to develop an interface<br />
and data capture process for the tool that better reflects the Aboriginal populations for which it may be used.<br />
Such an interface and process might incorporate the following aspects:<br />
A culturally safe assessment protocol that is designed in concert with the community being served, is<br />
more reflective of the Aboriginal patient journey and which would assist in determining how, when<br />
and with whom the tool would be administered<br />
Refinements to the tool’s overall design to render it less of an intrusive, linear succession of questions<br />
to one more in keeping with a wholistic (not holistic) medicine wheel approach<br />
Reorientation from an “assessment tool” focused on needs and unmet needs to a more strengths<br />
based “personal wellness inventory”<br />
Improvements in specific domains such as transportation, sexual expression, housing, money and<br />
telephone to better reflect Aboriginal cultural, geographic and community realities.<br />
5. Automation<br />
RECOMMENDATION 5:<br />
Implement a centralized Aboriginal coordinator to assist participating Aboriginal mental<br />
health programs, agencies and organizations with support, managing the technological<br />
implementation, quality control, ongoing training, liaison and coaching as part of the<br />
OCAN support centre functions.<br />
Rationale:<br />
While Aboriginal communities aspire to the same level of automation in their management of client and<br />
community health information, many face additional technological hurdles including, chiefly, ICT infrastructure,<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
connectivity and human resources capacity. For this reason, we advocate for a centralized coordinator to<br />
assist participating Aboriginal mental health programs, agencies and organizations with support, managing<br />
the technological implementation, quality control, ongoing training, liaison and coaching as part of the OCAN<br />
support centre functions.<br />
Important context outside of OCAN – System Impediments<br />
It is important to acknowledge that system impediments exist that create barriers to the OCAN<br />
implementation. These cannot be resolved by local OCAN teams or even Community Care Information<br />
Management (<strong>CCIM</strong>) Program or the Community Mental Health Common Assessment Project (CMH CAP).<br />
However an awareness of these issues and a long term commitment to collaborate with other sectors on<br />
solutions are necessary.<br />
At the First Nation community mental health services level there are no protocols for information sharing<br />
between federal and provincially funded programs. Furthermore, the ability to share information with<br />
external partners (e.g. treatment centres, hospitals and other provincially funded Aboriginal mental health<br />
and addictions program) is currently not possible. Given these limitations and as participation in OCAN is<br />
voluntary; urgently needed service needs often prevail and OCAN becomes a secondary chore.<br />
6. Impact on clinical and administrative processes<br />
RECOMMENDATION 6:<br />
Coordinate with other (federally and/or provincially funded) departments/sectors<br />
implicated in mental health service delivery to facilitate the integration of OCAN in<br />
Aboriginal Mental health services and its use as a case management tool that can be<br />
utilized by any worker at the community level (regardless of their funding source).<br />
Rationale:<br />
In most First Nations settings and Aboriginal communities the mental health needs are numerous and complex.<br />
Largely due to the legacy of residential schools combined with inequities in the determinants of health, mental<br />
health issues are generally higher in Aboriginal communities compared with mainstream communities. This<br />
situation is exacerbated by the fact that access to mental health resources are exceedingly limited in many<br />
Aboriginal communities, due to geographic, cultural, socio economic and federal/provincial cross-jurisdictional<br />
challenges.<br />
Without exception, program participants expressed the view that diverting scarce time and staff resources, in<br />
particular those of specialized mental health service providers to complete the OCAN will reduce clinical<br />
services and thus limit critical and scarce mental health service delivery. Given the need for these services,<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
providers are very reluctant to trade clinical services for the completion of OCAN – in particular because of<br />
the current lack of data sharing limits the benefits of OCAN.<br />
It was noted that perhaps a dedicated intake worker or case manager would be the optimum level of staff to<br />
complete the OCAN but that such staff resources, for the most part, do not exist within Aboriginal communities.<br />
However it is managed and administered, it should be noted that resources are necessary to ensure that direct<br />
service delivery is not compromised to implement the OCAN. The Aboriginal mental health system in its current<br />
form can simply not sustain a reduction of clinical services.<br />
7. Policy implications<br />
RECOMMENDATION 7:<br />
Continue to dialogue with other mental health system partners to develop a coordinated<br />
strategy around mental health information gathering and sharing that would facilitate<br />
broader rollout of the OCAN as an assessment tool for Aboriginal and non-Aboriginal<br />
community mental health programs.<br />
Develop a process to facilitate broader roll out and information sharing capacity of the<br />
common assessment tool, including (but not limited to)<br />
►treatment centres<br />
►hospitals<br />
►other provincially funded Aboriginal health/ mental health programs<br />
►federally funded First Nations community health/mental health services programs<br />
►federally funded First Nations community social services programs<br />
Rationale:<br />
One of the biggest impediments related to OCAN noted by programs participating in this pilot is that, at<br />
present, there seems to be no system wide sharing of information or integration in the mental healthcare<br />
system that would allow for the realization of the full benefits of OCAN.<br />
Participants feel that OCAN takes up significant amounts of already very scarce mental health human<br />
resources, without realizing the potential benefit of information sharing with key partner organizations in the<br />
Aboriginal mental health system. In particular, the following challenges were cited repeatedly:<br />
Lack of inter-jurisdictional coordinated planning, or vision for electronic medical records and<br />
information sharing agreements between federal and provincial programs operating on First<br />
Nations.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
No avenue for information sharing amongst and between federal and provincial Aboriginal<br />
programs and external agencies, providers and referral partners.<br />
No clear mandate or authority to ensure consistent implementation of OCAN. At present this is still<br />
a voluntary participation and few service providers on or off reserve have bought into it.<br />
While program participants were very supportive of the notion of streamlining and aligning administrative<br />
intake processes so that clients only “tell their story once” they note that, in practice, the system and mental<br />
health care delivery environment is not at this stage as yet.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
APPENDIX A: FOCUS GROUP AND INTERVIEW QUESTIONS FOR<br />
PROVIDERS/STAFF<br />
[Service context]<br />
“Please tell me about the mental health services in your area…”<br />
1. What kind of mental health services exist? (Probes: what services are provided on reserve? Are there<br />
linkages to off reserve services? Who funds these services? What is your client profile in terms of<br />
demographics/presenting concerns/mental health issues?)<br />
2. Was the OCAN implemented by all workers and as planned? (Probes: who does/does not use the<br />
tool? Are there specific service providers that feel the tool does/does not work for them? why/why<br />
not?) For what kind of clients (presenting concerns) does the tool work well? Where does it not work<br />
well?<br />
3. Were there any cross jurisdictional issues that affected implementation? (Probes: what about federal<br />
programs?)<br />
4. Is integration/lack of integration of federal and provincial services affecting the implementation of<br />
OCAN?<br />
5. Were there any other issues that affected implementation? (Probes: Is training and issue? How about<br />
time?)<br />
[Provider Perspectives]<br />
“Okay, I would like to now ask you more about your overall experience with the OCAN tool as a provider”<br />
1. How was the OCAN project introduced to you? (Probes: What do you understand are the reasons for<br />
trying this new assessment process?)<br />
2. What were your expectations? (Probes: what were your reasons for trying this new assessment<br />
process? Why did you elect to participate in the pilot?)<br />
3. What has been working well about the Common Assessment process in your program?<br />
4. What has not been working well? (Probes: are there language or cultural barriers? There specific<br />
sections/domains that are difficult – “please just list them now and we will spend some more time<br />
asking you about the details later in our interview)”?)<br />
5. How do you feel about the OCAN domains on aspirations and spirituality? (Probes: what is the clients’<br />
reaction? Has it been useful? Why/why not?<br />
6. Is the information that the common assessment tool gathers useful? (Probes: What do you see as the<br />
benefits of the common assessment process? What do you see as the drawbacks?)<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
7. What impact is the common assessment having on your clinical practice? (Probes: how could the impact<br />
be improved?)<br />
8. What impact is the common assessment having on your program’s/agency’s approach? (Probes: how<br />
could the impact be improved?)<br />
“Now we’d like to talk to you about the OCAN as an automated process for information gathering and we’d<br />
like to learn about your thoughts related to that”<br />
1. This project is part of the overall provincial initiative that is moving towards the electronic health<br />
record. Were you ready for this? (Probes: Was your work environment ready? Are your clients<br />
ready? Do you think there are privacy concerns related to electronic records? What about concerns<br />
about government monitoring of First Nations people? Was OCAP a concern?)<br />
2. Does an electronic assessment process fit with your view and experience of mental health care?<br />
(Probe: does an electronic assessment process fit with your type of program? How about with your<br />
client group? Why or why not?)<br />
3. What supports did you offer to consumers? (Probes: What supports did you offer to client which are<br />
above and beyond what your training suggested? Why was that necessary?<br />
4. What supports are essential? (Probes: Was translation required? How did this work?)<br />
5. What is/is not working in the automated process?<br />
[Future Implementation of the OCAN]<br />
“now we’d like to ask some questions that will help us to better understand possible future implementation<br />
issues related to the OCAN in Aboriginal Mental Health services”<br />
1. How did you introduce OCAN to your clients? (Probes: How has it worked out? Has your approach<br />
changed? Why/why not?)<br />
2. Which domains were particularly useful?<br />
3. Which domains - if any - were problematic? (Probes: Did you feel the domains were culturally<br />
inappropriate? How did you feel about the lack of strengths based domains? Are there domains that<br />
you would like to see added?)<br />
4. Reflecting on your experience with the OCAN training and supports, what would you recommend as<br />
essential for future implementation with other Aboriginal programs?<br />
5. Based on your experience in the pilot, where and how would it be most useful to implement OCAN?<br />
6. How do you think standardization of assessment in Ontario will affect mental health care in Aboriginal<br />
communities and programs?<br />
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APPENDIX B: SURVEY TOOL FOR PROVIDERS/STAFF<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
APPENDIX C: INTERVIEW QUESTIONS FOR CONSUMERS<br />
[Client Perspectives]<br />
“First I’d like to ask you about your experience with the assessment tool and how it worked for you”<br />
7. How was the assessment project introduced to you? (Probes: Did you need more information? Were all<br />
your questions answered by your worker? What do you understand are the reasons for trying this<br />
new assessment process? Did you fill it out by yourself? Did you someone help you? Once you were<br />
finished, did your worker go over it with you?)<br />
8. When the mental health worker gave you the set of questions to fill in, what were you told? (Probes:<br />
Were you comfortable trying this process? Did you have any concerns?)<br />
9. What was helpful about the instructions you received? (Probes: What supports were offered to you to<br />
assist in completing the questions? How long did it take you to complete the questionnaire? What<br />
types of supports were helpful (Friend? Relative? Translator? Peer worker? Staff member? Your<br />
worker?)<br />
10. Did you complete the self assessment questionnaire on paper or on the computer? (Probes: Why? Do<br />
you have any ideas about how to encourage people to fill in this questionnaire on the computer?)<br />
11. If you have had previous experiences with mental health programs, how did this assessment process<br />
compare with what you went through in the past? (Probes: Is this the first time you have been asked<br />
for your views about needs you have when seeking mental health services? Were there aspects that<br />
were better? Worse?)<br />
12. Was the questionnaire easy to use? Did you understand the questions (ie language) and instructions?<br />
What about the rating scheme? What would improve the questionnaire?<br />
13. Did the questions make sense to you? Where there any that you found difficult? (Did you understand<br />
why there were private or intimate questions? Did you fell comfortable answering them? Where there<br />
any that you really liked? What did you think about being asked about your hopes and reams?<br />
What about the questions on spirituality?<br />
14. Did the questionnaire help you think about and identify needs that you had not thought of before?<br />
Do you feel that the questionnaire will strengthen your relationship with your worker? Do you feel it<br />
helps your worker understand you and your needs better?<br />
15. Did the tool help you to tell the worker about the care and supports you want? Do you feel the<br />
questionnaire gives you a better say in your service plan and goals?<br />
16. What did you think about the fact that you filled in a set of questions and also had the worker go<br />
over these same questions in more detail? (Probes: Is this how the process worked for you and your<br />
worker? Or did you do the assessment differently? Was it useful?)<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
17. Do you think the care you have received has improved as a result of the new assessment process?)<br />
[Future Implementation of the OCAN]<br />
“now we’d like to ask some questions that will help us to better understand what can help to improve the<br />
assessment with OCAN in Aboriginal Mental Health services”<br />
18. Reflecting on your experience, what supports would you recommend are important for others to<br />
complete this self assessment?<br />
19. Which areas of the OCAN were particularly useful?<br />
20. Which areas - if any - were problematic? If so how can they be changed? (Probes: Did you feel the<br />
domains appropriate for your situation? Are there domains that you would like to see added?)<br />
21. Did you have any concerns about storing your information as an electronic record? (Probes: did your<br />
worker address these concerns? What concerns if any do you still have?)<br />
22. Do you think that it is important for people with mental health needs to be able to access the same<br />
kind of assessment no matter where they live in the province, on or off reserve? What about cultural<br />
background?<br />
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APPENDIX D: LETTERS <strong>OF</strong> INFORMATION AND CONSENT FOR<br />
PARTICIPANTS<br />
Letter of Information<br />
Evaluation of the implementation of the Ontario Common Assessment of Need (OCAN) tool and processes in<br />
Aboriginal mental health programs<br />
Investigators:<br />
Mariette Sutherland, B.Eng.<br />
Whitefish River First Nation<br />
General Delivery<br />
Phone: 705-285-1411<br />
Email: m_sutherland_7@sympatico.ca<br />
Marion Maar, Ph.D.<br />
Northern Ontario School of Medicine<br />
Laurentian University<br />
935 Ramsey Lake Road<br />
Sudbury, ON, P3E 2C6<br />
Tel 705-662-7233<br />
Fax 705-675-4858<br />
Email: marion.maar@normed.ca<br />
Evaluation Study Sponsor: Ministry of Health Community Mental Health – Common Assessment Project (CMH-CAP)<br />
Purpose of the Study<br />
The main purpose of this study is to evaluate the implementation of the Ontario Common Assessment of Need (OCAN) tool<br />
and processes in Aboriginal mental health programs in the Ontario North East Local Health Integration Network (NE LHIN).<br />
Specifically we will be working on the following objectives:<br />
‣ Analyzing the degree of fit of the OCAN tool for completing assessments by staff and consumers within Aboriginal<br />
mental health programs, using a variety of data collection methods.<br />
‣ Determining what best practices were used during the process of completing OCAN.<br />
‣ Collecting and using existing and proven or best practice tools. We will work with the project to propose, discuss and<br />
advise on the merits of validated tools for addressing quality, access, acceptability and cost.<br />
‣ Evaluating what cultural supports need to be in place for both staff and consumers in completing the tool and<br />
incorporating OCAN processes in Aboriginal mental health programs.<br />
‣ Examining barriers and challenges for using OCAN in Aboriginal programs that did not elect to participate in the NE<br />
LHIN pilot.<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Procedures involved in the Evaluation<br />
We request to conduct an interview with you and we may ask for your feedback on a survey. We will ask you about your<br />
experience with the OCAN tool and its impact on programs and program constraints. We will ask for your consent to audiorecord<br />
this interview.<br />
Potential Harms, Risks or Discomforts:<br />
It is not likely that there will be any harms or discomforts associated with participation. There may be a chance that others who<br />
know you well may be able to attribute your quotes to you. For this reason we ask that you only share comments, information<br />
or perspectives that you would feel comfortably sharing widely. You do not need to answer questions that make you<br />
uncomfortable or that you do not want to answer.<br />
Potential Benefits<br />
The evaluation is intended to examine the implementation of the OCAN tool in Aboriginal mental health programs and identify<br />
ways to improve this for others using the assessment with Aboriginal clients.<br />
Payment or Reimbursement:<br />
There will be no payment for your participation<br />
Confidentiality:<br />
Anything that you say or do in the study will not be attributed to you personally. Anything that we find out about you that could<br />
identify you will not be published or disclosed to anyone else, unless we receive your permission. Your privacy will be<br />
respected.<br />
The information you share will be summarized along with information obtained from other participants. Only the researchers<br />
will have access to the audio recorded interview. The recording will not be shared with the sponsor of this study. All measures<br />
of privacy, confidentiality and security will be respected. This includes keeping the information secured in a locked filing<br />
cabinet for a period of at least seven years.<br />
b) Legally Required Disclosure:<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
Information obtained will be kept confidential to the full extent of the law and we will treat all information provided to us as<br />
subject to researcher-participant privilege.<br />
Participation:<br />
Your participation in this study is voluntary. It is your choice to be part of the evaluation or not. If you decide to participate,<br />
you can decide to stop at any time, even after signing the consent form or part-way through the study. If you decide to stop<br />
participating, there will be no consequences to you. If you do not want to answer some of the questions you do not have to,<br />
but can still participate in the project in the future. Your decision whether or not to participate will not affect your own or your<br />
organization’s relationship with the evaluation’s sponsor.<br />
Information About the Study Results:<br />
You can contact Stephanie Carter after March 31, 2010 for information on the evaluation results.<br />
Stephanie Carter, Project Leader<br />
Community Care Information Management (<strong>CCIM</strong>) Program<br />
444 Yonge Street - Toronto , ON - M5B 2H4 - Box # 2<br />
Phone: 416.212.7584<br />
Fax: 416.314.1585<br />
Email: Stephanie.Carter@ontario.ca<br />
Information about Participating as a Study Subject:<br />
If you have concerns or questions about your rights as a participant or about the way the study is conducted, you may contact<br />
Stephanie Carter at the address above.<br />
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CONSENT FORM<br />
I have read the information presented in the information letter about an evaluation being conducted by Mariette<br />
Sutherland and Marion Maar on behalf of the Ministry of Health and Longterm Care (CMH-CAP).<br />
I have had the opportunity to ask questions about my involvement in this evaluation, and to receive any additional<br />
details I wanted to know about the evaluation. I understand that I may withdraw from the evaluation at any time, if I<br />
choose to do so. I have been given a copy of this form.<br />
I understand that I am participating in an interview/focus group to discuss my experience with the Ontario Common<br />
Assessment of Need (OCAN) tool and processes in Aboriginal mental health programs.<br />
I consent to the recording of this session.<br />
Date:<br />
__________________________________<br />
______________________________________<br />
Signature of Participant<br />
Name of Participant<br />
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APPENDIX E: SURVEY RESULTS<br />
OCAN tool evaluation<br />
Question 1.1<br />
Your gender<br />
Answer Options<br />
Response<br />
Percent<br />
Response<br />
Count<br />
Male 16.7% 3<br />
Female 83.3% 15<br />
answered question 18<br />
skipped question 1<br />
Question 1.2<br />
Your age group<br />
Answer Options<br />
Response<br />
Percent<br />
Response<br />
Count<br />
15-24 11.1% 2<br />
25-34 11.1% 2<br />
35-44 22.2% 4<br />
45-54 50.0% 9<br />
55-64 5.6% 1<br />
65+ 0.0% 0<br />
prefer not to answer 0.0% 0<br />
answered question 18<br />
skipped question 1<br />
Question 1.3<br />
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Your highest level of education<br />
Answer Options<br />
Response<br />
Percent<br />
Response<br />
Count<br />
grade school 0.0% 0<br />
some high school 0.0% 0<br />
graduated high school 0.0% 0<br />
some college 11.8% 2<br />
graduated college 23.5% 4<br />
some university 5.9% 1<br />
graduated university 35.3% 6<br />
some postgraduate level education 5.9% 1<br />
Master's 5.9% 1<br />
PhD 5.9% 1<br />
Do not wish to answer 5.9% 1<br />
answered question 17<br />
skipped question 2<br />
Question 1.6<br />
How many years have you worked in the mental health field?<br />
Answer Options<br />
Response<br />
Percent<br />
Response<br />
Count<br />
0-2 16.7% 3<br />
2-5 27.8% 5<br />
6-10 27.8% 5<br />
11-14 0.0% 0<br />
15-19 11.1% 2<br />
20+ 16.7% 3<br />
answered question 18<br />
skipped question 1<br />
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Question 1.7<br />
How many years have you worked in the mental health field working with Aboriginal<br />
clients specifically?<br />
Answer Options<br />
Response<br />
Percent<br />
Response<br />
Count<br />
0-2 22.2% 4<br />
2-5 16.7% 3<br />
6-10 27.8% 5<br />
11-14 11.1% 2<br />
15-19 11.1% 2<br />
20+ 11.1% 2<br />
answered question 18<br />
skipped question 1<br />
Question 2.1<br />
Prior to the implementation of OCAN at your site, which instruments/inventories did<br />
you use?<br />
Answer Options<br />
Response Count<br />
15<br />
answered question 15<br />
skipped question 4<br />
Number<br />
1<br />
Response Text<br />
mental health assessments, crisis assessments, program developed<br />
forms<br />
2 paper<br />
3 none<br />
4 mental health assessment created by our program<br />
5 all<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
6 CDS forms<br />
7 have not used<br />
8 electronic, report writing to funder/ spread sheet<br />
9 rxy- EWR<br />
10 n/a<br />
11 other assessment - hard copy<br />
12 brief symptom inventory<br />
13 mcmi-III becks<br />
14 ongoing inventories weaved in over the course of visits<br />
15 Asking clients' concerns<br />
Question 2.4<br />
Are you using the tool... (please check all that apply)<br />
Answer Options<br />
Response<br />
Percent<br />
Response<br />
Count<br />
In the office 92.3% 12<br />
When meeting clients out of the office 46.2% 6<br />
answered question 13<br />
skipped question 6<br />
Question 2.3<br />
If you are not using OCAN outside of the office, why not?<br />
Answer Options<br />
Response<br />
Count<br />
11<br />
answered question 11<br />
skipped question 8<br />
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Number<br />
Response Text<br />
1 Haven't needed to, I see clients in office<br />
2 techno. problems<br />
3 technology, no interest, access<br />
4<br />
no wish to take paperwork out of the<br />
office<br />
5 the clients are not interested<br />
6 i can, but don’t<br />
7 i am just a student<br />
8 do not use<br />
9 student<br />
10 no clients interested in it<br />
11 clients are seen in the office for confidentiality<br />
Question 2.4<br />
How do you normally use OCAN?<br />
Answer Options<br />
Response<br />
Percent<br />
Response<br />
Count<br />
I use the staff assessment only 0.0% 0<br />
I use the consumer self assessment only 9.1% 1<br />
I use both the staff assessment and the consumer<br />
self assessment<br />
90.9% 10<br />
answered question 11<br />
skipped question 8<br />
Question 2.5<br />
How do you use the staff assessment?<br />
Answer Options<br />
Response<br />
Percent<br />
Response<br />
Count<br />
I record the client's responses on paper and later<br />
transfer them to the automated tool<br />
72.7% 8<br />
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I enter the information into the automated tool while I<br />
am meeting with the client<br />
I record the client's responses on paper and other<br />
staff transfer them to the automated tool<br />
I have the automated tool visible during the interview,<br />
but enter later<br />
0.0% 0<br />
27.3% 3<br />
0.0% 0<br />
Other (please specify) 7<br />
answered question 11<br />
skipped question 8<br />
Number<br />
Other (please specify)<br />
1 have not used<br />
2 or client could have if comfortable, input themselves, set up for them<br />
3 i transfer the information into the automated tool<br />
4 do not use<br />
5 n/a<br />
6 not used<br />
7<br />
I record the client's response on paper and later transfer them to the<br />
questionnaire<br />
Question 2.6<br />
What is your typical experience with the consumer self assessment?<br />
Answer Options<br />
Response<br />
Percent<br />
Response<br />
Count<br />
the client fills out the consumer self assessment with<br />
minimal assistance<br />
the client fills out the consumer self assessment with<br />
assistance<br />
the client completes the consumer self assessment with<br />
strong encouragement<br />
clients do not wish to complete the consumer self<br />
assessment<br />
0.0% 0<br />
55.6% 5<br />
44.4% 4<br />
11.1% 1<br />
Other (please specify) 7<br />
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answered question 9<br />
skipped question 10<br />
Number<br />
Other (please specify)<br />
1 worker helps complete self assessment with client<br />
2 With translation<br />
3 have not used<br />
4 do not use<br />
5 n/a<br />
6 not used<br />
7<br />
Client will ask the worker to write for him, worker writes the answer to<br />
questionnaire<br />
Question 3.1<br />
How satisfied are you with the following<br />
Answer Options<br />
very<br />
satisfied<br />
satisfied<br />
neither<br />
satisfied nor<br />
dissatisfied<br />
dissatisfied<br />
very<br />
dissatisfied<br />
not applicable -<br />
I did not<br />
receive/know<br />
about this<br />
Response<br />
Count<br />
Training to use<br />
OCAN<br />
Reflective<br />
Practice Guide<br />
Assessment<br />
Skills Workshop<br />
Getting<br />
answers to<br />
questions form<br />
the Agency<br />
Change Team<br />
Follow up<br />
support from<br />
Project Support<br />
Team<br />
One page<br />
Common<br />
1 9 4 1 0 2 17<br />
0 8 3 1 0 2 14<br />
0 6 5 1 0 4 16<br />
1 6 4 1 0 4 16<br />
1 8 3 0 0 4 16<br />
0 7 3 0 0 4 14<br />
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Assessment<br />
Template<br />
answered question 18<br />
skipped question 1<br />
Question 3.2<br />
Are there any other supports you can think of that would make it easier to use the<br />
OCAN?<br />
Answer Options<br />
Response<br />
Percent<br />
Response<br />
Count<br />
Yes 20.0% 3<br />
No 80.0% 12<br />
If yes, please explain 3<br />
answered question 15<br />
skipped question 4<br />
Number<br />
If yes, please explain<br />
1 refresher training<br />
2 Lisa, our trainer from NSTC<br />
3 shadowing with someone who does OCAN assessments regularly<br />
Question 3.3<br />
Please tell us how much you agree with the following statements<br />
Answer Options<br />
strongly<br />
agree<br />
agree<br />
neither agree<br />
nor disagree<br />
disagree<br />
strongly<br />
disagree<br />
Response<br />
Count<br />
The client version of the<br />
questionnaire needs to be completed<br />
before my assessment gets<br />
underway<br />
0 9 4 4 0 17<br />
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The OCAN is too long 3 7 4 3 1 18<br />
The OCAN can work well for<br />
Aboriginal Mental Health Services<br />
The OCAN has lead to a more<br />
detailed care plan<br />
The OCAN is helping to identify the<br />
clients' goals for the care plan<br />
The 23 domains provide useful<br />
information<br />
Using the OCAN has improved<br />
communication with clients<br />
Overall completion of the OCAN is<br />
too demanding<br />
The OCAN works well within the<br />
cultural context of Aboriginal clients<br />
My agency should continue to use<br />
the OCAN<br />
1 3 4 7 0 15<br />
2 6 7 3 0 18<br />
1 7 8 2 0 18<br />
2 10 5 1 0 18<br />
1 4 10 3 0 18<br />
0 11 5 1 0 17<br />
1 0 7 8 1 17<br />
1 4 8 4 0 17<br />
answered question 18<br />
skipped question 1<br />
Question 3.4<br />
What do you see as the strengths of the OCAN?<br />
Answer Options<br />
Response<br />
Percent<br />
Response<br />
Count<br />
The OCAN helps to gather information about the<br />
client that is useful for care planning<br />
Working with both the client's and the clinical<br />
version of OCAN improves the assessment process<br />
The OCAN allows an exploration of the client's<br />
aspirations<br />
58.8% 10<br />
29.4% 5<br />
47.1% 8<br />
None of the above 17.6% 3<br />
Other (please specify) 3<br />
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answered question 17<br />
skipped question 2<br />
Number<br />
Other (please specify)<br />
1 identify needs and gaps of services needed.<br />
2 culturally inappropriate<br />
3<br />
work in a small community where clients are familiar with services and<br />
worker<br />
Question 3.5<br />
What do you see as the weakness of OCAN?<br />
Answer Options<br />
Response<br />
Percent<br />
Response<br />
Count<br />
Takes too much time 73.7% 14<br />
Having to complete a client as well as a clinical component 31.6% 6<br />
Takes time to enter the data in the agency's automated<br />
tool<br />
Some of the domains are not a good fit with Aboriginal<br />
clients<br />
26.3% 5<br />
73.7% 14<br />
Some of the domains are too personal 21.1% 4<br />
Other (please specify) 2<br />
answered question 19<br />
skipped question 0<br />
Number<br />
1<br />
Other (please specify)<br />
need to identify and address issues related to mental health ie. grief , trauma,<br />
coping<br />
2 too much time but not enough info<br />
Question 3.6<br />
Based on your experience with OCAN, would you recommend OCAN to other Aboriginal mental<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
health services?<br />
Answer Options<br />
Response<br />
Percent<br />
Response<br />
Count<br />
Yes 57.1% 8<br />
No 42.9% 6<br />
Please explain 9<br />
answered question 14<br />
skipped question 5<br />
Number<br />
Please explain<br />
1 culturally inappropriate<br />
2 not to sure, need to use it first<br />
3<br />
same assessment tool, all mental health agencies using standardized, common tool in<br />
Ontario<br />
4 needs to be revised<br />
5 don’t know enough about it to recommend it<br />
6 not psychological servers<br />
7 unknown<br />
8 to identify and concretize the needs that should be prioritized<br />
9 -with reservation and explanation of areas of concern<br />
Question 3.7<br />
How is the OCAN best implemented in Aboriginal health services environments?<br />
Answer Options Response Percent Response Count<br />
Computerized version 33.3% 5<br />
Paper-based followed by entry into computerized version 60.0% 9<br />
Paper-based version 6.7% 1<br />
Please explain your answer 9<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
answered question 15<br />
skipped question 4<br />
Number<br />
1<br />
Please explain your answer<br />
ideally computerized ,however could pose problem without access, offline work and sync to<br />
the system would be beneficial. OR Receptionist to do some of the entering is required.<br />
2 not implemented<br />
3 this would be ideal, but we need to make sure that is will be safe<br />
4 both, using your judgment, decide what best fits consumer<br />
5 it would be suited to have hard copies as well letting the client have privacy to complete<br />
6 shorter version<br />
7 for youth<br />
8 provide heard copy to review when internet not available<br />
9 computer access is limited in some communities<br />
Question 3.7<br />
Do you have any other comments?<br />
Answer Options<br />
Response Count<br />
10<br />
answered question 10<br />
skipped question 9<br />
Number<br />
Response Text<br />
1 culturally inappropriate<br />
2 no<br />
3 as discussed<br />
4 n/a<br />
5 thanks for coming<br />
6 none<br />
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OCAN Evaluation for Aboriginal Mental Health Programs<br />
7<br />
standardized assessment is a useful aspiration for communication between mental health<br />
services providers but some items in this tool are not capturing helpful information. we need<br />
a long term research strategy to amend and validate an improved version of this tool that will<br />
tap into aboriginal health needs<br />
8 have aboriginal model of OCAN based on a medicine wheel<br />
in summary, some resources will be necessary<br />
I look forward to the solutions to clients' needs so that we can fully seve and be a part in the<br />
clients recovery<br />
9<br />
Good luck!! More power to you!!<br />
- little attention to native culture given to overall survey in terms of language, norms, etc<br />
10<br />
- intrusive to new clients<br />
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