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INTRODUCTION - National Trust

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A PHYSICIAN’S GUIDE FOR PARENTS<br />

OF CHILDREN WITH AUTISM<br />

”AUSTISIC SPECTRUM DISORDERS”<br />

You have been worried about your child for a long time, but it has been difficult to<br />

describe “the difference” from other children; probably some people have told you not to<br />

worry, others have been unable to decide just what was going on, and now you have been<br />

told there is an “autistic spectrum disorder”. What does this mean?<br />

Children diagnosed as having an autistic spectrum disorder (ranging from the most<br />

severe form, early infantile autism or Kanner syndrome through to much milder types of<br />

pervasive developmental disorder (“P.D.D.”) and Asperger syndrome) are all as different<br />

from each other as neurologically intact children without such difficulties. Yet all have<br />

real problems in communication and relating to other people, and all show unusual<br />

behaviours, with odd habits and mannerisms. These problems will have been present before<br />

the third birthday, and often parents will have sensed something “different” in the first<br />

year of life. These children have severe difficulties in all of these areas. Some of these children<br />

are very intelligent, others are mentally retarded; in young children it can be extremely<br />

hard to judge or measure intelligence, and intelligence testing is not usually reliable (in<br />

terms of forecasting the future) before the child is five or six years old.<br />

1. What is the cause of autistic spectrum disorder ?<br />

No single cause is known. There are probably many different causes. What seems to<br />

be one disorder will someday turn out to be a group of quite different conditions all<br />

producing the same symptoms. This is very common in medicine - thus there are<br />

many different causes of cough, or arthritis, or anxiety.<br />

All autistic spectrum disorders are due to some change in the way the brain works.<br />

They are never, caused by poor parenting. If you meet professionals who blame you<br />

for your child’s difficulties, have nothing further to do with them.<br />

We know that there is a genetic influence in many cases of autism – it can run in<br />

families -some parents have more than one child with autism or PDD. However,<br />

other cases are clearly not genetic. In some genetic conditions - such as “fragile-X<br />

syndrome” and tuberous sclerosis some of the children do have autism.<br />

Some children have different brains; either they are made differently or something has<br />

gone wrong with brain growth early in pregnancy, a variety of abnormalities have<br />

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