Congenital Cytomegalovirus Conference - Congenital CMV ...
Congenital Cytomegalovirus Conference - Congenital CMV ...
Congenital Cytomegalovirus Conference - Congenital CMV ...
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Thursday, November 6<br />
7:00-8:00am<br />
Breakfast in the atrium.<br />
The agenda for Thursday morning includes two separate, concurrent sessions. Shown below are the agendas for each<br />
session.<br />
8:00am-11:00am<br />
Concurrent Family Session<br />
Family Session Moderator: Gail Demmler.<br />
8:00 Family Session I: Parent Support and Advocacy<br />
8:00 Introduction of Family Session: How Can Families Help? Giving Support: Networks, Services, and<br />
Resources for <strong>CMV</strong> Families.<br />
Gail Demmler, Department of Pediatrics, Baylor College of Medicine, Houston, TX.<br />
8:05 How <strong>CMV</strong> parents can share information and experiences with each other.<br />
Janelle Greenlee<br />
8:15 How parents can raise awareness and educate the public about <strong>CMV</strong> disease.<br />
Lisa Saunders<br />
8:25 Q&A Discussion<br />
8:30 Family Session II: Current <strong>CMV</strong> Research Initiatives<br />
8:30 Clinical trials for treatment of newborns with congenital <strong>CMV</strong> disease.<br />
David Kimberlin, University of Alabama at Birmingham, Birmingham, AL.<br />
8:40 Clinical trials for prenatal treatment and prevention of congenital <strong>CMV</strong> infection and<br />
disease.<br />
Stuart Adler, Medical College of Virginia campus of Virginia Commonwealth University Richmond, VA.<br />
8:50 <strong>CMV</strong> vaccine trials.<br />
Robert Pass, University of Alabama at Birmingham and The Children's Hospital of Alabama, Birmingham, AL.<br />
9:00 Family participation in <strong>CMV</strong> clinical trials.<br />
Jennifer Bailey<br />
9:10 Q&A Discussion<br />
9:20 Family Session III: Fundraising for <strong>CMV</strong> Awareness Research<br />
9:20 Fundraising 101: Family fundraising options and resources.<br />
Julie Rodgers, CDC Foundation.<br />
9:30 Establishing a charitable foundation that Supports congenital <strong>CMV</strong>.<br />
Tracy McGinnis<br />
9:40 Unique fundraising opportunities for <strong>CMV</strong> Families: How to become involved.<br />
Chad Blakeman<br />
9:50 Q&A Discussion<br />
10:00 Family Session IV: Raising a Child Born with <strong>Congenital</strong> <strong>CMV</strong><br />
10:00 Management and Resources for Children with Developmental and Sensory Disabilities.<br />
Daniel Williamson, Department of Pediatrics, Baylor College of Medicine, Houston, TX.<br />
10:15 Advocating for your child’s education.<br />
Gayle Born, Parkaire Consultants, Inc.<br />
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