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Royal Manchester Children’s Hospital<br />

<strong>Scoliosis</strong><br />

Information For Parents and Carers


What is scoliosis?<br />

<strong>Scoliosis</strong> is a lateral (sideways) curvature of the spine. It can be<br />

due to abnormalities in the legs but is most commonly due to<br />

a problem in the spine. It usually develops during early<br />

adolescence. In most cases the curve is slight but in severe<br />

cases the spine can become ‘C’ or ‘S’ shaped.<br />

A normal spine appears curved when viewed from the side and<br />

straight when viewed from behind. In scoliosis, the opposite is<br />

true, that is the spine appears straight when viewed from the<br />

side yet curved when viewed from behind.<br />

Facts about scoliosis<br />

• 1 in 20 people has scoliosis generally in a very mild form.<br />

• Of these 1 in 20, five percent, will have a more severe<br />

spinal curvature.<br />

• <strong>Scoliosis</strong> is generally not painful in young people but can<br />

become painful in adults.<br />

• <strong>Scoliosis</strong> is treated most successfully when the patient is<br />

younger. The body can respond better to treatment while it<br />

is still growing.<br />

• <strong>Scoliosis</strong> may increase during growth periods. Larger curves<br />

may continue to progress during adult life.<br />

Signs of scoliosis<br />

• One shoulder may be higher than the other.<br />

• One shoulder blade may be higher and more prominent.<br />

• One hip may be more prominent than the other.<br />

• Clothes may not ‘hang right’ – it is often difficult to get a<br />

hem to hang level or trousers to appear the same length.<br />

• Girls may complain that one breast appears less prominent<br />

than the other.<br />

3


What causes scoliosis?<br />

Eighty percent of scoliosis is of unknown cause (idiopathic).<br />

Much research is being done into this field including work at<br />

the Royal Manchester Children’s Hospital. In most of these cases<br />

the condition develops in girls between 10 –15 years old and is<br />

more common in the relatives of those affected.<br />

Other cases are congenital (caused by abnormal development<br />

of the bones in the spine) and some are due to problems with<br />

nerves or muscles (such as cerebral palsy or muscular dystrophy).<br />

How is scoliosis detected?<br />

<strong>Scoliosis</strong> can be seen by a trained observer looking at a patient’s<br />

back. When a patient bends forward one side of the chest or<br />

loin may appear more prominent if scoliosis is present.<br />

Some education authorities screen all teenagers for scoliosis.<br />

If the school doctor has any doubts then an appointment is<br />

usually arranged at the scoliosis clinic for X-rays to be taken.<br />

Monitoring and progression of the curve<br />

Although some new photographic methods are now becoming<br />

available, X-rays are still the most reliable way of detecting any<br />

worsening in the degree of scoliosis.<br />

At the time of diagnosis there is no accurate way to predict<br />

which curves will worsen. Some smaller curves do not get<br />

worse. Many curves remain stable for years but suddenly get<br />

worse during the adolescent growth spurt. The child’s potential<br />

for growth is therefore one of the most important factors in<br />

predicting curve progression. In general, patients who have a<br />

lot of growth to come have a higher risk of curve progression.<br />

Growth potential, and therefore potential for curve<br />

progression, can be evaluated by age at diagnosis, menstrual<br />

history and radiological signs of bone maturity. Overall, females<br />

with scoliosis have a greater risk of curve progression.<br />

4


Treatment<br />

<strong>Scoliosis</strong> is treated to prevent curve progression and also<br />

to preserve good appearance. There are three main types<br />

of treatment/care:<br />

• Observation<br />

• Bracing and casting<br />

• Surgery<br />

Observation<br />

Patients with a recently diagnosed mild curve are observed<br />

for a period of time to determine if the curve will progress.<br />

Since most curves do not become severe, observation is often<br />

all that is required. This enables the Surgeon to plan any active<br />

treatment that may be necessary.<br />

The most accurate method of observation is to perform a<br />

standing X-ray. Each X-ray is compared with the previous one<br />

to determine the amount of curve progression. Generally those<br />

with mild curves are seen in clinic every six months but those<br />

with larger curves will be seen every three to four months,<br />

especially if the child is growing rapidly.<br />

5


Bracing<br />

Bracing maybe used when the child is growing rapidly and the<br />

curve is between 20 and 30 degrees. The purpose of bracing is<br />

to control the curve and slow down further progression.<br />

The brace most commonly prescribed in the clinic at Royal<br />

Manchester Children’s Hospital is the Boston under arm brace.<br />

Research has shown that this needs to be worn for 16 hours<br />

per day if it is to be effective.<br />

Brace treatment is not always effective but its effect can<br />

sometimes be predicted by looking at X-rays taken in the<br />

brace shortly after it has been fitted.<br />

Surgery<br />

Surgery is generally performed when it is thought that the<br />

spinal curvature at skeletal maturity will be greater than 50<br />

degrees. Surgery consists of straightening the spine and<br />

performing a spinal fusion operation to hold it straight.<br />

The type of surgery depends on the curve type.<br />

Before surgery a magnetic resonance (MRI) scan will be<br />

requested to examine the nerves in the spine.<br />

6


Tips for parents<br />

• Don’t panic! Many advances in surgical and other kinds<br />

of treatment have been made in this field. Doctors who<br />

treat scoliosis are familiar with it and have repeatedly<br />

demonstrated high levels of success in treating scoliosis.<br />

• Ask questions. You should discuss your child’s problem with<br />

your Doctor. Write down questions so they are not<br />

forgotten at your child’s next visit.<br />

• If your child needs to wear a brace establish a daily routine<br />

for its use. This makes coping with the brace a little easier.<br />

• Make a conscious effort to treat your child as normally<br />

as possible.<br />

• Speak to other parents and allow your child to speak to<br />

other children with a similar condition. Your child will need<br />

support throughout treatment.<br />

For further information please contact:<br />

<strong>Scoliosis</strong> Nurse Specialist<br />

Direct Line: 0161 701 0634<br />

Monday – Friday 8.00 am - 4.00 pm<br />

Spinal Office<br />

Direct Line: 0161 701 2170/2754<br />

Monday – Friday 9.00 am - 5.00 pm<br />

Further resources<br />

<strong>Scoliosis</strong> Association (SAUK)<br />

2 Ivebury Court<br />

323-327 Latimer Road<br />

London W10 6RA<br />

Tel: 0208 964 1166<br />

www.sauk.org.uk<br />

7


No Smoking Policy<br />

The NHS has a responsibility for the nation’s health.<br />

Protect yourself, patients, visitors and staff by adhering to our<br />

no smoking policy. Smoking is not permitted within any of our<br />

hospital buildings or grounds.<br />

The Manchester Stop Smoking Service can be contacted on<br />

Tel: 0161 205 5998 (www.stopsmokingmanchester.co.uk).<br />

Translation and Interpretation Service<br />

Do you have difficulty speaking or understanding English?<br />

☎ 0161 276 6202/6342<br />

Spinal Deformities Centre<br />

Royal Manchester Children’s Hospital<br />

Oxford Road, Manchester M13 9WL<br />

Tel: 0161 701 0634 Monday – Friday 8.00 am - 4.00 pm<br />

For urgent queries contact Ward 78 on 0161 701 7800<br />

www.cmft.nhs.uk<br />

TIG 20/10 Produced January 2004 Updated January 2010 Review January 2012 (SF Taylor CM2084)

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