2011 - NIH Clinical Center - National Institutes of Health

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HOSPITAL RECOGNIZES COMMUNITY OF CAREGIVERSWITH DAY OF ACTIVITYDr. Richard Schulz, anationally recognizedexpert in the field ofcaregiver research,was guest speaker.In recognition of the support provided by familyand loved ones to patients participating in clinicalresearch, the Clinical Center celebrated NationalFamily Caregiver Month with Family CaregiverDay on November 1, 2010.Research shows that family caregivers are atincreased risk for health, emotional, financial,and work-related problems. In addition, familycaregivers often find themselves in positions thatmake it difficult to maintain their own health.“Caregivers report a lot of disruption in theirsleep, high levels of physical and emotional fatigue,and high levels of distress that might even suggestthat they need clinical intervention,” said Dr.Margaret Bevans, clinical nurse scientist in Nursingand Patient Care Services.According to Bevans,research in the chronic care setting shows thatindividuals who provide informal care to lovedones exhibit not only an increase in morbidity, butmay also have an increased risk of mortality.The agenda for Family Caregiver Day includeda presentation from guest speaker Dr. RichardSchulz, a nationally recognized expert in the fieldof caregiver research. Schulz is the director of theUniversity Center for Social and Urban Researchat the University of Pittsburgh. His talk—”Reflections on Three Decades of Research onCaregiving”—described some of the psychosocialand general health issues encountered by familycaregivers, along with intervention research andimplications for policy.As a caregiver for her husband, Nancy Bradfield ofHarrisonburg,Va., understands how hard it can be.“For people who are just coming into a situationwhere their loved one has been diagnosed with aserious illness, it can be quite a challenge,” she said.“I think that if you can tell yourself that you needto stay as optimistic as possible, it helps a lot.Andtry to communicate as well as you can with thepatient.”Events included an information fair and expo; aninteractive art project; sessions with mental healthand social work workers; and fitness, yoga, andmassage demonstrations.“We are already caring for a unique population,so we need to think of our caregivers as having todeal with unique challenges.They are managingnot just the clinical needs of their loved ones, butthey also need to understand and interpret theneeds associated with the clinical trial their lovedone is enrolled in.This is an added complexity,”said Bevans.She is currently investigating the effectivenessof problem-solving education in caregiversand patients who are receiving stem celltransplantation.“We are trying to determineif caregivers who are supporting individualsundergoing a stem cell transplant also reportlevels of emotional distress or symptoms thatwill put them at risk for health issues in thefuture,” she said.Ideally, Bevans would like to see caregiversmaximize the resources and education available tothem while at the CC, giving them the knowledgeand resources necessary to stay healthy when theyreturn home.“If you think about the role of the caregiver—thecommitment to their family, their employer, theirown health—one can easily recognize the scope ofthe caregiving experience. It’s much broader thanwhat we see when they are with us,” she said.14 • ANNUAL REPORT 2011
Asyky Maris works a papercutout of a hand to add to the“Collage of Helping Hands”interactive art project offeredby the Rehabilitation MedicineDepartment Recreation TherapySection.TEEN RETREATMembers of The Children’s Inn band—including staff members Alex Florez(left) and Joe Hage—serenadedparticipants in the Fourth Annual TeenRetreat in June 2010. The ClinicalCenter Rehabilitation Medicine Department’sRecreation Therapy Section—in collaboration with The Children’sInn—coordinates the event, whichoffered two days of programs aimedat balancing therapeutic activities withteam-building exercises.ANNUAL REPORT 2011• 15
Page 1 and 2: PROFILE 2011There’s NoOther Hospi
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Page 6 and 7: OUR VISION As America’s research
Page 8 and 9: Patient Activity and SupportHOME ST
Page 10 and 11: PATIENT ART ON DISPLAYthe “Hope F
Page 12 and 13: EDMOND J. SAFRA FAMILY LODGE MARKS
Page 14 and 15: SURGERY SPACES RENOVATED TO IMPROVE
Page 18 and 19: Advancing Clinical Research PROTOCO
Page 20 and 21: A panel of representativesof differ
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Page 42 and 43: GRADUATE MEDICAL EDUCATION BROADENS
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2011 - NIH Clinical Center - National Institutes of Health

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