Guide to PKU - Mead Johnson Nutrition

Where To Go For More InformationDiet ManagementA Babysitter’s Guide to PKU.Trahms CM, Cox C. Available fromthe PKU Clinic at the University ofWashington, Seattle, WA. Telephone:(206) 685-3015.Finger Foods are Fun. Trahms CM,Cox C, Luce P, Padgett D. Availablefrom the PKU Clinic at theUniversity of Washington, Seattle,WA. Telephone: (206) 685-3015.Games that Teach: Learning byDoing for Preschoolers with PKU.Trahms CM, Cox C, Luce P.Available from the PKU Clinic atthe University of Washington, Seattle,WA. Telephone: (206) 685-3015.New Parents’ Guide to PKU.Trahms CM, Luce P. Available fromthe PKU Clinic at the University ofWashington, Seattle, WA.Telephone: (206) 685-3015.A Teacher’s Guide to PKU.Kaufman M, Nardella M.Office of Nutrition Services, ArizonaDepartment of Health Services,1740 W. Adams Street,Phoenix, AZ 85007.Cookbooks & Food ListsChef Lophe’s Phe-NominalCookbook. Barr LA, Trahms CM.Available from the PKU Clinic atthe University of Washington,Seattle, WA.Telephone: (206) 685-3015.Low Protein Bread Machine Bakingfor PKU. Schuett VE. 92 recipes forlow protein bread baking using breadmachines. See www.pkunews.org forordering information.Low Protein Cookery for PKU,2nd edition. Schuett VE. Over450 recipes for the PKU diet withphenylalanine, protein, and caloriecontent; suggestions for managingthe diet. See www.pkunews.org forordering information.Low Protein Food List for PKU.Schuett VE. Over 3,000 foods(including brand names) withphenylalanine, protein, and caloriecontent. See www.pkunews.org forordering information.Making the Change from High Pheto Low Phe: Changing recipes tofit your low phenylalanine mealpattern. Fink KJ, Trahms CM.Available from the PKU Clinic atthe University of Washington, Seattle,WA. Telephone: (206) 685-3015.Creative Family Cooking.The Mid Atlantic Connection forPKU and Allied Disorders.P.O. Box 6086,Lancaster, PA 17607.General InformationCoping with PKU: results ofnarrative interviews with parents.Awiszus D, Unger I. Euro J Pediatr.1990;149(suppl 1):S45-51.Intellectual development in12-year-old children treated forphenylketonuria. Azen CG, Koch R,Friedman EG, Berlow S, Coldwell J,Krause W, et al. Am J Dis Child.1991;145(1):35-39.After a positive Guthrie—what next? Dietary managementfor the child with phenylketonuria.Clark BJ. Euro J Clin Nutr.1992;46(suppl 1):S33-39.Intelligence in mild atypical PKU.Costello PM, Beasley MG, TillotsonSL, Smith I. Euro J Pediatr.1994;153(4):260-263.Breast-feeding in the managementof the newborn withphenylketonuria: a practicalapproach to dietary therapy.Greve LC, Wheeler MD, Green-Burgeson DK, Zorn EM. J Am DietAssoc. 1994;94(3):305-309.Maternal PKU collaborative study:the effect of nutrient intake onpregnancy outcome. Matalon R,Michals K, Azen C, et al. J InheritMetab Dis. 1991;14(3):371-374.Updated in 1996.Recommendations on the dietarymanagement of phenylketonuria.Report of Medical Research WorkingCouncil Working Party on phenylketonuria.Arch Dis Child.1993;68(3):426-427.22