An Evaluation of the MoH/NGO Home Care Programme for People with HIV/AIDS in Cambodia1 BACKGROUND1.1HIV/AIDS in CambodiaCambodia has one of the fastest growing HIVprevalence rates in the world. Results from thelatest Surveillance Survey 1 indicate that approximately170,000 Cambodians are now infectedwith HIV, giving an adult HIV prevalence rate ofaround 3.5%.Cambodia has also one of the lowest rates ofhealth utilisation in the world. Lack of funds forsalaries, supplies and maintenance severely limitsthe amount of care and medicines which can beprovided by the health system. For the poorestCambodians, costs of health care account forapproximately 28% of household expenditure 2 .The AIDS epidemic will further exacerbate thiscost burden on many households.The impact of the rapid spread of the epidemicin Cambodia is drastic. During the year 2000 anestimated 12,000 people with AIDS will seek careand support, thus increasing the pressure on ahealth care system that currently provides a totalof only 8,500 beds for all medical conditions 3 .The HIV/AIDS epidemic in Cambodia is stillrelatively recent. HIV was first reported inCambodia in 1991 and the first cases of AIDSwere diagnosed in late 1993. During that year thefirst 5-year National AIDS Plan was developedand the HIV/AIDS Co-ordinating Committee(HACC) was established by a consortium of international,national and local NGOs.In 1998 the Ministry of Health established theNational Centre for HIV/AIDS, Dermatology andSTDs (NCHADS). The mandate of NCHADS is tooversee the response of the MoH as well as toprovide technical support to other governmentagencies and national partners. The NationalAIDS Authority (NAA), which replaced theNational AIDS Committee (NAC) and NationalAIDS Secretariat (NAS), was established inJanuary 1999 to oversee the nationalresponse, a key component of which is closeco-operation between government and nongovernmentagencies.A 2-year National Strategic Plan forSTD/HIV/AIDS was developed in 1998, under theco-ordination of MoH/NCHADS. This plan, whichwas a joint effort involving ministries, multilateralsand NGOs provides a framework for implementationand co-ordination for all partners contributingto the national response 4 . While Care and Supportfor PLHA is one of the 12 strategic areas, much ofthe focus is on policy, protocols, guidelines andmobilisation of donor support. The plan made noreference to government supported home careprogrammes.In March 2000, MoH/NCHADS developed thefirst draft of their Strategic Plan for HIV/AIDS andSTI Prevention and Care 2001-20035. AIDS Care,including Institutional and Home-based Care, isone of the eight areas of primary focus. HomebasedCare has its own set of strategic goals,which include supporting the extension andexpansion of the home-based care programmenation-wide, and the establishment of co-ordinationmechanisms for its implementation. ThisStrategic Plan, which indicates what can andshould be done in the health sector, is a significantstep towards institutionalisation of HomebasedCare in Cambodia.pg 81 Report on Sentinel Surveillance in Cambodia, NCHADS/MoH, 19992 Ministry of Health, 1998, The demand for health care in Cambodia: Concepts for future research,National Public Health and Research Institute3 UNAIDS (2000) Country Profile, "The HIV/AIDS/STD situation and the national response in the Kingdomof Cambodia", 3rd Edition - February 20004 National Strategic Plan STD/HIV/AIDS, Prevention and Care in Cambodia, 1998-2000
BACKGROUNDConcepts of Home-Based Care for PLHA 1.2The common misconception that people withHIV/AIDS will only benefit from highlyspecialised treatment, coupled with a generalfear of contagion, has often resulted in verticalAIDS programmes, with a disproportionateemphasis on prevention, and with care beingrestricted to dedicated institutions. Evidencefrom other countries indicates that this approach,which encourages the attitude that PLHA shouldbe segregated from the community, is inappropriate,unsustainable and unethical.1.2.1 Comprehensive CareAcross the ContinuumIn an effort to address this issue WHO andothers have, for the past decade, been promotingthe concept of "Comprehensive CareAcross the Continuum". This approach aims tolink a network of providers and services tocomprehensively address the care needs ofPLHA and their caregivers in a range of environments.Comprehensive care should also includereferrals between home or community and thehospital, and vice versa, effective dischargeplanning, and appropriate follow-up. As far aspossible, the approach should consist of fourinterrelated elements 6 :• Clinical Management, including earlydiagnosis and rational treatment of HIVrelatedillnesses and follow-up care• Nursing Care to promote and maintainhygiene, nutrition and infection control,to provide palliative care and healtheducation to home carers• Counselling, including psychosocialsupport to PLHA and their families, toreduce stress and anxiety, to promotepositive living and risk reduction strategies,and to empower individuals tomake informed choices for their futures• Social Support, including materialassistance, information and referral,linking into support groups and services.The continuum of care was envisaged as adynamic set of support services that PLHA andtheir families can access. It should be noted thatthis is an idealised situation; the approachadopted in a particular country will depend onthe prevailing needs of patients and the realitiesof health care provision.1.2.2 Lessons learned from otherhome care programmesThe limited number of evaluations of homecare programmes to date have revealed a numberof lessons learned:• ensure that any new initiative is integratedinto existing or planned governmenthealth systems• strong linkages should be establishedat the onset of the programme withhospitals and other health services• home care staff should have an appropriatemix of clinical and psychosocial skills5 Ministry of Health/NCHADS Draft Strategic Plan for HIV/AIDS and STI Prevention and Care in Cambodia, 2001-20036 Osborne et al. "Models of care for patients with HIV/AIDS". AIDS 11, 1997pg 9