Annual Report 2003-2004 - Independent Living Centre of Waterloo ...

www.ilcwr.org2003-2004ANNUAL REPORTTogether, Freedom Through Access and Choice

2003-2004• approved minutes of theboard and board committees,financial reports and budget,and executive director reports• heard from staff by reviewingstrategic plan areas of effortand program reports• elected Randy Barrett aspresident and Deb Bergey asvice president for one year• filled vacancies with threenew members• evaluated performance ofexecutive director• drafted action plans based onresults of the board evaluation• dissolved board appealcommittee; duties will becovered by volunteers• disbanded the developmentfunding committee; duties willbe covered by staff• made amendments topolicy 4: Board ExecutiveRelationship• invited Margaret Sanderson,Deb Bergey, Judy Bruyn andDan Lajoie to speak about theOntarians with Disabilities Act• allocated $10,000 from thebalance sheet to establish theAccess Fund• released money from anappropriated fund to coverrenovations for the new office• accepted new ILCWRmembersBoard PresidentListed on the left are many of the decisions the board of directors made during the eightor nine meetings we had throughout the year. These decisions were not made lightly.With the help of many staff at ILC, we went through a great amount of informationbefore reaching our decisions. And we hope these decisions will benefit ILCWRpresently and in the future. Because the world around us is ever changing, we feel theneed to continually evaluate our policies to make sure they are meeting the needs of ourmembers and our staff.The work we do has its highs and lows but I think that I can speak for the rest of theboard members when I say that we feel it is important work that needs to be done andthat we are proud to represent the ILCWR members and staff in this capacity.I would like to thank the rest of the board for their hard work throughout this pastyear, and also the many staff who have attended and/or contributed to our meetingsthis past year.Best Wishes, Randy BarrettExecutive DirectorBy the time you read this report, we will have moved into our new home at127 Victoria Street South in Kitchener. This no doubt was one of our majoraccomplishments in the past year. After bouncing around for 20 years in six differentlocations, we have finally landed in a “permanent home.” And with a 20-year lease,we expect to quickly feel quite settled.So just exactly what do we mean when we call this our home? The dictionary hasmany meanings. One of my favourites is, “a familiar or usual setting; a congenialenvironment.” I think we have more than accomplished the latter—our main officecontinues to be a very welcoming place thanks to the smiling faces and accommodatingattitude of all our staff. People feel “at home” whenever they visit us. Now, with a newlong-term lease, it will become a familiar setting as well.Another definition of home is, “a place where something began and flourished.”This is most appropriate, albeit more about our community and our founders, thanabout our physical location. Not only were we the first independent living centre inCanada, but the Canadian definition and the birth of CAILC also blossomed right herein Kitchener. We are the home of the independent living movement in Canada.And finally, a home is “a place where something is discovered, developed, andpromoted.” There is no question that this organization has grown tremendously inits 22-year history. And we continue to promote independent living (and ourown philosophy) amidst our agency and throughout the community.Fred KinsieWe have many partners in all this: our staff and volunteers, membersand friends, funders and donors, and many community agenciesand companies that share our vision for what this communitymight be. With your help, good things will continue tohappen in our home for many years to come.Fred KinsieRandy Barrett2INDEPENDENT LIVING CENTRE | 2003-2004 Annual Report

Attendant ServicesAttendant services provide the opportunity for improved quality of life, individualcontrol and greater community involvement. It is the physical assistance required toperform activities of daily living when persons with a physical disability cannotperform these functions themselves. Attendant service is initiated and directed bythe consumer (person with the disability) and might include: personal care (eg.bathing, dressing, grooming, or washroom assistance), meal preparation and lighthousekeeping. An individual will be successful on ILCWR attendant service if theyhave the ability and motivation to be an active participant in their own services.There are four choices for services.OutreachOutreach is provided in a person’s home, work oreducational (i.e. university) setting. Based on an individual’srequirements, personal support and homemaking services areprovided on a pre-scheduled, visitation basis to a maximumof three hours per day.In-Home RespiteIn-Home Respite is designed to provide relief to primary caregivers and a broad spectrum of consumers. Supervision and companionship are a part ofthese services. Service is delivered in a variety of flexible options of two ongoing visitsper week, occasionally as needed, or for vacation support.Supportive HousingThere are four Supportive Housing Projects within Waterloo Regionwhere consumers live independently. Service calls are scheduledand infrequent short duration calls are also available throughout a24 hour time period.• Mooregate • Shamrock • Albert Street • KiwanisDirect FundingOutreach Consumer — Bev Reuterenjoying an Op-Peer-Tunity!Community Project DayVolunteers withDan Lajoie.The Direct Funding program provides funding directly to consumers who want greatercontrol, flexibility and choice in their lifestyles. With Direct Funding the consumer isrequired to manage all aspects of their attendant services.“I like the freedomof choice that ILCofffers. ILC hasgiven me a newway of livingindependently.”“Most attendantsgo above and beyondin assisting me withmy needs.”Attendant Staff TrainingDirect Funding participantMaureen Wagner often attendsevents with her daughter Natasha.INDEPENDENT LIVING CENTRE | 2003-2004 Annual Report3

Community Support ServicesThe following programs have staff available to offer one on one support to thosewho face challenges because of a disability.“They showedme a new wayof living.”AdvocacyThe Individual Advocacy program works with individuals to maximize theirindependence by empowering them to become self advocates; speak up about issues orsearch for answers to concerns. Issues regarding human rights, accessibility, housing,financial assistance, transportation, and employment are examples of what can beaddressed through this program.Peer SupportThe Peer Resource program encourages a support network of persons with disabilities to:• share related experiences;• empower themselves and others to identify their needs;• find the resources needed to bring about change.Jeff Martin at “A Coffee Tasting”Op-Peer-tunity!Information and ReferralInformation and referrals around disability issues and services are available toconsumers, family and the community. A lending library and website offer excellentresources. Visit www.ilcwr.org.“It’s allowed meto continue what Iwas able to dowhen I was home.If somethingshould happento family, I cancontinue on withmy life.”Cooking Course event with Chef Linda —an “Op-Peer-tunity” event held at Zehrs Markets.Advocacy and Peer Support consumers with ourOmbudsman, Pamela Young.2003 Summer Picnic Entertainers Mark Smith (LeadAttendant) with Dan Lajoie (Supportive HousingConsumer).Designing for Inclusion Conference —October 2003 Multi Agency Planning Team.4 INDEPENDENT LIVING CENTRE | 2003-2004 Annual Report

Education & PromotionAwareness and education about the independent living philosophy throughliterature, events and presentations creates a better understanding of the needsand issues faced by persons living with a disability.Kids On the BlockKids on the Block is a disability awareness program using large puppets in presentationsat schools, organizations and community groups.The goal of the program is to breakdown barriers by stressing the need for a positive attitude.Presentations & SpeakersIndividuals are available to speak about their own experience living with a disabilityand the independent living philosophy. Presentations can be tailored to any audienceor location.The Independent Living AwardsSince 1999, this annual event recognizes organizations, staff, volunteers and individualswho show exemplary efforts in creating positive changes towards greater independencefor persons with disabilities.“If I didn’t haveattendant services Iwould probably notbe able to work orparticipate in thecommunity. Havinghelp with dailyactivities leaves mewith energy forwork / school /communityinvolvement.”Grace Niezen receiving the Skills DevelopmentAward from Marta Rozman of RogersCommunications.Kids On the Block received a grant from RonaldMcDonald House Charities.“Without ILCI would be livingin an institution, andnot be able to feelgood about myselfand my abilities.”Resource Group for Supported VolunteeringCommittee wrap up!Bell Employee Giving Program chequepresentation to Dianne Boston-Nyp for ILC.INDEPENDENT LIVING CENTRE | 2003-2004 Annual Report5

2004 AwardRecipientsBarrier FreeZehrs Stanley ParkCommunity PartnerHeather Johnson6th AnnualIndependent Living Awards 2004Atotal of 53 nominations were received for sevencategories in this year’s sixth annual celebration toacknowledge positive changes towards greater independencefor people with disabilities. Since 1999, there have been 400nominations recognizing the “countless contributions madetowards creating a more inclusive community.”George Michaels of CHYM-FM kindly returned asMaster of Ceremonies. This year’s event highlighted thefirst five years in a visual presentation. Fred Kinsiecommunicated a fund raising drive for the centre’s pendingmove to a new location in September 2004.Generous sponsors, volunteers and businesses continuedto support the event and auction (see next page). It was alsowonderful to enjoy some new contributors such as local artist,Bruce Herchenrader who designed this year’s award. Exquisitefinal touches to the decor were generously provided by theCentral Ontario Orchid Society.George Michaels and volunteerZubair Basheer.The Orchids were Exquisite!Distinguished VolunteerIan ArdillInfluential AdvocateNancy CherryOutstanding IndividualBruce MuttonSkills DevelopmentGrace NiezenStaff RecognitionMiller MemorialBrandy DuchesneRecipients seated with Sponsors behind — see side panel.Access FundThe Access Fund was created to assist ILCWR consumers when purchasing assistivedevices for greater independence. The fund was launched at the Awards in 2003 and hasprovided funds to three applicants in the first year.Grants will cover up to 90% of the money required after other programs have beenexhausted. Maximum grant amount is $2,000.The Access Fund was promoted as the major funding priority during this fiscal year.Transportation FundThanks to a donation from the former Project Lift board of directors our centre hascreated a fund to assist with transportation. Funds are now available for rental of a bus,or other means of transportation, to allow consumers to attend events.This fund also assists consumers who have medical appointments out of town.6 INDEPENDENT LIVING CENTRE | 2003-2004 Annual Report

ContributorsKids on the BlockMajor ContributorsCanadian Diabetes AssociationCity of KitchenerKidsAbility Centre for Child DevelopmentKiwanis Club of Cameron HeightsMay Court Club of K-WOptimist Club of Conestogo/WinterbourneOptimist Club of Twin CitiesRegional Municipality of WaterlooRonald McDonald House CharitiesUnited Way of Kitchener WaterlooWallenstein Feed Charitable FoundationDonations from Presentations6th Waterloo Beaver Colony12th Waterloo Guide Company13th Waterloo Sparks22nd Waterloo Sparks8th Girl Guides of CanadaAfterschool Y ProgramArthur Public SchoolBarrier Free Committee of GuelphCalvary United ChurchCedarbrae Public SchoolCentennial Public SchoolCentennial-Grand Woodlands SchoolCentral Park Public SchoolChrist the King SchoolCity of StratfordCity of Waterloo – Sports Splash n FunCrestview Public SchoolDrayton Heights Public SchoolDriftwood Park Public SchoolDriftwood Park Child CareEast Hespeler Neighbourhood AssociationElmira Child CareFather C.W. Sullivan Catholic SchoolFirst Unitarian ChurchForest Glen Public SchoolForest Hill Public SchoolGirl Guides of Canada – GuelphHespeler Public SchoolHespeler Village Neighbourhood AssociationHighland Sterling Community GroupHitherfield Prep SchoolHoly Rosary School GuelphHoward Robertson Public SchoolJ. F. Carmichael SchoolJohn Darling Child CareKeats Way Public SchoolKingsdale Participating PreschoolKitchener Conestoga Rotary ClubJackie Ralph with thepopular KOB puppet,Renaldo Rodriquez.Kitchener Public LibraryKlemmer Farm House Coop NurseryLackner Woods Public SchoolLester B. Pearson Public SchoolMother Teresa Catholic SchoolNorth Wilmot Public SchoolOttawa Cres. Public SchoolPaisley Road Public SchoolPioneer Park Summer PlaygroundRainbow Summer CampKaren RedmanRegion of Waterloo Access Info SessionSandhills Public SchoolSilverheights Summer PlaygroundSparks and Brownies of ElmiraSt. Agatha BrowniesSt. Augustine Catholic SchoolSt. Brigid Public SchoolSt. George’s PreschoolSt. John’s Christian Nursery SchoolSt. Nicholas SchoolSt. Peter Catholic SchoolStanley Park Participating PreschoolSunblast Summer PlaygroundSunnyside Retirement HomeTaylor Evans Public SchoolWaterloo Regional Down Syndrome SocietyWaterloo Region Library New Hamburg BranchWellesley & District Co-op PreschoolWestmount Public SchoolWestvale Community AssociationWestwood Public SchoolWilson Ave. Public SchoolWinterbourne Public SchoolYMCA-YWCA of GuelphYWCA of Cambridge2004 Award SponsorsZehrs MarketsBinkle Home HealthCity of KitchenerMennonite Savings & Credit UnionThe RecordRogers CommunicationsRoyal Lepage Scharf Realty Ltd.Shoppers Home Health CareSparrow Hawk IndustriesSt. Jacobs Printery Ltd.United Way of Kitchener-WaterlooILC United Way Employee Campaign —staff contributed over $6,000 in 2003!Michael & KarenHayne representZehrs Markets,major sponsor ofthe Awards since1999.INDEPENDENT LIVING CENTRE | 2003-2004 Annual ReportSharron Garrah helped launchthe United Way Campaign in2003.Melvin Sebelski and LisaTeneycke at the Christmas Party.Consumers Harvey Martin andGlenn Ronnenberg at theChristmas Party.Ted & Mary Johnston at the ILCChristmas Party.7

Board of DirectorsPresidentRandy BarrettILCWR Consumer, Education AssistantWaterloo District Board of EducationVice-PresidentDeb BergeyPlanning Associate, ODARegion of WaterlooSecretaryFred KinsieExecutive DirectorJudy BruynCommunity VolunteerWanda CoxILCWR ConsumerJohn J. GriggsLawyerMiller ThomsonSue MorganCommunity VolunteerPeter NausProfessor Emeritus of PsychologySt. Jerome’s UniversityRose PadaczServices for Students with DisabilitiesUniversity of WaterlooJeff RasmussenILCWR consumerCollection Contact Officer,Revenue CanadaBarry RothManager, Lending ServicesMennonite Savings and Credit UnionMargaret SandersonInclusion CoordinatorCity of KitchenerStephanie Von SchillingDirectorVon Schilling Consulting Inc.Elizabeth TemplinCommunity VolunteerCarol WeberCommunity VolunteerJim WeberILCWR consumerRetired Teacher,Waterloo District Board of EducationFinancial InformationStatement of Revenue and ExpenditureREVENUEMOHLTC 4,306,633Contract Attendant Services 386,340CILT 65,896CAILC 53,478United Way 46,750Other Grants 24,884Donations, Interest etc. 54,9514,938,932EXPENSESDirect ExpenseOutreach 1,998,472Supportive Housing 1,944,528Contract Attendant Service 232,916Community Support Service 121,571Education & Promotion 90,261Sub-Total 4,387,748Central Administration 552,391TOTAL 4,940,139OPERATING DEFICIT -1,207StatisticsPROGRAMSSERVICE LEVELSIndividual Advocacy229 contactsInformation & Referral1,703 contactsPeer Resource243 contactsKids on the Block 313 shows 18,773 audiencePresentations 87 invitations 3,480 audienceVolunteers 1,800 hours 76 volunteersDirect Funding 442 contacts 56 consumersAlzheimer’s 6,289 hours 33 consumersIn-Home Respite 14,208 hours 61 consumersOutreach 80,616 hours 96 consumersSupportive Housing 96,821 hours 44 consumersContracted Services 6,181 hours 16 consumers10 INDEPENDENT LIVING CENTRE | 2003-2004 Annual Report

StaffAdministrativeChristina Churchill – Employee Health CoordinatorBrandy Duchesne – Receptionist/Information & ReferralFred Kinsie – Executive DirectorAngela Korn – Human Resources DirectorJoan Schooley – Administrative AssistantKatherine Soule Blaser – Director of Program DevelopmentTracy Spencer – Financial AssistantTom Willoughby – Director of Finance and AdministrationEducation and PromotionDianne Boston-Nyp – Education & Promotion DirectorJackie Ralph – Kids on the Block CoordinatorSandy Doczi, Jackie Ralph, MichaelHorne (CAILC), Tom Whilloughby,Brandy Duchesne, Angela Korn,Lorene Benoy, Fred Kinsie,Paula Saunders.Community Support ServicesSandy Doczi – Peer Resource CoordinatorPaula Saunders – CSS Programs Director, andIndividual Advocacy CoordinatorAttendant Services250 Attendants working in the communityLorene Benoy – Direct Funding CoordinatorJames Downham – Outreach SupervisorCindy Guy – In-Home Respite SupervisorKevin Panchaud – Shamrock Project & Outreach SupervisorAllan Russell – Mooregate Project & Outreach SupervisorLeanne Schade – Program SupportSandy Stauffer – Albert Street Project,University Project & Outreach SupervisorRuthAnn Wassing – Kiwanis Project & Outreach SupervisorBack Row (l-r) Christina Churchill,James Downham, Katherine SouleBlaser, Sandy Stauffer, Angela Korn,Joan Schooley. Front Row (l-r) KevinPanchaud, Allan Russell, TracySpencer, Cindy Guy, RuthAnn Wassing.MilestonesFifteen YearsRhonda BetcherPaula SaundersTen YearsCatharine BrownDouglas TaylorFive YearsWendy ArenburgLisa CoulasGarnet KingDiane PetersLarry PryorJudy RichardsonMaddoline StillerKelly WilsonCatherine EvendenBil SmithBrian KingLorene BenoyDebra DaviesKim MillerSherri PhillipsJackie RalphPat SmithLouise St. CroixJackie Ralph & Paula Saunders.Lorene Benoy with Santa KevinPanchaud and Bil Smith.INDEPENDENT LIVING CENTRE | 2003-2004 Annual Report11

VISIONTogether, Freedom through Access and Choice127 Victoria St. S., Suite 201Kitchener, ON N2G 4B2Telephone: (519) 571-6788Fax: (519) 571-6388TTY: (519) 571-7590E-mail: info@ilcwr.orgwww.ilcwr.orgPURPOSEThe purpose of ILCWR is to support persons with disabilities by:• facilitating individual growth towards greater independence• creating opportunities to make informed choices• assisting in the removal of barriers to full participation inthe community• improving the capacity of care givers to assist and support them• helping to increase the community’s acceptance and integrationof themVALUESJustice • Dignity • TeamworkPHILOSOPHY STATEMENTSILCWR believes in and supports the rights and responsibilities ofpersons with disabilities and those persons working with them.ILCWR believes that accommodation, which embraces the diversity ofpersons with disabilities and is sensitive to unique needs, is essential tosupport persons with disabilities to exercise their rights andresponsibilities.ILCWR believes that persons with disabilities are equal to their fellowcitizens and must have access to the unique supports they need to beempowered to fully participate in their communities. ILCWR is alsoresponsive to the needs of those who support persons with disabilities,such as staff, family members, friends and volunteers.ILCWR believes that the mandates and regulations of government andfunders are minimum requirements that must be met.ILCWR believes in advocating for the elimination of barriers and inchallenging public attitudes.ILCWR believes that clear, respectful and open communication amongall parties is required to achieve its purpose and vision.MAJOR FUNDERS• Ontario Ministry of Health and Long Term Care• Human Resources Development Canada• United Way of Kitchener Waterloo and the Townships of Wellesley,Wilmot and Woolwich• Regional Municipality of Waterloo• KidsAbility Centre for Child DevelopmentCharitable #10750 5356 RR0001This report can be made available in alternate formats.