TSSS Education Booklet - Turner Syndrome Support Group (NZ)

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and manage their workload themselves. However, the reverse can also betrue. The girl with TS may have a need, possibly bordering on obsession, toknow what is going to happen and when, in order to feel they can cope. Thiscan make the people around them feel uncomfortable and if this starts tointerfere with their education it would be wise to seek the help of apsychologist.Thoughts on schoolÒI am now fifteen years old and when I started school, just before my 5thbirthday a lot of what I can remember was just playing in the play cornerand writing lots of extremely short stories with terribly scribbled pictures.At primary school, which was mixed-sex, the subjects I enjoyed most wereEnglish & Drama, even though we didnÕt do a lot of drama. Having said this,I never seemed to get the hang of comprehensions very well, stories andcreative writing were fine but comprehensions were just terrible. Myhandwriting was appalling and when I reached Year 4 I was the only childin the class not allowed to write in ink. In the end, it was only at MumÕsinsistence that I was allowed to write with a pen and from that day onwardsmy handwriting improved tremendously. Within six months I was writing moreneatly than most of my friends. I can always remember dreading the dayswhen I had P.E. I was without any doubt the least athletic and sporty personin the class. Another subject I was never any good at was art and designtechnology. I was constantly being told by the teachers to redo pieces ofartwork. I wasnÕt a great fan of Maths, but I didnÕt dread it. I could answerthe questions and because I was in one of the higher groups I didnÕt feelthat I wasnÕt capable of doing the questions. As far as friendships wereconcerned I always felt slightly removed from the rest of my class. Therewere an odd number of girls and when we had to pair up I always seemedto be the one that was just left there because everyone else had theirown Òbest-friendÓ who they would pair up with. I was friendly with theother girls in my class, but I was never really that close to anyone.10IÕve now been at secondary school for 4 years and I have literally loved everyminute of it. It has been so different to primary school. There are so manymore subjects and you cover so many more aspects of life than you do atprimary school. I settled in straight away and I made lots of really nice friends.At first I was a bit frightened because I was the only girl from my primaryschool that went to my secondary school. The truth is that the friends I
Jhave made here are much more like me than my friends at primary school.We all have a lot more in common because we come from similar backgrounds.Occasionally I can feel rather ignored but this never lasts long and probablyisnÕt that different to other girls of my age.My favourite subjects are English and Religious Studies. Since I started myGCSE courses in September, I have completely dropped Art, DesignTechnology, Music, French, History & Geography. IÕm doing 9 subjectsaltogether, which are English, Maths, Chemistry, Physics, Biology, German,Latin, Religious Studies and Information Technology. I appear to be quite goodat languages, but I made the decision to drop French because I wanted todo Religious Studies and Information Technology. I dropped History as I foundit tedious and I dropped Geography because, although I wasnÕt bad at it, Inever seemed to click with the subject. IÕm much happier now that I havechosen the subjects that I enjoy and IÕm loving every minute of school. I amstill the least athletic person in the form, and probably the whole year, butI donÕt worry now because I know that it isnÕt really that important to myfuture. I still dread games but not as much as I used to. I canÕt stand hockey,but badminton and netball are not too bad. IÕm not particularly good at tenniseither. I also really used to dread music, because IÕve never managed to grasphow to read music and so I was never any good in the lessons. However inspite of this I have achieved Grade 3 at singing and am shortly to takemy Grade 4 examination.At the end of the day I always say to myself that as long as IÕve tried myhardest at something that is all I can do and that that is all anybody canexpect of me.ÓJoy11
Page 4 and 5: Contentspage1 Introduction2 What is
Page 6 and 7: What is Turner Syndrome?A brief exp
Page 9 and 10: JBeing perceived as the age they ar
Page 11 and 12: Jshe can learn in her own way and a
Page 13: Jfaced by children who have spatial
Page 17 and 18: J10 tips that can be easily applied
Page 19 and 20: JThe Special Needs SystemThis secti
Page 21 and 22: J¥ Have a look at the schoolÕs pr
Page 23 and 24: JGetting Ready for Life After Schoo
Page 25 and 26: Jstatement/record of needs but to e
Page 27 and 28: National Toy & Leisure Libraries68

TSSS Education Booklet - Turner Syndrome Support Group (NZ)

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