TSSS Education Booklet - Turner Syndrome Support Group (NZ)

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Sex EducationThis will be a particularly sensitive topic for girls with TS and their familiesand it is very important that the teacher is aware of the physiological aspectsof fertility for girls with Turner Syndrome. When talking about this subject,whether in a dedicated lesson or as part of a topic in Science, it is helpful tomention that there are also some women without TS who may not be able tohave children by the traditional method. While some may use IVF treatment,many choose not to have children at all. In biology genetics may be taughtand teachers should be aware that some information about TS might be outof date. A degree of sensitivity is required when these topics are covered.Parents need to be aware well in advance that the topic is going to becovered, as it may be earlier than some parents would expect, and they maywish to discuss the subject with their daughter beforehand. If a video is to beused it may be helpful to offer it to the parents to preview at home as theymay wish to prepare themselves for any questions which their daughter asks.It is also important to make sure that any information given in schoolregarding TS is accurate and up to date.Medical IssuesThere may be certain relevant medical conditions, linked to her TS, that thechild has, which would affect her schooling, such as hearing loss, squints etc,and it is obviously important that her teachers are aware of these. It may behelpful if the childÕs teacher is aware of any treatment she is having in orderto promote her growth (such as growth hormone injections), should she talkabout it at school. There may be a time that fits in with the curriculum, whenit is possible for her to talk to the class about her condition or treatment.Possible times might be when a nurse is visiting to talk to the class, if thetopic of inoculations is being discussed, or if height/growth is a topic for theyear.From EmmaÒEveryone involved with a girl with TS should be told that each girl isdifferent so nobody knows how it is going to affect each individual. So Ireckon that every girl should just be told to go for what they want and totry their best and reach their potential. From when I went to secondaryschool and started doing experiments in the lab I have loved science. IÕm gladthat I am doing a pharmacy degree, IÕm going to be the first professional inmy family.Ó12
J10 tips that can be easily applied when teachinga child with Turner syndrome¥ Try to ensure that the child is seated so that she is facing the teacherfor the majority of the time.¥ Make eye contact with the girl whenever possible. (This may not beeasy for her)¥ Use handouts, rather than the blackboard, whenever possible.¥ Try to keep background noise to a minimum.¥ When giving an instruction start with the girlÕs name and finish withher name.¥ Give full and detailed instructions and repeat if possible.¥ Encourage the use of visual aids and colour to aid memory.¥ Set realistic targets and award with lots of praise.¥ If not reaching academic targets then praise helpfulness etc.¥ Listen to her concerns and treat her fairly and this will help the girlwith TS reach her full potential and become a valued member of theclass.13
Page 4 and 5: Contentspage1 Introduction2 What is
Page 6 and 7: What is Turner Syndrome?A brief exp
Page 9 and 10: JBeing perceived as the age they ar
Page 11 and 12: Jshe can learn in her own way and a
Page 13 and 14: Jfaced by children who have spatial
Page 15: Jhave made here are much more like
Page 19 and 20: JThe Special Needs SystemThis secti
Page 21 and 22: J¥ Have a look at the schoolÕs pr
Page 23 and 24: JGetting Ready for Life After Schoo
Page 25 and 26: Jstatement/record of needs but to e
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TSSS Education Booklet - Turner Syndrome Support Group (NZ)

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