Those Who Suffer Much, Know Much 2010 - User Control Panel

Patient Testimony has added weight to the Evidencejust not ‘officially’This LDN story began with Ian Zagon and Patricia McLaughlin’s research andBernard Bihari’s groundbreaking clinical work - yet no-one else heard of LDN.The professionalism, dedication, and support of professionals such as Dr DavidGluck and Dr Skip Lenz of Skip’s Pharmacy followed, and; with the help oftireless voluntary LDN advocates, more began to hear of LDN, followed by asubsequent increase in patient testimonies crediting LDN for improved health.Interestingly, as LDN’s profile increased on the back of patient testimony, sodid further research and trials.Yet how can this be when scientists tell us patient testimony has no scientificvalue?Patient testimonies from MS and other disease sufferers who’ve slowed orhalted progression of their disease and had symptom improvement with LDNshould be credited for helping build a compelling case for LDN. The increasingvolume of their collective voices has been heard through the increasing volumeof their heartfelt testimonies.While scientists of nearly every health discipline continue to reiterate thatpatient testimony bears no scientific value and can never achieve any scientificvalue, heightened awareness, research, and studies prove patient testimonyhas been perceived as a form of evidence that has added weight to thepromise, and therefore, has been recognized as having ‘volume value’.Patient Testimony would add valueto our Health SystemsIt’s true that testimonies represent only one facet of ‘health outcomeevidence’. It’s also true that at present, LDN health success stories and casestudies, along with a good safety profile, are still not sufficient to alleviate fearof litigation for those doctors who may want to offer LDN as a treatment optionfor their patients.A collection of patient case studies can, however; build to provide sufficientevidence to challenge the status quo, and could be used to advocate forgovernments to initiate and fund clinical trials or pilot clinical network studiesin the best interests of public health.Patient testimony incorporated into our public health systems would add value:(1) If patient testimony was incorporated into well-structured, centralizedhealth systems free of conflicting interests that threaten data integrity, it would Case Health Pty LtdRevised – July 2007, July 2008, July 2009, July 2010Page 16/433