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no place - UF Health Podcasts - University of Florida

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COVER STORYhealthBy April Frawley BirdwellLong-distance<strong>Health</strong> travel is booming. While some patients seek expertise in distant locales(including programs at <strong>UF</strong>) others are opting to leave the states for cheaper care.They arrived at the <strong>UF</strong>Proton Therapy Center every morningby 8. By 8:25, Alex Barnes, then 4, wassedated, strapped onto a table whiledoctors and technicians prepared toblast his brain tumor with a precisebeam <strong>of</strong> radiation.By 10, the little boy from Englandwas awake, happy and ready to go tothe beach or the zoo or wherever elsehis mother and grandparents plannedfor the day.“He came away from that treatmentthinking he had a giant vacation,” saysAlex’s mother, Rosalie Barnes, whobrought her son from their home inLeicester, England for 12 weeks lastSeptember so he could undergo protontherapy treatment in Jacksonville. “Itwas winter, the weather was beautiful. We sampled all the delights <strong>of</strong>Jacksonville, and my son thinks <strong>of</strong> it as a great experience.”Alex suffers from a rare type <strong>of</strong> cancer called anaplastic ependymoma.Diag<strong>no</strong>sed in 2007, he underwent surgery to remove the tumor and had 14months <strong>of</strong> chemotherapy before coming to the United States for protontherapy. The tumor came back after his chemo ended, and because <strong>of</strong> hisage and the sensitive location <strong>of</strong> his cancer, <strong>no</strong>rmal radiation wasn’t a<strong>no</strong>ption for him. So his parents did what they felt they had to do, theyraised $150,000 — in three days — and brought their boy to the UnitedStates for proton therapy, a treatment <strong>no</strong>t available in their country.Although <strong>UF</strong> and the Shands <strong>Health</strong>Care system don’t explicitlymarket to international patients, or even to Americans living in distantstates, certain highly specialized programs in Gainesville and Jacksonvillehave become hot spots for patients from across the country and globe. Asone <strong>of</strong> only six proton therapy centers in the country, <strong>UF</strong>’s ProtonTherapy Institute is among them. (For more on a few <strong>of</strong> these programs, seepage 18)For most <strong>of</strong> the patients who travel to <strong>Florida</strong> for care, the sunshine andpalm trees are just a pleasant bonus. The real draw is the expertise.POST07 / 08 • 0916 POSTVisit us online @ http://news.health.ufl.edu for the latest news and HSC events.

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