e upheld. Indeed, this c<strong>on</strong>clusi<strong>on</strong> follows from the experience in other States,including the United States and the UK.1.62 In the absence of a clear legislative framework, the Commissi<strong>on</strong>acknowledges that health care professi<strong>on</strong>als have faced difficulties in dealingwith the many complex issues arising from advance decisi<strong>on</strong> making. TheCommissi<strong>on</strong> has c<strong>on</strong>cluded that, due to the complexity of many of the issuesinvolved, a clear statutory framework is necessary. In light of the general settingof the law <strong>on</strong> capacity in which advance care directives are c<strong>on</strong>sidered, it isappropriate that this legislative framework should be placed within the widerframework of the reform of the law <strong>on</strong> mental capacity. The Commissi<strong>on</strong>therefore recommends that an appropriate legislative framework should beenacted for advance care directives, as part of the wider c<strong>on</strong>text of reform of thelaw <strong>on</strong> mental capacity in the Government‘s Scheme of a Mental Capacity Bill2008.1.63 The Commissi<strong>on</strong> recommends that an appropriate legislativeframework should be enacted for advance care directives, as part of the reformof the law <strong>on</strong> mental capacity in the Government‟s Scheme of a MentalCapacity Bill 2008.(7) The legislative framework in a wider health care setting1.64 In the Commissi<strong>on</strong>‘s view, any legislative framework must be seen inthe c<strong>on</strong>text of the <strong>on</strong>going development of good medical practice. In thatrespect, the Commissi<strong>on</strong> c<strong>on</strong>siders it important not to see an advance caredirective merely as an end in itself – a legal ―event‖ so to speak – but also aspart of a wider process that could facilitate the development and improvementof healthcare planning.1.65 Central to healthcare planning is good communicati<strong>on</strong> betweenpatients and medical professi<strong>on</strong>als. Good communicati<strong>on</strong> results in improvedinformed decisi<strong>on</strong> making, which is c<strong>on</strong>sistent with the c<strong>on</strong>cept of informedc<strong>on</strong>sent and greater patient aut<strong>on</strong>omy. This should also form part of anyproposed legislative scheme for advance care directives. 87 In developing thec<strong>on</strong>cept of a health care plan, the patient is encouraged to make decisi<strong>on</strong>sabout their overall care plan. In order for this to reflect reality advice can andshould be sought from doctors, nurses, midwives or other health careprofessi<strong>on</strong>als. 88 Treatment should be explained to patients in a way they canunderstand and they should be encouraged to ask questi<strong>on</strong>s. Through thisprocess, the patient can then make an informed and truly aut<strong>on</strong>omous decisi<strong>on</strong>.8788See paragraphs 1.86-1.95, below.For more <strong>on</strong> healthcare professi<strong>on</strong>als see paragraphs 3.02-3.05.29
1.66 While many may not wish to discuss difficult health care decisi<strong>on</strong>s inadvance – including preparati<strong>on</strong>s for death and dying - discussi<strong>on</strong>s can preventmisunderstanding when the time comes to making medical decisi<strong>on</strong>s. Thesediscussi<strong>on</strong>s can be with the pers<strong>on</strong>‘s own local doctor, in a nursing home or in ahospital. While communicati<strong>on</strong> is the key to making a healthcare plan, thetiming of such a discussi<strong>on</strong> is also critical. 89 Discussi<strong>on</strong>s far in advance of theactual event being discussed, such as stroke or heart attack, may becomeredundant by the time they actually occur because relevant treatment opti<strong>on</strong>smay be very different by comparis<strong>on</strong> with the time when the discussi<strong>on</strong> tookplace. Equally, discussing care opti<strong>on</strong>s <strong>on</strong> the day that a pers<strong>on</strong> is admitted to anursing home may not be suitable, as the pers<strong>on</strong> is likely to be dealing withother issues such as illness or loss of independence. 901.67 While some of these issues are outside the direct scope of this<str<strong>on</strong>g>Report</str<strong>on</strong>g>, it is n<strong>on</strong>etheless worth noting the importance of health careprofessi<strong>on</strong>als being trained in the process involved in this discussi<strong>on</strong>, and itstiming. It is essential that a healthcare plan is tailored to each individual and itbased <strong>on</strong> the wishes of the individual. 91 While this process may be timec<strong>on</strong>suming, it ensures that the preferences of the patient are made known.Thus, a healthcare plan establishes the wishes of a patient and, through thisprocess, the dignity and aut<strong>on</strong>omy of a patient is strengthened.1.68 In the specific c<strong>on</strong>text of end-of-life decisi<strong>on</strong>-making, the IrishHospice Foundati<strong>on</strong>‘s Forum <strong>on</strong> the End-of-Life, 92 which was launched in March2009, aims to develop a ―visi<strong>on</strong> of how modern Ireland can address thechallenges of dying, death and bereavement.‖ 93 The Forum also seeks todetermine the key issues at the end of life with input from the views andc<strong>on</strong>cerns of the public and various organisati<strong>on</strong>s. All types of deaths – sudden,traumatic and expected – form part of the discussi<strong>on</strong>s within the Forum. Am<strong>on</strong>gthe issues raised are the need for a clear policy <strong>on</strong> the fragmentati<strong>on</strong> of care8990919293Froggatt, Vaughan, Bernard and Wild <strong>Advance</strong> <strong>Care</strong> Planning in <strong>Care</strong> Homes forOlder People Final <str<strong>on</strong>g>Report</str<strong>on</strong>g> (April 2008) at 36.O‘Shea, Murphy, Larkin, Payne, Froggatt, Casey, Ní Léime and Keys, End-of-Life<strong>Care</strong> for Older People in Acute and L<strong>on</strong>g-Stay <strong>Care</strong> Settings in Ireland (2008).A survey c<strong>on</strong>ducted by the Nati<strong>on</strong>al Council <strong>on</strong> Ageing and Older Peopleindicated that the medical professi<strong>on</strong> tend to discuss treatment and services withthe family rather than the patient. Nati<strong>on</strong>al Council <strong>on</strong> Ageing and Older PeoplePercepti<strong>on</strong>s <strong>on</strong> Ageism in Health and Social Services in Ireland (<str<strong>on</strong>g>Report</str<strong>on</strong>g> No. 85,2005), at 72.www.endoflife.ieIbid.30
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close relationship that can exist b
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care directive. 105 The Commission
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the wishes or making their own deci
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sustaining treatment or whether the
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(b) for the guidance of persons, in
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omission.‖ 5 The Supreme Court in
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who acted in good faith could be pr
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or health professional cannot, for
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follow an advance care directive is
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the Board can erase the name of a n
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5.07 The Commission recommends that
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directive would be likely to be enf
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Ensuring that the wishes of the mak
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APPENDIX DRAFT MENTAL CAPACITY (ADV
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Mental Health Act 2001Powers of Att
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―basic care‖ includes, but is n
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(3) The scope of an advance care di
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(ii) the name and address of that p
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(b) Without prejudice to section 5(
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paragraph 3.13 (palliative care), p
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Subsection (2) implements the recom
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www.lawreform.ie