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JSTA December 2010 - Australian Association of Stomal Therapy ...

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conference report<br />

Carol Stott<br />

I was fortunate enough to attend the BEECHAC Conference on<br />

13 June, where I took part in two panel discussions and gave a<br />

talk on Healthy Body Image. During my time at the conference, I<br />

met many <strong>of</strong> the children, their families, organisers and speakers.<br />

This is when I realised what a huge commitment it had been to<br />

organise such an event and how committed the organisers were.<br />

The term ‘BEECH’ is used collectively to describe the congenital<br />

conditions <strong>of</strong> bladder exstrophy, epispadias, cloacal exstrophy<br />

and hypospadius which are rare conditions <strong>of</strong> the genito-urinary<br />

(GU) system. The defects range from bladder exstrophy, which<br />

is a severe defect characterised by externalisation <strong>of</strong> the bladder,<br />

splaying <strong>of</strong> the urethra and separation <strong>of</strong> the pelvic bone to<br />

relatively mild defects such as glandular epispadias, which is<br />

a minor defect on the top <strong>of</strong> the penile shaft 1 . The incidence <strong>of</strong><br />

such defects is rare, occurring in about 1 in 10,000 to 50,000 live<br />

births, and is twice as common in males, than it is in females 1 .<br />

Because the conditions are rare, it is <strong>of</strong>ten difficult for people<br />

with BEECH conditions to access the care that they need,<br />

especially holistic care – or to even understand exactly what care<br />

is needed for themselves or their children.<br />

WCEt report<br />

32 Journal <strong>of</strong> <strong>Stomal</strong> therapy australia – Volume 30 Number 4<br />

Preparing for cairns 2011<br />

Brenda Sando CNC STN • The Wesley Hospital, Brisbane, QLD<br />

The Adelaide WCET congress committee is still hard at work<br />

to ensure the congress which is being held in Adelaide 20–24<br />

April 2012 will be a congress which will attract people from<br />

many different nations. They meet monthly and sometimes<br />

more frequently as well as communicating via email. There is<br />

still a lot <strong>of</strong> work to be done but they are meeting their timeline<br />

requirements. The website is now up and running and you can<br />

access it at www.wcetn.org as well as the AASTN website to<br />

submit your expression <strong>of</strong> interest. You will then receive updates<br />

on information about the congress.<br />

There will also be a lot <strong>of</strong> information at the AASTN conference<br />

from 3 to 7 July 2011, which is being held in Cairns, so register<br />

online for this inaugural event Joint Conference with Tripartite<br />

Colorectal Surgical Society. Log onto the <strong>Stomal</strong> <strong>Therapy</strong> website<br />

at www.stomaltherapy.com and click on new and events to find<br />

out more and register. If you register before 18 March, the cost<br />

is only $525 for members, which is a great price considering<br />

it is two conferences for the price <strong>of</strong> one. The theme <strong>of</strong> our<br />

conference is: Leaders in Practice – Captured in Paradise.<br />

Fees are now due for the WCET, so if your membership is due<br />

by 31 <strong>December</strong> <strong>2010</strong> please go online and pay them now. You<br />

The aims <strong>of</strong> the conference were to give <strong>Australian</strong> BEECHAC<br />

members the opportunity to meet and network with each<br />

other and strengthen support with health pr<strong>of</strong>essionals and<br />

agencies. There were guest speakers from similar associations<br />

around the world including the UK and USA. There were<br />

health pr<strong>of</strong>essionals from all over Australia and other parts <strong>of</strong><br />

the world with an interest in BEECH conditions. The children’s<br />

activities organised were for children with BEECH conditions<br />

and their siblings and included a trip to Taronga zoo.<br />

The conference was a huge success thanks to Alana Sullivan and<br />

her team, which included Katy Hargreaves, Chris Sylva, Julie<br />

Fitzhardinge and Imogen Yang. The feedback received from<br />

attendees has been tremendous.<br />

refereNceS<br />

1. Wong’s nursing care <strong>of</strong> infants and children. Chapter 11, Conditions<br />

Caused by Defects in Physical Development. St Louis: Mosby, 2003,<br />

p. 482.<br />

may like to pay for two years while the exchange rate is very<br />

favourable and then you won’t have to remember next year. I<br />

have sent a reminder to those whose membership is now due,<br />

so if you did not receive that reminder it means you are paid up<br />

until end <strong>of</strong> 2012 or, in a few cases, 2013.<br />

By the time you read this report in the journal I will be retired. I<br />

retired in my position as CNC STN on 28 October this year after<br />

having been at The Wesley Hospital for 25 years, 19 <strong>of</strong> those<br />

as an STN. I have had a wonderful career, especially in stomal<br />

therapy nursing and have met many wonderful people along<br />

the way as well as worked with a great team at Wesley. I would<br />

like to thank my many STN colleagues that I have shared with<br />

over the years for the friendship, care and sharing <strong>of</strong> knowledge<br />

and assisting me to solve difficult problems. You are a wonderful<br />

group <strong>of</strong> people who show so much compassion and care as<br />

well as being innovative in ways that amaze patients and other<br />

nurses.<br />

I will be going to the AASTN conference in July next year as<br />

I will fulfill my commitment as WCET <strong>Australian</strong> ID until the<br />

2012 congress, so see you in Cairns.

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