11 Priory Hall, Stillorgan, Dublin 18, Ireland t +353 1 210 8850 f + ...

11 Priory Hall, Stillorgan, Dublin 18, Irelandt +353 1 210 8850 f +353 1 210 8450 e ibedublin@eircom.netDue to the continued discrimination that people with epilepsy and otherdisabilities have to this programme also focuses on the identificationand empowerment of people with epilepsy and other disabilities toundertake self-representation and advocacy. It motivates to improveownership by people with epilepsy and other disabilities within theorganisation and enhances transformation within the organisation.Full member since May 2001The main purpose ofthis programme is theeconomicdevelopmentof people with epilepsyand other disabilitiesand to work toward theirinclusion within themainstreameconomy.Training is provided topersonnel,responsiblefor the operation of theNot-for profit organisation, with individual and corporate or organisationalmemberships available.organisation’s protectiveworkshops. Workshop transformation is continually being attended toin order to meet requirements of legislation and demand. Assistance isfurther provided to protective workshops regarding national marketingof their products.Epilepsy South Africa is a national organisation, with branches acrossthe country. The organisation was established in September 1967 andprovides services to the 1% of persons with epilepsy residing withinSouth Africa. We also support persons with other disabilities, as wellas all those affected by epilepsy through our service programmes.Training is provided to skill and development workers to facilitate theestablishment of income generation groups. In addition, the Startand Improve your Business Programme of the International LabourOrganisation are utilized to facilitate the training of small businessadvisors, to assist beneficiaries with the establishment of own smallEpilepsy South Africa is a dynamic organisation providingdevelopmental services nationally to promote equal opportunitiesfor people with epilepsy and other disabilities.To provide integrated services that are equitable, accessible,sustainable and people-centered with and for people with epilepsyand other disabilities all affected by epilepsy, and to promote socialjustice.and micro enterprises.This programme also entails providing assistance to beneficiariesregarding further education opportunities and career placement.The role of the National Office of Epilepsy South Africa has historicallybeen to coordinate service delivery, establish and maintain servicestandards and facilitate service development at a national levelamongst the branches. It also provides strategic leadership to thesein order to ensure service excellence, sound management and financialNational media awareness and marketing programmePeople with epilepsy and other disabilities are faced with continueddiscrimination and isolation on a daily basis due to a lack of knowledgewithin society about epilepsy and inclusion aspects. This programmeredresses the lack of knowledge about epilepsy as a condition as wellas the organisation itself, in order to decrease discrimination and toincrease the sustainability of the programmes, facilitated by Epilepsystability.The National Skills Development Programme aims to ensure excellentservice delivery through skills provisioning to all staff, volunteers andconsumers within the organisation. To interact effectively with skillsinitiatives of Government and enhance the employment opportunitiesof people with epilepsy and/or other disabilities.South Africa.We are privileged to have South African Celebrities who acts asambassador’s for the organisation and launched a very successfuladvertising campaign in 2008 and 2009.The organisation provides online counselling to individuals, with noprerequisite to receive this information. They also liaise with individualson the organisation’s Facebook and blog amongst some socialWith this programme we aim to provide sustainability to thenetworking avenues.Epilepsy South Africa motto:“Changing obstacles into true potential!”organisation and all its programmes through the identification ofpartners and activities, including donors and the development aswell as maintenance of long-term funding.This programme encompasses a variety of national programmesand initiatives. The main purpose of this programme is to combatdiscrimination towards persons with epilepsy and other disabilities aswell as to enhance their inclusion in mainstream society.The National Office of the organisation coordinates and facilitatesnational social development programmes and initiatives throughoutSouth Africa. New initiatives are identified through research, liaisonwith branches as well as members. Through such consultation andliaison, interaction with grassroots communities and consumers,including the youth, women, the aged and persons living with HIV/AIDS, are ensured. Projects that forms part of our social developmentprogramme are: Child and Youth development, rural development,training & education, vulnerable group development and research.Epilepsy South Africa Helpline 0860374537Website: www.epilepsy.org.zaE-mail: info@epilepsy.org.zaTel: +27(0)21 447 3014Fax: +27(0)21 448 5053PO Box 73, Observatory, 7935Recognised as a South African NPO Registration number 001-911

11 Priory Hall, Stillorgan, Dublin 18, Irelandt +353 1 210 8850 f +353 1 210 8450 e ibedublin@eircom.net…is enjoyable…eases everyday…brings you furtherDuring a personal conversation or even on the telephone,many of your questions can be answered. With Epi-Suisse bothepilepsy sufferers and their relations will always find an openear. Furthermore, you may rest assured that your requests willEpi-Suisse is an organisation throughout Switzerland that isoccupied with the psychosocial issues of both those sufferingbe handled in a careful and discreet manner. Spontaneousvisits to the premises are also more than welcome.We are here for you five days a week so just give us a call:Tel. 043 488 68 80with epilepsy and their relations. Epi-Suisse was founded on thesecond of July 2002 by various Swiss epilepsy organisations,and business was inaugurated on the first of January 2003.Epi-Suisse not only improves the standard of life but encouragesthe social integration of epileptic people in schools, advancededucation, careers and hobbies. A well-founded and decentstandard of life should and ought to be matter of fact forepilepsy sufferers, too.Epi-Suisse looks behind the principal restrictions of everydaylife for those inflicted with epilepsy, and goes on to examinethese in a systematic manner. It is only the knowledge ofsuch correlations that will enable possible action in the wayHiking, a visit to a museum or simply theenjoyment of a delicious meal. Incongenialcompany all of these things can form anunforgettable experience.Epi-Suisse regularly organises excursions for epileptic patientstogether with their relatives, and it accompanies theseexcursions, too. This enables all participants to take partlightheartedly. A program is chosen in accordance with both thepossibilities available and the interest of those taking part.As a member of Epi-Suisse you will receivea personal invitation.of lobbying and the opening of «fairchance» channels as wellas the encouraging of self responsibility in all aspects of lifefor epileptic people.Confidence and the joy of livingEpi-Suisse distributes information concerning epilepsy andits consequences in order to awake a better understandingof the illness and the problems of those inflicted. This is notonly a practical activity, but one that is connected to scientificprojects as well as the research of the psychosocial aspectsof epilepsy.With a multiple palette of specifically aimed services, the strivingfor comprehensive care of epileptic people and their relativescan be supported by the following:• Regular circulation of a magazine• Publications• Self help groups- Information events• Advice and dialog• Leisure and hobby activitiesActing as a proxy on behalf of the patients towards employers,authorities, institutions, media and above all society as a whole,is additionally of major importance to Epi-Suisse.Meeting kindred spirits, exchanging thoughts, discussingproblems and nurturing friendship: all these things as well asthe possible acquaintance of a friend for life are offered by thevarious self-help groups for epileptic people.Epi-Suisse also encouragesthe formation of new selfhelpgroups throughoutSwitzerland and supportsthose already establishedwith their activities.We will help you find a self-help group that is nearby.Dieter Brucker was a renowned and successful gymnast priorto being hit by a lorry in 1971. He recovered rapidly from theaccident for which he was not to blame, yet fourteen yearslater epilepsy struck him as a belated result of the scull braintrauma.Sport and fellowship had always played an important role in thelife of Dieter Brucker and now it became even more important.The newly struck Dieter Brucker spoke openly about his shortterm drop outs caused by the illness and about the positiveresults achievable with drugs. His gymnast colleagues neverturned their backs on him and he found understanding at hisplace of work, too.A REAL CHALLENGEDuring his free time Dieter Brucker remains active, whether withcompany football, fastball or as a supervisor for other gymnasts.From an occupational point of view hehas somewhat retreatedas his absences could not always be curbed with the use ofmedicaments. Furthermore, he has been urged to give up drivingwhich automatically complicates his journey to work.ENDURANCE PAYS OFFAfter several months of difficulty , Dieter Brucker finally graspednewly found courage. With an appropriate and exactly suitedtherapy he made enormous progress and gained new impetusthat propelled him to concentrate on the positive side of life.Endurance and team spirit coupled with confidence are certainlythe best recipe for himin life, regardless of thesituation.Fellowship is not onlyfound in sports but withEpi-Suisse too.Dieter Brucker (front row,right) with colleagues.

11 Priory Hall, Stillorgan, Dublin 18, Irelandt +353 1 210 8850 f +353 1 210 8450 e ibedublin@eircom.netSwaziland Epilepsy Organization is an Organization situated in theKingdom of Swaziland in the Southern Africa, whos main aim focusis to offer help and support to Epileptics around the country.Swaziland Epilepsy was established in 2003 and is a full member ofthe I.B.E whom she affiliated to since 11 July 2007. Our membershipincludes individuals and professionals involved in EpilepsyeducationWe represent over 1000 swazis with Epilepsy. In campaigningwe bring Epilepsy out of the shadow with its myth and traditionalattachments, unity and togetherness is the policy to achieve bestpractice for epileptics. We fight discrimination and stigma by ensuringthe right information reaches the people also the availability ofmedication. Support groups have also been established to help inthe communities.If you are living around Swaziland and surrounding areas you can accessthe events and information on Epilepsy through our newly launched websitewww.epilepsy.org.sz .Nation / Public awareness Campaigns. Offeringsupport on Epileptics support groups in the rural areas.“Since I was diagnosed with Epilepsy I never wanted anyone to knowabout my condition because it has always been associated with mythsand traditional attachments” Patricia Dlamini support groupHRH Prince Bandzile Patron of the SEO receiving a gift after he had touredone of the sugar mills in Swaziland creating awareness on Epilepsy in thework place.Educating students in schools on Epilepsy had been going on as part of theAwareness Campaigns the Swaziland Epilepsy has been conducting. Herethe stop student in essay writing on “Epilepsy in the Classroom” is beingpresented with an Award by the SEO’s management. From left Mr MbusomuniMahlalela (National Director SEO), Mr. Victor Erwin (Board member), Awardwinner from St Marks High School Mr Siyabonga Menon (Student) and MrZwane ( World Health Organization WHO representative)This was a field trip by HRH Prince Bandzile to meet the support groups inthe rural areas that are affected Epilepsy. This was try and see what canbe done in terms of incoming generating projects in these fields. Deliveringthe presentation is the former Minister of Agriculture Mr Mtiti FakudzeHRH Prince Bandzile presenting one of the Epileptic students at Lusoti PrimarySchool with action zone game pack to try and sensitize Epilepsy in Schools aroundthe region.For more information you can contact the national DirectorMr Mbusomuni Mahlalela,P.O Box 5638,Mbabane H100,Swazilandor e-mail: admin@epilepsy.org.sz